# ROHHAD Association

## Details

- **Country:** Scotland
- **Charity number:** SC045645
- **Status:** Active
- **Legal form:** SCIO (Scottish Charitable Incorporated Organisation)
- **Registered:** May 28, 2015
- **Register:** https://www.oscr.org.uk/about-charities/search-the-register/charity-details?number=SC045645


## Contact

- **Address:** 11A Lomond Crescent, Alexandria
- **Postcode:** G83 0RJ
- **Website:** www.rohhadassociation.com



## Activities

**Activities:** &#x27;It carries out activities or services itself&#x27;

**Purposes:** &#x27;the advancement of education&#x27;,&#x27;the advancement of health&#x27;,&#x27;the saving of lives&#x27;,&#x27;the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage&#x27;

**What the charity does:** The Rohhad Association supports people affected by ROHHAD Syndrome through improved quality of life initiatives, raising awareness, and advancing research. We work closely with the ROHHAD International Consortium—founded by our co-founder Elisabeth Hunter during the COVID pandemic—and collaborate with charities worldwide, including ROHHAD Fight Inc, ROHHAD Association Argentina, Belgium, and Nordic. Each year, our core activities include awareness campaigns, fundraising, advocacy, forming strategic partnerships, hosting online support groups, providing one-to-one peer and family support, and funding ongoing research with teams within the Consortium.

**Objectives:** The organisations purposes are: The Saving of Lives by funding and promoting research that will lead to new understanding and treatments, and brings us closer to a cure for the rare medical condition ROHHAD                                                                                 The advancement of health by funding and promoting research that will lead to new understanding and treatments, and brings us closer to a cure for the rare medical condition ROHHAD.  The relief of those in need by providing support for those suffering with ROHHAD, their carers, families and siblings.   The advancement of Education by funding and promoting research that will lead to new understanding and treatments and brings us closer to finding a cure for the  rare medical condition ROHHAD.    The ROHHAD association will achieve the 4 purposes detailed above by embarking on an extensive raising awareness campaign so that the needs of the children(and rarely adults) with ROHHAD and everyone who cares for them are recognised by wider society.  The ROHHAD association will also embark on an extensive fundraising campaign.





## Areas of operation

- **Main operating location:** West Dunbartonshire
- **Geographical spread:** UK and overseas






