OpenCharities

Action for XP

Country
Scotland
Charity number
SC045465
Status
Active
Registered
March 6, 2015
Legal form
SCIO (Scottish Charitable Incorporated Organisation)

Address

Address
Westfield
Cushnie
Alford
Aberdeenshire
AB33 8LP

Contact

Website
actionforxp.org
Website screenshot

Activities

'It makes grants, donations, loans, gifts or pensions to individuals','It carries out activities or services itself'

'the advancement of education','the advancement of health','the promotion of equality and diversity','the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage'

Action for XP is established for charitable purposes only, and in particular, the objects are: To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. To promote education and awareness both within the XP community and externally within the professional community and general population.

Beneficiaries: 'People with disabilities or health problems'

Objectives: 4 The organisation is established for charitable purposes only, and in particular, the objects are: 4.1 To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. 4.2 To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. 4.3 To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. 4.4 To promote education and awareness both within the XP community and externally within the professional community and general population. 4.5 The promotion of inclusivity, diversity, equality, and awareness, operationally and across our activities

Geography

Main operating location
Aberdeenshire
Geographical spread
UK and overseas

Finances

Period end Income Expenditure Employees Accounts
March 31, 2025 £24,952 £54,859 2 PDF 23.1 MB
March 31, 2024 £24,840 £11,635 -
March 31, 2023 £66,164 £23,839 -
March 31, 2022 £5,428 £6,149 -
March 31, 2021 £9,226 £849 -