OpenCharities

MECP2 Duplication UK

Country
Scotland
Charity number
SC044781
Status
Active
Registered
March 31, 2014
Legal form
Unincorporated association

Address

Address
34 Montgomerie Street
Ardrossan
North Ayrshire
KA22 8HP

Activities

'It makes grants, donations, loans, gifts or pensions to individuals','It carries out activities or services itself'

'the advancement of education','the advancement of health','the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage'

We provide support emotionally, financially and practically to families who are affected by MECP2 Duplication Syndrome, helping to reduce feelings of isolation and exclusion. We raise awareness of MECP2 Duplication Syndrome and work with other similar Charities and organisations worldwide. We promote and Support research into MECP2 Duplication Syndrome which could lead to treatments which could enhance the lives of those affected with the syndrome. A UK site is opening soon to trail a potential drug. Our Charity is growing and developing for the long term benefit of our Community. We hold Family Day Conferences for our families and they receive all the up to date information from the scientists and experts on the condition. We also provide grants and hold meet ups and fun days out to the zoo and other venues. At our meet ups, face to face support is very valuable and the families spending time together is wonderful for sharing advice, knowledge, tips and information.

Objectives: 1. The relief of those in need by reason of ill health & disability by providing non-medical support to UK patients, their families and carers with a connection to the condition. 2. The advancement of education and the promotion of diversity and equality by raising awareness of the condition and its treatment. 3. Advancing the education of the public and of the medical professions concerning the condition, the causes, prevention and treatment. 4. The advancement of health by supporting research projects worldwide with funds/donations to help find further treatment to improve quality of life.

Areas of operation

Main operating location
North Ayrshire
Geographical spread
Scotland and other parts of the UK

Finances

Period end Income Expenditure
March 31, 2025 £9,978 £9,484
March 31, 2024 £15,500 £15,777
March 31, 2023 £1,319 £4,506
March 31, 2022 £1,921 £770
March 31, 2021 £1,024 £1,007