2025-06-30-accounts - Iih UK

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IDIOPATHIC INTRACRANIAL HYPERTENSION UK (IIH UK) TRUSTEES’ ANNUAL REPORT AND ACCOUNTS 2024-25

(Registered Charity Number – England & Wales 1143522, Scotland SC043294)

Charity Trustees during the report period

The following represented IIH UK as trustees during the report period 1 July 2024 to 30 June 2025:

Michelle Williamson Chair Clare Parr Information Rep Betsy Clarke Treasurer Amanda Denton Research Rep Kerryann Chalmers-Worth Secretary

Structure, Governance and Management

IIH UK was founded in 2008 and established as a registered charity in England and Wales in 2011 and in Scotland in 2012. It is governed by its founding constitution, as subsequently amended on 12 May 2012, 21 June 2014 and 13[th] July 2019. The charity is constituted by association.
All trustees have given their time voluntarily during 2024-25 and have not received remuneration or any other benefits in undertaking their duties. Trustees and Representatives are permitted to claim expenses to ensure they are not out of pocket whilst undertaking their volunteer responsibilities. (E.g., travel and accommodation.) Following endorsement by the 2014 Annual General Meeting (AGM), trustees are elected for a period of 3 years and remain empowered to appoint new trustees in-year by extraordinary trustee meeting, although trustees appointed in this way must seek re-election at the following AGM.
IIH UK is a member of the National Council for Voluntary Organisations (NCVO), Rare Disease UK, the Neurological Alliance, the Health and Social Care Alliance Scotland, Genetic Alliance, Benefits and Work and an affiliate of the James Lind Alliance. We also support the Brain and Spine Foundation and hold a lotteries license with Sunderland City Council.
We became General Data Protection Regulation (GDPR) compliant in March 2018.
We bank with the National Westminster Bank.
At the year-end, our team members are: Shelly Williamson, Trustee. Clare Parr, Trustee. Betsy Clarke, Trustee. Amanda Denton, Trustee. Kerryann Chalmers-Worth, Trustee. Nisha Sedani,

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

Research Rep. Katie Williamson, Shop Rep. Mellissa Monsoon, Arts and Culture Rep. Lisa Whelan, Publicity Rep. Lizzie Davies, Newsletter Rep. Jan Baker, Fundraising Rep.

Charity Objects

The charity’s objects as amended on 13 June 2019 are as follows:
a. To provide the best possible support and advice network for people with Idiopathic Intracranial Hypertension (hereafter referred to as IIH) and their families.
b. To advance the education of the public in general, people with IIH and the medical community in particular on the subject of IIH.
c. To promote and support research for the public benefit on all aspects of the condition IIH and to publish the useful results.
d.

Summary of main activities undertaken by IIH UK for the public benefit in relation to the objects

IIH UK would not be able to exist without the small number of resolute volunteers who freely give their time; many of whom have IIH themselves. They assist with the day- to-day running of the charity in areas such as fundraising, membership, publicity, merchandise, newsletter production. In planning and undertaking the activities during the report period, IIH UK trustees were cognisant of the Charity Commission’s guidance on public benefit. With the objectives in mind, the Charity’s key activities fall into 4 main areas: to provide an excellent support network for people with IIH and their families/friends/carers; to educate the public and the medical community in particular about IIH; to support and promote research into the condition, and finally, to raise the profile of IIH UK.

Summary of IIH UK’s achievements during 2024-25

IIH UK has been very proactive throughout the year, as shown below:

Support

a. IIH UK website. The Charity’s website traffic at www.iih.org.uk continues to increase. During this fiscal year over 168,000 users viewed 217,548 pages. The website is maintained by FAT Promotions and is kept up to date by both FAT and some of our volunteers.

Our website was launched during 2021. The members only area has proved popular, it is an area where members can view current and past newsletters, download benefit information guides

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

Website statistics.

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30,000
eT
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b. We will continue to offer our support and the latest medical and research information on our website www.iih.org.uk, on Facebook IIH UK National Charity, X @IIHUK in our members newsletters and via our patient leaflets and patient conference/webinar.
c. HOPE project.

Our HOPE programme is a virtual self-management programme and support community for people with IIH and parents of children with IIH from around the UK.

to cope with many of life’s challenges, frustrations, fears and isolation. To help people reach their potential by supporting them at the earliest possible stage, Coventry University’s evaluation of the HOPE Programme has shown that people are emotionally and psychologically healthier and more resilient in the face of ongoing stress. Further, the course improves people’s quality of life through teaching important life skills such as goal setting, relaxation and stress management. It builds strong relationships in and across community, people who attend HOPE courses often remain in touch with each other after the course ends and provide each other with ongoing peer- support and encouragement. This is important in a rare condition as many people do not know anyone else with their condition. Online delivery will support the further development of an IIH peer support community across the UK.

You can read about the HOPE programme here: htps://www.h4c.org.uk/hope-programme

To date 806 people have participated on our HOPE programme (59 parents and 747 people living with IIH.) HOPE is a 6-week online course available 24/7 on any device. Covering things like mindfulness, stress management, dealing with setbacks and fatigue management amongst other things. Previous HOPE participants have shown clinically meaningful improvements in mental wellbeing and describe feeling more hopeful and able to set realistic goals. After HOPE, people living with IIH across the UK feel less isolated, more understood and more confident to manage their IIH day to day. IIH UK promote the HOPE project through our website, social media, members newsletter, conferences, NHS and charity partners. We continue to evaluate HOPE for IIH collecting stories and feedback to refine future courses.

Here is what people who have done the course are saying.

'It really does give you a better understanding and has helped me explain better to others about what I can and can’t do but also be more acceptance to help.'

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

to talk to you about your goals and discussion topics is really key. The isolation that comes with the condition has a real negative impact, so it is good have someone there to give feedback.'

'I have enjoyed the fact that it is an online course but yet interactive and with the opportunity for live video chat.'

'I have enjoyed all of it, loved the cafes being able to meet others and listen to how to manage experiences and be able to offer support. Loved the mindfulness exercise of leaves on the stream found that very helpful.'

You can sign up for the next course here: htps://www.h4c.org.uk/courses-all/iih-110324

Statistics for IIH Hope Courses during the fiscal year.

	Date of Course	Enrolled
Parent	24/10/2024	7
Adult	24/10/2024	60
Parents	19/03/2025	14
Adult	19/03/2025	62

d. We launched our IIH Activity Programme on World Brain Day – 22[nd] July. Working with 1FitLife and physiotherapist Nuala Donovan we put together a series of videos which you will find on our YouTube Channel. The activity programme was based on the results of an IIH UK research grant given to Nuala in 2022/23

htps://www.youtube.com/channel/UCEpwmN0MWtQ-6hRSL4A1Vpw

feeling on a day-to-day basis. They are perfect for anyone living with IIH who has not been able to exercise, done in both sitting or standing at a tempo that you yourself set we hope that you have as much fun doing them as we did making them. We suggest you first watch them in this order before deciding your own road to improved fitness.

Introduction to Nuala. https://youtu.be/ryZ6uEjRPB4
Introduction to the IIH Activity Programme. https://youtu.be/ELnF9OiCLnk
Structure of the IIH Activity Programme. https://youtu.be/LzyXbHMTh-c
IIH Activity Programme options. https://youtu.be/Fw-4AN78UEY
Warm up. https://youtu.be/ptUqhKJHP1g
Balance. https://youtu.be/wXLpNRw8d48
Cardio. https://youtu.be/UyUQc4qgft0
Strength. https://youtu.be/E-13AM9qtgs
Combined. https://youtu.be/jq-v7HYDM_k
Cool down. htps://youtu.be/Fj_KvcTJN-g

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

e. X. W e have now been on twitter/X for 14 years @IIH UK. X has lost its popularity with the
people we support since the takeover, and many have left the platform. Our followers fell to 2519, 2574 down 57 on the previous year.
f. Instagram.

building our followers and now have 1107, up 245 on the previous year.

g. Facebook.
Facebook continues to be our most popular social platform, and we now have over 10,500 followers.

Educaton.

What is IIH What is IIH without Papilloedema (IIHWOP) Optic Nerve Sheath Fenestration

IIH and Weight Headache Acetazolamide Information for friends, family and carers

ICP Monitoring IIH and Education Benefits information Employment with IIH Medication Overuse Headache in IIH Shunts and IIH Stents and IIH Topiramate Visual Problems in IIH When I go to the Eye Clinic

i. We continue to be a partner of Hidden Disabilities; lanyards are available in our online shop.
j. We continue to sponsor the Paediatric IIH Special Interest Group (SIG), led by Dr Krishnakumar - Addenbrookes, Cambridge. Our Chair Shelly Williamson, and Research Rep Nisha Sedani are members of this SIG. There were no face-to-face meetings during the year, and all discussions done via email.
k. Our Arts and Culture rep Mellissa Monsoon held an exhibition. Titled - Sense of Stigma it was held at the Beaney House of Knowledge in Canterbury 10[th] August to 30[th] September.

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

The exhibition was about the stigma faced in healthcare and

=~ &F society when it comes to bodyweight, she shared her own lived ,°ce q experience as woman living with obesity as well as other stories from those who have faced barriers in healthcare. =| The exhibition featured a mixture of interactive sculptures,

ceramics, printmaking and illustration. Mellissa encouraged honest conversations about relationships with our bodies, and how we look at other people’s bodies.

l. Our Trustee Kerry attended the Tatton Flower Show to support Bethany Byrne, who lives with IIH. Bethany created a display ‘Blooming Perspective – A glimpse into IIH.
m. Building on from her ‘Sense of stigma’ exhibition our Arts and Culture Rep Mellissa released
a survey. Titled: The Joy of Fat: Celebration of Bodies htps://www.surveymonkey.com/r/TheJoyofFat
n. New information has become available on the use of Topiramate in pregnancy - htps://www.medicines.org.uk/emc/rmm/3082/Document
o. We held our Members 'Wellbeing and IIH' Conference on Saturday the 7th of June 2025 at Yarnfield Park, Stafford. You can read all about it on our website here: htps://www.iih.org.uk/shopimages/Conference%20report%202025.%20Final.pdf
p. We welcomed attendees from around the UK to attend the first face to face conference since before Covid. Fondly called our "weekender", we met those staying at the Hotel for a meal on the Friday night followed by drinks in the bar. Saturday was the main conference day and speakers from around the country talked about a range of topics related to IIH. We all learnt so much from the speakers and the interactive nature of many sessions got everyone joining in. After the talks on Saturday there was dinner and another opportunity to catch up with old friends and make new ones. The opportunity to share and connect with others with IIH was very much appreciated. The Conference report is available on our website.

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

Research

q. We continue to fund the travelling expenses for the Birmingham Trials which enables IIH Patients from further afield to take part via a research grant to University Hospitals Birmingham.
r. IIH Life Registry . We continue to be committed to fund the IIH: Life registry at a cost of £5,000 per annum. The IIH Life registry has been developed by Professor Alex Sinclair and captures routine clinical data from neurologists/ophthalmologists/ neuro-ophthalmologists and orthoptic led clinics that management IIH patients around the United Kingdom.

The IIH Life Registry is an excellent resource being used by the Birmingham team since 2013. It enables the IIH team to record information including: visual test results, Quality of Life measures, headaches, medication usage, related conditions, heights and weights. The benefits for this including being able to link changes between these markers to show how they affect each other and also the impact that IIH is having on a person's life.

s. IIH Intervention Trial. We continue to support this important trial. #10 of our Top ten areas
for IIH research is ‘What is the best type of intervention to treat IIH’. We do not yet know which of the current available treatments is the best to treat IIH and were delighted to be invited to the steering group to discuss the development of a new Stent v Shunt trial. We found out in March 22 that Prof Sinclair was chosen to lead this research which aims to establish the best surgical intervention (shunt V stent) in people with IIH to prevent blindness. Finding out the most effective method of surgery is vital to improve the management and quality of life of people with IIH. IIH UK was consulted and involved in a successful research bid (National Institute for Health Research NIHR) led by Birmingham University to investigate Shunt and Stent interventions in people with IIH. IIH UK engaged in the grant bid and are continuing to be involved in reviewing trial documentation etc to ensure that it is easy to understand for people with IIH. IIH UK continue to be part of future steering group meetings.

Birmingham University have the following to say about the IIH Interventions trial and why it is important.

‘The IIH Intervention Trial is a randomised clinical trial that will compare two interventions for patients with Idiopathic Intracranial Hypertension (IIH) and progressive visual loss: Cerebrospinal fluid (CSF) shunting and Dural venous sinus stenting (DVSS).

Both interventions reduce intracranial pressure and preserve vision, but there has been no direct comparison between them and we still do not know which one is more effective. This is an important clinical question and the trial will change practice at national and international level. We have engaged patient groups (IIH UK) and opinion leaders from across the country in order to design high-quality research methodology, while providing our study participants with an exceptional research experience. The trial will enrol 138 patients from 15 UK hospitals who will be randomly allocated to one of the two interventions. We will assess which one is better at preserving vision, more cost-effective, their possible complications, and their impact on headaches

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

and on quality of life. The trial will last for 5 years, and we commit to delivering patient-centred scientific research with integrity and strong ethics. Our vision is to advance knowledge, develop treatments and improve the care of patients with IIH.’

More recently, due to the challenges with recruitment our Trustee Amanda took part in a review with the NIHR (National Institute for Health Research) to support the need for this trial from the perspective of people living with IIH as it was at risk of being closed. The NIHR reviewed the submissions of IIH UK and the research team which resulted in the recruitment period for the trial being extended and the funding continued.

If you would like to take part in this research trial you can look at the eligibility criteria here htps://www.isrctn.com/ISRCTN57142415 to see if you are eligible. If you are eligible and are interested in taking part, please contact your IIH doctor and ask to be put forward to the trial.

t. We supported the Neurological Alliance’s My Neuro Survey: The Neurological Alliance said:

‘Too many people affected by neurological conditions still can’t get the healthcare they need. In the Neurological Alliance’s national neurological survey, My Neuro Survey, just 1 in 3 people said the healthcare they receive meets their needs. There are opportunities to change this, but we need action, not words. Follow this link to sign our open letter to the Secretary of State for Health and Social Care, Wes Streeting and tell him: Act now for everyone affected by neurological conditions. https://bit.ly/ActForThe1in6 Thank you.’

u. Notable research papers published during the year.

Consensus recommendations for the assessment and management of idiopathic intracranial hypertension in children and young people - htps://pubmed.ncbi.nlm.nih.gov/38724065/

Raising the Profle of IIH

v. We celebrated National Volunteers Day – 28[th] August 25 - IIH UK are reliant on our volunteers for everything that we do, without their hard work and dedication we would not be able to continue our life-changing work. So thank you to each and every one of our volunteers, past and present.
w. Our online shop has lots of items to help raise awareness of IIH.

htps://www.iih.org.uk/secton/7/1/online_shop

x. Trustees/Team members took part in the following events during the year.

Focus group meeting with Barts Health NHS Trust - Holistic weight management in IIH to feed into a grant application – July 24

Meeting to discuss support of application to the rare diseases network – Cambridge – Aug 24 Genetic Alliance Members meeting – Sept 24

Headache Academy event . Royal College of Physicians, London. Oct 24

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK

E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

National Institute for Health Research Monitoring committee attendance in support of the IIH Intervention Trial with Prof Alex Sinclair – Nov 24

Nov 24 Celebrating 25 years of the Children's Headache Clinic at GOSH: Scientific Meeting – Neurological Alliance members meeting – Nov 24

Focus group and PPIE input for the IIH Advance trial with Prof Alex Sinclair and Dr Marysia Lange - April 25

Focus group meetings with Paediatrics teams in Cambridge to plan research survey on obesity stigma in children with IIH – May 25

June 25 Focus group to discuss IIH study day with Kings College Hospital NHS Foundation Trust

Attending other organisations’ conferences/meetings whether face to face or online provides an opportunity for Trustees and Team Members to meet other attendees and develop friendships with other likeminded organisations enabling us to raise the profile of IIH.

y. Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research. This fiscal year we celebrated it from 10[th] -16[th] March.
z. September Awareness Month . Provides an opportunity for people with IIH to get involved with raising awareness of IIH. Throughout the month of September, we posted daily on our Fb Charity page. From interesting facts to supporters fundraising, the month of September was once again a tremendous success due to the shares and retweets the posts received.
i. Rare Disease Day takes place on the last day of February each year. Together, we stood with the
300 million people worldwide living with rare diseases. In uniting on this day we raised awareness, advocate for change, and promote a more equitable future.
ii. As a Charity run solely by Volunteers, we just had to celebrate International Volunteers week 19[th] – 25[th] May.
iii. On 18[th] October we celebrated World Menopause Day. There is little information about IIH
and Menopause so we shared our video where Professor Sinclair talks about IIH, hormones and mentions taking HRT whilst living with IIH.

Fundraising – We use the following platforms to raise funds.

Just Giving: htps://www.justgiving.com/iihuk/donate?msockid=1e08aa102b4b602c38d0bc472a ab6103
Membership fees : email membership@iih.org.uk to become a member.
IIH UK online awareness merchandise sales : www.iih.org.uk/shop
Easyfundraising : www.easyfundraising.org.uk/causes/iihuk/
All weathers Lottery: htps://allweatherslotery.com/iih-uk/
The Charities Aid Foundation : www.cafonline.org/system/charity-search-results

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

Facebook : provides us with our main source of income from donations.
www.facebook.com/fund/IIHUKCharity/
PayPal Giving : www.paypal.com/uk/fundraiser/charity/49628
eBay for Charities : www.charity.ebay.co.uk/charity/IIH-UK/49628
Teespring : www.teespring.com/en-GB/stores/iih-uk
DONATE: https://platform.nationalfundingscheme.org/idiopathic-intracranial-
hypertension-united-kingdom-/HOPE
Charity Choice : www.charitychoice.co.uk/idiopathic-intracranial-hypertensionunited-kingdom-18148

Michelle Williamson. Chair

IIH UK ANNUAL REPORT AND ACCOUNTS 2024-25 Website www.iih.org.uk; X @IIHUK E-mail info@iih.org.uk Facebook www.facebook.com/IIHUKCharity

Idiopathic Intracranial Hypertension UK

No. 1143522

	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~	Receipts andpayments accounts For the period from Period start date To Period end date 01/07/2024 30/06/2025 ~~ee~~ ~~ee~~ ~~ee~~		CC16a
Section A Receipts and payments
			Unrestricted funds	Restricted funds	Restricted	Endowment funds		Total funds		Last year
		to the nearest £		to the nearest £	to the nearest £	to the nearest £		to the nearest £	to the nearest £
A1 Receipts
Donations & Fundraising		£ 70	£ 70	£ -	£ -	£ -	£ -	£ 70	£ 967	£ 967
Just Giving		£ 11	£ 11,318	£ -	£ -	£ -	£ -	£ 11,318	£ 5	£ 5,585
Facebook		£ -	£ -	£ -	£ -	£ -	£ -	£ -	£ 379	£ 379
Paypal GivingFund		£ 2	£ 2,685	£ -	£ -	£ -	£ -	£ 2,685	£ 3	£ 3,513
Other		£ 1	£ 1,393	£ -	£ -	£ -	£ -	£ 1,393	£ 2	£ 2,666
MembershipFees		£ 2	£ 2,077	£ -	£ -	£ -	£ -	£ 2,077	£ 2	£ 2,115
Conference Tickets		£ 500	£ 500	£ -	£ -	£ -	£ -	£ 500	£ -	£ -
Merchandise		£ 1	£ 1,218	£ -	£ -	£ -	£ -	£ 1,218	£ 1	£ 1,628
Bank Interest		£ 210	£ 210	£ -	£ -	£ -	£ -	£ 210	£ 267	£ 267
Refunds				£ -	£ -	£ -	£ -	£ -	£ -	£ -
				£ -	£ -	£ -	£ -	£ -	£ -	£ -
*Sub total(Gross income for* *AR)*	*Sub total(Gross income for* *AR)*	£ 19,470	£ 19,470	£ -	£ -	£ -	£ -	£ 19,470	£ 17,119	£ 17,119
A2 Asset and investment sales, (see table). - - - - - - - - *Sub total* - - - - Total receipts 19,470 - - 19,470 17,119 ~~=———~~
A3 Payments
Governance		£	- £	-	-	-	-	-	£	- £
IT		£	2,371 £	£ -	£ -	£ -	£ -	£ 2,371	£	3,099 £
Merchandise (Stock Purchase)		£	840 £	£ -	£ -	£ -	£ -	£ 840	£	210 £
Paypal Fees		£	136 £	£ -	£ -	£ -	£ -	£ 136	£	141 £
Postage & Packaging		£	639 £	£ -	£ -	£ -	£ -	£ 639	£	794 £
Printing & Stationery		£	238 £	£ -	£ -	£ -	£ -	£ 238	£	142 £
Transport		£	- £	£ -	£ -	£ -	£ -	£ -	£	76 £
Misc		£	- £	£ -	£ -	£ -	£ -	£ -	£	- £
Refunds		£	16 £	£ -	£ -	£ -	£ -	£ 16	£	20 £
Justgiving Membership		£	198 £	£ -	£ -	£ -	£ -	£ 198	£	216 £
Other Membership		£	207 £	£ -	£ -	£ -	£ -	£ 207	£	101 £
AGM/Patient Conf				£ -	£ -	£ -	£ -	£ -
Symposium/Conference		£	1,768 £	£ -	£ -	£ -	£ -	£ 1,768
Partnership Donations				£ -	£ -	£ -	£ -	£ -	£	6,000 £
Education		£	240 £	£ -	£ -	£ -	£ -	£ 240	£	19,050 £
Research & Alliance		£	24,191 £	£ -	£ -	£ -	£ -	£ 24,191	£	10,000 £
Surveys				£ -	£ -	£ -	£ -	£ -
Representatives & Trustee Expenses		£	1,806 £	£ -	£ -	£ -	£ -	£ 1,806	£	2,136 £
Publicity and Profile				£ -	£ -	£ -	£ -	£ -
Focus Meetinsg				£ -	£ -	£ -	£ -	£ -
Life Registry		£	5,000 £	£ -	£ -	£ -	£ -	£ 5,000
Hope Program Child		£	350 £	£ -	£ -	£ -	£ -	£ 350	£	3,368 £
Hope Prgram - Adult Donation		£	2,118 £	£ -	£ -	£ -	£ -	£ 2,118	£	1,680 £
Events				£ -	£ -	£ -	£ -	£ -	£	- £
				£ -	£ -	£ -	£ -	£ -	£	- £
				£ -	£ -	£ -	£ -	£ -	£	- £
				£ -	£ -	£ -	£ -	£ -	£	- £
**Sub total **		£ 40,118	£ 40,118	£ -	£ -	£ -	£ -	£ 40,118	£ 47,033	£ 47,033
A4 Asset and investment purchases, (see table) £ - £ - £ - £ - £ - £ - £ - £ - *Sub total* £ - £ - £ - £ - *Total payments* £ 40,118 £ - £ - £ 40,118 £ 47,033 ~~SSS5=~~
*Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end* CCXX R1 accounts (SS)	-£ 20,648 £ - £ - -£ 20,648 -£ 29,913 £ - £ - £ - £ - £ 37,762 £ - £ - £ 37,762 £ 67,675 £ 17,114 £ - £ - £ 17,114 £ 37,762 1 01/04/2026 ~~===>==>~~

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
		Unrestricted Restricted	Endowment
Categories	Details	funds funds	funds
		to nearest £ to nearest £	to nearest £
B1 Cash funds	£ - £ - £ - £ - £ - £ - - - - - - - *Total cash funds* ~~===~~
	(agree balances with receipts and payments	(agree balances with receipts and payments
	account(s))	Agreement Error OK	OK
		Unrestricted Restricted	Endowment
		funds funds	funds
	Details	to nearest £ to nearest £	to nearest £
B2 Other monetary assets	- - - - - - - - - - - - - - - - - - ~~===~~
	Details	Fund to which asset belongs Cost (optional)	Current value (optional)
B3 Investment assets	- - - - - - - - - - ~~aoe~~
	Details	Fund to which asset belongs Cost (optional)	Current value (optional)
B4 Assets retained for the charity’s own use	- - - - - - - - - - - - - - - - - - ~~ace~~
		Fund to which Amount due	When due
	Details	liability relates (optional)	(optional)
Signed by one or two trustees on behalf of all the trustees B5 Liabilities	- - - - - Date of approval 20/01/2026 20/01/2026 Signature Print Name Mrs Michelle Williamson Betsy Clarke Mrs BetsyClarke ~~———=~~
CCXX R1 accounts (SS)	1		01/04/2026

¥ CHARITY COMMISSION FOR ENGLAND AND WALES

fo Independent examiner's report on the accounts

SectionA

Independent Examiner’s Report

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  - | report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 30 / 06 / 2025.

Responsibilities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act’). , | report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, | have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
independent | have completed my examination. | confirm that no material matters have examiner's statement come to my attention (other than that disclosed below *) in connection with the examination which gives me cause to believe that in, any material respect:
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 - accounting records were not kept in accordance with section 130 of the Act or

 - e the accounts do not accord with the accounting records
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| have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached.

  - Please delete the words in the brackets if they do not apply.

Relevant professionalCN|ACMA
qualification(s) or body (if any):
Address: | 9 Manor Close

WR9Y 8HG

Section B Disclosure

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IER

October 2018

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Only complete if the examiner needs to highlight matters of concern (see CC32, independent examination of charity accounts: directions and guidance for examiners).

Give here brief details of any items that the examiner wishes to disclose.

i | i ae

a IER

October 2018