OpenCharities

PNH Scotland

Country
Scotland
Charity number
SC042709
Status
Active
Registered
Nov. 3, 2011
Legal form
Unincorporated association

Address

Address
64 Colonsay Drive
Newton Mearns
East Renfrewshire
G77 6TY

Contact

Activities

'It carries out activities or services itself'

'the advancement of education','the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage'

To provide a point of contact for newly diagnosed patients and their families and to ensure up-to-date information on PNH is available for all patients. PNH information packs are provided to all haematology departments throughout Scotland as well as contact details for PNH Scotland. Meetings are held quarterly to provide an opportunity for patients to talk and ask questions in-person.

Objectives: The charity?s objectives (the objectives') are to raise awareness of PNH and advance the education of patients, families, interested health professionals and the general public into the condition. In particular, the charity will aim to provide useful information and a point of contact for newly diagnosed PNH patients.

Areas of operation

Main operating location
East Renfrewshire
Geographical spread
Operations cover all or most of Scotland

Finances

Period end Income Expenditure
March 31, 2025 £1,826 £136
March 31, 2024 £3,655 £90
March 31, 2023 £208 £50
March 31, 2022 £108 £50
March 31, 2021 £258 £360