## **CLAPA A** n **nual Re** p **ort 2025/26** **and Audited Financial Statements** Registered and working names: The Cleft Lip and Palate Association (registered name) Cleft Lip and Palate Action (working name) CLAPA (working name) Company number: 05206298 Charity number: 1108160 OSCR number: SC041034 Contents CLAPA In brlet. Approochtofundroising....................-..-........................32 FinonciolreviewondreservesFX)licy.................................... 33 Key risks and uncertainties 36 Structure. governance and management. Statement of responsibilities of the trustees. Reference and administrative information LetterlromtheChalrolTrustees......................................... Ourimpact............................................................... Financialsnapshot...........................-.......-....--....-........ Trustees, annual report . strategy and objectives Activities, achievements, and pertormonce Invest .37 39 40 .12 Independentaudlto￿$roPort...........................................4l statement of financlal activiti•1 . .45 .12 CLAPA is now Cleft Lip and Palate Action Investing in our people Empower End the claft dental care crSsis 12 Balancesheot............... 46 .15 statement of cash flows .47 .16 Nol•tothofinan¢lalstatoment8.......................................48 .16 other campaigning winsthis year................. Community involvement in designing our services. ... . . . ... . Supporting research and potient & public involvement (ppi)...... . .19 Inform 20 .16 .18 Stories from the community Kozzi's story. Megan's story... Sarah's story... Mott & Chesterfs story 10 14 N8wr8sources......................................................20 17 Signposting and support Supporting health professionals. . Connect 20 .27 21 21 Highlights. Onlinesupportforums.............................................. 22 Social media . 23 22 Camp CLAPA . CLAPA Companions . Cleft Youth Mogazine.. .. Roassure 23 24 24 24 Feeding babies born with a cleft Peer and parent supporters. Counselling. . . Cleft++ Mentoring. Fundroising review Volunteering. 24 25 26 26 28 .31 CLAPA Annual R8POrt 2025126 iAPA Annu 5126 CLAPA in brief Letter from the Chair of Trustees Every day in the UK, three babies ore born with a cleft lip andlor palate. It's a lifelong condition, with an impoct on teeding, speech, hearing, teeth, and more. Many babies have their first surgery at just three months old. Y8t this is the just th8 Start of a 20-year treatment pathway ahead. Cleft Lip and Palate Action (CLAPA) is the only national charity supporting people affected by cleft in the United Kingdom. We help those born with a cleft, and their families from diagnosis and throughout their life - with comprehensive and reassuring information, a welcoming community of people with shored experiernces, and evidencé-basad services and resources. Values: As I write this yeor's letter, I find myself reflecting on just how much has changed since I first become Choir of the boord of trustees in October 2024. In what will soon be two years in the role, I have had the privilege of witnessing an extraordinary period ol evolution for CLAPA - not only It makes me immensely proud to present this report detailing the real, life-changing in how we operate, but in how boldly and conlidently we represent ond champion the impact our services and community hove had across the UK ov8r the past y8ar. cleft community. Alongside delivering vital support services, Perhaps the most visible change thi5 year we've strengthened our campaigning has been the transition to our new working and influencing work to ensure the cleft nome, Cleft Lip ond Polote Action. The new community is not only supported but heard. name and brand reflect exactly what we do In particular, our dental campaign has every single day- toke action for the c18ft highlighted th8 choller)ges many people community. The rebrond has brought fresh with a cleft face in accessing appropriate energy, clority and confidence to the charity, dentol core and treatment. Seeing CLAPA while remoining rooted in the compossion, representatives visit Downing Street to connection ond lived experience thot deliver a petition trom our community have always defined us. I would like to to Parliament was a powerful reminder thank every member of staff. volunteer, of what can be achieved when people trustee, supporter, and member of the come together with a shared purpose and community who helped shape and embrace determination to create change. this transformation. W8'v8 also continued inv8Sting in the futur8 ol the organisation itself. Our development strategy is centred around bocoming a modern, agile, and growing charity that evolves olongside the community it serves. By making the most of new opportunities, partnerships, and ovailable funding, we aim to expand our reach, strengthen our services, ond respond dynomicolly to the changing needs of the cleft community. NDne of this would be possible without the extraordinory dodication of our staff teom, the generosity of our supporters, the passion of our volunteers, and the commitment and guidance of my fellow trustees. Together, you continue to make an enormous difference to countless lives across the UK. As someone born with o cleft myself, I feel privileged to have received some of that support in my own lifetime, as have mony of our trustees, staff members, ar)d their families. Inclusive Everyone affected by cleft in the UK should be able to find a warm and welcoming community with CLAPA and see themselves reflected in our work. Adaptablo We chonge with the times by octing on feedback, to raise the bar in all our activities. Vision No one affected by cleft lip and palate in the United Kingdom will go through their journey alone. Cleft Lip and Palate Action remains unique in the woy it supports patients and families impacted by cleft, often even before a child is born- ond continues that support throughout life, lor as long as it's needed. Trusted Purpose We always want to do whot's best for the UK cleft community. Their needs and voices are central to everything we do. CLAPA supports people to take control ot their journey, connect with others, and use their voices to impact the future of care. Collaboratlve We work best when we work together- as a stafl team, as a cleft community, ond in partnership with others. l extend my heartfelt thanks for everything you've done this yeor, and for the journey still ahead of us as we continue supporting, connecting, empowering, and taking action for the cleft community. Oliver Rendell. Chair of Trustees CLAPA In brlef CLAPA Annuol R8POrt 2025126 Letter from the Choir of Trusrees CLAPA Annutsl Rtport 2025126 Our impact Financial snapshot /60 S135 In 2025126, your support helped us raise £1.88m pen pals were matched up with CLAPA Companions - morethandoublo lastyoar. people received support with enquiries on issues from dental core to emotional wellt*ing. 11 Legacies £901.282 11 Grants, donotions, gift aid and gifts in kind £681.977 Restricted grants £157,953 Feading service and other income from charitoble octivitias £65.096 Investments and other income £69.835 he best part was knowing that there are other kids going through the sam8 treatmentjourney as me- CLAPA ¢ompanhon5 Pen pgl -CLAPA's like a lifeline- to know you're not alone and there's someone else who's feeling exactly how you're feeling.- Aduli b)m witha ¢1olt uauD Z542 ooll For every £1 raised, CLAPA spends: 70p on delivering ond 9p on our offic&, IT and supporting services, governance, to keep our including events, information, team connected and all our support. enabling research, seNices safe and compliant. ond more. P80p18 0tt8nd8d 49 onllnoovonts, from support groups to workshops. young p80pI8 took port in a Camp CLAPA odventure weekend. 21p on dir8Ct fundraising costs to ensure we have the money to run our services for years to come. "As a parent of a child with a cleft it was reassuring to know others are affected by the some issues. My little boy wos also very excited to see another real-life boy onscreen with a cleft." DI•cu$8lon •v•nlng attend "Imy sonl hos grown o toot in confidenc8 ond it literally shone out of him he loved every minute." Par•ntol Camp CLAPA attond In 2025126 we spent £l.Ilm 0 4,000+ 11 Direct costs of delivering our services to families, young people and adults allected by clefL os w811 as outreoch to NHS and government departments to influence policy £564,636 11 Support costs to enable our staff and volunteers to deliver our services £289.669 Raising funds to enable us to keep our services running £178.834 Legol, professionol & governance costs, investing in our infrastructure £43.987 Donated services for rebrand £34.417 signatures on our petition calling for improved dental care and treatment. More thon 400 people shared thelrexperlence in our research survey. Welcome Packs ol special bottles and teats W8re 58nt to families in need, along Wlth13.500 8ubsldlsed Items for families and hospitals. -We're not asking for a cosmetic service, just basic treatment for OUT teeth that are Severely affected by an underlying heolth condition.- AduR ljom wlth a ¢l•ft "CLAPA'S bottle service was literolly life- changing for us. It made such a difference n those early days." Moth•r of¢hlld Ix+m wlth a cl•ft in 2026 Whywe still need your support in 2026127 Our five-year strategy is focused on investment and growth, and after just one year, the impact is already clear. The significant increase in legacy income in the past two years hos given CLAPA a unique opportunity to make bold commitments to secure our future ond deliver the high- quality services the UK clelt community deserves. Now, we need your support to sustain this momentum. CLAPA is a charity with no government or NHS funding; we rely on generous donors and fundraisers to continue our work. people had one-to-one support from our counselling, Cleft ++ mentoring, or peer ond parent support services. CLAPA'S new brand and website wos launched. The same CLAPA, but with a brand new look and energy. Our planned expenditure for 2026127 is £1.48m, covering the costs of delivering and developing CLAPA'S life-changing services, and the essential infrastructure needed to support them. With £485k of this covered by allocating our legacy funds, we must raise at least £995k next year to keep on track. "Being able to speak uncensored wos very liberating. To anyone considering using this service, I would soy.. do it, without o doubt- oun8elllng beneficlary -Finding the CLAPA website was th8 best thing l ever did. I've loved being wrt of the CLAPA community ever since." Adull l)orn with u cleft Our Impoct CLAPA Annuol R8POrt 2025126 FinoncSol snopshor CLAPA Annutsl Rtport 2025126 Trustees. annual report Strategy and objectives For 2025126 The trustees present their report ond the audited financial statements for the year ended 31 March 2026. The trustees hove given due consideration to the Charity Commission's published guidance on the Public Benefit requirement when reviewing the chariws aims and objectives. and in planning its luture activities. In particular, the trustees consider how planned activities will contribute to the aims and objectives thot hovè been set. This year marked the first of o five-yeor strategic plon, which positions CLAPA 05 0 growing charity on a mission to support the cleft community today and creating a better future for tomorrow. This strotegy is shaped by people with lived experience while focusing on long-term sustainability and innovation in service delivery. The five key strategic th8m8s arg.. Reference and administrative iT)formation set out on page 40 forms part of this reporL The finoncial stotements comply with current statutory requirements, the Memorandum and Articles of Association, the Financial Reporting Standard (FRS102), and the Statement of Recommended Practice (SORP) Accounting and Reporting by Charities, which is applicable to charities preparing their occounts in occordance with FRS102. Invest Empower We ore committed to being the volce of people offacted by clalt. Through advocacy, campaigning, ond co-production, w& will influgnce policias and empower the cleft communlty to have a sa In their care. Intorm We will continue to invest in our services, infrostructure, ond people. We'll have the right stoff ond resources to m••t growlng demandand deliv•r quallty s•rvlc?$. We will invest in supportive functions, including communications, morketing ond income generation. We will keep the cleft community informed about care pathwoys, treatment options, and support services. We will ovide cloar, accos$lbl•, and evldence-basod Y•source$, empowering people to make Informed dacisions. Aims and objectives Cleft Lip ond Palate Action (CLAPA) is the notional charity supporting, connecting, celebrating, and championing the cleft community in the United Kingdom. It supports people born with a cleft and their families - from diagnosis and throughout their lives with comprehensive and reassuring information, a welcoming community of people with shared experiences, and evidence-based services and resources. connect Reassure The charity's objèctives are set out in its governing documents, the Memorandum and Articles of Associotion (July 2004).. "The relief of, and support for all those with a cleft lip, cleft palate or both, or associat8d craniofacial birth anomalies,. and the promotion of research into the causes ol, and the relief, treatmenL or care of those with o cleft lip, cleft palate or associated craniofacial birth anomolies, and conditions or any of them, and to publish the useful results of such research" We will provide opportunities for the cleft community to connect. share exporlonco$, and access support through digital and in- parson events tailored to their needs. We will strive to improve equity. dlverslty. and inclu$ion by engoging with those affected by cleft from underserved communiti8& From the moment of iognosis, we will do 11 we can to reassure f omilies ond individuols ith information and upport. Our services will continua to evolve to meet the emotional, P5ychologlcal. and practical needs of the cl•ft cornmunlty. 4¢'l' The strotegy's first yeor hos been o strong Read on to learn more about the dlfference start, with CLAPA launching a new brand and madetothe UK cleftcommunityin website and making significant progress on 2025126 through CLAPA'S core services other strategic priorities. and Inltlatlves. Trustees, Annual Report CLAPA Annuol Rtport 2025126 Strategy ond objectives CLAPA Annuol Rtport 2025126 Kazzi's story Kazzi was born with o vnilaterol cleft lip and -1 was quite nervous going up there, but it palate, and had her initial lip repair surgery was really enjoyable and great to be around in India when she was two years old. She wos other kids with cleft. It onswered o lot ot my adopted shortly afterwards, along with her anxieties about being the only one, and brother, and continued her clelt treatment made me feel much less alone." whèn sha arrived in the UK. -CLAPA's like o lifeline - to know you're not alone and there's someone else who's feeling exactly how you're feeling." Kazzi "I remember lots of hospital appointments and hoving work done all over the place, on my speech, hearing, eating, drinking, and teeth. I finally got discharged from the cleft team last year, aged 30 - after 26 years.- Kazzi said she first encountered "being th8 odd one out" in high school, and reoched out to CLAPA to meet other children born with cleft. In 2025126. 48 young people born with a cleft took part in'camp CLAPA. adventure weekends." read more on poge 23. Since then, Kazzi hos been o very active member of the CLAPA community, on our Facebook groups. and attending more and more 8vents as an odult, including the odults, conference. "In primary school no one saw m8 as the glrl with the cleft lip, people just saw me as me. But going into high school, especiolly year seven, was quite tough because some of the bigger kids would point and laugh. -1 was the only girl in the school with a cleft. My friends were very supportive, but I really want8d to m8et another kid with a cleft lip so I wouldn't feel alone. here were so mony people with cleft ot the conference, it was brilliant. The tolks were toscinating, there were great activities where I felt my opinion mattered, and I met 50 many people and mode new Iriends. We're still in touch now, ond still meet up. Kazzi is o member of CLAPA'S moin Facebook group. °I've met up with o few from our Facebook group locally, ond that's been lovely. Now I have more friends who grew up the same way I did, and whojust understand about the operotions and hospitols etc. -I've joined in the CLAPA Lounge, odults, focus groups, am part of the PPI focus group, and gove my opinion for the dental compaign. -Findir)g the CLAPA websita was the best thing l ever did. I've loved being part of the CLAPA community aver since.- "I remember finding CLAPA online when I wos about11. I was looking on what we had back in my day - MSN and Myspace. I looked for cleft lips and found the CLAPA website. "I thought at first it was just for bobies, but then I sow a picture of o kid. And then it said something about days out, and l asked my dad to take me." In 2025126. CLAPA launched a new websito to make our work moro welcomlng and accesslble. A key prlorlty wa$ en$urlng that everyone from the UK cleft community would land on our wèbslte and feel Ilke they'd ¢omo to the right place. Kazzi joined one of CLAPA'S activity days in Shropshire, including climbing and archery, with o group of children olso born with a cleft. Kozzi's Story CiAPA Annuol R8POrt 2025126 Kozzl's Story CLAPA Annuol ROPOrt 2025126 io Activities, achievements and performance Together we face clapa the c*ollenges. and together we eelebrote strength Forl￿￿ CLAPA'S unique services ore o lileline to the UK'S growing community of people offected by cleft lip and palate - including 1,200 new babies ev9ry year, 20,000 und8r-185, and around 60,000 adults who were born with the condition. And so, in 2024, CLAPA begon the process of developing u new brond and o new website to bring the charity into its next phase. It's taken time to do this the right way - in close consultation with seivice users and at minimal cost to supporters. A newname One in 700 people in the UK are S)orOI weth a cleft This year, CLAPA continued to support thousands of families, adult patients, and young p8ople with a wide range of accessible ond evidence-based services and opportunities. CLAPA is on acronym for The Cleft Lip and Polote Associotion. The chority is now using Cleft Lipand Polato Action as its working nome olongside the fomilior CLAPA acronym. This chonge reflects whot CLAPA is today olongside delivering lile-chonging services, the charity is now a compaigning orgonisation, actively calling for meaninglul change to improve cleft care in the UK. It positions CLAPA as the voice of the UK cleft community, working on their behalf to create a better future - yet still recognisoble os a much-loved and cherished brand. nve8t This ygor morked a strong start to our five- year strategy to invest in CLAPA'S future. In February, we launched a new name, brand and website, olongside other key infrastructure projects, creating o solid foundation for meeting growing demond and delivering high-quality services. It was also a year ol growth for the CLAPA team, strengthening the copacity that will help us deliver our ambitious plans through to 2030. A guide for oiew pareolts and carers It also morks o change in CLAPA'S Content and communicotions, which hos seen the charity become stronger ond bolder when it's called for, whilst continuing to be the vibrant, friendly, and supportive community space tor everybody affected by cleft in the UK. CLAPA is now Cleft Lip and Palate Action After two years of development, in February 2026 CLAPA launched a new brand, website, and working name to take on the challenges of a changing world. Tha same CLAPA you know and love - with a bold new look and energy. The looping letters- now seen throughout The Cleft Lip and Palate Association was CLAPA'S visuals - represent the 'thread for founded in 1979, as a small, volunteer-run life, that carries CLAPA'S support throughout charity with a family-focused brand. Since someone's cleftjourney, from diagnosis into then, CLAPA'S work has changed. its impact adulthood. The emphasis on the'L' and. has grown, and the world has modernised. in the acronym place equal weight on'lip. Alongside developing vital support services, and 'palate' to better represent the entire UK CLAPA has built vibrant online communities, cleft community. and is now campaigning for better cleft care, A new colour palette reflects the blues found and raising public awareness to reduce stigma. in medical environments. ond is dialled up The original brand didn't reflect CLAPA'S work or to give vibroncy and weighL whilst the soft ambition to celebrate, champion. and support blush reflects the reassurance that CLAPA'S the UK cleft community at every stoge of life. services and informotion provide. 11 A newlook CLAPA'S bold new logo makes a statement without losing the friendly feel of what came before. Thank goou Activlties. achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 A¢tivitl84 achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 12 13 Lots of new faces CLAPA'S vital information and services for people at all stages of their cleft journey are now more accessible, ond we hove o solid foundation on which to build the next four yeors of our strotegy. The Support that mode oll th1$ po$$lble This project hos benefited from some truly generous, professional SUPF)Ort. The davelopment of this r•brand, including the name. brand platform and visual identity. was delivered by The Teom, on incredible creative brand consultancy and Bcorp. They selected CLAPA os port of their annuol commitment to returning social value by supporting o good couse bosed in the UK. Each year, The Team offers their specialist brond strotegy ond identity expertise to a not-for-profit organisation or charity where their skills con make o meaningful difference. other costs associated with these projects, such as the community content days ond design work for our new resources, were also covered by designated legacy funds. These totulled £17.6k in 25126 ond £3.9k in 24125. Investing in our people Supportive functions To strengthen community engagement and support the long-term growth and impact of our events and services, we need to raise oworeness of CLAPA'S work. By investing in essential functions such as communications, we can ensure that everyone who could benefit from CLAPA'S work knows how to access support. Over the past year, we recruited our first Head of Commur)ications and Marketing to leod the lounch of our new brond, ond we will continue to grow this team in the year ahead to expand our reach ond increase the impact ol our services. CLAPA hos also exponded its odministrotive support team last year by increasing the hours of an existing staff member and recruiting a new Administrator. This essential support will help us to meet increased demand across the board and ensure the rest of our stoff teom con focus on delivering our life-chonging servic8S. Real people from the UK cleft community hove always been central to CLAPA'S work. Alongside the thousands of photos and videos sent in by the community over the years, CLAPA needed a new set of imoges to go with its new look. In November 2025, two community content days were held, with a professional photoshoot and videography undertaken to build up a fresh new content bank. People from the CLAPA community- from newborns to seasoned volunteers - were invited to share their smiles and their stories with the world. These photos are featured throughout this report. A new wobsltè Generous support from legacies in r8cent years has ollowed CLAPA'S five-year strategy to be one of sustainable investment, which will soon see us grow our staff team to meet the emerging challenges facing th8 cleft community. Involvement CLAPA'S previous website launched in 2015 to sarve a vary different charity, In a very dilferent world. The new website built on a decade of learning, advances in technology, and deep consultation with service users to creote o vibrant, welcoming hub for the UK'S cleft community. To enoble more people to contribute to CLAPA'S WOTk in a way which reflects their interests. ovoilobility ond lived experiences, CLAPA is invèsting in a wider range of opportunities for involvement. Co- production is a key part of thi5 approach, enabling us to work in partnership with the community to better understond their needs, experiences and priorities, and to use those insights to shape a sustainable of18r that is informed by and responsive to the people we support. Over the post year, we strengthened this area by expanding a key stall role, ond we will continue to grow this team in the year ahead to help us meet our gools of involving the cleft community in every facet of our work. CLAPA'S new w•b8lt• wos almost entirely funded by o generous gront Irom the VTCT Foundation of £39.8k, with additional costs of £7.8k covered by designated funds from a legacy donation. Fundralslng Last yeor, we worked to embed a culture of fundraising across CLAPA ond diversify our income by recruiting a Supporter Care Officer to provide bettor stewardship to our community and promoting an existing staff member to monage them. We also added a Philanthropy Coordinator to our team, who has already started to open new avenues for people to support our work. This team will continue to expand next year, with investment in management and Trusts and Foundations to help us continue to secure diverse income streams. Our brand ¢onsulton¢ydeliverod £47k worth of work to CLAPA at no cost to $upport•r8. Megan's story Megan has a unique place in CLAPA'S rebranding story - she was born with a cleft lip and palate, and is a designer at The Team, tha brand consultancy behind CLAPA'S new brand. -1 love that CLAPA'S new brond reflects the lifelong journey with clef¢ especially the thread-like curves which visually weave the promise that CLAPA is, and alway5 will be, a threod tor life and there for you at whotever point you moy need them." Chlldren and Young People's Servlces Rising demond tor services for childron and young people born with a cleft. combined with increasingly complex support needs, is placing pressure on our Children and Young People's seNices. To tackle this, we increased the hours of the staff member leading this work. ond we will continue to grow the team in the year ahead. This investment will ensure these services remain safe, effective ond sustoinoble, whilst creotiT)g more opportunities lor young people to help shape octivities, projects ond future developments. Megan said.. "I was really excited when I heard I'd be working on the CLAPA relresh project - such a brilliant opportunityl I felt a littl8 nervous too, because I knew I was going to have to be a bit vulnerable, explaining things about my cleft to my colleagues. "It was greot to be on experienced voice in the room when ideas were being put on the table- to be able to say'l agree with that, or'that might not be quite right. based on my own journey with cleft. Activlties. achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 A¢tivltl84 achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 14 15 ower Other campaigning wins thisyear Sarah's story CLAPA'S campaign to End the Cleft Dentol Crisis morked on important step in strengthening our role as a voice for people affected by clefL The campaign is ongoing, and with dental access just one of severol serious issues focing the UK cleft community, this area of work will remain a growing priority. Over the past year, we also developed new plans for involving our community more closely in our worl while continuing to ensure that lived experience shapes cleft research and other projects that will influence the tuture of cleft core. Since moving to London trom Irelond six years ago, Sarah has been seriously struggling to find o dentist to support her cleft care. We raised concerns with NHS England and healthcore providers regarding pressures affecting specialist cleft services, including surgical capacity and workforce issues. advocating for sgrvices to remain safe, sustainable and patient-focused. We responded to developments affecting Training Interlace Group (TIG) fellowships. highlighting concerns about the potential impact on future specialist cleft surgery training and the long-term workforce pipeline. We submitted evidence and briefing moteriols to ministers, MPS, MSPS, ond NHS England officials on issues affecting the cleft community, including occess to dentistry, specialised cleft sèrvices, and workforce planning. We worked with a range of clinicol and professional stakeholders, including cleft clinicions, Royol Colleges, and dental organisations to raise awareness of challenges facing the clelt community and support colloborative solutions. "I'm really shocked at how bad the situation is in the UK. I've seen so many people with bad teeth here. At firsL I thought 'what's going on?. until I realised people just con't get to a dentist. "I contacted so many NHS dentists across southwest London. The only one that took me in is an hour away on the bus and tube, so I've only been for one oppointment there in the last two years. "Cleft con weaken the tooth enamgl, so I reolly should be hoving regular check-ups - but the journey puts me off. It's important to visit the dentist regularly, especially for someone with cleft. End the Cleft Dental Care Crisis In 2025, CLAPA conducted and published one of its largest ever surveys on dental occess for cleft patients, gathering more than 400 responses. Findings highlighted serious issues, including difficulties registering with NHS dentists, affordability concerns, and r8ports ol inadequate understanding ol cleft among dental professionals. In lote October, the campaign to'End the Cleft Dental Core Crisis, was launched to highlight the significant barriers faced by people affect8d by cleft. The survey results were included in a Policy Document used to engage directly with policymakers, NHS leaders, professional bodies, and parliamentorians- to push for improvements in cleft-related dental core, training, ond occountobility. "I wrote to so mony NHS dentists and explained about my cleft. None of them Seemed v8ry sympothetic and mostjust Ignored mg. "We're not osking for o cosmetic seNice. just basic treatment for our teeth that ore severely offected by an underlying heolth condition.- Sarah is one of several adults born with a cleft whose stories feoturad in our 'End the Cleft Dental Care Crisis. campaign. -LIL Over 4,000 people slgned our petltlon calling for bgtter dental care. troatm•nt and outcomes Phase two of this campaign will come next year - visit clapa.comlcieftDentalCrisis for updates. Activlties. achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 A¢tilti8S. a¢hi&v8Wt$ ah CLAPA Annutsl P8rlormanc8 'teport 2025126 16 17 Community involvement in designing our services With co-production and diversity, equity, and inclusion ot the heart of our strategy, this year focused on exploring new ways to engage more voices in our work. We facilitated thgmed co-production groups focused on volunteering and involvement os well 0$ exploring what matters most to adults and families affected by cleft. This shift away from troditionol focus groups hos allowed us to gain deeper insights from a wider ronge of people. Young Adults Group This group of18 to 25-year-olds, who were born with o clef¢ continued to use their lived experience to shape, support, and guide CLAPA'S service ond resource development This year, they focused on key life events for young adults and identilied gaps and needs which CLAPA can work to address. Supporting research and Patient and Public Involvement (ppl) Working with the Cleft Development Group (CDG) The CDG hos representation from all the NHS cleft teams within the UK. Its purpose is to CLAPA is committed to ensuring cleft represent ond work with oll those ir)volved research puts people offected by cleft in cleft care, to ensure the highest quality of front and centre. Our consultoncy service care in the UK for all patients who need it. SUPPOTts reseorchers ond NHS Cleft Teams CLAPA runs a Patient Engagement Group with everything from the development (PEG) for the CDG to ensure the cleft ol their projects to the recruitment of community has a voice in these discussions. participants and dissemination of results. Its key priority has been to ensure patients In 2025126, we SF)oke to 20 researchers and can selt-refer to cleft services, and clinicians about supporting th8ir projects significant progress has be8n made. over the next few years. The group also fed into several other This yeor, six projects used o consultancy projects, including a genetics information package with CLAPA, two of which benefitted leaflet and the NHS Cleft National Service from our bursory scheme. Due to the lengthy specificotion Review, or)d with CRANE (o timescales of research projects, this is national database collgcting and reports an oreo of work which is growing slowly information on children born with a cleft in but steadily, with nearly £8k recaivad in th8 UK) providing an in-depth review of four consultancy lees in 2025126. of their parent documents. Kay wlns In 2025126: We continued our partnerships with major research projects'The Cleft Collective, and 'Cleft@18-23'. We portngred with a group of five surgeons and a psychologist to host an event on Dermal fillers, with a pre-event survey gathering nearly100 responses. This will support awareness-raising of the risks of fillers to cleft patients, enoble us to understond demond, and has the potential to influence NHS commissioning policy. We worked jointly with representotives from the Shared Learning Group to shape guidelines on ineligible ond fraudulent involvement in PPI. This work was nominated for the AMRC Aisling Burnond Award. Children and Young People's Council (cypc) Eighteen young people born with a cleft contributed to CLAPA'S CYPC by shaping support, activities, and content for other under-18s. Their input wos hugely voluoble in inlorming CLAPA'S wider youth support and engagement work. Th8y met regulorly throughout the year and took part in an annuol residentiol comp which combined outdoor activities and peer connection with time dedicated to planning their'CLAPA Yappers. podcast project. They also delivered a talk for 30 Clinicol Nurse speciolists, helped to design a fundraising pack for young people, and fed into recruitmenL .1 loved belng part of on Incluslve and welcoming group. It really helped me understand my own cleft journey better and it's amazing knowing my experience con help others- Co-produ¢llon group m￿n￿r "It's a really nice place and you are Ilkely to meet other young people who understond and oll while helping others!" CVPC mombor CLAPA Yuppor$ Podcu$t The first series of CLAPA Yappers, a podcast for young people born with a cleft. was r8cord8d in early 2026 and is due to be releosed later this year. Developed and hosted by the CYPC, the series explored issues including bullying. speech. ond confidence, whilst developing valuable skills for the participants. "l absolutely loved being a guest on the CLAPA Yoppers Podcast. It was such o fun experience to record, and the hosts were so professionol ond omozing ot interviewing! I'm really looking forward to heoring iti" k'd¢'lsl, Bronwen. podcast guest A¢Uv CLAPA AnnuolRep l.erlormance achlevemerits and p8rlormonc• CLAPA Afinual RepDrt 2025126 26 19. Inform We combined two leaflets into a new 'Parents' and Carers. Guide to Cleft Lip and Polote. booklet for fomilies. This leoflet is now in our free Welcome Pocks of special bottles ond teots, und provides cleorer, up-to-date inlormation and stronger support around feeding and coping with the early months of o baby's life. Website Supporting health professionals Connect Helping people access the information they need to moke confident decisions obout cleft care and support remains central to CLAPA'S work. This year, we focused on improving the quality and accessibility of our existing resources, loying strong foundations for future developments. We also provided tailored guidance through our enquiry service on a wide range of issues, while supporting healthcare professionals to connect people with the help and services available through CLAPA. Creating opportunities for people affected by cleft to connect with ond support eoch other through shared experiences has always been a key pillar of CLAPA'S work. This year, we delivered a range of services to help people lind o cleft community on their own terms, including online events, support forums, a pen pol scheme, a magazine, and our ever-popular Comp CLAPA octivity weekends. CLAPA is dedicated to working in partnership with clinicions when it comes to supporting their patients to access our services. Our new website has a'prolessionols, hub,, ond o key port of this is the new Teferrals pathway introduced this year. This pathway allows clinicians to connect people affected by cleft with relevant support services. This is particularly valuable for people who moy not otherwise engage with specialist support or be oware ol the help avoilable through CLAPA. The pothwoy has strengthened routes into support. increased awareness of CLAPA'S services, and helped identify more potients in need. As part of the work to launch our new website, we conducted a top-to- bottom review and updated of oll our information about cleft lip and palate, to improve clarity and comprehension. This involved rewriting ond restructuring nearly 300 webpages in line with feedbock and best proctlC8. Signposting and support New resources Vldeo resources Video resources ore on important part ol ensuring as mony people as possible can access information about cleft in a way which works for them. CLAPA'S enquiry service provides responsive support, advice, and signposting. Wa connect people to relevant CLAPA setvices, external organisations, and healthcare providers, ensuring they can access the right support at the right time. Onllno evonts CLAPA runs a range of online events to help people from the cleft community to connect with each other wherever they are in the UK. In 2025126: Following on from the previous year's succ8ssful psych08ducational webinars for adults, we ran a third event focusing on appooronce-related concerns. A Poster submission about this series was accepted for display at the annual conference lor thè Craniolociol Society of Great Britain ond Ireland. 49 542 57% Iner•a$• In Support •nquIrI￿ from thecleftcommunlty ticketed onlin8 ev8nts att8nd8es, who comprSsed'. In 2025126, we responded to135 enquiries on increase of 57% on the previous yeor. 97 enquiries were from odults focing challenges such as dental issues- surgery ond appearonce-reloted treotment,. returning to cleft care pathways.. accessing clinicol referrols,. ond ongoing functionol and psychological support. 38 enquiries from parents and families were on themes including occess to treatment, antenatal information, emotional support and peer support. We delivered two'Live Q&A' events where volunteers asked audience-submitted questions to experts. The family-focused session on the cleft treatment pathway from birth to18 receivod 949 views ond 53 interactions, with the adults, session on returning to treatment receiving 847 views and 44 interactions. 0000 9% under 18s 55% parentslcareTS 25% adults born with a cleft 24% grandparents and other fomily members After attendlng o CLAPA event: 'Cleft Talk, podcasts and videos on a wide range of topics oimed ot adults born with a cleft were viewed 481 times. Booklets "Thanks for all the advice you gave me on the phone and in this email. ifs greatly appreciated. After many years I think this is the best chance I have in getting my teeth sorted out properly so mony thanks agoin.- The Adults, Guide to Returning to Cleft Core was refreshed with a new look. Last year, 520 copies were distributed to individuals and NHS Cleft Teams, in addition to 486 copies downloaded from our website. 0000 86Y. Br 88° felt more connected felt more confident felt more positive to their cleft about talking about about tackling community cleft cleft-reloted challenges 94Y. sold they goined knowledge and new Enquiry service u88r Activitles. achievements and p8rlormarK* CLAPA Annuol Rtport 2025126 ACliviiie4 achievements and perlormanc$ CLAPA Annutsl Rtport 2025126 20 Highlights Chat and Chill Social media Dlscusslon evenlngs These events focus on specific topics and encourage families to shore experiences, ask questions, and learn from others at similar stages in their cleft journeys. Alter trialling one successful discussion evening the previous year, we ron three this year with 64 attendees. The topics were weaning, school and education, and mentol health and wellbeing- reflecting feedback from our community calling for a focus on key milestones in o child's cleft journey. One Chat and Chill event supported by our Children ond Young People's Council (cypc) gave 21 under18s born with a cleft a safe and supportive space to meet others like them and learn all about the event topic, which wos 'surgical pathways.. This will help them to understand and take control of their own cleft treatment as they grow up. Our vibront sociol medio chonnels reoch out to the cleft community and invite them to connect with others over their shaTed experiences and values. We share inspirotional stories, torgeted informotion, and opportunities to improve cleft care ond SUPPOTt- including our compoign to End the Cleft Dental Care Crisi& "It was my daughters first opportunity to meet other children with cleft. The hosts were lontastic role models. she grew in confidence throughout the session, and is now keen to get involved in other opportunitias.- Purenl of a Chot and Chlll attond•o 9.2 million views on CLAPA'S social media posts in 2025126 vIv"* °As a parent of a chlld wlth a cleft It was reassuring to know others are affected by the same issues ond I felt reossured in the steps and ways I have faced these. My little boy was olso very excited to see another raol-lif8 boy on screen with a cleft." DIscu881on Evenlng attendee CLAPAV Makaton baby slgnlng courses For children whose clelt might olfect their speech, Makaton baby signing can reduce frustration and support language development by using signs, symbols, ond speech to help them express themselves. CLAPA deliver8d three courses with 32 participants from 27 families completing the programm8 over four weeks together. Camp CLAPA Over the summer, two Camp CLAPA weekends in Perthshire and Shropshire brought together a total of 30 young people born with o cleft to take part in outdoor activities, build friendships, and shore experiences in a sale ond inclusive environment. Another18 Children ond Young People's Council (cypc) members ottended their own Camp CLAPA in Buckinghamshire. Feedback highlighted the significant emotional impact of the comps, with many young people describing how the experience helped them feel less alone, more confident, and more positive about their cleft. Several participants shared that it was the lirst time thgy hod ever met another parson born with a cleft, while others spoke about the importance of spending time in a space where everyone was-kind, helpful, and good at being friends-. Support groups for adults Ten CLAPA Lounge events for adults welcomed 77 attendees, a quarter of whom were attending for the first time. These free- form support groups focused on topics from genetics to dentistry and gave odults born with a cleft the chance to leorn new things, share their stories, and connect with others. "It was great to go through slgns together ond see them being applied to songs, stories, and situations. I really oppreciote the book you guys sent out as welll" Baby Signing $o88ion attondo0 "Really grateful for the opportunity to loin CLAPA Zoom events - thank youl You hav8 made m8 f881 walcome and ot ease in sharing information especially regarding my cleft- which I've never really discussed properly before until recently with returning to the Cleft Team as an adult.- "I love reading the stories. looking at the pictures, and being able to osk questions and contribute where I can with my own experience.- Sunlono. mum to Arln Online evenl att8nd88 3J "I wos able to recognise my boundaries to a better extent, I was able to push them where I could, but I leorned to draw lines and stand up for myself when I was unoble to continue.- Camp CLAPA attende8 Online support forums @clapacommunity joined TikTok in October 2025 CLAPA'S online support forums welcomed 764 new members in 2025126, with more than 3.5k daily active users. These groups provide a 2417 source of reassurance, encouragemenL and celebration for the UK cleft community. Activlties. achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 A¢tivitl84 achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 23 'For Imy sonl to experience a weekend with children, just like himself, who he didn't know, for him to just be himself yet be wonted as a friend without ony stigmolquestioning, was just $0 lovely - he has grown a foot in confidence and it literally shor)e out of him. The setting and activities were fabulous - he loved every minute." Parent of Camp CLAPA ott¢ndo0 Reassure Our Welcome Packs also underwent a rebrand to give families a warm and welcoming experience when receiving their first bottles and teats. "IThe Supporterl and I had a lovely long chat on the phone... and found we had both experienced similar problems through our life. We seem to have much in common and have scheduled onother chot.- dult born wlth a cleft From the very start of the cleft journey. CLAPA'S free Welcome Pocks of bottles ond teats offer families a warm and reassuring introduction to the UK cleft community. This year, we focused on making this seNice more cost-effective ond sustoinoble in o challenging economic climate. Alongside this, our one-to-one support services continued to provide vital emotional and psychological support to people at every stage of their cleft journey, with rising demand driving improvements to signposting ond other processes. CLAPA is constontly looking for woys to cut our overheads for this service, to keep the costs for families as low as possible. In Novemb8r, we moved to a smaller off ice, and the savings in rent meant we were oble to freeze our prices in March 2026. Wa are also exploring opportunities to provide certain items ot lower costs. 'It gave me reassurance and made me less anxious about how I was feeling." Pargnt of a Child bgrn with g ¢1gft CLAPA Companions Despite the challenges of continuing rising costs and logistical issues, we remain committed to delivering this life-chonging service for families and making this equipment available to everyone who n88ds it. We are extremely grateful to the funders who make this possible. CLAPA'S pen pal service safely connects 6 to 15-year-olds born with a cleft through letters, videos, and email messages, growing their confidence ond communicotion skills. Feeding babies born with a cleft 60 partlclpants In 2025126- 160% hlgher than 24125 Bobies born with o clèft often can't breastfeed or use regular bottles, leoding to stress and health chall8nggS. "CLAPA'S bottle s8rvlc8 was literolly life-changing for us, as we were nervous about feeding. It mode such o difference in those early days.. SonSgnA mum to Arln "It's a really nice woy to make new friends with a cleft like me." CL4PA Companlons p•n Pal 649 free Welcome Packsof special bottles and teats sont to famllles In noed. Cleft Youth Magazlne Wo also sont mornthan 13.500 subsldlsed Items to lamllles and hospltal¥, and an addftlonal 81 Ir•• bottles and teats to famllles on a low ineomo. Peer and parent supporters In 2025126, CLAPA'S volunteers provided individuolised support to 33 parents, carers and adults born with a cleft, with 15 more enquiries signposted to more appropriote services. These volunteers use their personal experiences and training to provide o safe and understanding space to ask questions and share their stories. Cleft Youth is an annual magazine aimed at under12s, providing a valuable introduction to the young cleft community. This year's issue, guest edited by three CLAPA Children and Young People's Council members, was packed lull of news, community stories, tips, activities and information about CLAPA'S services. These bottles and teats allow newborn babies to leave hospital sooner ond feed peacefully at home without tha need for nasogastric tubes or other invasive and time-consuming methods. Along with our new website, we lounched o new shop with feotures thot ollow lamilies to pay less for postage whilst also being able to track their parcel's journey. providing peace of mind, especiolly in those early days. CLAPA parent support volunteers providod individualisod $upportto 33 parents. carers and adults born wtth a cleft Activlties. achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 mpnts and perlormu nnutsl Report 2025126 AP Counselling ~Being oble to speok uncensored wos very liberating. Imy counsellorl was the most wonderful person - alwoys very colm and professional. To onyone considering using this service, I would say. do it, without a doubt- l just wish this had been offered when I was much younger." Coun$•lllng b•n•fielory Matt and Chester's Story CLAPA provides free, contidential counselling for adults born with a cleft, as well as parents, Carers, and family members affected by cleft. The service provides a safe space to explore the emotional impact of cleft diagnosis and treatment. We received 29 referrals with 23 people going on to access counselling and the remainder signposted to o more appropriate Cleft++ mentoring service. The referrols included seven tothers, which was significant given that research shows men ore less likely to seek mental health support. -It was such a relief to read CLAPA'S information it really helped us accept Chesters cleft and understand we weren't alone.- When Matt and his wife Katie were told their second child would be born with a cleft lip. they turned to CLAPA for much- needed informotion. Seven 10 to 17-year-olds benefited from being matched with o trained volunteer mentor with lived experience of cleft through the Cleft++ peer mentoring service. Young people used the service to explore issues including confidence, identity, friendships, and emotional wellbeing in a sale, supportive. and non-judgementol space with someone who understood thair experiences firsthond. Through iegular one-to-one conversations, mentors helped young people build confidence, feel less isolated, and develop stronger self-este8m and r8sili8nce. "At the 20-week scan they told u5 Chester's gender, and then said we needed to see the NHS teom regording o cleft. We were so excited to find out we had a boy. and that n8WS just took th8 shine off 8verything." "CLAPA does a brilliant job of raising oworeness of cleft and all its dilficult18S. Matt said the hospital quickly recommènded l often get asked by people about thg CLAPA and directed the couple to our website. operotions, and they don't understand things like gum bones missing affècting the teeth. -we leant on CLAPA so much in those early days, as we were so scared throughout "There's a lot I still don't know, but, step by the pregnancy. step, I'm coming to understond it." "We were constontly scrolling through the To help Chester's big sSst8r Maisie, aged five, CLAPA website to see how babies with understand his cleft, Matt and Katie shared c18ft look, how they f8&d, whot happ8ns CLAPA'S book'Calli8 and h8r C18ft' with her, during ond after the operations, and how which illustrates a baby's cleft journey. the babies recover. It was oll new to us, we "Maisie was very shocked with the big were trying to see what we were in for. It wos such a reliel to read CLAPA'S information - it change ol her baby brother after that first really helped us occept Chesters cleft ond lip repair operation, but reading the Callie book, wlth children's illustrations, helped har understand we weren't alone." understand whot wos happening." We provided one-to-ono counselling to 23 people affe¢ted by cleft. "My daught8r hod o greot start to y8or seven- hod a question about her lip in the flrst few weoks from o boy sitting next to her. She sold when she'd explained to him 'he just said,'oh ok. and carried on with his workl Ishel was playing for sports teams by the second week and helped with the open evening for prospective year sevens. Her confidence wos definitely giv8n o boost by her contact with Lucy." Cl•ft*+ ￿n•(ScIary CLAPA'S neww•bslt•, launched In Fobruary 2026. drow from a docado of feedback and research to provlde a warm and welc(Yning expgrionce for now and •xpo¢knt pur•nt• Ilk? Mott and N¥wll•. In 2025126. CLAPA ••nt (￿t 619 eopl•• ol our'callle and hor Cloft. pl¢turo book for slbllng•. Mott sold he regularly checks the CLAPA website and social media channels, checking in with the next steps and seeking reassurance about Chester's cleft journey. -It's so lovely to see all these smiling faces at different stages of their journeys, even though we know how hard each bit can be. -Everyone thinks their children ore beautiful, but I find Chester stunning. He's almost been compensated for his cleft with lovely blue eyes and blonde hair. And l just think'lly my boy, you've got nothing wrong with you Matt said he was aware ol cleft before Chesteffs diagnosis but had no ideo how common and complex the condition can b8. "I think it's a very misunderstood condition people think the cleft just gets repoired with a small operation, and then everything's hunky dory. But it's the things thot come with it- the feeding problems, speech, hearing, intense psychological impact on fomilies, ond feor of your child being picked on at school for looking different. Nobody thinks about the things it entails unless theyre suddenly living with the reality- Aciivlti8s. uchievem8nt$ and CIAPA Annuol Rtport 2025126 Activ1￿8* achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 Fundraising review Events and challenges Looking ahead, we have plans to grow our legacy programme by introducing a free will writing service in the coming yeor. This service will be available to our community ond will help ensure fomilies ore well cored for and prepared for the future. Legacies continued to ploy a significant role in shaping CLAPA'S 2025126 income, but it wos for from the only success. This year showed growth across all oreas of fundraising driven by a willingness to test new approachgs, Strengthen stewardship, div8rsify Batting and Bowling for Smiles income and build sustainable partnerships. In Decamb8r. CLAPA tgamed up with Grants and donations excluding legacies reached £840k, up £IOlk on the previous professional cricketer Tom Kohler-cadmore year, reflecting the hard work of our team to run o speciol raffle, roising on incredible and the generosity of supporters, especially £8,600. Twelve lucky winners received in the current economic climate. a signed cricket shirt from some of the sport's biggest nomes. The activity also demonstroted how dynomic ond odoptoble our fundraising team can be, successfully identilying o suitoble ond sole online platform for the raff18 and maximising its reoch and income potential. The 2025126 highlights below show the progress we have made and the continued importonce of strategic funding portnerships in securing CLAPA'S future.. People from our community took on a range of challenges this year to raise funds for CLAPA - 21 skydivers took port in Jump for July. raising £15k,' 20 walkers took on a Kilt Wolk roising more thon £7.5k- ond our annual Cleft Awareness Week in May sow neorly £8k roised through Cuppo for CLAPA and Wear it Blue events. Charitable Trusts Thank you to the 32 charitable trusts and foundations which donated to CLAPA in 2025126.. Anson Charitable Trust BBC Childien in Need Big Lottery Fund- Reaching Communities England DC Moncrieff Charitable Trust Homilton Wolloce Trust Highway One Trust Lillie Johnson Charitable Trust Marsh Charitable Trust Maximus Foundation UK Misses Barrie Charitable Trust Mont4 Trust N Smith Charitable Settlement Nancy Roberts Charitoble Trust Norman Trust Octopus Foundation Orr Mackintosh Foundatlon Rest-Harrow Trust Reed Foundation Sir Jules Thorn Charitable Trust (Ann Rylands) Smile Train USA Souter Trust st James's Place Foundation Ten Percent Foundation Tesco Charity Trust - Community Awards The Ardwick Trust Tha Clover Trust The Garfield Weston Foundation The Mosonic Charitable Foundation The Swann-morton Foundation The VandeNell Foundation Individual giving The Big Give Christmas Challenge saw onother exceptional year with £43.5k raised in just one week thonks to190 donations from our community being matched by our generous corporate, trusL and foundation supporters. In response to the ongoing cost of living crisis, we've also madè it easier than ever for people to give to CLAPA through no ond low- cost methods including our lottery and'give while you shop, schemes. This yeor, o strong focus on stewardship has improved donor retention and boosted our regular gifts - o vitol part of CLAPA'S long-term sustainability. Community fundraisers raised over £245k with a range of creative activities, and our incredible individual donors gove more than £145k through regular and one-off gifts, demonstroting just how deeply the UK'S cleft community values CLAPA'S work. In addition, we saw an increase in income from Gift Aid, with £54k claimed - an increase of 15 per cent on 2024125 - ot no cost to our community donors and supporters. Last year, CLAPA benelitted from the impoct of our corporate partners and gifts in kind. In particulor, branding agency The Team donated seNices of significant volue to transform CLAPA'S brand into one befitting a bold, modern, and dynamic charity. Total corporate income in 2025126 totalled £73k, representing continued growth in this area. Unrestricted gront income also increased, following o strategic focus on securing core cost and multi-year funding. We were proud to Secur8 support from BBC Children in Need and the Garfield Weston Foundation, both highly respected funders who invest in organisations with strong governance, clear strategy, ar)d dgmonstrable impact. Some of this year's succ8SS Stemmed from one-off or exceptional income. This allowed us to invest in key projects to strengthen the charity for the future and ensured staff could remain focused on SUPFxirting our community. While we ore extremely grateful for these contributions, they reinforce the ongoing need to build reliable, recurring income to sustoin our core services over the long term. "At first, it was scary. but once the cleft team and CLAPA were involved, it's been pretty smooth soiling. Hoving oll the support from you guys at CLAPA, and everyone around us, made it very simple." Tom Kohler-cadmore Legacies One off legocy gifts of £901,282 repTesent8d 48 per cent of our total income in 2025126. We ore honoured by this significont show ol trust and support and are committed to investing this income carelully to strengthen the chority's future ond ensure long- torm sustoinobility. Our heartfelt thonks go to Margaret Long, Jean Holbrool Audrey Hardiker. Reginald Young, Vina Lobb, Michael Loney, Jangtte WrighL Jean West, Ruth Brind, William Grimbley. Rosemory Kimmel. Geoffrey Ounsworth, and others who wish to remain ononymous. Their generosity will hove a lasting impacL helping us to continue supporting the cleft community tor generations to come. 'NB We have removed those trusts who wish to remain anonymous. Torn isfother to Dougie. whowas lJom wilh acl•ft Activlties. achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 A¢tivitl84 achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 29 Fundraising stories Volunteering Volunteers remain centrol to CLAPA'S seNice In 2025126, volunteers and community delivery and provide support in every area of members came together to share insights our work. With our services exF)onding, there on the theme of volunteering, which ore even more woys to get involved, from informed the development of our new mentoring young people and running events, Involvement Strategy, due to launch in 2026. to being part of themed co-production This will enable CLAPA to provide a wider groups informing the development ol spectrum of involvement opportunities that CLAPA'S services or thè future of cleft care. are accessible, inclusive, and rewarding. In 2025126, 89 volunteers spent a total of 3,167 hours supporting CLAPA'S seNices and governance. In Jun8 2025, Jake and his wife Elly took In th8 year ahead, Jake's on the Two Costles Run Iok, raising £1,200 fomily ond friends ore lor CLAPA in honour of their son, Arthur, planning a series of who was two years old at the time. Their fundraising events in commitment and ggngrosity exgmplified his memory, continuing the spirit of our fundraising community and his legacy of kindness, the deep personal connections that inspire d8termination, and support for our work. support lor families Tragically, in November 2025. Jake was affected by cleft. We involved in a traffic accident and sadly are profoundly groteful for their ongoing passed away. His loss has been felt deeply commitment ond are honoured to by oll who knew him, and by the wider remernbeT Jake through the continued CLAPA community. impoct of these eflorts. By involving those with lived experiencè ot clef( and those with a prolessional connection to cleft, in the delivery of our services helps us to ensure that we're delivering the right support, in the right way, at the right time. Eight runners took on London Landmarks half marathon which is becoming a very popular event raising £4,800. Pictured is Ricard Barnes with his support team, including little boy Hunter who wos born with o clelt lip ond polote. Sam, Ben and Nick completed the epic Land's End to John O'Groots cycle in support of CLAPA, completing 922 miles in seven days and raising an amazing £10,620. Sam, o lirgfighter wlth West Yorkshire Fire Service, took on the chollenge in thanks for the support given by CLAPA after both his sons, Finloy ond Cameron, were born with a cleft palate. Young voluntsgrs.. Members ol our Children and Young People's Council (cypc) ottended regular meetings to feed into CLAPA services and help us support other young people. Bourd of Trustg••: As well as taking part in board meetings, many ol our trustees sit on committees and provide extro guidance throughout the year to support our work. 1.071 hours 745 hours CLAPA Trustee and Cleft Specialist Nurse Isabel Williams and her friend Ricordo raised £2,440 by taking part in Swim Serpgntine. Supporting Camp CLAPA weekends.. Patient repres•ntotlv•s and focusgroups: Supporting rosoarch, NHS projects, and CLAPA'S seNice development. Supporting young poople to have a safe and lun experience. 450 hours 530 hours Holly raised money by making and selling bodges for £1 at school. In April 2025, The Junior Trainee Group of the British Associotion of Orol ond Maxillofacial Surgery, held a galo dinner and raffle for CLAPA raising more thon £1,200. They soid.'~We are very proud as junior trainees to support charities that care for our potient5.- Provldlng one-to-one support Peer ond porent supporters, Cleft++ mentors. and counsellors all give up their time to support others. Supportlng onllne events Hosting ond shoring skills ond knowledge with the cleft community. Activlties. uchiev8m8nt$ and p8rlormonc8 CLAPA Annuol Rtport 2025126 A¢tivitl84 achievements and p8rlormonc8 CLAPA Annuol Rtport 2025126 30 31 Approach to fundraising Financial review and reserves policy There is a strong overlap between CLAPA'S from one supporterwho hod nominoted beneficiaries and its supporter base, which us as a beneficiary of a fundraiser and was mokes trust ond transporency in fundraising disoppointed thot no CLAPA representotive especially vital. was available to attend a cheque CLAPA is firmly committed to ethical presentation. This valuable feedback has fundraising practices ond ensuring every led to an update on CLAPA'S website to donor and fundraiser feels respected and clearly explain when ottendance at cheque valued. While the chority has adopted a presentations is possible. more urgent tone to match our new name and brand. great care is taken to avoid Fundraising agencies and placing undue pressure on supporters. third parties Importantly, CLAPA continu8s to offer inclusive, meoningful ways for individuals to contribute to its work, regardless of their financial situation. CLAPA'S total income for the year 2025126 was £1,876,143 {2024125-. £1,773,616), an increose of £103k. CLAPA'S policy is that unrestricted free reserves should be maintained at a level equivolent to between three and six months, Non-recurring legocy income once again total budgeted expenditure for the following mode up a significant proportion of this, with financial year (2025126.. £372k to £744k). Ur)restricted free reserves do not includg legocies totolling £901k (2024125.. £940k), with £130k legacies accrued but not received at designated, restricted, or fixed asset funds. the yeor end. The trustees consider that reserves ot other income from donotions (excluding this level will 8nsure thaL in th8 event of a legacies) increased to £840k (2024125= significant drop in funding, they will be able £739k), whilst income from charitoble to continue to deliver the charity's current activities decreased by £IOk to £65k (2024125.. activities whilst revising the 2025-30 strategy £75k). Income from investments increosed ond budget. by £44k to £62k (2024125-. £18k) as a result of the legocy funds we hove corefully invested over the course of the year. Other income increosed from £lk in 2024125 to £7.5k. Totol expenditure for the yeor was £1,111,543, an increase of £269,031 (32%) on 2024125 {É842,512). Expenditure on charttoble activities in 2025126 was £848k, an increase of £218k (35°A) on last year (£630k). Fundraising costs W8re £263k in 2025126, an increase of £51k (24%) compared to last year {£212k). The significant increasè in èxpenditurè reflects partially the ongoing inllationary costs confronting charities, but also the odditionol investment in CLAPA'S staff team, infrostructure, services ond new compoigning and influencing activities in line with the 2025- 30 strategy, made possible by the significant legacies received in the last few years. A review of CLAPA'S income for the year and income generotion strategy for 2025-30 is set out in the fundraising review on page 28. Reserves CLAPA does not undertoke tundroising activities such as loce-to-lace or door- to-door fundroising. No third porties or professional fundraisers currently undertake fundroising octiviti8s on CLAPA'S beholf. Where CLAPA works with commercial organisotions or suppliers (lor instance, when purchasing places for its supporters at third party chollenge events). it has controcts in ploce which ensur8 compliance with the relevant legislation. Review of reserves position 2025126 Compliance with fundraising regulations CLAPA'S unrestricted free resarves at 31 March 2026 was £678,835 (2024125.. £335,532) which equates to 5 months, expenditure cover under the reserves policy which is within the torget rong8. Total reserves at 31 March 2026, including restricted, fixed asset and designated funds, were £2,132,825 (2024125 £1,368,226). Restricted funds were £34,421 (2024125.. £70,707). Fix8d asset funds were £46,842 (2024125.. £25,870), representing the balonce of copitol costs and omortisotion incurred on CLAPA'S new website which was launched in February 2026. Designated funds wera £1,372,727 (2024125.. £936,116), which is held in fixed and current osset investmonts, soa below for more information. The charity is a member of both the Fundraising Regulator and the Chartered Institute of Fundraising. As part of its memb8rship ol the Fundraising Regulator, CLAPA is signed up to the Fundraising Promlse which onsures that St Is clear, honest, open, respecttul, lair. responsiblè, CLAPA takes data protection extremely and accountable in its fundraising. seriously. Personal informotion is never The charity complles with the relevant shared, unless it is with the explicit areos of Fundraising Regulator Codes of permission of the dato subject and where Proctice. As port of CLAPA'S commitment it is necessary to fulfil their instructions, to ensuring its fundraising practices are such os providing informotion necessory to register a participant on to a third- fair and respectful, the fundroising team regularly reviews the Fundraising Regulator's party event. guidance to onsuro tho chority's proctices This yeor, CLAPA'S Privocy Policy wos protect oll groups of donors, and particularly updated to better explain current due those who are vulneroble. diligence procedures and ethical checks with regards to accepting or soliciting donations. Data protection Complaints Unrestrlcted tree reserves at 31 March 2026wa$ £678,835, equlvolentto S months. expenditure cover. within target range. CLAPA has a robust and accessible complaints procedure, available on its website, to ensure transparency and accountability in oll areas of its worl including fundraising. No formal comploints were received in relation to fundraising during 2025126 (2024125.. none). Feedback was received In addition to its own processes for updoting communications preferences, CLAPA is registered with the Fundraising Preference Service (FPS) for those making blanket non- contact requests for chorities. stoff attend mondotory onnuol doto protection training to ensure ongoing complionce with GDPR ond other relevant regulations. Reserves are monitored regularly and corefully by the board of trustees ond senior leadership team so that action can be taken should the octuol ond projected reserves fall below unsustainable levels or grow unnecessarily large. Approa¢h to lundrulsing CiAPA Annuol Rtport 2025126 Finunciol review ond r*$$￿$ poll¢y CLAPA Annuol Rtport 2025126 33 Designated funds Expansion of staff capacity and expertise across the Engagement and Services Team to continue to deliver ond develop CLAPA'S Se￿ices. Investments policy CLAPA has seen o significont growth in legacy income over the last three years. As legacy gifts ore one off and represent a lifetime of an individual's support, we Advocacy, campalgnlng and will steward these contributions over co-production octivities to omplify the several years to maximise their impact, voice of the UK cleft community. ensuring they reach ond benefit os many Short term costs to downslzo CLAPA'S people as possible through this generous prom1s￿, generating long-term savings commitment. Receipt ol these significont which will keep the running costs of the legacies has enabled CLAPA to focus on feeding service low. growing, strengthening and sustaining our impact with the creation of the following two Communlcatlons and marketlng designated funds.. copocity and expertise to increose reach and engagement and to raise awareness i) Future Growth Fund 23124 omongst the wider public Legacy income of £77k recognised in Inlrastructur• to support CLAPA'S stati 2023124 gave CLAPA thé resources to team, including support staff, IT equipment designote £71k in the FulureGrowth Fund upgrodes, ond improvements to 23124. This fund {fully spent as planned by IT systems. the end of 31 March 2026) enabled CLAPA to New fundralslng tool$ and rolw to invest in development projects in 2024125 diversity and expand income streams and and 2025126 with a long-term impact on the build sustainable income generotion . chority, including.. In late 2025126, two more substontiol Expertise to evaluate and enhance CLAPA'S legacies were recognised totalling £642k long-term strategic objectives and service. which has been ringfenced by the trustees Prolects requiring multS-year investments.. for the Impact 2030 fund to create and rebranding, campaigning and influencing, fund o further five posts ocross the seNice$, upgrading IT infrastructure, and a fundroising ond support stoff tèom. comprehensive wèbsite redevelopment Funds intended lor expenditure in more which will offer substantial long-term thon one yeor ore placed on long-term benefits to both the charity and the investments to maximise return and cleft community. generate investment income for the chority. During the 25126 financial year, £682k was placed on two to four-year investments, with a furth8r £200k invest8d in early April 2026. The Impact 2030 fund will continue to be invested and deployed over the remainder of the five-yeor strategy period to strengthen and sustain our impact. This includes continued investment in our services and community support. our campaigning and influer)cing worl and in growing our reoch and engagement. Alongside this, the fund will support ongoing development of our infrastructure and fundraising copocity to build long-term, sustoinoble income streams. The Finonce ond Investments Committee {F&lC). with input from external experts. hove considered investment options to maximise return and protection for the level of funds held. The Flagstone investment account opened during 2a24125 is used to achieve strong, low risk returns, and to spread funds maximising FSCS protection limits. During 2025126, CLAPA 0150 opened an investment account with Evelyn Partners to occess bonds offering more long-term, low risk inter8St rotes whan held to moturity. whilst maintaining liquidity. The investment policy is reviewed throughout the year so that it can b8 regularly updated to best serve the needs of th8 charity and th8 funds position. Investment in a portfolio of stocks and shares is not considered appropriate currently. This is because the intention to draw down and utilise the funds over the next four years would give insufficient time to mitigate any downwards risk inherent in such investments. 2) Impact 2030 Fund Logacy incomo of £940k recognised in 2024125 enobled the trustees to designate two exceptional legacies totalling £898k into our Impact 2030 Fund. This substantial boom in income enabled CLAPA to embark upon its 2025-30 strategy, with £167k drawn down in 2025126 investing in.. Additional project spend for the funded website ond rebrand projects to enhance the ongoing impact ond copobility of these valuoble projects. Flnanclol re￿8W reserves pollcy CLAPA Annuol Report 2025126 Flnonclcrf We￿8w and r*s&￿$ pollcy CLAPA Annuol ROPOrt 2025126 34 35 Key risks and uncertainties Structure, governance and management The Trustees have approved o risk assessment for the charity and are satisfied that systems ore in place to mitigote exposure to the major risks. At each quarterly board meeting, the risk register is reviewed, along with a samplg of thg risk management policies and procedures produced by the charity. The principal Tisks and plans for managing them are set out below: Operational, safeguarding and data protection risks Constitution Safeguarding, health and safety Key operationol risks include financial controls. GDPR and dato protection. sofeguording, ond heolth ond sofety. CLAPA has dedicated policies and committees in place to manage and monitor these risks, including the Safeguarding Committee and Health & Safety Committee. with risks Fundraising risks reviewed regularly through the charitys risk management framework. The charity delivers o ronge of services involving The most significant fundraising risk children, young people. adults, volunteers currently facing CLAPA is the ongoing and onlin8 communities, and therefore ability to secure funding from other sources places particular emphasis on safeguardin whilst holding a high level of reserves ot sofe service delivgry ond inlormotion the end of 2025126. The legacy be uests received during 2024125 and 2025 governance. CLAPA olso has relationships in 26 ore place with external experts ond seeks odvice transformative for CLAPA, doubling total where appropriate. income for those years, however the charity is not aware of any similar levels of incoming Economic environment funds in the near future. CLAPA is a charitable company limited by guarantee, governed by its Memorandum and Articles of Association dated July 2004. CLAPA incorporated in Englond ond Wales in August 2004 and registered as a charity in Scotlond in November 2009. Safeguarding and health ond safety ore both key priorities lor CLAPA. The Chief Executive is the Designated Saleguaiding Lead (DSL), supported by four deputy DSLS,. ond a Safeguarding Leod and Deputy are appointed at board level. All meet on a quarterly basis as the Safeguarding Committee to provide strotegic ond operational leadership. All staff and trustees receive relevont safeguardir)g training. DBS checks are carried out for all trustees and relevant staff prior to commencing their role within CLAPA. A safeguarding audit is due to be carried out in Moy 2026. A health and safety review took place during 2024125 to ensure CLAPA, its stoft, ond trustees ore compliant, ond thot the appropriate policies and procedures are in plac8. A H8alth and Safety Committ88 is in operation, with the Chief Executive as Health and Safety Lead and representatlon from two other staff members and a trustee. Additional support is provided by an external organisation. Board of trustees CLAPA'S trustees oll have experience of cleft, either professional or personal. The boord's membership is regularly reviewed to ensur8 It has the necessary skills to fulfil its duties to support the charity's activities, with o balance of clinical, legal, financial and operational expertise. Trustees give their time voluntarily and receive no benefits from the chority. The trustees hold full responsibility for the activities of the charity, taking recommendations from and delegating decisions to the finonce ond investments, HR. and fundraising and communicotions committees. All committees consist of both trustees and senior charity staff. Day-to-day management of the charity is delegated to the senior leadership team. Th8 trust88s decid8d to designat8 th8 legacy funds to be spent in lull over the 2025-30 strategy period by investing in services, the stall team and the income generation strategy with the aim of achieving a balanced budget and r&serv8s within the target ronge by 2030. In the 2025-30 strategy forecost, investment in income generation was identified as an essential priority to close the gap between significant increases in annual expenditure and forecasted income. Further risks arise from the ongoing difliculties aff ecting many small charities. These include rising demand for services. increosing staff ing and overhead costs, inflotion and the 'cost of living. crisis, volotility of interest rates, reduction in donotions from the general public, and increased competition tor gronts ond donations. As well as posing o risk to income generotion through reduction in donations from the community which CLAPA relies upon, the 'cost of living. crisis also presents a risk to staff morale and retention, and this is an ongoing focus of the HR committee and Senior Leadership Team (SLT). The following measures are in place to manage these risks- Costs are monitored and controlled on an ongoing bosis and the charity is closely following its 'lncome Generation Strategy, to continue to diversify its income streoms. The Finonce & Investments Committee monitors financial performonce ond return on investments. CLAPA also has an Employee Assistance Progromme in ploce for stoff ond volunteers. and all staff have regular supervision with their line manager. Related parties and relationships with other organisations CLAPA has a wide variety of strategic portnorships with other charities ond organisations. Creoting and growing these partnerships is crucial in broadening the charity's range of stakeholders and increasing its impoct. Appointment and training Trustees are recruited through open competition with oppliconts being shortlisted. interviewed and appointed by o ponel of existing trustees. Newly appointed trustees receive induction and training in CLAPA'S objectives, structure, delegation. finances, safeguarding, and information, to ensure they understand their responsibilities as trustees. Key risks oncl uncertainties CLAPA Annuol Rtport 2025126 Structure. gov*rnonce monagemenr CLAPA Annuol RtPDrt 2025126 36 Partners include: Remuneration policy for key management personnel Statement of responsibilities of the trustees The NHS multi-disciplinary Cloft Teams Third sector partnership groups: the Appeorance Collective, the Shored Learning Group for Patient Involvement, and the British Heart Foundation's Peer Support Network. Health related collectives and organlsatlons. the Royal College of Speech and Language Therapists (RCSLT), the Royal College of Poediatrics ond Child Health (RCPCH), Specialised Healthcare Alliance and the speech, Language and Communication Alliance. CLAPA'S HR committee, together with the F&IC, is responsible for odvising the board of trustees on poy and remunerotion of the Chief Executive. The Chiel Executive is responsible lor advising the committees on the pay and remuneration of all other staff roles. Salaries are benchmorked against equivalent posts at similar sized orgonisotions in the voluntory sector, using published salary surveys and publicly advertised positions. The Trustees (who ore olso directors of The Cleft Lip and Palate Association for the purposes of company law) are responsible for preparing the Trustees. Report (incorporatin the strategic report ond directors. report ond the financial statements in accordance with applicable low ond United Kingdom Accounting Standards, including Financial Reporting standard 102.. The Finonciol Reporting Standard applicable in the UK and Republic ol Irelond (United Kingdom Generolly Accepted Accounting Practice). Company law requires the Trustees to prepore financiol stotements for each financial yeor which give a true and fair view ol the state ot afloirs of the choritable company and of the income and expenditure. of the charitable company for that period. In preparing these financial stotements, the Trustees ore required to.. S8lect suitoble occounting policies and then apply them consistently; observe the methods ond principles in the Chorities SORP,. sofeguording the assets of the choritoble company and hence for taking reasor)able steps for the prevention and detection of fraud and other irragularities. In so far as the Trustees are aware- there is no relevant audit information of which the choritoble compony's auditors are unaware,. and the Trustees have taken oll steps that they ought to hove taken to moke themselves aware of any relevant audit information ond to establish that the auditors are owore of that information. Related research groups.. the Cleft Collective, Cleft@18-23, and the Centre for Appearance Research (CAR). NHS related groups.. Cleft Development Group (CDG) and Clinical Studies Group (CSG). Oth?r ¢harltle$.' the Europeon cleft Organisation (ECO) and Young Minds. Commerclal partners.. Crown Worldwide, MAM, Infans TIA 8abycentrol and Handi-craft. The Trustees ore responsible for the maintenonce and integrity of the corporat8 and financial information included on the charitable company's website. Legislation in the United Kingdom governing the preporotion and dissemination of financial statements may differ from legislation in oth8r jurisdictions. Auditor A C Mole LLP was oppointed as the choritable mokejudgments and accounting company's auditor during the yéor and estimotes that are ieasonoble and prudent.. hos expressed its willingness to continue in stote whether opplicoble UK Accounting that capacity. Stondards have been followed, subject to The Trustees, annual report has been any moteriol deportures disclosed and prepared in accordonce with the special explained in the linancial statements; ond provisions applicable to companies subject prepare Ihe financial statements on to the smoll companios, rogimo. the going concern basis unless it is Tha annual report has bean approved by inappropriate to presume that the the Trustees on 23 July 2026 and signed on choritoble company will continue in thgir b8half by- business. The Trustees are responsible for maintaining proper accounting records which disclose with reasonable accuracy at any time the Thomas Millward financiol position of the choritoble compony Trustee and enable them to ensure that the financial stotements comply with the Componies Act 2006. They are also responsible for Struciure. governan¢8 ond monog8m8nt CLAPA Annuol Rtport 2025126 Statement of respon$ibllities ol the trustees CLAPA Annuol Rtport 2025126 38 39 Reference and administrative information Independent auditor's report to the membors of The Cleft Lip and Palate Association Reglstered and worklng nam•s The Cleft Lip and Palate Association (registered name) Cleft Lip and Palate Action (working name) CLAPA (working name) Bankers Opinion We hove audited the financial Statements ol The Cleft Lip and Palate Association ('the charitable company) for the year 8nd8d 31 March 2026 which comprise the statement of financial octivities, balance sheet, statement of cash flows and notes to the finonciol statements, including significant accounting policies. The financial reporting framework thot hos been applied in their preparation is applicable law and United Kingdom Accounting stondords, including FRS 102 The Financial Reporting Standard opplicoble in the UK ond Republic ol Irelond (United Kingdom Gen8rally Accepted Accounting Practice). In our opinion, the linancial statements.. give a tru8 and fair view of the state of the choritable compony's affairs as ot 31 Morch 2026 ond of its incoming resources and application of resources lor the yeor then 8nd8d.' have been properly prepared in occordance with United Kingdom Generally Accèpted Accounting Practice,. and with these requirements. We believe thut the audit evidence we have obtained is sufficient and oppropriate to provide a basis for our opinion. HSBC 56 Queen Street Cardifl CFIO 2PX Conclusions relating to going concern Barclays Bank plc 99 Hotton Garden London ECIN 8DN Company number 05206298 In ouditing the financial statements, we have concluded that the trustees, use of the going concern basis of accounting in the preparation of the financial statements is oppropriote. Bosed on th8 work w8 hav8 P8rform8d, we have not identified any moterial uncertainties relating to events or condltions that, individually or collectively, may cost signilicont doubt on the charitable company's ability to continue as a going concern for a period of at least12 months from when the financial statements are authorised for issue. Charlty nUM￿r 1108160 Flagstone Group Ltd 1st Floor Clareville House 26-27 Oxendon Street London SWIY 4EL OSCR number SC041034 Investment managers Evelyn Partners 45 Gresham Street London EC2V 7BG Registered oflice and operatlonal address The Green House 244-254 Cambridge Heath Road London E2 9DA Our r8sponsibilitl8s and th8 r8sponsibS1itI8S of the trustees with respect to going concern are descrSbed in the relevant sectSons ol thls report. Audltor8 Trustees A C Mole LLP Chortered Accountants & Stotutory Auditors stofford House Blockbrook Park Ave Taunton TAI 2PX Trustees, who aré also directors under company low, who served during the year and up to the date of this report were as follows.. other information hove been prepored in accordance with the requirements of the Companies Act 2006 ond the Chorities ond Trustee Investment (Scotland) Act 2005 and regulation 8 of the Charities Accounts {Scotlond) Regulations 2006. The other information comprises the intormotion included in the annual reporL including the trustees, report, other than the financial statements and our ouditor's report thereon. The trustees are responsible for tho other information contained within the onnual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. H Bowdler (nee Ho) S Bragg S Handloy (resignod June 2025) D Harrin ton-Greenwood J Kerby resigned Ma 2026) T Millward, Treasurer from Aug 2024) & Vice Chair (from July 2025) O Rendell, Chair from October 2024 M Spencer C Taylor I Williams Basis loropinion We conducted our oudit in occordance with International Standards on Auditing (UK) (ISAS (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor's responsibilities for the audit of the financial stotements section of our report. We ore independent of the charitable company in occordonce with the ethicol requirements that are relevant to our audit of the financial stotements in the UK, including the FRC'S Ethical Standard and we have fulfilled our other ethical responsibilities in accordance Our responsibility is to read the other information and, in doing so, consider whether the other informotion is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such moteriol inconsistencies or apparent Company secretary & CEO Claire Cunniffe Relersnce odmlni$tratlv8 Snformorion CiAPA Annuol Rtport 2025126 Indep8ndenr audltor's r*pori CLAPA Annuol Rtport 2025126 41 material misstatements, we are required to determine whether this gives rise to a moterial misstotement in the finonciol statements themselves. If. based on the work we hove pertormed, we Conclude that there is a material misstatement of this other information, we are required to report that loct. We hava nothing to raport in this ragard. certain disclosures of trustees. remuneration specified by law are not mode,. or we hav8 not received all the information ond explonotions we require for our oudit,- or the trustees were not entitled to prepare the financial stotements in accordonce with the smoll companies regime ond take advantage of the small companies. exemptions in preparing the trustees, report and from the requirement to prepare a strotegic report. report that includes our opinion. Reasonable employment law and health and saf8ty. assurance is a high level of assurance, but is In addition, we consider other laws and not o guorontee thot on audit conducted in regulotions which moy not directly impact accordance with ISAS (UK) will always detect the financial statements but may impact on o moterial misstotement when it exists. the operation of the choritoble compuny. As a result ol these procedures we concluded. in accordance with International Auditing Stondards, that a risk in relation to the potential for management override ol controls existed. Misstotements can arise from fraud or error and are considered material il. individuolly or in the aggregate, they could reasonably be expected to inlluence the economic decisions of users taken on the basis of these financial statement& Opinions on other matters rescribed by the Companies Act 006 Irregularities, including fraud, are instances of non-compliance with laws and regulotions. We design procedures in line with our responsibilities, outlined obove, to detect material misstatements in respect of irregulorities, including froud. Th8 extent to which our procedures are capable of detecting irregularities, including Iroud is detailed below.. Audlt responses to rlsks IdentFfled We designed and performed audit procedures to respond to the risks identified. The odditionol procedures included the following.. considering the incentlV8s and opportuniti8s for fraud gaining on understanding of the charitable company's procedures for ensuring compliance with laws and regulations testing the appropriateness of journal entries ond other odjustments considering whether accounting estimates were indicative of potential bias considering whether any transoctSons orose outside the normal course of business In our opinion, based on the work undertaken in the course of the audit.. Responslbllltles of trustees As exploined more fully in the trustees. responsibilities statement the trustees (who ore olso the directors of the choritoble company for the purposas ol company law) are responsible for the preporation of the finonciol statements ond for being satisfied that they give a true ond fair view. and for such internal control as th8 trustees determine is necessary to enoble the preporation of finonciol stotements thot ore free from material misstotement, whether du8 to troud or error. the information given in the trustees. reporL which includes the directors, report prepared tor the purposes ol compony law, for th8 financial year for which th8 finonciol statements are prepared, is consistent with tha financial stotaments,. and Identi ling and assesslng potentlal risks o material misstatement due to Irregularities We have considered the following when id8ntifying ond oss8ssing risks ol material misstatement due to irregularities including froud and non-compliancg with lows and regulotions: the legal and regulotory framework in which the charitable cornpany operates the sectOT in which the choritable compony operotes the control environment ond controls established to mitigate such risks the results of our enquiries of manogoment about their identification and ossessment of risks of irregularities discussions with the oudit engagement team about where fraud might occur the incentives for fraud. the directors, report included within the trustees, report has been prepared in occordance with applicable legal requirements. Mutters on whlch we aro r•qulred to report by exception In the light of the knowledge and understanding of the company and its environment obtained in the course of the oudiL we have not identified material misstotements in the directors, report included within the trustees, report. We have nothing to report in respect of tho following matters in relotion to which the Companies Act 2006 and the Charities Accounts (Scotland) Regulations 2006 requires us to report to you if, in our opinion- adequate and proper accounting records hove not been kept, or returns odequote for our audit have not been received from branches not visited by us,. or the financial statements are not in agreement with the accounting records and returns. or In preparing the financiol statements, the trustees are responsible lor assessing the charitobl8 companys obility to continue os a going concern. disclosing. as applicable. matters reloted to going concern and usir)g the going concern basis ol accounting unless the trustees either intend to liquidote the company or to cease operations, or have no realistic alternative but to do so. making enquSrles of management corroborating our enquiries through review of Boord Minutes and correspondence. We also communicated relevant laws and regulations and potential fraud risks to oll engogemont teom mombers and remained alert to any indicators of fraud or non-compliance with laws and regulations throughout the audit. A further description of our responsibilities is ovailoble on the Financial Reporting Council's website at.. www.frc.org.ukl ouditorsresponsibilities. This description forms part of our auditor's report. Auditor's rosponsibilitios for the audit ol the financial statements We have been appointed as auditor under section 44(1) (c) of the ChaTlties ar)d Trustee Investment (Scotland) Act 2005 and under the Componies Act 2006 ond report in accordance with the Acts and relevont regulotions mode or having effect thereunder. Laws and regulations which are considered to be significant to the choritable company include those relating to the requirements of finonciol reporting framework FRSIO2, the Companies Act 2006. the Charities Act 2011, the Charities ond Trustee Investment (Scotland) Act 2005, UK tax legislation, Our objectives are to obtain reasonable ossuronce obout whether the finonciol statements as a whole are free from moteriol misstotement, whether due to fraud or error, and to issue an auditors Indep*ndenr auditor's report CiAPA Annuol Report 2025126 Indep8ndenr audltor's r*pori CLAPA Annuol Rtport 2025126 42 43 Use ofour report This report is made solely to the charitable compony's members, os o body, in accordance with Chapter 3 of Part16 of the Componies Act 2006, and to the charitable company's trustees, as a body, in accordance with Regulation 10 of the Charities Accounts (Scotland) Regulations 2006. Our audit work has been undertaken so that we might state to tha charitable company's members those matters we are required to state to them in on auditor's report and for no other purpose. To the fullest extent permitted by low, we do not accept or assume responsibility to anyone other than the charitable company ond the choritoble company's members as a body, for our audit work, lor this reporL or for the opinions we have formed. Statement of financial activities (incorporating an income and expenditure account) Forlh*yggr•ndwl 31 M￿￿h 2026 2026 TL)tul unresiritied 2025 Total Unrestr￿ted Restricted Rèsiricied Note me tr4)rn.' Dontsrions ond *oci8S Charitabb activities 1539,157 65,096 62.335 202,055 1,741,212 65,096 1,441,406 74,980 18.23Q 238,265 1,879,671 74,980 Investments 62.335 18.239 Other 7.500 7,500 726 726 Total In¢om• 1.674.088 202.055 1,876,143 1.535.351 23e.265 1.773.616 Exp8ndltur•on: Raisiry lunds Choritot>le O¢iivitios 263.491 263,491 212019 212.OlQ 623.641 224,411 848,052 448,329 182.164 630,493 T•tul •xp•ndltur• 887.132 224.411 1,111.543 660.348 182.164 842.512 Not Incomeforth8y8ar Tron5fers 786,956 13.930 {22,3S61 113.e301 138.2861 764,600 875.003 56,101 125.8701 30,231 931,104 16 Alexandra Shor8 (Senior Statutory Auditor) For and on behalf ol A C Mole LLP, Statutory Auditor stalford House Blackbrook Park Avenue Tounton Somerset TAI 2PX 25.870 N•¢ mov•m•ni In fvndl 16 800,886 764,600 900.873 931,104 Reconclllotlon of funds.. loial lunds L)roughl forward 16 Total luhd•¢orrl•d lorword 1,297,518 2,OQ8.404 70,707 34.421 1,388,225 1132,825 396,645 1,2Q7.518 40,476 70,707 437,121 1.368,225 All of the obDve resuts ore derwe(J from continuing octlvlties Movements in funds ore cjisclosed in note16b to the fimnool stat￿18n1$. Date.. 2.1..J.y.ly. 20.2A.............. Indep*ndenr auditor's report CiAPA Annuol Report 2025126 Statemenr of linonclul o¢tivities CLAPA Annuol Rtport 2025126 45 Balance sheet Statement of cash flows A8at 31 March 2026 F•xlh•y•ar•nd•d 31 March 2026 Companyno. 06206298 Restoted 2025 R•conciliation of notincomoto n•tCagh Ilowfnxn Restated 2025 2026 2026 Note Fixed as¥ets- C05h generated by operating activitieg Net movement in lurKIs Intorhgible hxeu ossets Invastmènts 46.842 2S870 764.600 921.104 681.796 728.638 2S870 Adjustm8nts for. Depreciation charges Amortisation Current a88et8- 1,541 stock 17,664 198.613 35.749 794 DeL)iors 12 61.498 Inv&stment in¢oN {82.335) 18,085 118.230) 135841 116,6561 149,5481 845,818 Current osset Invgstments 887,348 1237,5n Decr￿$8 I Iincr80sel in stwks Iincreasel in iagbtors Increase I Ioecreosel ID creoitors Not co¥h provkled by op•ratlng actlvltlo1 Cosh oi bank and In hand 369,902 54.955 1,453.525 189,n3 1,980 686,009 Creditors.. ornounis folllng duo within ong yoor 13 (49.338) 147,358) ¢a$h flow$ Irom Inv•stlng actlvltl Purrhas8 01 intorrtJibl? lix8d ass8ts Purchase of inv8Stm8nts Nat current 0888t8 1,404,187 1132,826 1,342.355 1,368,225 {21,766) 125,8701 (346,9061 11,064.0011 62,335 18.230 1306,3371 11.071.832) Totul n•t 0$4•ti Investrnenl incorne Th• lund$ of th• ¢harlty'. Re$trict&cJ lun¢s 16 N•t¢¢sh pmvld•d by Inv•itlng o¢tlvltl•s 34.421 70,707 Unresirici8d funds.. Chang•ln cash and cosh ￿￿1¥alont$ In th•year Cosh ond cash equivolenis 01 th& beginning ol Ihe year Cqsh qnd cq8h equfvulonts ot the end of tho yeor 279.672 1226,0141 454,479 Designated funds Fixeol a55et fund I￿72,727 46.842 938,118 25.870 228,465 508,137 228,46 G8n8ral funds 678,835 335.532 AMty•lsol eashand cash•qulval•nts At 81 March 2026 Tolal unrgstricled lunds 2,098.404 1132,825 1297.518 At l April Ca$h flows 2025 Total charlty fund8 1,368225 tash at bonk and in hc4Th 54,955 173.510 314,947 135,2751 279,672 369,902 138,235 508,137 2025 has resiaiecl to reclassify amounts betwe8n current asset investments ond cash ot tsjnk and in hand. Thgre is no impact OD net ass8ts or nBt funcls. These occounis havè beon prepored In accordcjnce with the provisions opplicobbto componw subjgci to the smull comp(Jni8s regim8 Approved by the trustees on Curroni ossor Invosimonts wilh a ierm ot 3 months or less Totul ¢osh ond ¢q$h oquivul•nts 228.465 Anotysls olehano•8 In n•td•bt 23 July 2026 and signBd on their by The chority hos not prowded on onotysis of chonges in net debt os It does ntst hove ony long terrn firKJnang orroroemenr i Domas Miiiward Trustèe Balance sheet CiAPA Annuol Rtport 2025126 stor?￿rnI ol cash flows CLAPA Annuol Rtport 2025126 46 47 Notes to the financial statements J} Intanglble flxed assets o) Ca8hat bunkand In hand Forth•yearonded 31 March 2026 kntongible fixed ossets comprise the cost of the choriws websifa. Intongli￿& ossets ore iniliolly racognisad ot COSL including ihe lair valLJe ot ony donated assets, ond subsequenlly corried ot cost less occumulote omortistsith. Cosh ot bonk ond cosh In hond Includes cosh ond short t&rm highly liquid investments with a short m¢Jturity of three months or le8s from ihe date ol acquisition or opening of the deposit or similar account. p) Current a$$•t invo¥tments Current osset investments includes bolances held for the purpose ol genèroting on Invasimént raturn, with moturity dates 0112 months or less. l Accounting policies a) statutory Informatlon The Cleft Lip Palate Associotion, trading as Cleft Lip ond Poltste Aclion ICLAPAI is o ¢horit0￿e tompony limited by guarantee tsnd Is Incorporoièd In England ond Wolès. Thg registered off ice address and principal plac8 of business is The Green House. 244-254 Combridge Heath Rood, London, E2 9D Income from govemmeni Or￿ other gronis, fftfher 'cupitul' grants or'rev8nu8' grants. is recognised when the chority entitlement to the furKls. ony Performor￿￿ condiDons ottoched to the gronis hove been met. it is probable that the income will be rec￿Ved and the umount con be meosurecl reliobly ancl is not cleferrecl Ouring the yèor governmènt gronis werÈ received from Ihè NOtiorMJl Lottery totalling £82.97612025 Norional Lottery £100.5141. Therg ore no unfulfilled con¢itK)ns In r95PBCt ol these gronts Thè chority did not benatil trom ony Olhor forms of gov&rnm8nt ossistcJnc8 cjunng rhe curr&ni or prior y80r. Legocies ore recognised os incorne vhien the conditions of ¢niillèmèni. probabilily ond r&l￿bilitY of mgosurèmgnt have been mèt. WherÈ legocies hove baen noiiliÈd to Ihe charity. or the charity Is aware of the grunting ot probat ond the criterio lor In¢tsm& recognition hove ntsi b60n mgr, Ihon the logcJ¢y Is treoted 0$ o ¢oniingeni ossei ond disclosed Il motenol tLJngibl8 fN8d ass8ts ar8 ¢Jmortised at rates calculated to write off the ossets on o slroight-line bosis over their esiimoied useful economic lives ImptsirmÈnt ol intongible osseis is r8Vi8W8d where cireumstanc8s indic¢Jt8 thai the corrwry value of on osset tnoy not be fully recoverobl Arnortlsabon IS Fywded al the following rates.. W8bsi18."10 y8ars stroight line q) Credltor$ and provl$lon$ Creditors ond provisions are recognised where the charity htss o presènt obligttiion rèsulting from o pogi èvsni thoi will probttbly rèsult In thè Iranslèr ol lunds to o thlrd party and Ihe amount due to selli8 the obligation can b easurgd or estimated reliobly. Creditors and provisions orÈ normolly récognised ot Ihgir settlement amount r) Financial instrumonts Th8 choriry only ttas tinanciol assÈts and financial Iiobilitl8S ol o kincl Ihot qualify us bosic lirionciol instruments Basic finonciol instrurnen15 Ure initiolly recognised at tronsacliori voluo ond sutis¢quontly meosurod oi omortised cost using the 8ffectiv8 Interest meihod. b) Basis ol preparation k) Tangiblo fixod as$ot$ Th8 financial srat8m8nts hav8 b86n pr8pcJred In accordance with Accouriting ancl R9POrting by Charities.. statement ol Recommencled Practice applicable 10 charitiès preporlng thèir o¢¢ounts Iri o¢¢ordon¢e with the Financial Reporting Stondtsrd applicoble In the UK oncl Rgpublic ol Irglancl IFRS1021- Ichurities SORP FRS 1021, Th8 Finonciol R8portin Stondord opplicoble In the LJK and Republic ol Irelond FRS10?l oncj the Componies Act 2006. Tangit)18 fixed ass81s org Iniiially ￿￿oSUred ai cost and subsequently rYwsur￿ ot cost less deweciotion. Item5 costing bs5 thon £ZOOO ure not cupilolised. DBpreciotion Is provided ot roios col¢ubigd rowrite oft tha costlgss estimatecj valu8of each asset over its exp8CteLI useful Ilf8, 0$ fdlows". Firtures on(J tiityngs.. 4 yeors sirolght hne Th8 gain or loss angng on rhe disposal of an oss8t is d8twmined os th8 diffwence b8tween the proceeds ond ¢h¢ ¢orrying volu8 of Ihe OSSeL oncl is r¢¢ognised in net incomellexpendiiwo) tly the ygor. l) Inv•*tm•nt# Any incomg recogni59d before funds arg roc9￿1 aro In¢ludgd wirhin dgbtors in gronrs ond le9o¢ies recewoblo (for gronis ond lego¢ig$1 or o¢¢iued In¢om¥ Itor Llonation5 onLI other incornel. cost or Ironso¢iion volue unloss otherwise stored in the relevant uccounting policy or note. In applyirig the linancial reporting Iramgwork, tfv8 Iruslee$ hove mod¢ o numbeT ol subl$¢iive judgements, lor xomple in rftsppc.l of 8ignifir.anr ar.fOLinling 8%timot8 Estimalos and judgomonts oro continuolly ovoluotod ond oro bosed on hisiori¢ol experience ond Olh¢T lociors. including expecraiions ol fLJture events Ihcjt or8 believed to b8 reosonoblg under the circumstonc88. Ihe naiure ol the estlmatlon M￿rn$ the acluol tsut¢ornes could dlller from Ihos8 estim018s. Any slgnillconi estimate5 ancl judgornori15 umocting these linonciol sialomeni$ or& deloiled within the relevont accounting policy b610w. •) Pen$lon8 The choriry operates o dalined contribution pension scheme Contfibutions aro chorood in the occounts ag th8y b&come poyoble In occorcjonce with lh8 rules ol the scheme l) Int•r•8t r•c•lvabl• Inv•s¢m•nts In d•bt In8trum•nts Interesl on funds he￿ on deposil is included when receivoble ond the omount con be meosured reliotty by Ihe charity, this Is normolly upcn r￿tIlle0r1cfi of th8 interest poid or pgytsble by tha bonk. g) Fund accounilng R6Strict6d lunds ore to bo used lor purposos os loid down by the donor Expenditure which m8eis rr critefio is chcjrged to the fund Unresrricted funds ore Llonalion5 onLI other incomin9 re50urc85 receiv8L1 or generot&d for th¢ ¢horiioble purposes. Dosignored turKIs ure unrestricted funrjs ol the choriiy which rhe trusteas hav8 decirjed ot theii discretion to sei oside ro use lor o specilic purpose. vestrrvants in governrnenl bonLls ore r8cognis8d iniiiolly 01 trongocD'on volue on¢ subsequenrty meosurgd or omortised cosi using the effeciw8 inier8St method. Th8SÈ inveslmgnts oro clossifiod os bOSiC linanciul instruments Prior period adjLJStments or8 mode In respect o18rror$ un¢¢r FRS102, 0$ they comprise lixed or dererminoble or change5 in accounting policies which rglote to prior p)ym8nts ond ore held 10 colleci conirociuol cosh flows perlods. Adjustmenis ore opplled rgtrc>spo¢tivgiy by restating comparaiive figures lor Ihe precedlng perlodlsl As a rella￿e maltet value Is nor readily availabla lair value wh0r& opplicoblè. Deioils ot prior period OQjustments are M6￿SureMent is not appli8LI. Intwest income is reco9nised givon in noto 2110 tho occounis. using the efle¢Nve Inierest rote method. t) Prlor ￿rIOd adJustm•nt8 c) Publlc beneflt entlty Thg charitable cornpony meBts thè dolinition of o publie benèfit antiiy und8r FRS ID?. d) Oolng conc•rn m) St￿kS Stocks ore stoted oi ihe lowerof Cost ond net reollsob valug. In generoL cost Is deiermined on a first in first out sis ond inclu¢Jes tronsport ond hondling costs Net reolisolje volue Is the price ot which sttscks con be sokj the numol course of business ofter ollowing for the costs ot realisarion. Provision is mo¢8 wher8 necessary f obsolete. sbw moving ond defective stocks. Stock held for free distnbution lor fundroising purpos8$ is includ8d at nil vclue. siock held for free distribution th o chontable purpDse is o¢covnted for bosed on service poienrial. Th8 occounts Mava been prÈpttred on Ihe going concern basis. which the trustees corisicter appropriate having regord to the current level of unrestricted reserve5 fhere are no moterial unceriointies aboui the chariiy's abilily 10 coniinua as a goir)g concèrn. h) Expendlturo Resource5 expended ore recognised in tlKTr period to which Ihèy relotÈ. Direei chorit0b￿ expÈnditure comprises oll IhÈ 8XP8ndiiLJre reloiin9 Lo (he OCiiwli8s carr￿j oul lo rJchi8Ve the chgritoble obie¢tive5 Stall c0515 hove been 011￿01ed to octivities on the bosis of time spent. Governon¢e includes the cosis ol complionce Wlh consiiiijlicnol ond statutory requirements support anol gOVerr￿nCe costs org rptsllocated lo r0151ng furKJ5 and to charit0￿e tttmties based on thg proFx)rtion of statf time os fdkM5.' Roising funds.. 23%12D25.. 26%) Chorifoble octNifies.' 77x120?5.. 74x1 i) Operating1oas?$ e) Income All incoming rosources aro included in stotement ot finonciol octivities when the chority becomes entityed to the incomtr and the omounis con be measured reliobly. Don¢Jtions ¢Jr8 r8cognis8d when th8 chariiy b8com8s entitlp.d to the income Income. tox recoveroble in relotion to donotions receivéd undei Gift Aid is recognised 01 the time ol Ihe donation. n) Debtors Tiad8 ond OLher debtors ore recognised at Ihe settlemeni omounl Prepaymenis c)re valued 01 the omount prepaid. Rental charge5 are charged strawJht-line bo5is over rhe tevm of rh& lease. Notes ro the Ilnoncial stotemenis CiAPA Annuol Rtport 2025126 Nor*s to the finonclul statements CLAPA Annuol Rtport 2025126 49 Not•s tothollntsnel41 st4tom•nttsl0rt￿Y￿r•nd*d 31 Mtsreh 2026 Iltst•stoth•llntsrteknl &tirt•m•ntsforth•y•tsrend•d 31 Mareh2026 2. Income from donations and legacies 4. Analysis of expenditure 2026 Total Ruising Chariiob18 funds Support & gov8rnanc8 2026 Total UnrÈstrict8d Restriciecj Donaiions and grtsnts Gift aid 547.946 41,656 2.446 589.602 Salari8s & fr8￿ance (not8 61 Feeding service equipment & posloge Serwce ddivery & other direct costs P￿[lorM le6s & Olher lu￿raiSIn9 COSfS Stott& vduntegr ¢osts 129,112 407,580 29.017 220.241 756,933 29.017 51.720 54.166 3&209 38.209 1,266 57,594 58,860 Le9ocias R8strictècJ grants Total Incom• lr¢>Mdor￿￿Qn% and1•gac5•• 901,282 901.282 40,311 40.311 157,953 157.953 14,083 32.039 19,834 5,379 2,Q04 40,717 33,717 37.418 1,539,157 202,055 1,741,212 Premi58S COSIS Commun￿ot10nS 3B96 1509 9.309 Admin & IT costs 4,249 21,814 66,780 Prlor y•areomparailv• 2025 Toiol Unresiriciocl Restricied Legol, protesgonol & govemonce Dev8bpment proi8Cts R8brand {donoleLI swvices- note 21 D8pr8ciation & amortisation ?D,123 20,123 23,864 23,884 34.417 34.417 Donaiions and grunts Gift aid 439,788 46,599 14,700 940,319 439,788 46.590 7e4 794 178.834 564.636 368.073 1.111,543 Gifts in kind 14.700 L¢goclas Resiri¢tocJ grants Total income from donorions antt legucies 940,319 AIIocoiion ol support & governoncg ¢osts Tolal •xp•ndttur• 2028 84,657 28.B,416 1368,0731 238,265 ?38.265 283.4 848.052 1,111,643 1.441,406 238,265 1.679,671 Included in gilt5 in kind is f 34,41712025.. £12,900I for pro bono bronding consuirtsney ono degpn ond print serv¢es and £3,79? for othar donoted goods and service$12025 £1,8001. Prlory•ar c•mpqrqllv• Roising Charitable Support & funds octlvllles gov8rnane8 2025 Totol 3. Income trom charitable activities Solorios & Irodones Inot4 61 Fe8£ling 5eTvic8 6yuiprnent & posiogè Servre ddivery & other direct Costs Pkntform tees & Olhw futxjrolsing cosrs siall & volunt88r costs 108,432 263,723 48,957 40,005 176,005 548.180 Reclassified 2025 rotgl 48.957 2026 40,005 23,393 23,393 28,581 37,740 4.850 10,189 35,856 Z768 &481 1&392 1,884 Ftrtsding s&Nice oth8r merchandiseliiteralure sales ConsultcJr)cy Totol income from choritable octivitie5 53,725 1,467 70,807 1,445 2728 74,980 Premises costs c0mrnun￿Ot1Ons 1,941 3234 9,904 Admii & IT costs 43,072 25,Tr0 8,828 11900 1,541 288,533 54,787 65.096 Legol, yofessionol & govemon¢e Dev8lopmenr proi8crs R8brand {donote(J services- note 21 Depreciotion & omortisotion 25,770 7.000 15,828 12,900 1,541 All income Irom chcjriioble octiviiies In the current and prior year wos unreslricied Incom8 from charitable activities in the prior yeor has been recI￿sSI¢l8lI so that income for post£U8 has been assigried to feeding service onol other sales os this element of incorne is directly associoted wth these octMtie& 137.000 416,979 842,512 All￿atron of support & gov8rnonce costs Totol expen¢iture 2025 75,019 213019 213,514 630,493 1288,5331 842.512 Notes ro the Ilnoncial stotemenis CiAPA Annuol Rtport 2025126 Nor*s to the finonclul statements CLAPA Annuol Rtport 2025126 50 51 Not•s tothollntsnel41 st4tom•nttsl0rt￿Y￿r•nd*d 31 Mtsreh 2026 Iltst•stoth•llntsrteknl &tirt•m•ntsforth•y•tsrend•d 31 Mareh2026 5. Net incomefor the year 7. Related partytransactions Thls Is sttsted tsftèr chtsrglng.. AggTegote donotions from relotÉd wrtiès wèra £1,96012025 £1,547). Dontsiions ware mtsdè without tonditions. Th&r8 W8r8 Th) 0th8r rel0￿￿ Kffiy tronsoctions to disclos& for 202612025". none). 2026 25 8. Taxation DeprgCiQtion & amortlsation Opèroting leosè renials Ipropèriyl ALJditor's r8munerotion lincluding VATI.- 794 23.145 10.740 25,466 Th& choriioble compony is exempi from corporotion tox on its income to the extent Ihot it is cttaritable ond is aptJieLI for charitoble purpose& 12,120 Included within support & governon¢e costs In note 4 ore governonc& costs torolliro £11,86512025". É110571. 9. Intangible fixed assets 6. Analysis of staff costs, trustee remuneration and expenses, and the cost of key management personnel Website Totol cosl Stolf costs wore os lollows., Al the stort of the y8or Additions in year Disposols At thè erKI ol the yeor 58.334 58.334 21,766 132.4641 47,836 2026 2025 21,786 1324641 47,636 Salaries ond waggs Social security costs Employgr's pension Fre8lon¢e 858.112 477,572 38,995 17,993 IS,600 54&160 72,124 24.797 1.900 Amortlsotlon Al Ihe siart of the year Chorge lor the ygar Disposols Al tho arKI of thè y8ar 31464 794 1324641 794 32.464 794 766,933 1314641 794 stolf numbers wer8 as follows". 2026 2025 Not b¢>ok valu8 verage heodcount Full limo squivcjlent 23.3 18.9 At th• •nd of Ihfryeor At thè stort of thè yaar 48.842 25,870 46.842 17.8 2&870 All of the otKkVe ossets ore usecj f(* choritoblo purposes The new web51tO W05 loun¢hod in Fobruory 2026 ond amort159d from that dare. The value ol tho old website wos lully written ¢Jown ond disposed ol in thg ¢JCCOLJnts by that dote In the 'ory8or websile wos inclJd8d os tongiblè lixad ossèts but has begn reclossili8U this year Is8e nolg 211. On8 employee 8urnerJ between £60,000 ond £70,000 during the year12029. one). Ihwe were Tr? r8duDd¢￿c¥ costs in the current or prior yeor. CLAPA'S key monogement personnel Comprises of the Boord ol Trustees ond the Senior Leorjership Teom Included withln the Senior L¢Jadarship Team are the following.. Chief Execurive. Heod ol Communicotions onvided funding for CLAPA Wèlcomè Pocks und tr88 8quipm&nt for vukneroL>le lomilies. Gènèrtsl unre5tricled Fixed asset fund Totol funds Designoted Restricted Chlklr•n In Ng•d prtrvided tur￿1n￿ for CLAPA'S core cosis ol runnin9 seTvices for childr&n ond young p80pI8. 9Glv•compapn fun¢Jing was for our c¢Jmpaigning and tluencing Octivit￿S. specilic(lty our ErKI the Cleft Dental Core Cnsis. ¢ompoign In 25126. HlghwayOn•Trust prowd8d funding to improve fundraising Inlrastrueture Th• NatSoMI iott•ryCommunlty Fund (Award*forAlI) provi(Y8d a groni lor o piloi ol Cleft++ on onlin& m8nroring project for 12 10 17 yeor olds. including stolfing costs. Th• NUtSonul iott•ry¢ommunlty Fund (R•ty¢hlng Communlths) provided tut*ing longoingl tor CLAPA'S Adults Services Progromme- lo improve the health und woiib$ing ol odutts in EnglorKI bcKn b%ith o clef¢ SCALP Is¢otthsh Associotson for Cbrt Lip ond Polotel provi¢Jed funding to suppcrt 8vidence-gothering to shop8 Qui policy prioritiès. $mll•Truln prothdod fundlng lor our Fomily SupfY)rt & GuKYoncÈ Piogromme. $¢Jgm•8'• H¢K•Charltabl•F<￿ndlltI0n provided funding loi.comp CIAPA. ie51denliol weekends lor cleft- ollected children ond youn9 P80FI8 Icypl aged 8-12. Th• VTCT Foundqt5on provided funding lor CIAPA'S n8W obsire Thc rron5tef frtsm this restricièu fund to the filed 055el lund Teples￿l$ ¢opitol expor￿1¢￿ra on websit$ d8velopmeni. Th• Wo1￿ F¢)undaUon provid8¢ tunoing to Co￿r thg cost ol wel¢(>me Po¢ks lor fomilies in Fdinburgh. Inionglble flx$cJ ossgts Irgstotedl Nei current osssis 25,870 25.870 335,532 335.532 936.116 935,116 70.707 70.707 1.342355 1.368.225 Net assets al 31 Morch 2026 25.870 16d. Movomont8 In funds (prlor yoar) At 31 Moich 2025 2024 Income Expgnditurg Tronslers 17c. Purpose ol designatod funds: FLrtur•growlhlund 23124 l￿acY Income received in 23124 wos d8signoteol by the trusteos for development projocts. including re-bronding, websiie and IT developmeni, Influencing and theory of changg. Th8 fund hos bgen lully spent as plann9cI ut thg end ol tho ?51?6 tinonciol yeoi There Is o tronsler ot £2,998 Into this fund from the Impoct 2030 tLJnd 10 cover oodiiionol cosis Incurred 10 8nhance the w8bsite delivery. Impu¢t2030d••lynut•dlund During the ?41?S Iinonciol yeor, DNO substoniiol legac19$ wera recognised lOtollin9 IE98,000. A further two larg8 legocies werg rgcognisgLI in late 25126 tololling £641000. CLAPA'S finonciol positlon onu copocity for growth hos be8n tronslormed by rhese18gaci8s Ths Irusiees hove designated the legacy funds to bg 5prgod ond spent In lull ovèr ?0?5-30 Siroiegy pèrlod, invèstlng in the strotegy obieciives, services siafl taom ond Incoma gensrotion strotagy, with Ihe aim ol uchiavin9 a bolanced buL19ei ond roSWVOS Within tho torgot ronge by 2030. £167k CA the fund wos spent in ?51261os deioiled on poge 34 of IheTrust8es' Annual Report) The additional Iwo legacies totolling £64?k recognised as income into this fund in 25126 will fund live essentlol new posts starting in 26127. The bolance ol the fund as we work towords tt bttlante(J budg81 as lollows.. £485k in 26127, £450k in 27128. £290k in ?81?9 onol £150k in 29130. 17d. Flxod assat fund: R•#trfjet•d lund$'. Angus Lowson Momorlol Trust Crocja Foundotion 15,066 18.005) 19,7281 (10,000) l?,ooo) 128.4581 18.333) 172,996) 132427) (10.000) 7,061 9,728 2500 Highwcjy On& Trust Hospital Saturday Fund Michool Josephson The Notional Lottery Community Fund IAIAI Thg Notional Lottery Community Fund IRC) Smile Troin (Englondl St Jtsmès Pltscé - Choritobla Foundotion Thè VTCT Foundation Iwebsitél The Wood Foundotion 10,000 2,000 28.458 2500 20.000 Il687 33A84 25,96e 80,514 32427 10,000 39,800 125,870) 13,930 1065 70.707 2.282 40.476 Totol restrlcted funds 238,265 1182.IS41 12S870) 17b. Purpose of restrlcted funds from the prior year: Aryu¥Low¥on M•morlul Tru•t prtsvidod funcling for CLAPA Welcorrie Packs ond free equiFment for vulneroble families. Doslgnated funds Future growth tund 23124 Impact 2030 Toral designated funds 71,000 {3Z884) 38,116 898.000 936.116 898.000 ,000 898.000 {3Z884) Th• Crodu Foundthkn provided funcling tor CLAPA Welcome Packs ol bottles orKI teots for newt)orns for one yeor Flxed o¥set lund 25,870 25,870 335.532 Q•nerol funds 325,645 396.645 437,121 637.351 (627.464) 1660.348) 1841512) HlghwayOn8Tru$t prowdgd funding to improv8 fundraising Infrastructure Hospltal Saturday FurKI prowded funding lor CLAPA Wolcomo Pocks ol boitlos an¢J 18Uts for newtjorns. Totol unrestrlctad funds 1.535.351 1,773,616 25.870 1.297.518 1.368.225 Totul funds IkhuelJosephson MBE. provided funding from the MJ Ball PTofils for a Selection of aetivitiÈs for thi￿re￿ ond young Pgople. Includin9 Cl8lt++ th8 CYPC und the cost of o Comp Cl APA residentiol weekend In July ?D24 ThèNUtSonul LOtt•ryeommunlty Fund (AwurdslorAii) provided funding lof o piloi ol Cleft** on online mentoring pro1￿t for12 to17-year-£4d& induding st(rffing costs. Fixed asset fund represents th& nei book value of capitalised assets. Transfers represent Cost of capital. Whilst rhe funds ore Jniesiri¢ied. the funds ore tied up in ¢opitol expenditure ond therefore do not constitute fre8 resero8S. Notes ro the Ilnoncial statements CiAPA Annuol Rtport 2025126 Nor*s to the financlul statements CLAPA Annuol Rtport 2025126 58 57 Not•s tothollntsnel41 st4tom•nttsl0rt￿Y￿r•nd*d 31 Mtsreh 2026 18. Operating lease commitments The chority's totol future minimum leose poyments unoler non-concdloble operoting leoses is os fo&)wsfor eoch of the following periods.. 2026 2025 Property Leuses expiring.. Less than onè y￿r One to fiv8 years 5,592 12.143 5,592 12143 Th8 proparty leas8 is rolling on thr88 cal8ndor months, notice th8rÈfor8 th8 commiim8nts r8cognis8d 01 year end is 3 months. rent and service charge. 19. Financial instruments The corrying volue5 01 linoneiol in5trumgnts aro 50t out bolow. 2026 2025 F5nanclol In%trurn•nt# at amortl8•d colt Investments 681,796 Cash and daposlrs Debtors ,237,248 1,292,466 32,708 (35,482) 171.519 {47,338) Crèditor$ Financial insiruments measured at lair value was £nil12025.. Énill. 20. Legal status ofthe charity The charity 18 a company limited by guarunlee ond hus no shore capitol. The l*Jbiliry of each m8mb8r in th8 event ol winding up 15 limited to £1. 21. Prior period adjustments During the ygor li was ideniilied ihat Iho net book valua of the choriiy's websiie, of £25,870, which hod previously been iDclucled within tongible ti¥ed ossets. shoulol bg included within intongible f￿e¢ ussets. Comporutiv&ligur8s hove been resialed to reflect this rÈclossilicotiorn 2025 IigurÈs hovÈ been rèstaièd 10 roclassify funds bèiween cash ot bcjnk ond in hond and curreni osset iDv8stmeDts on thg bolaDc8 shget ond ID the stotement of cash Ilows. All ol IhÈ rÈstotÈments tsre rÈclossifictstion only ond there is no impoci on r￿1 ossets or funds. Notes ro the Iinoncial stotemenis CiAPA Annuol Rtport 2025126 Not*s to the fSnanclal sTrt8ments CLAPA Annuol ftoport 2025126 58 59 CLAPA is a charity with no government or NHS funding; we rely on generous donors and fundraisers to continue our work Please consider making a donation of any amount to help keep our life-changing services free and accessible to all who need them Visit **clapa com/donate** or scan the QR code Cleft Lip and Palate Action (CLAPA) is the operating name of Cleft Lip and Palate Association, a registered Charity in England and Wales (No 1108160) and Scotland (SC041034), which is a company limited by guarantee registered in England and Wales Company (5206298) Registered office: The Green House, 244-254 Cambridge Heath Road, London, E2 9DA