Charfty reglstratlon number 109094 Company reglstratlon numbor N1685604 (Northern Ireland) PULMONARY FIBROSIS NI ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 29 FEBRUARY 2024 PULMONARY FIBROSIS NI LEGALAND ADMINISTRATIVE INFORMATION Trustees T J Mcmillan J M Byrne M U M¢Millan P M Gorman I Simpson Dr. N Chaudhuri C J Donohoe (Appointed 26 June 2023} (Appointed 16 June 20231 Charity number 109094 Company numbor N1685604 Reglstered office 3 Chur¢hfield Road BallycastEe Northern Ireland BT54 6PJ Independent exan71ner MTS Prior Mcmahon 104-108 Fran￿$ Street Newtownards Down BT23 7DY PULMONARY FIBROSIS NI CONTENTS Page Trustees, report Independent examineV$ Trport Statement of financial activities Balan￿ stieet Notes to the financial statements 8-14 PULMONARY FIBROSIS NI TRUSTEES, REPORT (INCLUDING DIRECTORS. REPORT) FOR THE YEAR ENDED 29 FEBRUARY 2024 The trustees present their annual report and finaneAal statements for the year ended 29 February 2024. The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial sl8tements and comply with the ¢hariVs Igoverr¢ing do¢ument], the Companies Act 2006 and "Accounting and Reporting by Charities-. Statement of Recommended Practrce applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102}" (effective 1 January 2019). Constitution & Purpose Pulmonary Fibrosis Nl IPFNI} is a charity govemed by a COnsti￿tion & recognised as a Private Limited Company by guarantee without share capital use of 'Limited' by Companies House, incorporated 8 February 2022.. Company No. N1685604. Charity Number 109094. It is managed by the trustees. Trustees are appointed by inwtation & agreernent of the Trustee5 at the AGM or an Extraordinary General Meeting. Trustees may hold office for a maximum of 2 yeais before re-appointment is requiied unless they resign or are removed from office by a resolution of the other trustees at the AGM or an Extraordinary General Meeting. PFNI primarily seeks to benefit the Northern Ireland community through its activities which aim to provide support and relief for people living with Pulmonary Fibmsis and other Interstitial Lung Diseases in Northern Ireland and to advan￿ education about Pulmonary Fibrosis and other Intersb'tial Lung Diseasés. Publlc Beneflt The public benefits that ffow from this purpose are lo- foster an abnosphere of mutual support and encouragement among people suffering from Pulmonary Fibrosis and other Interstitial Lung Diseases {PF} and their earer5. family and friends; raise awareness for the benefit of the public about the effects of Pulmonary Fibrosis and other Interstitial Lung Diseases and methods of management of such disease.. raise awareness for the benefit of the public about the effects of PulmorFary Fibrosis and other Interstrtial Lung Diseases and methods of management of such disease., a. promote and raise awareness of the Organ Donor Register for the benefit of the publi The beneficiaries of thi5 purpose are people living in Northern Ireland who have been diagnosed with pulmonary fibrosis and other interstitial lung diseases. their families. friends, colleagues. and the general public at large. The direct benefits flowing from this purpose include improved mentsl health and reduced levels of stress and anxiety eXperIen￿d by our beneficiaries & an increase in their knowledge of how to live well with their condition. These benefits are emdenced through feedba¢k from beneficiaries at appropriate intervals. A private benefit owing from this purpose is the experieno and knowledge members receive. However, this is incidental and necessary as it is essential to ensure the benefit is promded to our beneficiar¢es. A private benefit is also gained by suppliers who receive payments for goods and servI￿S provided. The benefit is incidental and necessary lo ensure that benefit is provrded to our beneficiaries. Any expenses paid to TnJstee$ 15 reimbursement for expense5 necessarily incurred in pursuit of the aims of the charity or of purchases made on behalf of the charity. PULMONARY FIBROSIS NI TRUSTEES. REPORT {INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 29 FEBRUAR Y 2024 The purposes of our charity may lead to the following risks.. a. Trips and falls when beneficiarFes are using: Puffin Lodge lour respite ¢aravan}. This facility is unsuitable for people who use wheelchairs or mobility scooters Dr who a￿ unable to negotiate stairs. Site limitations are highlighted to applicants and mobility is assessed duang the application process. Events venues. Venues etc are assessed and chosen to ensure that the majority of our beneficiaries can attend & use safely and comft)rtably. b. Some beneficiaries require oxygen (021 which can be delivered to Puffin Lodge by BOC Ltd. The risks to beneficiaries associated with 02 include.. non-delivery by BOC {note- timely ordering of 02 for delivery to & use at Puffin Lodge is the responsibility of the beneficiary & they will contact BOC if this occurs).. The equipment required to meet the 02 requirements of the beneficiary would generate noise levels that are actsptable to other site users. Oxygen needs a￿ discussed with the applicant and assessed during the application process. Unfortunately Puffin Lodge. due lo its location and construction, cannot facilitate the needs of all our beneficiaiies. 02 needs of beneficiaries are considered when organising events to ensure. as far as reasonably practicable. that the majority of benafictaries attend. The potential of any such harm or risk arising is ou￿elghed by the benefit provided to the public. The trustees have paid due regard to guidance issued by the Charity Commission in deciding what activtties the charity should undertake. PULMONARY FIBROSIS NI TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 29 FEBRUARY 2024 Revi9w of Publlc BenefitActivities In 2023124 PFNI continued to develop their activilies to reach and serve people with Pulmonary Fibrosi$ IPF), their carers and families. and increase awareness of PF wthin the community at large. Puffin Lodge, our respite static caravan in Ballycaslle was officially opened on 30 March 2023 by Robin Swann, MLA and ft)mier Health Minister and Pat Goman, ILD Specialist Nu￿e at Antrim Area Hospital & 2022 Patients Choice Nurse of the Year. Throughout the year {Mar-Novl Puffin Lodge was well Ltsed by families to have a much needed break from home.- it also hosted fundraising coffee mornings which welcomed other Caravan owners and the general public and opened conversations aboLrt the work of PFNI. Further public benefit activities included= Production of a comprehensive infom)ation pack that clinicians give to their patients on diagnosis or ¢an be requested from PFNI directly. These were developed in co118boration with specialist PF dinicians. b. Weekty Zoom meeting were held for PF patients & monthly meeting for carers. Speakers from the Health Boards & Nl Hospi￿ were invited to talk to attendees about issues relevant lo them including dealing with fatigue. nutrition. dealing with stress & anxiety. and the ever popular relaxation taster session. The number of Ambassadors increased during the year & an Ambassador Co-ordinator