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2022-03-31-accounts

Company Registratlon Number: N101046 Charlty Numb8r'. N1107869 Fight for Alfie Annual Report and Unaudited Financial Statements for the financial year ended 31 March 2022 Declan Magenni$ & Co Chartèred A¢¢oulants 21 Patrick Stro8t Newry Down 8T35 8EB

Fight for Alfie CONTENTS Page Director's and Other Information Trustees, Annu81 Report Dirgctorfs Annual Report Statement ot Director's Responsibilities Independent Examiner's Report Slalemenl of Financial Activities Summary Income and Expenditure Account Balance Sheet 10 Notes to the Financial Slalemenls Supplementary Infomiation relating to the Financial Statements 16-17

Fight for Aifie DIRECTOR'S AND OTHER INFORMATION Dlrector Colleen P8ntony Chairperson Jamie Pentony Charity N￿mber in Northern Ireland N1107869 Company Registration Number N101046 R8gi5tered Offic8 and Principal Address 9 Loanda c￿SCent Newry Down BT35 8EZ Northern Ireland Indepgnd¢nt Examiner Declan Magennis & Co Gttarte￿d Aceoutants 21 Patrick st￿et Newry Down 8T35 8E8 Prln¢lpal Bank•rs Bank Of Ireland 12 Trevor Hill Newry Co Down B T34 1DN Northern I￿land

Fight for Alfie TRUSTEES. ANNUAL REPORT for the financial year 8nded 31 March 2022 Nature and Purpose of Charlty Established in 2016 under the Charitie5 A¢t (Northgm Irelanijl 2008 . Fight for Aifie Icharily Number N1010461 formed as a result of Alfie's diagnosis. Colleen and Jami8 Penlony, Alfie's parent. fell they needed lo do all they could to save their Child's live. The initial objectives of the chsrily was to raise awareness of Duchenne Muscular Dystrophy and fundraise the required funds for I￿at￿eThI for Alfie. to give him the fighting chance lo survive this disease. We achieved this through organised events to fundraise and 8du¢at8 the public about DLJ¢henn8 Muscu18r Dystrophy. Through th8 years, the charity developed and gained a gre8ler presenTr within the community. We opened our arms to help and support other familie5 going through the same". snd hence developed the key objective to promote and protect the physi¢al and mental health of suffeiers of Duchenne Muscular Dystrophy through the provision of financial assistance. support, education and practical advice. A¢tivitie$ and Benefits In setting our objectiV8s and planning our aclivikn'es for the year th8 trusloes have given car8ful consideration to the Charity Commission for Northem Ireland's guidance on public benefit to ensure that th8 activities have h81ped to achiev8 the charity's purposes and provide a benefit to the ben8fi¢iarie5. Th8 charity held a number ol fundraisers during th8 year and organis8d treatments for chIld￿n affected by Duchenne Muscular Dystrophy in America. The f8mily of each child that was affected by Duchenne Muscul8r Dystrophy have run a variety of fundraisers and raised money that has been used to org8nise treatment5 for the Child￿￿. The charity has brought familie5 together so that it can organise these trealffl&nts ¢entr8lly. Betw&en fundraising 8nd don8tions thg charity r8ised £258.868 and used £236,496 directly for the purposes of Ireatm8nts. Both the chIld￿n and their families have benefilled from these treatments and th8 wider community has also benefitted frorn a better awa￿neSS of th8 diseas8. Flnancial Revlew The charity intends to continue with its current funding model whereas the family and comtnunilies that are being aff8Cted by Duchenne Muscular Dystrophy continLJe to organise fundraisers and th8 moni8s going dire¢lly to the charity and then for th8 charity to organise the course of treatment in America. Adminlstration The charity is oper818d frorn 9 Loanda Crescent, Newry, Co Oown, BT35 8EZ. The Truste8s of the Charity, who djd not receiv8 remuneration for their services for the ¢harity. a￿ as folk)ws', 1. Ms Oliva Markey 2. Ms Colleen Penlony 3. Ms Shauneen Grdnt 4. Mr Jamie Penlony 5. Ms Emma McKevitt Jamle entony Colleen Pentony Date.. 19 Octob¢r 2023

Fight for Alfie DIRECTOR'S ANNUAL REPORT for the financial year ended 31 March 2022 Th8 dirgctor p￿SentS her Directorfs Annual Rgport. combining the Dir8Ctor's Report and Trustee's Report, and the unaudited financial stalernents for the financial year ended 31 Marth 2022. The financial slat8menls a￿ prepared in accordance with the Cotnpanies Act 2006. FRS 102 'The Financial Reporting Stsndard applieable in th8 UK and Republic of Ireland. and Accounting and Reporting by Charities". Statement of Recornmended Pra¢liTr applicable lo charitles preparing their financial statements in acwrdance with the Fin8ncial R8porting Slandaid applicable in th8 UK and Republic of Ireland IFRS 1021. The DI￿￿0￿$ Report contains the informallon required lo b8 provided in the Direclorfs Annual Report under the statetnenl of Recommended Practice ISORPI guidelines. Tha director of the charity ar? also charity trustees for th8 purp088 of charity law and under th8 charity's constitution are known a5 ffl8mb8rs of the board of truslee5. In this report the dir8Ctor of Fight lor Aifie presont a sumrnary of ils purpose, govemance, 8Ctivities, achievements and finances for the financial year 31 March 2022. The charity is a registered charity and hence the report and resutts are presented in a form which complies vAth the r8quir8ments of the Companies Act 2006 and, although not obliged to comply with the Statement of Recommended Practice applicable in the UK and Republic of 1￿land FRS 102, the or9anisation has irnplemented its cornmendalions where relevant in these financial statements. Flnan¢lal RÈvlew The ￿$￿11$ lor the financial year a￿ set out on page 8 and additional notes are prowd8d showing income and expenditure in greater detail. Results and Dlvidends At the end tsf th8 financial year the charity has assets of £33,815 and liabilities of £480. The net assets of the charity are £33,335 Dlrector The director who $8rved throughout the financial y8ar, 8xc8pI as noted, was a5 follows.. Colleen Pentony In accordance with the Constitution, the d1￿ctOr r8tire by rotation and, being eligibl8, offer themselves for re-818clion. Compllan¢• with S8Ctor.Wlde Legl$latlon and Standards The charity engages pro-actively with legislation, standards and ¢ocles which ar8 d8V81op8d for the sector. Fight for Alfi8 subscribes to and Is cornpliant with th8 following= The Cofflpanie5 Act 2006 Th8 Charities SORP IFRS 1021 Approv•d by tha Board of Dlr¢dors on 19 Octob8r 2023 and signed on Its behalf by.. Jamie entony ChaFrperson Colleen Pentony Dlrector

Fight for Alfie STATEMENT OF DIRECTOR'S RESPONSIBILITIES for the financial year ended 31 March 2022 The d1￿ctor is ￿sponsible for preparing the financial statements in aecordanee with applicabl8 law and regulations. Cornpany law requires the dir8Ctor to prepare financial statements for each financial year. Under that law the director has ele¢ted to prepare the financial slat8m8nts in accordance with United Kingdom Gener8lly Accepted Accounting Practice Iunited Kingdom Accounting Stsndards and applicabl8 lawl including FRS 102 "The Financial Reportsng Standard applicable in th8 UK and Rgpublic of Ir81and' Section 1A (Small Entit￿es1. Under company law the directoi must not approvg the finan¢ial stslem8nls unless she is satisfied that they giv8 a true and fair view of the state of affairs of the company and of the profit or loss of the company for that period. In preparing thes8 financial stat8rn8ntS, th8 director is required lo.. sele¢t suitsble a¢¢ounling policies and apply them consistently., make judgernents and estimates that are reasonable and prudent". stale wh8th8r th8 financial slat8m8nts have been prepared In accordance wth the relevant financial reporting framework. identify those standards, and not8 th8 eff8Ct and the reasons for any rnalerial departure from those Standards." and prepare the financial statemènts on the going wncem basis unless it is inappropriate lo presume that the ¢harity will continue In operation. The director confirrns that 5h8 has cornplied with the above requlremenls in preparing the financlal statements. The director is responsible for keeping adequate a¢¢ounting records that ar8 sufficient to show and explain th8 charity'5 transactions and disc105e with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statement5 cornply with. She is also responsible foT safeguarding the assets of the charity and hence for taking ￿asonable Steps for th8 prev8ntion and detection of fraud and oth8r irregulari1185. Approved by the Board of Dlrectors on 19 October 2023 and slgned on Its behalf by- Jamie ntony Chairperson Colleen Pentony Dlre¢tor

Fight for Alfie INDEPENDENT EXAMINER'S REPORT TO THE BOARD OF DIRECTORS OF FIGHT FOR ALFIE We have examined the financial 5t8t8rnents of the charity for the financial year ended 31 March 2022. which comprise the Statement of Financial Activities. the Summary Incom8 and Expenditure Account, the Balance Sheet and the lated note5. This report is made solely to the charity's members, as a body, in a¢wrdance with Chapter 3 of Part 16 of the Companies Act 2006. Our work has been undertaken so that we might coTnpile th8 financial slalements that we have been gngaged lo Compile, ￿POrt lo the Board of Directors that we h£v8 done so. and state those matters that we have 8greed lo state lo them in this report and for no other purpos8. To the fullest exlent permitted by kw. we do not a¢cept or assume r8spon8ibility lo anyone other than the charity and the charitys m8mb8rs, a$ a tM)dy. for our work, tsr for this r8POrt. Respectlvo responsibilities of dlredor and exarnlner The chariV5 Iruste8s (who are also the directors of the company for the purposes of company lawl is responsible for the preparation of the financial slat8m8nts in accordance with the ￿quirementS ol the Companies Act 2006. The charity's d1￿ctOr consider thal an audit is not ￿Qui￿￿ for this finan¢ial year under Chapter 3 of Part 16 of the Companies Act 2006 and that an independent 8xamination is require(l. It IS Our ￿SpOnsIbL11fy to.. exarnine th8 financial stslements under 58Ction 65 of the Charities Act.. follow the procedu￿$ laid down by the g8neral Directions given by the Charity Commission for Northem Ireland under section 6519llbl of the Charities Act.. and slate whether particular matters have wtne to our att8ntion. 8asls of Indepenilent examin8Vs report We have examined your charity financial staternents a5 required under sectlon 65 of the Charities Act and our examination w85 carried out in accordance with the gen8ral Directions given by th8 Charity Commission for Northern Ir8land under se¢tion 6519llbl of th8 Charities Act. An examination includes a ￿vIeW of the acu>unting records kept by the Charity and a comparison of the financial statements presented with those records. 11 also includes consideration of any unusual items 01 disclosures in the financial statement5 and seeking explanats'ons from the director concerning any such rnatters. The procedures undertaken do not provide all the evidenee that would be required in an audit and con58quendy no opinion is given as lo whether the accounts present a 'true and lair. view and the rèport is lirnited to those rnalters set out in tho stst8ment below. In connection with our examination, no matter has come to our attention which gives us cause to b81ieve thal In. any material respect.. accounting records wgre not kept in aceordance with section 386 of the Companies Act 2006 the financial statements do not accord wth those a¢counling ￿e0rdS the financial 5talemenls have not been p￿patsd ill accoidance with the accounting requirements of section 396 of the Companies Act 2006 and with the tnethods and principles of the Stst8m8nt of Recomtnended Pracli¢e applicable to chanties preparing th8ir accounts in accordance with th8 Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS1021 there Is furth8r information needed for a proper und8rstanding ol the account5 to be reached. Indepenilent examiner's statement We have no concerns and have come acr05S no other matters in Connection with the examination to which attention should b8 drawn in this report in order lo 8nab18 8 proper understanding of the financial statement5 to be r8ached. De¢lan Magennis DECL4N MAGENNIS & Chartered Ac¢outsnt$ 21 Patrick Street Newry Down B T35 8EB Date.. 19 October 2023

Fight for Alfie STATEMENT OF FINANCIAL ACTIVITIES for the financial year ended 31 March 2022 Unrestrf¢ted Funds 2022 Total Funds 2022 Notes Irbeome Charftable activi1185 - Grants from govemm8nl$ and other c&funders 258,869 258,869 Expendituro Charitab18 activities Other expenditu 249,875 2,471 249.875 2,471 Total Exponditure 252,346 252,346 Net In¢om•llèxp8ndlturel 6,523 6.523 Transfers be￿een funds N•t rntsvement in furhd8 for the flnanclal year 6,523 6.523 Reconclliation of funds-. Total funds b8ginning of the year 26,812 26.812 Total funds at the end of the year 33.335 33,335 The Statement of Financial Activib'es inrJud8s all gains and losses recognised in the financial year. All income and expenditure relate to continuing activitie5. The noitrs on pages 1110 14 fomi port oftha flnancial statements

Fight for Aifie SUMMARY INCOME AND EXPENDITURE ACCOUNT for the financial year ended 31 March 2022 statement of Finan¢ial A¢tlvltlts 2022 Gross income Unr85tricted funds 258,869 258,869 Total incom8 Total expenditure 258,869 1252.3461 Nèt Incomellexpenditurel 6,523 The charity has no re¢ognised gain5 or105se5 Other than th8 surplus for the financial year. The results for the financial year have be8n calculated on the histori¢al cost basis. Tha notÈ$ on pages 11 10 14 foTTn part of the financial slalemenls

Fight for Aifie Company Number.. P4101046 BALANCE SHEET a5 at 31 March 2022 2022 Notes Current Assets Debtors Cash at bank and in hand 1,173 32,642 33,815 Creditors.. Amounts falllng due wlthin on• yoar 14801 Net Current A5set5 33,33S Total A$s&t$ le$$ Current Llabllill•$ 33.335 Funds General fund lunrestiicledl 33.335 Total funds 33,335 These financial stat8m8nts h8v& be8n prepared in accordan￿ with the Spe￿81 provisions r81ating lo small companies within Part 15 of the Companies A¢t 2006. For the financial year ended 31 M8reh 2022 the charity was entitled to exemption from audit under s8Ction 477 of the Compani88 Act 2006,. and no notice has been deposited under section 476. The director confirms that the memb8rs have not require(J the Company to obtain an audit of its finan¢ial 8latements for the financial year in question in accordance with section 476 of the Companies Act 2006. The diiector acknowledges her re5ponsibilitie8 for ensuring that the Charity keeps accounting records which comply with 5eetii>n 386 and for preparing financial Statements which give a true and fair view of the stale of affairs ol the charity 88 at the end of the financial year and ol its profit and loss for the financial year in accordance with th8 quirements ol sections 394 and 395 and which otherwise comply with the requirements of the Cornpani&s Act 2006 relating to financial ststernenls, so far as applicable to the charity. Th$ financial statements have been p￿pa￿d In accordance with th8 provisions applicable tts Cotnpanies subject to the small companies, ￿gI￿e and in accordance with FRS 102 The Financial Reporting Standard applicab18 in the UK and R8public of Ir81and" applying Section 1A of that Standard. Apprtsved by the Bo d of Directors and authorSsed for Issue on 19 O¢tob•r 2023 and signed on its behalf by Jami 8ntony Chalrperson een Pentony Dlrector Th8 notes on pay&s 1110 14 forrn part of the financial stalemeThts 10

Fight for Aifie NOTES TO THE FINANCIAL STATEMENTS for the financial year 8nded 31 March 2022 GENERAL INFORMATION Fight for A￿1& is a company limited by shar8s incorporate(l in Northem Ireland. The registered office of the charity is 9 Loanda Cres￿nt, Newry, Down. BT35 8EZ, Northern Ireland which is also the pllncipal pla￿ of business ol the charity. The financial statements have been presented in Pound 1£) which is also the functional currency of the charity. SUMMARY OF SIGNIFICANT ACCOUNTING POLICIES Th8 following a¢counling policies have been applied Consistently in dealing with items which ar8 considered material in relatlon to the charity's financial statements. Basis of pr8paratlon The finan¢ial statements hav8 be8n prepared on the going conc8rn basis under the h15torical cost ￿nVentiOn, modified to Include certain items al lair value. Th& financial statements have been prepared in accordance with the Statement of Re¢ommended Practic8 ISORPI"Ac¢ounling and Reporting by Charities p￿ParIng their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of I￿￿nd FRS 102" applying S8ction 1A of that Standard. As permitted by the Companies Act 2006. the charity has varied the standar¢t fomats in that act for the Statement ol Financial Activities and the 8alance Sheet. Departures from the standard fomials a￿ to comply with the requirem8nts of the Charitses SORP and ar8 in compliance with section 4.7, 10.6 and 15.2 of that SORP. Stat•m•nt of compliance The financial statements of the charity for th8 financial year ended 31 December 2017 have been prepared on th8 going ¢on¢em basis and in accordan￿ with the Statement of Recommende(I Practice ISORPI "Accounting and Reporting by Charities prepaNng their accounts in a¢cordanc6 with the Financial Reporting Standard applicab18 in the UK and Republic of Ireland FRS 102" applying Section 1A of that Standard. Fund accounting The following are the ratggories of funds maintsined.. Re$tri¢t¢d fund$ Restricted funds repre88nt income ￿ceIVed which can only be used for particular purposes, as specified by the donors. Such purposes a￿ within the overall obj8etives of the charity. Unre$trl¢ted funds Unrèstrict8d funds consist of General and Designated funds. General fund5 repr888nt amounts which are expendab18 at thg diSc￿tron of th8 board, in furtherance ol the objectives of the charity. D8signated funds comprise unr8Strict8d funds that the board has, at ils discretion, sel aside for partscular purposes. These d85ignations have an administrative purposg only, and do not legally r8Stri¢t the board's discretion to apply the fund. Income Income is Tecognised by in¢lusion in the Statement of Finan¢ial Activities only when the charity 15 legally entitled to th8 income. performance conditions attached lo the itemlsl of income have been met, the amount$ involved can tie measuréd with sufficient reliability and il ￿S probable that the incom6 will be re￿iVed by the charity. In¢ome from charitabla activities Incorne from charitable activities include income 8arned from the suppSy of 58rvices under contractual arrang8m8nls and from performance related grants which have conditions that specify the provision of particular services lo be provided by the charity. Incorne from governm8nt and other co-funders is r8eognised when the charity is legally entitled to the Income be￿US& il is fulfilling the coTrdition5 contained in the relai8d funding agr8ements. Where a grant 15 received in advance, its recognition is deferred and included in creditors. whe￿ entilletnent occurs b8fore in¢ome is received, it is accrued in debtors. Grants from govemments and other co-funder5 typically include one of the folbwing types ol condition5'. Perfortnance based conditions-. whereby the charity is contr8Ctually entitled to funding only lo the extent that th8 core objedives of the grant agreement are a¢hieved. Where the charity is meetin9 the core objectives of a grant agreement, it recognis8s the related expenditure, to the 8Xtenl that it is reimbursab18 by the donor. as Income. 11

Fight for Alfie NOTES TO THE FINANCIAL STATEMENTS continued for the financial year ended 31 March 2022 -rirn8 b8s8d conditions.. Whe￿￿Y the charity is contractually entitled lo funding on the condition that it Is utilised in a particular period. In th8S8 cases the Charity recognises the income to the 8xlent it is utilised wthin the period specif18d in the agreement. In absence of such conditions, assurning that r8C8lPt is probable and the arnount oan be ￿liablY measured, grant incom8 is recognised once the charity Is notified of entitlement. Grants r8ceived towards capital expenditure are cradited to the Statement of Financial A¢tivityes hvhen received or receivablo, whichever is 8arlier. Expenditure Expenditure Is analysed beiween cost5 of charitabl8 activities and raising funds. Th8 costs of ea¢h activity are separately a¢curnulated and disclosed, and analysed a¢¢ording to th&ir major components. Expefiditur8 IS re¢ogn15ed when a legal or conslru¢live obligation exist5 a5 a result of a past event, a Iransf8r of economi¢ benefits is r8quired in settlement and th8 amount of the obligation can be reliably measured. Support costs are those functions that assist th& work of the charity but cannot be attribvled lo one activity. Such cost5 are allocated to activities in proportion lo staff lime spent or other Suitable measure lor each activity. Debtors Debtor5 are recognis8d at the settlement amount due after any discount offered. Prepayments a￿ valued al the amount p￿paid nel ol any trade disCOUnt5 due. Income recrynised by the charity from govemmenl agencies and other co~funders, but not yet r8c&iv&d at finan¢ial year end, is included in debtors. Cash at bank and In hand C8sh at bank and in hand cornpiises cash on dep051t al b8nks requldng ￿s5 than thre8 rnonths notlce ol withdrawal. Taxation and deferred taxation No Current or deferred taxation arises a3 the charity has been giante(I charitable exemption. Irrecoverable valued added tax is expensed as incurred. Deferred tax is recognlsed in respect of all timing differen¢es that have originat8d but not reversed at the b2￿n￿ sheet date where transactions or events have occurred al that dale that will reS￿1t in an obligation to pay more tax in th8 future. or a right to pay less tax in the future. Timing d￿eTen￿$ a￿ temporary diff8r8nces b8tW88n the charitys taxable profi15 and its re5uIt5 as sta18d in the financial statement5. Deferred lax is mea5ur8d on an undiscounted basis al the ta¥ rates that are anticipated lo apply In the periods in which the timing differen￿$ a￿ expected to reverse, based on lax rates and laws that have been 8na¢led or $ubstsntively enacted by th8 balance sheet date. INCOME CHARITABLE AcT5V￿lES Unre5trlct8d Restrided Funds Funds 2022 Grants from govèrnm$nt5 and other co4unders'. Income from charitab18 activiti85 258.689 258,869 expENDITURE CHARITABLE ACTIVITIES Dir8Ct Costs Oth•r Cost5 Support Costs 2022 Expenditure on chantable activites Governance Cost5 INote 4.31 248.796 1,079 248,796 1,079 249.875 249,875 OTHER EXPENDITURE Direct Costs Other Costs Support Costs 2022 Other expenditur8 2,471 2,471 12

Fight for Alfie NOTES TO THE FINANCIAL STATEMENTS continued for the financial year ended 31 March 2022 GOVERNANCE COSTS Direct Costs O¢her Costs Supptsrt Costs 2022 Charitable a¢tivities- govemance costs 1.079 1.079 DEBTORS 2022 Other debtors 1.173 1,173 CREDITORS Amounts falling due wlthin one year 2022 A¢cruals and deferr8d incom8 480 RESERVES 2022 At the b8ginning of the year Surplus for the financial year 28,812 6.523 Al the end of the year 33,335 FUNDS RECONCILIATION OF MOVEMENT IN FUNDS Unre$trlcted Fund5 Total Funds At 1 April 2020 26.812 26,812 At 31 March 2021 Movemenl during the financial year 26.812 6.523 26,812 6,523 Al 31 March 2022 33.335 33,335 ANALYSIS OF MOVEMENTS ON FUNDS Balance l April 2021 Income Expenditure Transfers betweon funds Balance 31 March 2022 Unr•strl¢t•d funds Unr8Stricted G8n8fdl 26.812 258.869 252,346 33,335 Total funds 26,812 258,869 252,346 33,335 ANALYSIS OF NET ASSETS BY FUND Current assets Current Total Un￿striCted general funds 33.815 14801 33.335 33.815 14BOI 33.335 13

Fight for Alfie NOTES TO THE FINANCIAL STATEMENTS continued for the financial year ended 31 March 2022 PosT￿ALANCe SHEET EVENTS There have been no significant events affecting the Charity Since the financial y&ar-8nd. 14

FIGHT FORALFIE PPLEMENTARY INFORMATION RELAT E FINANCIAL STATEMENT FOR THE FINANCIAL YEAR ENDED 31 MARCH 2022 15

Fight for Aifie SUPPLEMENTARY INFORMATION RELATING TO THE FINANCIAL STATEMENTS OPERATING STATEMENT for the financial year ended 31 March 2022 2022 Schedule Income 258,869 Charitable activities and other expense5 1252,3461 Net surplus 6.523 The supplementary infomation does not forrn part of the financial 5tat8rnenls 16

Fight for Alfie SUPPLEMENTARY INFORMATION RELATING TO THE FINANCIAL STATEMENTS SCHEDULE 1 . CHARITABLE ACTIVITIES AND OTHER EXPENSES for the financial year ended 31 March 2022 2022 Expenses Insurance Advertising Telephon& Accountancy Bank charge5 Travel 8xp&nses for trealrnent5 Medica5 Expenses for treatments 959 12.300 732 120 1.739 43.881 192,635 252.346 The supplementary information d085 not form part of the financial statements 17