REGISTERED CHARITY NUMBER N Irelo1)d: 105731 Ireland: 20204769 REPORT OF THE TRUSTEES ND RECEIPTS ND PAygENTs AccouNrs FOR T1 IAR ENI'DED 31 DECEMI BER 2022 FOR VASCULrrIs IRELAI¥D AWARENESS
VASCULITIS IRELAND AWARENESS CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR EP4DED 31 DECEMBER 2022 Page Rew)rt of the TSte¢S 1-10 Independent Examiner's Report Receipts and Payment Account 12 Statement of Assets and Liabilities 13 Notes to the Financial Statements 14 Detailed Receipts and Payments analysis 15
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 The trustees present their report with the financial statements of the charity for the year ended 31 December 2022. OBJEIVEs AND AcfIvITIES Objectives and gims Purpose of charity The purposes of the charity are: To provide support. To raise awareness and To improve services and care for those affected by Vasculitis, and support Vasculitis research. To liaise with medical professionals, researchers and pharniaceutical ¢ompanÈes in advancing a better understanding of vasculitis and improved outcomes for patients. In furtheranee of the above objectives the cbarity may: Provide infornialion. advice and guidance to people affected by any of the Vasculitis dise&ses. Hold "coffee and chat" meetings Organise meetings (open to anyone with a chronic illness) around topical issues sueh as Welfare Refonn etc. Organise and rnn fundraising events Hold annual conference5 Provide e-mail and telephone support to new and existing members Assist members with financial support for attending conferences Significant activities Vasculitis Ireland Awareness provides a range of support services to individuals Iiving with Vasculitis Diseases. These services include inforn]ation, befriending, group meetings. e-mail and telephone support. Vasculitis Ireland Awareness also supports research into the causes and trealment of V&sculitis diseases. To support these services financially, Vasculitis Ireland Awareness receives donations from the general public in both Northern Ireland and the Republic of Ireland. Vasculitis Ireland Awareness also carries out a range of fundraising activities including quizzes, coffee momings and a range of one-off events throughout each year. Beneficiaries Vasculitis Ireland Awareness is an island of Ireland support group set up in 2010 and services are available to anyone affected by any of the Vasculitis diseases in Ireland. It is recognised as a charity in both Northem Ireland and the Republic of Ireland. OBJECTIVES AND AcfiviTIES Public benefjl The trustees are confident tliat the charitable aims of Vasculitis Ireland Awareness satisfy the principles of public benefit as defed in the Charities Act. They have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the aims and objectives and in planning its future activities. How the charity activities deliver public benefit The eharitable activilies focus on supporting the needs of people with any of the Vasculitis diseases and are undertaken to further the charitable puryoses for the public benefit. Th¢ principal aim of the charity is that of providing inforn]ation, advice and guidance to people affected by any of the Vasculitis diseases, providing support and raising awareness of these diseases, and improving services and care for those affected by Vasculitis diseases. E-mail and telephone support is also facilttated. The tsustees believe equal access to its services is vital to its success. and that successful outcomes must be shared by all communities that use its services.
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 ACHIEVEMENT AND PKRFORMANCE Charitable activities Vasculitis Ireland Awareness Continues to focus on producing outwmes which bring real and tangible benefits to people living with V&sculitis diseases. At all iim¢s, Vasculitis Ireland Awareness maintsins its constant ¢ommiÉment to developing the range and quality of support offered to individuals living with Vasculitis diseases throughout Ireland. The drive and detennination of Vasculitis Ireland Awareness to maintain its level of service delivery and look at the development of new services can only happen with the continuing support of the V&sculitis Ireland Awareness Committee and its members. The charity delivers Its services directly to people to provide inforniation, friendship and support as well as to reduce the isolation felt by many of those living with V&8culitis diseases. Vasculitis Ireland Awareness eontinues to contsct consultants to inforni them of their existence and to provlde them with infomlation on upcoming events, in the hope that they will share these with the attendees of their clinics. This is an effective way of raising awareness of our services and reaching out to those in need of assistanc< as well as receiving referrals from these practitioners. The continuing presence of COVID in society meant that most of our business had to Continue being held online. Our community remained vulnerable with uncertainties about how COVID 19 would affect us and the effectiveness of the new vaccinations. This brought further anxiety and worry, and it was important to ensure we were available to provide current advice and infomiation to help alleviate these. With this in mind, we estsblished several main priorities to help us nieet this requirement. Our priorities this year were to have online meetings on cuent issues, avaTlable services, self-management and opportunity to just talk- for all living with vasculitls includitig their carers. improve our online presence considering our reliance on it throughout the pandemic. website, mailinu list. creating a closed group forurn and operating so¢iaI media Deliver a hybrid Intemational Vasculitis Patient event in wnjunction with the Intemational ANCA and Vasculitis Symposium held in Dublin. Investigate the feasibility of setting up a 'Buddy Scheme, for Peer SupporL whereby members can support newly diagnosed people. look into possibility of recruiting more volunteers to help with managing the charity support group investigate improving our We spent a lot of ihe beginning of the year focusing on preparing to host and deliver the International Vasculitis Patient event in conjunction with The International Vasculitis and ANCA workshop held kn Dublin in April 2022. We want¢d to avail of the oppoitunity to have world renowD¢d international speakers at our event and share this with our worldwide patient community. We continue our close working relation5hÈp with other patient groups, mainly but not only, Vosculktis UK, Vasculitis International. Northem Ireland Rare Disease partnership, Rare Disease Ireland. and Irish Plarforni for Patient Organisations, Scienee and Industy. This year has seen us work closely with Vasculitis Foundation and Vasculitis Stichting in deliverints the Patient event. This has helped us shape fure care and provide input at policy level in all the jui'isdictions. For example, we were successful in ensuring our community had earlier access to the COVID Vaccine than the original policies had outlined. We have also been fortunate to be invited to partieipate in European wide projects so our local voice can be included. We wntinue to Ilnk with local organisations to help our members access r¢sources to help with the management of their condition& i.e. Arthritis Ireland, Northern Ireland Rare Disease Partnership, Volunteer Ireland.
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 Julie remained as Chair to oversee the international event and allow time to train up the next Chair. Cecil has continued as secretary and we welcomed two new board members Sarah Flynn, (Nt) who brings a background in psychology and Tadhg Treacy (ROI) who brings a background of governance. Jennifer Kelly has accepted the role of Volunteer Co Ordinator, Vivienne Beattie continues to be our Mediator, Tim Whymark is now our ROI treasurer. We also were fortunate to recruit several volunteers to help us with specific roles. Seamus Beausang who has been instrumentsl in Creating new contact cards, and brochures and getting these to all Clinics so newly diagnosed patients know of us. Margaret Dunne, Immunologist and TCD lecturer who has helped us improve our Patient and Public Involvement presence in research projects. Maria Christofideau- Early-stag¢ researcher within several research projects we are involved with. who has a legal background and helps us with GDPR, prÉvacy and dats protection issues. Providing Support All meetings were held online due to the OELgoing Covid situation and a steady flow of new contacts were added throughout the year via the Facebook page and the helpline number. This year our secretary spent some time designing a form to enrol in our membership, outlining the different levels of participation one can opt into. This will make this process much usier for all concerned going forward. Support eontinues to be provided by email and telephone - providing reassurance and guidance when needed. Conlinued conta¢t with the consultants in the Vasculitis Ireland Network- VINE- ensuirs the correct procedures are adopted when seeking an initial refer171. The awareness campaign led by Seamus, helped us reach more rural healthcare clinic5 and resulted in queries from healthcare professionals re our work and how we can work together. Summary of meetings in 2022 Due to the organisation involved in the International evenL there were fewer meetings planned this year. Our membershÈp have access to all recordings in the Vasculitis International website and can vkew them in theii. own time. This content is quile detaÈled and delivered by world renown physicians. The fact that some of our board members contracted COVID also meant that there were few meetings from June on. Januiry 18th 19.00- 20.15 Online Online Debunked workshop - workshop to help people identify misleading or misrepresented infomiation and provide some simple techniques to separate fact from ftction. This is very important in the current times with so many versions of facts circulating. D¢livei'ed by ADAPT team TCD March 14th 19.00- 20.15 Online Coffee and Chat Informal online meeting for members to meet and tslk aErf)ut current issue5, share experiences and support each other. Programme April 2nd and 3rd from 12.00 noon on 2nd to Ipm on 3td International Vascltlitis Patient event- Hybrtd and translation available in 22 languages
VASCULITIS IRELAIND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 Agenda Saturda Time A ril 2" 2022 eaker 13.05-13.20 Introduction Patient experience- Living with Large Vee1 Vasculitis Vasculitis Today a Worldwide Round Table Di5eussion (Chair: Peter Verhoeven and Joyce Kullman) 13.25-14.00 Prof. David Jayne (UK) Prof. Richard Kitehing (Australia) Prof. Peter Merkel (USA) Prof. Kevin Cassar Malta Dr. Stephen McAdoo Dr. Emma Lea¢y Dr. Matthias Buseh Prof. LOaIn¢ Har 14.05-14.35 Covid 19 and Vasculitis, Effectiveness of vaccinations and boosters Chair.. Dr. Mi¢h2el Clarkson Mana in Fati ue in vasculitis Break- teaj coffee 14.40-14.55 15.00-15.30 Rooin I 15.30- 1?.5(1 15.)5 1().1.5 Cai'diovasiiilar i-isk in .4N'.C.4 asCUli[1S iiiir5nnienLil rrieoei's in a$Cli11t1j Di.. F.liiie HouLien -Alberr N'aK.'ai'ro Galliiiad Enock. HaN ariniai) Fai"Ic l) Kaii)bei'oi'-ic liclial Ziilcirkski Joi.'ce Ixullintsii & Zdenk1< Hruskova 16.20- 16.40 Giaiii cell artei-itis C l)aii': Dr. Eaiiioiiii .l.lollok) l.'rap ui) Da>. l - Roolii I l6.47- 17.00 Rooni ? 15.30-15.45 15.50-16.05 16.LO-16.25 Vaiculitis in childreii N.licrobiomes and vasculitis lole¢ular Influeiices iii vasculitis Dr. Louise Oni Dr. Aiidreas Kroiibichler Solange Gonzalez Cliiappe Gisela Pattaroiie Mai'ia Christofidou Peter Verhoeven 16.30-16.45 16.45-17.00 19.30-22.00 Data Vra Dinner- rotectioii in vasculitis research l-Rooin2 tional Sunda 3, A ril 2022 09.30-09.35 Introduction to Da 09.35-11.00 Palieni Re orled Outcomes 09.35-09.45 PROS and PROMS in ers ective 09.45-09.55 The FAIRVASC ro ect 09.55-10.05 Wh PROS in Re istries 10.05-10.15 How to inte ate PROS into Re istries 10.20-10.40 Discussion: Most useful PROS.. the patient ers eetive Break- teal coffee Whal ood care looks like The VOICES project Julie Power Chair: ZdenkaSkOva Prof. Peter Merkel Dr. Matthew Rutheiford Peter Verhoeven Nathan Lea All 10.45-11.00 IJ. 10-11.35 11.00-11.20 Dr. Allyson Egan Dr. Rosema Holliek Julie Power Dr. Shanali Perera 11.20-11.35 11.40-12.45 ERN RITA Patient ourne Multidisciplinary Art Workshop: Art. V&sculitis and the Lived Ex erienee- Ca turin the Invisible and closin remarks 12.45-13.00 Julie Power
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 This was a successful event wlih people joirking from all over the world with up to 80 participants on site and between 40-100 online at any one time. May 23rd- 19.00- 20.15 Induction training for board members and volunteers- online 9" August 19.00-20.15 Coffee and Chat- Informal discussion between members. catching up, sharing news 27, October 19.00- 20.15 Coffee and Chat- Infornial discussion between members. catching up and sharing news, 28 November 19.00- 20.15 online Let's Talk About Ava¢opan- discussion on experiences withlwithout Avacopan in preparation for NCPE submission for Avacopan approval. We continue to work on Setting up a'Buddy scheme,. Several members have expressed an interest and we are ensuring all safeguarding is in place before this becomes operdtional. This will become an option to opt in to when we have a fully operational membership button on our website. Raise Awareness As stated earlier, Seamus has been instrumental in increasing our profile in nephrology and rheumatology clinics throughout IrelandlNorthern Ireland. We have desigrLed a new flyer and contact cards and these have been distribut¢d to the clinics in the hope that staff and patients become aware of our support group. We have been involved in several education initiatives during the year, giving input and presentations to healthcare professÈonals, nursing students. medical dUates, rare disease communlty and researchers, about the experience of living with vasculitis. January- Public and Patient Involvement P1) Conversation with UCD Children's nursing students, online talk about living with rare disease and effects on family. February Isi February online meeting with Roscommon Volunteer centre online to raise awareness of VIA and what we do. 28th February International Federation of Nursing Associations UK and Ireland Webinar 'Reshape, Reforni. Reimagine a true partnership with families living with rare disease, Presentation on effects of living with rare dise&8e on family. Marc 24th March Pi'esentation to UU Physiotherapy students online 'Impact of professions allied to medicine input in managing vul1tis, April Interview with Rare Revolution magazine on the InternatiODal Vasculitis Patient event and registries. May 25th May NIRDP filming Living with Vas¢ulitis- diagnostic odyssey through to management June 8, June Rare Diseases Forum online organised by HCRI Shared thlk with Prof Suja Somanadhan on PPI and Collaboration
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 October 26, October online Portugal Erasmus training Presentation on Privacy concerns when dealinu with patient data. November 2nd13 Face to face meeting in Madrid Vasculitis International and Vifor Phanna Design of information materials for those living with AAV We have had active involvement in several groupslprojects ensurffing the patient voice is tncorporated into projects January - February- part of organising committee for events on Rar¢ Disease Day being organised by RDI and IPPOSI Policy Committee- active input to healthcare policies in HSE - ongoing IPPOSI Education and Training Advisory Group- input to and developing Patient education programme (research and development, engagement in policy making)- ongoing. HRB Clinical Research Consortium Ireland (CRCI), Patient and Public Involvement working group, to help educate the importance of patient involvement throughout the whole process of policy making, developing services and research- ongoing ENP Ireland (European National Platfomi)- this is a conglomerdtion of patient advocates from different backgrounds who have been involved in either the EUPATI progrdmme or the Irish Patient Education programme, academics and researchers interested in Patient and Public involvement. This is a space to share experiences and leam from each other. This year we marked Intemational Vasculitis Day on May 15 with picnics in Co. Down and Co. Dublin.
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 Improve services and eare for those affected by Vxseuliti4 and support Vasculitis Yesearch The chartty continues to be an all-island of Ireland charity, registered both in ROI as well as Northern Ireland. The belief s that registration as a eross-border charity in Ireland will Improve services for patients. gÉving them aecess to both jurisdictions as well as an avenue to European and Int¢mational activities. This continues to be a challenge as the UK leaves the European Union. Through work catTied out with RDI, IPPOSI and MRDP. the issue of access to treatments and vac¢ines during the pandemic ivas able to be addressed. Working with these organisations. ensured the Vasculitis voice was included in any considerations at national level. ROI. Membershkp of EURORDIS ensures the charity is kept aware of any developments and training opportunities at European level. VtA is now a member of the rare dist GO FAIR patient network htt s:/lwww.ao-fair.or which involves participating in monthly meetings, to look at what is involved in setting up p&tient registries, and electronic healthcare records and how to make best use of these. The charity is also involved in the ERN RITA European Patient Advocacy Group (ePAG)' this has helped to promote the charity's work at a European level and also allowed members to benefit from leaming from European colleagues. Julie sits on the RIPAG board and is the Auto Immune Patient Stream lead on the RITA Board. This involves monthly onllne meetings to discuss how to ineorporate ihe patients voice into access to care Èn a meaningful way that will improve patients, lives throughout Europe. This year the Patient Journey project was started, initially concentrating on the Small Vessel Vasculitis Journey. The plan is to evenallY have similar for all classifications of vasculitis so that a uniforni appmach can be considered when devising care pathways and clinical guidelines. Research Ongoing collaborations with UKIVAS has continued and this has been very useful in obtaining appropriate information on COVtD-19 as well as vaccinations. to pass on to the members . The charity continue5 to have input to the Steering Committee of the Rare Kidney Disease Registry {RKD) to oversee and approve actions within this group, ensuring the patient rSpeCtiVe is considered at every stage. Regular fortnightly virtual meetings with the AVERT project research team are attended this piDvides links between patient group and rese3rchers. This yw the charity worked with Mark Little's team on an ethically-approved research project looking at experience of va5culitis flares in the last three years. This looks at what can be recognised as a flare and how to get diagnosed. This information will help deterniine if the time to diagnosis or starting treatment can begin sooner. Another &spect of the AVERT project is looking at how to improve the quality of infomiation being gathered by the Patientmpower app. This involved work between tlie researchers, the study nurse, the technicians and patients and will lead to more reliable accessible infomiation for the study. The appointment of a new research nurse has created a link between the participants and the project and a monthly update for oui- members became available for the first time. The charity is involved in the newly-e5tablished research project DeCOmPRESS, which looks at COVID-19 and Vasculitis- the susceptibility to COVID. how immune systems react to both COVID and the vaccinations, and what are the long-term implications if COVID-19 is contrd¢ted. This involves monthly online meetings.
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 The HELICAL research project was launched in Trinity College Dublin. in December 2019. This is a European project and involves 32 early-stage researchers investigating various biological and environmental factors which affect Vasculitis. Julie and a patient representative from the Netherlands Vasculitis group have been invited to participate in this project to ensure patient perspective is evident throughout. Work has started in ensuring all research consent documents are transparent and the information they contain is readily understood by patients. There have also been discussions about what patient data means to patients and their concerns in using this in research. This involves up to six meetings a year. Here are further links to infornlation on the ongoing research projects: hti .'Ilhelical-itn.eulresearch- ro ectsl litt .'In]eli¢al-itn.eulresearch- ro ectslesr151 FAIRVASC litt s:Ilfairvasc.eul is a Europe wide project looking at the interoperability of existing vasculitis registries and liow to combine these to create a large data base which can faeiliiate meaningfijl research. VtA is one of the three patient organisations involved in this. Julie attended the EJP RD iveek-long course on Rare Disease Registries and FAlRification of Data in September and this has proved very useful in understanding the work in FAlliV ASC. As part of this project £50,000 was invested in Vasculitis International over the three-year period of thts project. This involves several half day meetings a year. PARADISE This is a new project with our European colleagues which ha5 been recently approved. The concept of thi5 will be to develop a means of personalised medication to rduce the side effects when treating AAV.
VASCULITIS IRELAND AWARENESS REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022 ACHIEVEMENT AND PERFORMANCE Charitable activities An annual conference 15 held each year for members and their family members to attend. The annual conference is very inforniative. giving information on the latest research and development. It is presented by guest speakers. Members can make suggestions for which topics they would like covered and 2 particul8r speaker in that field is souglit. Members fmd the annual conference very worthwhile. FINANCIAL REVIEW Financial position The finan¢i21 position of the charity can be found on paoes 12 and 13. Principal funding sources The principal fimding sources for the charity are currently from donations and fundraising activities. Reserves poliey Due to the unpredictability of the income receivable by the charity it is the policy of Vasculitis Ireland Awareness to maintain a balance on unrestricted funds to cover emergency situations that arise from time to time and to also enable the charity to continue to deliver its service effectively. The present level of reserves available to the charity is £19,303. FUTURE PLM'S The charity plans continulng the activities outlined above in the forthcoming years subject to satisfying funding arrangements. STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document The charity is controlled by its governing document and consÈitutes an unincorporated Charity. Recruitment and appointment of new trustees A broad mix of skills are represented on the Management Committee and all Trustees are chosen on the basis of thelr willingness to serve, ability, governance experience and support of the eth05, mission and philosophy of the organisation. Risk management The trustees have a duty to identify and review the risks to whi¢h the charity is exposed and to ensure appropriate controls are in place to provide reasonable assurance Loainst fraud and error. REFERENCE AND ADMINISTRATIVE DETAILS Registered Cbarity number N Ireland.. 105731 Ireland: 20204769
VAScUL1s JRELAND AWARENESS REPORT OF THE TRusfEES FOR THE YEAR EP4DED 31 DKCEMBEK 2022 REFERENCE AND ADMINISTRATtVE DKfAII Printipal addresses 45 Castle Str¢eE Killough Ci). Dow Bfjo 7QQ Th¢ Gate LK>dge Park House Bawn Stre¢t StrOkestoa Ros¢oJDmon Republic of Irelaod F42 W285 Trustees Julie Power Cecil Armstrong Jennif¢r Kelly Sarah Flynn Vivienne Beattie Tijnothy Whymark TadhE Treacy Independent ex2min*r M.B.McGrady & Co Chartered Accountants Rathtllore House 52 St Patricks Avenkne Downpatrick Co. Down Brjo 6DS Approved by ordet ofth¢ lyoard of tn on 3011012023 and s]ed on its behalf by: Julie Power Trustee Cetil ArtrOllE Trwstee io
VASCULITIS ERELAND AWARENESS INDEPENDENT EXAMINDER'S REPORT TO THE TRUSTEES I report on the accounts for the year ended 31 December 2022 as set out on pages twelve to fifteen. Respective responsibilities of trustees and examiner As tlie charity's trustees you are responsible for the prepardtlOD of the accounts in accordance with the Charities Act (Northern Ireland) 2008. It is my responsibility to: examine the accounts under Section 65 of the Charities Aet follow the procedures laid down in the General Directions given by the Charity Commission (under Section 65(9)(b) of the Charities Act). and state whether particular matters have come to my attention. Basis of the independent ex2miner's report I have exatnined your charity accounts as required under section 65 of the Charities Act and my examination was carried out in in accordance with the General Diredions given by the Charity Commission for Northern Ireland under sectiorn 65(9Xb) of the Charities Act. My examination included a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also included consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as charity trustees concerning any such matters. My role is to state ivhether any material matters came to my attention giving me cause to believe.. The accounting records wer¢ not kept in accordance with section 63 of the Charittes Act 2. That the accounts do not aeeord with those accounting records That the accounts do not Comply with the accounting requirement of the Charities Act 4. That there is further infonDation needed for a proper undersL2nding of the aeeounts to be reached. Independent examiner's statement I have completed my examination and have no concerns in respect of the matters (l) to {4) Itsted above and, in connection with following the Directions of the Charity Commission for NTorthern Ireland, I have found no matters that require drawing to your attention. Mr Malac Chartered unta M.B.McG &Co Chartered Accountants Raihmore House 52 St Patricks Avenue DowThpatri¢k Co. Down BT30 6DS ady s Irelan cc 2023
VASCULITIS IRELAND AWARENESS RECEIPTS Af4D PAYMEIYTS ACCOUNTS FOR THE YEAR ENDED 31 DECEMBER 2022 2022 2021 Unrestricted Fund Unrestricted Fund Notes RECEIFfs FROM Unrestricted grant Donations and Legacies Investment income Other trading activities 25,lJ81 1,082 6,436 Total PAYMENfs ON RaÈsing funds Charitable aclivities Charitable 2,386 Total EXCESS OF RECEIPTS OVER PAYMENTS {1,729) 6,618 Bank current aecounts l JAnuary 21,032 BANK CURRENT ACCOUNTS 31 DECEMBER 19,303 21,032 The notes forni part of these financial statements 12
VASCULIT]S IREIAND AWARENESS STATEMEwf ov ASSETS AND LLIBILITIES AT 31 DECEMBER 2022 2022 2021 Unrestrieted Unrtstrieted Fund Fund CASH IPUNDS Bank current accounts 19J03 TOTAL FUNDS 17.590 2 The financial statements were approved by the Board OrTn on 2611012022 and were siwd on its behalf by: Cecil Annstrong Trustse Jnlit Power Tntstee The Dotes fomi part ofthese financial statements 13
VASCULITIS IRELAND AWARENESS NOTES TO THE FINANCIAL STATEIMENTS FOR THE YEAR ENDED 31 DECEMBER2022 ACCOUNTING POLICIES Basis of preparing the finaneial statemtnts The financial statements of the charity, which is a public benefit entity, have been prepared in accordance wlth the Charities Act (Northei'n Ireland) 2008 using the Receipts and Payments basis. T2xAtion The charity is exempt from tsx on its charitable activities. Fund accountlllg Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees. Restricted funds can only be used for particular restricted purposes wtthin the objects of the charity. Restrictions arise when specifLed by the donor or when fwids are raised for particular restricted purposes. Further explanation of the nature and purw of each nd is included in the notes to tlie financial statements. OTHER TRADING AcfiviTIES 2022 2021 Foreign Exchange Gain on Euro barth a¢count Fundraising Fundraising events 5,478 5,478 671 671 INVESTMENf INCOME 2022 2021 Deposit account interest 14
VASCULITIS IRELAND AWARENESS DETAILED sfATEMEINT OF RECEIPTS AND PAYMENrs FOR THE YEAR EN'DED 31 DECEMBER 2022 2022 2021 RECEIPTS Grants reeeivtd Vifor grant received Pobal Stability Scheme Grarnt EJP RD Grant 8J92 1,082 13,689 Donations 2nd legxcie5 Donations 6,436 Other trading activities Fundraising events Other Foreign Exchange Gain 5,478 146 671 810 27,705 Investment income Deposit account interest Total ineoming resourees 27,710 9,004 PAYMENTS Other trading activities Foreign Exchange Loss 73 220 Charitable activities Donations Conferenceslmeetings 140 810 26,459 950 Support costs Management Professional Fees Postsge, Printing and ststionery Sundries nsurance Bank Fees 576 524 1248 580 52 360 532 285 39 2,980 1216 Total resources espended 29,439 2,386 Net incomel(expenditure) 1,729 6,618 This page does not form part of the statutory fmancial statements 15