We are a group of parents of disabled children and young people. We advocate and represent all families of young people with disabilities. We work in partnership with the Department of Health, the HSC Board and the Health Trusts. We also work with RQIA. We represent on the Southern Trust Learning Disability Carers forum. We have worked on the ten year social work strategy with the Southern Trust LEP group. We have worked with the Queens University of Belfast School of Nursing and Midwifery. We work on the Regional Quality Improvement Programme for Social workers and Nurses. We provide training and education to Nurses and Social Workers. We represent on the Inquiry on the Hyponatremia Related Deaths (IHRD). Families have told us they are happy that we represent their voice in all these forums. As a board of Trustees we have met six times this year.
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