Tiny Life (A compan), limited by guarantee) REPORT OF THE DIRECTORS FOR THE YEAR F.NDED 31 MARCH 2023 Tiny Life is Northern Ireland's premature and vulnerable baby charity. dedicaied io reducing prematu birtli. illness, disability and death in Eobies. The dircctors present their reTX)rt and the audited financial stalernents of Ilie cliarity for Ilic ycar cnded J I Marcli 20?). The Irusiees I￿ve adopied ilie provisions of ihe Siaienieiii of Recoininei)ded Prnclice (SORP) -Accounting and Reporting by Cliarities (FRS 102) in prepariiig the anili￿] ￿port and financial Siaiements of the charity. The financial slalements have bttn prepared in accordance wilh ihe accouniiii ￿liCIeS sei in noies 10 the financial siatements and comply wilh the charity's governiiig d￿urnent. Ihe Charities Act (Noiihem Irelaiid) 2008: Charities Act (Northern Irelaiwj) 2013. Tlie Chariiies (Accounts aiid Reporis) Regulaiions (Northeni Ireland) 201 i. Companies Aa 2006 and Accounting and Reporting by Cl]arilies'. s￿reine1]I of Reconiincnded Practice applicable 10 cl]arilie5 prcpariiig tlieir ac¢ouiils iii accordance will) Ilie Financial Reporting Standard applicable in Ihe UK and Republic of Ireland SORP 2019 (FRS 102). TRUSTEES OF THE CHARITY The direciors ol tl)e chariiable ¢ompanv are its tn￿lee5 for the purp(ses of cl]arity law. Tlie tenns -direcior' and "1TUStee' are used iniercliangeably ihroughout ihe financial ststeinents. Tiie Iriistee5 who have served during tlie year were as follows: A Ellio L Mckeavciiey - Cliairperson S L McKay - Treasui'er S Nurse K Craig M M￿0Wan C Faraday C Creagh - appointed 13 Febriiary 202) E M¢Encaney- apwinled 13 Febn￿ry 202) C HLiinsion- appointed 13 Februarv ?02J E M Bannon OBE- resigned 31" March 20 A L Bartlett- resigned 24, April 202i C Mcveigh was appointed as a tntstee on ?4th Aprtl 2￿3 PUBLIC BENEFIT STATEMENT Tlie Board of Tiiiy Life confinn thal Ihey have had due regard for the guidance produced oil public benefit by the Cl)arity Cominissioii for Nortliem Ireland and are pleased io report i1￿1 during ihc ycdr ilie cliaritable company has C￿111nUed io provide public knefiTS through ihe progrdinines al￿ services we offer. In particular. the directors consider how plantKd athivities will Coniribiiie to ilic ainis and objectives they have set out. Tiny Life (A conipan). limited by guarantee) REPORT OF THE DIREcfoRS FOR THE YEAR ENDED 31 MARCH 2023 (Conliiiued) OWECTIVES AND ACTIVITIES Tlie Clthrily's objectives are 5tttificaily restrided io adyancement of health or saving of lives and advancemeiit of education lo reduce premature binh. illnes& disabilily aiid death in imbies born ii) Nortliem Ireland and include ihe following:" provisioii of a range of suppori services offering praciical support. iiiforJn(Ilion, advice. enioiioiial and social support and conifort and a befriending service lo paitnt& farnilies and carcrs including lioine and Iiospilal based support and pareiii suppon groups provision of irnining inforniation for health professionals COncen￿d wilh the iieeds of premature or sick- babics and their fwnilie& provision of funding for researcli and condwiing researcli 10 proinole and develop undeislaiidino and disseminate knowledge of: illiiess. disability and causes of preinaturily in babies. Inedical problems atfeding pregiuiit woiiien; e￿ect of Ihesc problems on family and careT5; and ultimately. being, comTnined to TrKreasing survival rdte& improving q￿lIty of life and qLMlity of care for premaiure babies. and provisioii of iailored awareness programmes sKli as presentatio1￿, liealth education workshops aiid iiiformation leaflets for t7￿ benefit of the wider public including l)oth scliools and coniniunity groiips io iiicrease awareiiess of infant p￿Mai￿rIty and ils effecis on family as ivell as ilie importance of healihy lifestyle Choices for pregnant womeiL STRATEGIC REPORT Structure• governance and management Tiny Life is a charttable company limiied by guarnniee and does not have a sli￿￿ capital. It is governed by a Menioraiidiiin aiid Articles of Association aiyl Ihe liability of eacli In￿nber is limiied io an amounl not exceediiig £ l. Tlie Articles of Ass(Kiatioii provide thai the niiniber of dIre￿Or5 sliall T￿1 be less Ilian six and sliall al all times coniprise noi less than iliree in number from relevant healih care professioits. Eacli direcÉor appoiiiied io ilie board retires every lI￿ee years bui can offer Iheniselves for re-eleciioii. Direciois are appoinied by iioininations by aiiy exisiing direaor. New diTECtors are briefed by t]￿ Chief Executive and Ilie ChaiiThan of ilie board on their leoal obligaiions ￿]d receive a I￿ndb(m)K wliicli iiicludes tlie ￿)le of tristees aiid the skills sel of board inenibers. A Iriistee may apwilll an altemate Irusiee or anyone on his oi. liei. behalf ai ineeiings ofil)e Irusiees. Trustees are encouraged io arteiid appropriale external traiiiiiio evenls. Tlie Chief Executive caThies out Ihe daY-l￿daY managemeni ofthe cliarity ￿]d has delegaied auilK>riiy for operalional matters ]￿lUdIn8 firAiice and staffing. The directors mwiage all oilier blisiiiess decisioits ￿]d meei oli a quanerly basis. Tiny Life (A compan), limited by guarantee) REPORT OF THE DIREcfoRS FOR THE YEAR ENDED 31 MARCH 2023 (Conliniied) Risk management The dircclors have overall rcsFrf)n5ibility for cnsiiring ihai the charity has in place an appropriate system of conirols. finaiicial and oiherwisc, to provide reasonable assurance iliai; ilie charily is operaliiig efficieiiily aiid effeclively. 115 assets are safegiiarded againsi unaiitlioriscd i￿e or disp)Siiion: proper records are mainlained and finaiicial inforniaiion used within the charity or for wbliulion is rcliablc. Ihe cliarity Complies wilh relevant laws and regulalions; and tIK charity s sysieins or rinancial coiiirol are desioned io provide reasonable. but n(rt absoluie assurance again51 material niisstatement or loss. Tlie major risks. to which the cliariiy is exposed. as ideiitified by the Instee5. liave been reviewed and Systems liave beeii eslablislied to mitigate thosc risks. Ael)ievements And Perforniance Duriiig ihe year: as we beuan lo move 0￿ of ihe Covid 19 pandemic reslriclioiis and io I'elurn io a new normality, Ihe Cc61-of-Liviiig crisis hil across Ihe world. It has provided new ajid di￿l¢ll]I clialleiiges to many of our families who already struggle witli ihe fil￿nCial impaci of l)aviiig a preniatuir or sick baby. 11 lias also inipacled on ilie charity financially. as we continue to slruggle 10 replicate pre-covid income from fuiidraising. Al tlie same lime, coii]pelition froin witliin the sector I￿5 increased from 11105e seek-in SLlPPOrt fi'oin Governiiieni aiid otl)er Cliaritable trusts. The Governmeiit Dewdninents and Healili Trusts acros5 Northern Ireland have had to introduLr unprecedented cost saviiig M￿ureS niwiy of ivhich have been passed dowii lo tlie Coiniiiunity and Voluntsry Seaor. However. wilh Ihe appoiiitineni of a iieiv H&)d of Fundraising a￿1 Coinmunicalioiis and the recruitinait of new Commuiiity Fuiidraisers: we have begiiii to see an iinprovement thal we will build upon in ilie C￿￿1118 year. Over tlie course of the year. we conlinue io olTer oiir hybrid model of Fwnily Support to nieef families. iieeds. Whi Isl the iiuinlxr of TinyTiine groups. TinyGym 5e5sions and baby Tnassage courses have rediiceil tliey remaiii higher than pre-covid levels. Morc imponantly. denia]Kl for services I￿S increasl￿ willi Ihe number of familie5 accessing services at or above p￿-CoV7d levels with over l.(KK) families actively engaging in one or more services in a six-fflonth perid. Followin8 on froin the success of ihc Scli(K)l Age Acl 20?2: iii August ?0?2 we secured fuiiding froin the Departinenl of Educalioii lo roll oui Ihe Tinysiart Progrdiiiine across NOrtI￿rn Irela1￿ to over l ?0 faniilies acl) year. The Departiiienl of Edu¢xtion ha5 also fiiiided the implemenlalion of the P￿M Aware Awar(L wliicli raises awareiies5 of liow childreii Fx)ni preinaiurely learn and how lo supwrt Ihem lo reach Ilieir ediicalional milestones. Within 3 months. we had a new leam recruited aiKI 1rdli￿d. From Novffliiber, Iliis team ha5 beeii successfully delivering the new services to laniilies and engaging wi￿7 schools. We continue io deliver our sIr￿¢gI¢ Plan for 2022 - ?025 under our Iliire pillaTS of work: PILLAR l - TinyLife Carc- Embe(l a faniily ccntered opprog¢h enqyauints ivith parents in the to- creation process lo support premature babies by providing relevant ￿spOnsive service PILLAR 2- TinyLife Advocate- Amplify and be the voice for parents and premature babies to secure change in policy 2nd pra¢ti¢ Tiny Life (A compan). limited by guarantee) REPORT OF THE DIRE￿ORs FOR THE YEAR ENDED 31 MARCH 2023 (Conliiiiiedj AchievemeTr¢s and Perforniance (conliniied) PILLAR 3- TinyLife F.ducate- increased aiyareness and knoivledge about nccds of parcnts of premature and sick babie5 b), using evi(lence lo co design carl), interventii)n% and improve Highlights Ihis year include: l. Successfully piloiing a specialist training progrdmme to Health Visiiors to create local Champions who will support Iheir peers working with families of preniature babies. wiiliin each of the Healili VisiiTng TeaTns across Nl. 2. Iinpldnentation of the Department of Educaiion funded programiiies. Tinystaff for fainilies and the Prem Aware Award 10 scliool5. 3. In the absence of a fu￿tionIng Assembly ai Stomiont to implen￿rti the Neonatal Care (Leave aiKI Pay) Act: we have collaboratively been workints with Maj￿ einployers sucli as FinTru. IIKal Councils and Ot￿1$ to develop human resource policles and put support into place for einployees who have a premaiure baby. 4. Publicatioii and launch al Storniont of the researcli rew)rt. 'The Hidden Cost of Having a Child in Hospital". Oiice again. we need io record our imme]￿ grdlilude lo colleagues and volunleers Iliroiiglioui the organisation. They have responded io the ongoing challenge of the pandemic magnificenily. tirelessly aiid with greai persot]al sacrifice in ensurints Ihat fainilies coiiliilue to receive Ilie suP￿rt tliey l￿d. It was a team effort. ranging from rhe colleagues delivering frontline suppon to fatnilies. to staff who were flexible to work when needed, to the Board and Sei)ior Manageinent leam providinry outstanding leadershTP in t]￿ face of unrelenting pressures. We would lik-e to thank all of those WIKJ SUPPOrted us in whatever way tlKy could this past year. Wiihoul it, TinyLife would be facing a very differern fthure. Tiny Life (A compan). limiled by ouaranttt) REPORT OF THE DIRE￿ORs FOR THE YEAR FNDED 31 MARCH 2023 (Conliiiueil) Achievetnents and Perforniance (conliiiuecl) Tliis 2020 - 20?3 ￿ Wn presenls Ilie work of Tinyl.ife over the year. The iable represents Ihc delivery of scrviccs as a comparisoii to I1￿ lasi 3 reponiiio yea￿. TOTAL TOTAL TOTAL 01.¢H.?o- il.03.?1 01.04 71 il.03?? Difference beiiieen Aclii'i 2020r21 2021n2 2022ll3 ?In? and ??n3 Referrals 4?8 557 327 1088 (8.59/tr) FSO hospital visits FSO I￿sPI131 l-l suppon Breasi Purnp Loans Pareiit Support Groups I PSG51 PSG allendees 143 ?70 773 40.8 /¢* ?68 ?88 283 (1.70/0) No chaii e 188 150 150 148? Ioii 1488 410/0 Bab). Massage IBM} BM aiieiidees 144 133 (7.60/0) 707 1108 Volunteers trdined 12 15 Volunteers supwrt aiKI supen'ision Tin)'Gvm xssions TiF]yG)'m attendees 77 37 (51.90/0) (38.10/0) 47 42 26 75? ?76 Group inforination sessions Imuliiples etcl 17 26 GIS ancndees 149 ?78 276 (0.7 /0) Telephone SUPFrf)rt - No. families Finartcial support - No. families 2i(X) 1753 ?159 86 156 81.4/0 Doiiaied i1cm￿Indlrecl SUPVKIrt 177 ?2 j 266 18.?Vo EC Refcrrnl Manageincni figurc on last da!, of dale alxive 1139 Tin}'Sian Groii'in2 Child proJamme eligible active refcmls Sch￿1 undertakin£ PreniAii?re Aii'ard 83 Neil, pr Ne￿. Pro ranime raiiJi)ie Closcd FaceErf)ok gTOUP 4?0 600 753 ?5.50/0 Tiny Life (A compan). limited by guaranlee) REPORT OF THE DIRECTORS FOR THE YEAR ENDED 31 MARCH 2023 (Coiiliiiiied) Achievements and Perforniance (continiied) PILLAR I - I"inyLife Care - Enibed a family centered apTroach cngagTng M'iih parents iii the co limited by guarantee) RF.PORT OF THE DIRECTORS FOR THE YEAR ENDED 31 MARCH 2023 (Coiiliiiiieio wcrc at thc prc-crawling slagc. making it n]￿h easier to inanLoe iiifeciion control aiid social disaiicing. Dliring the year. Ihe number of baby massage sessions deCrea￿d by 7.6°/o as new FSOS l￿d lo await training. Alihoiigh existing FSOS step￿d into delivery of courses. li was ¢liallenging. Hoivever. il did not affeci the level of attemlees. which rose by 230/0 to 1108. TinyGym The staff froni the Northen) Healili and Social Care Trusi who led the TinyGym projecl in idl￿tifYIng and deliveriiig Ilie progrdmme decided tlial il was time to return io eNclusively face-to-face delivery,. Whilst the virtiial sessions allowed FSOS io contin￿ during Covi(L ihey prefer to be ph)'sicall)' pre5ei)i io i%'ork' with the families and I￿ve a real iTnpact on the baby s ouiconies. Tliis is ￿,1)Y iliere I￿S beeii a significaiit de¢￿ase in the iiumber of sessioiis. which liave gone back. to the ptE-Covid levels. However. by olyeriiig the programnie face-IIFface. there1￿$ beeii a l OQ/o incre￿¢ in the iiuinber of attendees willi 276 accessing the Tii)yGym sessions. Closed Fa¢ebook Community This provides families with real and Inval￿ble ￿r-¢o-￿er support, a￿1 continues to go frorn stitngth io slrengil). Wilh a ? jO/o iIKTGise iii the number of k￿￿n(S usiiig Ille platfonn. il is ai) easy wa), io provide iiiforniaiion. Inoniior JEeds aiid engage parents in our developmeiitsl. advocacy atxl cwnpaigiiing work. HOME BASED SERVICES Telephone Support Althougli lasi year we saw a decrease in t}￿ numitr of one-to-one calls niade to pa￿nts. tliis year li Ims i11c￿aSed agaiii lo levels similar 10 Covid. Over 2.159 calls were made. wliich eqiiates lo a 23•/i increase. Some of iliese calls have tttn made 10 Ca￿ oui assessments for Cosi-of-Liviiig gwits TinySt2rt Groiving Child Program Witli fLlI)diiig froiii ilie Departinent of Ediication we have mainstreanied this project in-IKJLise and luve beeii able lo sigiiificaiiily expand our offerinu across Nl. A ieam of Faniily Visiiors Imve been recniiled. wl)o wil l each siipport aroiiiml io 10 40 familie5 ai any given time, laking them ilirough ihe age-adj115t8J Growing Child issues. In ihe firsl six mont￿5 we recruited al￿ Il)e Faiiiily Visilors. Teain Leadei. ai)d Adminisirdiion ￿aff. al￿ began Working with 83 familie5 wiiliin 4 moiiths. Prem Aware Aivard Ttie second pi'ojecl Ilial t[￿ Departineiit of Educaiion fil￿1 is support for scliiK)Is lo inlrodiice tlie Prem .1￿1￿. staff froiii eai'ly AHore Award. Usiiig ilie PRISM Iraiiiii￿ developed by ihe University of Nottii)o vears and priinary sclux)I selliiigs linder20 Irainiiig 10 inCr￿e their kiiowledge and underslriiy for operalional matters ]￿lUdIn8 firAiice and staffing. The directors mwiage all oilier blisiiiess decisioits ￿]d meei oli a quanerly basis. Tiny Life (A compan), limited by guarantee) REPORT OF THE DIREcfoRS FOR THE YEAR ENDED 31 MARCH 2023 (Conliniied) Risk management The dircclors have overall rcsFrf)n5ibility for cnsiiring ihai the charity has in place an appropriate system of conirols. finaiicial and oiherwisc, to provide reasonable assurance iliai; ilie charily is operaliiig efficieiiily aiid effeclively. 115 assets are safegiiarded againsi unaiitlioriscd i￿e or disp)Siiion: proper records are mainlained and finaiicial inforniaiion used within the charity or for wbliulion is rcliablc. Ihe cliarity Complies wilh relevant laws and regulalions; and tIK charity s sysieins or rinancial coiiirol are desioned io provide reasonable. but n(rt absoluie assurance again51 material niisstatement or loss. Tlie major risks. to which the cliariiy is exposed. as ideiitified by the Instee5. liave been reviewed and Systems liave beeii eslablislied to mitigate thosc risks. Ael)ievements And Perforniance Duriiig ihe year: as we beuan lo move 0￿ of ihe Covid 19 pandemic reslriclioiis and io I'elurn io a new normality, Ihe Cc61-of-Liviiig crisis hil across Ihe world. It has provided new ajid di￿l¢ll]I clialleiiges to many of our families who already struggle witli ihe fil￿nCial impaci of l)aviiig a preniatuir or sick baby. 11 lias also inipacled on ilie charity financially. as we continue to slruggle 10 replicate pre-covid income from fuiidraising. Al tlie same lime, coii]pelition froin witliin the sector I￿5 increased from 11105e seek-in SLlPPOrt fi'oin Governiiieni aiid otl)er Cliaritable trusts. The Governmeiit Dewdninents and Healili Trusts acros5 Northern Ireland have had to introduLr unprecedented cost saviiig M￿ureS niwiy of ivhich have been passed dowii lo tlie Coiniiiunity and Voluntsry Seaor. However. wilh Ihe appoiiitineni of a iieiv H&)d of Fundraising a￿1 Coinmunicalioiis and the recruitinait of new Commuiiity Fuiidraisers: we have begiiii to see an iinprovement thal we will build upon in ilie C￿￿1118 year. Over tlie course of the year. we conlinue io olTer oiir hybrid model of Fwnily Support to nieef families. iieeds. Whi Isl the iiuinlxr of TinyTiine groups. TinyGym 5e5sions and baby Tnassage courses have rediiceil tliey remaiii higher than pre-covid levels. Morc imponantly. denia]Kl for services I￿S increasl￿ willi Ihe number of familie5 accessing services at or above p￿-CoV7d levels with over l.(KK) families actively engaging in one or more services in a six-fflonth perid. Followin8 on froin the success of ihc Scli(K)l Age Acl 20?2: iii August ?0?2 we secured fuiiding froin the Departinenl of Educalioii lo roll oui Ihe Tinysiart Progrdiiiine across NOrtI￿rn Irela1￿ to over l ?0 faniilies acl) year. The Departiiienl of Edu¢xtion ha5 also fiiiided the implemenlalion of the P￿M Aware Awar(L wliicli raises awareiies5 of liow childreii Fx)ni preinaiurely learn and how lo supwrt Ihem lo reach Ilieir ediicalional milestones. Within 3 months. we had a new leam recruited aiKI 1rdli￿d. From Novffliiber, Iliis team ha5 beeii successfully delivering the new services to laniilies and engaging wi￿7 schools. We continue io deliver our sIr￿¢gI¢ Plan for 2022 - ?025 under our Iliire pillaTS of work: PILLAR l - TinyLife Carc- Embe(l a faniily ccntered opprog¢h enqyauints ivith parents in the to- creation process lo support premature babies by providing relevant ￿spOnsive service PILLAR 2- TinyLife Advocate- Amplify and be the voice for parents and premature babies to secure change in policy 2nd pra¢ti¢ Tiny Life (A compan). limited by guarantee) REPORT OF THE DIRE￿ORs FOR THE YEAR ENDED 31 MARCH 2023 (Conliiiiiedj AchievemeTr¢s and Perforniance (conliniied) PILLAR 3- TinyLife F.ducate- increased aiyareness and knoivledge about nccds of parcnts of premature and sick babie5 b), using evi(lence lo co design carl), interventii)n% and improve Highlights Ihis year include: l. Successfully piloiing a specialist training progrdmme to Health Visiiors to create local Champions who will support Iheir peers working with families of preniature babies. wiiliin each of the Healili VisiiTng TeaTns across Nl. 2. Iinpldnentation of the Department of Educaiion funded programiiies. Tinystaff for fainilies and the Prem Aware Award 10 scliool5. 3. In the absence of a fu￿tionIng Assembly ai Stomiont to implen￿rti the Neonatal Care (Leave aiKI Pay) Act: we have collaboratively been workints with Maj￿ einployers sucli as FinTru. IIKal Councils and Ot￿1$ to develop human resource policles and put support into place for einployees who have a premaiure baby. 4. Publicatioii and launch al Storniont of the researcli rew)rt. 'The Hidden Cost of Having a Child in Hospital". Oiice again. we need io record our imme]￿ grdlilude lo colleagues and volunleers Iliroiiglioui the organisation. They have responded io the ongoing challenge of the pandemic magnificenily. tirelessly aiid with greai persot]al sacrifice in ensurints Ihat fainilies coiiliilue to receive Ilie suP￿rt tliey l￿d. It was a team effort. ranging from rhe colleagues delivering frontline suppon to fatnilies. to staff who were flexible to work when needed, to the Board and Sei)ior Manageinent leam providinry outstanding leadershTP in t]￿ face of unrelenting pressures. We would lik-e to thank all of those WIKJ SUPPOrted us in whatever way tlKy could this past year. Wiihoul it, TinyLife would be facing a very differern fthure. Tiny Life (A comi)any limited by guarantee) REPORT OF THE DIRECTORS FOR THE YEAR ENDED 31 MARCH 2023 (Coiiliiiiiedj Acliievements and Performance {coiiliniie PILLAR 2 - TinyLife Advocate- Ainplify and be ihe voice for parents and premature babies lo secure change in policy and prdclice. Engagement with Government The sc11￿1 Age Bill 202? received Royal Assent in April ?0?? aiNI became an Aci. We work-ed closely willi colleagLie5 in Ilie Departmeni of Education (DE) aiid ihe fir* cohons of children were abl¢ io defer tlieir scliool starting date in Seplember. With the introduction of the newly funded Tinystart and Prem Amyre Awdrd. we were asked to present lo the senior learns in DE and to the cross-departmeiilal managemeiit conii)iittee of t1￿ Fairei. Start report. In Wesiininsler: a Scoiii5h SNP MP successfully brouglii a Privaie Meinbets Bill to inlrodiice i Neonatal Care (Leave and Pay) Bill, giving parents aiid caregivers lip to 12 weeks, additional paid leave whilst tlieir baby is iii a Iieonalal uiiil. UiifortLinalely.. as employnieni law is a devolved malter. Il*se nov riohts do not extend lo Northem Ireland. We tirelessly worked acr055 all Ihe ￿lItical parties and with our own MPS to try lo identify a loopliole to have Nl included. LLKally ¥¥e mel with a nuIn￿r of MLAS. includiilts Kellie Arinslrong. who iabled an Alliance Party molion 50 ihat this will be a k.ey priority wlien we have a functioning Executive. Iii ilie abseiKe of leoislalion. ii)ajor business stepped inlo tlie void. Through Diversity Mark Nl, H'e work'ed c105ely with FinTrU aiid oiliers to implemeiit their own Huinan Resourcc policies. A l(Kal Belfast CoLiiicilor tabled a niolion al Beiflsl City Couiicil 10 introduce a siinilar policy. T]iis led lo b(rth individual meetings with Coimcil CEOS aiid leaders: as well as presenting to tlie Nl-wtde. ¢ross Councils HR Managers Forum. We coniinued to lead and advocale in the area of Infant Mental Healtl). Throiigh tlie Slrongcr from the Start Alliance, Ive I￿ve mel With all of the major polilical parties io preseiii 011 the iinportaiice of ilie fir51 1.00 I days iii laying the fouiidation for every cliild's flltiire healih. wellbeing and leariiiiig poleiilial. as well as tlie inipact ol Ilie Cost-of-Living crisis on ii)fanl and parental liealili and wellbeing. Several moiions have been drafted by a range of polilical partie& In June 20?). as ii)embers of tlie NI Children's He¥lth Coalition we launched the researcli ￿port The Hidden Costs of Having a Child in Hospital. wliich was supported by a nuinber of MLAs aiid liosled by tlie fonner Healih Minisler. Robin Sth2ni). The call to action is for tl)e esiablisl)ment of a Young Patients Fund for Nl, sirnilar lo ilie offer in Scoiland. Tlie C(*lition will tak'e Il)is cainpaign forwai-d iii the coming year. RepresentatloTh on Commillee5 During Ihe reporting wtod. TinyLife continued to sit on severnl government networks and Liinimittees. naiiiely tlie Neonatal Nehvork for Nl. Regional Infant MenLg1 Health Group• severdl Healtli Trust Infan¢ Mental Health Committees. South Eastern Healtli Trust Attachment, Bonding & Communication Parent Infant Partnership (ABC PIP) Projecl al￿ the Br¢astfeedin% Strategy Implementation Group. Tlie CEO chairs a niiinber of siibgroiips and comniittees wliicli report on key stralegies. woi-k'ino closely willi coinniittee members aiid rep￿SentI1]g Il)e voice of parents of preniaiure babie5. 10 Tiny Life (A compan>. limited by guarantee) REPORT OF THE DIRECTORS FOR THE YEAR ENDED 31 MARCH 2023 (Conliiiiiei4 Achievements and Perforniance (conÉiiii¢ed) European Work The CEO conliniies to siipport the work. of the European Foundation for the Care of Neivborn Infants (EFCNI l) and has been involved in the World Prematurit). Da), cainpai&)ns. Slie was voied Imck on io Parent and Patient Advisory Board, whTch has LindertaLen tIK revicw of the European Stsndard5 of Carc for Newborn Infants in 202?1?0?3. Research The CEO continues to Supp￿ a number of PhD students at Queen"s University Belfast iii relation to neonatal babies and the I￿paCI of premaiurity. Work. continues on a niirnber of our EFCNI research projecis. and Ilie CEO sits on Ihe project teani oli the Use of Steroids in Pregnant Women. PILLAR 3 -TinyLife Educate- Increase awareness a￿1 knowledge a￿ul neols of parents orp￿matUre and sick babies by using evidence io co desigii early iniervcntions and improvc services. In November, as part of our World Prematurity Day celebraiions we collalM)rated with tlie Irish Neonatal Health Alliance 10 liold ￿7017)er All-li'elaiid Coiiference. Over 2(K) delegates attended aiid heanl preseiitalions on the longer-lcrni oiitcome5 for babies born prematurely. A key highlight Il)c young adiili wlio spoke abolit her experience of living with ihe condiliors aS$￿taled with her preienn birth. and Ihe impaa growing up across educaiion a￿1 einploynent. As part of ihe Positive Minds for Premaiure Parei)Is project: Ihe CEO ￿'orked closely with Ilie Piiblic Niirse Leads from each of the Tnisis to deliver a pilot progrdinme of trainiiig io ¢reat¢ Chanipion Health Visitors in each of the Healili Visitor teams iii every TrLisI across Nl. Iii Ociober 20?? over 60 Health Visitors atteiided tliis prograinme. and li liighlighis ihe lack of trdiiiiiig available for Health Visilors. wliich inipacted on tlieir lack of coiifideiice io support fan)ilies of preinature babies. We plan 10 deliver ilie prograinine again in 2023. and Ihe Public Niirse Leads a￿ planning lo have the learning mainsireained into the University of Ulster Nursing course curriculurn. Duriiig ihe year. staff have had access to the online trdining program FLICK aiid Imve completed Ma￿{alory 112ining in GDPR. Hvdlih and Safety, Risk Assessinenls and Manual Handli1i8. The systenis also provide opportuniiies to access a rdnge ofotlier progrdms. All new Family Siipport Officer5 Coinpleled ihe Inlernational Baby Massage AsSLKialion lrninin& and il newly-appoinled Fa]nily Visitors compleied Ihe Growing Child Programme as part of OUT Fi3iicliise Agreement with Lifesiart Fouiidalion. The Fan)ily Siipport team atteiKled a number of coiiferei)ce5 on Perinatal Menlal Healtli. Infani Mentsl Healili and Children in Hospiial. Members of ihe Fundraising Teain have attended a niimber of oiie-off seiniiprs lo supwrt the]n in thetr roles, primarily on Inarkdin8 aiid ihe use ofsc￿la1 niedia. Diiring ilie year. Ilie Board iiiidertook a day of Govemance Trdiniiig facilitated by Joy Allen from L£ading Goveniance. Tj XY J ¢LO < rt tsa YCLO o < J ￿) ) i uo %