Myositis UK
Registered Charity Number: 327791
Trustees Report and Financial Statements For the year ended 31[st] March 2025
Myositis UK Trustees Report 2025
Contents:
| Contents: | Page |
| Reference & Administrative Details | 1 |
| Chairs Review | 2-3 |
| Trustees Report | 4-11 |
| Independent Examiners Report | 12 |
| Statement of Financial Activities | 13 |
| Balance Sheet | 14 |
| Notes to the Accounts | 15-19 |
Myositis UK - Charity Registration Number 327791 Reference & Administrative Information
For the Year Ended 31[st] March 2025
Myositis UK
Charity Registration Number 327791 Date of registration 26 April 1988 Registered Office 146 Newtown Road Woolston, Southampton SO19 9HR
Trustees
Staff
Mr Les Oakley, MBE Chairman Mrs Paula Jordan Honorary General Secretary Mrs Joanne Goode Honorary Treasurer
Irene Oakley Myositis UK Co-ordinator
Names and Address of Advisors:
Bankers: CAF Bank Limited Kings Hill, West Malling Kent, ME19 4TA
Lloyds TSB
PO Box 112, Canons House Canons Way, Bristol, BS9 97L
Independent Examiner: Bridget Kalloushi
ACIE 6, Linden Road Muswell Hill N10 3DH
Medical Advisory Panel
Chair – Professor Mike Hanna, University College London Vice Chair – Neil McHugh, University of Bath Liaison to the Board of Trustees – Professor Hector Chinoy, The University of Manchester SAC Chair – Professor Lucy Wedderburn, Institute of Child Health (University College London)
Scientific Advisory Committee
Chair – Professor Lucy Wedderburn, Institute of Child Health (University College London) Professor Pedro Machado, University College London
Dr Janine Lamb, University of Manchester
Dr Liza McCann, Alder Hey Hospital/University of Liverpool
Dr James Lilleker, The University of Manchester
Dr Patrick Gordon, King’s College London
Dr Gita Ramdharry, University College London
Page 1
Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2025
Chairman’s review
Progress is a word that can at times be overused when commenting about the events of a charity year. However, progress has been evidently made and it is a pleasure to briefly report on the successful work of the charity and all who are connected to it. It has amazed me at how much hard work has been undertaken by those actively involved with the charity in particular trustees, Jo Goode our honorary treasurer, Paula Jordan our secretary. Also, Bridget Kalloushi for auditing our accounts and Laura Northcote for maintaining our website. There are nearly six hundred members in the charity and this is a genuine figure because we ask members to renew on a regular basis. This has enabled the charity to keep running costs to a level where information is sent out to those who still wish to receive our information. The work carried out by the trustees, members and friends and other associated activities that have successfully taken place and are a pleasure to report on. As a charity we endeavour to firstly raise money for sound research and secondly provide information and advice.
The first event I have the pleasure of reporting on is the London Marathon on Sunday 21[st] April 2024. The runners of “Team Muscle” who took part raised over an amazing £27,000 for the charity. Many of the runners friends and family joined us in St James’s Park to celebrate their achievement. The team deserve our utmost respect and credit for the effort and no doubt pain they have made to help us. Simply, an inspirational team of runners.
The Myositis UK grant process for funding is working well with the invaluable support of Paul New at Manchester and the collective input from members of our medical and scientific committees. The Trustees have awarded five grants totalling £177,605 this year.
The AGM and conference were held again at the Woodland Grange, Leamington Spa. The conference was an opportunity to talk to others with similar conditions, to share advice and generally obtain a better understand of the conditions. It was also a rare opportunity to speak to health professionals who are researching and treating patients with myositis. The programme included updates on research and treatments as well as an open question and answer session. There was also time to talk to other members during lunch and perhaps new friendships formed. We are very grateful to the medical community who gave their time freely to attend. They are also very supportive of the charity
We have continued our membership of the National Council for Voluntary organisations and renewed our membership of the Fund-Raising Regulator. We continue our alliance with the Prescription Charges Coalition, BAD - British Association of Dermatologist patients support group, NORD - National organisation for rare disorders and the rare conditions network. We are also members of an alliance of patients’ groups. Irene, our charity co-ordinator is a member of the working party and they have regular online meetings.
Page 2
Myositis UK - Charity Registration Number 327791
For the Year Ended 31[st] March 2025
Chairman’s review continued:
In September we were invited to attend the 25[th] Anniversary of the JDCBS (Juvenile Dermatomyositis Cohort Biomarker Study and Repository) held at the Institute for Child Health, UCL. The event featured insightful talks reflecting on JDCBS’s growth and how standard healthcare practices in JDM have transformed over the years.
We attended the parent day at Great Ormond Street hospital for parents of children with JDM and we were invited to talk to them about the work of Myositis UK. We also attended the “Experimental Arthritis Treatment Centre for Children Showcase Event” at Alder Hey hospital where they highlighted some of the research they are undertaking for young people living with a rheumatic disease including myositis.
There are many people to thank too many by name in this report. However, without their support with their amazing fund raising activities we could never have the finances to promote the quest for a cure for all forms of myositis. There have also been legacies left by members to continue the work which has been humbling and heartening. I am sure that this year as in previous years has made another step forward in understanding and treating myositis.
Les Oakley MBE
Chairman 6[th] July 2025
Page 3
Trustees Annual Report for the Year Ended 31[st] March 2025
The trustees of Myositis UK present their report & financial statement year ended 31[st] March 2025
Structure, Governance and Management
Nature of the Governing Document and Construction of the Charity
The charity is a registered charity, charity number 327791. The charity is governed by a constitution adopted 15[th] April 1988 and registered on 26[th] April 1988.
The methods adopted for the recruitment and appointment of new trustees
The Trustees shall retire annually but shall be eligible to offer themselves for re-election. Not less than 2 members may propose a member for election having first obtained the consent of such candidate. The Executive Committee can co-opt additional members from time to time to fill a vacancy or otherwise.
The organisational structure of the charity and how decisions are made
The Charity is managed by the Executive Committee consisting of the Chairman and General Secretary. The Trustees meet 3 times a year.
Decision making
Decisions are reached by consensus or, when necessary, by majority vote among the (at minimum) two voting members attending.
Risk management
The trustees have a duty to identify and review the risks to which the organisation is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.
The Trustees are satisfied that systems are in place to mitigate the charity's exposure to the major risks. Policies and procedures are closely monitored. A key element in the management of financial risk is the setting of a reserves policy and its regular review.
The financial statements comply with current statutory requirements, the charity's trust deed and the statement of Recommended Practice - Accounting and Reporting by charities: SORP applicable to charities preparing their accounts in accordance with FRS 102.
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Trustees
Executive
Committee
Members
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Page 4
Myositis UK - Charity Registration Number 327791
The Charity Principal Activities and Review of the Year Ended 31[st] March 2025
Objectives and Activities of the Charity
A summary of the objects of the charity as set out in its governing document
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To provide up to date information on all forms of Myositis
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To help give those affected a better understanding of their illness
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To relieve the isolation felt by the individual when a rare illness is diagnosed
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To guide those with the condition in the right direction of treatment
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To raise awareness of the conditions
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To raise funds to promote research
The charity's aims including the changes or differences it seeks to make through its activities.
We exist to help, advise and inform people with Myositis, but in addition to this basic function, we are trying to;
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Increase awareness of Myositis in the UK
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Generate good working relationships with the medical profession
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Improve communication for members
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Fund relevant research
Page 5
Myositis UK - Charity Registration Number 327791
Achievements and Performance
Details of significant activities (including its main programmes, projects, or services provided) that contribute to the achievement of the stated objectives during 2024/2025
We continue to offer free membership to allow everyone access to information regardless of their circumstances. We would like to express our thanks to all the members and supporters who have donated or raised funds throughout the year. This support enables us to continue our work to advance the aims and objectives of the charity.
We continue to offer our website and community forum.
Members continued and took on challenges to fund raise for Myositis UK throughout the year.
The London Marathon Gold Bond purchased by the charity gave us 5 places each year for 5 years. The Marathon took place on the 21[st] April 2024 and our runners raised over £27,000. From 2026 the Gold Bond will only have 4 places instead of 5 and the cost per place will be £480. It was £444 per place.
New designs of Christmas cards were offered for sale 2024. We have a small stock left over, which will be offered for sale in 2025 along with new designs.
The advisory board forwarded their decisions to the Trustees for approval of one grant from the Large Grant scheme and four grants from the Small Grant Scheme. The trustees approved all five grants. One large grant of £97,724 to Professor Chinoy, Manchester. The four small grants were £19,973.70 to Dr Meredyth Wilkinson, UCL, £19,908.65 to Professor Pedro Machado, UCL, £20,000 to Dr Charalampia Papadopoulou, UCL and £20,000 to Dr. Paul Morgan, Manchester Metropolitan University.
The grant awarded to Dr Stefen Brady (John Radcliffe Hospital – Oxford) for £111,247.75, in May 2023 for “Optimism – Rapamycin for Inclusion Body Myositis” has still to be paid. This project involves Australia and countries in Europe. It is taking time for all the countries to be ready to start. This is being monitored, and we ask for regular updates for when this project will start.
The Grant schemes are advertised on our website twice a year. We have increased the amount of the small grants to £25,000 each and they were advertised in January 2025 with a closing date of March 2025. The advisory board have not yet forwarded their decisions to the Trustees.
The AGM and conference was held in July 2024 at the Woodland Grange, Leamington Spa. This was an in-person meeting and the feedback from members who did attend the conference was very positive. We will take into consideration this valuable feedback when organising the 2025 conference.
We have had many online meetings with various pharma companies who are showing an interest in Myositis. We have acted in an advisory capacity to inform them to understand how living with myositis affects our members day to day life. The charity received a small payment for our time.
Page 6
Myositis UK - Charity Registration Number 327791
Financial Review – 2024-2025
In the year 2024-2025 total income was £140,081 of which £140,081 was unrestricted, there was no restrictive income in comparison in the year 2023-24 income was £262,343 of which £262,343 was unrestricted, there was no restrictive income.
Expenditure in 2024-25 total was £75,145 of which £75,145 was unrestricted, there was no restricted expenditure in comparison to the year 2023-24 expenditure was £230,706 of which £100,726 was unrestricted and £129,980 was restricted expenditure.
The detailed figures are included in the financial statements. At the year end the charity incurred a surplus of £64,936. A surplus of £468,781 was brought forward for the year 2024-25 leaving an unrestricted surplus to carry forward of £533,717. The restricted funds held at 31[st] March 2025 are £139,778.
The funds held at 31[st] March 2025
Unrestricted Fund £533,717
Restricted Funds £139,778
Total Funds 31[st] March 2025 £673,495
Fundraising Activities – 2024-2025
The London Marathon took place in April 2024. New Christmas cards were offered for sale this year. Merchandise was on sale at the conference. Supporters/members continued to fun raise for the charity, making donations & holding events.
Public Benefit Statement
The trustees confirm that they have referred to the guidance contained in the Charity Commission’s general guidance on public benefit when reviewing the charity’s aims and objectives and in the planning of future activities and setting the grant making policy for the year.
Page 7
Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2025
Public Benefit Statement
The trustees confirm that they have referred to the guidance contained in the Charity Commission’s general guidance on public benefit when reviewing the charity’s aims and objectives and in the planning of future activities and setting the grant making policy for the year.
Plans for Future Periods
For the period 2025/2026:
Attend meetings and conferences as appropriate throughout the year which have an interest in Myositis
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Continue with our main fund-raising activities – including the selling of Christmas cards for 2025
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Continue to maintain a good relationship with the medical profession
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Continue to support our members
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Continue to fund research
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Resume “Meet Ups” for members
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Facilitate zoom meetings for members with myositis specialists
Page 8
Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2025
Grants paid in the year ended 31[st] March 2025
Note: From unrestricted funds
GCOM Research Grant - Sara Sabbagh $15,000 Paid 24/05/2024 The Medic College of Wisconsin 11,938.87 GCOM Research Grant - Christopher Nelke EU 14,026 Paid 23/05/24 Universitat Sklinkum 12,079.92 University of Manchester Invoice 15145648 Paid 25/11/2025 12,750.00 36,768.79
Page 9
Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2025
Grants Approved, pending payment
| Professor Lucy Wedderburn for the UK Juvenile Dermatomyositis Cohort & Biomarker | |
|---|---|
| Study £20,000 contribution towards the salary costs of the JDM Study Co-ordinator & | |
| £10,000 contribution towards the cost of consumables required for the study | |
| (approved January 2020). Extension granted to December 2025 | 30,000 |
| Optimism – Rapamycin for Inclusion Body Myositis Dr Stefen Brady | |
| John Radcliffe Hospital – Oxford. Award, May 2023 |
111,247 |
| Speed Funding GCOM 2024 “Rescue of TDP-43 function in in vitro and in vivo models | |
| of Inclusion Body Myositis (IBM)” Andrew Wilson Johns Hopkins University | 12,000 |
| A mitochondrial gene signature to stratify juvenile dermatomyositis patients for targeted | |
| treatments. Lead Researcher Dr Meredyth Wilkinson (University College London) | 19,973 |
| awarded June 2024 | |
| MIRAGE: Myositis Inflammation Revealed through Advanced Magnetic Resonance | |
| Imaging Evaluation A Prospective Study. Professor Pedro Machado | |
| (University College London) awarded June 2024 | 19,908 |
| The UK MYONET study: Increasing accuracy of autoantibody testing in myositis using | |
| new approaches and exploring genotype-autoantibody associations | |
| Professor Hector Chinoy (University of Manchester). Awarded December 2024. | 97,724 |
| Sleep disturbances and fatigue in children with Juvenile Dermatomyositis (JDM); | |
| do they relate to disease activity and pathology? | |
| Dr Charalampia Papadopoulou (University College London). Awarded: December 2024 | 20,000 |
| Developing a dietary intervention to address muscle loss in inclusion body myositis (IBM). | |
| Dr Paul Morgan (Manchester Metropolitan University) Awarded: December 2024. | 20,000 |
| TOTAL | 330,852 |
Page 10
Myositis UK - Charity Registration Number 327791
For the Year Ended 31[st] March 2025
Reserves
The charity’s unrestricted reserves are: £533,717
The Charity’s restricted fund £139,778
Total funds held at 31[st] March 2025 £673,495
Reserves Policy
It is the policy of the charity to maintain unrestricted funds, which are the free reserves of the charity, at a level which can ensure the sustainability of the charity through periods of change, uncertainty and financial challenges. This is deemed necessary as a substantial part of the charity’s funding is from fundraising and there is no certainty that the level of funding required to continue and develop the charity’s activities will be received.
Going Concern
The board of Trustees are satisfied with the performance of the charity during the period and the position at 31[st] March 2025 and consider that the charity is in a good position to continue its activities during the coming year, and that the charity’s assets are adequate to fulfil its obligations.
This report was approved by the Trustee’s and signed on behalf of the Trustees by
Mr Leslie Oakley MBE (Charman)
Signature: …………………………. Loe O abeleg WA
Full Name: Mr Leslie Charles Oakley, MBE
Position: Chairman Date: 06/07/2025
Page 11
Myositis UK - Charity Registration Number 327791
For the Year Ended 31[st] March 2025
Independent Examiners Report
I report on the financial statements for the year ended 31st March 2025, which are set out on pages 13-19.
Respective responsibilities of trustees and examiner
The charity's trustees are responsible for the preparation of the accounts. The charity's trustees
consider that an audit is not required for this year (under section 144(2) of the Charities Act 2011 and that an independent examination is needed. I am qualified to undertake the examination by being a qualified member Associate Charity Independent Examiners.
It is my responsibility to:
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examine the accounts under section 145 of the 2011 Act.
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to follow the procedures laid down in the General Directions given by the Charity Commission under section 145(5)(b) of the Act 2011; and
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to state whether particular matters have come to my attention.
Basis of independent examiner's Statement
My examination was carried out in accordance with the General Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below.
Independent Examiner's Statement
In connection with my examination. no material matters have come to my attention which give me cause to believe that in, any material respect:
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the accounting records were not kept in accordance with section 130 of the 2011 Act; or
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the accounts did not accord with the accounting records; or
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the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination.
I have come across no matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Bridget Kalloushi Independent Examiner ACIE
B Kalloushi
……………………………… 6[th] July 2025
6, Linden Road
London
N10 3DH
Page12
| MYOSITIS UK | MYOSITIS UK | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| REGISTERED CHARITY - CHARITY REGISTRATION NUMBER327791 | ||||||||||||||||
| Statement of Financial Activities for the year ended 31st March 2025 | ||||||||||||||||
| Note | General | Restricted | 2025 | Unrestricted | Restricted | 2024 | ||||||||||
| Fund | Funds | Total | Funds | Funds | Total | |||||||||||
| £ | £ | £ | £ | £ | £ | |||||||||||
| INCOME AND ENDOWMENT FORM | ||||||||||||||||
| Grants/Legacies | 31,544 | - | 31,544 | 140,726 | - | 140,726 | ||||||||||
| Other Donations/FundraisingActivities | 91,821 | - | 91,821 | 88,774 | - | 88,774 | ||||||||||
| Other Income Resources | 16,716 | - | 16,716 | 32,843 | - | 32,843 | ||||||||||
| TOTAL INCOMING RESOURCES | 6 | 140,081 | - | 140,081 | 262,343 | - | 262,343 | |||||||||
| EXPENDITURE ON | ||||||||||||||||
| Fund RaisingActivities | 4 | 4,519 | - | 4,519 | 4,507 | - | 4,507 | |||||||||
| Charitable Activities | 70,626 | - | 70,626 | 96,219 | 129,980 | 226,199 | ||||||||||
| TOTAL RESOURCES EXPENDED | 5 | 75,145 | - | 75,145 | 100,726 | 129,980 | 230,706 | |||||||||
| NET INCOME/(EXPENDITURE) | 64,936 | - | 64,936 | 161,617 | ( | 129,980 | ) | 31,637 | ||||||||
| Before Transfer | - | - | - | - | - | |||||||||||
| NET MOVEMENT IN FUNDS | 64,936 | - | 64,936 | 161,617 | ( | 129,980 | ) | 31,637 | ||||||||
| Total Funds brought forward at 31st March 2024 | 468,781 | 139,778 | 608,559 | 307,164 | 269,758 | 576,922 | ||||||||||
| TOTAL FUNDS carried forward at 31st March 2025 | 533,717 | 139,778 | 673,495 | 468,781 | 139,778 | 608,559 | ||||||||||
| Page 13 | ||||||||||||||||
| The notes formpart of these accounts | ||||||||||||||||
Myositis UK – Charity Registration Number 327791 Balance Sheet as at 31[st] March 2025
| Balance Sheet as at 31[st] March 2025 | ||
|---|---|---|
| Notes | 2025 | 2024 |
| £ | £ | |
| FIXED ASSETS | ||
| Tangible Assets | - | - |
| CURRENT ASSETS | ||
| Cash at Bank & in hand |
703,495 | 641,988 |
| 703,988 641,988 | 703,988 641,988 | 703,988 641,988 |
| CURRENT LIABILITIES | ||
| Creditors: Amount fell due within one year - 3,427 | Creditors: Amount fell due within one year - 3,427 | Creditors: Amount fell due within one year - 3,427 |
| Accruals(page 10) | 30,000 | 30,000 |
| ______ | ______ | |
| 30,000 33,427 | 30,000 33,427 | |
| NET CURRENT ASSETS |
673,495 | 608,561 |
FUNDS |
||
| General Fund |
533,717 468,781 | 533,717 468,781 |
| Restricted Funds(note 6) |
139,778 | 139,778 |
| TOTAL FUNDS |
673,495 | 608,559 |
The notes on form part of these accounts
The accounts were approved by the Board of Trustees on 6[th] July 2025 and signed on its behalf by:
…………………………………… Loe OakleyWME C
Mr Leslie Charles Oakley MBE
Date 6[th] July 2025
Myositis UK - Charity Registration Number 327791
Page 14
Notes to the Accounts for the year ended 31[st] March 2025
Accounting policies
a. Basis of Preparing the Financial Statements
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS I 02) (effective 1st January 2019) - (Charities SORP FRS 102). The charity meets the definition of a public benefit entity under FRS I 02. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s).
b Going Concern
The financial statements have been prepared on a going concern basis as the Trustees believe that no material uncertainties exist. The Trustees have considered the level of funds held and the expected level of income and expenditure for 12 months from authorising these financial statements. The budgeted income and expenditure are sufficient with the level of reserves for the Charity to be able to continue as a going concern.
c Cash Flow Statement
As a small charity the charity is not required to prepare a cash flow statement under the exemption under SORP (FRS I 02) for Charities with income of less than £500,000.
d Income resources
All incoming resources are included in the Statement of Financial Activities when:
The charity is legally entitled to funds
There is sufficient certainty that receipt of the income is considered
probable the amount can be reliably measured
Grants from Trusts and Donors are recognised as income in the SOFA in the year in
which they are received. Any such income that is received for projects to be undertaken in future periods is carried forward as a restricted fund.
The Income and Expenditure account recognises the income applicable to the year's activities. Interest receivable is included when received by the Charity.
Myositis UK - Charity Registration Number 327791
Page 15
Notes to the Accounts for the year ended 31[st] March 2025
e Expenditure
As a non-company Charity expenditure is recognised on the accrual’s basis under SORP (FRS 102). All costs which can be directly attributable to charitable activities are allocated thereto.
It is not considered that any purpose would be served in apportioning support costs
(ie overheads, administration expenses and staff salaries) to particular
charitable activities, as to do so would be arbitrary and could be misleading.
f Taxation
As a registered Charity (327791), it is exempt from taxation on investment income
applied for Charitable purposes and from taxation on capital gains.
g Debtors
Trade and other debtors are recognised at the settlement amount due after any
trade discount offered. Prepayments are valued all the amount prepaid after taking account of any trade discount due.
j Cash at bank and in hand
Cash at bank and in hand includes cash and short term highly liquid
investments with a maturity of three months or less from the date of acquisition or opening of the deposit or similar account.
k Creditors and provisions
Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discount due.
l Financial Instruments
The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value, and subsequently measured at their settlement value.
m Significant Accounting Estimates and Judgements
The charity's estimates and assumptions are based on historical experience and expectation of future events and are reviewed annually.
Page 16
Myositis UK - Charity Registration Number 327791
Notes to the Accounts for the year ended 31[st] March 2025
n Fund Accounting
Unrestricted Funds are funds which can be used at the discretion of the Trustees in furtherance of the charity’s objectives.
Restricted Funds are funds which can only be used for specific purposes as specified by the donor or when funds have been raised for a specific purpose.
o Debts and Guarantees
The charity has not given any guarantees where there is an outstanding liability at the date of this statement.
The charity has no outstanding debts at the date of this statement which are secured on the assets of the charity.
p Risk Management
The Trustees have identified and reviewed the major risks to which the charity is exposed on a regular basis. Systems have been established to mitigate these risks. Main risk with the continuing low interest rates the income from invested funds CAF has significantly decreased. We continue to exercise tight budgetary control on all our expenditure in order that all our income is used properly.
2. Trustees Remuneration & Expenses
No remuneration or expenses were paid to any Trustee or related party.
3. Staff Costs
Staff Costs 2025 2024 Salaries (including ER Costs) 12,000 12,000
No employee received remuneration in excess of £60,000
Average number of employees 1 Administration/Development 1
Myositis UK - Charity Registration Number 327791
Page 17
Notes to the Accounts for the year ended 31[st] March 2025
4. Analysis of Cost of Raising Funds
| Fundraising Activities London Marathon Christmas Cards Miscellanious Subscriptions Total Raising Funds Activities Costs £ 5. Analysis of Cost of Charitable Activity Research Costs - Note: unresticted funds Myositis UK Conference GCOM Conference Office Salary/Tax Printing & Stationery Postage Telephone & Internet Website Office Equipment/Costs Bank Charges Miscellaneous Expenses Total Payments for Charitable Activity Total Resourses Expended £ |
2025 2024 £ £ 2,700 1,980 1,280 1,239 - 727 539 561 4,519 4,507 2025 2024 £ £ 36,768 51,662 7,327 8,480 - 8,980 12,000 12,000 6,940 7,015 2,322 2,379 1,068 1,122 619 823 3,000 492 160 87 422 3,179 70,626 96,219 75,145 100,726 |
|
|---|---|---|
The above expenditure has been directly allocated in accordance with the relevant restrictions.
Myositis UK - Charity Registration Number 327791
Page 18
Notes to the Accounts for the year ended 31[st] March 2025
.
6. Statement of Financial Activities – Analysis of Income
| a | Unrestricted Restricted Total Unrestricted | Restricted | Total |
|---|---|---|---|
| Funds Funds 2025 Fund |
Fund | 2024 | |
| Grants/Legacies | 31,544 - 31,544 140,726 |
- | 140,726 |
| Fundraising Activities | 91,821 - 91,821 88,774 |
- | 88,774 |
| _________ | |||
| £ 123,365 - 123,365 229,500 |
- | 229,500 | |
| _________ | |||
| b Other Income Resources | |||
| Sundry Income | 16,716 - 16,716 32,843 |
- | 32,843 |
| __________ | |||
| Total Funds | £140,081 - 140,081 262,343 |
- |
262,343 |
| __________ | |||
| 7. Statement of Financial Activities – Analysis of Expenditure | |||
| 2025 | 2024 | ||
| Fund Raising Activities 4,519 - 4,519 4,507 |
- | 4,507 | |
| Charitable activities | 70,626 70,626 70,626 96,219 |
- | 96,219 |
| _____________ | |||
| £75,145 70,626 75,145 100,726 |
- | 100,726 | |
| _____________ |
Page 19
Signature: Bridget Kalloushi Bridget Kalloushi (Aug 23, 2025 14:54:18 GMT+1) Email: bkalloushi@gmail.com
Myositis UK Trustees Report Financial Statements 2025_ Corrected
Final Audit Report
2025-08-23
Created: 2025-07-12 By: Irene Oakley (irene@myositis.org.uk) Status: Signed Transaction ID: CBJCHBCAABAAd3rwyq7qfhw5MhwG1qaxlv8ehDbckts5
"Myositis UK Trustees Report Financial Statements 2025_ Corr ected" History
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Document e-signed by Bridget Kalloushi (bkalloushi@gmail.com) Signature Date: 2025-08-23 - 1:54:18 PM GMT - Time Source: server
Agreement completed.
2025-08-23 - 1:54:18 PM GMT