Myositis UK
Registered Charity Number: 327791
Trustees Report and Financial Statements For the year ended 31[st] March 2024
Myositis UK Trustees Report 2024
Contents:
| Contents: | Page |
| Reference & Administrative Details | 1 |
| Chairs Review | 2-4 |
| Trustees Report | 5-11 |
| Independent Examiners Report | 12 |
| Statement of Financial Activities | 13 |
| Balance Sheet | 14 |
| Notes to the Accounts | 15-19 |
Myositis UK - Charity Registration Number 327791 Reference & Administrative Information
For the Year Ended 31[st] March 2024
Myositis UK
Charity Registration Number 327791 Date of registration 26 April 1988 Registered Office 146 Newtown Road Woolston, Southampton SO19 9HR
Trustees
Staff
Mr Les Oakley, MBE Chairman Mrs Paula Jordan Honorary General Secretary Mrs Joanne Goode Honorary Treasurer
Irene Oakley Myositis UK Co-ordinator
Names and Address of Advisors:
Bankers: CAF Bank Limited Kings Hill, West Malling Kent, ME19 4TA
Lloyds TSB
PO Box 112, Canons House Canons Way, Bristol, BS9 97L
Independent Examiner: Bridget Kalloushi
ACIE 6, Linden Road Muswell Hill N10 3DH
Medical Advisory Panel
Chair – Professor Mike Hanna, University College London Vice Chair – Neil McHugh, University of Bath Liaison to the Board of Trustees – Professor Hector Chinoy, The University of Manchester SAC Chair – Professor Lucy Wedderburn, Institute of Child Health (University College London)
Scientific Advisory Committee
Chair – Professor Lucy Wedderburn, Institute of Child Health (University College London) Professor Pedro Machado, University College London
Dr Janine Lamb, University of Manchester Dr Liza McCann, Alder Hey Hospital/University of Liverpool
Dr James Lilleker, The University of Manchester
Dr Patrick Gordon, King’s College London
Dr Gita Ramdharry, University College London
Page 1
Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2024
Chairman’s review
Through the years it has never been a problem to highlight the work and the activities of the membership and friends of the charity. This year is no exception with much having successfully taken place and a pleasure to report on.
One of the events at the beginning of the year was the London Marathon on Sunday 23[rd] April 2023. The six runners of “Team Muscle” who took part raised over £8,000 for the charity. Three of the runners and their families and friends found us in the park and it was great to meet them and to thank them all for the effort they made to help us. These moments of friendship make all the work worthwhile. This as in previous years was again a brilliant result by a great and inspirational team of runners.
In June 2023 Myositis UK funded a grant of £5,000 to the European Neuro Muscular Centre in the Netherlands and Myositis UK is a co-funder of a workshop on Inclusion Body Myositis – Ten years of progress – revision of the “ENMC 2013 diagnostic criteria for IBM” and trial readiness . There were twenty-nine participants from many countries including three from the UK. This workshop has now produced updated criteria for IBM worldwide. We also co-funded the 2013 workshop!
In June Myositis UK had a stand at the 103[rd] Annual Meeting of the British Association of Dermatology in Liverpool. This was the first time we had attended this meeting. It was a very interesting few days and many delegates came to our stand where we were able to inform them of our work as a charity. Many of the large pharma companies were there and we were able to collect samples of creams to give away at our conference in July. Whilst we were at the conference, we had a meeting with Dr Jennifer Hall from Adelphi Real World who were interested in attending our conference in July to host a short session to explore what support currently exists for patients and caregivers. It was agreed for them to attend.
Myositis research has continued to move at pace again this year. Three of the four grants reported in last year’s report have now been paid and are up and running. There is still one of these grants outstanding. Sometimes they do take longer to set up than perhaps we would like. In the second round of grants in September 2023 the medical advisory board and scientific advisory committee only recommended funding one grant of £20,000 for Baricitinib Study. This was to Dr Janine Lamb – University of Manchester and has been paid and is up and running.
We had a change of venue for the AGM and conference held in July 2023. It was held at the Woodland Grange, Leamington Spa. There were two reasons for moving from Oxford. One to make it more central for members to attend from across the country and the other was that we had a few behind the scenes issues with the previous venue. The staff at the Woodland Grange were extremely helpful and accommodating. The conference was an opportunity to talk to others with similar conditions, to share advice and generally obtain a better understand of the conditions. It was also a rare opportunity to speak to health professionals who are researching and treating patients with myositis. The programme included updates on research and treatments as well as an open question and answer session. There was also time to talk to other members during lunch and perhaps new friendships formed. We are very grateful to those in the medical community who gave their time freely to attend.
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Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2024
Chairman’s review continued:
Myositis UK is now an NIHR non-commercial partner (National Institute for Health research). This means the studies that we fund may be eligible to access the NIHR study support service which is provided by the NIHR Clinical Research Network within the NHS and the wider public health and social care environment across England
Myositis UK is now an NIHR non-commercial partner (National Institute for Health research). This means the studies that we fund may be eligible to access the NIHR study support service which is provided by the NIHR Clinical Research Network within the NHS and the wider public health and social care environment across England.
We have continued to work throughout the year with various pharmaceutical companies who have an interest in Myositis. Two of these companies were looking for patients who may be suitable for their drug trials. We have continued our membership of the National Council for Voluntary organisations and renewed our membership of the Fund-Raising Regulator. We continue our alliance with the Prescription Charges Coalition, BAD patients support group, NORD - National organisation for rare disorders and the Rare conditions network. We are also members of an alliance of patients’ groups. Irene, our charity co-ordinator is a member of the working party, and they had a paper published titled ‘Working towards a patient-centred Global Myositis Alliance: call for partnership.’ Irene attended a consensus meeting in Rotterdam in September looking at the prospect of a clinical trial in JDM within Europe and the UK. A follow up zoom meeting was held in January.
In October we (Les & Ireene Oakley, Jo Goode) attended the UK Myonet meeting in London. A variety of presentations were given and the afternoon rounded off with an enthusiastic debate covering the day‘s agenda. This was the first time UK Myonet had met since Covid. As an observer sat at the back of the room it was a pleasure to witness this event and to see how hard these people work behind the scenes in attempting to improve the quality of life for all myositis patients. Myositis UK sponsored the cost of the room for this meeting.
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Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2024
Chairman’s review continued:
World Myositis Day was founded by representatives of various international myositis groups and organisations from Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America. The first world myositis day was on the 21st of September 2023. This special day will be celebrated every year on September the 21st from now on.
The 5th global conference on myositis was held in Pittsburgh, USA from the 13th to the 16th of March 2024 since the first conference held in Stockholm in 2015 followed by further conferences in the USA, Berlin and Prague. This conference has firmly established its place in the field of myositis research. Myositis UK has participated at all the four previous GCOM conferences. In particular the charity funded the speed funding in Berlin which was a great success and has been well reported in previous editions of Myositis News. The trustees agreed to fund the speed funding at GCOM 2024 where young scientists or investigators were encouraged to apply for a maximum of two years funding of $15,000 for research projects in the field of myositis. Seven of these young scientists were chosen to present at the GCOM meeting and three were awarded funding of $15,000 for their
research projects 2024-2025. The quality of the presentations were excellent and it must have been very difficult for the judges to decide on the three best projects. We also had a stand at the meeting and were able to talk to many of the delegates there and to other patients support groups. Included in the main programme there was a session where patients presented their own story. Patient group representatives also gave presentations and Myositis UK was delighted to talk on the speed funding and how important funding research is to myositis patients.
Les Oakley MBE
Chairman
L C Oakley
14/07/2024
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Myositis UK - Charity Registration Number 327791
Trustees Annual Report for the Year Ended 31[st] March 2024
The trustees of Myositis UK present their report & financial statement year ended 31[st] March 2024
Structure, Governance and Management
Nature of the Governing Document and Construction of the Charity
The charity is a registered charity, charity number 327791. The charity is governed by a constitution adopted 15[th] April 1988 and registered on 26[th] April 1988.
The methods adopted for the recruitment and appointment of new trustees
The Trustees shall retire annually but shall be eligible to offer themselves for re-election. Not less than 2 members may propose a member for election having first obtained the consent of such candidate. The Executive Committee can co-opt additional members from time to time to fill a vacancy or otherwise.
The organisational structure of the charity and how decisions are made
The Charity is managed by the Executive Committee consisting of the Chairman and General Secretary. The Trustees meet 3 times a year.
Decision making
Decisions are reached by consensus or, when necessary, by majority vote among the (at minimum) two voting members attending.
Risk management
The trustees have a duty to identify and review the risks to which the organisation is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.
The Trustees are satisfied that systems are in place to mitigate the charity's exposure to the major risks. Policies and procedures are closely monitored. A key element in the management of financial risk is the setting of a reserves policy and its regular review.
The financial statements comply with current statutory requirements, the charity's trust deed and the statement of Recommended Practice - Accounting and Reporting by charities: SORP applicable to charities preparing their accounts in accordance with FRS 102.
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Executive
Committee
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Myositis UK - Charity Registration Number 327791 The Charity Principal Activities and Review of the Year Ended 31[st] March 2024
Objectives and Activities of the Charity
A summary of the objects of the charity as set out in its governing document
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To provide up to date information on all forms of Myositis
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To help give those affected a better understanding of their illness
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To relieve the isolation felt by the individual when a rare illness is diagnosed
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To guide those with the condition in the right direction of treatment
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To raise awareness of the conditions
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To raise funds to promote research
The charity's aims including the changes or differences it seeks to make through its activities.
We exist to help, advise and inform people with Myositis, but in addition to this basic function, we are trying to;
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Increase awareness of Myositis in the UK
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Generate good working relationships with the medical profession
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Improve communication for members
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Fund relevant research
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Myositis UK - Charity Registration Number 327791
Achievements and Performance
Details of significant activities (including its main programmes, projects, or services provided) that contribute to the achievement of the stated objectives during 2023/2024
We continue to offer free membership to allow everyone access to information regardless of their circumstances. We would like to express our thanks to all the members and supporters who have donated or raised funds throughout the year. This support enables us to continue our work to advance the aims and objectives of the charity.
We continue to offer our website and community forum.
Members continued and took on challenges to fund raise for Myositis UK throughout the year.
The London Marathon Gold Bond purchased by the charity allows us 5 places each year for 5 years. The Marathon took place on the 23[rd] April 2023 and our runners raised over £8,000.
No new designs of Christmas Cards were offered for sale this year. We still had stock from 2022. New designs will be offered for sale in 2024.
The advisory board forwarded their decisions to the Trustees for approval of two grants from the Large Grant scheme in Inclusion Body Myositis and two grants from the Small Grant Scheme. The trustees approved all four grants. One large grant of £129,797 to Professor Machado, UCL has been paid. The grant of £111,247 to Dr. Brady, Oxford has not yet been paid. The small grant of £9,998.37 to Dr Ali, King’s College has been paid. The small grant of £9,680 to Dr S Varakliotis, GOSH has been paid.
During 2023– 2024 our bear, “Teddy-Bo”, has continued on his travels again, He attended a meeting in Rotterdam and the GCOM conference in Pittsburgh, USA. He will continue travelling to help raise awareness of the charity and Myositis.
The AGM and conference was held in July at the Woodland Grange, Leamington Spa. This was an inperson meeting and the feedback from members who did attend the conference was very positive.
The Small Grant scheme was advertised on our website in September 2023 offering two grants of £20,000. There were several applications but only one was recommended to fund by the advisory board. The trustees approved the grant of £20,000 to Dr Lamb, Manchester which has been paid.
The trustees agreed to offer travel bursaries to young doctors/researchers from the UK who had a presentation or poster accepted for GCOM in Pittsburgh. Travel bursaries were also offered to the seven applicants selected to present their research projects for the speed funding at GCOM. Myositis UK was offering three research grants of 15,000 US Dollars to the successful applicants. This sponsorship gave Myositis UK the recognition as a main sponsor of the conference which raised the profile of the charity and our logo on all conference material. We also had a booth in the exhibition hall.
The charity had a stand at the British Society of Dermatology Conference in June 2023. This gave us the opportunity to inform Dermatology of the charity. This was a three-day conference and Irene and Les Oakley attended.
Two grants of £20,000 were advertised in January 2024 with a closing date of March 2024. The advisory board have not yet forwarded their decisions to the Trustees.
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Myositis UK - Charity Registration Number 327791
Financial Review – 2023-2024
In the year 2023-2024 total income was £262,343 of which £262,343 was unrestricted, there was no restrictive income in comparison in the year 2022-23 income was £115,653 of which £115,653 was unrestricted, there was no restrictive income.
Expenditure in 2023-24 total was £230,706 of which £100,726 was unrestricted £129,980 was restricted, expenditure in comparison in the year 2022-23 expenditure was £68,810 of which £68,810 was unrestricted, there was no restricted expenditure.
The detailed figures are included in the financial statements. At the year end the charity incurred a surplus of £161,617. A surplus of £307,164 was brought forward for the year 2022-23 leaving an unrestricted surplus to carry forward of £468,781. The restricted funds held at 31[st] March 2024 are £139,778.
The funds held at 31[st] March 2024
Unrestricted Fund £468,781
Restricted Funds £139,778
Total Funds 31[st] March 2024 £608,559
Fundraising Activities – 2023-2024
The London Marathon took place in April 2024. New Christmas cards were offered for sale this year. Merchandise was on sale at the conference. Supporters/members continued to fun raise for the charity, making donations & holding events.
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Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2024
Public Benefit Statement
The trustees confirm that they have referred to the guidance contained in the Charity Commission’s general guidance on public benefit when reviewing the charity’s aims and objectives and in the planning of future activities and setting the grant making policy for the year.
Plans for Future Periods
For the period 2024/2025:
Attend meetings and conferences as appropriate throughout the year which have an interest in Myositis
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Continue with our main fund-raising activities – including the selling of Christmas cards for 2024
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Continue to maintain a good relationship with the medical profession
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Continue to support our members
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Continue to fund research
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Resume “Meet Ups” for members
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Facilitate zoom meetings for members with myositis specialists
Grants paid in the year ended 31[st] March 2024
| Note: From unrestricted funds | |
|---|---|
| Kings College London – Myoact Registrar | 9,999 |
| University Of Manchester – Baricitinib Study | 20,000 |
| Great Ormond Street - Dr Sakratis Varakiotis | 9,680 |
| University of Manchester – BSR Advance Funding | 6,983 |
| ENMC Workshop – IBM | 5,000 |
| ______ | |
| £ 51,662 | |
| Note: From restricted Fund | |
| University College London – IBM Disease Pathways Study | £ 129,797 |
Page 9
Myositis UK - Charity Registration Number 327791 For the Year Ended 31[st] March 2024
Grants Approved, pending payment
Professor Lucy Wedderburn for the UK Juvenile Dermatomyositis Cohort & Biomarker Study (£20,000 contribution towards the salary costs of the JDM Study Co-ordinator & £10,000 contribution towards the cost of consumables required for the study (approved January 2020). Extension granted to December 2025 30,000 ______ £ 30,000
Page 10
Myositis UK - Charity Registration Number 327791
For the Year Ended 31[st] March 2024
Reserves
The charity’s unrestricted reserves are: £468,781
The Charity’s restricted fund £139,778
Total funds held at 31[st] March 2024 £608,559
Reserves Policy
It is the policy of the charity to maintain unrestricted funds, which are the free reserves of the charity, at a level which can ensure the sustainability of the charity through periods of change, uncertainty and financial challenges. This is deemed necessary as a substantial part of the charity’s funding is from fundraising and there is no certainty that the level of funding required to continue and develop the charity’s activities will be received.
Going Concern
The board of Trustees are satisfied with the performance of the charity during the period and the position at 31[st] March 2024 and consider that the charity is in a good position to continue its activities during the coming year, and that the charity’s assets are adequate to fulfil its obligations.
This report was approved by the Trustee’s and signed on behalf of the Trustees by
Mr Leslie Oakley MBE (Charman)
L C Oakley
Signature: ………………………….
Full Name: Mr Leslie Charles Oakley, MBE
Position: Chairman Date: 14/07/2024
Page 11
Myositis UK - Charity Registration Number 327791 For the Year Ended 31st March 2024 Independent Examiners Report I report un ihL fin*ncial sialenieiils trtsr ihe year e11ded 31 st Maruh 2024, whiL'h 5¢11iul i)n p#¥es 13-19. Respecrive responslbllttles of rrusre8s and examiner The chlc riry's tru4tLL4 IifL fLSP()n%ihl¥ fur pr¥puraLioii ol'ili¢ a¥¥ounis. 'I'li¢ cliill'ity's Irust¥¥ Liinsi(ler ihtti dn audil IS l)l)L required tor this year (undcr soction 144(21 uf th¢ C.harili¢s Alt ?(J I l £K]d Ihdl dn iJJdepL'ndLiil Lxaniinatioli Is needed. l am qualijied to under(ake Ihc Lxaininuiion bj. b¥in¥ d qualil i¢d i)i¢iriber AsSOLiat¥ Cliarily IiidLPLndLnt Exaiiiincrs. It is my r¥swnsibilily 14)., ex8mine theaccounls undÈrs¢¢tion 145 of the 2011 Act. to follow the procoduros laid down In the GonEJral Dlrections given by thg Charity Cofflmission IindLr 5LLlion 145(5)(b) of Act ?0 I I . and to stale whgther parti¢ular matters have ¢ome to my attentlon. 88515 ollndependent ex8min8r's St8tement My ClnI11a[1r>n w&s carriLd OLIE in aLLI)rdunLL wilh lh¥ G¢n¢rul Dir¥LIiviis ¥iv¥iI bv Ili¢ (.'hariry Cnmn)ission. An L'xwnindtion inLliid¢5 a r¢vi¢w ol'th¢ CoUrt11ng r¢cords kept by Clie chariry aiid a coinp&risiin of thL ULLounls pr¢s¢ni¢d w'iih Ihos¢ r¢¥ords, li als() ii)¥liid¥s ¥UT)sideral ioi) ot ali> uiiusual itcins or di8¢la8ui'LS il) thc accounts, aiid seekin8 explanations froin you us irusice5 cunlerning unv such malters, The procedures undcnaken do noi pri)vi(IL ull ihL Lvi(i¥ll¥¥ Ihat would be reqiiired iii ali audit, and consequently no opinion Is givcii as Ic) wh¥iher the uLLounts pr¢s¥nL 'iriiL und fair vi¢iv' wid lh¢ repon is limiL¢d iii Ihvs¥ muii¢rs s¢1 uui in il)¢ sle[lie1]I below. Independent Examiner's Statement In conneLtic)n with my LxamindtlDn. ni? mdlLriul maLILrs havL comL lo my a(Icnlion whiLh 8iVL IIIL causi io hclicvc that in, any InalLrial rcgpcct., the accountlng records were not kept In accordance wlth section 130 of the 2011 Act., or the occounts did not accord with the accounting records.. or 1h8 accounts did not comply with thè applicable r8quirement8 concerning the form and content nt'account.s set nut ii) the Charitieq (Accnuiilq aiid Repnrtsl Re8ulatinn$ 20nA niher thw7 any rcqiiircmLiit Ihat 11lL accounls givc a 'true th11d tiiir, lffi¢%V wihi¥h is not a InttttLr Lonsid¢rcd as part ot an indcpendenl cxaminatiotj. I liiivc comL acr0%5 110 Inatters iii u)nncctioii ib'ith tlic Lxwninatinn in ,hICh 2ItLnTian should be drawi in this report in order lo enable a proper underslallding of th¢ accounts to be rea¥hed. Bridgot Kallou8hi Indgp•nd•nt Examln•r ACIE 6, Llnden Road London N10 3DH Page 12
| MYOSITIS UK | MYOSITIS UK | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| REGISTERED CHARITY - CHARITY REGISTRATION NUMBER327791 | ||||||||||||||||
| Statement of Financial Activities for the year ended 31st March 2024 | ||||||||||||||||
| General | Restricted | 2024 | Unrestricted | Restricted | 2023 | |||||||||||
| Fund | Funds | Total | Funds | Funds | Total | |||||||||||
| Note | £ | £ | £ | £ | £ | £ | ||||||||||
| INCOME AND ENDOWMENT FORM | ||||||||||||||||
| Grants/Legacies | 140,726 | - | 140,726 | 37,000 | - | 37,000 | ||||||||||
| Other Donations/FundraisingActivities | 88,774 | - | 88,774 | 74,958 | - | 74,958 | ||||||||||
| Other Income Resources | 32,843 | - | 32,843 | 3,695 | - | 3,695 | ||||||||||
| TOTAL INCOMING RESOURCES | 6 | 262,343 | - | 262,343 | 115,653 | - | 115,653 | |||||||||
| EXPENDITURE ON | ||||||||||||||||
| Fund RaisingActivities | 4 | 4,507 | - | 4,507 | 4,773 | - | 4,773 | |||||||||
| Charitable Activities | 96,219 | 129,980 | 226,199 | 64,037 | - | 64,037 | ||||||||||
| TOTAL RESOURCES EXPENDED | 5 | 100,726 | - | 230,706 | 68,810 | - | 68,810 | |||||||||
| 129,980 | ||||||||||||||||
| NET INCOME/(EXPENDITURE) | 161,617 | ( | 129,980 | ) | 31,637 | 46,843 | - | 46,843 | ||||||||
| Before Transfer | - | - | ||||||||||||||
| NET MOVEMENT IN FUNDS | 161,617 | ( | 129,980 | ) | 31,637 | 46,843 | - | 46,843 | ||||||||
| Total Funds brought forward at 31st March 2023 | 307,164 | 269,758 | 576,922 | 260,321 | 269,758 | 530,079 | ||||||||||
| TOTAL FUNDS carried forward at 31st March 2024 | 468,781 | 139,778 | 608,559 | 307,164 | 269,758 | 576,922 | ||||||||||
| Page 13 | ||||||||||||||||
| The notes formpart of these accounts | ||||||||||||||||
Myositis UK – Charity Registration Number 327791 Balance Sheet as at 31[st] March 2024
| Notes FIXED ASSETS Tangible Assets CURRENT ASSETS Cash at Bank & in hand CURRENT LIABILITIES Creditors: Amount fell due within one year Accruals(page 10) NET CURRENT ASSETS FUNDS General Fund Restricted Funds(note 6) TOTAL FUNDS |
2024 £ - 641,988 641,988 3,427 30,000 ______ 33,427 608,561 468,781 139,778 608,559 |
2023 £ - 629,522 629,522 - 52,600 ______ 52,600 576,922 307,164 269,758 576,922 |
|---|---|---|
The notes on form part of these accounts
The accounts were approved by the Board of Trustees on 14thJuly 2024 and signed on its behalf by:
L C Oakley
……………………………………
Mr Leslie Charles Oakley MBE
Date 14/07/2024
Page 14
Myositis UK - Charity Registration Number 327791 Notes to the Accounts for the year ended 31[st] March 2024
Accounting policies
a. Basis of Preparing the Financial Statements
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS I 02) (effective 1st January 2019) - (Charities SORP FRS 102). The charity meets the definition of a public benefit entity under FRS I 02. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s).
b Going Concern
- The financial statements have been prepared on a going concern basis as the Trustees believe that no material uncertainties exist. The Trustees have considered the level of funds held and the expected level of income and expenditure for 12 months from authorising these financial statements. The budgeted income and expenditure are sufficient with the level of reserves for the Charity to be able to continue as a going concern.
c Cash Flow Statement
As a small charity the charity is not required to prepare a cash flow statement under the exemption under SORP (FRS I 02) for Charities with income of less than £500,000.
d Income resources
All incoming resources are included in the Statement of Financial Activities when:
The charity is legally entitled to funds
There is sufficient certainty that receipt of the income is considered
probable the amount can be reliably measured
Grants from Trusts and Donors are recognised as income in the SOFA in the year in which they are received. Any such income that is received for projects to be undertaken in future periods is carried forward as a restricted fund.
The Income and Expenditure account recognises the income applicable to the year's activities. Interest receivable is included when received by the Charity.
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Myositis UK - Charity Registration Number 327791 Notes to the Accounts for the year ended 31[st] March 2024
e Expenditure
As a non-company Charity expenditure is recognised on the accrual’s basis under SORP (FRS 102). All costs which can be directly attributable to charitable activities are allocated thereto.
It is not considered that any purpose would be served in apportioning support costs
(ie overheads, administration expenses and staff salaries) to particular
charitable activities, as to do so would be arbitrary and could be misleading.
f Taxation
As a registered Charity (327791), it is exempt from taxation on investment income
applied for Charitable purposes and from taxation on capital gains.
g Debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued all the amount prepaid after taking account of any trade discount due.
j Cash at bank and in hand
Cash at bank and in hand includes cash and short term highly liquid
investments with a maturity of three months or less from the date of acquisition or opening of the deposit or similar account.
k Creditors and provisions
Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discount due.
l Financial Instruments
The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value, and subsequently measured at their settlement value.
m Significant Accounting Estimates and Judgements
The charity's estimates and assumptions are based on historical experience and expectation of future events and are reviewed annually.
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Myositis UK - Charity Registration Number 327791 Notes to the Accounts for the year ended 31[st] March 2024
n Fund Accounting
Unrestricted Funds are funds which can be used at the discretion of the Trustees in furtherance of the charity’s objectives.
Restricted Funds are funds which can only be used for specific purposes as specified by the donor or when funds have been raised for a specific purpose.
o Debts and Guarantees
The charity has not given any guarantees where there is an outstanding liability at the date of this statement.
The charity has no outstanding debts at the date of this statement which are secured on the assets of the charity.
p Risk Management
The Trustees have identified and reviewed the major risks to which the charity is exposed on a regular basis. Systems have been established to mitigate these risks. Main risk with the continuing low interest rates the income from invested funds CAF has significantly decreased. We continue to exercise tight budgetary control on all our expenditure in order that all our income is used properly.
2. Trustees Remuneration & Expenses
No remuneration or expenses were paid to any Trustee or related party.
3. Staff Costs
Staff Costs 2024 2023 Salaries (including ER Costs) 12,000 12,000
No employee received remuneration in excess of £60,000
Average number of employees 1
Administration/Development
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Myositis UK - Charity Registration Number 327791 Notes to the Accounts for the year ended 31[st] March 2024
4. Analysis of Cost of Raising Funds
| Fundraising Activities London Marathon Christmas Cards Miscellanious Subscriptions Total Raising Funds Activities Costs £ 5. Analysis of Cost of Charitable Activity Research Costs - Note: unresticted funds Myositis UK Conference GCOM Conference Office Salary/Tax Printing & Stationary Postage Telephone & Internet Website Office Equipment/Costs Bank Charges Miscellaneous Expenses Total Payments for Charitable Activity Total Resourses Expended £ |
2024 2023 £ £ 1,980 1,980 1,239 1,268 727 967 561 558 4,507 4,773 2024 2023 £ £ 51,662 33,667 8,480 6,738 8,980 1,726 12,000 12,000 7,015 3,518 2,379 1,302 1,122 774 823 240 492 2,278 87 103 3,179 1,691 96,219 64,037 100,726 66,810 |
|
|---|---|---|
5. Analysis of Cost of Charitable Activity
The above expenditure has been directly allocated in accordance with the relevant restrictions.
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Myositis UK - Charity Registration Number 327791 Notes to the Accounts for the year ended 31[st] March 2024
.
6. Statement of Financial Activities – Analysis of Income
| a | Unrestricted | Restricted Total Unrestricted | Restricted | Total |
|---|---|---|---|---|
| Funds | Funds 2024 Fund |
Fund | 2023 | |
| Grants/Legacies | 140,726 | - 140,726 37,000 | - | 37,000 |
| Other Donations/ | ||||
| Fundraising Activities | 88,774 | - 88,774 74,958 |
- | 74,958 |
| _________ | ||||
| £ 229,500 | - 229,500 111,958 |
- | 111,958 | |
| _________ | ||||
| b Other Income Resources | ||||
| Sundry Income | 32,843 | - 32,843 3,695 |
- | 3,695 |
| __________ | ||||
| Total Funds | £262,343 | - 262,343 115,653 | - |
115,653 |
| __________ | ||||
| 7. Statement of Financial Activities | – Analysis of Expenditure 2024 | |||
| Fund Raising Activities 4,507 | - 4,507 4,773 |
- | 4,773 | |
| Charitable activities | 96,219 | 129,980 226,199 64,037 |
- | 64,037 |
| _____________ | ||||
| £100,726 | 129,980 230,706 68,810 |
- | 68,810 | |
| _____________ |
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