# TOFS

## Details

- **Country:** England & Wales
- **Charity number:** 327735
- **Other names:** T O F S, TRACHEO-OESOPHAGEAL FISTULA SUPPORT
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** March 3, 1988
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=327735


## Contact

- **Address:** ST GEORGES CENTRE, 91 VICTORIA ROAD, NETHERFIELD, NOTTINGHAM
- **Postcode:** NG4 2NN
- **Phone:** 01159613092
- **Website:** www.tofs.org.uk



## Activities

**Objects:** THE OBJECT FOR WHICH THE ASSOCIATION IS ESTABLISHED IS TO PROVIDE RELIEF TO IN NEED INDIVIDUALS (HEREINAFTER REFERRED TO AS “TOF INDIVIDUALS”) SUFFERING FROM TRACHEO OESOPHAGEAL FISTULA, OESOPHAGEAL ATRESIA AND OESOPHAGEAL AND RELATED DISORDERS INCLUDING THE VATER ASSOCIATION (HEREINAFTER COLLECTIVELY REFERRED TO AS "OESOPHAGEAL DISORDERS”) AS WELL AS THE PARENTS OR GUARDIANS OF SUCH TOF INDIVIDUALS BY:PROVIDING OR PAYING FOR ITEMS, SERVICES OR FACILITIES WHICH ARE CALCULATED TO ALLEVIATE THE SUFFERING OR ASSIST THE RECOVERY OF TOF INDIVIDUALS WHERE SUCH ITEMS, SERVICES OR FACILITIES ARE NOT READILY AVAILABLE TO THEM FROM OTHER SOURCES;PROMOTING CONTACT BETWEEN THE FAMILIES OF TOF INDIVIDUALS SUFFERING FROM OESOPHAGEAL DISORDERS WITH A VIEW TO SHARING MANAGEMENT PROBLEMS AND SOLUTIONS; ANDCOLLECTING AND DISSEMINATING INFORMATION CONCERNING OESOPHAGEAL DISORDERS IN THE CARE AND TREATMENT THEREOF

**Activities:** Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management.  Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £222536 | £189716 | — | — |
| Dec. 31, 2023 | £149765 | £171700 | — | — |
| Dec. 31, 2022 | £151779 | £183848 | — | — |
| Dec. 31, 2021 | £189481 | £131983 | — | — |
| Dec. 31, 2020 | £120038 | £92682 | — | — |



## Trustees

- Clare Louise Johns — appointed March 20, 2021
- DUNCAN CARL JACKSON
- Darrell Hill — appointed April 18, 2015
- Tamasine Swan — appointed March 24, 2018
- To'neill Bala — appointed April 24, 2025