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2021-12-31-accounts

NEUROBLASTOMA UK

Charity Commission reference number 326385

REPORTS AND FINANCIAL STATEMENTS

For the year ended 31 December, 2021

Page 1

NEUROBLASTOMA UK

REPORT AND FINANCIAL STATEMENTS For the year ended 31 December, 2021

Trustees’ annual report
Independent Examiner’s Report
Statement of fnancial activities
Balance sheet
Notes to the fnancial statements		 CONTENTS
Page
3-5
6
7
8
9-12

Page 2

TRUSTEES’ ANNUAL REPORT for the year to 31 December, 2021

The Trustees present their report with the financial statements of the charity for the year ended 31 December, 2021. The Trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (effective 1 January, 2015). As a charity registered in England and Wales, the charity also reports in accordance with the Charity Commission for England and Wales’ guidance on public benefit and the Charities Act 2015.

Section A Reference and administrative details

Charity Name NEUROBLASTOMA UK Registered Charity Number 326385 Registered Address 7/14 Great Dover Street, London SE1 4YR

Trustees who manage the charity:

Tony Heddon (Chair) Carolyn Jackson (Secretary) Malcolm Dean (Treasurer) Zara Aitchison Ruby Dickens Keith Holmes Jane Morris Andy Pearson Monica Proctor Stephen Smith Debbie Tweddle Faye Watts Kate Wheeler Alastair Whitington

Independent Examiner Haines Watts, Statutory Auditor, 3[rd] Floor Pacific Chambers, 11-13 Victoria Street, Liverpool, L2 5QQ

Bankers Barclays Bank PLC, Newmarket, LE87 2BB

Public Benefit Requirement

The trustees of Neuroblastoma UK confirm that they have complied with their duty to have due regard to the guidance on public benefit published by the Charity Commission in exercising their powers or duties.

Section B Structure, governance and management

Governing Document

The Trust is an unincorporated trust, constituted under a Trust Deed dated 20 May, 1983 and is a registered Charity number 326385.

Recruitment and appointment of new trustees

Lay Trustees are appointed by the Trustees following consideration of applications received from individuals. Medical Trustees are appointed by the Trustee on the recommendation of existing Medical Trustees.

Risk Management

Page 3

Trustees have considered the major risks to which the charity may be exposed; have reviewed them and established systems and procedures to manage them. Trustees consider the possibility that money placed on investment could be at risk if the organisation holding the deposit should fail. Although current investments are placed with large, well-established financial institutions Trustees identified the need to re-examine investment policy and have concluded that investments should be spread across a number of institutions to minimise the impact if a single fund-holder should fail. The Trust is essentially a cash based charity, holding no property. The Charity has developed sufficient internal controls to monitor and minimise the risk of misappropriation of funds.

Section C Objectives and activities

Objectives and aims

The object of the Charity is to provide relief for children suffering from Neuroblastoma, and to achieve this, it raises funds for medical research into improving both diagnosis and treatment of the disease. The Charity also offers an opportunity for parents to give each other mutual help, support and comfort.

Policy on Grant-making

Trustees invite applications for grant award by public advertisement, typically on the Charity’s website. Normally this is biennially so that sufficient funds are available to commission meaningful research studies, although exceptions are occasionally made when judged appropriate by the Trustees in consultation with the Charity’s Scientific Advisory Board (SAB). Applications are first considered by the Charity’s SAB, which is made up of 5 scientists experienced in Neuroblastoma research and a chairman who is a paediatric oncology clinician. Each application is accompanied by reports from 2 or 3 referees who have specialist knowledge of the research area proposed, and by a response from the applicants to those reports. The SAB then recommends to Trustees applications worthy of grant funding in order of merit. Trustees award grants in the light of the SAB’s advice and funds available. Grants are only awarded to the extent that resources have already accrued in the Charity’s unrestricted fund or appropriate restricted fund.

Section D Achievements and performance

Charitable activities

Postponed due to the coronavirus pandemic, Neuroblastoma UK completed our biennial research Grant Round for 2021 in April. The charity received seven research applications totalling £2.48million from 12 countries. Following deliberations with our international Scientific Advisory Board, the decision was taken to fund two application

Professor Louis Chesler will receive a research grant of £469,093, the biggest ever amount awarded by Neuroblastoma UK for one project. Prof Chesler’s research aims to develop less painful blood-based biomarker tests for children with high-risk neuroblastoma, to help guide diagnosis and treatment.

Dr Mark Gaze will receive a research grant of £214,385 to develop targeted, non-invasive radiotherapy for children with high-risk neuroblastoma. The team will also look to start a clinical trial to assess the effectiveness of radioactive antibodies in killing cancer cells.

2021 remained a challenging year for all charities although Neuroblastoma UK’s decision to not furlough our small team proved pivotal in ensuring a successful outturn. Fundraising generated a 28% improvemnet compared with 2020 with significant growth in individual giving mainly attributable to increased awareness through our communications programme. Due to the effects of Covid, events and challenges were heavily impacted most notably the London Marathon although we expect this to return to more normal levels in 2022.

We broadened our base of Patron’s with Angellica Bell (TV and Radio presenter) and Scott Mills (Radio One and Five Live Radio Presenter) joining to work alongside our existing Patron Alan Carr. Alan continues to support the charity through fundraising and increased media activity including ITV’s This Morning show where he discussed Children’s Cancer Awareness Month with emphasis

Page 4

on Neuroblastoma. We had to postpone the filming of our marketing and promotional videos due to covid but plans are in place to complete in 2022.

We had hoped to hold our Neuroblastoma symposium in 2021 but again covid conspired against us. Due to the number of global and National meetings that have been postponed over the last two years, the calender has become very congested for 2022 so it is unlikely that our symposium will be able to be held until 2023

Section E Financial Review

Reserves Policy

The annual income generated by the Charity is to be applied for charitable purposes in accordance with the Trust’s objective. Year on year the trustees intend to make a full distribution of available income, subject to making adequate reserves for known and potential liabilities and commitments, where applicable. Any amounts not so distributed are accumulated in the unrestricted fund. Funds committed to supporting approved research, but not immediately required are invested in line with the investment policy described below. The balance held as unrestricted reserves at 31 December, 2021 was £637,454 (2019 £326,814).

Investment Policy

The Trustees’ intention is to maintain funds so that they are readily accessible when required, but are earning a reasonable return whilst not utilised.Trustees reviewed this policy in February 2005 and confirmed their policy of only placing funds in investments where the book value of the principal is maintained.

Statement of Trustees Responsibilities

The trustees are responsible for preparing the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Charity Law requires the trustees to prepare financial statements for each financial year. Under that law the trustees have elected to prepare the financial statements in accordance with the United Kingdom Generally Accepted Accounting Practice (United Kingdom Standards and applicable law). The financial statements are required by law to give a true and fair view of the state f affairs of the charity and of the surplus or deficit of the charity for that period. In preparing those financial statements the trustees are required to:

The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding

Page 5

the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Approved by the Trustees at a Zoom meeting on 21 July, 2022

Signed on their behalf and with their approval by:

MR T HEDDON Chair

MR M DEAN Trustee and Treasurer

Page 6

Independent Examiner’s Report to the Trustees of Neuroblastoma UK

I report to the trustees on the examination of the accounts of Neuroblastoma UK for the year ended 31 December, 2021.

Respective responsibilities of Trustees and Examiner

The charity’s trustees are responsible for the preparation of accounts in accordance with the requirements of the Charities Act 2011.

I have reported in respect of the examination of the Charity’s accounts carried out under section 145 of the 2011 Act and in carrying out the examination have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent Examiner’s Statement

The Charity’s gross income exceeded £250,000 and I am qualified to undertake the examination by being a qualified member of ICAEW.

I have completed the examination and can confirm that no material matters have come to my attention in connection with the examination, which gives me reasonable cause to believe that in, any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Mr. Michael Forshaw FCA Haines Watts Pacific Chambers 11-13 Victoria Street Liverpool L2 5QQ

Page 7

NEUROBLASTOMA UK

STATEMENT OF FINANCIAL ACTIVITIES

YEAR ENDED 31 DECEMBER, 2021

Unrestricted Funds Unrestricted
Funds
Note 31 December, 2021 31 December,
2020
£
£
£
£
INCOME AND ENDOWMENTS FROM:
Donations
2
387,955
311,486
Other trading activities
3
29,238
23,907
Income from investments
4
130
5,515
TOTAL
417,323
340,908
EXPENDITURE ON:
Raising funds
5
(7,996)
(3,758)
Charitable activities:
Grants payable and grant amendments
6
(9,333)
(329,390)
Governance costs
7
(104,354)
(107,66
8)
TOTAL
(121,683
)
(440,816)
NET (EXPENDITURE)/INCOME
RECONCILIATION OF FUNDS
295,640
(99,908)
Total funds brought forward
326,914
426,822
TOTAL FUNDS CARRIED FORWARD
622,554
326,914		 Unrestricted Funds Unrestricted
Funds
Note 31 December, 2021 31 December,
2020
£
£
£
£
INCOME AND ENDOWMENTS FROM:
Donations
2
387,955
311,486
Other trading activities
3
29,238
23,907
Income from investments
4
130
5,515
TOTAL
417,323
340,908
EXPENDITURE ON:
Raising funds
5
(7,996)
(3,758)
Charitable activities:
Grants payable and grant amendments
6
(9,333)
(329,390)
Governance costs
7
(104,354)
(107,66
8)
TOTAL
(121,683
)
(440,816)
NET (EXPENDITURE)/INCOME
RECONCILIATION OF FUNDS
295,640
(99,908)
Total funds brought forward
326,914
426,822
TOTAL FUNDS CARRIED FORWARD
622,554
326,914		 Unrestricted Funds Unrestricted
Funds
Note 31 December, 2021 31 December,
2020
£
£
£
£
INCOME AND ENDOWMENTS FROM:
Donations
2
387,955
311,486
Other trading activities
3
29,238
23,907
Income from investments
4
130
5,515
TOTAL
417,323
340,908
EXPENDITURE ON:
Raising funds
5
(7,996)
(3,758)
Charitable activities:
Grants payable and grant amendments
6
(9,333)
(329,390)
Governance costs
7
(104,354)
(107,66
8)
TOTAL
(121,683
)
(440,816)
NET (EXPENDITURE)/INCOME
RECONCILIATION OF FUNDS
295,640
(99,908)
Total funds brought forward
326,914
426,822
TOTAL FUNDS CARRIED FORWARD
622,554
326,914		 Unrestricted Funds Unrestricted
Funds
Note 31 December, 2021 31 December,
2020
£
£
£
£
INCOME AND ENDOWMENTS FROM:
Donations
2
387,955
311,486
Other trading activities
3
29,238
23,907
Income from investments
4
130
5,515
TOTAL
417,323
340,908
EXPENDITURE ON:
Raising funds
5
(7,996)
(3,758)
Charitable activities:
Grants payable and grant amendments
6
(9,333)
(329,390)
Governance costs
7
(104,354)
(107,66
8)
TOTAL
(121,683
)
(440,816)
NET (EXPENDITURE)/INCOME
RECONCILIATION OF FUNDS
295,640
(99,908)
Total funds brought forward
326,914
426,822
TOTAL FUNDS CARRIED FORWARD
622,554
326,914		 Unrestricted Funds Unrestricted
Funds
Note 31 December, 2021 31 December,
2020
£
£
£
£
INCOME AND ENDOWMENTS FROM:
Donations
2
387,955
311,486
Other trading activities
3
29,238
23,907
Income from investments
4
130
5,515
TOTAL
417,323
340,908
EXPENDITURE ON:
Raising funds
5
(7,996)
(3,758)
Charitable activities:
Grants payable and grant amendments
6
(9,333)
(329,390)
Governance costs
7
(104,354)
(107,66
8)
TOTAL
(121,683
)
(440,816)
NET (EXPENDITURE)/INCOME
RECONCILIATION OF FUNDS
295,640
(99,908)
Total funds brought forward
326,914
426,822
TOTAL FUNDS CARRIED FORWARD
622,554
326,914
417,323
(121,683
)		 340,908
(440,816)
295,640
326,914		 (99,908)
426,822
622,554 326,914

Page 8

NEUROBLASTOMA UK

BALANCE SHEET

AS AT 31 DECEMBER, 2021

Note
CURRENT ASSETS
Debtors and advance payments
9
Investments
10
Cash at bank
11
TOTAL CURRENT ASSETS
CREDITORS: Amounts falling due due
within one year
12
NET CURRENT ASSETS
CREDITORS: Amounts falling due in
more than one year
13,1
4
NET ASSETS
FUNDS OF THE CHARITY
Unrestricted fund
15		 2021
2020
£
£
20,515
11,753
959,763
959.691
362,384
369,149
1,342,662
1,340,593
(480,230)
(563,209)
862,
432
777,385
(239,877)
(450,471)
622,554
326,914
622,554
326,914

The financial statements set out on pages 8 – 13 were approved by the Trustees on

Page 9

TRUSTEE – Mr T Heddon

TRUSTEE – Mr M Dean

Page 10

NEUROBLASTOMA UK

NOTES TO THE ACCOUNTS

YEAR ENDED 31 DECEMBER, 2021

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charitable trust, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (effective 1 January, 2015)’, the Financial Reporting Standard 102 (effective January 2015) and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.

Donations

Cash donations and gifts are included in full in the Statement of Fiinancial Activities when they are received by the charity. Cash collected at special fund-raising events is included in the income and expenditure account after deducting the expenditure incurred directly in staging the event. Significant non-cash donations are included in the income and expenditure account at the Trustees’ estimation of their market value when received.

Income from investments

Investment income is included in the Statement of Financial Activities on an accruals basis.

Research Grant Awards

These are charged to the Statement of Financial Activities when the Trustees have awarded them. Research grants awarded, but not disbursed at the balance sheet date, are carried forward as grant creditors in the balance sheet.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund Is included in the notes to the financial statements.

Cash Flow Statements

The Charity has taken advantage of the exemption provided by the Charities SORP (FRS102) and does not prepare a cash flow statement.

Taxation

The charity is exempt from Taxation on its charitable activities.

VAT

As a non-trading organisation the charity is not registered for VAT purposes, and is unable to recover VAT incurred on its expenditure.

Page 11

NEUROBLASTOMA UK

NOTES TO THE ACCOUNTS (Continued)
YEAR ENDED 31 DECEMBER, 2021
2.
DONATIONS
2021
2020
£
£
Donations and fund-raising
387,955
311,486
3.
OTHER TRADING ACTIVITIES
2021
2020
£
£
Job Retention Scheme grant
750
Christmas cards, webshop and other income
28,488
23,907
29,238
23,907
4.
INCOME FROM INVESTMENTS

2021
2020
£
£
COIF deposit
72
1,599
National savings income bonds
58
3,916
130
5,515
5.
EXPENDITURE ON RAISING FUNDS
2021 2020
£
£
Fund-raising and publicity costs
7,996
3,758
6.
GRANTS PAYABLE AND GRANT AMENDMENTS
2021
2020
£
£
University of Birmingham
4,98
1
175,000
Straathof
154,492
Ramanujachar
5,517
Conferences, Travel and Other Grants
9,33
3
Write back
(4,981)
(5,619)
9,333		 NOTES TO THE ACCOUNTS (Continued)
YEAR ENDED 31 DECEMBER, 2021
2.
DONATIONS
2021
2020
£
£
Donations and fund-raising
387,955
311,486
3.
OTHER TRADING ACTIVITIES
2021
2020
£
£
Job Retention Scheme grant
750
Christmas cards, webshop and other income
28,488
23,907
29,238
23,907
4.
INCOME FROM INVESTMENTS

2021
2020
£
£
COIF deposit
72
1,599
National savings income bonds
58
3,916
130
5,515
5.
EXPENDITURE ON RAISING FUNDS
2021 2020
£
£
Fund-raising and publicity costs
7,996
3,758
6.
GRANTS PAYABLE AND GRANT AMENDMENTS
2021
2020
£
£
University of Birmingham
4,98
1
175,000
Straathof
154,492
Ramanujachar
5,517
Conferences, Travel and Other Grants
9,33
3
Write back
(4,981)
(5,619)
9,333		 NOTES TO THE ACCOUNTS (Continued)
YEAR ENDED 31 DECEMBER, 2021
2.
DONATIONS
2021
2020
£
£
Donations and fund-raising
387,955
311,486
3.
OTHER TRADING ACTIVITIES
2021
2020
£
£
Job Retention Scheme grant
750
Christmas cards, webshop and other income
28,488
23,907
29,238
23,907
4.
INCOME FROM INVESTMENTS

2021
2020
£
£
COIF deposit
72
1,599
National savings income bonds
58
3,916
130
5,515
5.
EXPENDITURE ON RAISING FUNDS
2021 2020
£
£
Fund-raising and publicity costs
7,996
3,758
6.
GRANTS PAYABLE AND GRANT AMENDMENTS
2021
2020
£
£
University of Birmingham
4,98
1
175,000
Straathof
154,492
Ramanujachar
5,517
Conferences, Travel and Other Grants
9,33
3
Write back
(4,981)
(5,619)
9,333
2021
2020
£
£
750
28,488
23,907
29,238
23,907

2021
2020
£
£
72
1,599
58
3,916
130
5,515
2021 2020
£
£
7,996
3,758
2021
2020
£
£
4,98
1
175,000
154,492
5,517
9,33
3
(4,981)
(5,619)
9,333

Page 12

329,390

7. EXPENDITURE ON CHARITABLE ACTIVITIES

Rent and facilities
Staf salaries and pension contributions
Staf training
Sporting event costs
Subscriptions
Travel
Computers, software and equipment hire
Accounts and audit
Trustees meeting costs
Printing, postage and stationery
Sundries
Advertising and website
Insurance
Bank and professional charges
Seminar costs		 2021
£
2020
£
11,1
63
16,2
17
66,7
67
61,2
03
43
5
Nil
9
02
3,02
4
1,6
22
1,14
6
7
8
7
7
2,905
1,03
5
10,872
10,604
Nil
452
604
1,526
804
1,596
6,633
4,656
977
955
592
5,167
Nil
10
104,354
107,668

8. TRUSTEES’ REMUNERATION AND BENEFITS

There was no trustees’ remuneration or other benefits for the year ended 31 December, 2021

(2020 £NIL).

The Trust owns no premises.

9. DEBTORS AND PREPAYMENTS

Receivables
Prepayments
Co-funding income
10.
CURRENT INVESTMENTS
COIF Deposit Fund		 2021
2020
£
£
1,188
3,495
6,827
8,257
12,500
20,515
11,753
2021
2020
£
£
609,763
609,691

Page 13

National Savings – Income bonds

350,000 350,000
959,763 959,691

Page 14

NEUROBLASTOMA UK

NOTES TO THE ACCOUNTS (Continued)

YEAR ENDED 31 DECEMBER, 2021

11.
CASH AT BANK AND IN HAND
Cash at Bank
12.
CREDITORS – DUE WITHIN ONE YEAR
Grant commitments
Trade creditors
Accruals
Co-funding income received in advance
13.
CREDITORS – DUE IN MORE THAN ONE YEAR
Grant commitments
14.
GRANT COMMITMENTS
Total commitments at 1 January, 2021
Paid in the year
New commitments
Written back in the year		 2021
2020
£
£
362,384
369,149
2021
2020
£
£
442,311
551.133
22,019
11,176
900
900
15,000
480,230
563,209
2021
2020
£
£
239.877
450,471
2021
2020
£
£
1,001,60
4
774,34
2
(319,41
5)
(102,128)
4,981
335,009
(4,981)
(5,619)
682,18
9
1,001,60
4

All of the grants paid in 2021 and 2020 were to institutions and to commission research studies.

All of the new grant commitments in 2021 were to institutions.

15. ANALYSIS OF UNRESTRICTED FUND

2021 2020

Page 15

At 1 January, 2021
Net movement in funds for the year		 £
£
326,91
4
426,82
2
295,64
0
(99.908)
622,55
4
326,91
4

Page 16