2025-07-31-accounts

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THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST

Report and Financial

Statements Year Ended 31 July 2025

Registered charity number: 311877

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Message from the Chair, Markus Ruetimann	3
Chief Executives’ Review, Mark Devlin and Jane Beaven	4
We are Young Epilepsy	6
A 5-year strategy for Young Epilepsy	7
A review of the year: Voice and Support	9
Support and Inclusion	9
Voice, Policy and Influencing	10
Youth Engagement and Participation	11
A review of the year: Health and Research	13
Research	13
Diagnostic EEG	15
A review of the year: Specialist Education - St Piers	16
Fundraising	17
Land Sale and Site Development	21
Gender Pay Gap report	22
Administratve Details	23
Structure, Governance and Management	25
Financial review	26
– Income and expenditure	26
– Reserves	26
– Funding	27
– Risks	27
– Going concern	28
– Executves’ pay	29
Statement of Trustees’ responsibilites	30
Independent Auditor’s Report	31
Financial Statements
– Statement of Financial Actvites	35
– Balance Sheet	36
– Statement of Cash Flows	37
– Notes to the Financial Statements	38

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Message from the Chair, Markus Ruetimann

Since joining as Chair of the Board of Trustees in November 2024, I have been inspired by the commitment and dedication of our staff and volunteers in their collective resolve to achieve all they can for children and young people with epilepsy as well as other special education needs and disabilities.

It was very gratifying to see this hard work recognised by the Care Quality Commission (CQC) when they judged our children’s residential provision as ‘Outstanding’. Driven by a new provision for infants, our student numbers at St Piers have grown to an all-time high. We are meeting local demand for places for younger children with complex needs and we have been delighted that all 12 places were filled in the infant school in its first year of operation.

Beyond St Piers, our national work continues to grow, with our Youth Voice Network reaching nearly 250 members from across the United Kingdom. Young people’s voices are at the heart of everything we do, and young people were instrumental in developing a new 5-year strategy for Young Epilepsy. Our strategy, launched at the end of the financial year, is setting ambitious goals for 2030 in terms of services provision, financial sustainability and reach. Our ambition is supported by a resilient fundraising programme that saw good growth despite a challenging economic environment.

I would like to thank my fellow trustees for their unwavering support throughout the year, and extend our heartfelt thanks to our donors, funders, supporters, business partners and stakeholders without whom we simply could not exist.

We are saying farewell to our CEO Mark Devlin. During his seven-year tenure, Mark and his management team have laid the foundations for future success. We all wish him the very best.

We welcome Jane Beaven as our new CEO. Starting in early November 2025, Jane will continue to drive our growth and increase our impact over the years to come.

With confidence and conviction, everybody at Young Epilepsy is focusing on helping children and young people overcoming their challenges to reach their potential.

Chair, Board of Trustees

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Chief Executives’ Review, Mark Devlin and Jane Beaven

A farewell from Mark Devlin, CEO.

Seven years ago, I joined Young Epilepsy determined to improve outcomes for children and young people living with epilepsy. I left on 31[st] October 2025 with mixed emotions.

Firstly, I am immensely proud of all we have achieved in the past years, despite the many challenges thrown at us, and the sector more widely, from Covid-19 to the cost-of-living crisis. We have remained undaunted and, despite the challenges, have seen huge improvements across all areas of our work. St Piers school and college, its residential offers and therapeutic services, have all improved. That is not just in the number of children and young people supported but also the quality of the provision, as evidenced by our Ofsted ratings. Thanks are due to the hard work of the staff, the senior leadership team and the governors for making St Piers a very special place for our students. In the last year the opening of our new pre-school has been a particular highlight. Early years education and enabling school readiness is so important for children with additional needs.

I am also delighted that the development of our historic campus at Lingfield is underway, after many years waiting and planning. The changes will greatly benefit students, staff and visitors, while protecting the green environment there, which we all treasure. When I started in post our youth voice was just a whisper. Now, with nearly 250 young people in our Youth Voice Network, the whisper is becoming a shout and never more so has this been heard than through our impactful campaigns. I am proud of our Young Epilepsy national teams and the work they have done to reach out to more young people and professionals, who may need support or training. It is satisfying to see that the annual Royal College of Paediatrics and Child Health’s Epilepsy 12 audit is showing a shift on the dial for children and young people with epilepsy in regard to improved access to mental health screening and support and the provision of Individual Healthcare Plans in schools. I have been fortunate toco-lead the NHS England Epilepsy Oversight Group with Prof. Simon Kenny, National Clinical Director for Children’s Services, which brought together the expertise of clinical leaders and lived experience of young people and led to the publication of the NHS Bundle of Care for Children and Young People with Epilepsy. This sets out best practice in holistic epilepsy care. Now our research team is actively developing and evaluating pilot schemes with the NHS to bring the bundle of care to life and develop best practice models for wider adoption across the NHS in England. The growth in our partnerships and fundraising has seen a marked improvement from where we started.

But I said my emotions were mixed because whilst much has been achieved, there is still more to do. The challenges facing children and young people with epilepsy are significant. Too many children and young people with epilepsy continue to miss out on learning, play and the normal social experiences of growing up because of the lack of understanding of their condition. Research into the causes and treatments of epilepsy is generally underfunded compared to other health conditions that affect a similar proportion of the population.

Finally, I want to thank my executive colleagues, the trustees with whom I have worked but most of all the amazing young people and families I have met and had the privilege to get to know while in this role. They are the real heroes.

I hand over the baton to Jane Beavan safe in the knowledge that she will lead the team, supported and guided by Markus and our Board of Trustees, to continue the work we have started with our new strategy to ensure that children and young people with epilepsy, and our students at St Piers, thrive and achieve their ambitions. Together we create possible!

Outgoing CEO

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A message from Jane Beaven, new CEO.

I want to thank Mark for all his efforts in making Young Epilepsy an exciting and vibrant organisation that is achieving wonderful things for young people who face enormous disadvantage. I am excited to be taking on the role of CEO and look forward to driving the new strategy, ensuring our campus in Lingfield develops into a sustainable and enriching environment for our students and staff, and supporting St Piers in its mission to be ‘beyond outstanding’ in all it does. I look forward to working with the trustees, governors and staff to increase our impact and reach more children and young people who urgently need our support.

Jane Bevin

CEO –from 12[th] November 2025

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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We are Young Epilepsy

The Objects of the Charity include:

The advancement of education by the provision of a special school and a college for further education to further the education of children and young people with special educational needs supporting them to better reach their potential.
The advancement of education of the wider public and professionals regarding epilepsy/
The relief of needs for children, young people, their caregivers and families who are experiencing or are affected by epilepsy and associated neurological conditions.

Epilepsy can be one of the most frightening and isolating conditions a young person can experience; the loss of any sense of safety, living in an unpredictable world and not knowing when their next seizure will happen. Around 100,000 children and young people aged 25 and under have epilepsy in the UK. For them life can be very different from that of other young people around them. It can take its toll on their physical and mental health, as well as impacting their education and social life.

Many children with epilepsy are missing out. We can change that and create a society in which all children and young people with epilepsy can thrive and live happy, fulfilled lives.

Our values

Young people are at the centre of everything we do.
We work together to make a greater difference.
We are courageous and ambitious for change.

Our programmes

Our programmes aim to create a society where children and young people with epilepsy are heard and can live happy fulfilled lives.

Voice and Support

With children and young people at the centre of all we do, we are pushing the boundaries to ensure the voices of children and young people with epilepsy are heard, their voices respected, and their ambitions realised.

We provide trusted, reliable, and accessible information about living with epilepsy. We work holistically with children and young people with epilepsy, their families, health and social care teams, and their school or college, to create a supportive environment for them to thrive and reach their potential.

Health and research

Children’s epilepsies can be complex, and the condition is often misunderstood. We deliver diagnostic and assessment services and coordinate the vital research needed to ensure early and accurate diagnosis, better treatments, and better support for young people living with the condition.

Specialist education

St Piers in Lingfield, Surrey, is a special residential school and college for children and young people with complex special educational needs and disabilities.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A 5-year strategy for Young Epilepsy

The problem we are here to solve

Over 100,000 children and young people live with epilepsy in the UK. 23 new cases are diagnosed every day.
Of these 1 in 3 children and young people have seizures that cannot be controlled by medication.
3 in 4 children and young people say living with epilepsy greatly affects their mental health.
And 1 in 3 children with epilepsy do not get the support they need to take part fully in school life.

Together we can change this. We work with children and young people with epilepsy, their parents and carers, education and healthcare professionals, our partners and the wider public.

We have spent 2025 developing a new ambitious strategy for Young Epilepsy to 2030.

The change we want to see:

All children and young people with epilepsy in the UK will be part of a community that gives them support when they need it. Their voices will be heard and respected. Healthcare services will meet their physical and mental health needs. They will take part fully in all aspects of school life and be able to thrive.

Our 5-year Strategy:

Programme One: Me and my family gain confidence through information and support.

Our goals for 2030:

Every child or young person who needs help and support can find us quickly and easily.
Every child or young person we support feels more confident about living life with epilepsy.
Every child or young person will know they’re not alone. They’ll be able to connect with others who live with epilepsy

To achieve our goals, we will:

Research and design a model of support for children and young people aged 4–25, bringing together health information and group, one-to-one and community support
Improve existing support products and services and develop new ones that meet the needs of children and young people throughout their epilepsy journey
Develop relevant, trustworthy information, shaped by users and easy to access by everyone who needs it
Expand our digital reach, building a community for children and young people with epilepsy of all ages, to share their stories, build connections and find support

Programme Two: My health and wellbeing needs are met.

Our goals for 2030

Children and young people will be supported to use their voices to influence national policy and improve epilepsy care.
Children and young people’s experiences of epilepsy will shape research that leads to improvements in treatment and care.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A 5-year strategy for Young Epilepsy (contnued)

Children and young people with epilepsy will be able to get better mental health and wellbeing support that meets their personal needs.

To achieve our goals, we will:

Establish a programme of research to address the wider impact of epilepsy on children and young people living with the condition
Develop and expand our groups representing children, young people and families affected by epilepsy to inform research and innovation and ensure they are involved at every stage of our research
Focus our innovation partnerships on collaborations that help us meet the health and wellbeing needs of children and young people with epilepsy
Strengthen and grow our programme for evaluating NHS epilepsy care priority areas, particularly mental health and transition care, using the findings to inform national policy and practice
Grow the Youth Voice Network across the UK, so healthcare professionals and decision-makers can hear from young people in their area
Review and improve the mental health and wellbeing support we offer, and clearly define our role in increasing access to support

Programme three: My education opportunities are inclusive

Our Goals for 2030:

Epilepsy awareness and inclusion will be the norm across the education system.
Every student with epilepsy will be fully included in school life.
Education professionals will have the training, tools, resources and understanding to support their students with epilepsy.

To achieve our goals, we will:

Broaden partnerships with schools, trusts and local authorities to co-develop and pilot training, tools and resources that enhance understanding and support for students with epilepsy, starting with secondary schools
Develop awareness-raising resources and activities, starting in primary schools, to improve understanding of epilepsy and reduce the stigma associated with the condition
Promote fundraising activities that involve the whole school community
Develop, through partnerships, schools as role models of inclusion and share their success to inspire others to follow
Expand our inclusion offer beyond school settings, as our tools and resources become more widely adopted, making sure children and young people with epilepsy are included in all education settings and play activities

You can read more about our 5-year strategy on our website www.youngepilepsy.org.uk/strategy

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Voice and Support

Support and Inclusion

Goal 1: Increase numbers of young people accessing our support services and launch a new Epilepsy and Me virtual support group.

Result: Referrals into our Youth Support Service and those going on to receive one-to-one support has continued to grow this year. We received 276 referrals, up 87% vs last year, with 18% living in the most deprived areas of the UK[1] – an increase of 2% vs. last year. The number of young people then going on to receive one-to-one support almost doubled this year too. 185 young people had one-to-one support, and 21% were from the most deprived areas. From our recent impact report, we know that those receiving one-to-one support value speaking to someone who understands and can offer expert information and support, helping them to build self-belief and confidence. Those not requiring one-to-one support were signposted to our other youth offers or relevant information.

We lowered the age of youth club to meet demand in March this year. 8 and 9 year olds can now meet other children living with epilepsy safely and have fun – we run these virtual groups monthly for those aged 8-12 and 13-18. We’ve had 224 attendees coming along over the past 12 months, up 70% vs last year.

We also launched our monthly virtual support groups, Epilepsy & Me, helping to bring similar aged young people together who are living with the condition. We now have 3 groups on rotation split by age (8-10 with parents, 1115 and 16-18) where they can ask questions, share experiences and find the support they need. 50 children and young people with epilepsy and 18 parent/carers have attended.

We have also run face-to-face meetups in London, Brighton, Birmingham and Milton Keynes and supported the Youth Voice Roadshows – bringing together 174 children, young people under 18, and their families.

Access to our partnered text helpline with Shout has increased too, with 125 texters access the service – making sure that young people living with epilepsy have someone to turn to anytime of the day.

Goal 2: Research and develop new and improved tools and resources to ensure all young people with epilepsy get the support they need in school.

Result: We have cocreated new resources to help raise awareness of epilepsy within schools and made our webpages more accessible for busy education professionals to access. 305 schools and 117 Higher Education professionals have completed our free Epilepsy Awareness eLearning, up almost 20% vs last year.

Goal 3: Develop support and resources for younger children and those at the beginning of their epilepsy journey.

Result: In March 2025 we lowered the age of youth club to meet demand. 8 and 9 year olds can now meet other children living with epilepsy safely and have fun – we run these virtual groups monthly for those aged 8-12 and 13-18. We have had 224 attendees coming along over the past 12 months, up 70% vs last year.

We embarked on a new partnership with charity Epilepsy Action to create epilepsy resources for younger children. The resources will include a storybook for children aged 4-8 and a video series for children aged 8-12. Over the coming year we will launch and develop these further.

1 Based on most deprived 20% of England, Wales and Scotland’s own Index of Multiple Deprivation.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Voice and Support (contnued)

Looking ahead

Kicking off of our 5-year strategy we will be looking to understand what an integrated support offer should look like over the coming year, so that children, young people and their families receive the support and information they need to feel confident living with epilepsy.

We are working to improve inclusion in education for children and young people with epilepsy is one of our key priorities. We have been working hard to clearly define the programmes of activity to support this and have begun research into the training and resources required to ensure young people with epilepsy are fully included.

Over the coming year we will be making sure more education professionals know we are here to help them. And we will be working with them, and young people with epilepsy, to design and test new and improved offers.

As well as an impact report for our one-to-one support and our Youth Voice Network, we now have recommendations to improve monitoring and evaluation across all of our Voice and Support services. We have begun implementing these recommendations and will continue to do so over the coming year. This will help us to better understand and report on our reach, impact and improved outcomes for the young people we support.

A review of the year: Voice, Policy and Influencing

Influencing education

Goal 1: Deliver the #UnderstandMyEpilepsy petition to education ministers across the UK and enable our supporters to message their elected representatives to show why this issue matters to their constituents.

Result: We have made significant progress with our #UnderstandMyEpilepsy campaign in the year, calling for children with epilepsy to be safe and included at school. Young people from the Youth Voice Network delivered our petition to education ministers in each of the UK nations. The petition was signed by 16,163 people and asked for guidance to be made clearer so every child with epilepsy has an Individual Healthcare Plan (IHP) for school and gets the support they need.

We ran a follow-up email action, with 583 of our supporters sending personal messages to their elected representatives. We reached 368 constituencies, representing 55% of UK constituencies. As a result, elected representatives contacted government ministers, local authorities, and asked questions in parliaments across the UK to help improve school support for children with epilepsy.

We have had positive engagement with the governments in Wales and Northern Ireland as they look to review their guidance for schools on supporting children with health conditions.

In England we have developed a good relationship with the Department for Education, working collaboratively with colleagues in the Health Conditions in Schools Alliance. This policy area now has greater focus within DfE, with a public consultation on the schools guidance expected later this year.

New figures from the Epilepsy12 audit show that 67% of children with epilepsy had an IHP for school in their first year of care. Our own 2023 survey found that 56% of all children with epilepsy had an IHP, so this represents a significant improvement.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Voice, Policy and infuencing (contnued)

Influencing healthcare

Goal 2: Build relationships with key stakeholders in paediatric epilepsy care, including through national and regional events. This has enabled us to share young people’s views and experiences and connect healthcare professionals with our wider services.

Result: This year’s Epilepsy12 audit showed improvements in mental health support as part of children’s epilepsy care. 1 in 4 paediatric epilepsy clinics now has integrated mental health support – this is an increase from 1 in 5 when we launched our #OnTopOfEpilepsy campaign. More children with epilepsy are also accessing wider mental health support and being asked about their mental health in their first year of epilepsy care.

We have been working with partners in the NHS to test out new ways of integrating mental health support into young people’s epilepsy care. We look forward to taking this work forward over the coming year.

We have been active members of the CYP Health Policy Influencing Group to ensure the needs of children and young people are not forgotten within the healthcare system. This has been particularly important in the context of significant changes within NHS leadership and the recently announced 10-year plan.

Health information

Goal 3: Grow the information we provide with the Patient Information Forum (PIF) Tick mark, with an initial focus on children and young people’s seizures and diagnosis.

Result: We maintained our commitment to best practice for producing health information and passed the PIF Tick accreditation assessment for a second consecutive year. We evidence checked and referenced our epilepsy information, meaning we can be confident the information we provide is accurate and up-to-date. Full reviews of our content on diagnosis and seizures were also carried out.

Looking ahead

Over the coming year we will build on our progress with our #UnderstandMyEpilepsy campaign, hosting an event in Parliament for our Youth Voice Network members to talk to their MPs about the importance of epilepsy support at school. We will continue to work with our partners to ensure the government’s plans to improve inclusion in school do not leave out children with epilepsy.

We will also begin work on our project to develop resources for newly diagnosed children and young people with epilepsy.

Youth Engagement and Participation

Goal 4: Expand and develop the Youth Voice Network, building a community of young people with epilepsy across the UK

Result: The Youth Voice Network membership reached 240 members in the current year. Growth was driven by our successful Youth Voice Roadshow events were held in Leeds, Birmingham, London and Bristol. They were a huge success and were attended by 66 existing and new members of the YVN.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Voice, Policy and infuencing (contnued)

As well as building a strong sense of community, we were able to:

Celebrate the diversity of the YVN and reflect on life with epilepsy through the personal and Collective Tapestry activity.
Capture a range of regional epilepsy experiences through the Our Voice, Our Experiences.
Collate creative epilepsy focused Zines, an art-based project exploring views of epilepsy, including poems and positive affirmations – which will be made into digital content for The Channel.
Create opportunities for leadership experience, project planning, public speaking and session facilitation for the group of YVN Roadshow Leads.

The Young Epilepsy Loud in London project has made great progress, with YELL members working to decide on these healthcare and education influencing priorities:

Increased epilepsy awareness in schools
Improved information about mental health effects and support

YELL members have co-produced their awareness raising assembly and are preparing to deliver the assembly inperson in five schools in London. Additionally, they have been working to co-produce a digital education comms package for educational professionals in London to ensure their assembly can be seen by as many schools as possible.

YELL members have also co-produced and starred in a series of short films sharing their personal stories and practical advice to encourage and support healthcare professionals in understanding and responding to the mental health needs of children and young people with epilepsy.

These two-awareness raising and influencing products will ensure that education and healthcare professionals have evergreen content to help inform their work and improve the experiences of children and young people with epilepsy living in London.

Looking ahead

We are looking forward to the year ahead to launch and develop a new Youth Council, a group of Youth Voice Network members and younger children aged 8+. Recruitment will start in October 2025, aiming to attract initially young people aged 13 – 25, and later to include 8 to 12 year olds. They will be from a range of backgrounds recruited from our existing networks and from other sources such as our youth support service users and fundraising supporter base. The first year of activity will include regular meetings, opportunities to share views and ideas with the Youth Voice Network and attendance at the Trust Board Away Days. They will also work on a key strategic project during the year. Their ideas and views will be fed into board meetings through the Young Trustee(s) and the group’s Chair.

We will also be actively growing the Youth Voice Network, increasing numbers to 300 by the end of July 2026.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Health and Research

Research

Our research programme exists to ensure the best outcome for every child by optimising diagnosis, treatment and support for all aspects of childhood epilepsy. Led by the Prince of Wales’s Chair of Childhood Epilepsy, Professor Helen Cross, our collaborative partnership with Great Ormond Street Hospital and the UCL Great Ormond Street Institute of Child Health continues to grow, now encompassing 32 leading researchers, 32 PhD students and 30 international collaborators, working together on 46 active projects. Our six goals remain at the heart of everything we do:

Goal 01: Gain a better understanding of the medical causes of epilepsy.

Goal 02: Gain a better understanding of how epilepsy affects development and behaviour.

Goal 03: Improve diagnosis and treatment to determine the benefits of early intervention in improving long-term outcomes.

Goal 04: Gain a better understanding of barriers to learning and determining the benefits of educational interventions.

Goal 05: Make life better for children and families and make support systems more effective.

Goal 06: Develop a network of multidisciplinary professionals to strengthen our research and shape the education of future practitioners.

This year, our research has delivered significant progress across several key projects.

One of our key projects, Turning Six, is following children who developed epilepsy in their first year of life. After assessing these children as babies, we are now carrying out detailed psychological assessments as they reach ages seven to nine. This helps us understand how epilepsy that starts early in life can affect children as they develop. We have made excellent progress with recruitment this year and expect to complete the study by December 2025. Our early findings indicate that children with epilepsy that starts in infancy often face greater challenges with learning and behaviour compared to their peers. By identifying these difficulties and the factors associated with them, we hope to improve future care and support for children and young people with epilepsy.

We have also seen real progress in the OPM-MEG Diagnostic Suite, which began recruiting in early 2024. OPMMEG is a new technology that allows us to scan tiny magnetic fields in the brain, which helps us to locate where the epileptic seizures may be coming from. By working with three regional surgical centres and several local NHS trusts, we are including a wide range of children and thoroughly testing this technique. Our aim is to bring OPMMEG from research into clinical practice, so that children can benefit from faster and more accurate diagnosis and treatment. This year, the clinical team commenced simultaneous EEG and OPM-MEG recordings under YE research ethics.

Pilot projects: NHS Bundle of Care

The diversity of our research portfolio serves to demonstrate our commitment to encouraging work in all areas of epilepsy research. Whilst we continue to conduct research into understanding and treating epilepsy, we recognise that epilepsy affects every part of a young person’s life, and mental health and wellbeing are especially important. The NHS also recognises this in its Bundle of Care, national standards designed to improve children’s epilepsy services and is funding Mental Health Pilots across England.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Health and Research (contnued)

Each pilot site is using an approach based on Psychology Adding Value – Epilepsy Screening (PAVES), which aims to embed screening for mental health needs within epilepsy clinics and offer a stepped-care intervention pathway so families can access the right level of support. Over the past year, we have continued to work closely with a number of these sites.

Working with the South Paediatric Neurosciences Operational Delivery Network, we have developed and piloted an Acceptance and Commitment Therapy (ACT) group for young people, now running across three NHS trusts. Early findings show it helps young people manage uncertainty, build skills to look after their wellbeing and connect with other young people with epilepsy. We have also created an ACT group for parents to provide peer support, ‑ practical resources and stress management strategies. The parent group will be piloted later this year.

At the Surrey Heartlands ICB pilot site, children and families who need extra support are referred directly to us. We have been able to offer direct services such as access to the ACT group intervention, youth work and one-toone mental health support through the Mental Health Intervention for Children with Epilepsy (MICE). Early feedback shows improvements in psychological wellbeing, and families have told us that this support is making a real difference to their wellbeing.

Alongside our work in mental health, we are conducting research which aims to improve the transition from paediatric to adult epilepsy services, another NHS priority. So far, we have completed a scoping review of resources and evidence in the UK, gathered feedback from young people and families and are working with NHS England to evaluate pilot projects in the South of England.

Patient Voice

We are committed to ensuring that our research reflects the needs and experiences of young people with epilepsy and their families. To achieve this, we actively involve them in shaping every project. Our growing E-CURe Network, now including over 210 parents and caregivers, plays a vital role in guiding our work. Alongside the Youth Voice Network, their ongoing input helps us make sure that our research delivers real benefits for the children and families we support.

Sharing our Findings

Throughout the year, we have attended and hosted a range of events to share our latest research, connect with other professionals and come up with new project ideas.

In January 2025, we hosted our Annual Research Retreat with nearly 100 leading experts in epilepsy research and healthcare coming together to exchange ideas. We have also presented our work at several national and international conferences, as well as presenting our findings in webinars, podcasts and across the community.

Looking Ahead

As our research programme continues to grow in both scale and scope, we are excited about the opportunities the coming year will bring.

In 2025/26, we look forward to sharing the findings from the Turning Six Project, which will provide vital insights into how early-onset epilepsy affects children as they develop. We also anticipate the first publications from our OPM-MEG research in children with epilepsy. To continue to drive progress in this area we will expand recruitment, strengthen collaborations and broaden our partnerships across the UK and Europe, aiming to extend the benefits of this technology to even younger children.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A review of the year: Health and Research (contnued)

Our commitment to improving mental health support for children and young people with epilepsy will remain central. Over the next year, we will evaluate our ACT groups for young people and parents and make self-help ACT resources available online. We will also continue our work on improving the transition from paediatric to adult epilepsy services. Building on what we have learnt so far, we will translate learnings from pilot sites into key recommendations, support wider adoption across the South of England and create co-produced resources to support young people and their families during this important time.

By working together with the NHS, universities, industry partners, and most importantly the children, young people and families affected by epilepsy, we remain committed to ensuring the best outcome for every child by optimising diagnosis, treatment and support for all aspects of childhood epilepsy.

Diagnostic EEG

Service growth and Home Video Telemetry

Over the year we provided 645 diagnostic EEG appointments—an increase of 50% investigations compared to the previous year (421 in 23–24).

We regularly use our home video-telemetry systems, purchased in 2024, to enable long-term video-EEG monitoring at home. This service is now available over weekends, helping to avoid extended school absences including a convenient courier service for equipment returns.

Providing diagnostics closer to home is a key NHS priority and supports families who struggle to travel to Lingfield.

Partnerships & Feedback

At the end of 2024, we secured an additional NHS EEG contract with a hospital facing over a one-year wait for paediatric EEGs. Within 5 months, we successfully cleared their waiting list without breaching any key performance indicators. Our current waiting time is 2–4 weeks, well within the NHS target of 6 weeks.

Training & Workforce Development

We developed the first-ever Young Epilepsy training post and programme for trainee Neurophysiological Scientists. In September 2025, our trainee successfully passed her professional board examination, which will further increase our EEG capacity.

Looking ahead

The diagnostic EEG service is focused on expanding accessibility and capacity. Plans include increasing weekend provision and exploring outreach clinics, aligning with NHS goals to deliver care closer to home. We aim to further reduce waiting times, support workforce development and deepen our involvement in strategic research partnerships. These initiatives will ensure we continue to deliver high-quality, patient-centered diagnostics while contributing to innovation in children’s epilepsy care.

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A review of the year: Specialist Education - St Piers

Student Numbers

St Piers has continued to thrive despite an increasingly challenging local and national SEND landscape of constrained funding and slower decision making. Student numbers have continued to grow, with almost 200 on roll across school and college, up from 160 two years ago.

The bulk of the growth has been in school, where a new infant provision opened in September 2024, moving into purpose-built accommodation in November 2024. In addition, school has taken in more students across all other age ranges.

College numbers have held up despite significant challenges in 19 - 24 funding. There has been a 15% increase in day students and 14% decrease in residential placements, reflecting local authority trends favouring more daily provision.

Continuous Improvement

Fundamental to St Piers’ ethos is our focus on preparing young people for the next stage of their lives, supporting them to become as independent as possible. Both school and college have received Quality in Careers Standard Gold Awards this year, recognising our continued commitment to high quality independent careers advice and guidance. School and college offer work experience placements, with college this year providing 96 placements – one for every student. College have also successfully launched Supported Internships, successfully placing students with a range of local employers.

St Piers is committed to continuous improvement and quality assurance. Following on from the college’s Outstanding Ofsted judgement in 2023/4, Children’s Residential Services was judged outstanding by Ofsted in March 2025. Adult Residential Services gained a strong good outcome from CQC in October 2024, and both residential services continue to receive positive feedback from monitoring visits by regulators. School retains its good Ofsted judgement.

Key to our continuous improvement ethos is strong leadership and highly effective staff professional development. Leadership structures have been reviewed across school, college, residential services and therapies over the last 18 months. A new residential leadership structure is fully in place with more clearly defined areas of responsibility, contributing to high staff retention rates, with staff reporting enhanced levels of support in their roles. The Head of Residential Services has also successfully clarified our registration with CQC so we align with the Specialist College Service model. In college, the leadership structure has been revised to reflect the growing Supported Internship programme and other community-based programmes, while the Head of College is contributing to regional and national system leadership through her role as Natspec South East Regional Director. A new leadership structure in Therapies has helped to drive improvements to programme delivery and outcomes, and the team are now developing cutting-edge outcome and impact measuring tools based on the latest international research.

Professional development

High quality professional development continues to ensure that staff across St Piers continue to develop their skills and the quality of provision for students. Professional development has encompassed communication, Augmentative and Alternative Communication (AAC), Makaton, trauma-informed practice, Emotional Literacy Support Assistant (ELSA), and Profound and Multiple Learning Disabilities (PMLD) curriculum training. School

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A review of the year: Specialist Educaton - St Piers (contnued)

and College have achieved Makaton Aware status. The college has been recognised as a Story Massage Centre of Excellence, one of only three globally.

Looking ahead:

Looking to the future, St Piers is working collaboratively with our commissioners to identify gaps in the regional provision that we can help them to fill, so that more young people’s needs can be met. This will involve new types of provision offer in college and increasing capacity in school for more of the youngest children to join us, since we know that earlier support and intervention has significant benefits for them in the longer term. We are also looking to enhance college facilities with improved multi-skills provision and greater accessibility for powerwheelchair users in the main building, enabling greater independence for our students.

St Piers remains a first-choice provision for parents and a trusted provider among commissioners through continued self-review and development and embracing new approaches and new technology.

Fundraising

Approach we adopt to raise funds for our charitable activity

We raise funds through appeals, events, relationship management with supporters, individual donors, volunteer fundraisers, corporate partners and high value funders, trading activity and through grant applications.

Our fundraising activity is managed internally without the involvement of commercial participators and professional fundraising agencies.

Accountability for our fundraising activity

We are registered with the Fundraising Regulator and follow their Code of Practice and publish our Fundraising Promise, complaints policy and procedure on our websites.

We comply with the guidance set out by the Fundraising Regulator, including publishing our charity and contact details on its website.

How we monitor activities of volunteer fundraisers who raise funds to support Young Epilepsy

We provide support to volunteer fundraisers who choose to raise funds for Young Epilepsy through relationship management and a Service Level Agreement. We monitor their activity through designated online giving platforms and social media channels and engage in regular dialogue with fundraisers.

Number of complaints received associated with our fundraising activity or presence

In the year to 31st July 2025, we received one fundraising complaint in relation to our fundraising activity. This related to us mailing a postal appeal to an individual under the age of 16. This was immediately rectified, and the complaint was satisfactorily resolved.

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Fundraising (contnued)

What we do to protect people in vulnerable circumstances

All employees who work for Young Epilepsy sign up to a clear behaviour code of conduct and receive safeguarding training as part of their induction, with refresher training delivered at appropriate intervals. This applies to team members directly engaged in fundraising activity.

Young Epilepsy adopts a rigorous and robust approach to safeguarding, given the particularly vulnerable group of children and young people with epilepsy we work with.

Our fundraising team is required to follow procedures which implement our approved Child and Adult Protection and Safeguarding Policy, reviewed annually.

We have a Fundraising with People in Vulnerable Circumstances Policy, and also follow guidance laid out by the Chartered Institute of Fundraising, the Charity Commission and the Fundraising Regulator. The policy is published on our website and is supported by staff training.

Anyone under the age of 16 is recorded as such on our CRM system and is not contacted for marketing purposes.

Fundraising Performance

Donations and Legacies income was £2.195m in the year 2024-25. This was an increase of 16% vs the previous year (23-24 £1.886m). We spent £814K to raise these funds, showing a return on investment of 2.7.

Goal 1: Raise sustainable funds to enable growth of our service offers.

Result: In a challenging economic climate we achieved 14% growth year on year across fundraised income and 16% growth in all donations and legacies.

The reason for our overall growth is seeing previous investment in the fundraising team coming to fruition as well as the team working in a more collaborative and focused way, especially around appeals and community events.

Grants and Legacies income dropped in the year, largely as a result of tough conditions for grant giving and lack of investment in previous years in our legacy marketing activity.

Goal 2 : Increase unrestricted fundraised income.

Result: Unrestricted fundraised income was £1079K which represented 56% of total fundraised income. This was down on the previous year largely due to there being no legacy income this year, compared to £42K legacy income last year. Many areas of fundraising have improved on their performance from the previous year notably in Major Donor, Community, Individual Giving and Corporate income.

‘Setting Purple Sectors’ was an event hosted by racing commentator Christ McCarthy. The event saw Young Epilepsy venture into the world of gaming fundraising where Chris and friends hosted an online gaming fundraising race. We will be hosting this event again next year.

Our annual Christmas fundraiser with ‘The Big Give’ was a great success raising over £65,000 towards information resources for newly diagnosed families with epilepsy. Overall, our Christmas campaign raised over £81,000, a strong result considering the sector in general struggled this Christmas.

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Fundraising (contnued)

We are delighted to report that we raised £92,000 for Purple Day this year. Not only did we see significant growth in fundraising, but we also saw good engagement with our celebrity ambassadors and fundraising partners. Awareness raising improved too with the ‘23 Faces’ social media campaign. We highlighted the experiences of 23 young people living with epilepsy, to demonstrate the 23 that are diagnosed every single day.

The inaugural Hear Her Voice event, hosted by Edith Bowman at the picturesque Cromwell Place, centred on the voices of women and girls impacted by epilepsy. We were delighted to have over 70 guests attending with a wonderful panel of speakers. We look forward to hosting Hear her Voice again in 2026.

Goal 3: Develop a St Piers income stream.

Result : With a dedicated team of St Piers fundraisers in place, St Piers fundraising income reached an impressive £103K. The return of Star Run as a Colour Run in July raised £12K.

Goal 4: Grow income from Sport and Challenge events.

Result : Income from Sport and Challenge events was £277K, slightly less than the previous year due to some large fundraiser challenges that we had in the previous year. However, all signs are positive that underlying growth is strong, and we have set ambitious targets again for the upcoming year.

Goal 5: Develop a legacy giving proposition.

Result : We have worked with agency ‘Legacy Voice’ to develop a legacy fundraising proposition. This is now being developed into a brochure and set of marketing materials for launch in 2026.

Thanks to our Donors

We are incredibly grateful to all our supporters who have donated through the past year. For every pound we raise through fundraising, 63 pence is spent on charitable causes. The remaining 37 pence is spent on enabling us to raise the next pound.

Our specific thanks go to the following funders:

Alison Hillman Charitable Trust
Anne and John Walters Charitable Trust
Bernard Lewis Family Charitable Trust
Caretech Foundation
Carfest
City Bridge Foundation
CWG Group
Dr. Martin Spillane
Farmglade Ltd
George E Neville Foundation
National Lottery Community Fund
Nevilles PLC
Next PLC

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Fundraising (contnued)

Reed Foundation
Sir Bryan Nicholson
Tandridge Golf Club
Wyfold Charitable Trust

Looking ahead

We will be continuing to grow our St Piers Fundraising opportunities including launching two new Charity of the Year Partnerships and starting our new campus capital appeal.

We will also launch a Legacy Giving campaign, using newly developed marketing resources.

Focusing on Christmas and Purple day, we will increase the value and impact of cross-team, multichannel fundraising campaigns. This will be supported by developing how we use data, insight and systems to better understand donor behaviour and optimise fundraising strategies.

We will develop the value of our donors by enhancing relationships with our mid and high value supporters

We will increase engagement and fundraising with Schools and increase income from Challenge Events, including growth in virtual events.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Land Sale and Site Development

On 18[th] December 2024 the sale of 151,025 square feet of land owned by the Charity to Audley Lingfield Grange Limited was legally completed. The sale proceeds of £6.7M are to be received in two instalments with the first amount of £2.8M having been received on 20[th] December 2024 and the second instalment being due in the financial year ending 31[st] July 2026. Until such time as all proceeds from the sale are received, the charity has retained a legal charge over the land subject to the sale. The buyer will retain £0.5M of the sales proceeds until certain planning obligations have been fulfilled by the Charity.

The proceeds from this sale are being invested in our estate for the benefit of current and future students at the School and College, and for us to continue our national working in helping children and young people with epilepsy across the United Kingdom. For the year ended 31 July 2025, the sale has resulted in an increase in our Free Reserves to £5,024k as at the year end. If the committed proceeds from the sale, along with the related development expenditure, are excluded, our Free Reserves would be £0.7m.

The refurbishment of our buildings has already commenced with plans in place for further work over the next two years.

We are improving the education facilities across our campus and expanding these to allow for more students. Our main priority though is to improve the quality of our existing facilities. Our approach has always been that learning is about more than just classroom study. We need the best facilities across our campus to ensure our students grow as individuals and can explore their capacity to live their lives to the full. Having a world class campus will truly allow our students to thrive.

Our listed buildings are also being refurbished and will part of a new central campus area called Heritage Square that will be the focal point of the whole estate.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Gender Pay Gap report

Median pay gap of -0.8%. Mean pay gap of 6.5%.

At Young Epilepsy our pay gap is lower than the national average of 7.7% (ONS, 2023).

Young Epilepsy is committed to fair pay irrespective of gender and will continue to build on actions and initiatives to improve. We will do this by:

Proactively removing barriers to those entering or returning to the employment market by offering flexible role opportunities, including term time, part time and hybrid working wherever possible.
Having transparent processes for employees to access arrangements which enable them to fulfil their caring responsibilities, such are shared parental leave, part time working and compressed hours.
Providing comprehensive development opportunities, including access to qualifications, to enable employees to progress into management level positions.
Involving our Equality, Diversity and Inclusion working group in annually reviewing the Gender Pay Report and developing actions to continue our progress in ensuring pay parity.
Job evaluation of roles by trained internal staff to ensure fair and consistent application of pay based on the content of the role.
We appoint on merit and in keeping with our values, regardless of age, race, gender, marital status, sexual orientation, disability or religion and belief and will continue to ensure that equal pay and opportunities are promoted and that all colleagues are treated fairly.

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Administrative details

Young Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust, which is a charity registered with the Charity Commission in England and Wales (registered number 311877). The registered address of Young Epilepsy is Young Epilepsy, St Piers Lane, Lingfield, Surrey, RH7 6PW.

During the year, and in the months following the year-end to publication, the Trustees were as follows:

Markus Ruetimann - Chair Simon Neville – Vice Chair Prof Helen Cross OBE - Trustee Lesley Steeds - Trustee Tamsin Jones - Trustee Dr Amit Bali - Trustee David Pierpoint - Trustee Tom Hadley - Trustee Paola Morris - Trustee Ash Tailor - Trustee Tanya Moran - Trustee Maria Rodrigues - Trustee

The Board of Trustees is responsible for the governance of Young Epilepsy and ensuring that its activities are within its charitable objectives. It sets the strategic direction, the responsibility for the execution of which is delegated to the executive management of the organisation through the Chief Executive Officer, Mark Devlin.

The executive management team is made up of:

Mark Devlin	Chief Executive (resigned 31 October 2025)
Jane Beaven	Chief Executive (appointed 12 November 2025 )
Nazar Al-Khalili	Director of Finance, IT and Facilities
Sally Brighton	Director of Fundraising and Development
Simone Hopkins	Executive Principal, St Piers School and College
	(resigned 31 August 2025)
Jeremy Law	Interim Executive Principal, St Piers School and
	College (appointed 1stSeptember 2025)
Sarah Stookes	Deputy CEO, Director of HR, Health and Safety, Health Service

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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During the year, Young Epilepsy’s bankers and professional advisers were:

Bankers

Lloyds Bank plc Mid Corporates – Education, Charities and Government 3rd Floor 25 Gresham Street London EC2V 7HN

Solicitors

Anthony Collins Solicitors 134 Edmund Street Birmingham B3 2ES

Property Lawyers

Pinsent Masons 30 Crown Place Earl Street London EC2A 4ES

External Auditors

Crowe U.K. LLP 55 Ludgate Hill London EC4M 7JW

Internal Auditors

MacIntyre Hudson 6th Floor 2 London Wall Place London EC2Y 5AU

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Structure, Governance and Management

Young Epilepsy is regulated by a scheme of the Charity Commission dated 31 October 2002, as amended by deeds of amendment dated 22 January 2004 and 21 October 2004.

The Charity is an unincorporated association governed by a scheme adopted on 31 October 2002, as amended by a Deed of Amendment on 21 October 2004 and then on 21 January 2025. This sets out the Charity’s objects, administration matters, and the powers and roles of the trustees.

The Charity has one Corporate Trustee, The National Centre for Young People with Epilepsy, a company limited by guarantee registered in England (number 00756798). The sole purpose of the Corporate Trustee is to act as the Trustee of the Charity. The Board members of the Corporate Trustee are referred to as “Trustees” in this report.

Young Epilepsy had one wholly owned subsidiary trading company in the group, which is St Piers (Services) Limited (Company registration number 04131530). Its principal activity is the development of property for the use of disabled children. Notice was given to dissolve St Piers Services Limited on the 12 December 2023.

The Board of Trustees is responsible for the governance of Young Epilepsy and ensuring that its activities are within the charitable objectives. It sets the strategic direction, the responsibility for the execution of which is delegated to the executive management through the Chief Executive Officer. Trustees can serve a maximum of two terms of three years, with a third term only in exceptional circumstances.

New Trustees are recruited through an open process and are appointed by the Board of the Corporate Trustee. Young Epilepsy regularly seeks to refresh the Trust Board with Trustees who have the experience and expertise required to enable the Charity to perform to a high level.

New Trustees receive an induction programme including mandatory safeguarding training. They are providing supporting materials including formal governance documents. Other training courses are available for Trustees as required.

The trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission’s guidance on public benefit. In planning and delivering the charity’s activities, the trustees have ensured that the charity’s aims are carried out for the public benefit. During the year, the charity provided [insert services or activities] which were accessible to [target beneficiaries], and the trustees regularly reviewed the impact and reach of these services to ensure they continued to meet public needs.

The Board of Trustees meets on a regular basis. During the year they were supported by the Education Governing Body, which oversees St Piers School and College, and six sub-committees:

Finance, Audit and Risk Committee
Fundraising and Engagement Advisory Committee
Health Services Committee
Remuneration Committee
Nominations Committee
• Education Governing Body

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Financial review

Income and expenditure

Fees from local government and health authorities were £25.1m (2024: £22.0m). This is mainly due to a greater number of students in both the school and college and small uplifts in fees agreed with the local authorities. Fundraising and legacy income at £2.2m (2024: £1.9m) also showed an increase on the previous year.

Total expenditure for the year amounted to £27.9m (2024: £25.4m). The higher costs reflect the additional students in the year. Overall, we had a net surplus after depreciation of £0.3m (2024: £0.3m deficit).

Reserves

The Charity’s Reserves Policy states that the level of free reserves should be sufficient to cover operational expenditure commitments in the short term (excluding expenditure on acquisitions and other funded projects) with consideration of operational risks and external factors. This definition is intended to provide the Charity with a way of identifying those reserves that are readily available in relatively liquid form if required by the Charity and which are necessary for operational matters. These will also include funds available through external bank borrowings and overdraft facilities. Total funds at the end of the year totaled £23,490k (2024: £17,645k).

The annual benchmark for free reserves is established during the Board’s approval of the budget. It is derived from stress testing the budget to ascertain a worst-case scenario, forming the foundation for determining the free reserves target set at £1.1m. The following reserves are held:

Restricted funds

These funds are tied to a specific activity by the funder or by the nature of the appeal and cannot be used to fund other activities by Young Epilepsy. More details of our restricted funds totaling £0.8m at the end of 2025 (2024: £0.7m) can be found in note 12 of the financial statements.

Funds representing functional fixed assets

These funds are equivalent to the net book value of the land and buildings used to support Young Epilepsy’s charitable and commercial operations. The Trustees have designated these funds totalling £21.4m at the end of 2025 (2024: £21.6m) as representing the element of our reserves that are tied to our charitable assets, including land and buildings. Consequently, these reserves are not available to be spent on ongoing activities.

Pension reserve

These funds are held to meet the future liabilities of our Final Salary Pension Scheme. The current pension scheme deficit of £3.7m (2024: £4.7m), calculated in accordance with the requirements of Section 28 of FRS 102, is shown as a liability against unrestricted funds.

The Trustees recognise that the pension scheme deficit will not crystallise in the near future and that all reserves levels will continue to be monitored closely.

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Financial Review (contnued)

An annual payment of £0.8m was made to the fund in the year to further reduce the deficit. The payment for 2025–26 will rise to £1.0m per annum with stepped increases over the next six years. This is in line with the agreement signed between the Charity and the Trustees of the pension fund for the April 2025 triennial valuation.

Free reserves

Free reserves represent unencumbered funds not allocated for specific purposes or designated as fixed assets. As at the year end, these reserves amounted to £5.0m (2024: £0.1m).

This figure includes all of the land sale proceeds apart from a retainer of £0.5m. If these proceeds along with the related development expenditure are excluded, our Free Reserves would be £0.7m. This is in line with our reserves policy. The Trustees believe that Young Epilepsy is now well placed to manage operational and financial risks successfully.

Funding

In total, 89% (£25.1m) of our income for 2024–25 was made up of fees from local authorities and other supporting bodies. This funding is used to provide education and residential care for the students at St Piers School and College and healthcare from our facility in Lingfield. The remaining funding (£3.0m) includes donations, legacies, accommodation rented to staff and interest and was used to provide national services and support functions, and to ensure the free reserves are within the target level.

Risks

The Trustees have identified the principal risks and uncertainties to which Young Epilepsy is exposed and developed relevant managing actions. These are:

Failure to generate sufficient income or efficiencies to maintain scale, financial sustainability and quality of core offers. On the income side we have increased the number of placements at school and college. The former has been extended by including a new infants’ school, which opened in May 2024. This has resulted in higher income compared with previous years. In addition, we continue to review our pricing for both new placements and existing ones and have been negotiating these with the local authorities. Higher costs and difficulties in recruiting have impacted most organisations in the UK, not just those in our sector. We have managed these by ensuring value for money in all our expenditure and by managing our staffing well (detailed below). We continue to invest in our fundraising activities to generate further funds for research and services for young people. We are also finalising our estates development programme from the proceeds of the sale of part of our land which we are reinvesting in our estate. This will help manage costs and generate income in the future.
Inability to attract and retain diverse, talented staff with the right skills and capability to deliver positive impact for students . This is managed by ensuring we are paying competitive rates to all our staff, managing our agency spend through neutral vendor, having in place a government licence for recruiting overseas workers, and providing quality training for all our employees.

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Financial Review (contnued)

Harm caused to children and young people . This is managed by focusing on safeguarding specifically by having regular refresher training for staff, reducing staff turnover in key areas; continually reviewing our safeguarding reporting thresholds and ensuring these are aligned to relevant guidance and external reporting requirements; regular monitoring and reporting of safeguarding incidents, and the analysis of any emerging trends with relevant action plans. We also implement reflective practice and the promotion of a learning environment to promote continuous improvement.
Failure to maintain or improve Residential, Health and Education regulatory ratings . This is managed by the continuation of a range of audits, unannounced visits and compliance tools across all areas; continuing to recruit high-calibre staff to relevant positions and focusing on learner progress to ensure expectations of performance and standards remain high. In November 2023, we had an Ofsted inspection of our college and received an “outstanding” rating.
Data security is not properly managed. The risk Is that there are insufficient controls that could allow data losses or breaches. This is managed by having mandatory training for all staff, especially around the NHS toolkit. We are also now Cyber Essentials Plus compliant. Risks and mitigations are managed through the Information Governance Steering Group which is chaired by Senior Information Risk Owner (SIRO).

Going concern

The Trustees arrived at this decision following a review of the financial position and financial forecasts, taking into account the levels of cash, overdraft facility, working capital, net current assets and the systems of financial control and risk management.

Young Epilepsy substantially relies on funding from local authority contracts for its current and future commitments and we seek to manage the risks around this income stream. The Trustees believe the contracts we have in place with local authorities will be fulfilled and the planned income for the coming years will be received.

The going concern basis used in the preparation of these financial statements is based upon the expectation that Young Epilepsy’s net income or net expenditure are at a level to ensure reserves and cash flow requirements are met.

Based on this work, the Board considers Young Epilepsy’s current and forecast cash resources to be sufficient to cover the working capital requirements of the Charity for at least 12 months from the date of signing the accounts and has determined that it remains appropriate to continue to adopt the going concern basis in preparing the accounts. The Trustees have not identified any material uncertainties relating to going concern.

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Financial Review (contnued)

Executive pay

The Remuneration Committee reviews executive performance and remuneration annually. We aim to pay salaries at the median level for similar organisations within the not-for-profit sector, and to ensure that increases are consistent with those awarded in the overall organisational review of remuneration.

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Statement of Trustees’ responsibilities

The Trustees are responsible for preparing the Annual Report and the financial statements in accordance with applicable law and regulations.

Charity law requires the Trustees to prepare financial statements for each financial year in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under charity law, the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the group and the Charity and of the incoming resources and application of resources, including the income and expenditure, of the group and the Charity for that period.

In preparing these financial statements, the Trustees are required to:

select suitable accounting policies and then apply them consistently;
make judgements and accounting estimates that are reasonable and prudent;
state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements; and
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the Charity will continue in business.

The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the Charity’s transactions and disclose with reasonable accuracy at any time the financial position of the Charity and enable them to ensure that the financial statements comply with the Charities Act 2011. They are also responsible for safeguarding the assets of the Charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Markus Reutimann

Markus Ruetimann

Date: 19 December 2025

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Independent Auditor’s Report to the Trustees of The National Centre for Young People with Epilepsy Charitable Trust

Opinion

We have audited the financial statements of The National Centre for Young People with Epilepsy Charitable Trust for the year ended 31 July 2025 which comprise the statement of financial activities, the balance sheet, the statement of cash flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion the financial statements:

give a true and fair view of the state of the charity’s affairs as at 31 July 2025 and of its incoming resources and application of resources, including its income and expenditure for the year then ended;
have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and
have been prepared in accordance with the requirements of the Charities Act 2011.

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charity in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charity's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue. Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

Other information

The trustees are responsible for the other information contained within the annual report. The other information comprises the information included in the annual report, other than the financial statements and our auditor’s report thereon. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

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Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Matters on which we are required to report by exception

We have nothing to report in respect of the following matters in relation to which the Charities (Accounts and Reports) Regulations 2008 require us to report to you if, in our opinion:

the information given in the financial statements is inconsistent in any material respect with the trustees’ report; or
sufficient accounting records have not been kept; or
the financial statements are not in agreement with the accounting records and returns; or
we have not received all the information and explanations we require for our audit

Responsibilities of trustees

As explained more fully in the trustees’ responsibilities statement set out on page 30, the trustees (who are also the directors of the charity for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charity’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charity or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

We have been appointed as auditor under section 144 the Charities Act 2011 and report in accordance with the Act and relevant regulations made or having effect thereunder.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below:

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor’s report.

Extent to which the audit was considered capable of detecting irregularities, including fraud

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We identified and assessed the risks of material misstatement of the financial statements from irregularities, whether due to fraud or error, and discussed these between our audit team members including internal specialists. We then designed and performed audit procedures responsive to those risks, including obtaining audit evidence sufficient and appropriate to provide a basis for our opinion.

We obtained an understanding of the legal and regulatory frameworks within which the charity operates, focusing on those laws and regulations that have a direct effect on the determination of material amounts and disclosures in the financial statements, including financial reporting legislation and the Charity SORP (FRS 102), and tax regulations. We assessed the required compliance with these laws and regulations as part of our audit procedures on the related financial statement items.

In addition, we considered provisions of other laws and regulations that do not have a direct effect on the financial statements but compliance with which might be necessary to the charity’s ability to operate or to avoid a material penalty. Auditing standards limit the required audit procedures to identify non-compliance with these laws and regulations to enquiry of the Trustees and other management and inspection of regulatory and legal correspondence, if any.

We also considered the opportunities and incentives that may exist within the charity for fraud. We identified the greatest risk of material impact on the financial statements from irregularities, including fraud, to be override of controls by management. Our audit procedures to respond to these risks included enquiries of management, internal audit, Finance and the Audit & Risk Committee about their own identification and assessment of the risks of irregularities, sample testing on the posting of journals, reviewing regulatory correspondence with the Charity Commission, and reading minutes of meetings of those charged with governance.

Owing to the inherent limitations of an audit, there is an unavoidable risk that we may not have detected some material misstatements in the financial statements, even though we have properly planned and performed our audit in accordance with auditing standards. For example, the further removed non-compliance with laws and regulations (irregularities) is from the events and transactions reflected in the financial statements, the less likely the inherently limited procedures required by auditing standards would identify it.

In addition, as with any audit, there remained a higher risk of non-detection of irregularities, as these may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal controls. We are not responsible for preventing non-compliance and cannot be expected to detect non-compliance with all laws and regulations.

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Use of our report

This report is made solely to the charity’s trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. Our audit work has been undertaken so that we might state to the charity’s trustees those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charity and the charity’s trustees as a body, for our audit work, for this report, or for the opinions we have formed.

Vincent Marke

Senior Statutory Auditor

For and on behalf of

Crowe U.K. LLP

Statutory Auditor

London, United Kingdom

Crowe U.K. LLP is eligible for appointment as auditor of the charity by virtue of its eligibility for appointment as auditor of a company under section 1212 of the Companies Act 2006.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Statement of Financial Activities of the Charity for the year ended 31 July 2025

Income from: Note Donations and legacies 3 *Charitable activities* Fees – local authorities and other supporting bodies *Investment income* *Other trading activities* Income from rents and meals Other income 17 Total Expenditure on: *Raising funds* Cost of raising funds *Charitable activities* Educational, medical and residential care Total 5 Net income/(expenditure) Transfers between funds 13 Other recognised gains and losses: Gain on disposal of land *Actuarial gain / (loss) on defined benefit pension* *scheme* 11 Net movement in funds Total funds brought forward Total funds carried forward	2025 Unrestricted funds 956 25,148 - 397 427 26,928 1,122 1,122 26,768 160 55 5,101 467 5,783 16,958 22,741 £’000 25,646	2025 Restricted funds 1,239 - - - - 1,239 - - 1,122 117 (55) - - 62 687 749 £’000 1,122	2025 Total Funds 2,195 25,148 - 397 427 28,167 1,122 1,122 27,890 277 - 5,101 467 5,845 17,645 23,490 £'000 26,768	2024 Unrestricted funds £’000 960 22,020 - 379 816 24,175 697 697 23,900 24,597 (422) 72 - (482) (832) 17,790 16,958	2024 Restricted funds £’000 926 - - - - 926 - - 819 819 107 (72) - - 35 652 687	2024 Total Funds £'000 1,886 22,020 - 379 816
						25,101
						697
						697 24,719
						25,416
						(315) - - (482)
						(797) 18,442
						17,645

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Charity Balance Sheet Notes Fixed assets Tangible assets 8 Current assets Debtors 9 Cash at bank and in hand Creditors within 1 year 10 Net current assets Total assets less current liabilities and net assets excluding pension scheme liability Defined benefit pension scheme liability 11 Net assets including pension scheme liability Funds Restricted funds: Fundraising Projects 12 Unrestricted funds: Fixed Assets 13 General Unrestricted Funds 13 Pension reserve 13 Total funds 14	£000s £000s 21,385 21,385 7,082 2,227 9,309 (3,534) (3,534) 5,775 27,160 (3,670) 23,490 749 749 21,385 5,026 (3,670) 22,741 23,490 2025	£000s £000s 21,556 21,556 3,917 - 3,917 (3,123) (3,123) 794 22,350 (4,705) 17,645 687 687 21,556 107 (4,705) 16,958 17,645 2024

The financial statements were approved by the Board and authorised for issue on the

Markus Reutimann

Markus Ruetimann

Chair of Trustees

The notes on pages 38 to 59 form part of these financial statement

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Cashflow Statement Note Cash flows from operating activities: *Net cash used in operating activities* 15 Cash flows from investment activities: Proceeds from land sale Interest received Purchase of tangible fixed assets Net cash used in investment activities *Cash flows from financing activities:* Interest paid Net cash flows used in/from financing activities Cash and cash equivalents brought forward Cash and cash equivalents carried forward Change in cash and cash equivalents in the reporting period	2025 £’000 749 2,834 221 (1,487) 1,568 - - 2,317 (90) 0 2,227	2024 £’000 427 1 (1,387)
		(1,386) (3)
		(3) (962) 872
		(90)

The Charity has a bank overdraft facility in place which at 31 July 2024 £90K was used to fund working capital. The overdraft is repayable on demand and forms an integral part of the Charity’s cash management and is included as a component of cash and cash equivalents for the purpose of the statement of cash flows.

No reconciliation of net debt has been prepared as the Charity only holds cash and cash equivalents. The notes on pages 38 to 59 form part of these financial statements.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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Notes to the Financial Statements year ended 31 July 2025

1. Charity status

The Charity’s sole trustee is The National Centre for Young People (“the corporate Trustee”), a company which is limited by guarantee, the liability of each member in the event of the company winding up is limited to £1. The registered office of the corporate Trustee is St Piers Lane, Lingfield, Surrey RH7 6PW. The Charity is registered with the Charity Commission and constitutes a public benefit entity as defined by FRS102.

2. Accounting policies

a) Basis of accounting

The financial statements have been prepared under the historical cost convention, and are in accordance with the Statement of Recommended Practice: Accounting and reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (the ‘SORP’), FRS 102: The Financial Reporting Standard applicable in the UK and Ireland (‘FRS 102’) (2nd Edition), the Charities Act 2011 and UK Generally Accepted Practice as it applies from 1 January 2019.

The preparation of the financial statements in accordance with FRS102 requires the Trustees to make judgements, estimates and assumptions that affect the application of policies and reported amounts in the financial statements. The areas where assumptions or estimates were significant to the financial statements are disclosed in note 2 below.

b) Going concern

The financial statements are drawn up on the going concern basis, which assumes Young Epilepsy will continue in operational existence for the foreseeable future. As at the year-end Young Epilepsy had free reserves of £5.0m (2024: £0.1m). The Trustees believe that Young Epilepsy is now well placed to manage operational and financial risks successfully.

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Accounting policies (continued)

Based on a detailed review and analysis of the forecasts and projections, the Board considers Young Epilepsy’s current and forecast cash resources to be sufficient to cover the working capital requirements of the Charity for at least 12 months from the date of signing the accounts and has determined that it remains appropriate to continue to adopt the going concern basis in preparing the accounts. The Trustees have not identified any material uncertainties relating to going concern.

c) Income

Income is accounted for on an accruals basis, income received with gift aid is accounted for gross. Fee income from contracts is accounted for in the year in which the service is provided. Legacy income is recognised when there is entitlement to the funds, probability of receipt and the amount due is able to be measured reliably. Grants receivable based on performance are accounted for as the Charity earns the right to consideration by its performance. Where income is received in advance of performance, its recognition is deferred and included in creditors. Where entitlement occurs before income is received, the income is accrued.

The value of gifts in kind, donated services and donated facilities where material are recognised as income when the Charity has control over the item or received the service, any conditions associated with the donation has been met, the receipt of economic benefit from the use by the Charity is probable and that economic benefit can be measured reliably. This is in accordance with the Charities SORP (FRS102).

d) Expenditure

Expenditure is accounted for on an accruals basis. Costs are attributed directly to activities where possible on either actual or estimated time basis. Indirect costs are shown as support costs, which are not directly attributable to a single activity e.g. facilities, comms, finance, IT, human resources, information governance etc. where these relate to the infrastructure in which charitable services are provided, including gaining support for the furtherance of the Charity’s objectives. The method of allocation of costs is based on staff costs, headcount and organisation costs. Governance costs comprise those costs incurred in the governance of the Charity and its assets and are primarily associated with constitutional and statutory requirements.

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Accounting policies (continued)

Termination payments

Termination benefits are recognised as an expense and a liability when the entity is demonstrably committed to either:

terminating the employment of an employee or group of employees before the normal retirement date; or
providing termination benefits as a result of an offer made to encourage voluntary redundancy.

The entity is considered demonstrably committed when it has a detailed formal plan for the termination and is without realistic possibility of withdrawal from the plan.

Termination benefits are measured at the best estimate of the expenditure required to settle the obligation at the reporting date. Where termination benefits are due more than 12 months after the end of the reporting period, they are discounted to present value using an appropriate discount rate.

Where there is uncertainty about the number of employees who will accept an offer of termination benefits, a contingent liability is disclosed in accordance with Section 21 of FRS 102, unless the possibility of an outflow is remote

e) Fixed assets and depreciation

Capital assets costing below £1,000 have been written off in the year in which the expenditure is incurred. Assets above £1,000 are capitalised. All building work and capital improvements that are not completed at the year-end are included under “Assets Under Construction”. These are moved to “Freehold Land and Buildings” on completion. Depreciation has been calculated using the straight-line method and has been provided on tangible and intangible fixed assets at the following rates, which are anticipated to reduce their cost to residual value by the end of their expected useful lives. Land has not been depreciated.

Assets are derecognised when the risks and rewards of ownership have passed. In the case of the sale of land, the disposal has been recognised in the year ended 31 July 2025.

Plant and Machinery 20% on cost Computer Software 20% on cost Computer Equipment 20% on cost Motor Vehicles 25% on cost Buildings 1%–7% on cost

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Accounting policies (continued)

Within Buildings, individual components are depreciated over the useful economic life as follows:

Construction	100 years
Roof	55 years
Lift	25 years
Bathroom	30 years
Windows & Doors	30 years
Heating	30 years
Kitchen	20 years
Air Conditioning	15 years
Boiler	15 years
Electrical	20 years

Donated fixed assets are capitalised at their open market values at time of donation and depreciated in line with the above rates.

f) Pensions

The Charity has three principal pension schemes for staff: the St Piers Lingfield Retirement Benefits Scheme, the Teachers’ Pension Scheme (TPS) and The Pensions Trust. The first two schemes are defined benefit schemes, which are externally funded and contracted out of the State Second Pension.

St Piers Lingfield Retirement Benefits Scheme

During the year, the Charity operated a defined benefit scheme, which had been closed to new members on 7 April 2000, hence any liabilities will be restricted to current members only, and this number will decline over time. On 30 November 2022, this scheme was closed to new accrual, so the remaining active members will no longer accrue benefits.

The difference between the fair value of the assets held in the St Piers Lingfield Retirement Benefits Scheme and the scheme’s liabilities measured on an actuarial basis using the projected unit method is recognised in the Charity’s balance sheet as a pension scheme asset or liability as appropriate. The pension scheme balance is recognised net of any deferred tax balance.

The Charity is currently undergoing its tri-annual valuation of this pension scheme as at 5 April 2025. The results must be finalised by 5 July 2026.

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Accounting policies (continued)

Teachers’ Pension Scheme

Pension costs in respect of the TPS charged to the Statement of Financial Activities are equal to the contributions paid to this arrangement. The contribution rate is calculated in such a way that it is a substantially level percentage of current and future pensionable payroll. Not less than every four years, with a supporting interim valuation in between, the Government Actuary conducts a formal actuarial review of the TPS in order to specify the level of future contributions.

Changes in the defined benefit pension scheme asset or liability arising from factors other than cash contributions by the Charity are charged to the SOFA in accordance with FRS 102 section 28. Under the definitions set out in Financial Reporting Standard 102 section 28, the Teachers’ Pension Scheme is a multiemployer pension scheme. The Charity is unable to identify its share of the underlying assets and liabilities of the scheme. Accordingly, the Charity has taken advantage of the exemption in FRS 102 section 28 and has accounted for its contributions to the scheme as if it were a defined contribution scheme.

TPT Retirement Solutions – Defined Benefits Scheme

The charity participates in the scheme, a multi-employer scheme which provides benefits to some 638 nonassociated participating employers. The scheme is a defined benefit scheme in the UK. It is not possible for the charity to obtain sufficient information to enable it to account for the scheme as a defined benefit scheme. Therefore, it accounts for the scheme as a defined contribution scheme.

The scheme is subject to the funding legislation outlined in the Pensions Act 2004, which came into force on 30 December 2005. This, together with documents issued by the Pensions Regulator and Technical Actuarial Standards issued by the Financial Reporting Council, set out the framework for funding defined benefit occupational pension schemes in the UK.

TPT Retirement Solutions – Defined Contribution Scheme

A defined contribution (money purchase) pension scheme is available to all members of staff.

g) Fund accounting

Where funds are received for specific purposes set out by the donor or implied by the terms of appeal, these are shown as restricted income in the Statement of Financial Activities. Expenditure for the purposes specified is applied against the income and any amounts unexpended at the balance sheet date are shown within restricted funds. Amounts used to purchase tangible fixed assets are transferred to funds representing functional fixed assets at the time the assets are acquired.

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Accounting policies (continued)

Accounting estimates and key management judgements

Accounting estimates and judgements

In preparing the financial statements within the accounting frameworks set out in note 2, the Trustees are required to adopt those accounting policies most appropriate to the Charity’s circumstances with a view to presenting fairly the Charity’s financial position. In determining and applying accounting policies Trustees make estimates and judgements and the matters set out below are considered to be the most important in understanding the judgements that have been involved in preparing the financial statements and the uncertainties that could impact the amounts reported.

Sale of land

During the year, The Charity completed on the sale of part of its land to Audley Group. £2.8m was received during the year with the balance being paid after the year end.

At the end of the year there is £2.8M still to be paid by Audley Group for the sale of the land. Management are of the view that this recoverable in full. Management are of the opinion that the risks and rewards of ownership of the land sale have been transferred to the purchaser.

Estimation of assets useful lives

The charge in respect of periodic depreciation is derived from determining an estimate of an asset’s expected useful life and the expected residual value at the end of its life. The estimates of the lives by asset category are set out in note 2(f). The useful lives and residual values are determined by management at the time the asset is acquired and reviewed annually for appropriateness.

Provision for doubtful debts

Provisions have been made against specific invoiced debts where the collectability of these debts is uncertain taking into account their age, activity on the account and any correspondence.

Actuarial assumptions in respect of defined benefit pension scheme

The application of actuarial assumptions relating to the Defined Pension Scheme is incorporated in the financial statements in accordance with FRS102. In applying FRS102, advice has been taken from an independent qualified actuary. In this context, significant judgement is exercised in a number of areas, including future change.

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The Teachers’ Pension Scheme is a defined benefit scheme in the UK. In the opinion of the Trustees’, it is not possible for the charity to obtain sufficient information to enable it to account for the scheme as a defined benefit scheme. Therefore, it accounts for the scheme as a defined contribution scheme.

3. Donations and Legacies

Individual giving Corporate Donors Project and residential house funds Policy and Advocacy Support and inclusion St Piers & Campus Appeal Research funds Education Funding Agency (EFA) Other Legacies Total Donations and Legacies	£'000 £'000 £'000 Unrestricted Restricted Total 158 - 158 70 - 70 728 - 728 - - - - 217 217 - 309 309 - 63 63 - 263 263 - 339 339 - 48 48 956 1,239 2,195 - - - 956 1,239 2,195 2025	£'000 £'000 £'000 Unrestricted Restricted Total 148 - 148 98 - 98 672 - 672 - 74 74 - 107 107 - 127 127 - - - - 197 197 - 277 277 - 144 144 2024
		918 926 1,844 42 - 42
		960 926 1,886

The legacies are final payments in respect of legacies which were substantially recognised in previous years.

4. Employees

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Staff costs consist of: Wages & Salaries Social security Pension Costs	2025 2024 £'000 £'000 16,948 15,781 1,807 1,435 1,402 1,194 20,157 18,410

Included within wages and salaries are agency costs of £680,739 (2024 – £991,400) and termination payments of £64,859 (2024 - £113,333) incurred during the year.

Employees (contnued) The average number of employees during the period was: Teaching and Education Support Staff Residential Care Medical and Clinical Staff Other staff Full time equivalent Employer's pension cost comprise the following: Teachers' pension scheme Defined contribution scheme Deficit repayment for defined benefit scheme		2025 No. 259 180 33 96 568 376 2025 £'000 392 558 452 1,402	2024 No. 242 186 37 93 2024 £'000 290 513 391 1,194
			558

			366

Number of staff with total remuneration (including settlements and benefits but excluding pensions) greater than £60,000 in bands of £10,000:

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£60,001-£70,000 £70,001-£80,000 £80,001-£90,000 £90,001-£100,000 £100,001-£110,000 £110,001-£120,000	2025 No. 8 7 1 1 1 3 21	2024 No. 10 2 - 2 2 1
		17

Employees (contnued)

Contributions made in the year for the provision of the defined contribution scheme on behalf of 14 (2024 – 13) higher paid employees was £46,383 (2024 - £64,730).

There are 5 (2024 – 2) higher paid staff to whom retirement benefits are accruing under the defined benefit schemes.

The total remuneration paid to the Executive team amounted to £673,690 (2024 - £704,886). There are no employees who received employee benefits (excluding employer pension costs) of more than £60,000.

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5. Total Expenditure

Staff costs Other direct expenditure Support staff costs Support costs Auditors' remuneration Depreciation 2025 Total 2024 Total	Education, Medical and Residential Care £000 15,689 1,404 3,916 5,058 50 957 27,074 24,719	Fundraising £000 551 265 0 0 0 0 816 697	2025 £000 16,240 1,669 3,916 5,058 50 957 27,890 25,416	2024 £000 14,693 1,219 3,692 4,645 96 1,071
				25,416

Auditor’s remuneration relates solely to audit related services and is inclusive of Value Added Tax where not recovered. Governance costs amounting to £135,445 (2024 – £194,852), which relate to recruitment, audit, legal advice for trustees and costs associated with constitutional and statutory requirements. Direct costs, where relevant, are allocated to the fundraising team, but all other support costs are allocated to Education, Medical and Educational Care, which generate the majority of our income.

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Total Expenditure (continued)

Detailed breakdown of support costs

Facilities CEO office Communications Policy & Advocacy Finance IT HR Health & Safety Information Gov. Safeguarding	Charitable activities Fund- raising Total 3,086,161 31,599 3,117,760 894,760 12,718 907,478 415,915 3,543 419,458 183,679 1,250 184,929 2,947,288 45,498 2,992,786 823,127 69,950 893,077 1,460,549 53,715 1,514,264 84,446 308 84,754 43,095 211 43,306 110,895 609 111,504 10,049,915 219,401 10,269,316 2024-25	Charitable activities Fund- raising Total Basis of apportionment 3,164,810 32,404 3,197,214 Headcount 922,283 13,109 935,392 Cost 434,267 3,699 437,966 Headcount 151,989 1,034 153,023 Headcount 2,588,608 39,961 2,628,569 Headcount 753,457 64,029 817,486 Cost 1,309,557 48,162 1,357,719 Headcount 75,328 275 75,603 Salary 36,100 177 36,277 Salary 105,999 582 106,581 Salary 9,542,398 203,432 9,745,830 2023-24

6. Trustees' transactions

The Trustees do not receive any remuneration in respect of their services. 12 Trustees (2024 – 7) received expenses reimbursed in line with the Trustees Expenses Policy amounting to £1,009 (2024 – £674). for travel and accommodation. Further costs incurred on behalf of Trustees relate to Trustees’ indemnity insurance costs of £1,492 (2024 – 1,640).

7. Taxation

The organisation is a charity within the meaning of Para 1 Schedule 6 Finance Act 2010. Accordingly, the Charity is potentially exempt from taxation in respect of income or capital gains within categories covered by Chapter 3 of Para 11 of the Corporate Tax Act or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes. The subsidiary trading company makes qualifying donations of taxable profit to the Charity to the full extent allowable. Unless material any corporation tax liability arising in the subsidiary is included within the expenditure by the Group.

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8. Tangible and intangible assets

				Assets
	Plant &	Computer	Computer	under
Freehold	Machinery	Software	Equipment	construction	Vehicles	Total
Cost £000's At 1 August 2024 40,121 Additions 181 Transfers 451	£000's 1,369 47 105	£000's 710 9 8	£000's 709 209 -	£000's 533 691 (564)	£000's 406 228 -	£000's 43,848 1,365 -
Disposals (1,250) At 31 July 2025 39,503 Depreciation At 1 August 2024 20,344 Charge 650 Disposals (702) At 31 July 2025 20,292 NBV Current year 19,211	(102) 1,419 642 60 (102) 600 819	(86) 641 498 85 (75) 508 132	(121) 797 415 129 (101) 443 354	- 660 - - - - 660	(87) 547 393 32 (87) 338 209	(1,646) 43,567 22,292 956 (1,067) 22,181 21,385
NBV prior year 19,777	727	212	294	533	12	21,556

Freehold land and buildings have been included in the balance sheet at historic cost less the depreciation charged on the buildings. All assets are held for direct charitable use.

9. Debtors

Trade debtors Other debtors Accrued income & prepayments	2025 2024 £'000 £'000 2,234 2,519 3,186 81 1,662 1,317 7,082 3,917 Charity

The £2.8m due from Audley Group is included within Other debtors.

All amounts shown under trade debtors fall due for payment within one year.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

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10. Creditors

10. Creditors
	2025	2024
	£'000	£'000
Trade creditors	1,146	1,270
Bank overdraft	-	90
Accruals	1,691	1,471
Deferred income	697	292
	3,534	3,123

Deferred income breakdown

Deferred Income

Opening Balance Movement YE Adjustment 2023-24 YE Adjustment 2024-25 Closing balance	2025 2024 £'000 £'000 (292) (88) (480) 35 239 (239) (164) -
	(697) (292)

The overdraft at the end of July 2024 was covered by an agreed overdraft. This is secured on two properties.

11. Pension Schemes

St Piers Lingfield Retirement Benefits Scheme

The Charity operates the St Piers Lingfield Retirement Benefits Scheme (“the Scheme”), a UK registered trustbased pension scheme that provides defined benefits. Pension benefits are linked to the members’ final pensionable salaries and service at their retirement (or date of leaving if earlier). This scheme was closed to new members on 7 April 2000, hence any liabilities will be restricted to current members only, and this number will decline over time. On 30 November 2022, this scheme was closed to new accrual so the remaining active members will no longer accrue benefits.

Pension Schemes (continued)

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The Pension Scheme Trustee is responsible for running the Scheme in accordance with the Scheme’s Trust Deed and Rules, which sets out their powers. The Pension Scheme Trustee is required to act in the best interests of the beneficiaries of the Scheme. There are three categories of pension scheme members:

active members: currently employed by the Employer;
deferred members: former active members of the Scheme who are not yet in receipt of a pension; and
pensioner members: in receipt of pension.

The Pension Scheme Trustee is required to carry out an actuarial valuation every 3 years. The last actuarial

valuation of the Scheme was performed by the Scheme Actuary for the Pension Scheme Trustee as at 5 April 2022. This valuation revealed a funding shortfall of £6,008,000. The Employer has agreed to pay regular contributions of £14,000 per month to cover Scheme expenses. In respect of the deficit in the Scheme as at 5 April 2022, the Employer has agreed to pay the following contributions:

Year beginning	1	August	Contributions
			£’000
2023			630
2024			842
2025			969
2026			943
2027			652
2028			672
2029			692

The Charity has also agreed to pay additional contributions equal to 20% of audited Net Income in excess of £0.5m each year. The additional contribution in any year will be limited in value to the remaining payments outstanding on the July 2023 Recovery Plan, or such subsequent Recovery Plan as is put in place, less any additional contributions already made under the 2023 agreement.

The Charity therefore expects to pay a minimum of £1,126,417 to the Scheme during the accounting year beginning 1 August 2025 to the St Piers Lingfield Retirement Benefit Scheme.

The results of the most recent formal actuarial valuation as at 5 April 2022 have been updated to 31 July 2025 by a qualified independent actuary. The assumptions used were as follows:

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

_____________

Pension schemes (continued)he
	2025	2024
*Significant actuarial assumptions:*
Discount rate	5.7%	5.0%
Inflation (RPI)	3.1%	3.4%
Inflation (CPI)	3.1%	2.75%
*Other actuarial assumptions:*
Rate of increase in salaries	2.45%	2.75%
Rate of increase in pensions:
Non-Pensioners – Pre-05 benefits	3.20%	3.20%
Non-Pensioners – Post-05 benefits	2.50%	2.50%
Pensioners – Pre-05 benefits	3.10%	3.20%
Pensioners – Post-05 benefits	2.50%	2.50%
Revaluation of deferred pensioners in excess of GMP	2.45%	2.75%

The demographic mortality assumptions adopted at 31 July 2025 imply the following life expectancies at age 65:

65:
	2025	2024
*Mortality assumptions:*
Mortality	S3PMA/S3PF	S3PMA/S3PFA
	A CMI 2024	CMI 2023
	1.25%	1.25%
*Life expectancies:*
Male currently age 45 at 65	22.4 years	22.1 years
Female currently age 45 at 65	24.9 years	24.8 years
Male currently age 65	21.1 years	20.8 years
Female currently age 65	23.5 years	23.3 years

Under FRS102 the expected return on the schemes assets is now assessed using the discount rate underlying the valuation of the schemes liabilities, which is based on AA rated corporate bond yields.

At 31 July 2025, the discount rate used to calculate the schemes liabilities and hence the assumed rate of return on the Schemes assets was 5.7% p.a. (2024 – 5.0%)

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

_____________

Pension schemes (continued) Value at 2025 Assets % of total £’000 Scheme The fair value of the assets in the scheme were: Bonds - - Gilts 2,543 26% Cash 153 2% Annuities 723 7% Other 6,552 65% Total market value of assets 9,971 Present value of scheme liabilities (13,641) Net pension liability (3,670) 2025 £’000 The actual return on assets over the period was (30) Interest income 504 Return on assets less interest income (534) Total return of assets (30) *Analysis of changes in the value of the scheme liabilities over the year:* Opening present value of the defined benefit obligation Interest cost Benefits paid Actuarial (loss)/gain Closing present value of the defined benefit obligation	Pension schemes (continued) Value at 2025 Assets % of total £’000 Scheme The fair value of the assets in the scheme were: Bonds - - Gilts 2,543 26% Cash 153 2% Annuities 723 7% Other 6,552 65% Total market value of assets 9,971 Present value of scheme liabilities (13,641) Net pension liability (3,670) 2025 £’000 The actual return on assets over the period was (30) Interest income 504 Return on assets less interest income (534) Total return of assets (30) *Analysis of changes in the value of the scheme liabilities over the year:* Opening present value of the defined benefit obligation Interest cost Benefits paid Actuarial (loss)/gain Closing present value of the defined benefit obligation	Value at 2024 Assets % of total £’000 Scheme - - 3,130 31% 206 2% 802 8% 6,044 59% 10,182 (14,887) (4,705) 2024 £’000 509 507 2 509 2025 £’000 2024 £’000 (14,887) (14,830) (720) (727) 965 1,154 1,001 (484) (13,641) (14,887)
		2025 £’000 (14,887) (720) 965 1,001 (13,641)

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

_____________

Pension schemes (continued) *Analysis of changes in the value of the scheme assets over the year:* 2025 £’000 Opening market value of Scheme assets 10,182 Expected (loss)/gain on Scheme assets (excluding interest income) (534) Interest income 504 Employer contributions 996 Benefits paid (965) Administration expenses (212) Closing market value of Scheme assets 9,971 2025 £’000 £’000 *Analysis of the amounts charged to Statement:* *of Financial Activities:* Administration expenses (212) Total service cost (212) Net finance charge (216) Total pension cost charged to Statement of Financial Activities (428) 2025 £’000 *Analysis of actuarial (loss)/gain recognised in the Statement of Financial* *Activities:* Actual (loss)/gain on assets less interest (534) Actuarial gain/(loss) on defined benefit obligation 1,001 Total gain/(loss) recognised in the Statement of Financial Activities 467	Pension schemes (continued) *Analysis of changes in the value of the scheme assets over the year:* 2025 £’000 Opening market value of Scheme assets 10,182 Expected (loss)/gain on Scheme assets (excluding interest income) (534) Interest income 504 Employer contributions 996 Benefits paid (965) Administration expenses (212) Closing market value of Scheme assets 9,971 2025 £’000 £’000 *Analysis of the amounts charged to Statement:* *of Financial Activities:* Administration expenses (212) Total service cost (212) Net finance charge (216) Total pension cost charged to Statement of Financial Activities (428) 2025 £’000 *Analysis of actuarial (loss)/gain recognised in the Statement of Financial* *Activities:* Actual (loss)/gain on assets less interest (534) Actuarial gain/(loss) on defined benefit obligation 1,001 Total gain/(loss) recognised in the Statement of Financial Activities 467	Pension schemes (continued) *Analysis of changes in the value of the scheme assets over the year:* 2025 £’000 Opening market value of Scheme assets 10,182 Expected (loss)/gain on Scheme assets (excluding interest income) (534) Interest income 504 Employer contributions 996 Benefits paid (965) Administration expenses (212) Closing market value of Scheme assets 9,971 2025 £’000 £’000 *Analysis of the amounts charged to Statement:* *of Financial Activities:* Administration expenses (212) Total service cost (212) Net finance charge (216) Total pension cost charged to Statement of Financial Activities (428) 2025 £’000 *Analysis of actuarial (loss)/gain recognised in the Statement of Financial* *Activities:* Actual (loss)/gain on assets less interest (534) Actuarial gain/(loss) on defined benefit obligation 1,001 Total gain/(loss) recognised in the Statement of Financial Activities 467	Pension schemes (continued) *Analysis of changes in the value of the scheme assets over the year:* 2025 £’000 Opening market value of Scheme assets 10,182 Expected (loss)/gain on Scheme assets (excluding interest income) (534) Interest income 504 Employer contributions 996 Benefits paid (965) Administration expenses (212) Closing market value of Scheme assets 9,971 2025 £’000 £’000 *Analysis of the amounts charged to Statement:* *of Financial Activities:* Administration expenses (212) Total service cost (212) Net finance charge (216) Total pension cost charged to Statement of Financial Activities (428) 2025 £’000 *Analysis of actuarial (loss)/gain recognised in the Statement of Financial* *Activities:* Actual (loss)/gain on assets less interest (534) Actuarial gain/(loss) on defined benefit obligation 1,001 Total gain/(loss) recognised in the Statement of Financial Activities 467	2024 £’000 10,197 2 507 794 (1,154) (164) 10,182 2024 £’000 £’000 (164) (164) (220) (384) 2024 £’000 2 (484) (482)



		467

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

_____________

Pension schemes (continued)

*Movement in deficit during the year: Deficit in scheme at the beginning of the year Movement in year: Administration expenses Net finance charge Contributions Return on assets excluding interest income Actuarial (loss)/gain (Deficit) in scheme at end of year*	2025 £’000 (4,705) (212) (216) 996 (534) 1,001 (3,670)	2024 £’000 (4,633) (164) (220) 794 2 (484)
		(4,705)

Teachers’ Pension Scheme

Under the definitions set out in Financial Reporting Standard 102 section 28, the Teachers’ pension scheme (TPS) is a multi-employer pension scheme. As the TPS is underwritten by central government and the Charity has no future obligation to make contributions to the scheme, this is effectively a defined contribution scheme in so far as it affects the Charity. As a result, contributions to this scheme are accounted for as if the scheme was a defined contribution scheme.

The Charity has set out below the information available on the Scheme and the implications for the Charity in terms of the anticipated contribution rates.

The Teachers’ Pension Scheme is a statutory, contributory, unfunded, defined benefit scheme. The regulations under which the TPS operates are the Teachers’ Pensions Regulations 1997, as amended. Contributions are credited to the Exchequer on a “pay as you go” basis under arrangements governed by the Superannuation Act 1972. A notional asset value is ascribed to the Scheme for the purposes of determining contribution rates.

The Government Actuary’s report of October 2023 revealed that the total liabilities of the Scheme (pensions currently in payment and the estimated cost of future benefits) amounted to £262.0 billion. The value of the assets (estimated future contributions together with the proceeds from the notional investments held at the valuation date) was £222.2 billion. The assumed real rate of return is 1.7% in excess of prices. The rate of real earnings growth is assumed to be 0.4%.

NTL vs Virgin Media court case

The management has considered the issue (alongside their actuary), and do not believe it necessary (nor possible) to recognise any additional liability. The actuary’s view is that additional liability would be recognised at the point that there is certainty that benefit changes will occur and that this certainty does not currently exist (indeed, given the proposed provisions of the Pensions Bill, the likelihood that benefit improvements will be required is now considered to be low).

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

_____________ Pension schemes (continued)

TPT Retirement Solutions – Defined Benefits Scheme

The scheme is classified as a “last man standing arrangement”. Therefore, the charity is potentially liable for other participating employers’ obligations if those employers are unable to meet their share of the scheme deficit following withdrawal from the scheme. Participating employers are legally required to meet their share of the scheme deficit on an annuity purchase basis on withdrawal from the scheme.

A full actuarial valuation for the scheme was carried out at 30 September 2023. This valuation showed assets of £514.9m, liabilities of £531.0m and a deficit of £16.1m. To eliminate this funding shortfall, the Trustees have asked the participating employers to pay additional contributions to the scheme as follows:

Deficit contributions

From 1 April 2025 to 31 March 2028: £2,100,000 per annum (payable monthly), unless a concession has been agreed with the Trustees the term to 31 March 2028 applies. This valuation showed assets of £800.3m, liabilities of £831.9m and a deficit of £31.6m. To eliminate this funding shortfall, the Trustees asked the participating employers to pay additional contributions to the scheme as follows:

From 1 April 2022 to 31 January 2025: £3,312,000 per annum (payable monthly).

The recovery plan contributions are allocated to each participating employer in line with their estimated share of the Series 1 and Series 2 scheme liabilities.

Where the scheme is in deficit and where the company has agreed to a deficit funding arrangement the company recognises a liability for this obligation. The amount recognised is the net present value of the deficit reduction contributions payable under the agreement that relates to the deficit. The present value is calculated using the discount rate detailed in these disclosures. The unwinding of the discount rate is recognised as a finance cost.

Present value of provision Present value of provision Reconciliation of opening and closing provisions Amendments to the contribution schedule Provision at start of period Deficit contribution paid Provision at end of period	2025 £’000 5 5 2 (2) 5	2024 £’000 2 5 (3)
		2

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

____________

12. Restricted Funds

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||||||| |---|---|---|---|---|---| |As at 31|As at 31| |July|July| |2024|Income|Expenditure|Transfer|2025| |£'000|£'000|£'000|£'000|£'000| |Research|197|263|(214)|-|246| |Support & Inclusion|173|308|(304)|1|178| |Policy & Advocacy|131|217|(168)|(1)|179| |Other Funds|123|48|(53)|-|118| |ESFA|63|339|(377)|(17)|8| |St Piers & Campus appeal|-|63|(5)|(38)|20| |687|1238|(1,121)|(55)|749|

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||||||| |---|---|---|---|---|---| |As at 31|As at 31| |July|July| |2023|Income Expenditure Transfer|2024| |£'000|£'000|£'000|£'000|£’000| |Research Funds|22|197|(175)|-|44| |Lottery Funding|40|127|(117)|9|59| |ACT Mental Health|114|58|(63)|0|109| |Mental health, Youth|1|144|(134)|(9)|2| |and Digital projects|110|-|-|-|110| |True Colours Trust - Epilepsy Infancy|17|49|(27)|-|39| |Voice & Leadership|-|73|(70)|(24)|(21)| |Other Funds|276|277|(232)|(48)|273| |EFA grants|72|-|-|-|72| |Restricted Funds|652|925|(818)|(72)|687|

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THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

____________

13. Unrestricted Funds

Charity Unrestricted funds Designated funds Fixed Assets Pension reserve General unrestricted funds Total unrestricted funds Charity Unrestricted funds Designated funds Fixed Assets Pension reserve General unrestricted funds Total unrestricted funds	As at 31 As at 31 July July 2024 Income Other Gains/(Losses) Expenditure Transfers 2025 £'000 £'000 £'000 £'000 £'000 £'000 21,556 - - - (171) 21,385 (4,705) - 1,035 - - (3,670) 16,851 - 1,035 - (171) 17,715 107 31,461 - (26,768) 226 5,026 16,958 31,461 1,035 (26,768) 55 22,741 As at 31 As at 31 July July 2023 Income Other Gains/(Losses) Expenditure Transfers 2024 £'000 £'000 £'000 £'000 £'000 21,239 - - - 317 21,556 (4,633) - (72) - - (4,705)
	16,606 - (72) - 317 16,851 1,184 23,765 - (24,597) (245) 107
	17,790 23,765 (72) (24,597) 72 16,958

Charity
Unrestricted funds
Designated funds
Fixed Assets
Pension reserve
General unrestricted funds
Total unrestricted funds
Charity
Unrestricted funds
Designated funds
Fixed Assets
Pension reserve
General unrestricted funds
Total unrestricted funds

As at 31
As at 31
July
July
2024
Income
Other
Gains/(Losses) Expenditure Transfers
2025
£'000
£'000
£'000
£'000
£'000
£'000
21,556
-
-
-
(171)
21,385
(4,705)
-
1,035
-
-
(3,670)
16,851
-
1,035
-
(171)
17,715
107
31,461
-
(26,768)
226
5,026
16,958
31,461
1,035
(26,768)
55
22,741
As at 31
As at 31
July
July
2023
Income
Other
Gains/(Losses) Expenditure Transfers
2024
£'000
£'000
£'000
£'000
£'000
21,239
-
-
-
317
21,556
(4,633)
-
(72)
-
-
(4,705)

16,606
-
(72)
-
317
16,851
1,184
23,765
-
(24,597)
(245)
107

17,790
23,765
(72)
(24,597)
72
16,958

The fixed asset reserve represents the net book value of tangible and intangible assets originally funded from the general unrestricted reserves. The transfer into the fund represents capital additions, less disposal proceeds and depreciation.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

____________

Unrestricted funds (continued)

The pension reserve represents the reported liability on the defined benefit pension scheme under FRS102. Transfers to the pension reserve represent payments into the scheme during the year.

The general unrestricted reserve represents the free funds of the charity that are not designated for particular purposes.

14. Analysis of net assets between funds

Charity Fixed Assets General Unrestricted Funds Total Assets Less Current Liabilities Defined Benefit Pension Scheme Liability Net Assets	Unrestricted Funds Restricted Funds Total £'000 £'000 £'000 21,385 - 21,385 5,026 749 5,775 2025
	26,411 749 27,160 (3,670) - (3,670) 22,741 749 23,490

Charity Tangible Fixed Assets Net Current Assets Total Assets Less Current Liabilities Defined Benefit Pension Scheme Liability Net Assets	Unrestricted Funds Restricted Funds Total £'000 £'000 £'000 21,556 - 21,556 107 687 794 2024
	21,663 687 22,350 (4,705) - (4,705)
	16,958 687 17,645

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31 July 2025

____________

15. Reconciliation of expenditure to net cash flow generated by operating activities

*Net income/(expenditure) for the reporting period* Adjustments for: Depreciation Adjustment for pension funding Write off/Write backs for debtors Interest from investments Interest paid (Increase)/decrease in debtors Increase/(Decrease) in creditors *Net cash provided by operating activities*	2025 £’000 *277* 957 (568) 124 (221) - (322) 502 749	2024 £’000 (315) 1,071 (410) - (1) 3 1,096 (1,017)
		427

16. Operating Leases

The total of future minimum rentals receivable under non-cancellable rental agreements are as follows:

Total minimum lease payments Within one year Within two to five years	2025 2024 £’000 £’000 67 61 59 97
	126 158

17. Breakdown of Miscellaneous income

Trading income Training and event income Other income Interest Deposit for land sale Total	2025 2024 £'000 £'000 125 139 23 31 58 45 221 1 - 600 427 816

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST

Contents

Message from the Chair, Markus Ruetimann

Chief Executives’ Review, Mark Devlin and Jane Beaven

A farewell from Mark Devlin, CEO.

Jane Bevin

We are Young Epilepsy

Our values

Our programmes

Voice and Support

Health and research

Specialist education

A 5-year strategy for Young Epilepsy

The problem we are here to solve

The change we want to see:

Our 5-year Strategy:

Programme One: Me and my family gain confidence through information and support.

Programme Two: My health and wellbeing needs are met.

A 5-year strategy for Young Epilepsy (contnued)

Programme three: My education opportunities are inclusive

A review of the year: Voice and Support

____________

A review of the year: Voice and Support (contnued)

Looking ahead

A review of the year: Voice, Policy and Influencing

Influencing education

A review of the year: Voice, Policy and infuencing (contnued)

Influencing healthcare

Health information

Looking ahead

Youth Engagement and Participation

A review of the year: Voice, Policy and infuencing (contnued)

Looking ahead

A review of the year: Health and Research

Research

Pilot projects: NHS Bundle of Care

____________

A review of the year: Health and Research (contnued)

Patient Voice

Sharing our Findings

Looking Ahead

A review of the year: Health and Research (contnued)

Diagnostic EEG

Service growth and Home Video Telemetry

Partnerships & Feedback

Training & Workforce Development

Looking ahead

A review of the year: Specialist Education - St Piers

Student Numbers

Continuous Improvement

Professional development

____________

A review of the year: Specialist Educaton - St Piers (contnued)

Looking ahead:

Fundraising

Approach we adopt to raise funds for our charitable activity

Accountability for our fundraising activity

How we monitor activities of volunteer fundraisers who raise funds to support Young Epilepsy

Number of complaints received associated with our fundraising activity or presence

Fundraising (contnued)

What we do to protect people in vulnerable circumstances

Fundraising Performance

Goal 2 : Increase unrestricted fundraised income.

Fundraising (contnued)

Goal 3: Develop a St Piers income stream.

Goal 5: Develop a legacy giving proposition.

Thanks to our Donors

____________

Fundraising (contnued)

Looking ahead

____________

Land Sale and Site Development

____________

Gender Pay Gap report

Median pay gap of -0.8%. Mean pay gap of 6.5%.

____________

Administrative details

____________

Bankers