2021-07-31-accounts

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements Year Ended 31st July 2021

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Report and Financial Statements for the year ended 31$1 July 2021 Trustee's Report Page Introduction by Chair Administrative Details Structure. Governance and Management Objectives and Activities Achievements and Performance 10-14 Fundraising 14-16 Financial Review Income and Expenditure Reserves Funding Risks Going Concern Executive Pay Increases 16 17-18 18 18-19 19 19 Statement of Trustees, Responsibilities 19-20 Independent Auditorfs Report 21-24 Financlal Statements Consolidated statement of financial activities Consolidated balance sheet Charity balance sheet Consolidated statement of cash flows Notes to the Fir7ancial Statements 25 26 27 28 2948

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARrrABLE TRUST Trustees, Report for the year ended 31" July 2021 Introdurtion b Jane Ramse Chair of Trustees Our purpose at Young Epilepsy 15 to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised. The last year may have been defined by the impact of the COVID-19 pandemic but l am proud to sav that we have responded strongly to the additional challenges faced by children and young people with epilepsy, while being on course to deliver against our strategic plan. This focuses our work around four offers.. Learning. Health, Research and Information with firm foundations in our three value statement5'. Young people are at the centre of everything we do. We work together to make a greater difference. We are courageous and ambitious for change. Throughoijt these challenging times for all of us, it has been more important than ever that we remained focused on listening to the voices of children and young people to ensure we always put their rights and best interests first. As we continue to work closely with them in shaping what we do as a charity, we have been working with our two your)g trustees and seventy young representatives and supporters to ensure the needs of our beneficiaries are always at the forefront of our decision making. With Covid still very much with us throughout the year, one of the most challenging aspects of our work has been ensuring that we continued to provide the highest level of sUPPOrt and service delivery to the vulnerable young people who attend St Piers School and College at Lingfield. l am proud of how all the staff have worked together with the younESters and their families to ensvre this wa5 successfully achieved. Through their innovation and creativity, the teams found new ways of working, some of which we plan to continue using even when we retijrn to some sense of normality. For example, the use of 'virtual' technology for assessments, transition arrangements and maintaining links with extefnal health professionals has proven invaluable as they have very often enabled us to work even more closely with individuals and their wider family group at a much earlier stage than previously. We have been able to extend our national reach to provide direct support to children and youn8 people during the pandemic through our partnership with Barnardo's charity - delivering the Department for Education funded programme, See, Hear Respond. Other activities that are increasing the chariws reach include our own focused programme on inclusion in education in 2021122 and our significant investment in digital with the creation of The Channel in March 2020, a platform that delivers information and support in a way that children, young people and parents are asking for. The introduction of The Hub to The Ch(Jnnel is transformin8 the way children and young people share experiences and seek help, in a safe and supportive environment. Our research partnership with Great Ormond Street Hospital and UCL Institute of Child Health continues to grow under the leadership of the Prince of Wales Chair of Childhood Epilepsy, Professor Helen Cross. During the year we were delighted to make awards in our first collaborative research funding initiatives: a joint fellowship in childhood epilepsy with Epilepsy Research UK and a joint award to research the links between epilepsy and autism with Autistica and Epilepsy Research UK.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31, July 2021 (continued) Introdurtion b Jane Ramse Chair of Trustees continued Looking forward, we are all really excited about the development of a new diagn05tlC Sillte, in conjunction with our partners, as part of our strengthened health offer. At the centre of the 5Ulte we have created a wearable Optically Pumped Magnetometer Magnetoencephalogram 10PM MEGI system which is situated in a magnetically shielded room. This will be the first wearable MEG system of its kind in the world and has the potential to transform the diagnostic experience for children and their families. Due to its much more child friendly set-up, we believe the technology will be crucial in evaluating the suitability of young patients for epilepsy surgery at an earlier age and lead to better outcomes for children and young people with epilepsy. Having completed clinical evaluations in early 2021-22 our goal is for this new technology to become part of the clinical offer at the Your¢g Epilepsy Diagnostics Centre and for us to begin to provide a service that was previously much less accessible in paediatric epilepsy care. None of this would have been p055ible without a number of organisations to whom we are grateful for their support and partnership: Magnetic Shields Ltd, the University of Nottingham, UCL Queen Square Institute of Neurology and the UCL Wellcome Centre for Human Neuroimaging. l am immensely proud of the achievements of Young Epilepsy in such a challenging year, and of the children and young people with whom we work. During the year we said a fond farewell and gave our heartfelt thanks to four of our trustees.. Nigel Kennedy. Dr Anita Devlin. Murray Orr and John Stebbings. My final thank you is for all those who have helped and supported us including our staff, trustees, families, partners, influencefs, SUPPOrters and funders. Together, we create possible. Jane Ram5ev Chair of Trustee5 03/oZ/2>z z

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31st July 2021 (continued) Adminlstratlve Detalls Young Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust, which is a charity registered with the Charity Commission (registered number 3118771. The re8lStered address of Young Epilepsy is Young Epilepsy, St Piers Lane, Lingfield, Surrey, RH7 6PW. During the year, and in the months following the year-end to publication the Trustees were as follows= Jane Ramsey Prof Helen Cross Nigel Kennedy (resigned 19, September 20211 Keith Cameron Dr Anita Devlin Iresigned 9, November 20201 Murray Orr (resigned 28, February 20211 Vivienne Dews Dr Julia Coop Lesley Steeds John Stebbings Iresigned 30, July 20211 Claire Wood-Hill Nicholas Bell Simon Neville (appointed I" October 20201 Tamsin Jones lappointed I" October 20201 DrAmit Bali lappointed 9, November 20201 Katie Stevens (appointed I" March 20211 The Board of Trustees is responsible for the governance of Young Epilepsy and ensuring that its ctivities are within its charitable objectives. It sets the strategic direction, the responsibility for the execution of which is delegated to the executive management of the organi5ation through the Chief Executive Officer, Mark Devlin. The executive management team is made up of.. Mark Devlin Chief Executive Nazaf Al-Khalili Director of Finance & IT Oirettor of Fundraising & Communications Principal, St Piers School and College Director of New Business Rosemarie Pardington Director of Integrated Care Sarah Stookes Director of HR Sally Brighton Richard Gargon Tim Moore

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31"July 2021 (continued) Administrative Details continued During the year, Young Epilepsvs bankers and professional advisers were.. Banker5 Lloyds Bank plc Mid Corporates- Education, Charities and Government 3rd Floor 25 Gresham Street London EC2V 7HN Solicitor5 Russell-cooke LLP 2 Putney Hill London SW15 6AB External Auditors 8DO LLP 2 City Place Beehive Rin8 Road Gatwick West Sussex RH6 OPA Internal Auditors MHA Maclntyre Hudson 6, Floor 2 London Wall Place London EC2Y SAU

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31, July 2021 {continued) Strurture Governance and Mana ement Young Epilepsy is regulated by a scheme of the Charity Commission dated 31st October 2002, as amended by deeds of amendment dated 22nd January 2004 and 21st October 2004. Young Epilepsy has one Corporate Trustee, The National Centre for Young People with Epilepsy, company limited by guarantee registered in England (number 007567981. The sole purpose of the Corporate Trustee is to act as the Trustee of the charity. The Board members of the Corporate Trustee are referred to as 'Trustees' in this report. Young Epilepsy had one active wholly owned subsidiary trading company in the group, which is St Piers Iservicesl Limited (Company registration number 041315301. Its principal activity is the development of property for the use of disabled children. The Board of Trustees is responsible for the governance of Young Epilepsy and ensuring that its activities are within the charitable objectives. It sets the strategic direction, the responsibility for the execution of which is delegated to the executive management through the Chief Executive Officer. Trustees can serye a maximum of two terms of three year5. Wlth a third term only in exceptional circumstances. New Trustees are recruited through an open process and are appointed by the Board of the Corporate Trustee. YoLfng Epilepsy regularly Seeks to refresh the Trust Board with Trustees who have the experience and expertise required to enable the charity to perform to a high level. New Trustees receive an induction programme including mandatory safeguarding training. They are provided supporting materials includirbg formal governance documents. Other training courses are available for Trustees as required. The Board of Trustees meets on a regvlar basis. During the year they were supported by the Education Governing Body which oversees St Piers School and College, and six sub-committees.. Finance, Audit and Risk Committee. Fundraising and Communications Committee. Health Services Committee. Remvneration Committee. Nominations Committee. Residential Services Quality Committee. Ob'ectives and Arti¥ities The Strategy 2020-2025, established during 2019-20, sets a direction of travel in each of our four offer areas. Detailed annual planning happens on a rolling basis each year. The strategy also sets out the measures of success we use to assess these, as we work through annual plans. The strategy sets out our three values: l. Young people at the centre of everythinE we do. 2. Working together to make a greater difference. 3. Being ambitious and courageous for change.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31$t July 2021 (continued) Ob ectives and Activitles continued These guiding principles set the tone by which we deliver our purpose= creating a society where children and young people with epilepsy are enabled to thrive and fulfil their potential - society in which their voices are respected, and their ambitions realised. The key objertives within each of Young Epilepsws four offers are.. Information We equip young people with knowledge and promote public awareness of epilepsy. Health We drive improvements in healthcare and advocate for young people's rights to the highest standards of health. Learnin We deliver innovative education services and advocate for young people with epilepsy so that they can exercise their right to education. Research We coordinate and fund research into the causes, treatments and impact of childhood epilepsy. Impart of COVID-19 During the year it was obvious that the impact of the COVID-19 pandemic continued to present a significant risk to Yoijng Epilepsy, as it did to the rest of the charity sector and the country. Our policy was, and continues to be, to act in accordance with current government guidelines. The Trustees are consulted on policy and informed of key executive decisions. The impact of the epidemic is tovered in various sections of this report. In summary.. Protertin children and le oun eo The priority for us is alway5 the welfare of the childrerTr and young people in our care. We have followed government gijidelines to ensure we are providing the best possible setvice. Students at St Piers School and College have Education Health and Care Plans. This required both our school and college to remain open throughout the pandemic, in line with government guidance on Maintaining support for vulnerable children and young people dLAring the pandemic. In addition, we provided home-leèrning opportunities for those who could not attend. Where any of our students showed potential symptoms of COVID-19. we tested immediately and if the young person was a residential student, we isolated the house the student was living in until a negative result was received. Parents and families were always kept up to date. We also rolled out the vaccination programme to our eligible students where over 80% were vaccinated at year end.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31" July 2021 (continued) Impact of COVID-19 (continued) Staff Welfare and Em lo ee Relationshi During 2020-21, COVID-19 had significant implications for our students and staff. We furloughed staff who were clinically extremely vulnerable and those, such as community fundraisers, whose job role could not be performed due to lockdown restrictions. We ensured that no staff member who was furloughed suffered any financial detriment by ensuring furlough payments were topped up to match full contractual pay. All other staff who were able to work from home remained working remotely and visitors to tampus were re5trirted. We maintained continued tontact with remote and furloughed workers through regular communications, information Sessions and help and support for maintaining good mental health and wellbeing and 5UPPOrted remote working by ensuring they had the appropriate equipment and systems to fulfil their role. Staff and trustees adapted well to working remotely and to online meetings. We implemented a Coronavirus Pay Policy so that no staff member suffered a financial detriment as a result of the enforced isolation requirements or illness. For those staff on site, our nursing team rolled out full use of PPE and asymptomatic testing including an Asymptomatic Testing Centre and released regular guidance and training sessions on how to keep safe and Covid secure in the workplace. We rolled out a very successful vaccination programme for staff and students. By the end of the financial year, over 80Yo of our staff had been fully vaccinated. Financial resilience In line with most other organisations in the UK, including charities, the pandemic did impact our financial position. Effects first seen during 2019-20 continued into 2020-21. The main areas affected were our external health services, particularly the rehabilitation Se￿iCe5 that we offer. Pre-pandemic, our health services were growing but thi5 growth was halted by the pandemic. Our fundraising teafll were able to achieve their target in spite of the pandemic and fundraised income was the highest for five years (excluding a one-off £2.Im legacy received in year ended July 20181- Without the pandemic the achievement would have been even higher. Despite the negative influence this had on online giving, community, sport and challenge events, some foundations gave more money. For contractual arrangements we have with local authorities to provide education to the children and young people in our care, we have been meeting regtjlarly with the various local authorities. We also keep them updated on all our plans and they have been supportive of the work we do. On the costs side, we reviewed our staffing position to understand who needed to carry on working in the short term. and who should go into the government's furlough scheme. Communication Keeping parents and families updated on our plans is something we take very sefiously and throughout the pandemic we have been communicating with the families of our children and young people, explaining the decisions we are taking as well as getting their views and input on matters that affect them. Likewise, we are listening to our staff and keeping them updated on the changes in government guidelines and how this affects their roles.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31SI July 2021 (continued} Achievements & Performance Our aim5 set at the start of the year included a Specific focus on: sustaining quality of education and care with strong outcomes for students at St Piers; 2. development of our national service profile, including new product development, for all children and young people living with epilepsy across the UK and their families- 3. growing our reputation in the national discussion for young people with epilepsy.. and investment in infrastructure. l. Sustaining quallty of care and education with strong outcomes for our students at St Piers At St Piers School and College, our trans-disciplinary education, health and care offer 5UPPOrted 164 Students across the 2020-21 academic year.. 66 in the school and 94 in the College. In addition, we had four students in the Life Ski115 Programme provision (formerly known as Connect21. We continued to work hard to maintain our'Good' Ofsted and 'Good' CQC ratings for our children's and adults, residential seNite5. On I September 2020, four children's homes were re-registered under the status of afi Independent Residential Special School. As planned, on 28 July 2021, St Piers all-year round residential Children'5 Homes ceased operating and were re-registered as a Children's Residential Special School. St Piers children's selvice continues to offer day placements and term- time only ITTOI residential placements. After the year end, we had an Ofsted inspection of the children's residential services, and the standard was rated as 'good'. Adults, residential seryice remains unchanged and continue5 to offer residential placements on a weekly, termly and all-year round basi5. Having received 'Good' Ofsted judgements in November 2017, both St Piers School and College have continued to work on areas of improvement. From September 2020 through July 2021, both the School and College remained fully open to students through the COVID-19 pandemic. All Our students have Education Health and Care Plans IEHCPSI, and so in line with the range of government guidance, those parentslcarers and students who wished to continue their education on-site were able to do so. During the 2020-21 academic year both School and College have undergone several quality assurance vislts both virtually and on-site. In May 2021, the College successfully moved into its second year as an Inclusion Quality Mark IIQMI Centre of Excellence, having met/exceeded the relative progression targets. Furthermore, in June of this year. St Piers School also achieved its IQM progression targets. The School is now in its third year as a Centre of Excellence, with the aim of gaining 'Flagship' status in summer 2022. In March and May 2021, School and then College respectively went through external virtual qualitv assurance consultations from Challenge Partners. In both reviews, leadership and management and overall educational effectiveness We￿ the key lines of enquiry. Both consultation reports identified many positive areas of practice whilst also identifying some areas for further development. In April 2021. School received an on-site quality assurance visit from the Youth Sports Trust and achieved a Gold Award for its work around vision, leadership and management of PE, sport and physical activity. 10

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31" July 2021 (continued) Achievements & Performance continued I. Sustaining quality of care and education with strong outcomes for our students at St Piers {continuedl During the academic year, the continuing impact of COVID-19 has meant that both the School and College have continued. albeit at a much-reduced capacity, to provide homelremote-learning opportunities for those students affected, using a variety of media. This has continued to be very successful and both parents/carers and the students at home were very engaged and progre55 Wlth their learning continued. Student Achievements 2020-21 Due to the continuing direct and indirect impacts of COVIO-19 on our students, attendance, at both St Piers and partnership general FE Colle8es such as East Surrey and Crawley College, and changes to examination board administration processes, the 2020-21 data sets continue to be disproportionately affected. Produdion of data to support the analyseslevaluations reportin8 on targets met across School and College, retention and success rates, destination data and outcomes data for educational and residentiol leavers has also been affected by COVID-19. 2. Development ot our national service profile including new product development, for all children and younz people living with epilepsy across the UK and their famllies Throughout the year, with careful social distancing measures and robust risk assessments we have been able to keep all our health se￿ice offers operational, despite the impact of the Covid pandemic. Unfortunately, thi5 has been at a lower volume than normal circumstances would have permitted, but we hope to be able to get back to full strength in 2021-22 and focus on our growth programme. As in previous years, we have continued to work closely with the Royal College of Paediatrics and Child Health on the latest national audit of childhood epilepsy services, which is called Epilepsyl2. This year's report was published in July 21 and continues to highlight the disappointing need for more to be done to ensure children have timely access to the right NHS specialist diagnostic and treatment services. The Epilepsy12 report also emphasise5 the need for children and young adults to have better access to mental health support services, with only 15% of Health Boards and Trusts currently being able to integrate mental health provision within their epilepsy clinics. At Young Epilepsy, we recognise the importance of providing an integrated approach to psychosocial support to help children and young people manage a long-term condition like epilepsy and are calling for better provision in this area. This is all part of our #OnTopOfEpilepsy campaign which advotate5 for integrated mental heolth support for children and young people with epilepsy. Alongside this, the report showed that over three quarters177%1 of children meeting the criteria for referral to Children's Epilepsy Surgery SeNice ICESSI for surgical evaluation were not referred. Given the fact that neurosurgery is the only effective way to control their seizures for some children, the majority will meet the CESS criteria and therefore be considered for this potentially life- changing treatment.

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31.july 2021 (continued) Athievernents & Performance continued 2. Development of our natlonal service profile including new product development, for all chlldren nd young people living with epilepsy across the UK and their familie5 (continued) In addition, our world-renowned research programme has continued at a pace although this year we held our Annual Paediatric Epilepsy Research Retreat 'virtually' instead of in person. However, despite being less personal this enabled us to reach even more participants than usual. This year, alonEside our traditional Annual Research Report, we also produced a separate Paediatric Epilepsy Research Impact Report which has been extremely well received. This new report explains how all our research originates from the identification of clinical problems and feedback from patients, making it the well respected and valued programme it has become today. The number of researth projects in the piogramme continue5 to grow year on year. As an illustration of this, over the past ten years, our research programme has grown from having four Principal Investigators (the leaders of research unit5, often Professors) to having 34 Principal Investigators supeThising 19 PhD students and working alongside an additional 37 international collaborating researchers. This growth trend has also been reflected in the increasing number of research projects and publications produced across the programme each year. In previous arlnual reports we have shared news of how, through innovation and cutting-edge technology, Young Epilepsy is aiming to advance the diagnostic experience for children with epilepsy. With our partners, we have created a wearable OPM MEG Ioptically Pumped Magnetometers - Magnetoencephalograml integrated into a magnetically shielded room, alld we are hoijsing this in our new diagnostic suite. complete with sensory garden. This will be the first wearable OPM MEG system of its kind in the world, and we are extremely excited a5 It has the potential to transform the diagnostic experience for children and their families. Once clinical evaluations are complete in Autumn 2022, our goal is for this new technology to become part of the routine clinical offer at the Young Epilepsy Diagnostics Centre. This progress has been made possible d4Je to an exciting collaboration with experienced MEG researcher5, clinicians, and engineers from around the world. We are very proud of the achievement we have made working with Magnetic Shields Ltd, University of Nottingham, University College London Institute of Neurology and the UCL Wellcome Centre for Human Neuroimaging. Whilst the benefits of the existing MEG systems are well established, this wearable MEG system overcomes the need for sedation, and/or for the need for young patients to stay still during their scan and has been developed to be significantly more accessible for children particularly those with complex needs. Due to its more child friendly set-up, we believe the technology will be crucial in evolLrating the suitability of yoijng patients for epilepsy surgery at an earlier age by providing more accurate data which will ultimately support our shared vision for better outcomes for the children we support and treat in clinics. Ouring the year we were delighted to make award5 in our first collaborative research funding initiatives.. a joini fellowship in childhood epilepsy with Epilepsy Research UK and a joint award to research the links between epilepsy and autism with Autistica and Epilepsy Research UK. Congratulations to Dr Tim Tierney and Dr Colin Reilly, respectivelv. 12

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST 5t Trustees Report for the year ended 31 July 2021 (continued Achlevements & Performance contlnued 3. Growing our reputation in the national dlscussion for young people with epilepsy Drivin our work throu htheex erience and voices of oun eo We have continued to build on our work to ensure that the voices of children and young people are embedded in our practices. Supporting and engaging with the Young Reps and Young Supporters has been a keyfocus. We have grown the Young Rep group from thirteen to seventeen 16-25-year-olds. Collectively, the Young Reps have taken part in 267 engagement and participation activities throughout the year. In August 2020, we brought together the different strands of projects. seNices and participation that are delivered across the UK into a single Youth Development and Support Team. The Team has provided a strong foundation for the work that has been driven by children and young people with epilepsy. In October 2020, Young Epilepsy was awarded 'Active' status based on the National Youth Agency's Heor by Right stundards. Achieving this level in youth participation is seen as an acknowledgement of our commitment to developing participation across the organisation and the progress we have made. A key focus for 2021/22 is to achieve'Flagship' status, which will involve a deeper integration of participation practice into all that we do. Mental Health was identified by Young Reps as an area where they feel children and young people currently have the greatest challenges. They took a lead role developing the #OnTopOfEpilepsy compoign, driving the campaign at every stage from sharing their own Mental Health experiences, selecting the creative agency, producing content and being active members of the project team. Two of our Young Reps took active roles in the development and award of the Epilepsy Research UK IERUKI and Young Epilepsy Fellowship Award aimed at funding research to investigate epilepsy in childhood. Along with other Young Reps they took an active role in reviewing proposals, 5UPPOrted by ERUK'S Scientific Advisory Committee. The Channel Launched in March 2020, The Channel has outstripped expectations, growing from 7,000 unique Vlsltors in July 2020 to almost 20,1)00 by July 2021. The Channel is Young Epilepsy's digital solution to provide children and young people with epilepsy the information they need to make decisions that enable them to achieve their best quality of life. It has been a busy year with children and young people developing content and The Channel Team developing new functionality and ensuring that our content speaks to the challenges faced by children and young people with epilepsy. A key challenge faced by children and young people with epilepsy is continually needing to retell their story to new people in their lives. In November 2020, alongside children and yOLtrng people, we developed a 'video builder,. This tool allows children and young people to enter key messages that they want to convey and puts them into a short animation that they can share. One of the most significant developments was the launch of The Hub in December 2020. The Hub is a space where children, young people and their parents can share experiences, tips and questions, to support each other to make their live5 better. Young Reps were central in the design of the space and made significant contributions to its launch with 130 posts. 13

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31. July 2021 (continued) Achievements & Performance continued The Channel continued Between launch and July 2021, I6.0￿ people had accessed The Hub. While most contributors have been young people, we have also seen significant engagement from parents of young children. 3. Growing our reputation In the national dlscusslon for young people wlth epilepsy Icontlnued) Youth Su ort Work Supporting children with epilepsy during the COVID pandemic was the key focus of our support work in 2020-21. Between August 2020 and 2021, we delivered services as part of Barnardo's See, Hear, Respond programme which distributed Department of Education funding to provide direct support to children. As one of 12 national partners, we delivered 1,115 hours of specialised support to 173 children and 76 parents. This experience has driven innovation in the delivery of this service. allowing support to be provided by video, across the UK, including group sessions where the peer- to-peer experience has been invaluable. Much of the best practice of this programme has been adopted in our work, contributing to a total of 674 children and young people receiving direct 5UPPOrt in 2020121. 4. Investment in infrastrutture We continued the much-needed investment in our estate maintenance and IT infrastructure including.. The refurbishment of a number of our students, residential homes as part of a rolling programme to ensure we are providing the best possible environment for them. Investing in new IT infrastructure and software across the organi53tion. This included moving our systems into the cloud and investing in èdditional security measures that have been necessitated by an increase in home-working. As part of this programme, we are looking at releasing value within our estate to provide fund5 for further investments. Fundraisin roach we ado t to raise funds for our charitable artivi We raise funds through appeals, events, relationship management with supporters, individual donors, volunteer fundraisers, corporate partners and high value funders, trading activity and through grant applications. Our fundraisin8 activity is managed internally without the involvement of commercial participators and profe55ional fundraising agencies. Accountabilit for our fundraisin activit We are registered with the Fundraising Regulator and follow their Code of Prartice and publish our Fundraising Promise, complaints policy ar¢d procedure on our website. We Comply with the guidance set out by the Fundraising Regulator, including publishing our charity and contact details on its website. 14

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31.july 20211continued) Fundraisin continued How we monitor activities of volunteer fundraisers who raise funds to su ort Youn We provide 5UPPOrt to volunteer fundraisers who choose to raise funds for Young Epilepsy through relationship management and a Setvice Level Agreement. We monitor their activity through designated online giving platforms and social media channels and engage in regular dialogue with fundraisers. Numberofcom laints received associated with our fundraisin activi or resence In the year to 31st July 2021, no fundraising complaints in relation to our fundraising activity were received. What we do to rotect vulnerable eo le in connection with fundraisin All employees who work for Young Epilepsy si8n up to a clear behaviour code of conduct and receive safeguarding training as part of their induction. with refresher training delivered at appropriate inteThals. This applies to team members directly engaged in fundraising activity. Young Epilepsy adopts a rigorous and robust approach to safeguarding. given the particularly vulnerable group of children and young people with epilepsy we work with. Our fundraising team is required to follow procedures which implement our approved Child and Adult Protection and Safeguarding Policy, reviewed annually. We have a Vulnerable Donor Policy which is published on our website and we only capture personal information onto our CRM system of donors aged 16 years and over. Young people below this age are not contacted for marketing purposes. Our fundraisin erformance In the year. our overall fundraising performance remained stable. COVID-19 had a significant negative influence on specific areas of fundraising income such as community and events. Sport and Challenge events however, saw an upturn in fundraising income in the final quarter of the year with our sUPPOrters rallying to help raise vital funds. We were delighted when Zach, decided to support Young Epilepsy. Following his diagnosis of epilepsy in january 2020, Zach decided to raise funds by running 8 mile5 on his 8th birthday. He raised over £2,500 for us and will run 9 miles for his 9, birthday in 2021. To respond to these continuing extraordinary times, we managed the ongoing impact of COVID-19 in an agile way. adapting to opportunities and threats. We were forced to cancel our annual Star Rijn and instead focused our efforts on virtual events and digital fundraising- an example being Purple Day held in March, which was a big success raising over £20k in total. Using the theme of #GoPurple, supporters were asked to take part in one of three ideas.. Party Purple, Wear Purple or Team Purple. One of our Purple Day fundraisers who is 8 years old raised an incredible £2,600 and his whole school got involved on the day learning about seizure first aid. JustGiving reached out to us to feature the campaign in their blog, as it stood out as being a simple ask with strong brandin8. To target those audiences who were locked down at home. Young Epilepsy launched a new venture into Gaming fundraising, one of the fastest-Erowing way5 to raise money for charity. Our Eaming product. 'Will you game for change?, invites young people and sUPPOrters to live-stream gaming challenges and raise funds from their PC or console. We called on people to join the quest to make the 15

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31"July 2021 (continued) Fundraisin continued Our fundraisin erformance continued gaming world safer and more accessible to children and young people with epilepsy whilst also raising vital funds. De5Plte our best effi)rts, in the context of a challenging environment, not being able to meet current and new donors in person or hold in-person events, our total unrestricted income of £497k represented a £75k decline on the previous year. By contrast, restricted income involving donation5 and grants received in the year to directly fund project activity was £908k lup from £619k in the previous yearl with a significant amount secured upfront for the coming financial year. Together with trading activity and the receipt of legacies valued at £117k, we achieved a total fundraised income of £1.4m to support our charitable activity. This wa5 over £200k more than the previous year. We spent £401k to raise these funds. To fund our project activity, we a￿ delighted by the vital support of the Garfield Weston Foundation, Bernard Lewis Family Charitable Trust, UCB Pharma, DCMS Pears. Alison Hillman Charitable Trust and Fidelity UK Foundation for our Youth Development and Support SeNice. We are grateful to the Wolfson Foundètion and Innovate UK foi their significant contribution to the development of our OPM MEG scanner and diagnostic suite. We are also grateful for the support of GW Phamia, George E Neville Foundation and the Waterloo Foundation for their ongoing support towards our flagship childhood epilepsy research programme and designated clinical research studies. We are hugely grateful to all our donors, grant funders and voluntary fundraisers, both those supporting us for the first time alld those who gNe regularly, for their generous support. Financial Revlew Income and Expenditure Total income for the year was £24.5m12019-20'. £25.3ml. Of this, fees from local government and health authorities were at £22.4m12019-20.. £23.3ml. This is mainly due to the change in number and mix of students and Covid impacted lower health fees. Fundraising and legacy income at £1.4m12019- 20.. £1.Iml showed an increase on the previous year. All our income streams were impacted by COVID- 19. Total expenditure for the year was £24.8m12019-20= £25.8ml. Staff costs, including agency spend, decreased to £19.3m12019-20.' £19.8ml in line with the change in student numbers. Overall, we achieved a consolidated net surplus of £0.2m12019-20.. £2.Om deficit). This included an actuarial gain of £0.4m12019-20.' £1.5m lossl on the defined benefit pension scheme. Overall, the underlying result, excluding one-off items. was a deficit of £0.3m which compares with an underlying deficit in the prior year of £0.5m. 16

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31" July 2021 (continued) Financial Review continued Reserves When considering our reserve5 policy, the Trustees take into account the following.. Reserves are an inherent part of our strategic risk management proce55. The need for reserves will vary depending on our financial position and our asse55ment of the risks faced at any time. The importance of balancing the short term need for spending on our core programmes with the need to maintain stability in the longer term. The following reserves are held: Restricted funds These funds are tied to a specific activity by the funder or by the nature of the appeal and cannot be used to fund other activities by Young Epilepsy. More details of our restricted funds Itotalling £0.5m at the end of the year12019-20'. £0.5mll can be found in note 14 of the financial statements. Funds re resentin functional fixed assets These funds are equivalent to the net book value of the land and buildings used to support Young Epilepsy's charitable and commercial operations. The Trustees have designated these funds Itotalling £21.5m at the end of the yearl as representing the element of our reserve5 which are tied to our charitable assets including land and buildings. Consequently. these reserves are not available to be spent on ongoing activities. Pension resetwe These funds are held to meet the future liabilities of our Final Salary Pension Scheme. The current pension scheme deficit Itotalling £8.9m at the end of the year), calculated in accordance with the requirements of Section 28 of FRS 102, is shown as a liability against unrestricted funds. The deficit IS due to historic improvements in longevity and reductions in investment returns. An annual payment of £0.5m was made to the fund in the year to reduce the deficit. The payment for 2021-22 will rise to £0.6m per annum with stepped increases over the next ten years. This is in line with the agreement signed between the Charity and the trustees of the pension fund forthe April 2019 tri-annual valuation. Free reserves Free reserves are funds which are neither restricted or designated, nor applied as functional fixed assets. At the end of the year, free reserves stood at £4.Im. This is a decrease of £0.5m on last year and represents around 14 weeks operating expenditure at current levels after taking into account guaranteed income levels. The Trustee5 recognise that the pension scheme deficit will not Crystallise in the near future and that all reserves levels will continue to be monitored c105ely. The Charity's Resetves Policy states that the level of free reserves should be sufficient to cover operational expenditure commitments in the short term lexcluding expenditure on acquisitions and other funded projects) with consideration of operational risks and external factors. 17

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Trustees Report for the year ended 31, July 2021 (continued) Financial Review continued Free reserves continued The free reseNes should cover a minimum of 12 weeks of expenditure aftertaking into account income that is guaranteed from contracts. Fundinz In total 91Yo1£22.4ml of our income was made ijp of fees from local authorities and other supporting bodies. This funding is used to provide education and residential care for the students at St Pier5 School and College and healthcare from our facility in Lingfield. The remaining fundinE1£2.Iml comes from donations, legacies. rents, furloughed staff ond other sources and was used to provide national services, SUPPOrt funrtions and to ensure the Free Reserves are within the target level. Risks The Trustees have identified the principal risks and uncertainties to which Young Epilepsy is exposed and developed relevant mitigating actions. These are: Inability to ottract t7nd retain diverse, talentedstoff with the rightskills ond capobility to deliver positive impactfor students. This is managed by having regular and continuous recruitment campaigns to attract staff. The work we have done in restructuring the recruitment team and centralising the hiring process through an online portal has hail a positive effect, a5 has the outsourcing of vettin8 and supporting EU Nationals to goin settled status in UK. However. post pandemic vacancy levels across the economy, labour shortages and wage inflation present significant ongoing risks to service provision. The continued he(Jlth ond wellbeing of the children ondyoung people ond stoff being impocted by the ongoing COVID-19 pandemic. This has been managed by the COVID-19 steering group providing regular and targeted communications to staff, keeping parents and guardians fully pdaled, following all government guidelines and ensuring we are proactively testing staff and students where relevant, and managing personal protective equipment stock levels. We have also rolled out a very successful vaccination programme and have a flu vactination programme planned for the autumn/winter of 2021. Failure to generate sufficient income or efficiencies to maintoin scole, finoncial sustoinobility ond quality of core offers. This is managed by regularly reviewing our pricing to ensure we are competitive in the marketplace but are covering our costs- engaging with parents, local authorities and other providers to generate referrals for placements.. developing better partnerships with health authorities and hospitals to increase our health income- and investing in our fundraising activities to generate further funds for research and services for young people. We are also finali5ing our estates development. Horm cuused to children and young people. This is mana8ed by a focus on safeguarding including reducing staff turnover and vacancies in key areas, regular refresher training, continually reviewing safeguarding reporting thresholds and ensuring these are aligned to relevant guidance and external reporting requirements, regular monitoring and reporting of safeguarding incidents, and analysis of any emerging trends with relevant action plans. We also implement reflective practice and the promotion of a learnir)g environment to promote continuous improvement. 18

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST 5t Trustees Report for the year ended 31 July 20211continued) Risks (continued} Foilure to muintoin or improve Residential, Health and Educotion regulatory rating5. This is managed by the continuation of a range of audits, unannounced visits, and compliance too15 across all areas- continuing to recruit high calibre staff to relevant positions and focusing on learner progress to ensure expectations of performance and standards remain high. In September 2021 we had an Ofsted inspection of our children's residential houses and were awarded 'good' on all aspects. Going concern The financial statements afe drawn up on the going concern basis which assumes Young Epilepsy will continue in operational existence for the foreseeable future. Young Epilepsy substantially relies on funding from local authority contracts for its current and future commitments and we seek to manage the risks around this income stream. The Trustees believe the contracts we have in place with local authorities will be fulfilled and the planned income for the coming years will be received. During the year when the impact of COVID-19 pandemic hit the country, our income from local authorities was only minimally impacted which is why we believe that our financial position will not be negatively affected. The other areas of income which formed less than 12% of total income in 2020-21 are health services provided to external clients, and fundraised income. These were affected by the pandemic in the year but have Since picked-up as the country comes out of lockdown. The 80ing concern basis used in the preparation of these financial statements is based upon the expectation that Young Epilepsy's net income or net expenditure are at a level to ensure reserves and cash flow requirement5 are met. The Trustees have reviewed our financial position and financial forecasts, taking into account the levels of debt. cash, working capital, net current assets and the systems of financial control and risk management. The Trustees believe that we are well-placed to manage operational and financial risks successfully. Based on their work, the Board considers Young Epilepsy's current and forecast cash resources to be sufficient to Cover the working capital requirements of the charity for at least 12 months from the date of signing the accounts and has determined that it remains appropriate to continue to adopt the going concern basis in preparing the accounts. Executive pay increases The Remuneration Committee reviews executive performance and remuneration annually. We aim to pay salaries at the median level for similar organisations within the not-for-profit sector. and to ensure that increases are consistent with those awarded in the overall orBanisational review of remuneration. Statement of Trustees. Res onsibilities The Trustees are responsible for preparing the annual financial statements in accordance with applicable law and United Kingdom Generally Accepted Accounting Practice. Law applicable to chorities in England and Wales requires the Trustees to prepare financial statements for each financial year, which give a true and fair view of the group's financial activities during the year, and of its and the charitvs fir)ancial position at the end of the year (unless the charity Is entitled to prepare accounts on the alternative receipts and payments basis). 19

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST st Trustees Report for the year ended 31 July 2021 {continued) Statement of Trustees. Res n5ibllities continued In preparing the statements giving a true and fair view, the Trustees should follow best prartice and: select suitable accounting policies and then apply them tonsistentlv,. make judgments and estimates that are reasonable and prijdent,. state whether applicable accounting standards and statement5 of recommended practice have been followed, subject to any departures disclosed and explained in the financial 5tatements- and prepare the financial statements on a goin8 concern basis unle55 It is inappropriate to presume that the group will continue in operation. The Trustees are responsible for keeping adequate accounting records that are sufficient to show ènd explain the charit￿$ transactions and disclose with reasonable accuracy at any time the financial P051tion of the charity and enable them to ensure that the financial statements comply with the Charities Act 2011. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. The Trustees confirm that, to the best of their knowledge. there is no relevant audit information of which the Charity's auditors are unaware and that they have taken all the steps necessary to make themselves aware of any relevant audit information and to establish that the Charity's auditors have access to that information. Signed on behalf of the Board of Trustees The Trustees, Report. incorporating the Strategit Report was approved by the Trustees and signed on their behalf. Jane Ramsey Date: 05/02/2bZZ 20

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Independent Auditors, Report for the year ended 31" July 2021 INDEPENDENT AUDITOR'S REPORT TO TRUSTEES OF THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Opinlon on the financial statements In our opinion, the financial statements.. give a true and fair view of the state of the Group's and the Parent Charity's affairs as at 31 July 2021 and of the Group's incoming resources and application of resources for the year then ended,. have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice: and have been prepared in accordance with the requirements of the Charities Act 2011. We have audited the financial statements of The National Centre for Young People with Epilepsy Charitable Trust I'the Parent Charity") and its subsidiarie51"the Group") for the year ended 31 July 2021 which comprise the con501idated statement of financial activities, the tonsolidated balance sheet, the Charity balance sheet, the consolidated cash flow statement and notes to the fir7ancial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Finunciol Reporting Stondord applAcable in the UK and Republic of Ireland Iunited Kingdom Generally Accepted Accounting Practice). Basis for opinion We conducted our audit in accordance with International Standards on Auditing IUKI IISAS IUKII and applicable law. Our iesponsibilities under those standards are further described in the Auditor's responsibilities for the audit of the financial statements section of our report. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basi5 for our opinion. Independence We remain independent of the Group and the Parent Charity in accordance with the ethical requirements relevant to our audit of the financial statements in the UK, including the FRC'S Ethical Standard. and we have fulfilled our other ethical responsibilities in accordance with these requirements. Conclusion5 related to going concern In auditing the financial statements, we have concluded that the Trustees, use of the going concern basis of accounting in the preparation of the financial statements is appropriate. Based on the work we have performed, we have not identified any material uncertaintie5 relating to events or conditions that, individually or collectively, may cast significant doubt on the Group and the Parent Charity's ability to continue as a going concern for a period of at least twelve months from when the financial statefflents are authorised for issue. Our responsibilitie5 and the responsibilities of the Trustees with respect to going concern are described in the relevant sections of this report. 21

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Independent Auditors, Report for the year ended 31$tJuly 2021 (continued) Other information The Trustees are responsible for the other information. The other information comprises the information included in the Trustees Annual Report, other than the financial statements and our auditorfs report Ihereon. The other information comprises the Trustees, Annual Report. Our opinion on the financial statements does not cover the other information and. except to the extenl otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is malerially inconsistent with the financial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether there is material misstatement in the financial statements or a material misstatement of the other information. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard. Mattets on which we are requlred to report by exception We have nothing to report in respect of the following matters in relation to which the Charities Act 2011 requires US to report to you if, in our opinion.. the information contained in the financial statements is inconsistent in any material respect with the Trustees, Annual Report,. or adequate accounting records have not been kept by the Parent Charity: or the Parent Charity financial statements are not in agreement with the accounting records and returns,. or we have not received all the information and explanations we require for our audit. Responsibilities of Trustees As explained more fully in the Trustees, responsibilities statement, the Trustees are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view. and for suth internal control as the Trustees determines is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error. In preparing the financial statements, the Trustees are responsible for assessing the Group's and the Parent Charity's ability to continue as a going concern, disclosing, as applicable. matters related to going concern and using the going concern basis of accounting unless the Trustees either intend to liquidate the Group or the parent Charity or to cease operations, or hève no realistic alternative but to do so. Auditorfs responsibilities for the audit of the financlal statements We have been appointed as auditor under section 144 of the Charities Act 2011 and report in accordance with the Act and relevant regulations made or having effect thereunder. Our objectives are to obtain reasonable assurance about whether the financial statements as a whole ère free from material misstatement, whether due to fraud or error, and to Issue an auditols report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAS IUKI will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individLFally or in the aggregate, they could reasonably be expected to influente the economic decisions of users taken on the basis of these financial statements. 22

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Independent Auditors, Report for the year ended 31StJuly 2021 (continued) Audltorfs responsibillties for the audlt of the financlal statements (continued) Extent to which the audit wos copoble oldetectin9 irregulorities, includingfroud Irregularities. including fraud. are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below.. Based on our understanding of the Charity and the industry in which it operates, we identified that the principal laws and regulations that directly affect the financial statements to be the Charities Act 2011 and relevant tax legislation. We assessed the extent of compliance with these law5 and regijlations as part of our procedures on the related financial statement items. In addition the Charity is subject to many other laws and regulations where the consequences of non- compliance could have a material effect on amounts or disclosures in the financial statements. for instance through the imposition of fines or litigation. We identified the following areas as those m05t likely to have such ari effect.. Employment Law, Health & Safety Legislation and Data Protection. Auditing 5tarsdards limit the required audit procedures to identify non-compliance with these laws and regulations to enquiry of the Trustee5 and other management and inspection of regulatory and legal correspondence if any. There are inherent limitations in the audit procedures performed and the further removed non-compliance wilh laws and regulation5 is from the events and transactions reflected in the financial statements, the le55 likely we are to become aware of it. Our audit procedures were designed to respond to risks of material misstatement in the financial statements, recognising that the risk of not detecting a material misstatement due to fraud is higher than the risk of not detecting one resulting from error, as fratjd may involve deliberate toncealment by. for example, forgery, misrepresentations or through collusion. There are inherent limitations in the audit protedures performed and the further removed non-compliance with laws and regulations is from the events and transattions reflected in the financial statements, the less likely we are to become aware of it. Audit procedures capable of detectin8 irregularities including fraud performed by the engagement team included.. performing analytical procedures to identify unusual or unexpected relationships that may indicate risks of material misstatement due to fraud. Areas of identified risk are then tested substantively,. discussions with management, including consideration of any performance incentives and remuneration arrangements, known or suspected instances of non-compliance with laws and regulation5 and fraud- reading minutes of meetings of those charged with governance,. internal audit reports, reviewing correspondence with regulatory bodies and from legal advisors to identify indications of non- compliance with law5 and regulations or any potential weaknesses in internal control which could result in froud susceptibility,. assessing the ijesign and implementation of the control environment to identify areas of material weakness to focus the design of our audit testing. reviewing financial statement disclosures and testing to supporting documentation to assess compliance with applicable laws and regulations,. enquiries as to whether there have been any serious incident reports or correspondence with the Charity Regulators and reviewing and assessin8 the impact of any reports or correspondence- 23

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST st Independent Auditors, Report for the year ended 31 July 2021 {contlnued) Auditorf5 responsibilities for the audit of the financlal statements (continued) Extent to which the oudit W¢75 capable of detecting irregularities, includingfraud (continued) challenging assumptions made by management in their significant accounting estimates in particular allocation of costs, useful economic lives and impairment considerations, pension scheme assumptions, going concern assumptions,. in addressing the risk of fraud through management override of contro15, testing the appropriateness of journal entries and other adjustments in particular any journals posted by senior management,. and in addressing the risk of fraud in income recognition we considered management's incentives and opportunities for fraijdulent manipulation of the financial statements and designed specific audit tests to respond to this risk, in particular, tests to address the completeness of income risk. Oijr audit procedures were designed to respond to risks of material misstatement in the financial statements, recognising that the risk of not detecting a material misstatement due to fraud is higher than the risk of not detecting one resulting from error, as fraud may involve deliberate concealment by, for example, forgery, misrepresentations or through collusion. There are inherent limitations in the audit procedures performed and the further removed non-compliance with laws and regulations is from the events and transactions reflerted in the financial statements, the less likely we are to become aware of it. A further description of our responsibilities for the audit of the financial statements is located at the Financial Reporting Council's I"FRC's"I website at.. htt www.lrc.or .uk forms part of our auditor'5 report. auditorsres onsibilitie5. This description Use of our report This report is made solely to the Charivs trustees, as a body, in accordance with the Charities Act 2011. Our audit work has been undertaken so that we might State to the Charity's trustees those matters we are required to state to them in an aijditorfs report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the Charity and the Charity's trustees as a body, for our audit work, for this report, or for the opinions we have formed. DocuS*Mdby'. LLP D4154ED7sD4￿53 Heather Wheelhouse (Senior Statutory Auditorl For and on behalf of BDO LLP, statutory auditor Gatwick 03 February 2022 BDO LLP is eligible forappointmer7t as auditor of the charity by virtue of its eligibility forappointment as auditor of a company under section 1212 of the Companies Act 2(R)6. BDO LLP is a limited liability partnership registered in England and Wales (with registered number OC3051271. 24

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Consolidated Balance Sheet as at 31" July 2021 Charlty numbèr.. 311877 Balance Shèet 2021 2020 Note Fixed assets Tangible assets Investments £'ooo £'ooo 21.459 io 21,632 Current a$5ets Debtors Cash at bank and in hand 21,459 21.633 li 1,907 4.835 6.742 1,437 5.614 7.051 Credltors.. amounts falling due withln one year Net current assets 12 {2,0901 11,9971 4,652 5,054 Total a55ets lèss current liabilities & Net a55ets excludin8 pension scheme liabilltv 26.111 26.687 Defined benefit pension scheme liabilitv Net assets includinB pension scheme liablllty 13 18,8881 17.223 19,6251 17.062 Funds Restricled funds: Revenue 14 530 475 Unrestrirted funds: Funds representing funrtional fixed assets Free reserves Pension reserve 530 475 15 15 15 21,459 4.122 18.8881 21,632 4,580 19,6251 Total fund5 16,693 17.223 16,587 17,062 The financial statements weie èpproved by the Board and authorised for issue on Jane Ramsey Trustee a 3/¢9 2/2tr2 2 The notes on pages 29 to 48 form part of these financial statemènts. 26

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Charity Balance Sheet as at 31st July 2021 Charity number: 311877 2021 2020 Note £'ooo £'ooo Flxed assets Tangible assets Investment5 21,459 21.632 io 21,459 21.633 Current assets Debtors Cash at bank and in hand li 1,919 4,829 6,748 1,448 5,607 7,055 Credltors.. amounts fallin8 due wlthin one year Nèt currènt assets 12 12,0881 11.9941 4,660 5.061 Total asset5 le55 current Ilabllities & Net assets excluding pènsion scheme liabS11ty 26,119 26.694 Defined benefit pension Scheme liability 14et assets Includlng pension scheme liability 13 18.8881 17,231 19,6251 17,069 Funds Restrirted funds.. Revenue 14 530 475 530 475 Unrestrlcted funds: Funds representing functional fixed asset5 Free feserves Pension reserve 15 15 Is 21,472 4.117 18.8881 21.632 4.587 19,6251 16,701 17,231 16,594 17.069 Total funds The financial statements were approved by the Board and authori5ed for i55ue on lane Ramsev Tru5teÈ 03/02/3tyZ2 The notes on pages 29 to 48 form part of these f¢nancial statements. 27

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Consolidated Statement of cash flows for the year ended 315t July 2021 2021 2020 £'ooo Note Cash flows from operating activities". Net cash used in operating activities 17 1121 11401 Cash flows from investment activities: Dividends and interest received Purchase of tangible fixed assets 31 18991 (770) Net cash used in investing artivities 17671 18681 Cash flows from financing artivities: Loan Repayment Net Cash flows used In financing activitles 12671 12671 Change in cash and cash equivalents in the reporting period Cash and cash equivalents brought forward 17791 11,2751 5.614 6,889 Cash and cash equivalents carried forward 4,835 5,614 No reconciliation of net debt has been prepared as the Charity only holds tash and cash equivalents. 28

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financial Statements forthe year ended 31st July 2021 Notes to the Financlal Statements Charity ststUS The charivs sole trustee is The National Centre for Young People with Epilepsy 1.the corporate TrLtstee"I, a company which is limited by guarantee, the liability of eath member in the event of the company winding up 15 limited to £1. The registered office of the corporate Trustee is St Piers Lane, Lingfield, Surrey RH7 6PW. The charity is registered with the Charity Commission and constitutes a public benefit entity as defined by FRSIO2. Accounting polici al The financial statements have been prepared under the historical cost convention, as modified by the revaluation of investments, and are in accordance with the Statement of Recommended Practice.. Accounting and reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFR51021 Ithe'SORP'I, FRS nd 102.. The Financial Reporting Standard applicable in the UK and Ireland I'FRS 102,112 Edition). the Charities Act 2011 and UK Generally Accepted Practice as it applie5 from l January 2015. The preparation of the financial statements in accordance with FRS102 requires the Trustees to make judgement5, estimates and assumptions that affect the application of policies and reported amounts in the financial statements. The areas where assumptions or estimates were significant to the financial statements are disclosed in note 2 below. The financial Statements are drawn up on the going concern basis which assumes Young Epilepsy will continue in operational existence for the foreseeable future. Young Epilepsy substantiallv relies on funding from local authority contracts for its current and future commitments and we seek to manage the risks around this income stream. The Trustees believe the contracts we have in place with local authorities will be fulfilled and the planned income for the coming years will be received. During the year when the impact of COVID-19 pandemic hit the country, our income from local authorities was only minimally impacted which is why we believe that our financial position will not be negatively affected. The other areas of income which formed less than 12% of total income in 2020-21 are health se¢vices provided to external clients, and fundraised income. These were affected by the pandemic in the year but have since picked-up as the country comes OLFt of lockdown. The going concern basis used in the preparation of these financial statements is based upon the expectation that Young Epilepsrfs net income or net expenditure are at è level to ensure reserves and cash flow requirements are met. The Trustees have reviewed our financial position and financial forecasts, taking into account the levels of debt, cash, working capital, net current assets and the systems of financial control and risk management. The Trustees believe that we are well-placed to manage operational and financial risks Successfully. Based on their work, the Board considers Young Epilepsy's current and forecast cash resources to be sufficient to cover the working capital requirements of the charity for at least 12 months from the date of signing the accounts and has determined that it remains appropriate to continue 29

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Flnancial Ststements for the year ended 31. July 2021 {continued} Accounting policles (continued) to adopt the going concern basis in preparing the accounts. bl Consolidatlon The statement of financial activities (SOFA) and the balance sheet consolidate the financial statements of the charity and its subsidiary undertaking (see note 191. The results of the subsidiary are consolidated on a line by line basis. No separate SOFA has been presented for the charity alone as permitted by paragraph 397 of the SORP 21KI5. cl Income Income is accounted for on an accruals basis. except cash donations which are accounted for when received. Income received net of taxation recoverable is accounted for gross. Fee income from contrarts is accounted for with regard to any in-year admissions and leavers along with any contractual reviews of Se￿iCe levels. Legacy income is recognised when there is entitlement to the monies, probability of receipt and the amount due is able to be measured reliably. Grants receivable based on performance are accounted for as the Charity earns the right to consideration by its performance. Where income is received in advance of performance its recognition is deferred and included in creditors. Where entitlement occurs before income 15 received the income is accrued. dl Expenditure Expenditure is accounted for on an accruals basis. Costs are attributed directly to activities where possible on either actual or estimated time ba515. Indirett costs are shown as support costs, where these relate to the infrastructure in which charitable services are provided, including gaining support for the furtherance of the charity's objectives. Governance costs comprise those costs incurred in the governance of the charity arld its assets and are primarily associated with constitutional and statutory requirements. el Investments Listed investments are shown at market value. Realised and unrealised gains on listed investments are taken to the fund to which they relate in the Statement of Financial Activities. Investments in subsidiary undertakings are stated at cost. Depreciation Capital asset5 Costing below £l,(XM) have been written off in the year in which the expenditure is incurred. Assets above £l,CW are capitalised in the balance sheet. Depreciation has been provided on tangible and intangible fixed assets at the following rates which are anticipated to reduce their cost to residual value by the end of their expected useful lives. Land has not been depreciated. Plant and Machinery Computer Software Computer Equipment Motor Vehicles Buildings 20% on cost 20%on cost 20% on cost 25% oll cost 1%-7% on c05t 30

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARffABLE TRUST st Notes to the Financial Statements for the year ended 31 July 2021 Icontlnued) Accounting policies (continued) fl Depreciation (continued) Within Buildings, individual components are depreciated over the useful economic life as follows.. Construrtion Roof Lift Bathroom Windows & Door5 Heating Kitchen Air Conditioning Boiler ItKJ years 55 years 50 years 30 years 30 years 30 years 20 years 15 years 15 years Donated fixed assets are capitalised at their open market values at time of donation and depreciated in line with the above rates. Restricted fund amounts used to purchase tangible fixed assets are transferred to funds representing functional fixed assets at the time the assets are acquired. g} Penslons The charity has three principal pension Schemes for staff, the St Piers Lingfield Retirement Benefits Scheme, the Teachers, Pension Scheme ITPSI and The Pensions Trust. The first two schemes are defined benefit schemes, which afe externally funded and contrarted out of the State Second Pension. St Piefs iingfield Retlrement Beneffts Scheme During the year. the charity operated a defined benefit scheme, which had been closed to new members on 7th April 21)00, hence any liabilities will be restricted to current members only, and this number will decline over time. The difference between the fair value of the assets held in the St Piers Lingfield Retirement Benefits Scheme and the scheme's liabilitie5 measured on an artuarial basis using the projected unit method are recognised in the Charity's balance sheet as a pension scheme asset or liability as appropriate. The carrying value of any resulting pension scheme asset is restricted to the extent that the Charity is able to recover the surplus either through reduced tontributions in the future or through refunds from the scheme. The pension scheme balance 15 recognised net of any deferred tax balante. Teachers, Pension Scheme Pension costs in respect of the TPS charged to the SOFA are equal to the contributions paid to this arrangement. The contribution rate is calculated in such a way that it 15 a substantially level percentage of current and future pensionable payroll. Not less than every four years, with a supporting interim valuation in between, the Government Actuary conducts a formal actuarial review of the TPS in order to specify the level of future contributions. Changes in the defined benefrt pension scheme asset or liability arising from factors other than cash contributions by the Charity are charged to the SOFA in accordance with FRS 102 section 28. 31

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financial Statements for the year ended 31" July 2021 Icontlnued) Accounting policies (contlnued) Teachers, Pension Scheme Icontinuedl Under the definitions set out in Financial Reporting Standard 102 section 28, the Teachers Pension scheme is a multi-employer pension scheme. The charity is unable to identify its share of the underlying assets and liabilities of the scheme. Accordingly, the charity has taken advantage of the exemption in FRS 102 section 28 and has accounted for its Colltributions to the scheme as if it were a defined contribution scheme. h) The Pensions Trust A money purchase pension scheme with The Pensions Trust is available to all member5 of staff. Fund accountlnz The treatment of restricted and designated funds are explained in notes 14 and 15. Accounting estimates and key managernent judgements Accounting estimotes ond jud9ements In preparin8 the financial statements within the accounting frameworks set out in note 2, the Trustees are required to adopt those accounting policies most appropriate to the charity's circumstances with a view to presenting fairly the charit￿5 financial position. In determining and applying accounting policies Trustees make estimates and judgements and the matters Set out below are considered to be the most important in UfFderstandin8 the judgements that have been involved in preparing the financial statements and the uncertainties that could impact the amounts reported. Estimotion of 055ets useful lives The charge in respect of periodic depreciation is derived from determining an estimate of an assets expected useful life and the expected residual value at the end of it5 life. The estimates of the live5 by asset category are set out in riote 21fj. The useful lives and residual values are determined by management at the time the asset is acquired and reviewed allnually for appropriateness. Provisionfor doubtful debt5 Provisions have been made against specific invoiced debt5 where the collectability of these debts is uncertain taking into account their age. activity on the account and any correspondence. Actuorit710ssumptions in respect of defined benefit pension scheme The application of actuarial assumptions relating to the Defined Pension Scheme is incorporated in the financial statements in accordance with FR5102. In applying FRS102. advice has been taken from an independent qualified actuary. In this context, significant judgement is exercised in number of areas, including future change. 32

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financial Statements for the year ended 31StJuly 2021 (contSnued) Donations and legacies 2021 2020 £,￿0 DonatiOnS Projects and residential house funds Youth Development funds BBC Children in Need- London Transitions Unrestricted income Research Funds EFA 85 224 75 172 35 550 190 147 1,169 380 371 228 1,288 Legacies Leslie Callender Barbara Abbott Stanley Davies Other 115 14 117 22 Total Donation5 and Legacies 1,405 1,191 The legacies are final payments from legacies received in previou5 years and are unrestricted income. Investment Income 2021 2020 E'OOO Interest from bank deposit account 31 31 Employees 2021 2020 £'ooo Staff costs consist of- Wages and salaries Social security costs Other pension costs 16,865 1.348 1,102 19,315 17,208 1,373 1,210 19,791 Included within wages and salaries are agency costs of £1,859,38412020- £2,255,614) incurred during the year. 33

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST 5t Notes to the Financial Statements for the year ended 31 July 2021 (continued) Employees {continued) Employer's pension costs comprise the following: 2021 2020 Teachers pension scheme Defined contribution scheme Defined benefit scheme Deficit repayment for defined benef it scheme 507 12441 637 512 1,210 The defined benefit scheme includes £304,000 credit12020- £31,000 debit) relating to the St Piers Lingfield Retirement benefit scheme. The average number of employees during the period was: 2021 No. 210 274 62 92 2020 No. 207 Teaching and Education Support Staff Residential Care Medical and Clinical Staff Other staff 69 81 637 Full time equivalent 523 Number of staff with total remuneration lincluding settlements and benefits but excluding pensions) greater than £60,000 in bands of £lO,OOO'. 2021 No. 2020 No. £60,001-£70,000 £70,001-£80,000 80,(X)1.£90,OLK) £9O,(kll-£lOO,￿O £ioo,cK)i.£iio,000 £120,001-£130,000 £130,001-£140.0 16 16 Contributions mède in the year for the provision of money purchase berTrefits on behalf of 1312020- 111 higher paid employees was £41,90712020 - £36,1061. There are 2 12020- 31 higher paid staff to whom retirement benefits are accruing under defined benefit scheme5. The total remuneration paid to the Executive team amounted to £788,35712020- £718,2761. 34

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY cHAR￿ABLE TRUST Notes to the Financial Statements for the year ended 31" July 2021 Icontinued) Total Expenditure Educational, Medical, Residential Care 2021 Total 2020 Total £'ooo Fundraisin8 Staff costs Other direct expenditure Support staff costs Support costs Auditorf5 remuneration Depreciation 2021 Total 15,864 905 3,079 3,567 35 943 24,393 366 35 16,Z30 940 3,079 3.567 35 16,740 1.061 3,045 4,062 39 856 401 24.794 25,803 2020 Total 25,372 431 25,803 Auditorfs remuneration relates solely to audit related Se￿iCe5 and is inclusive of Value Added Tax where not recovered. Included in expenditure are governance costs amounting to £67,964 12020 - £91,905) which relate to audit fees, legal advice for trustees and costs associated with constitutional and statutory requirements. Direct costs are allocated to the fundraising team, but all other support costs are allocated to Education, Medical and Educational Care which generate the majority of our income. Trustees, transartions The Trustees do not receive any remuneration in respect of their services. Three Trustees12020 61 received expenses reimbursed in line with the Tru5tee5 Expenses Policy amounting to £15112020- £1,392). Further costs incurred on behalf of Trustees relate to Trustees indemnity insurance costs of £9,24012020- E5,6241. Taxation The organi5ation is considered to pass the tests set out in Paragraph I Schedule 6 Finance Act 2010 and therefore it meets the definition of a charitable trust for UK income tax purposes. Accordingly, the charity is potentially exempt from taxation in respect of income or capital gain5 received within categories covered by Chapter 3 of Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied. The subsidiary trading company makes qualifying donations of taxable profit to the charity to the full extent allowable. Unless material any corporation tax liability arising in the subsidiary is included within the expenditure by the Group. 35

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THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financlal Statements for the year ended 31" July 2021 (continued) 10 Investments Group and Charity 2021 2020 Market value as at l August Market value as at 31 July The investments are analysed as follows.. Group and Charity 2021 2020 £'ooo Building Society Deposits Group and Charity 2021 2020 £'tK)O Cash on deposit in UK Market value as at 31 July 2021 The Charity has a £100 investment in a 100% owned subsidiary, 5t. Piers (Services) Limited. 11 Debtors Group 2021 Charity 2021 2020 £'ix)o 559 2020 £'ooo 559 62 Operating debtors Amounts owed from subsidiary undertaking Other debtors Loan Accrued income and prepayments 932 932 13 265 266 55 823 1,437 823 1,448 1.907 1,919 All amounts shown under operating debtors fall due for payment within one year. 12 Creditors: amounts falling due within one year Group 2021 Charity 2020 2021 £'o(N) £'o 2020 £'ooo Loan Operating creditors Accruals and deferred income 509 1,581 2,090 600 1,396 1,997 509 1,579 2,088 600 1.393 1,994 38

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Flnancial Statements for the year ended 31" July 2021 Icontlnued) 13 Pension Schemes St Plers Ungfield Retirement Benefits scheme The Charity operates the St Piers Lingfield Retirement Benefits Scheme 1.the Scheme"), a UK registered trust based pension scheme that provides defined benefits. Pension benefit5 are linked to the members, final pensionable salaries and service at their retirement lor date of leaving if earlier). The Pension Scheme Trustee is responsible for running the Scheme in accordance with the Scheme's Trust Deed and Rules, which sets out their powers. The Pension Scheme Trustee is required to act in the best interests of the beneficiaries of the Scheme. There are three categories of pension scheme members: active members: currently employed by the Employer,. deferred members.. former active members of the Scheme who are not yet in receipt of pension; and pensioner members.. in receipt of pension. The Pension Scheme Trustee is required to carry out an actuarial valuation every 3 years. The last actuarial valuation of the Scheme was performed by the Scheme Actuary for the Pension Scheme Trustee as at 5 April 2019. This valuation revealed a funding shortfall of £6,528,OCKJ. The Employer agreed to pay annual contributions of 27.3% of members, pensionable salaries, less Employee contribution5 of 8.25% of members, pensionable salaries, each year to meet the cost of future setvice accrual. In respect of the deficit in the Scheme as at 5 April 2019, the Employer has agreed to pay the following contributions.. Year beginnlng I" August Contributions 2020 2021 2022 2023 2024 2025 2026 2027 2028 2029 500 6(X) 625 630 645 665 685 705 730 750 The Employer has also agreed to pay additional contributions equal to 20Yo of audited Net Income in excess of £0.5m each year. The additional contribution in any year will be limited in value to the remaining payments outstanding on the July 2020 recovery plan, or such subsequent recovery plan as is put in plate, less any additional contributions already made under the 2020 agreement. In addition, the Employer will pay £10,000 per month to cover administration expenses and 3.0% of members, pensionable salaries each year to meet the premiums for death in service lump sums associated with the Scheme. 39

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financial Statements for the year ended 31st July 2021 Icontlnued 13 Pension Scheme5 (continued) St Piers Lingfield Retirement Benefits Scheme (continued) The Employer therefore experts to pay a minimum of £776,589 to the Scheme during the accounting year beginning l AuEUSt 2021 based on a pensionable salary payroll of £256,639 as at the 31" July 2021. The results of the most recent formal actuarial valuation as at 5 April 2019 have been updated to 31 July 2021 by a qualified independent actuary. The assumptions used were as follows: 2021 cont artuorlal 05sum Discount rate Inflation IRPII Inflation ICPII Other urtuoriolassum tlons.. Rate of increase in salaries Rate of increase in pensions: Non Pensioners- Pre 05 benefits Non Pensioners- Post 05 benefits Pensioners- Pre 05 benefits Pensioners- Post OS benefits Revaluation of deferred pensioners in exce55 of GMP 2020 tlons.. 1.5% 3.4% 2.5% 1.3% 3.0% 2.0% 2.1￿% 3.30% 2.50% 3.30% 2.50% 2.50% 2.90% 2.50% 2.90% 2.50% 2.00% The demographic mortality assumptions adopted at 31st July 2021 imply the following life expectancies at age 65: Mortali Mortality 2021 2020 assum tion5.' 53PMA/S3PF A CMI 2019 1.25% S3PMA/S3PFA CMI 2019 1.25% Ll eex ertonaes.. Male currently age 45 at 65 Female currently age 45 at 65 Male currently age 65 Female currently age 65 22.6 years 25.2 years 21.3 years 23.7 years 22.6 years 25.2 years 21.3 yeafs 23.6 years Under FR5102 the expected return on the schemes assets is now assessed using the discount rate underlying the valuation of the schemes liabilities, which is based on AA rated corporate bond yields. At 31 July 2021 the discount rate used to calculate the schemes liabilities and hence the assumed rate of return on the Schemes assets was 1.5% p.a.12020- 2.0%). 40

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST st Notes to the Financial Statements for the year ended 31 July 20211contlnued) 13 Pension 5chernes {continuedl St Piers LinEfield Retlrement Benefits Scheme {continuedl Value at 2021 assets Value at 2020 a55ets f'OOO %of total Scheme %of total Scheme The fair value of the assets in the scheme were.. Bonds Gilts Cash Annuities Other Total market value of assets Present value of scheme liabilities Net pension liability 1,399 4.726 24 1.307 8.285 15.741 124,629) (8,888) 1,395 4,804 19 1,479 7,701 15,398 125.0231 19,6251 31% 0% 8% 53% 50% 2021 2020 £'ooo The actual return on assets over the period was: 572 1,060 Interest income Return on assets less interest income Total return of assets 199 373 291 769 572 1,060 2021 2020 Anolysis of changes in the vulue of the scheme liobilities over the yeor.. Opening present value of the defined benefit obligation Service cost Interest cost Member contributions Benefit5 paid Actuarial gainlllossesl Closing present value of the defined benefit obligation 125.023) iioo) 1321) {23) 778 60 124,6291 122,9041 1981 14521 1231 719 12,2651 125,0231 Analysis of changes in the value of the scheme 05sets over the year.. Opening market value of Scheme assets Expected return on Scheme assets (excluding interest incomel Interest income Employer contributions Member contributions Benefits paid Administration expenses Closing market value of Scheme assets 15,398 373 199 14,806 769 291 473 23 17191 12451 15,398 23 17781 11541 15.741 41

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financial statements for the year ended 31. July 2021 (continued) 13 Pension Schemes Icontlnued) St Piers Lingfield Retirement Benefits Scheme (continued) 2021 £,0￿ £.￿xI 2020 E'ooo £'cx)o Anolysis of the cmount5 charged to Stotement of Financiol Activities.- Current service cost Administration expenses Total seNice cost Net finance charge Total pension cost char8ed to Statement of Financial Activities 11001 (154) 1981 12451 {254) 11221 (376) 13431 11611 15041 2021 2020 Analysis of actuarial gainlllossl recognised in the Statement of Financial Activities Actual return on assets less interest Actuarial gains/llos5esl on defined benefit obligation Total gain/llos51 recognised in the Statement of Financial Activities 373 60 433 769 12,2651 11,4961 2021 2020 £'ooo Movement in deficit during the yeor.. Deficit in scheme at the beginning of the year Movement in year.. Current seryice cost Administration expenses Net finance char8e Contributions Return on assets excluding interest income Actuarial gain/llossesl IDeficitl in scheme at end of year (9,625) 18,0981 (1001 1154) (122) 680 373 1981 12451 11611 473 769 12.2651 19,6251 (8.888) Teachers. Pension Scheme Under the definitions set out in Finèncial Reporting Standard 102 sertion 28, the Teacher'5 pension scheme ITPSI is a multi-employer pension scheme. As the TPS is underwritten by central government and the Charity has no future obligation to make contributiOf7S to the scheme, this is effectively a defined contribution scheme in so far as it affects the charity. As a result, contributions to this scheme are accounted for as if the scheme was a defined contribution scheme. The charity has set out below the information available on the Scheme and the implications for the charity in terms of the anticipated contribution rates. The employers, contribution rates for the charity's academic staff were 23.68% of pensionable salaries throughout the year12020- 23.68%1. 42

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST St Notes to the Financial Statements for the year ended 31 July 2021 (continued) 13 Pension Schemes (continued) St Piers Lingfield Retirement Benefits Scheme (continued) The Teachers. Pension Scheme is a statutory, contributory, unfunded, defined benefit scheme. The regulations under which the TPS operates ère the Teachers, Pensions RegLtlations 1997, as amended. Contributions are credited to the Exchequer on a 'pay as you go" basis under arran8ements governed by the Superannuation Act 1972. A notional asset value is ascribed to the Scheme for the purposes of determining contribution rates. The Government Actuary's report of March 2019 revealed that the total liabilities of the Scheme Ipensions currently in payment and the estimated cost of future benefits) amounted to £218.1 billion. The value of the assets lestimated future contributions together with the proceeds from the notional investments held at the valuation datel was £196.1 billion. The assumed real rate of return is 2.4% in excess of prices. The rate of real earnings growth is assumed to be 2.2%. The assumed gross rate of return is 4.45%. 14 Restricted funds- Group and charity Asat 31 Julv 2020 Asat 31 July 2021 Income £,￿0 Expenditure E'ooo Transfer £￿0 Revenue Research Funds Fidelity UK Foundation - Digital Project Youth Development Funds True Colours Trust- Epilepsy Infanry BBC Children in Need - London Transitions Other funds EFA grants Restricted funds wholly represented by net current assets 157 371 1601 13041 164 96 72 21 123 ioi 1721 io 147 85 20 1981 151 1821 11601 14061 123 85 228 1431 1381 14471 83 31 475 908 530 43

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Flnancial Statements for the year ended 31" July 2021 (continued) 14 Restrirted funds- Group and charity (continued) Asat 31July 2019 £'ooo Asat 31July 2020 £'LK)O Income Expenditure £'ooo Transfer £￿0 Revenue Research Funds Big Lottery Project- CEIS Fidelity UK Foundation - Digital Project National Services Programmes True Colours Trust - Epilepsy Infancy BBC Childre[7 in Need - London Transitions Other funds EFA grants Restricted funds wholly represented by net current assets 113 151 190 11461 157 96 96 72 21 13 56 75 Iiii 1351 151 35 76 147 1371 1611 1711 13611 355 138 12471 12131 14601 123 677 619 475 Fund accounting Where funds are received for specific purposes set out by the donor or implied by the terms of appeal, these are shown as restricted income in the Statement of Financial Activities. Expenditure for the purposes specified is applied against the income and any amounts unexpended at the balance sheet date are shown within restricted funds. 44

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST st Notes to the Financial Statements for the year ended 31 July 20211continued) 15 Unrestrirted fund5 Net movement on unrestricted funds £'ooo Asat31 July 2020 £'ocx) Asat31 July 2021 Transfers £'ooo Group Funds representing functional fixed assets 21,632 4,580 19,6251 16,587 11731 19051 737 13411 21,459 4,122 18,8881 16.693 Free reserves Pension reserve Total unrestricted funds 447 447 Charity Funds representing functional fixed assets and amount owed from subsidiary companv Free reserves Pension reserve Total unrestrirted funds 21,632 4,587 9,6251 16,594 11601 19171 737 13401 21.472 4,117 18,8881 16,701 447 447 A5at31 July 2019 restated £'ooo Net movement on unrestricted funds £'CKJO Asat31 July 2020 Transfers £'ooo Group Fund5 representing functional fixed assets 21,589 4,883 18,0981 18,374 43 21,632 4,580 19,6251 16,587 Free resetves Pension reserve Total unrestrlcted funds 17201 11,5271 12,2471 417 460 Charlty Funds representing functional fixed assets and amount owed from subsidiary company Free reserves Pension reserve Total unrestricted funds 21,589 4.888 18,0981 18,379 43 417 21,632 4,587 19,6251 16,594 17181 11,5271 12,2451 460 45

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Flnanclal Statements for the year ended 31" July 2021 (continued) 16 Analysis of net assets between funds 2021 Restricted Funds Unrestrirted Funds Totsl Funds Group Tangible Fixed Assets Net Current Assets Total Assets Less Current Liabilities Defined Benefit Pension Scheme Liability Net Assets 21,459 4.122 25.581 18,8881 16,693 21,459 4,652 26,111 18.8881 17,223 530 530 530 Charity Tangible Fixed Assets Net Current Assets Total Assets Less Current Liabilities Defined Benefit Pension Scheme Liability Net Assets 21,459 4,130 25,589 {8,888} 16,701 21,459 4.660 26.119 (8.888) 17,231 530 530 530 2020 Restricted Funds £000 Unrestricted Funds Total Funds Group Tangible Fixed Assets Investments Net Current Asset5 Total Asset5 Less Current Liabilities Defined Benefit Pension Scheme Liability Net Assets 21,632 21,632 4,579 26.212 19,6251 16,587 475 475 5,054 26,687 19,6251 17,062 475 Charity Tangible Fixed Assets Investments Net Current Assets Total Assets Less Current Liabilities Defined Benefit Pension Scheme Liability Net Assets 21,632 21,632 4,586 26,219 19,6251 16,594 475 475 5,061 26,694 19,6251 17,069 475 46

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financial Statements for the year ended 31" July 2021 (continued) 17 Reconciliation of net expenditure to net cash flow from operatin8 activities 2021 2020 f'(X)O Net expenditurefvr the reporting period Adjustments for.. Depreciation Adjustment for pension funding Dividend and interest from investments Increase in debtors Increase/Decrease in creditors Net cash decrease provided by openyting artlvltles 1272) 14931 856 (304) {3} 14701 31 1311 15021 1121 11401 18 Operating Leases Total minimum lease payments.. 2021 2020 £'ooo 40 13 53 Within one year Within two to five years 13 15 19 Subsidiary company The charity owns the whole of the issued ordinary share capital of St Piers (Services) Limited, a company registered in England. The subsidiary is used for noll-primary purpose trading activities, namely to develop facilitie5 for disabled children. All activities have been tonsolidated on a line by line basis in the SOFA. The results below are for the period to 31 July 2021. 2021 2020 £'ooo Turnover Cost of sales/administrative expenses Net loss {21 121 121 2021 2020 The aggregate of the assets, liabilities and funds was.. Assets 58 11,1211 11.115) 11.1711 11,1131 The National Centre for Young Epilepsy is a trust corporation and acts as a trustee forthe National Centre for Young People with Epilepsy Charitable Trust. The only transactions between the charity and the subsidiary during the year was the repayment of f 50k of the intercompany loan. 47

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST Notes to the Financ4al Statements for the year ended 31.july 2021 (continued} 20 Related Party Transartions At the balance sheet date the amount due from subsidiary was £12,53712020.. £62,537). 21 Results of Parent Company Included in the con501idated statement of financial activities are the following amounts in respect of the charity.. 2021 2020 £'o Total income Total expenditure Actuarial gainlllossl on defined benefit pension scheme Net movement in funds 24,522 124,793) 433 25,309 125,8(M)I 11,4961 11,9871 162 22 Post balance Sheet Events On the 22nd of December 2021, Young Epilepsy signed an agreement for the sale of a maximum of 149,188 square feet of land. The exact amount of land sold, and the amount payable are dependent upon planninE conditions. This agreement is a non-adjuslable event as it took place after the year end. However, it is material enough to warrant inclusion in the financial statement5. 48