The
Haemophilia
Society
Th•
Soelety
&.V
Annual '
report
and financial
statement 2021122
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|Subcommittees|Subcommittees|Subcommittees||
|---|---|---|---|
|Einonce GRisk Committee|||Gordon Dixon - Chair|
||||Olive Smith|
||||Conan Mcllwrath|
||||Susan Stretch|
||||Rayaz Ali Chal|
|ffominotions|Committee||Gordon Dixon|
||||Clive Smith|
|Public Inquiry|Committee||Olive Smith —Chair|
||||Barry Flynn|
||||Eileen Ross|
||||Paul Sartain|
||||Conan Mcllwrath|
||||Susan Stretch|
|Clinical Advisory||Group|Or Rezan Abdul-Kadir|
||||DrSusie Shapiro|
||||Tom Burke|
||||Robert James|
||||Dr Kate Khair|
||||Prof Mike Laffan|
||||Prof Mike Makris|
||||Andrew<br>Martin|
||||Debra Pollard|
||||David Stephenson|
||||Musrat<br>Pinnu|
|Company Secretary|||Paul Sartain|
|Bankers|||NatWest<br>Bank|
||||London Bridge|
||||PO Box35|
||||10Southwark Street|
||||London|
||||SE11TJ|





|Solicitors||||Eversheds<br>Sutherland|
|---|---|---|---|---|
|||||1Wood Street|
|||||London|
|||||EC2V7WS|
|Auditors||||Azets Audit Services|
|||||2nd Floor, Regis House|
|||||45 King William Street|
|||||London EC4R 9AN|
|Registered Office||||52b Borough High Street|
|||||London|
|||||6E11XN|
|Company registration||number||01763614|
|Charity registration|number|||288260|
|Scottish charity registration|||number|60039732|





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|Yearended|3|1Mar|ch|2022|||||
|---|---|---|---|---|---|---|---|---|
||||||ROR2|||202'f|
|||||Unrestricted|Restricted|Endowment|||
||||Note|funds<br>f|funds|funds|Total|Total|
|Income and endowments||from:|||||||
|Donations<br>and legacies|||2|391,600|192,791|250|584,641|657,323|
|Charitable<br>activities||||54,138|66,121||120,259|76,691|
|Investments||||34,467|1,071||35,538|41,577|
|Other||||8,790|200||8,990|39,364|
|Total income and endowments||||488,995|260,183|250|749,428|814,955|
|Expenditure<br>on:|||||||||
|Raising funds|||5|201,704|85,471||287,175|115,220|
|Charitable<br>activities|||6|675,910|219,925||895,835|656,298|
|Total expenditure||||877,614|305,396||1,183,010|771,518|
|Net (losses) / gains|on investments|||30,839|||30,839|111,609|
|Net income /(expenditure)|||9|(357,780)|(45,213)|250|(402,743)|155,046|
|Transfersbetweenfunds|||||||||
|Net movement<br>in funds||||(357,780)|(45,213)|250|(402,743)|155,046|
|Reconciliation offunds:|||||||||
|Totalfunds<br>brought|forward|||1,405,593|151,007|14,750|1,571,350|1,416,304|
|Total funds carried|forward|||1,047,813|105,794|15,000|1,168,607|1,571,350|





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|Yearended|31March 2022||||
|---|---|---|---|---|
|||Note|2022<br>f|2021<br>f|
|Fixed assets|||||
|Tangible assets||13|9,189|11,084|
|Investments||14|1,026,391|1,395,552|
||||1,035,580|1,406,636|
|Current assets|||||
|Debtors||15|90,936|181,251|
|Cash at bank and in|hand||130,997|56,016|
||||221,933|237,267|
|Creditors: amounts|falling due within one year|16|i88,906)|(72,553)|
|Net current assets|||133,027|164,714|
|Net assets|||1,168,607|1,571,350|
|Charity funds|||||
|Endowment<br>funds||17|15,000|14,750|
|Restricted funds||17|105,794|151,007|
|Unrestricted<br>general|funds|17|465,838|715,802|
|Local group funds||17|58,660|57,766|
|Designated<br>funds||17|523,315|632,025|
|Total charity funds||18|1,168,607|1,571,350|





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|Yearended 3|1March 2022||||
|---|---|---|---|---|
|||Nate|2022<br>f|202'l<br>f|
|Net cash flow from operating activities||19|(354,770)|(84,448)|
|Cash flow from investing|activities||||
|Payments to acquire tangible fixed assets|||(5,787)|(3,005)|
|Net cash flow from sale and purchase of fixed asset investments|||400,000|(100,000)|
|Interest received|||35,538|41,577|
|Net cash flow from investing activities|||429,751|(61,428)|
|Net increase /(decrease)|in cash and cash equivalents||74,981|(145,876)|
|Cash and cash equivalents|at 1April 2021||56,016|201,892|
|Cash and cash equivalents|at 31ftarch 2022||130,997|56,016|
|Cash and cash equivalents|consists of:||||
|Cash at bank and in hand|||130,997|56,016|
|Cash and cash equivalents|at 31March 2022||130,997|56,016|





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|2|Income from donations|and legacies|2022<br>f|202l<br>f|
|---|---|---|---|---|
||Donations from individuals||97,096|100,365|
||Legacies||227,459|220,294|
||Grants and trust income||14,050|6,700|
||Corporate income||230,414|318,330|
||Gift Aid||15,622|11,634|
||||584,641|657,323|



||||2022|2021|
|---|---|---|---|---|
||||f||
|Local group|activities||2,384|4,526|
|Community|fundraising|and events|117,875|72,165|
||||120,259|76,691|





|Income|from investments|||
|---|---|---|---|
|||2022f|2021f|
|Interest|—fixed interest securities|35,538|41,577|
|Interest|—deposits|||
|||35,538|41,577|



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|Analysis ofexpenditure<br>on raising funds|||
|---|---|---|
||2022<br>f|2021<br>f|
|Direct costs|120,921|32,337|
|Support costs|166,254|82,883|
||287,175|115,220|



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|Analysis ofexpenditure<br>on charit|able activities||||
|---|---|---|---|---|
||Activities||||
||undertaken|Grant funding|||
||directly|ofactivities|Support costs|Total|
||f||f||
|Communications|88,369||92,708|181,077|
|Membership|14,208||20,068|34,276|
|Services|171,971||343,091|515,062|
|Advocacy and influencing|2,467||37,243|39,710|
|Corner stone project|16,000|||16,000|
|Public inquiry|4,451||104,259|108,710|
|Tanner Fund grants||1,000||1,000|
||297,466|1,000|597,369|895,835|





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||||Basis of||Charitable||
|---|---|---|---|---|---|---|
|Support cost|2022||allocation|Raising funds|activities|Total|
|Governance|||%ofdirect costs|3,758|9,275|13,033|
|Travel, postage and carriage|||%ofdirect costs|1,113|3,581|4,694|
|Information|technology||'/ ofdirect costs|5,255|12,971|18,226|
|Salary costs|||%ofstaff time|120,298|483,103|603,401|
|Depreciation|||%ofdirect costs|2,215|5,467|7,682|
|Office costs(incl. rental)|||%ofdirect costs|12,511|30,881|43,392|
|Recruitment,|training|and temp staff|%ofdirect costs|8,084|19,954|28,038|
|Other expenses|||/ ofdirect costs|13,020|32,137|45,157|
|Total||||166,254|597,369|763,623|
||||Basis of||Charitable||
|Support cost|2021||allocation|Raising funds|activities|Total|
|Governance|||%ofdirect costs|1,439|7,411|8,850|
|Travel, postage and carriage|||%ofdirect costs|1,345|1,750|3,095|
|Information|technology||%ofdirect costs|3,092|15,931|19,023|
|Salary costs|||%ofstaff time|63,452|395,658|459,110|
|Depreciation|||'/ ofdirect costs|1,224|6,306|7,530|
|Office costs(incl. rental)|||'/ ofdirect costs|6,792|34,990|41,782|
|Recruitment,|training|and temp staff|%ofdirect costs|1,769|9,116|10,885|
|Other expenses|||%ofdirect costs|3,770|19,418|23,188|
|Total||||82,883|490,580|573,483|






|8|Governance costs|||||
|---|---|---|---|---|---|
|||||2022f|2021f|
||Trustee expenses|||4,153|110|
||Auditors' remuneration-|current year||8,880|8,460|
||Auditors' remuneration-|prior year||||
||Other expenses||||280|
|||||)3,033|8,850|
|6|Net income I(expenditure)||forthe year|||
||Net income<br>/ (expenditure)||isstated after charging:|2022<br>f|2021|
||Government<br>grants||||14,090|
||Depreciation<br>oftangible|fixed assets||7,682|7,530|
||Operating<br>lease rentals|||39,272|39,453|
||Auditors'<br>remuneration|||8,880|8,460|



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|Auditor's|remuneratio|n|||||
|---|---|---|---|---|---|---|
||||||2022<br>f|2021<br>f|
|Fees payable tothe charitable|||company's|auditor's for the audit ofthe|||
|charitable|company's|annual|accounts||8,880|8,460|





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|The reimbursement|The reimbursement|oftrustees' expenses|was as follows:|was as follows:||||
|---|---|---|---|---|---|---|---|
||||2022<br>Number||202'I<br>Number|2022<br>f|2021<br>f|
|Travel, subsistence||and accommodation|||2|2,299|138|
|Included<br>in|trustees'|expenses was 6861 (2021:643)paid directly|||to third parties.|||
|Staffcosts|and employee benefits|||||||
|The average|monthly|number offull-time|equivalent|||||
|employees|during the year was as follows:|||||||
|||||||2022|2021|
|||||||Number|Number|
|The total staff costs||and employee benefits was as||follows:||||
|||||||2022<br>f|202'I<br>f|
|Wages and|salaries|||||520,482|400,174|
|Social security||||||48,231|34,703|
|Defined contribution||pension costs||||34,688|24,233|
|||||||603,401|459,110|
|Recruitment|and training|||||20,495|5,326|
|||||||623,896|464,436|





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|Tangible fixed assets||
|---|---|
||Computers|
||and Office|
||Equipment|
||2022|
|Cost:||
|At 1April 2021|93,294|
|Additions|5,787|
|At 31March 2022|99,081|
|Depreciation:||
|At 1April2021|82,210|
|Charge forthe year|7,682|
|At 31March 2022|89,892|
|Net book value:||
|At 31March 2022|9,189|
|At 31March 2021|11,084|



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|Fixed asset investments||||
|---|---|---|---|
||COIF|Other||
||Investment|Investment|Total|
|Cost or valuation||||
|At 1April 2021|1,394,603|949|1,395,552|
|Additions||||
|Disposals|(400,000)||(400,000)|
|Revaluation|30,839||30,839|
|At 31March 2022|1,025,442|949|1,026,391|





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|Fixed asset investments(continued)<br>Investments<br>at fair value compromise:|||
|---|---|---|
||2022<br>f|2021<br>f|
|Equities|949|949|
|Securities|1,025,442|1,394,603|
||1,026,391|1,395,552|



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|Debtors||||
|---|---|---|---|
|||2022|2029f|
|Prepayments|and accrued income|60,440|151,044|
|Other debtors||30,496|30,207|
|||90,936|181,251|



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|||||
|---|---|---|---|
|Creditors: amounts|falling due within one year|||
|Trade creditors||2022f|202'tf|
|Accruals and deferred income||||
|Taxation and social|secudty|18,657|21,722|
|Other creditors||33,708|24,110|
|||1,031|15,092|
|||35,510|11,629|
|||88,906|72,553|





|17<br>Fund reconciliation|17<br>Fund reconciliation|17<br>Fund reconciliation|||||||
|---|---|---|---|---|---|---|---|---|
|Unrestricted||funds|||||||
||||Balance|||||Balance at|
||||at 1stApdl|||Gains I||31st March|
||||2021f|Income|Expendituref|0oases)|Transfers|2022|
|Localgroups|||57,766|2,384|(1,490)|||58,660|
|Generalfunds|||715,802|486,611|(767,414)|30,839||465,838|
|Designated|funds—||294,560||(108,710)|||185,850|
|Public inquiry|||||||||
|Designated|funds—||337,465|||||337,465|
|Liquidation|fund||||||||
||||1,405,593|488,995|(877,614)|30,839||1,047,813|




|Restricted|funds||||||
|---|---|---|---|---|---|---|
|||Balance||||Balance at|
|||at 1st April||||31st March|
|||2021|Income|Expendituref|Transfers|2022|
|Talking Red||6,476|10,000|(12,419)|(4,057)||
|Tanner Fund||1,514||(1,000)||514|
|Memorial Service||943|505|(1,448)|||
|Newly Diagnosed||16,381|33,073|(47,348)||2,106|
|AGM|||15,000|(15,000)|||
|Ambassadors||14,733||(14,733)|||
|Booklets||16,503|2,588|(16,825)||2,266|
|Factsheets||1,500||(1,500)|||
|Covid Survey||15,511||(14,561)||950|
|Youth Camps||26,353|32,291|(36,712)||21,932|
|Hour Record||33,287|43,171|(76,458)|||
|Journal Subscription|||1,125|(1,125)|||
|Checklist||587||(4,644)|4,057||
|Website||2,412|10,000|(12,412)|||
|Centre Enqagement||3,514|15,000|(1,554)||16,960|
|Patient Experience|Survey||20,000|(15,000)||5,000|
|LocalGroups|||20,000|(10,039)||9,961|
|CRM|||20,000|(20,000)|||
|Mental health training forstaff|||2,000|(438)||1,562|
|Emergency<br>Fund (Ukraine)|||2,268|(27)||2,241|
|Little Bleeders|||32,091|(1,153)||30,938|
|Philip Morris Art Award||6,738|540|||7,278|
|Howard Abrahams|Memorial Award|4,555|531|(1,000)||4,086|
|||151,007|260,183|(305,396)||105,794|





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|17<br>Fund reconci<br>Endowment|liation {c<br>Funds|ontinued)||||||
|---|---|---|---|---|---|---|---|
||||Balance||||Balance at|
||||atlstApril||||SIst March|
||||2021f|Income|Expenditure|Transfers|2022|
|Philip Morris Art Award|||7,500||||7,500|
|Howard Abrahams|Memorial|Award|7,250|250|||7,500|
||||14,750|250|||15,000|



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||Unrestricted|||||
|---|---|---|---|---|---|
||funds|Local group|Restricted|Endowment|Total|
|||funds|funds|funds|f|
|Fixed assets|1,020,580|||15,000|1,035,580|
|Net current assets|(31,427)|58,660|105,794||133,027|
|Total|989,153|58,660|105,794|15,000|1,168,607|





|19|Reconciliation ofnet(expenditure)|Reconciliation ofnet(expenditure)|/ income tonet cash flow from operating activities|/ income tonet cash flow from operating activities||
|---|---|---|---|---|---|
||Net|||2022f|2021|
||(expenditure)<br>/ income foryear|||(402,743)|155,046|
||Interest receivable|||(35,538)|(41,577)|
||Depreciation<br>oftangible fixed|assets||7,682|7,530|
||Losses/(gains)<br>oninvestments|||(30,839)|(111,609)|
||Decrease/(increase)<br>in debtors|||90,315|(96,646)|
||Increase in creditors|||16,353|2,808|
||Net cash flow from operating|activities||(354,770)|(84,448)|



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||||2022|2022|202'l|202'I|
|---|---|---|---|---|---|---|
||||Within|Within 1-5|Within|Within 1-5|
||||lyear|years|lyaar|years|
|Land|and|buildings|24,200||36,300|24,200|
|Other|||5,151|6,869|5,151|12,020|
||||29,351|6,869|41,451|36,220|





The
Haemophilia
Society
Annual report and
financial statement 2021122
Find the informaiion you need on our website 8i haemophillh.org.uk
or contact us on 020 7939 0700 or email info@haèmophilia.org.uk
If you would like this information in a different format. sueh as audio
tape. braille or arg& print, or in anothèr lanquage. pleasé speak to our
team on OZO 7939 0708.
The Haemophilia Society
52b BoroL'gh High Slreel
London SEI IXN
HaemophiliaSocietyUK
y HaemoSo¢UK
thehaemophiliasociety
Phone.. 020 7939 0780
Fm£il-. inlo@haemophilia.org.uk
Web.. haemophilia.org.uk
Registered clarity no. 288280 (Scotland SC0397321
Company limiteo by guarantee règ no. 1763614
Memb@r8 of the European HaÈtTrophilia Consortium and thè World Federation
of Hemophilia
Chair-. Clive Smith
clive@haemophilia.oro.uk
President.. Baroness Meacher
O The Haemophilia Society 2022