OpenCharities

Fd-Uk

The Dysautonomia Society Of Great Britain

Country
England & Wales
Charity number
285399
Status
Registered
Registered
Sept. 14, 1982
Legal form
Other

Address

Address
15 Somali Road
London
NW2 3RN

Activities

Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .

Objects: The Relief Of Persons Suffering From Any Mental Or Physical Disorder In Particular Dysautonomia. The Promotion Of The Study Of And Research Into The Causes Treatment Elevation And Cure Of Such Disorders In Particular Dysautonomia Provided That The Useful Results Of Such Research Of Studies Are Disseminated Among The Public At Large.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Human Resources, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
Who
Children/young People, People With Disabilities, People Of A Particular Ethnic Or Racial Origin

Geography

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £19,592 £18,692
Dec. 31, 2023 £21,563 £35,698
Dec. 31, 2022 £18,100 £28,800
Dec. 31, 2021 £20,800 £27,208
Dec. 31, 2020 £21,206 £28,362

Trustees

Name Appointed
Anthony Landau Dec. 1, 2016
Bryan King Jan. 3, 2017
Sarah Landau