# WILLIAMS SYNDROME FOUNDATION LIMITED

## Details

- **Country:** England & Wales
- **Charity number:** 281014
- **Other names:** THE INFANTILE HYPERCALCAEMIA FOUNDATION LIMITED
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Nov. 11, 1980
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=281014


## Contact

- **Address:** Box 103, 5 Charter House, Lord Montgomery Way, PORTSMOUTH
- **Postcode:** PO1 2SN
- **Phone:** 02085671374
- **Email:** enquiries@williams-syndrome.org.uk
- **Website:** www.williams-syndrome.org.uk



## Activities

**Objects:** THE ADVANCEMENT OF PUBLIC EDUCATION AS TO AND RESEARCH INTO THE CAUSE, DIAGNOSIS, RECOGNITION, EFFECTS AND TREATMENT OF WILLIAMS SYNDROME AND OTHER RELATED CONDITIONS AND FOR THE TREATMENT, CARE, EDUCATION AND ASSISTANCE OF THOSE AFFECTED BY SUCH CONDITIONS WITHIN THE UNITED KINGDOM AND ELSEWHERE.

**Activities:** The Williams Syndrome Foundation, founded in 1980, is run for parents by parents with the aim of providing information and support to for people with WS, and those who love, care for and educate them. We fund research into WS to inform and update our guidelines, webinars and publications. We provide opportunities for families to meet and share peer support, online and in person, across the UK.

**Area of benefit:** NATIONAL




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £207836 | £197481 | — | — |
| March 31, 2024 | £219883 | £156410 | — | — |
| March 31, 2023 | £188132 | £294863 | — | — |
| March 31, 2022 | £158512 | £125784 | — | — |
| March 31, 2021 | £95506 | £88236 | — | — |



## Trustees

- **Paul Richard Lawrie** (Chair) — appointed Jan. 28, 2020
- BETHAN VASEY — appointed June 8, 2022
- David Roger Robinson — appointed Feb. 1, 2024
- Dr Michael John Wolfman — appointed Feb. 1, 2023
- Dr Paul Francis Heery — appointed Oct. 15, 2025
- Janet Bolaji Wanjiru Latinwo — appointed Oct. 15, 2025
- Joanne Victoria Cooper — appointed July 28, 2025
- John Roy Folliss — appointed Nov. 16, 2020
- LOUISE FISK — appointed Oct. 8, 2012
- PATRICK TAYLOR
- Stephanie Jayne Spencer — appointed Feb. 1, 2022