**Company No. 01256124 Charity No. 273670** **The National Society for Phenylketonuria (United Kingdom) Limited** **(A registered charity and company limited by guarantee)** **Report and Financial Statements** **For The Year Ended 31 October 2021** ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **CONTENTS** ||||**Page**| |---|---|---|---| |Charity information|||1| ||||2| ||||6| |Statement of financial activities|||7| |Balance sheet|||8| |Notes to the accounts|||9| **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED CHARITY INFORMATION** E W Lange Chair **Trustees/Directors/Council of** A Thompson Treasurer (appointed 29/02/20) **Management:** I E Williamson Honorary Secretary D Noble-Nesbit J Cardy L Lee **Company Secretary:** I E Williamson **Registered office:** Richard House Winckley Square Preston PR1 3HP **Contact address:** NSPKU PO Box 3143 Purley CR8 9DD **Company Number:** 01256124 **Charity Number:** 273670 **Independent examiner:** Mrs N Mason FCA, DChA MHA Moore and Smalley Richard House Winckley Square Preston PR1 3HP **Bankers:** HSBC 49a Fishergate Preston PR1 8BQ CCLA Investment Management Ltd COIF Charity Funds 80 Cheapside London EC2V 6DZ The Affirmative Deposit Fund for Charities Central Finance Board 9 Bonhill Street London EC2A 4 PE Leeds Building Society 105 Albion Street Leeds LS1 5AS **Website:** www.nspku.org **Email:** info@nspku.org -1- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** The trustees of The National Society for Phenylketonuria (United Kingdom) Limited who are also the directors for the purposes of the Companies Act, present their annual report and the financial statements for the year ended 31 October 2021 Companies Act purposes. The trustees have adopted the provisions of the Statement of Recommended Practice statements of the charity. The financial statements have been prepared in accordance with the accounting policies set out in the notes to Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published October 2019. ## **STRUCTURE, GOVERNANCE AND MANAGEMENT:** ## **Governing document** NSPKU is a charitable company limited by guarantee incorporated on 27 April 1976 and registered with the Charity Commission on 16 June 1977. The charity is controlled by its governing document, Memorandum and Articles of Association dated 27 April 1976, as amended by Special Resolution dated 2 March 1991 and Special Resolution dated 19 March 2011. ## **Recruitment, appointment, induction and training of new trustees** Vacancies that arise from time to time as determined and agreed by the Council of Management shall be advertised in the Society Magazine and website in the first instance. Applicants will be vetted and appointed by the Senior Officers and appointees will be made aware of their legal obligations. Training will be given in line with Charity Commission procedures and the Charities SORP (Statement of Operating Recommended Practice). This is a position not to be taken lightly and an honest commitment is required. The same will apply to professionals supporting the society. ## **Organisational structure** The society is controlled by the Council of Management. Trustees during the year are shown on page 1. The Council meets at least four times a year and the senior officers meet separately up to twice a year. The senior officers meet to discuss issues at greater length than is possible at Council of Management meetings. This allows them to define NSPKU policy proposals for discussion of the Council of Management. All meetings mentioned above have minutes taken. Decisions will be made where possible by consensus; otherwise a majority vote will be used. ## **Risk management** The trustees have a duty to identify the risks to which the charity is exposed and have reviewed the risks and established appropriate systems or procedures to mitigate those risks. ## **OBJECTIVES AND ACTIVITIES:** ## **Objectives and activities for the public benefit** The objectives of the charity are to promote the educational, medical and social welfare of persons suffering from phenylketonuria and similar disorders controlled by diet, to establish or encourage research in phenylketonuria and related disorders, to establish and maintain a fund or funds from which to make grants for -2- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## **Objectives and activities for the public benefit (continued)** the purpose of fulfilling the objects of the society, to invite, procure, appeal for, collect and receive and accept subscriptions, donations, legacies and gifts of money, investments or other property. The trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives, and in planning future objectives. ## **Grant making policy** The allocation of grants is decided on an individual basis as an application is made. The application where possible will be discussed by the Council of Management (anonymously if necessary) but if this is not possible a decision will be made by the senior officers and minutes taken at the next Committee of Management meeting. Where applicable, we shall seek guidance from our Medical Advisory Panel. ## **Volunteers** All members of the Council of Management are volunteers. They are encouraged to contribute freely to all discussions and decisions made by the Council. Meetings have minutes taken to reflect discussions, decisions and dissentions. ## **ACHIEVEMENT AND PERFORMANCE:** The Financial Year ended 31[st] October 2021 was again impacted by Covid. We were unable to have a face-toface conference as in prior years. However, we organised a number of online events that were very well attended. Captain Phenix- our new mascot- made his debut. Edale went ahead this year , however Keswick had to be cancelled. A year does not go by with out a survey. This year we had two (1) a survey for parents with children adult patients over 18 asking them what they had experienced in metabolic clinics and what they expected. Both were well received and completed by many members and non-members for which we are grateful. During the year a number of publications including updates to old ones were drafted by a team of dedicated dietitians who met every Friday. Many of these have now been published on the website. Resulting downloads suggested these were much needed. Also, we re-established sending out hard copies of News and Views which was welcome by all. Towards the end of the year , we placed a new order for the new parent wallets which have been a great success with families with PKU babies. We looked at the possibility of funding some further research. Topics looked at were returning to diet , maternal PKU pre and post conception, and looking at the outcomes of patients over 50. The decision was deferred until the next financial year primarily due to a drop off in income. On the advocacy front: the PKU APPG met in November 2020 to discuss a variety of topics including the use of Sapropterin in maternal PKU, the effect of Brexit, Covid and the sugar tax. The National Institute of Clinical Excellence ( NICE ) published a recommendation in February 2021 for Sapropterin for children up to the age of 18. We held an online meeting with members about this before the April NICE Meeting. Many of our members and supporters made submissions during the consultation period. We have it on good authority that they had never been so busy during this timeframe. In their final recommendation, they recommended to NHS England that up to 10 mg for children up to the age of 18 and or use in pregnancy should be funded. In our opinion, this undervalued major issues for adults with PKU and was not acceptable. Although things went quiet to the end of the financial year , there was a lot of work going on in the background. In particular at the end of the year , it was announced that a generic form of Sapropterin had been approved by the Medicines & Healthcare products Regulatory Agency ( MHRA). This led to NHS England approving the generic for all PKU patients that were responders. Loading tests on patients began in time for Christmas 2021. We are now seeking the same level of commitment from the Health Services in the rest of the United Kingdom. -3- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** We owe much to our advocacy team for spearheading this. We must not to forget all our members ,parliamentarians, consultants, and dietitians who supported us along the way. Well done to all and especially to Kate Learoyd and Caroline Graham whose indefatigability has seen us through. We have held seven Council of Management (COM) meetings during the year. In each meeting we review phone and email helpline logs. This enables us to establish what issues our membership are encountering in everyday life. Alas, each year throws up a challenge beyond our remit. In some cases we have to initiate multi-disciplinary actions to see a PKU patient and/or family through difficult times. Unfortunately, we do not see this abating any time soon. We have to be alert to these situations and act fast as we can. Currently, we believe we have the mechanisms in place to do this. We also monitor the number of requests for help with PIP and DLA. These seem to have increased during the year. The good news appears to be that more members are getting accepted (at various levels). We are striving to get PKU recognised in the DWP rulebook. This would ease the burden on the NSPKU and patients applying. Also, It has been noted that more and more PKU Adults are returning to diet. This is a very encouraging trendespecially when those returning to diet feel the benefits. all too briefly. The positive outcome from this, is it gave exposure to PKU. We had an online event to discuss this and late treated PKU. A most welcome discussion. the first 100 members who applied. There were many schools and nurseries who helped raise awareness of PKU. We held a virtual meeting with some first-class discussions and a tribute to Dr John Nobel-Nesbitt who passed away but gave so much to the NSPKU and formalised the Medical Advisory Panel. The Medical Advisory Panel (MAP) met twice during the year where we were updated about the Birmingham The full roll out will be in the next financial year. Genotyping is another hot topic discussed. This is carried out in Scotland at birth. It is not done automatically elsewhere in the UK. However, the conversation is changing in particular with the introduction of Sapropterin to establish who will be a responder. Large neutrino amino acids (LNAAs) were discussed, and we have suggested these could be another string to adult consultants in helping PKU adults cope with their diet. ## **The Year Ahead** We shall continue with online meetings until we are able to meet face-to face again. We are organising a Conference in late September 2022 at a Hotel in Brigg , North Lincolnshire. Due to the lateness of this, we shall not have one in Spring 2023 as we are hosting the ESPKU Conference in October. We shall be planning next year for 2023 day events for members in Northern Ireland , England, Wales and Scotland. th Anniversary. We feel a lot of preparation needs to be done for this and we have already begun planning for it. We are looking to have a revised logo and branding for this. This may also be a good opportunity to rebrand the Society as a whole and discussions will be held mid 2022 on this topic. We expect that Edale will go ahead in 2022, but Keswick hangs in the balance Our meetings with MAP have traditionally been on a bi- annual basis. However due to issues with the protocol for -out, we have started to have more regular meetings. One of the major issues that keeps cropping up is food labelling. This is always an issue for PKU patients. Expect much work in this area in the future -4- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## **The Year Ahead (Continued0** Of vital importance is the PKU network within the UK. We aim to foster support groups throughout the country. If you wish to start one, please get in touch at info@nspku.org. We extend our gratitude to all our support staff for all their hard work for the year Administrator Alison Green, Bookkeeper Margaret Butcher and of course our Society Dietitian Suzanne Ford. To all our members and the wider PKU Community a sincere thank you to all for your contributions to the NSPKU be they financial or otherwise. We extend our gratitude to the Daily Express who have championed our cause since 2019. ## **FINANCIAL REVIEW:** The net incoming resources for the year were £10,250 (2020: (£24,031)), details of which are shown on the Statement of Financial Activities. ## **Reserves policy** At 31 October 2021 £16,211 (2020: £16,211) was held in the restricted research fund, £4,654 was held in a restricted fund for the new website (2020: £4,654), £282,180 (2020: £271,930) was held in the general unrestricted fund and £20,000 (2020: £20,000) was held in a designated grant and research fund. £297,185 (2020: £266,245) are free reserves. The society regularly reviews the reserves of the charity by means of the treasurer's report at each meeting, which details all monies held by the charity, including investments and restricted funds. The trustees' policy is to hold reserves to cover a minimum of two year's fixed expenditure which is currently around £180,000 year. Free reserves are to be used to fund new activities in the future. Sources of funding are shown in the Statement of Financial Activities and in the notes to the accounts. ## **Investment policy and objectives** The society's policy is to hold surplus funds in building society and deposit accounts. ## **Small company provisions** This report has been prepared in accordance with the provisions applicable to companies entitled to the small 27/07/2022 ## **E W Lange Chair** -5- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** I report to the charity trustees on my examination of the accounts of the company for the year ended 31 October 2021 which are set out on pages 7 to 18. ## **Responsibilities and basis of report** responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 as carried out under section 145 of the Chariti followed the Directions given by the Charity Commission under section 145(5) (b) of the 2011 Act. ## **Independent examiner's statement** I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe in any material respect: 1. accounting records were not kept in respect of the company as required by section 386 of the 2006 Act; or 2. the accounts do not accord with those records; or 3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than an independent examination; 4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in the report in order to enable a proper understanding of the account to be reached. ## **N Mason FCA, DChA MHA Moore and Smalley Chartered Accountants Preston** **Date** ..................................................................... 28/07/2022 -6- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **STATEMENT OF FINANCIAL ACTIVITIES (INC INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 31 OCTOBER 2021** |**Income**
**Note**
Donations, grants and legacies
**2**
Income from charitable activities
**3**
Income from other trading activities
**4**
Investment income
**5**
**Total income**
**Resources expended**
_Costs of raising funds:_
Fundraising trading: cost of goods
sold and other costs
Charitable activities
**6**
**Total expenditure**
**Net income/(expenditure) for the**
**year**
Transfers between funds
**Net movement in funds**
**Reconciliation of funds**
Total funds brought forward
**Total funds carried forward**|**Unrestricted**
**Restricted**
**Total funds**
**Total funds**
**funds**
**funds**
**2021**
**2020**
**£**
**£**
**£**
**£**
**66,088**
**-**
**66,088**
77,966
**18,780**
**-**
**18,780**
25,235
**5,100**
**-**
**5,100**
13,372
**92**
**-**
**92**
1,064| |---|---| ||**90,060**
**-**
**90,060**
117,637| ||**-**
**-**
**-**
3,016
**79,810**
**-**
**79,810**
90,590| ||**79,810**
**-**
**79,810**
93,606| ||**10,250**
**-**
**10,250**
24,031
**-**
**-**
**-**
-| ||**10,250**
**-**
**10,250**
24,031
**291,930**
**20,865**
**312,795**
288,764| ||**302,180**
**20,865**
**323,045**
312,795| The statement of financial activities includes all gains and losses in the year. All incoming resources and resources expended derive from continuing activities. The notes on pages 9 to 18 form part of these accounts. -7- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **BALANCE SHEET** ## **AS AT 31 OCTOBER 2021** |**Note**
**Fixed assets**
Intangible assets
**8**
Tangible assets
**9**
**Current assets**
Debtors
**11**
Cash at bank and in hand
**Creditors: Amounts falling due**
**within one year**
**12**
**Net current assets**
**Net assets**
**Funds**
**13**
Unrestricted
general
Unrestricted -designated
Restricted
**Total funds**|**Unrestricted**
**Restricted**
**Total funds**
**Total funds**
**funds**
**funds**
**2021**
2020
**£**
**£**
£
**4,996**
**-**
**4,996**
6,495
**-**
**-**
**-**
-| |---|---| ||**4,996**
**-**
**4,996**
6,495
**4,539**
**-**
**4,539**
2,708
**295,793**
**20,865**
**316,658**
308,040| ||**300,332**
**20,865**
**321,197**
310,748
**(3,147)**
**-**
**(3,147)**
(4,448)| ||**297,185**
**20,865**
**318,105**
306,300| ||**302,180**
**20,865**
**323,045**
312,795| ||**282,180**
**-**
**282,180**
271,930
**20,000**
**-**
**20,000**
20,000
**20,865**
**20,865**
20,865| ||**302,180**
**20,865**
**323,045**
312,795| For the year ending 31 October 2021 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. - The members have not required the company to obtain an audit of its accounts for the year in question in accordance with section 476; - The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts. These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small charitable companies. 27/07/2022 are signed on their behalf by: **----- Start of picture text -----**
................................................................ ............................................................................
E W Lange - Chair I Williamson Secretary
Company number: 01256124
**----- End of picture text -----**
-8- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## 1 **Accounting policies** ## **Basis of preparation** The National Society for Phenylketonuria (United Kingdom) Limited is an incorporated charity registered in England. In the event of the charity being wound up, the liability in respect of the guarantee is limited to £1 per member of the charity. The address of the registered office is given in the charity information on explained in the Trustees Report. The charity constitutes a public benefit entity as defined by FRS 102. The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102), the Charities Act 2011, the Companies Act 2006 and UK Generally Accepted Practice. The financial statements are prepared on a going concern basis under the historical cost convention. The financial statements are prepared in sterling which is the functional currency of the and rounded to the nearest £. The significant accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all years. ## **Going concern** The trustees assess whether the use of going concern is appropriate i.e. whether there are any material uncertainties related to events or conditions that may cast significant doubt on the ability of the company to continue as a going concern. The trustees make this assessment in respect of a period of at least one year from the date of authorisation for issue of the financial statements and have concluded that the charity has adequate resources to continue in operational existence for the foreseeable future and there to adopt the going concern basis of accounting in preparing the financial statements. ## **Incoming resources** All incoming resources are included on the Statement of Financial Activities when the charity is legally entitled to the income, the amount can be quantified with reasonable accuracy and it is probable that the income will be received. Grants are recognised in the SOFA when receivable. When donors specify that grants given to the charity must be used in the future financial years, the income is deferred until that year. Assets and investments donated to the charity are included as donation income at market value at the time of the receipt. No amount is included in the financial statements for volunteer time in line with the SORP (FRS 102). -9- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## 1 **Accounting policies (continued)** ## **Resources expended** The charity is not registered for VAT. All expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Where costs cannot be directly attributed to particular headings, they have been allocated to activities on a basis consistent with the use of resources. Charitable expenditure comprises those costs incurred by the charity on delivery of its activities and services, including those costs of any indirect nature necessary to support them. ## **Taxation** As a registered charity, the society is exempt from corporation tax on its charitable activities to the extent that these are applied to its charitable objects. ## **Intangible assets** Intangible assets are amortised on a straight-line basis over their useful lives. The useful lives of intangible assets are as follows: Website - 5 years straight line Provision is made for any impairment. ## **Fixed assets** Tangible fixed assets are stated at cost less accumulated depreciation. Cost includes costs directly attributable to making the asset capable of operating as intended. Depreciation is provided on all tangible fixed assets, at rates calculated to write off the cost, less estimated residual value, of each asset on a systematic basis over its expected useful life as follows: Computer equipment - 33% on cost ## **Fund accounting** Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes. Designated funds comprise unrestricted funds that have been set aside by the trustees for particular purposes. The aim and use of each designated fund is set out in the notes to the financial statements. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the charity for particular purposes. The cost of raising and administering such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements -10- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## 1 **Accounting policies (continued)** ## **Judgements and key sources of estimation uncertainty** There have been no significant judgements made in the process of preparing the financial statements. There have been no key assumptions concerning the future and other key sources of estimation uncertainty at the reporting date that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next financial year. ## 2 **Donations and legacies** |Donations and sponsorship|**2021**
**£**
**66,088**
**66,088**|**2020**
**£**
77,966| |---|---|---| |||77,966| Income from donations, sponsorship and grants was £66,088 (2020: £77,966), £66,088 of which was unrestricted (2020: £77,156) and £Nil restricted (2020: £810). ## 3 **Charitable activities** |Membership and literary fees
Conference and events|**2021**
**£**
**15,925**
**2,855**
**18,780**|**2020**
**£**
15,245
9,990| |---|---|---| |||25,235| Income from charitable activities was £18,780 (2020: £25,235), all of which £18,780 (2020: £25,235) was unrestricted and £nil was restricted (2020: £nil). ## 4 **Other trading activities** |Fundraising events
Advertising|**2021**
**£**
**-**
**5,100**
**5,100**|**2020**
**£**
6,572
6,800| |---|---|---| |||13,372| Income from other trading activities was £5,100 (2020: £13,372), all of which was unrestricted. -11- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## 5 **Investment income** |**Investment income**||| |---|---|---| |Bank interest
General interest received|**2021**
**£**
**92**
**-**
**92**|**2020**
**£**
-
1,064| |||1,064| Investment income was £92 (2020: £1,064) of which £92 (2020: £1,064) was unrestricted and £nil (2020: £nil) was restricted. - 6 **Charitable activities** |**_Direct costs_**
Publications
Research
Conference and event costs
Grants awarded (see note below)
Sponsorship
Advocacy
**_Support costs_**
Insurance
Administration fees and expenses
Meeting and conference expenses
Membership fees and subscriptions
Telephone
Bank and other charges
Travel
Post, stationery and advertising
Depreciation charge
Examination fees|**2021**
**£**
**16,834**
**2,880**
**25,343**
**5,211**
**-**
**444**
**-**
**2,081**
**17,785**
**377**
**1,453**
**200**
**567**
**221**
**3,312**
**1,499**
**1,602**
**79,810**|**2020**
**£**
7,546
829
23,181
24,473
-
-
-
1,940
20,069
2,092
1,449
578
645
943
3,026
1,119
2,700| |---|---|---| |||90,590| -12- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## 6 **Charitable activities (continued)** |**_Grants to individuals_**
Research grant for a home monitoring
device
A grant for fruit and vegetables
A grant for travel to conference|**2021**
**£**
**-**
**-**
**-**
**-**|**2020**
**£**
-
-
-| |---|---|---| |||-| There were no employees during the current and previous year. Expenditure on charitable activities was £79,810 (2020: £90,590) of which £79,810 (2020: £90,590) was unrestricted and £nil (2020: £nil) was restricted. Expenditure on raising funds in the current and previous year was unrestricted. - 7 **Net income/(outgoings) resources** ||**2021**|**2020**| |---|---|---| ||**£**|**£**| |ces are stated after charging/(crediting):||| |current year (excluding VAT)|**1,425**|1,335| Net incoming/(outgoing) resources are stated after charging/(crediting): -13- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** |8
**Intangible assets**
**Cost/Valuation**
Balance b/fwd
Additions
Disposals
Balance c/fwd
**Depreciation**
Balance b/fwd
Charge
Disposals
Balance c/fwd
NBV
Balance c/fwd
Balance b/fwd||**2021**
**£**
**7,494**
**-**
**-**
**7,494**
999
1,499
-
2,498
**4,996**
**6,495**||**2020**
**£**
2,450
5,044
-| |---|---|---|---|---| |||||7,494| |||||-
999
-| |||||999| |||||6,495| |||||2,450| -14- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** ## 9 **Fixed assets** |**Cost**
At 1 November 2020
Additions
Disposals
**At 31 October 2021**
**Depreciation**
At 1 November 2020
Charge for the year
On disposals
**At 31 October 2021**
**Net book value**
**At 31 October 2021**
At 31 October 2020||**Computer**
**equipment**
**£**
430
-
-
**430**
430
-
-
**430**
**-**
-||**Total**
**£**
430
-
-| |---|---|---|---|---| |||||**430**| |||||430
-
-| |||||**430**| |||||**-**
-| 10 £nil has been paid to the trustees during the year ended 31 October 2021 to cover travel expenses and overnight stays and subsistence during conferences (2019: £1,699 to 5 trustees). The trustees neither received nor waived any emoluments during the year (2020: £nil). There are no other related party transactions. -15- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** |11
**Debtors: amounts falling due within one year**
Prepayments and accrued income
Trade debtors
12
**Creditors: amount falling due within one year**
Trade creditors
Accruals
13
**Funds**
**Current year**
**Brought**
**forward at**
**01/11/20**
**Incoming**
**resources**
**£**
**£**
**Restricted funds:**
Research funds
16,211
-
Website
4,654
-
Conference
-
-
**Total restricted**
20,865
**-**
**Unrestricted funds:**
_General reserve_
271,930
90,060
_Designated funds:_
NSPKU Grant and research
fund
20,000
-
**Total unrestricted**
291,930
**90,060**
**Total funds**
312,795
**90,060**|**Outgoing**
**resources**
**£**
-
-
-
**-**
(79,810)
-
**(79,810)**
**(79,180)**|**2021**
**£**
**-**
**4,539**
**4,539**
**2021**
**£**
1,719
1,428
3,147
**Transfers**
**£**
-
-
-
**-**
-
-
**-**
**-**|**2020**
**£**
1,083
1,625| |---|---|---|---| ||||2,708| ||||**2020**
**£**
3,020
1,428| ||||4,448| ||||**Carried**
**forward at**
**31/10/21**
**£**
**16,211**
**4,654**
**-**
**20,865**| ||||**282,180**
**20,000**| ||||**302,180**| ||||**323,045**| -16- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** |13
**Funds**
**Prior year**
**Restricted funds:**
Research funds
Website
Conference
**Total restricted**
**Unrestricted funds:**
_General reserve_
_Designated funds:_
NSPKU Grant and research
fund
**Total unrestricted**
**Total funds**||**Brought**
**forward at**
**01/11/19**
**£**
15,401
9,698
-
25,099
243,665
20,000
263,665
288,764||**Incoming**
**resources**
**£**
810
-
-
**810**
116,827
-
**116,827**
**117,637**|**Outgoing**
**resources**
**£**
-
-
-
**-**
(93,606)
-
**(93,606)**
**(93,606)**|**Transfers**
**£**
-
(5,044)
-
**(5,044)**
5,044
-
**5,044**
**-**|**Carried**
**forward at**
**31/10/20**
**£**
**16,211**
**4,654**
**-**| |---|---|---|---|---|---|---|---| ||||||||**20,865**| ||||||||**271,930**
**20,000**| ||||||||**291,930**| ||||||||**312,795**| ## **Restricted IT/ website fund** Restricted funds were received for the development of IT systems and the website. They will be spent next year. ## **Restricted conference fund** Restricted funds spent on the annual conference ## **Grant and research fund** A comprehensive fund document has now been completed and is available for our members to apply to. The document is available on our website for downloading and can also be requested by our members via any of the Trustees or Support Staff. The fund will incorporate the Restricted Research Fund and the Assisted Places Scheme and covers a much wider basis for applications for funding. ## **General reserve** The General reserve represents the free funds of the charity which are not designated for particular purposes. -17- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2021** |14
**Analysis of net assets between funds (prior years)**
**Unrestricted**
**funds**
**Designated**
**funds**
**2020**
**2020**
**£**
**£**
Fixed assets
6,495
-
Cash
287,175
-
Other current assets / liabilities
(1,740)
-
**Total**
291,930
-|**Restricted**
**funds**
**2020**
**£**
-
20,865
-
20,865|**Total**
**2020**
**£**
6,495
308,040
(1,740)| |---|---|---| |||312,795| -18- ## **The National Society for Phenylketonuria (UK) Limited** MHA Moore and Smalley Richard House 9 Winckley Square Preston PR1 3HP Dear Sirs ## **Financial statements for the year ended 31 October 2021** The following representations are made on the basis of enquiries of management and staff with relevant knowledge and experience such as we consider necessary in connection with your independent examination of the charitable company October 2021. These enquiries have included inspection of supporting documentation where appropriate. All representations are made to the best of our knowledge and belief. - 1 We acknowledge that the work performed by you is substantially less in scope than an audit performed in accordance with International Standards on Auditing (UK and Ireland) and that you do not express an audit opinion. - 2 We confirm that the charitable company was entitled to exemption under section 144 of the Charities Act 2011 the requirement to have its financial statements for the financial year ended 31 October 2020 audited. - 3 We have fulfilled our responsibilities as trustees as set out in the terms of your engagement letter dated 29 January 2020, under the Charities Act 2011 for preparing financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice), for being satisfied that they give a true and fair view and for making accurate representations to you. - 4 All the transactions undertaken by the charitable company have been properly reflected and recorded in the accounting records. - 5 All the accounting records have been made available to you for the purpose of your independent examination. We have provided you with unrestricted access to all appropriate persons within the charitable company, and with all other records and related information requested, including minutes of all management and trustee meetings and correspondence with The Charity Commission. - 6 - The financial statements are free of material misstatements, including omissions. - 7 We believe that the effect of uncorrected misstatements as set out in this letter is immaterial both individually and in total. - 8 The charitable company has satisfactory title to all assets and there are no liens or encumbrances on the charitable company - 9 All actual liabilities, contingent liabilities and guarantees given to third parties have been recorded or disclosed as appropriate. - 10 We have no plans or intentions that may materially alter the carrying value and where relevant the fair value measurements or classification of assets and liabilities reflected in the financial statements. - 11 Significant assumptions used by us in making accounting estimates, including those measured at fair value, are reasonable. Page 2 - 12 We have disclosed to you all claims in connection with litigation that have been, or are expected to be, received and such matters, as appropriate, have been properly accounted for, and disclosed in, the financial statements. - 13 We have disclosed to you all known instances of non-compliance or suspected non-compliance with laws and regulations whose effects should be considered when preparing the financial statements. - 14 Related party relationships and transactions have been appropriately accounted for and disclosed in the financial statements. We have disclosed to you all relevant information concerning such relationships and transactions and are not aware of any other matters which require disclosure in order to comply with legislative and accounting standards requirements. - 15 All events subsequent to the date of the financial statements which require adjustment or disclosure have been properly accounted for and disclosed. - 16 We believe that the charitable company's financial statements should be prepared on a going concern basis on the grounds that current and future sources of funding or support will be more than adequate for the charitable company's needs. We have considered a period of twelve months from the date of approval of the financial statements. We believe that no further disclosures relating to the charitable company's ability to continue as a going concern need to be made in the financial statements. - 17 All grants, donations and other income, the receipt of which is subject to specific terms or conditions, have been notified to you. There have been no breaches of terms or conditions in the application of such income. No restricted income was received in the year ended 31 October 2020. - 18 We approve the year end journals. - 19 At the year end £36,096.42 was held in the COIF Investment Management Account. Yours faithfully **E W Lange - Trustee** **I Williamson - Trustee** On behalf of the board of trustees 27/07/2022 Date