**Company No. 01256124 Charity No. 273670** **The National Society for Phenylketonuria (United Kingdom) Limited** **(A registered charity and company limited by guarantee)** **Report and Financial Statements** **For The Year Ended 31 October 2020** ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **CONTENTS** ||**Page**| |---|---| |Charity information|1| |Trustees’ report|2| |Independent examiner’s report to the trustees|6| |Statement of financial activities|7| |Balance sheet|8| |Notes to the accounts|9| ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED CHARITY INFORMATION** |**Trustees/Directors/Council of**
**Management:**|E W Lange
A Thompson
I E Williamson|Chair
Treasurer (appointed 29/02/20)
Honorary Secretary| |---|---|---| ||D Noble-Nesbit|| ||J Cardy|| ||L Lee|| |**Company Secretary:**|I E Williamson|| |**Registered office:**|Richard House|| ||Winckley Square|| ||Preston PR1 3HP|| |**Contact address:**|NSPKU|| ||PO Box 3143|| ||Purley CR8 9DD|| |**Company Number:**|01256124|| |**Charity Number:**|273670|| |**Independent examiner:**|Mrs N Mason FCA, DChA|| ||MHA Moore and Smalley|| ||Richard House|| ||Winckley Square|| ||Preston PR1 3HP|| |**Bankers:**|HSBC|| ||49a Fishergate|| ||Preston PR1 8BQ|| ||CCLA Investment Management Ltd|| ||COIF Charity Funds|| ||80 Cheapside|| ||London EC2V 6DZ|| ||The Affirmative Deposit Fund for Charities|| ||Central Finance Board|| ||9 Bonhill Street|| ||London EC2A 4 PE|| ||Leeds Building Society|| ||105 Albion Street|| ||Leeds LS1 5AS|| |**Website:**|www.nspku.org|| |**Email:**|info@nspku.org|| -1- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **TRUSTEES’ REPORT** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** The trustees of The National Society for Phenylketonuria (United Kingdom) Limited who are also the directors for the purposes of the Companies Act, present their annual report and the financial statements for the year ended 31 October 2020, which are also prepared to meet the requirements for a directors’ report and accounts for Companies Act purposes. The trustees have adopted the provisions of the Statement of Recommended Practice (SORP) “Accounting and Reporting by Charities” (FRS 102) in preparing the annual report and financial statements of the charity. The financial statements have been prepared in accordance with the accounting policies set out in the notes to the accounts and comply with the charity’s governing document, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published October 2019. ## **STRUCTURE, GOVERNANCE AND MANAGEMENT:** ## **Governing document** NSPKU is a charitable company limited by guarantee incorporated on 27 April 1976 and registered with the Charity Commission on 16 June 1977. The charity is controlled by its governing document, Memorandum and Articles of Association dated 27 April 1976, as amended by Special Resolution dated 2 March 1991 and Special Resolution dated 19 March 2011. ## **Recruitment, appointment, induction and training of new trustees** Vacancies that arise from time to time as determined and agreed by the Council of Management shall be advertised in the Society Magazine and website in the first instance. Applicants will be vetted and appointed by the Senior Officers and appointees will be made aware of their legal obligations. Training will be given in line with Charity Commission procedures and the Charities SORP (Statement of Operating Recommended Practice). This is a position not to be taken lightly and an honest commitment is required. The same will apply to professionals supporting the society. ## **Organisational structure** The society is controlled by the Council of Management. Trustees during the year are shown on page 1. The Council meets at least four times a year and the senior officers meet separately up to twice a year. The senior officers meet to discuss issues at greater length than is possible at Council of Management meetings. This allows them to define NSPKU policy proposals for discussion of the Council of Management. All meetings mentioned above have minutes taken. Decisions will be made where possible by consensus; otherwise a majority vote will be used. ## **Risk management** The trustees have a duty to identify the risks to which the charity is exposed and have reviewed the risks and established appropriate systems or procedures to mitigate those risks. ## **OBJECTIVES AND ACTIVITIES:** ## **Objectives and activities for the public benefit** The objectives of the charity are to promote the educational, medical and social welfare of persons suffering from phenylketonuria and similar disorders controlled by diet, to establish or encourage research in phenylketonuria and related disorders, to establish and maintain a fund or funds from which to make grants for -2- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **TRUSTEES’ REPORT** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## **Objectives and activities for the public benefit (continued)** the purpose of fulfilling the objects of the society, to invite, procure, appeal for, collect and receive and accept subscriptions, donations, legacies and gifts of money, investments or other property. The trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives, and in planning future objectives. ## **Grant making policy** The allocation of grants is decided on an individual basis as an application is made. The application where possible will be discussed by the Council of Management (anonymously if necessary) but if this is not possible a decision will be made by the senior officers and minutes taken at the next Committee of Management meeting. Where applicable, we shall seek guidance from our Medical Advisory Panel. ## **Volunteers** All members of the Council of Management are volunteers. They are encouraged to contribute freely to all discussions and decisions made by the Council. Meetings have minutes taken to reflect discussions, decisions and dissentions. ## **ACHIEVEMENT AND PERFORMANCE:** The financial year ending 31[st] October 2020 was overshadowed by Covid 19. Fortunately, we held our main event -our Annual Conference - earlier in the year in February 2020. Given many charity events had been cancelled for example the London Marathon, the Council of Management were concerned about income generation (from our members and supporters) and also costs budgeted for the year. Consequently, we agreed an emergency budget in early April. It was shown that if things continued as was, the Charity would be facing a large five figure loss for the year. As a result of the emergency budget, we suspended hard copy publications. All publications were published on the website, while News & Views was sent electronically to our members. Some working hours were restricted and as a result costs were cut. The fact that Edale and Keswick were also cancelled, contributed to cost savings as well. The Council of Management held virtual monthly meetings right through to the end of the financial year to monitor income and spent. These online meetings helped contribute to a reduction of our corporate governance costs for the year as well. We recognise the tremendous effort made by our members and supporters (including industry) in helping to achieve this and maintain the integrity of our assets on behalf of our members. It was a tremendous team effort, and I can only thank them publicly for all their hard work in turning around the finances to deliver a surplus. We can approach the 2020 financial year on a going concern basis with some confidence. By not having any face-to-face events post Conference, we were conscious we needed to communicate virtually to our members to help through the Covid crisis and keep their spirits up. Naturally, this mitigated any risk of spreading the virus. Our Conference was held in Maidstone, Kent this year and was well attended. On the Saturday news broke in the Daily Express that they would get behind our campaign to get sapropterin routinely commissioned. Several copies were purchased, and a short video made of the Conference attendees thanking them. They continue to support our campaign. -3- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **TRUSTEES’ REPORT** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** On 28[th] June 2019 - International PKU Day – we held our first virtual event. This was essentially, a mini telethon that resulted not only a boost to our finances but also an increase in membership. Great appreciation goes to those who contributed their own time freely for this event. Our Medical Advisory Panel met twice during the year and our Society dietitian started Friday meetings for dedicated dietitians to participate. Through this latter initiative, many publications have been updated and new ones written for members and the PKU Community. There is a currently an active production line of important publications – many of which have been posted already on our website. Our Advocacy team has had several meetings with the All-Party Parliamentary Group and much progress has been made in obtaining important information for the Society to act on behalf of members. Despite the application for **Sapropterin** being rejected again by NHS England, The National Institute for Clinical Excellence (NICE) is conducting an appraisal which is expected in April 2021. NHS England called on the manufacturer to offer the drug at a fair price. If the NICE appraisal recommends Sapropterin for routine commissioning, the drug will be made available within England and Wales. NICE guidance is also usually followed in Northern Ireland. NHS England has also stated that it would also commission any generic version(s) of Sapropterin from the next financial year onwards (2021) on the condition that these manufacturers price their products below the maximum level NICE advises as representing a clinically and cost-effective use of NHS resources. In addition to the above, our support staff – together with the Advocacy team have acted on behalf of many members in obtaining Disability Living Allowance (SLA) and Personal Independence Payments (PIP). ## **The Year Ahead** Any Conference we have in 2021 is expected to be a day Conference in the North West of England. At this stage, both Edale and Keswick will go ahead as usual. We shall look to build on International PKU Day video telethon our video conference. Coupled with this, it is likely our “Spring Draw” will become our “Summer Draw” and we shall potentially hold this at the same time. We shall look to NICE for a positive report on Sapropterin in April and advocate for routine commissioning. We do have input into this appraisal and we hope we can influence the decision for a positive response so that PKU Patients can benefit throughout the UK. Our News and Views will be produced in hard copy in 2021 as we do not anticipate a severe financial downside and many members were thrilled to get their hard copy “back” in late November 2020. No grants for research were made in the financial year due to financial pressures and many researchers either being furloughed, or research stopped. However, we shall pay for food analysis of some foods in the year. Analysis of phenylalanine content in natural foods is not cheap so we need to be selective in what we pay for. Of vital importance is the PKU network within the UK. We aim to foster support groups throughout the country. If you wish to start one, please get in touch at info@nspku.org. We extend our gratitude to all our support staff for all their hard work for the year including the transition of the position of Administrator from Caroline Bridges to Alison Green. Caroline has been a tremendous help to the Society during her tenure as Administrator and helped with a smooth handover earlier in the year. We wish her and her family the very best for the future. To all our members and the wider PKU Community a sincere thank you to all for your contributions to the NSPKU – be they financial or otherwise. -4- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **TRUSTEES’ REPORT** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## **FINANCIAL REVIEW:** The net incoming resources for the year were £24,031 (2019: (£25,489)), details of which are shown on the Statement of Financial Activities. ## **Reserves policy** At 31 October 2020 £15,401 (2019: £15,401) was held in the restricted research fund, £4,654 was held in a restricted fund for the new website (2019: £9,698), £272,740 (2019: £243,665) was held in the general unrestricted fund and £20,000 (2019: £20,000) was held in a designated grant and research fund. £266,245 (2019: £241,095) are free reserves. The society regularly reviews the reserves of the charity by means of the treasurer's report at each meeting, which details all monies held by the charity, including investments and restricted funds. The trustees' policy is to hold reserves to cover a minimum of two year's fixed expenditure which is currently around £180,000 year. Free reserves are to be used to fund new activities in the future. Sources of funding are shown in the Statement of Financial Activities and in the notes to the accounts. ## **Investment policy and objectives** The society's policy is to hold surplus funds in building society and deposit accounts. ## **Small company provisions** This report has been prepared in accordance with the provisions applicable to companies entitled to the small companies’ exemption. 28/07/2021 This report was approved by the trustees on ………………………….and signed on their behalf by: …………………………………………. ## **E W Lange – Chair** -5- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** I report to the charity trustees on my examination of the accounts of the company for the year ended 31 October 2020 which are set out on pages 7 to 18. ## **Responsibilities and basis of report** As the charity’s trustees of the company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’). Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5) (b) of the 2011 Act. ## **Independent examiner's statement** I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe in any material respect: 1. accounting records were not kept in respect of the company as required by section 386 of the 2006 Act; or 2. the accounts do not accord with those records; or 3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair view which is not a matter considered as part of an independent examination; 4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in the report in order to enable a proper understanding of the account to be reached. ## **N Mason FCA, DChA MHA Moore and Smalley Chartered Accountants Preston** 28/07/2021 **Date** ..................................................................... -6- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **STATEMENT OF FINANCIAL ACTIVITIES (INC INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 31 OCTOBER 2020** |**Income**
**Note**
Donations, grants and legacies
**2**
Income from charitable activities
**3**
Income from other trading activities
**4**
Investment income
**5**
**Total income**
**Resources expended**
_Costs of raising funds:_
Fundraising trading: cost of goods
sold and other costs
Charitable activities
**6**
**Total expenditure**
**Net income/(expenditure) for the**
**year**
Transfers between funds
**Net movement in funds**
**Reconciliation of funds**
Total funds brought forward
**Total funds carried forward**|**Unrestricted**
**Restricted**
**Total funds**
**Total funds**
**funds**
**funds**
**2020**
**2019**
**£**
**£**
**£**
**£**
**77,156**
**810**
**77,966**
64,469
**25,235**
**-**
**25,235**
53,169
**13,372**
**-**
**13,372**
12,207
**1,064**
**-**
**1,064**
1,357| |---|---| ||**116,827**
**810**
**117,637**
131,202| ||**3,016**
**-**
**3,016**
1,387
**90,590**
**-**
**90,590**
104,326| ||**93,606**
**-**
**93,606**
105,713| ||**23,221**
**810**
**24,031**
25,489
**5,044**
**(5,044)**
**-**
-| ||**28,265**
**(4,234)**
**24,031**
25,489
**263,665**
**25,099**
**288,764**
263,275| ||**291,930**
**20,865**
**312,795**
288,764| The statement of financial activities includes all gains and losses in the year. All incoming resources and resources expended derive from continuing activities. The notes on pages 9 to 18 form part of these accounts. -7- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED BALANCE SHEET** ## **AS AT 31 OCTOBER 2020** |**Note**
**Fixed assets**
Intangible assets
**8**
Tangible assets
**9**
**Current assets**
Debtors
**11**
Cash at bank and in hand
**Creditors: Amounts falling due**
**within one year**
**12**
**Net current assets**
**Net assets**
**Funds**
**13**
Unrestricted – general
Unrestricted -designated
Restricted
**Total funds**|**Unrestricted**
**Restricted**
**Total funds**
**Total funds**
**funds**
**funds**
**2020**
**2019**
**£**
**£**
**£**
**£**
**6,495**
**-**
**6,495**
2,450
**-**
**-**
**-**
120| |---|---| ||**6,495**
**-**
**6,495**
2,570
**2,708**
**-**
**2,708**
31,328
**287,175**
**20,865**
**308,040**
289,656| ||**289,883**
**20,865**
**310,748**
320,984
**(4,448)**
**-**
**(4,448)**
(34,790)| ||**285,435**
**20,865**
**306,300**
286,194| ||**291,930**
**20,865**
**312,795**
288,764| ||**271,930**
**810**
**272,740**
243,665
**20,000**
**-**
**20,000**
20,000
**-**
**20,055**
**20,055**
25,099| ||**291,930**
**20,865**
**312,795**
288,764| For the year ending 31 October 2020 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies. ## Directors’ responsibilities: - The members have not required the company to obtain an audit of its accounts for the year in question in accordance with section 476; - The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts. These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small charitable companies. 28/07/2021 These financial statements were approved by the trustees and authorised for issue on ………………………. and are signed on their behalf by: **----- Start of picture text -----**
................................................................ ............................................................................
E W Lange - Chair I Williamson – Secretary
Company number: 01256124
**----- End of picture text -----**
-8- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## 1 **Accounting policies** ## **Basis of preparation** The National Society for Phenylketonuria (United Kingdom) Limited is an incorporated charity registered in England. In the event of the charity being wound up, the liability in respect of the guarantee is limited to £1 per member of the charity. The address of the registered office is given in the charity information on page 1 of these financial statements. The nature of the charity’s operations and principal activities are explained in the Trustees Report. The charity constitutes a public benefit entity as defined by FRS 102. The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102), the Charities Act 2011, the Companies Act 2006 and UK Generally Accepted Practice. The financial statements are prepared on a going concern basis under the historical cost convention. The financial statements are prepared in sterling which is the functional currency of the and rounded to the nearest £. The significant accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all years. ## **Going concern** The trustees assess whether the use of going concern is appropriate i.e. whether there are any material uncertainties related to events or conditions that may cast significant doubt on the ability of the company to continue as a going concern. The trustees make this assessment in respect of a period of at least one year from the date of authorisation for issue of the financial statements and have concluded that the charity has adequate resources to continue in operational existence for the foreseeable future and there are no material uncertainties about the charity’s ability to continue as a going concern, thus they continue to adopt the going concern basis of accounting in preparing the financial statements. ## **Incoming resources** All incoming resources are included on the Statement of Financial Activities when the charity is legally entitled to the income, the amount can be quantified with reasonable accuracy and it is probable that the income will be received. Grants are recognised in the SOFA when receivable. When donors specify that grants given to the charity must be used in the future financial years, the income is deferred until that year. Assets and investments donated to the charity are included as donation income at market value at the time of the receipt. No amount is included in the financial statements for volunteer time in line with the SORP (FRS 102). -9- **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## 1 **Accounting policies (continued)** ## **Resources expended** The charity is not registered for VAT. All expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Where costs cannot be directly attributed to particular headings, they have been allocated to activities on a basis consistent with the use of resources. Charitable expenditure comprises those costs incurred by the charity on delivery of its activities and services, including those costs of any indirect nature necessary to support them. ## **Taxation** As a registered charity, the society is exempt from corporation tax on its charitable activities to the extent that these are applied to its charitable objects. ## **Intangible assets** Intangible assets are amortised on a straight-line basis over their useful lives. The useful lives of intangible assets are as follows: Website - 5 years straight line Provision is made for any impairment. ## **Fixed assets** Tangible fixed assets are stated at cost less accumulated depreciation. Cost includes costs directly attributable to making the asset capable of operating as intended. Depreciation is provided on all tangible fixed assets, at rates calculated to write off the cost, less estimated residual value, of each asset on a systematic basis over its expected useful life as follows: Computer equipment - 33% on cost ## **Fund accounting** Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes. Designated funds comprise unrestricted funds that have been set aside by the trustees for particular purposes. The aim and use of each designated fund is set out in the notes to the financial statements. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the charity for particular purposes. The cost of raising and administering such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements -10- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## 1 **Accounting policies (continued)** ## **Judgements and key sources of estimation uncertainty** There have been no significant judgements made in the process of preparing the financial statements. There have been no key assumptions concerning the future and other key sources of estimation uncertainty at the reporting date that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next financial year. ## 2 **Donations and legacies** |Donations and sponsorship|**2020**
**£**
**77,966**
**77,966**|**2019**
**£**
64,469| |---|---|---| |||64,469| Income from donations, sponsorship and grants was £77,966 (2019: £64,469), £77,156 of which was unrestricted (2019: £64,469) and £810 restricted (2019: nil). ## 3 **Charitable activities** |Restricted grants
Membership and literary fees
Conference and events|**2020**
**£**
**-**
**15,245**
**9,990**
**25,235**|**2019**
**£**
20,000
13,909
19,260| |---|---|---| |||53,169| Income from charitable activities was £25,235 (2019: £53,169), all of which £25,235 (2019: £33,169) was unrestricted and £nil was restricted (2019: £20,000). ## 4 **Other trading activities** |Fundraising events
Advertising|**2020**
**£**
**6,572**
**6,800**
**13,372**|**2019**
**£**
5,407
6,800| |---|---|---| |||12,207| Income from other trading activities was £13,372 (2019: £12,207), all of which was unrestricted. -11- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## 5 **Investment income** |**Investment income**||| |---|---|---| |Bank interest
General interest received|**2020**
**£**
**-**
**1,064**
**1,064**|**2019**
**£**
106
1,251| |||1,357| Investment income was £1,064 (2019: £1,357) of which £1,064 (2019: £1,357) was unrestricted and £nil (2019: £nil restricted). - 6 **Charitable activities** |**_Direct costs_**
Publications
Research
Dietitian’s fees and expenses
Conference and event costs
Grants awarded (see note below)
Sponsorship
Advocacy
**_Support costs_**
Insurance
Administration fees and expenses
Meeting and conference expenses
Membership fees and subscriptions
Telephone
Bank and other charges
Travel
Post, stationery and advertising
Depreciation charge
Examination fees|**2020**
**£**
**7,546**
**829**
**23,181**
**24,473**
**-**
**-**
**-**
**1,940**
**20,069**
**2,092**
**1,449**
**578**
**645**
**943**
**3,026**
**1,119**
**2,700**
**90,590**|**2019**
**£**
16,744
-
23,357
32,768
(9,593)
1,000
3,399
1,886
22,197
4,373
1,410
812
562
1,530
2,103
143
1,635| |---|---|---| |||104,326| -12- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## 6 **Charitable activities (continued)** |**_Grants to individuals_**
Research grant for a home monitoring
device
A grant for fruit and vegetables
A grant for travel to conference|**2020**
**£**
**-**
**-**
**-**
**-**|**2019**
**£**
(10,000)
340
67| |---|---|---| |||(9,593)| There were no employees during the current and previous year. Expenditure on charitable activities was £90,590 (2019: £104,326) of which £90,590 (2019: £103,617) was unrestricted and £nil (2019: £709) was restricted. Expenditure on raising funds in the current and previous year was unrestricted. - 7 **Net income/(outgoings) resources** ||**2020**|**2019**| |---|---|---| ||**£**|**£**| |Net incoming/(outgoing) resources are stated after charging/(crediting):||| |Independent examiner’s fees – current year (excluding VAT)|**1,335**|1,362| -13- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** |8
**Intangible assets**
A website costing £2,450 has additions of £5,044 in the current year and will be depreciated once it is
completed.
**2020**
**2019**
**Cost/Valuation**
**£**
**£**
Balance b/fwd
**2,450**
2,450
Additions
**5,044**
-
Disposals
-
-
Balance c/fwd
**7,494**
2,450
**Depreciation**
Balance b/fwd
-
-
Charge
999
-
Disposals
-
-
Balance c/fwd
999
-
NBV
Balance c/fwd
**6,495**
2,450
Balance b/fwd
**2,450**
2,450|8
**Intangible assets**
A website costing £2,450 has additions of £5,044 in the current year and will be depreciated once it is
completed.
**2020**
**2019**
**Cost/Valuation**
**£**
**£**
Balance b/fwd
**2,450**
2,450
Additions
**5,044**
-
Disposals
-
-
Balance c/fwd
**7,494**
2,450
**Depreciation**
Balance b/fwd
-
-
Charge
999
-
Disposals
-
-
Balance c/fwd
999
-
NBV
Balance c/fwd
**6,495**
2,450
Balance b/fwd
**2,450**
2,450|8
**Intangible assets**
A website costing £2,450 has additions of £5,044 in the current year and will be depreciated once it is
completed.
**2020**
**2019**
**Cost/Valuation**
**£**
**£**
Balance b/fwd
**2,450**
2,450
Additions
**5,044**
-
Disposals
-
-
Balance c/fwd
**7,494**
2,450
**Depreciation**
Balance b/fwd
-
-
Charge
999
-
Disposals
-
-
Balance c/fwd
999
-
NBV
Balance c/fwd
**6,495**
2,450
Balance b/fwd
**2,450**
2,450| |---|---|---| |||2,450| |||-
-
-| |||-| |||2,450| |||2,450| -14- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** ## 9 **Fixed assets** |**Cost**
At 1 November 2019

Additions

Disposals

**At 31 October 2020**


**Depreciation**
At 1 November 2019
Charge for the year

On disposals

**At 31 October 2020**


**Net book value**
**At 31 October 2020**


At 31 October 2019
|**Computer**
**equipment**
**£**
430

-
-
**430**

310
120
-
**430**


**-**

120

|**Total**
**£**
430
-
-
**430**
310
120
-
**430**
**-**
120| |---|---|---| ## 10 **Trustees’ remuneration and expenses** £1,699 has been paid to the trustees during the year ended 31 October 2020 to cover travel expenses and overnight stays and subsistence during conferences (2019: £4,195 to 5 trustees). £15 has also been paid the Trustees to cover telephone costs. The trustees neither received nor waived any emoluments during the year (2019: £nil). There are no other related party transactions. -15- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** |11
**Debtors: amounts falling due within one year**
Prepayments and accrued income
Trade debtors
12
**Creditors: amount falling due within one year**
Trade creditors
Accruals
13
**Funds**
**Current year**
**Brought**
**forward at**
**01/11/19**
**Incoming**
**resources**
**£**
**£**
**Restricted funds:**
Research funds
15,401
810
Website
9,698
-
Conference
-
-
**Total restricted**
**25,099**
**810**
**Unrestricted funds:**
_General reserve_
243,665
116,827
_Designated funds:_
NSPKU Grant and research
fund
20,000
-
**Total unrestricted**
**263,665**
**116,827**
**Total funds**
**288,764**
**117,637**|**Outgoing**
**resources**
**£**
-
-
-
**-**
(93,606)
-
**(93,606)**
**(93,606)**|**2020**
**£**
**1,083**
**1,625**
**2,708**
**2020**
**£**
**3,020**
**1,428**
**4,448**
**Transfers**
**£**
-
(5,044)
-
**(5,044)**
5,044
-
**5,044**
**-**|**2019**
**£**
15,300
16,028| |---|---|---|---| ||||31,328| ||||**2019**
**£**
33,362
1,428| ||||34,790| ||||**Carried**
**forward at**
**31/10/20**
**£**
**16,211**
**4,654**
**-**| ||||**20,865**| ||||**271,930**
**20,000**| ||||**291,930**| ||||**312,795**| -16- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** |13
**Funds**
**Prior year**
**Restricted funds:**
Research funds
Website
Conference
**Total restricted**
**Unrestricted funds:**
_General reserve_
_Designated funds:_
NSPKU Grant and research
fund
**Total unrestricted**
**Total funds**||**Brought**
**forward at**
**01/11/18**
**£**
15,808
-
-
**15,808**
**217,467**
**30,000**
**247,467**
**263,275**||**Incoming**
**resources**
**£**
-
10,000
10,000
**20,000**
111,202
-
**111,202**
**131,202**|**Outgoing**
**resources**
**£**
(407)
(302)
(10,000)
**(10,709)**
(105,004)
10,000
**(95,004)**
**(105,713)**|**Transfers**
**£**
-
-
-
**-**
20,000
(20,000)
**-**
**-**|**Carried**
**forward at**
**31/10/19**
**£**
**15,401**
**9,698**
**-**| |---|---|---|---|---|---|---|---| ||||||||**25,099**| ||||||||**243,665**
**20,000**| ||||||||**263,665**| ||||||||**288,764**| ## **Restricted IT/ website fund** Restricted funds were received for the development of IT systems and the website. They will be spent next year. ## **Restricted conference fund** Restricted funds spent on the annual conference ## **Grant and research fund** A comprehensive fund document has now been completed and is available for our members to apply to. The document is available on our website for downloading and can also be requested by our members via any of the Trustees or Support Staff. The fund will incorporate the Restricted Research Fund and the Assisted Places Scheme and covers a much wider basis for applications for funding. ## **General reserve** The General reserve represents the free funds of the charity which are not designated for particular purposes. -17- ## **THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED** ## **NOTES TO THE ACCOUNTS** ## **FOR THE YEAR ENDED 31 OCTOBER 2020** |14
**Analysis of net assets between funds (prior years)**
**Unrestricted**
**funds**
**Designated**
**funds**
**2019**
**2019**
**£**
**£**
**Fixed assets**
2,570
-
Cash
254,255
20,000
Other current assets / liabilities
(13,160)
-
**Total**
243,665
20,000|**Restricted**
**funds**
**2019**
**£**
-
15,401
9,698
25,099|**Total**
**2019**
**£**
2,570
289,656
(3,462)
288,764| |---|---|---| -18- ## **The National Society for Phenylketonuria (UK) Limited** MHA Moore and Smalley Richard House 9 Winckley Square Preston PR1 3HP Dear Sirs ## **Financial statements for the year ended 31 October 2020** The following representations are made on the basis of enquiries of management and staff with relevant knowledge and experience such as we consider necessary in connection with your independent examination of the charitable company’s financial statements for the year ended 31 October 2020. These enquiries have included inspection of supporting documentation where appropriate. All representations are made to the best of our knowledge and belief. - 1 We acknowledge that the work performed by you is substantially less in scope than an audit performed in accordance with International Standards on Auditing (UK and Ireland) and that you do not express an audit opinion. - 2 We confirm that the charitable company was entitled to exemption under section 144 of the Charities Act 2011 the requirement to have its financial statements for the financial year ended 31 October 2020 audited. - 3 We have fulfilled our responsibilities as trustees as set out in the terms of your engagement letter dated 29 January 2020, under the Charities Act 2011 for preparing financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice), for being satisfied that they give a true and fair view and for making accurate representations to you. - 4 All the transactions undertaken by the charitable company have been properly reflected and recorded in the accounting records. - 5 All the accounting records have been made available to you for the purpose of your independent examination. We have provided you with unrestricted access to all appropriate persons within the charitable company, and with all other records and related information requested, including minutes of all management and trustee meetings and correspondence with The Charity Commission. - 6 The financial statements are free of material misstatements, including omissions. - 7 We believe that the effect of uncorrected misstatements as set out in this letter is immaterial both individually and in total. - 8 The charitable company has satisfactory title to all assets and there are no liens or encumbrances on the charitable company’s assets, except for those that are disclosed in the notes to the financial statements. - 9 All actual liabilities, contingent liabilities and guarantees given to third parties have been recorded or disclosed as appropriate. - 10 We have no plans or intentions that may materially alter the carrying value and where relevant the fair value measurements or classification of assets and liabilities reflected in the financial statements. - 11 Significant assumptions used by us in making accounting estimates, including those measured at fair value, are reasonable. Page 2 - 12 We have disclosed to you all claims in connection with litigation that have been, or are expected to be, received and such matters, as appropriate, have been properly accounted for, and disclosed in, the financial statements. - 13 We have disclosed to you all known instances of non-compliance or suspected non-compliance with laws and regulations whose effects should be considered when preparing the financial statements. - 14 Related party relationships and transactions have been appropriately accounted for and disclosed in the financial statements. We have disclosed to you all relevant information concerning such relationships and transactions and are not aware of any other matters which require disclosure in order to comply with legislative and accounting standards requirements. - 15 All events subsequent to the date of the financial statements which require adjustment or disclosure have been properly accounted for and disclosed. - 16 We believe that the charitable company's financial statements should be prepared on a going concern basis on the grounds that current and future sources of funding or support will be more than adequate for the charitable company's needs. We have considered a period of twelve months from the date of approval of the financial statements. We believe that no further disclosures relating to the charitable company's ability to continue as a going concern need to be made in the financial statements. - 17 All grants, donations and other income, the receipt of which is subject to specific terms or conditions, have been notified to you. There have been no breaches of terms or conditions in the application of such income. No restricted income was received in the year ended 31 October 2020. - 18 We approve the year end journals. - 19 At the year end £36,096.42 was held in the COIF Investment Management Account. Yours faithfully ………………………………………… ………………………………………… **E W Lange - Trustee I Williamson - Trustee** On behalf of the board of trustees 28/07/2021 Date …………………………………