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2022-05-31-accounts

The Restricted Growth Association

Annual Report and Financial Statements For the Year Ended 31 May 2022

Charity Registered in England and Wales Number: 261647

The Restricted Growth Association Contents For the Year Ended 31 May 2022

Reference and Administrative Details
Trustees Report
Section B
Accounts

Examiners Report		 Page
1
2 - 6
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The Restricted Growth Association Reference and Administrative Details For the Year Ended 31 May 2022

Management Committee G Martin (Resigned 01/06/2021) G Crane S Martin (Resigned 01/06/2021) J Niven C Niven H Scott D Scott R Cutmore Principal Office P O Box 88 Presteigne LD1 9BL

Status Charity Registered in England and Wales No 261647

Page 1

The Restricted Growth Association Trustee Report For the Year Ended 31 May 2022

The trustees present their report and accounts for the year ended 31 May 2022.

Our Purposes and Aims

Our charity’s purposes as set out in the objects contained in the charity’s Constitution are to:

Ensuring our work delivers our aims

We review our aims, objectives and activities each year. This review looks at what we have achieved and the outcomes of our work in the previous twelve months. It considers the success of each key activity and the benefits it has brought to those groups of people that we are set up to support. The review also helps us to ensure that our aims, objectives and activities have remained focused on our stated purposes. We have referred to the information contained in the Charity Commission’s general guidance on public benefit when reviewing our aims and purposes, and in planning our future activities. In particular, the trustees consider how planned activities will contribute to the aims and objectives they have set. Our Mission Statement reads as follows: -

“The RGA’s purpose is to ensure that all people who are affected by dwarfism are equal in society.”

This mission statement will help to focus the work that we do and the projects that we take on as we move ahead in the coming years.

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The Restricted Growth Association Trustee Report For the Year Ended 31 May 2022

The focus of our work

Due to the global pandemic, we were unable to provide our usual activities. Our main objectives most years are to provide support and information to people of restricted growth and their families, while creating a greater awareness of restricted growth conditions amongst the general public. The strategies we used to meet these objectives included:

How our activities deliver public benefit

Our main activities and the groups of people that we seek to help are described below. All of our charitable activities focus on both supporting individuals and families affected by restricted growth and promoting a greater understanding of the disability to the wider public. All activities are undertaken to further our charitable purposes for the public benefit.

Who used and benefited from our services?

Our services are primarily provided for those in England, Wales and Northern Ireland, though we provide support to members throughout the United Kingdom. The number of individuals affected by restricted growth throughout the United Kingdom is estimated at approximately 6000.Our funding limits those we can help, so demand for our services is managed by giving priority to new parents and members in crisis. All of our services are provided to our clients free of charge.

Equal access to our services is an important issue for us. We have adopted an updated Equalities Policy, which is given to all employees and volunteers working on behalf of the charity. We also ensure that all committee members have taken part in an equalities training program. We believe that equal access to our services is vital to our success as a charity and that positive outcomes must be shared by all communities that use our services.

Restricted growth affects males and females equally, and our monitoring suggests that this is broadly reflected by the requests for assistance received by the office. The enquiries that we receive are made by individuals in all generations. The charity is commonly asked for support at stages of significant change or transition within a person’s life; the peak ages being pre-natal and early infanthood, adolescence, young adult and old age. Approximately one third of enquiries for assistance are made by health, education or social care professionals on behalf of a patient/student/client they are working with who has restricted growth.

Further information about who benefits directly from our services is explained in the analysis of performance and achievements provided below. However, the impact of our work goes far beyond those that we help directly. It also includes reducing the isolation and distress suffered by the families and friends of individuals with restricted growth, as well as greatly supporting social services and health care professionals by sharing our specialist knowledge of restricted growth conditions and the occupational health aids suitable for people with dwarfism.

Our main areas of charitable activity are; the provision of counselling, advice and information; benefits assistance; education about restricted growth; organising self-help and networking events; and supporting positive representation of people with restricted growth. These activities and the achievements that flow from our work are described below.

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The Restricted Growth Association Trustee Report For the Year Ended 31 May 2022

Counselling, advice and information

The RGA Office currently offers a helpline service that provides one-to-one counselling, advice and information on all aspects of restricted growth. This is commonly the first contact that new parents of a child with restricted growth have with a support organisation. The office is also the charity’s information hub and stores member records and useful resources.

Our website continues to expand, with the inclusion of more resources and information, provided by volunteers. The RGA is aware of the popularity of social media as a way for our members to communicate and gain support. We regularly review our use of all social media technologies to ensure that we are providing support in all the different ways that are available. Information is disseminated to members and interested medical professionals via email news bulletins and a magazine.

Financial support

The RGA provides its members with access to a benefits assistance service.This service offers guidance and links to additional specialist support for members making any sort of benefits claim. Benefits forms are complex and the particular challenges arising from restricted growth are not commonly understood, which is evidenced by the number of requests that this service receives.

As well as continuing to assist members with claims for financial support, we have also raised awareness of other avenues of support that are available – including Family Fund, the Access to Work scheme and other grant giving bodies. This has been achieved through, direct emails, links in Facebook groups and advice supplied via the RGA helpline. For the future, we intend to continue to support our members in applying for the benefits that they are entitled to. We have provided, and will continue to provide, members with opportunities to gain access to events by the Department of Work and Pensions, which aim to improve understanding of the requirements of benefits claim forms. We will also continue to develop and train our volunteer base to provide appropriate support and will develop links with advice bodies such as the Benefits and Work Group.

Educating people about restricted growth

Several of our members continue to visit schools, colleges and youth organisations to give talks about living with restricted growth, raising understanding of the causes, giving positive examples of people with restricted growth achieving in various areas of life, and encouraging discussions about the inclusion of people with disabilities. Although we were unable to do this during the 2021-2022 financial year. We have produced a range of posters, stickers, information cards and promotional materials to assist in delivering this message.

Self-help and networking events

80% of babies born with restricted growth are born to average height parents. One of the main opportunities a person has to meet others with dwarfism is at an event held by the RGA. This is also a really important opportunity for developing peer support networks and self-help strategies.

Unfortunately, due the global pandemic relating to COVID-19 we were unable to run our usual series of events, but the charity continued to support people via the phone helpline. We hope to be able to offer a greater selection next year, and we have already scheduled a few smaller regional events

Supporting positive representation of people with restricted growth

RGA is still regularly approached by advertising agencies for guidance on how actors with restricted growth could be portrayed in their campaigns without causing offence. The RGA is keen to work with advertising agencies and production teams to help combat negative stereotypes surrounding dwarfism. The RGA has published its media policy, which is openly available on our website.

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The Restricted Growth Association Trustee Report For the Year Ended 31 May 2022

Supporting successful integration of people with restricted growth into the wider community

The RGA has continues to support members who have experienced hate crime as a result of their disability. The support that we provided includes reporting incidents to the police, and liaising with various agencies including Local Authority, Housing Authority and the Community Police Support Officers. We also provided peer support, including telephone calls, home visits, and video calls, to ensure the continued safety of the affected individual and to assist in rebuilding confidence and self-esteem.

People with restricted growth have specific occupational therapy requirements. The RGA has received several donations of equipment, which is lent to those in need on a discretionary basis.

Awareness activities

We continued to freely provide our Dwarfism Awareness Cards. These pocket-sized cards display key facts about restricted growth and are designed to be given out to people who may have questions about restricted growth. We now have six different card designs available, each meeting the particular needs of different demographic groups within the restricted growth community.

In the upcoming year the trustees intend to build upon these awareness activities, while working as closely as possible with other UK-based organisations that support and represent individuals with restricted growth.

Structure, governance and management

All members of the Management Committee give their time voluntarily and receive no benefits from the charity. Members of the Committee stand for annual election by the membership, as detailed in the charity’s Constitution.

Trustee induction and training

Most trustees are already familiar with the practical work of the charity, having been members themselves for many years. All are connected with the restricted growth community and have either a restricted growth condition themselves, a family member with restricted growth, or a professional medical interest in restricted growth.

Under the charity’s Child Protection Policy, each trustee is now required to have a satisfactory Disclosing and Barring Service (DBS) check (at enhanced level) and to undergo Child Protection Training. All trustees and volunteers now must participate in our rolling training programme, in which they will complete vulnerable adult training, equalities training, and child protection training courses.

Financial review

The year’s highlights:

The accounts have been prepared on a Receipts and Payments Basis. During the year ended 31/05/22 we had two legacies totalling just over £53,000 and several thousand pounds was raised in memory of one of our Trustees, Rachel Tlili, who very sadly passed away in June 2020. With the reduced active the legacies, donations, and fundraising that took place we ended the year increasing our reserves by £55,631. We look forward to the coming years now COVID is easing where we can start to grow back our activities and really drive forward with education and support now the charity is in a secure financial position.

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The Restricted Growth Association Trustee Report For the Year Ended 31 May 2022

Reserves policy

The trustees consider that the charity should maintain liquid reserves to cover at least six months of normal expenditure.

Risk management

The trustees have conducted a review of the major risks to which the charity is exposed and consider that systems are in place to mitigate those risks.

Statement of Trustees’ Responsibilities

The trustees are responsible for preparing the Trustees’ Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards. The law applicable to charities in England and Wales requires the trustees to prepare financial statements on a receipts and payments basis.

The trustees are responsible for keeping accounting records which disclose with reasonable accuracy the financial position of the charity and enable them to ascertain that the financial statements comply with the Charities Act 2011 and the Charity (Accounts and Reports) Regulations. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Approved by the Trustees on……28/03/2023….and signed on their behalf by

………………………………………

G Crane

Treasurer

Page 6

Restricted Growth Association

Account for the period 1st June 2021 to 31st May 2022

Charity Registered in England and Wales Number: 261647

These accounts are prepared under the Receipts and Payments Method

Section A: Receipts and Payments

Incoming Receipts:
Donations
Subscriptions
Fundraising
Investment Income
Conventions/Meetings
Grants Income
Legacy
Total Income
Outgoing Payments:
Conventions / Meetings
Office Admin
Committees/regionals
Insurance
Travel & Susistence
Telephone, Postage & stationary
Publications
Fundraising and events
Training
Storage
IT and website
Bank charges
Total Expenses
Net Incoming/Outgoings
Transfer between Funds
Cash funds last year end
Cash funds this year end
Section B: Assests and liabilities at Period End
Cash Funds
CAF Bank
Lloyds Bank
PayPal
Assets Held
Fund Raising Stock
Fixed Assets (Convention Items)
Liabilities
Creditors		 Unrestricted
£
2,026
3,118
3,116
53
0
0
53,150
61,462
0
1,040
190
838
0
1,568
0
444
0
840
756
154
5,831
55,631
0
394,944
450,576
Unrestricted
£
420,180
21,282
9,114
450,576		 Restricted
£
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
Restricted
£
5,251
0
0
5,251		 2022
£
2,026
3,118
3,116
53
0
0
53,150
61,462
0
1,040
190
838
0
1,568
0
444
0
840
756
154
5,831
55,631
0
400,195
455,827
2022
£
425,431
21,282
9,114
455,827
100
750
0		 2021
£
1,166
3,576
6,566
141
0
0
8,887
20,336
0
1,337
0
832
0
1,311
0
0
0
840
986
178
5,484
14,853
0
385,343
400,195
2021
£
373,471
19,560
7,164
400,195
100
750
0

Page 1

Restricted Growth Association Account for the period 1st June 2021 to 31st May 2022

Charity Registered in England and Wales Number: 261647

These accounts are prepared under the Receipts and Payments Method

Notes to the Accounts:

----- Start of picture text -----
Unrestricted Restricted 2022 2021
Grants received in Bank £ £ £ £
Children in Need 0 0 0 0
0 0 0 0
----- End of picture text -----

Movement of funds in Bank

Restricted:
Convention - CiN
Cornwall
Diana Nelson
Unrestriced
Total Cash at Bank		 Opening
Closing
01/06/2021
Incoming
Outgoing
31/05/2022
£
£
£
£
0
0
0
0
1,451
0
0
1,451
3,800
0
0
3,800
5,251
0
0
5,251
394,944
61,462
(5,831)
450,576
400,195
61,462
(5,831)
455,827
Movement in Resources

Description of the Restricted Funds:-

The Cornwall fund was provided to support the Cornwall region’s costs and members. The Diana Nelson fund was introduced to generate funds to pay for a Literary Prizes each year.

Signed on behalf of the trustees

Signature

----- Start of picture text -----
Signature Name Date
Graham Crane 15/11/2022
----- End of picture text -----

Page 2

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