**Annual Report of Society for Research into Hydrocephalus and Spina Bifida, 2024** 

## STRUCTURE, GOVERNANCE AND MANAGEMENT 

The Society is managed by the trustees. 

The income received to date has been evaluated, in terms of any potential risk to the society, and assessed as minimal. On an ongoing basis the major risks to which the charity is exposed, as identified by the trustees, have been reviewed and systems have been established to mitigate these risks. 

## OBJECTIVES AND ACTIVITIES 

The Society’s objectives are to further the research and knowledge into prevention and management of Hydrocephalus and Spina Bifida. 

## ACHIEVEMENTS AND PERFORMANCE 

SRHSB is a multinational society with a multidisciplinary membership from many countries. The Society continues to undertake surveillance of flour fortification and raise awareness amongst all medical 

professionals of the importance of pre-conceptual folic acid and vitamin B12 in reducing the incidence of spina bifida. It continues to support and encourage research into the causation and treatment of spinal bifida and hydrocephalus. The Society's Annual Meeting in Manchester in September 2024 was educationally and scientifically a great success and made a welcome surplus of £2,972 for the Society. The full programme was highly praised by the delegates, and encouraged new members to join the Society. The organisers of the meeting managed to operate at a small profit. The Society has also attracted a bequest of £15,016.  This funding has been used to support small research projects and offer financial assistance to less privileged doctors throughout the world so that they can attend the Annual Scientific Meeting and present their work. In the forthcoming year, it hoped that the Society's profile will be raised by promoting itself through a new website and other initiatives encouraging new membership and assuring its sustainability into the future. 

## Risk Review 

The major risks to which the charity is exposed, as identified by the trustees, have been reviewed and systems have been established to mitigate these risks. Other hydrocephalus research societies have been established during the last few years which have drawn members away from the SRHSB, so the Society will now focus on encouraging and facilitating research projects by young researchers especially from low-income countries. The Society meetings will continue to be used for networking and external charitable donations will be increasingly sought to help start new research projects. 

## FINANCIAL REVIEW 

In 2023, total income was £12,817 and expenditure on grants, bursaries and running costs amounted to £18,562, resulting in a deficit of £5,745. This has been reflected in the Society’s cash assets, which declined from £72,999 to £67,254 at the end of 2023. 

The Society has net incoming resources in the year 2024. Total income was £33,340 and expenditure on grants, bursaries and running costs was £7,747. The Society now has a solid asset base of £92,847 which in the longer term will enable the Society to meet its objectives. 



Reserves Policy 

It is the policy of the charity to maintain a level of reserves sufficient to cover any loss that might occur as a result of the Annual Meeting. 

## PLANS FOR FUTURE PERIODS 

The foundation aims to continue meeting its objectives via the activities of the 16 members of the Executive Committee who are also the Trustees of the Society. 

Administrative Information: 

Ian Pople MD FRCS(SN), President 

Jocelyn Glazier, Hon Secretary 

William Singleton PhD FRCS(SN), Hon Treasurer 

Dr Jaleel Miyan, Folic Acid Spokesperson and Past President 

Prof John Pickard past president 

Prof Pat McCallister, North American Corresponding Member and Past President 

Mr Andy Wynd MBE, Past CEO of Spina Bifida Scotland 

Hannah Botfield, Membership Secretary 

Carolyn Harris, Bioengineering Liaison 

Albert Isaacs, Young Investigator Representative 

Prof Patricia Paez Gonzales, Publications Secretary 

Dr Takayuki Inagaki, Pan-Asian representative 

Nada Mohammed, Pan-African representative 

Khalid Al-Kharazi, Pan-Middle Eastern representative 

Christopher Roberts, Social Media Team 

Talisser Gasser, Webmaster 

Society for Research into Hydrocephalus and Spina Bifida (SRHSB) 

Financial Statement for the year ended 31 December 2024 

Payments and Receipts Accounts 



CHARITY COMMISSION
FOR ENGIANO AND WAiES
Sotlotylor R•*•arch Into FWroc•phaI￿￿sPl￿ Blfl
Recei
ts and
ments accounts
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Forthe perfod
from
To
Section A Receipts and payments
Endowmoni
lunds
funds
lund$
Layiyear
A1 Rècèl
s113￿ll
iJ69
2.320
1029
1*0IE
IgT2
2,32
1.610
10.QOO
th)￿￿1&10fvtsb£8O0OreStsthdfQrgTan1sl
Beques15
Iprofilsfrom?Tr?4Jlnnual mwwevenl
2.972
1.Ta4
toia
ross in¢om&
2aqOE
12M11
A2 A5S&tand Investhnenl sales,
see table.
25.6D6
9,734
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oi
1.03
g.OUO
442
1fjB
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8.121
Sub toial
&515
T.T4T
A4A5set4nd Investrnenl p￿r¢h•S•S, 16•
Stsb ioi*I
Totalpaymenls
1&32
7,747
18,562
olrecwpts/lpaymentsl
ASTrJn8f•rs ￿tW￿8n
A6 Cash funds145tye4r enil
Cash fvnds this yearend
22,374
)219
26.$•3
07,2S4
67,2
92N7
5219
5,746
Section B Statement of assets and liabilities at the end of thè period
Unrostrictèd
lunrt5
to n•ar•sl£
Endowmont
funds
t￿n￿r•S1
lund5
ton•¥•5tt
B1 Cash fund5
35.036
Tnath5
46,744
P3v￿￿1
Total¢ash ftstrmts
89,62B
4219
Endowrnenl
fund5
t￿n￿r•s1*
fo Mir•Jl£
ton•w•51
82 Other monetary assets
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an
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own use
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B5 Liabilities
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Prknl Name
Date ol
Igton
12.(%J-25
12tht.25
CCXX R2￿x￿wtslS5l
10nor2025

**Independent Examiner's Report to the Trustees of Society for Research into Hydrocephalus & Spina Bifida -** Year Ended 31 December 2024 

I report on the accounts of the charity for the year ended 31 December 2024. 

## RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER 

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed. 

It is my responsibility to: 

• examine the accounts under section 145 of the 2011 Act; 

• to follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and 

• to state whether particular matters have come to my attention. 

## BASIS OF INDEPENDENT EXAMINER'S REPORT 

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination 

includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. 

It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below. 

## INDEPENDENT EXAMINER'S STATEMENT 

In connection with my examination, no matter has come to my attention: 

(1) which gives me reasonable cause to believe that in any material respect the requirements: 

• to keep accounting records in accordance with section 130 of the 2011 Act; and 

• to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act have not been met; or 

(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached. 

Mr. Ahmad Graiz 

Independent examiner 

Digitally signed by Ahmad Graiz DN: cn=Ahmad Graiz, ou=Independent Examiner, email=Graiz.ahmad@yahoo.com Date: 2025.10.16 11:16:22 +03'00' 

Address: Bahrain - Manama