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2025-03-31-accounts

Shine Trustees’ Annual Report and Financial Statements 2024/25 Year ended 31st March 2025

Contents

~~Message from our Chair and CEO~~ ~~3~~ ~~Thank you~~ ~~24~~
~~Our impact~~ ~~4~~ ~~Income and expenditure 2024/25~~ ~~26~~
~~Our achievements in the year~~ ~~5~~ ~~Financial review~~ ~~27~~
~~Strategic Goal 1~~ ~~6~~ ~~Going concern and statement of public beneft ~~ ~~30~~
~~Strategic Goal 2~~ ~~9~~ ~~Reference and administration details~~ ~~31~~
~~Strategic Goal 3~~ ~~12~~ ~~Our commitment to quality fundraising~~ ~~33~~
~~Strategic Goal 4~~ ~~16~~ ~~Structure, Governance and Management~~ ~~34~~
~~Strategic Goal 5~~ ~~17~~ ~~Board integrity~~ ~~34~~
~~Strategic Goal 6~~ ~~18~~ ~~Statement of Trustees’ Responsibilities~~ ~~36~~
~~Strategic Goal 7~~ ~~19~~ ~~Independent Auditor’s Report~~
 ~~37 onwards~~

2 Shine Trustees’ Annual Report and Financial Statements

Welcome from the Chair and CEO

We are proud to welcome you to Shine’s Annual Report for the year 2024/25.

As the Chair and the CEO, we are delighted to share details of the remarkable strides Shine has made throughout the year to support our members, their families and professionals. From enhancing educational support for children to empowering young people and adults, our initiatives have made a significant impact on the lives of our members across England, Wales and Northern Ireland.

campaign for

greater public awareness on how folic acid supplementation can help to reduce the chances of pregnancies being affected by anencephaly, a fatal condition, and spina bifida.

Shine’s membership is at its highest ever, with over 14,500 babies, children, young people and adults living with hydrocephalus and/or spina bifida, and related conditions now registered with us.

We have reviewed and consolidated initiatives such as the ‘Shall Wee Talk’ continence support programme, which has been reshaped to better cater to different age groups, and introduced the Shine STAR school awards, aimed at educating nursery and school staff about spina bifida and hydrocephalus. Our staff have also dedicated efforts to improve transition support for young people and worked with the NHS to establish more specialist clinics and access to better services across the nations.

We cannot thank the teams across Shine enough for the work they do. Ably guided by our senior leadership and management teams, they have once again risen to the challenge of delivering quality advice and support as our membership numbers have continued to grow – from the frontline service teams and our specialist leads to income generation and finance, from our communication and data staff to HR and internal services, EVERYONE has played their part in making 2024/25 a success.

Whilst we have continued to build on our strategic goals, ensuring that our services are tailored to meet the diverse needs of our members, we have also turned our focus to research and innovation, including a transformative new treatment, Non-Invasive Spinal Electrical Stimulation (NISE Stim), which promises a new era in neurorehabilitation for people living with spina bifida. Additionally, our focus on raising awareness and providing support for normal pressure hydrocephalus (NPH) has led to the development of a specialised service in Shine that addresses the unique challenges faced by individuals to get a diagnosis of NPH, the ensuing treatment and on-going support needed when living with the condition.

Thanks must also go to the trustees, volunteers and supporters who make significant contributions to Shine, be they overseeing management and leadership of the charity, helping with day-to-day tasks such as admin or data checking, or fundraising and supporting us at the numerous events we are involved in throughout the year.

As we look ahead to the coming years, Shine remains committed to making a positive impact on the lives of those we support.

The success of our campaigns, including the mandatory fortification of flour with folic acid, marks a major milestone in our efforts to prevent neural tube defects. This achievement is a testament to the dedication and perseverance of our team and supporters. In the coming years, it is our intention to

With our best wishes

Joanne Williams, Chair

Kate Steele, CEO

Trustees’ Annual Report and Financial Statements Shine 3

Our impact

Shine is continually working towards our vision of a society where all those whose lives are affected by spina bifida and/or hydrocephalus, and associated conditions are empowered and enabled through choice and equality of opportunity”.

We welcomed 923 new members to Shine, bringing our overall membership to over 14,500 people!

Last year, we provided one to one support to eo le 4,650 p p

We made a difference in the following areas…

Improving health and self-management

Reducing isolation and building community

1681

1887 1887 people attended our events and engaged on our peer support forums.

We helped 1681 people to improve their condition knowledge, and 1489 people to manage their condition better.

3432

1459 1459 enjoyed better health and wellbeing thanks to our support.

We enabled 3432 people to enjoy more positive relationships in their lives, and 3497 to feel better connected to others.

Enhancing access to essential services…

Our teams supported…

478 people to have better access to education

133 people 365 people to get better accommodation to to have improved suit their condition financial stability

1632 people to access better care and support in their community

We also empowered people with the knowledge and confidence to seek support themselves. As a result of our interventions,1878 people felt more confident to self-advocate

87 people to get into work, or get the support they needed to stay in work for longer

4 Shine Trustees’ Annual Report and Financial Statements

Our achievements in the year

Consolidation

When we launched the Corporate Plan in 2022, our ambition was to create a structure and investment plan, which would ensure we were able to provide tailored support, advice and guidance for all Shine members and their parents/families/carers, no matter their age, condition(s) or location.

Three years in, and we have achieved this!

For each ‘age and stage’ in our members’ lives, Shine offers:

options for independence, employment, staying and living well, finance and interests

Shine Health Direct: a service providing urology amd stoma products to members, delivered in partnership with Bullen Healthcare.

Legal Services: A partnership with leading law firms to offer legal advice and support.

Trustees’ Annual Report and Financial Statements Shine 5

Strategic Goal 1

Enabling Babies and Children (0 to 12 years old)

members as of 31st March 2025

children and families who received one-to-one support

Shine has been a tremendous support for us as parents, especially in the early days when we had no idea what to expect…” Parent of a young Shine member.’

Transition

It is important that our children with hydrocephalus and/or spina bifida, along with their families, have a positive experience of transitioning into new schools and environments, as they are more likely to feel connected, enjoy a sense of belonging and have a positive sense of social and emotional wellbeing, which allows them to learn and thrive.

However, our experience shows that transition plans can be disjointed and, in some cases, nonexistent for babies and children living with

hydrocephalus and/or spina bifida.

The knock-on effect is a lack of understanding of the conditions, and the potential cognitive impacts, limited awareness of the

needs of the individual child, and a lack of adjustments and adaptations to ensure the child can get the best out of their new school and the education it provides.

We were, therefore, delighted to appoint Shine’s

Education Officer in March 2024 to enhance our educational support. 12-months on, and in addition to more general education advice, Shine can consistently offer:

Thank you to The Mackintosh Foundation and The Stockwell / Cliffe Charitable Trust for their support

6 Shine Trustees’ Annual Report and Financial Statements

Shine is an outstanding charity that has provided invaluable support to our school on our journey to achieving the SHINE School Award. Their guidance and assistance for both staff and parents have been truly (SENDCO, exceptional, making a significant impact every step of the way…” from school achieving the STAR Award)

Managing continence

Most people living with spina bifida will have some degree of continence issues with the bowel, bladder, or both. Early understanding of the importance of continence care can be life-changing for those children who

have continence issues. Selfmanagement leads to a growth in self-confidence and longer-term independence.

An extensive review of our ‘Shall Wee Talk’ continence support programme informed a re-

shape of the service, which is now run as a sixweek programme for different age groups, allowing the team to tailor information and language to the children’s ages and levels of understanding. Once completed, the children will graduate from the programme but continue to have access to specialist support. Their place remains secure in the group if they are not ready to move on.

The difference just one session had on my son’s mental state was huge. To know he isn’t alone, that there are other boys like him, it was almost as if a visible weight was lifted from his shoulders.”

Thank you to BBC Children in Need and John Horniman's Children's Trust for their support

Spinal Stimulation – a new era of treatment

Shine has continued our ground-breaking research using Non-Invasive Spinal Electrical Stimulation (NISE Stim), which highlights a promising new era in neurorehabilitation. Developed in 2017 by Dr. Gad Alon and Gerti Motavalli, NISE Stim uses electrical impulses sent through electrodes placed over the spinal cord to stimulate sensory roots. This stimulation enhances neural connectivity within the spinal cord, impacting sensory, motor, and autonomic nervous systems.

NISE Stim strengthens neural connections and induces muscle contractions, promoting neuroplasticity. It offers potential improvements in muscle health, metabolic function, bone strength, circulation, and wound healing. Clinical studies since the 1980s have shown its safety, with rare instances of skin irritation under electrode.

The treatment is suitable for children with spina bifida and can begin as early as 8 weeks post-surgery. It is contraindicated for children with implanted electrical devices or uncontrolled epilepsy. The Shine NISE Stim Service, available in five locations across England, Wales, and Northern Ireland, has seen positive outcomes

in children and adults, including increased circulation, sensation, and muscle strength.

Trustees’ Annual Report and Financial Statements Shine 7

It is still early days, but this innovative approach marks a significant advancement in neuro rehabilitation, which we hope to see rolled out to benefit more people living with spina bifida across the UK.

We truly believe that a combination of spinal

stimulation therapy and regular physiotherapy has improved our daughter’s muscle tone and mobility, allowing her to do most of the things that any child of her age can do. With the help of Shine, we will continue to do spinal stimulation therapy to continue to help our daughter’s mobility…

Our daughter has benefitted greatly from spinal stimulation therapy. Before we started, she had very limited sensation in the soles of her feet and her feet were in such a dorsi flex position that her toes were almost touching her shins. After a year of spinal stimulation, her sensation has improved dramatically. Whilst her foot positioning isn’t 100% correct it now sits in a 90-degree angle, allowing her to crawl, climb and walk with a kaye walker.

Member story

At every spinal stimulation clinic we hold, we witness the real life impact this therapy has on children’s comfort, mobility, and independence. Recently, we saw a young man who had been following a tailored course of spinal stimulation aimed at strengthening the muscles in his trunk.

This approach was chosen to reduce any worsening of his existing scoliosis (curvature of the spine) and to reduce how hard he is having to work in sitting due to weak core and trunk muscles.

At his most recent appointment, we were thrilled to see that his independent sitting balance had improved when not wearing his back brace. Sitting with more stability has led to him feeling more confident when sitting and he is now working with his Occupational Therapist on learning independent dressing skills.

Following review from his medical team, the need

for a back brace may be reduced (currently he wears it 23 hours a day), and with it the need for surgery may be avoided.

We would like to extend our thanks to the following for their support of our spinal stimulation work

Thank you for supporting our Little Stars:

8 Shine Trustees’ Annual Report and Financial Statements

Strategic Goal 2

Empowering Young People (13 to 25 years old)

young people members

young people who have received one-to-one support

Similar to initiatives in goal 1 but for different ages, our teams have worked to more directly connect and communicate with our 13 to 17 year old members, and our 18 to 25 year old members,

encouraging them to take greater responsibility in advocating for themselves in accessing the services and support systems they want and need.

I used to think I was weak, that my conditions meant I couldn’t do anything. Shine changed that.” (Teen member)

Influencing pathways for transition

Improving transition support and access to services has been high on our agenda as experience tells us that there are large gaps in the system when young people reach the age of moving from children to adult health and other services.

The right services and good transition pathways will help young people adapt to the changes and challenges that come with adulthood. Shine has been working with clinics and professionals to find opportunities to improve existing services and identify potential partnerships and projects to create more opportunities to smooth the way for young people to continue receiving the necessary and tailored support and care as they get older.

We have also put a spotlight on transition in education. By combining the expertise, skills and

knowledge of our Youth Voice and Engagement Officer and our Education Officer, we have successfully supported many of our youth members at distinct stages of their education journey. This work is also shaping our future strategy to meet the needs of the young people we work with.

Before joining the teen socials, I never knew anybody with the same conditions as me. I was really worried at first about joining, but I cried with happiness after the first session because I no longer felt alone” (Teen member)

Trustees’ Annual Report and Financial Statements Shine 9

Developing Shine’s services for Young People

Shine’s Young People have been actively engaged in creating the framework for our young people’s support service, which includes peer interaction, support through websites and social media, resources, and a network of partner agencies for signposting. This approach ensures that the work we do is tailored to their needs and preferences, promotes independence, self-advocacy and builds a sense of community.

I enjoyed being part of the video about school stresses. It was tough to talk about but it was good to have my voice heard. It was also nice to know I do not face these struggles alone. It was overwhelming to have so much in common with others after feeling alone with these issues for so long. It made me realise I am not the weirdo at school and other people struggle with the same things and it is down to my condition.

Innovative approaches to engagement and involvement

Our young people have been engaged in steering the direction of the services they wish to receive from us.

Drawing on their knowledge, experiences and needs, the groups have actively contributed to the development of co-produced e-newsletters, a toolkit to help with future planning and draft publications, the contents of which is relevant and resonates with their experiences, covering a range of topics including health updates, personal stories and practical advice.

Bringing the groups together not only provides valuable insight and information, but also fosters a sense of community and belonging, which also addresses our strategic goal 4 ‘a connected community’.

It’s part of being something bigger… knowing we are not alone…”

10 Shine Trustees’ Annual Report and Financial Statements

Youth Work sessions

Set up to engage, empower and educate, these online and face to face sessions have provided safe spaces for our young people to meet others of the same age share experiences and explore areas of interest or challenge together, often focusing on their health and wellbeing.

It’s helped us face challenges that once felt overwhelming…” (Shine teen members’ feedback)

Member story – the difference Shine has made

“One of the many stand out moments for us as parents was the response from Shine at the point of diagnosis, when we discovered our baby had spina bifida at the 20-week scan. Within 12 hours of us reaching out we received a response and within 4 day we had a face-to-face meeting with a member of the Shine Team. We have accessed a range of support over the years ranging from emotional support which has proved to be incredibly beneficial during challenging teenage years, vast input from Shines Specialist Health Team which has helped prepare Owain for independence, understand his disability and the confidence to manage his complex condition plus the importance of taking responsibility for his own health and wellbeing. Opportunities also for social interaction and develop friendships with other young people within the Shine community.

The support that Shine has put in place to Owain, ourselves, and professionals has enabled Owain to get the best out of life. Confidence has grown and he has a new found passion for wheelchair racing

he was recently been crowned Welsh Champion in the under 20 100M and 400 metre Wheelchair Racing. He has had a fantastic season and broken multiple club records at Newport Harrier Athletics in the T54 wheelchair racer category and has travelled across the country putting in some incredible performances, winning both the Cardiff and Swansea 10K races! He is aiming for the Paralympics in 2028.

Owain has also just obtained his DofE Bronze award and Chief Scouts Platinum award and is due to return to his primary school and talk to pupils about accessing sport with a disability”

Owain’s Mum and Dad

We would like to thank the following organisations, who have supported us in our work with our young people:

Trustees’ Annual Report and Financial Statements Shine 11

Strategic Goal 3

Adults of All Ages

adult members over 25

people who received one-to-one support

More than half Shine’s adult membership has hydrocephalus, or hydrocephalus and spina bifida. In both conditions, understanding physical and/or mental health and the need for earlier intervention can prevent the escalation of issues that quickly become complex and difficult to treat or manage.

I can’t believe the timing of this call. I was feeling so low. It’s been so nice to talk to you, and I had no idea I could get all this support from Shine, thank you so much for calling me today…”

Our additional focus for adults has been on:

A new publication

Based on Shine’s ‘1000 Voices’ research, ‘Understanding Spina Bifida in Adulthood’ gives a wide range of insights and expert information into aspects of health and well-being, to improve approaches for early intervention and prevention of health complications.

‘Shine on …’ health series

As part of our focus on improving selfmanagement for adults, Shine introduced and piloted two new online courses for people living with spina bifida and/or hydrocephalus.

‘Shine on Pain’ and ‘Shine on Wellbeing’ are designed to run for small groups of members, with sessions taking place each week over several weeks to build knowledge and confidence in self-awareness and strategies for self-management.

I would highly recommend this sort of course to anyone in my situation. It was such a relaxed and welcoming atmosphere, and I wish all the best to all the other participants…” (Feedback from group participant)

12 Shine Trustees’ Annual Report and Financial Statements

Adult spina bifida clinics The UK is still severely lacking in specialist spina bifida clinic provision for adults. This not only impacts access to the right services at the right time for adults living with the condition, but limits transition opportunities from child health to adult health services. We see so many fall through these gaps but know that, with the right statutory services in place, preventative medicine and healthcare can play a significant role in keeping our members in good health for longer.

Shine continued to build links with NHS services across England and Wales and had discussions with hospitals and health boards to progress the establishment of clinics across the nations. Progress has been slow, but we are pleased to have had the opportunity to build links and start discussions which we are confident will move forward in the coming 12 months.

----- Start of picture text -----
Member story
– Living with
spina bifida
“Living with
spina bifida in a
two-story house
was incredibly
difficult. My
bedroom and
bathroom were
upstairs, but my
mobility issues
made it impossible
to access them safely.
I slept in the living room
and used the kitchen sink to
----- End of picture text -----

wash. Every day felt like a struggle, and my home, which should have been a place of comfort, became a source of stress and frustration. That’s when Shine stepped in.

From the start, Shine was more than just a support service - they were my advocates. Laura and the team worked tirelessly, making countless calls and sending emails to occupational therapists and housing officers. It wasn’t a quick process, but they never gave up.

Thanks to their persistence, I’ve now moved into a fully accessible home. Everything is designed with my needs in mind - from the layout of the rooms to the front and back gardens. The lift I have in the hall which leads up to the landing is just fantastic! I can hang washing on the line, enjoy the outdoors, and even go to the shops in my power wheelchair, which Shine also helped me secure funding for.

This move has completely transformed my life. I feel independent, safe, and empowered.

I’m so grateful to Laura and everyone at Shine. Honestly, this has changed my life big time. I have a new lease of life!”

Help with housing

A key issue for so many remains finding and keeping suitable and accessible housing. Whilst this is not unique to Shine, it is a must that we work to support and guide our members on this issue so that they can live independently, if they so wish, and be safe and comfortable in their homes. As well as up-to-date information and 1-2-1 support, our housing passport was reviewed and updated as a useful guide to finding the right accommodation for them and their families/dependents.

Trustees’ Annual Report and Financial Statements Shine 13

Normal Pressure Hydrocephalus

In the past 2 years, Shine has seen a significant growth in members with Normal Pressure Hydrocephalus (NPH).

Whilst we don’t have any evidence to understand this increase in new members, anecdotally, more people are being diagnosed with the condition, and people are coming across Shine as the charity that delivers NPH-support services, via the website and information from NHS hospitals.

Both suggest a growing awareness of the condition, and better understanding of symptoms for referral to specialists for investigation.

To support this work, Shine introduced a new NPH Co-ordinator role in 2024, who has started to develop a specialist service to address the questions that so many ask, which commonly include:

Links have been established with some lead neurosurgeons and NPH clinics across the country, to create referral systems, and increase awareness, provide information and direct support to individuals and their families.

Shine’s first NPH awareness week took place in May 2024, with the next in May 2025.

What is Normal Pressure Hydrocephalus?

Normal pressure hydrocephalus (NPH) is a condition which mainly affects people over 60 years old.

Cerebrospinal fluid (CSF) is constantly produced and absorbed and flows through chambers within the brain (ventricles) and around the outside of the spinal cord. CSF protects the brain and spine, provides nutrients, and removes toxins. In NPH, the ventricles become enlarged by too much CSF building up, although the pressures inside the head are often found to be normal.

Symptoms of NPH include difficulty walking, cognitive impairment/dementia, and urinary incontinence. The dementia-like symptoms are often confused with Alzheimer’s or Parkinson’s diseases, leading to NPH being missed/

misdiagnosed, but if picked up, NPH is a treatable and potentially reversible condition.

Therefore, our work on raising awareness across the general public and health and care professionals is vital to getting timely diagnosis and treatment, both of which can lead to improved patient outcomes in NPH.

Music legend Billy Joel (left) was diagnosed with NPH in 2025.

14 Shine Trustees’ Annual Report and Financial Statements

I live alone with no family or friends. The thought of having a shunt fitted was terrifying…you were so kind and reassuring explaining the procedure to me and the benefit it would bring to me. I cannot thank you enough.” (Member quote shared with Shine Support and Development Worker).

Member story

----- Start of picture text -----
“SHINE came to my attention when I was initially NPH, to try and manage the symptoms, which went
diagnosed with “Hydrocephalus” in very well without complications and I am
February 2023 in my mid fifties and currently recovering from that, but
looking for specialist support. benefiting from a reduction in
symptoms.
It seems I have had the
condition since birth, I think its fair to say
and I’m aware that the info and
hydrocephalus and support SHINE
spina bifida are provided to me
closely related helped me
conditions. to realise I
had NPH in
Your colleague
combination
Francesca
with
Greaves
Hydrocephalus
provided
and work this
some excellent
through with the
support to me
Neuro Surgeon,
after my diagnosis
so I had the surgery
as I worked through
at hopefully an early
with relevant clinical
enough stage for it to
specialists including
make a difference in treating
a Neuro surgeon
the symptoms”.
whether I also had
normal pressure
members with
hydrocephalus
(NPH) and Normal Pressure
therefore needed Hydrocephalus
surgical treatment.
706
----- End of picture text -----

I ended up having a Endoscopic Third Ventriculostomy (ETV) brain surgery in mid November 2024 after Surgeon agreed in September 2024 I most likely had early stage

people with NPH who received one-toone support

Trustees’ Annual Report and Financial Statements Shine 15

A Connected Community

Strategic Goal 4

people engaged with Shine’s social and peer support platforms

It’s helpful because it’s a community. So few people live the way that I and other Shine members do. Having a place - a refuge - to speak about experiences or simply be, is comforting. It’s also useful for answering questions about spina bifida that I wouldn’t have been able to easily obtain otherwise.”

Shine’s membership continued to grow in 2024/25, and we introduced smarter ways of working to become more innovative and time-efficient to meet demand for our services.

Worked with our members to produce new and updated information and resources

Improved data and development of our database

Engaged people in helping to deliver our awareness weeks

Consulted with our membership on how we communicate and what they need most from us

Introduced regular, tailored and automated information by email

Started to review our website

Had support from volunteers in admin, fundraising and running groups and events

Moved our Together magazine to mostly digital distribution

Successfully delivered our Spina Bifida, Hydrocephalus and Folic Acid Awareness Weeks, and launched a new NPH Awareness Week

Informed our members more often of our events with dates and times well in advance

16 Shine Trustees’ Annual Report and Financial Statements

Strategic Goal 5

Preventing Spina Bifida and Anencephaly

It may appear that Shine’s work on primary prevention of spina bifida is at odds with how we value and celebrate the lives of all those living with spina bifida and/or hydrocephalus. However, it is crucial to recognise that spina bifida isn’t the only condition prevented by folic acid. Folic acid also prevents the nearly as common, and always fatal condition, anencephaly.

Our goal of recommending folic acid is about making informed choices to increase the chances of a healthy pregnancy and a positive outcome for the baby. Preventing congenital conditions is not about devaluing anyone’s existence, it is about enhancing the quality of life for everyone, including future generations.

Mandatory fortification

In November 2024, our campaign for mandatory fortification of flour became law at last!

Our CEO provided a quote for the official government press release:

After more than 30 years of campaigning, Shine can finally celebrate the introduction of this very important public health initiative.This move will mean that far fewer families will have to undergo the trauma of a potentially fatal or life-affecting diagnosis for an unborn baby. This is a major milestone, and we are so grateful to everyone who has played a part in getting this legislation over the line”.

Shine had the opportunity to share our campaign experiences and lessons learnt on the international stage, participating in online sessions for the International Federation of Spina Bifida and Hydrocephalus.

Supplementation

Our Health team led on Shine’s ‘Folic for Life’ campaign, which raises awareness of the importance and need for women of child-bearing age to taking folic acid supplements to reduce the chances of a pregnancy being affected by a neural tube defect, and that they need to take folic acid supplements for at least 8 weeks before becoming pregnant, and for the first trimester of pregnancy.

The work in 2024/25 focused on building our presence and engagement for the campaign via social media to spread the word as widely as possible. We were extremely grateful for the support we received from Vitabiotics for this work.

We also met with Public Health Wales for guidance on developing a strategy to engage governments and public health agencies across England, Wales and NI in a sustainable campaign about folic acid supplementation.

Trustees’ Annual Report and Financial Statements Shine 17

Strategic Goal 6

Changing Experiences of Pregnancies Affected by Neural Tube Defects

people we supported with Pregnancy advice

Shine was there for support and information whenever my husband and I needed it. You helped us through that time of our lives where we felt very lost and had so many fears…

Pregnancy pathway

Shine’s specialist health team take calls each week

that antenatal services have discussed all the options for the pregnancy, including fetal surgery, with parentsto-be.

from parents to be, who have had a diagnosis of an unborn baby with spina bifida, or from individuals and couples wanting to prepare for a next pregnancy.

Part of our commitment to quality assurance for this service has been to meet with the Fetal Surgery Team commissioners and NHS service providers to share parents-to be/parents experiences and feedback of NHS prenatal services and the process for referrals to fetal surgery following diagnosis.

The team piloted an internal pregnancy care pathway to introduce a consistent, quality-assured pregnancy advice service. Requests for support are responded to within 24 working hours, and importantly we check

Training and development for professionals

Statistically, few health professionals will come across either spina bifida or hydrocephalus in their career. However, when they do, it is vital that they are aware of the conditions, possible prognosis and outcomes. This includes pre-natal diagnosis.

Shine has continued to promote our free CPD-accredited online antenatal training to

healthcare professionals, to develop this awareness, and have provided training directly to nursing and midwifery undergraduates in several universities.

Anencephaly support

Anencephaly is a neural tube defect. It is not

particularly well-known, and unlike spina bifida, it is always fatal.

Research suggests that circa 400 pregnancies[1] are affected by anencephaly each year.

Shine has been supporting a growing number of parents, who have lost a baby to anencephaly, for several years. Some losses date back decades, yet the memories and heartache remain with people forever.

In 2024/25, we welcomed 50 new members to our closed anencephaly support group, bringing the membership of bereaved parents and some grandparents of the group to 898.

It is important that we can offer support and

information for anyone who needs us. As well as our existing online, closed anencephaly support group, we have opened up the opportunity for those in our anencephaly support group to engage with Shine, in different ways, if they so choose.

  1. EUROCAT (2020): 5 per 10,000 = 1 in 2000 affected pregnancies [England & Wales]; ONS: 817,515 conceptions England & Wales in 2020

18 Shine Trustees’ Annual Report and Financial Statements

Strategic Goal 7

A major step forward in the past 12 months has been the increasing involvement and support we have had from, and have provided to, health, social care, education and many other professionals.

Closer working and partnerships aid Shine in quality-assuring the work we do, and the information we provide. It also helps us to reach wider audiences, to raise vital awareness and educate others about the conditions and the impact on people’s lives.

Working with Professionals

Support from professionals

Supporting professionals

Shine

Shine

Society for Research into Hydrocephalus and Spina Bifida (SRHSB) – an overwhelming success for Shine Health!

the scope of Shine’s activities”.

This was such an honour for Shine, and well-deserved recognition of the incredible work the team are doing, led by Gill Yaz, Shine’s Head of Health.

Welcoming eminent clinicians and scientists from across the world, the Society for Research into Hydrocephalus and Spina Bifida highlights the latest ‘knowledge, understanding and research into prevention, treatment and management of hydrocephalus and spina bifida’.

SRHSB is where I’ve met the most important people in my professional life, had my

questions answered with patience and generosity, had my enthusiasm fired, and had more support than I could have ever wished. In turn, I’ve used this

In September 2024, Shine supported the society to deliver its international conference in Manchester.

knowledge to inform members, parents, politicians, school staff, colleagues and other professionals, hopefully to make life with spina bifida or hydrocephalus a tiny bit easier. Gill Yaz, Shine’s Head of Health

Shine’s Health team had the opportunity to present on a few of the innovative projects they are leading on (ageing with spina bifida; spinal stimulation; continence management; collaborating with professionals) which culminated in the team being collectively awarded the President’s Talk Prize for “outstanding talks capturing

Trustees’ Annual Report and Financial Statements Shine 19

Being granted the opportunity to speak about our work to the Society was, as I said, the highlight of my career. For my team to be awarded the President’s Prize was an honour I’m still trying to process. I’m immensely proud of my team, and Shine’s wider community, and to have our work acknowledged this way is very, very special. But the partnerships and

friendships forged at SRHSB have made it happen, and I’m truly grateful. Thank you so much.”

Shine also had the honour of launching the very first Dr Richard Morgan Prize, set up in memory of the late Dr Richard Morgan, who devoted much of his life to changing lives for people

living spina bifida and hydrocephalus through his holistic approach to better health management.

Hydrocephalus

Often referred to as a hidden disability, most people (professionals; the workplace/employers; the general public) are not familiar with the condition, nor its effects.

A key task for Shine over the past 12 months has been to gain even more insight into the experiences of our members of all ages, living with hydrocephalus, and to use these insights to educate and engage professionals to better understand what they can do to meet the needs, and wants, of those they come into contact with.

Research

Shine has continued to be actively involved in a breadth of research, being undertaken nationally and internationally, which will further improve the lives and experiences of individuals with spina bifida and hydrocephalus, NPH and associated issues.

----- Start of picture text -----
DNA
Here’s what we’re currently involved in...
Spinal ICP changes Global Quality of Life
stimulation in eye veins Fortification Assessment Tool
Improvements in Health inequalities in Robotic mammography
antenatal services children with spina bifida research
Fetoscopic vs Open Ageing with Cognitive effects Antenatal
Fetal Surgery spina bifida of hydrocephalus counselling
Investigating early Folate Controversy: exploring Cognitive decline
signs of NPH at public understanding of patterns in people
memory clinics scientific information with spina bifida
Quality of life for those living with NPH Pressure Sore Prevention
----- End of picture text -----

20 Shine Trustees’ Annual Report and Financial Statements

Campaigns

Once again, Shine joined forces with other national charities and networks to add our members’ voices to issues that matter to them most.

These included:

International work - “Saving Lives! Improving Futures”

As well participation in conferences and webinars, Shine has continued its direct work with the Festus Fajemilo Foundation (FFF) in Nigeria.

Activity included a visit to Nigeria in July 2024, to provide specialist training to Nigerian nurses to teach clean intermittent catheterisation, bowel washouts and good hygiene for improved continence care and management across the country. Even though the service is often delivered with the most basic equipment, it is making a dramatic difference.

Here’s how:

We also secured a grant to fund successful shunt, and other surgery, for Nigerian children and young people.

We are extremely proud of our partnership with FFF, and we hope to continue long into the future. There is still much more to do in a country with over 234 million people!

Shine continued its membership of the International Federation for Spina Bifida and Hydrocephalus. Our CEO had the opportunity to participate in member events and online webinars, promoting the importance of folic acid, and sharing lessons learnt from the successful campaign for fortification across the UK.

Trustees’ Annual Report and Financial Statements Shine 21

What’s next?

Shine must continually evolve to meet the changing needs and expectations of its members and stakeholders.

As societal issues, economic conditions, and technological advancements shift, Shine needs to continually adapt our strategies, services, and communication methods to remain relevant and effective. This evolution ensures that Shine can provide the most impactful support to our growing number of members, whether through updated programmes, enhanced resources, or innovative solutions. By staying attuned to the latest trends and feedback from our community, we can foster stronger relationships, increase engagement, and build trust, which are crucial for long-term success and sustainability.

Financial stability is also critical. Diversifying funding sources, optimising operational efficiencies, and leveraging new fundraising techniques are essential to maintaining and growing financial health. As traditional funding streams fluctuate, Shine has started to explore alternative avenues such as digital campaigns, corporate partnerships, and other opportunities. Evolving and growing our income strategies will allow us to secure the necessary funds to expand our reach, innovate our services, and make a greater impact on our community.

Making an IMPACT!

In the coming 12 months, we will continue to deliver our existing core services mentioned in this report.

We will also ramp up our campaigning and influencing to improve the shape of services for people living with spina bifida, hydrocephalus and associated conditions to improve access and support to enable our members to get the right services at the right time.

Enhancing our offer to members

living with spina bifida, hydrocephalus or associated conditions from across the LGBTQ+ community and minority groups.

Improving our specialist information and resources

• Launch our new book: ‘Understanding Spina Bifida in Adulthood’

• Publish a ‘Young Person’s Guide’ and regular news updates covering all aspects of living with spina bifida/hydrocephalus

22 Shine Trustees’ Annual Report and Financial Statements

Campaigning

Research and development

International work

Working with professionals, representative bodies and statutory services

Trustees’ Annual Report and Financial Statements Shine 23

Thank you

Thank you to everyone who has supported Shine financially again this year. Everyone has a particular reason for choosing to support Shine. Mr Brian Marsh OBE, Chairman of the Marsh Charitable Trust tells us why the Trust continues to support Shine ...

We are pleased to be able to support Shine once again, in a grant-making relationship which has spanned almost 40 years. At the MCT, we value long-term relationships with organisations we support through our grants programme, and we are pleased to be able to support the important work of Shine in this way. We recognise the important support that Shine provide to those who seek their support, and we are pleased to contribute towards the continuation of their work.”

As always, we are extremely grateful to the thousands of individuals, companies, trusts and foundations and others who contribute vital funding which allows us to deliver the breadth of work we do.

Put simply, Shine could not do everything we do without this amazing support from so many!

The list is far too numerous to mention everyone, but we have highlighted just a few…

Corporates and Groups

Integra Neurosciences – Codman Bullen Healthcare Davies and Partners

Enable Law British Homing World Show of the Year

Vitabiotics Ltd

The Anderson Foundation Queen’s University Belfast

Individuals

Simon Cresswell (Also Apex Foundation)

Katie and Sarah Philipson and Terry Donnelly

Adam Smith Alex Leo Andy Williams Bev Geary Patrick Stokes Phil Thompson Ryan Kelly Tom Stevenson

Joe and Tara Smith

Lucy Burgess Ryan Donnelly Stan Brown The Milton Family

Louise, Georgia and Thea Evans and Jack Kendall

Jon Clark Steve Joynes James Cadle Gemma and Michael Milner

Heather Hughes

Mark Timms Thomas McKeown Daniel Townsend Rhys Williams Kerrie Moult and Adam Williams Olivia Newton and Lewis Soames Nathan Adcock

Val Conway Melissa Young David Trippett

24 Shine Trustees’ Annual Report and Financial Statements

Trusts and Foundations

Addenbrooke’s Charitable Trust

Apax Foundation Doris Field Charitable Trust G J W Turner Trust Hadrian Trust Homelands Charitable Trust Marsh Charitable Trust Medicash Foundation Michael Cornish Charitable Trust

Oakdale Trust PF Charitable Trust

Sir Donald and Lady Edna Wilson Charitable Trust Sir James Knott Trust

The Basil Brown Charitable Trust

The Belstead Ganzoni Charitable Settlement

The Chandris Foundation The Chapple Trust

The Davis-Rubens Charitable Trust

The Douglas Compton James Charitable Trust

The Enkalon Foundation

The Eric Stanton (Northampton) Trust The Eveson Trust The Fowler, Smith and Jones Trust

The Frazer Trust

The Gale Family Charity Trust The Garfield Weston Foundation The Geoffrey Watling Charity The Gerald Palmer Eling Trust The Gowling WLG (UK) Charitable Trust The Henry Smith Charity

The J Reginald Corah Foundation Fund

The Jones 1986 Charitable Trust The Joseph and Annie Cattle Trust

The Karen June Thornton Charitable Trust The Lawson Trust

The National Lottery Community Fund for England The National Lottery Community

Fund for Northern Ireland

The National Lottery Community Fund for Wales The Noble Charitable Trust

The Norman Family Charitable Trust The Olive and Jesse Palmer Fund The Paul Bassham Charitable Trust The Peter Sowerby Foundation The Pierrepont Trust

The Privy Purse charitable Trust The Rest-Harrow Trust

The Roger and Douglas Turner Charitable Trust

The Shanly Foundation

The Simon Gibson Charitable Trust

The Sir James Roll Charitable Trust

The Theodore Maxxy Charitable Trust

The Valentine Charitable Trust

Wynn Foundation Limited

Yorkshire Building Society Charitable Foundation

Trustees’ Annual Report and Financial Statements Shine 25

Income and expenditure 2024/25

Total Income

----- Start of picture text -----
Donations
Trading
£846,660 activities
£592,850
Income
£2,466,856 Legacies
£347,013
Grants
£613,029 Investments
£67,304
Total Expenditure
£247,194
Raising funds
£295,037
£413,655
Young
people
Babies
and
children
Connecting our
Trading
community
Expenditure activities
£581,338
£2,418,225 £342,792
Pregnancy support
Preventing £56,412
spina bifida
£74,020 Transforming
services
Adults
£145,061
£262,716
----- End of picture text -----

26 Shine Trustees’ Annual Report and Financial Statements

Financial Review

The table below provides a six-year financial summary, showing that we continue to deliver a robust financial position, as we seek to ensure long-term sustainability.

----- Start of picture text -----
£000’s 2024/25 2023/24 2022/23 2021/22 2020/21 2019/20
Income £2,467 £2,155 £2,347 £1,894 £2,343 £2,192
Net movement in funds £10 -£65 £338 £171 £506 £113
----- End of picture text -----

Trustees approved the 2024/25 budget with a deficit of £180,766 intending to use reserves generated from the sale of 42 Park Road to invest in new services for our members.

Shine reports an actual surplus of £9,645 (2023/24 £65,252 deficit), which consists of a £59,509 unrestricted deficit, a £64,406 designated surplus, and a £4,748 restricted surplus.

Total income for 2024/25 was £2,466,856 (2023/24 £2,155,115). This is a 14% increase year on year, although the charity did receive one off donations of £159,522 from two local groups (Teeside ASBAH and Shine Surrey) which closed down. Therefore, excluding these closing funds income nonetheless increased by 7% with growth in legacies, grants and investment income being partially offset by a decrease in individual donations and trading activities. The largest element of our trading activity continues to be our virtual balloon races and although this income stream faces several challenges and continues to

decline, nonetheless during the year 4,397 business supporters bought a balloon, many entering multiple races.

Public donations from individuals (excluding legacies), corporates and community groups (excluding the two local groups) recorded an 8% decrease year on year and we believe the cost-of-living challenges faced by many individuals is a factor, nonetheless annual income remained higher than the 4 years before COVID19.

The National Lottery community fund and other charitable trusts continue to fund an important part of Shine’s work and income from charitable trusts and foundations recorded the highest annual income in the last ten years.

Legacies continue to be a major source of funding and were the highest value since 2020/21. We are incredibly grateful that people continue to remember us in their wills.

Trustees’ Annual Report and Financial Statements Shine 27

As mentioned two local groups decided to close in 2024, with balances of funds being transferred to Shine, upon which trustees have created designated funds to support members in Surrey and the North East, these funds are reported in note 21 and in relation to the North East a new support and development worker based in Northumberland has been appointed.

After many years of trading, our charity shop in Gorseinon closed its doors at Christmas. Trading conditions on the high street had worsened since the COVID pandemic and despite valiant efforts by the shop manager and volunteers we had been unable to maintain a financially viable shop, with some regret trustees agreed a managed closure, returning the property to the landlord.

Trustees remain confident that Shine has a broad income base and provides sufficient staff resources to deliver sustainable income levels.

Expenditure

Total expenditure in the year was £2,418,225 (2023/24 £2,274,459). Of this, expenditure on charitable activities increased by £118,297 (7.7%) to £1,661,788, representing 68.7% of total expenditure (67.9% in 2023/24). This reflects a conscious decision to invest in services with two new service staff positions created in the year. Expenditure on raising funds increased by a more modest amount of £25,469 to £756,447.

A reduced level of staff turnover was experienced, with 9 leavers in the year (12 in 2023/24). Recruitment efforts have however been successful and staffing levels in Shine’s services increased during the year with 34 full-time equivalent posts compared to 31 in 2023/24.

Shine is confident it remains an attractive organisation to work for and has active recruitment plans which aim to maintain service staffing levels in 2025/26.

Under the accounting standard SORP (Statement of Recommended Practice) 2015, the full defined benefit pension deficit must be declared on the balance sheet. There was a 2024/25 actuarial loss of £38,477 (2023/24 gain of £1,382) and reflects the outcome of the 2023 triannual review. A payment plan to eliminate

this deficit remains in place, and the charity remains confident that it will meet the required pension contributions from its projected income without impacting its planned level of charitable activity. Further pension details are shown in note 19 of the accounts.

Financial Reserves Policy

Reserves are maintained at a level that enables the charity to manage financial risk and sustain services. Trustees have set a minimum free reserve to be held for the following purposes:

The level of reserves required to meet these requirements is calculated to be £895,000.

The free reserves position is reported to trustees as part of the monthly management accounts and quarterly forecasting. To set our free reserves target, trustees have sought to balance the needs of Shine’s members against financial risks. COVID19, the war in Ukraine and conflict in Gaza has demonstrated that our world is less certain than previously thought and our reserves target reflects this need for caution.

At the year-end Shine held free reserves of £1,108,978, being general unrestricted funds excluding designated funds. This represents 6.2 months of committed expenditure cover, which is above the reserves target and has been boosted by the one-off sum realised from the sale of 42 Park Road in April 2022.

To bring our reserves in line with our target the charity continues to utilise its reserves in a managed fashion investing in members’ futures and in addition to the new posts created in 2022 and 2023, the charity has

28 Shine Trustees’ Annual Report and Financial Statements

appointed a Normal Pressure Hydrocephalus (NPH) & Dementia Coordinator, this is in response to an increase in members presenting this condition. Taken together, these changes have raised the service staff establishment to 34 FTE and compares to a pre COVID position of 27 FTE.

Restricted reserves must be applied to the specific purpose(s) intended by the donor so do not form part of the free reserves. Funds totaled £119,700 at the year end and are planned to be expended in 2025/26.

Designated funds have been established by trustees and are excluded from free reserves, these closed at £575,439 and consist of the following:

Notwithstanding the existence of the above funds, unrestricted funds continue to be used to cover the costs of some new posts; notably the deputy health manager, education officer and the East Anglian support and development worker.

Investment Policy

Under the governing document, the charity can make any investment the trustees see fit. R. C. Brown Investment Management plc are Shine’s investment managers with the remit to manage

the investments in line with the policy outlined below.

Investments are held as part of the long-term reserves of Shine. The aim is that they should maintain their value and generate income for Shine.

The portfolio must only be invested in assets with a balanced risk profile. This will include utilisation of pooled funds, which provide diversification of assets, and ensures that the risk of losing a single holding is minimised.

The trustees have agreed that the funds should be invested in a broad, balanced portfolio. On the advice of our investment managers, Shine works towards ethical investments, yet decisions have to be balanced with the charity’s obligations for responsible investment to further our purpose and aims..

During the year R. C. Brown Investment Management plc continued to manage the Shine portfolio, funds performed below their benchmark, recording a 1.71% gain during 2024/25 versus the benchmark gain of 3.66 (ARC steady growth index), with earlier gains being partly offset by losses in the final quarter as markets responded adversely to US trade tariff announcements.

Investments are held to support the reserves policy.

Risk Management and Internal Control

The Board of Trustees is responsible for the identification and management of the major risks facing the charity. A Risk Register is maintained and shared annually with trustees (more frequently if a significant issue arises). Risk management at operational level is managed by the senior leadership team; major risks have been reviewed and systems established to manage these risks.

Trustees’ Annual Report and Financial Statements Shine 29

Therefore, the risk register currently covers five strategic areas.

~~1. Governance & strategy~~

~~2. Income generation~~

~~3. Services~~

~~4. Finance~~

~~5. External infuences, including infation and the war in Ukraine~~

~~6. International work~~

During the year there remains 1 red retained risk, which is members’ access to statutory services, and Shine continues to support our members and families with information and guidance on their rights, and

avenues to access the services they need. Shine continues to make structural and strategic changes to the organisation to mitigate these and other risks.

Going Concern and Statement of Public Benefit

Going Concern

This report highlights Shine’s financial performance over the last six years, the level of reserves held, and the principal risks and uncertainties faced. The activities of the charity, its objectives, and the policies for managing its capital and financial risk are detailed in the Trustees’ Report.

The budget for 2025/26 was prepared by senior leadership and approved by the trustees in March 2025. The expectation is that income levels can be increased as we continue to invest in fundraising resources. Expenditure levels will be allowed to increase in line with the expansion in service provision, therefore a total deficit of £240,123 is budgeted which includes a restricted deficit of £37,354 as funds received in prior periods are expended and a deficit of £202,769 across unrestricted and designated funds.

We can do this because our reserves exceed the minimum level, the budget and its assumptions are reviewed against two key financial measures:

reviewed at quarterly trustee meetings. Given the level of reserves and outlook, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future being at least twelve months from date of approval of these financial statements. Accordingly, they continue to adopt the going concern basis of accounting in preparing financial statements.

Statement of Public Benefit

The trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have regard to the Charity Commission’s general guidance on public benefit, ‘Charities and Public Benefit’.

Shine’s charitable objects are enshrined within its memorandum and articles, and as such trustees ensure that the charity’s activities are carried out for public benefit through its strategic goals. This report allows us to show how charitable funds are spent and the impact and benefits this has on the lives of people affected by spina bifida and/or hydrocephalus, and associated conditions.

Management accounts are prepared by senior leadership and issued monthly to trustees; the current financial position and financial outlook are

30 Shine Trustees’ Annual Report and Financial Statements

Reference and Administration Details

Royal Patron HRH The Duchess of Gloucester GVCO

Trustees

The trustees of Spina Bifida, Hydrocephalus, Information, Networking, Equality – SHINE are the charity’s trustees under charity law and directors of the charitable company and throughout the report are collectively referred to as the trustees.

The trustees serving during the year were as follows:

~~Professor Roger Bayston Michael Brown (Vice Chair) Jenny Goy (Hon. Treasurer) Surekha Kukadia Dr Richard Oakley Professor John Pickard CBE (appointed 4th December 2024) Joanne Sedgwick Joe Waggott Joanne Williams (Chair) Roanne Woodward (appointed 4th December 2024)~~

It is confirmed that none of the serving trustees had any beneficial interest in any contract with Shine in the year.

~~Senior Leadership Team Chief Executive Kate Steele Director of Services Gill Valentine Director of Finance Stephen Ellen~~

Trustees’ Annual Report and Financial Statements Shine 31

Principal Professional Advisers

Auditors Azets Audit Services Westpoint Lynchwood Peterborough PE2 6FZ Bankers The Co-operative Bank Plc PO Box 250 Skelmersdale WN8 6WT Insignis Cash Solutions St John’s Innovation Centre Cowley Road Cambridge CB4 0WS Solicitors Greenwoods GRM LLP Westpoint Lynchwood Peterborough PE2 6FZ Investment Managers R.C. Brown Investment Management PLC 1 The Square Temple Quay Bristol BS1 6DG HR Vero HR St James House Flaxley Road Kingston Park Peterborough PE2 9FT

Administrative Details

The full name of the charity is spina bifida, hydrocephalus, information, networking, equality – SHINE. We are commonly known as SHINE.

The registered charity number is 249338 (England and Wales)

The company registration is 00877990

Registered Office: SHINE, Unit 4, Minerva Business Park, Peterborough, PE2 6FT

Telephone 01733 555988 • Email firstcontact@shinecharity.org.uk • www.shinecharity.org.uk

32 Shine Trustees’ Annual Report and Financial Statements

Our Commitment to Quality Fundraising

Shine is registered with the Fundraising Regulator and proud to commit to the Regulator’s Fundraising Promise.

We are committed to maintaining high standards of fundraising in line with the Code of Fundraising Practice:

Our approach to fundraising consists of:

We also encourage people to remember us in their will with a gift or legacy.

We do not use third-party professional fundraising agencies.

Where people or organisations raise funds in aid of Shine, we request they follow our standards. Shine’s fundraising team provides tools and resources to enable supporters to deliver fun, safe, and successful fundraising activities. The trustees are of the view that during the year to 31 March 2025 we have been compliant with these standards.

Unfortunately, despite procedures in place Shine is aware of one instance in the year of the misappropriation of donations totalling £580 at an event hosted by a Shine supporter.

To protect vulnerable people and other members of the public, Shine has a safeguarding policy, and our fundraising commitment is displayed on our website. We are careful to protect the personal data of supporters and give clear options to stop being contacted by us.

As part of our compliance with the code of fundraising practice, we ensure our approach to fundraising is not unreasonably intrusive or persistent and does not aim to solicit donations by pressuring potential supporters.

We take these steps to make sure people have a choice about whether to fundraise for Shine.

Shine and our members are incredibly grateful for the continued dedication and support of our fundraisers. From everyone at Shine, thank you for your ongoing generosity.

Trustees’ Annual Report and Financial Statements Shine 33

Structure, Governance and Management

Structure

Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE (Shine) is a company limited by guarantee registered in England and Wales (Registration No. 00877990) formed in 1966. Shine is registered as a charity with the Charity Commission for England and Wales (Registration No. 249338).

The charity owns the entire share capital of Shine (Trading) Limited, registered in England and Wales (No. 01031004). The consolidated accounts include Shine (Trading) Limited (see note 9). The principal activity of the company is to raise funds for charity. The board of directors of Shine trading meets separately and consists of the Chief Executive and two trustees. The trustees are not renumerated for this role.

Objects

The charity’s objects are specifically restricted to the relief of persons who have spina bifida and/ or hydrocephalus or allied or related disorders by providing care, welfare, treatment, education, and integration into society.

Governance

Shine is governed by Articles of Association, which were amended in 2018.

Organisational purpose

Shine has a clear, sustainable corporate strategy for 2022 to 2027 consistent with the charity’s purpose and an evaluation and monitoring framework to monitor impact and measure outputs.

Shine consults with a wide range of stakeholder groups to determine the priorities for the charity.

Leadership

The trustee board is responsible for the charity’s governance and its subsidiary.

Board Integrity

Appointment of trustees

New Articles of Association were adopted by special resolution in 2018 specifying that anyone willing to act as a trustee, and permitted by law to do so, may be

appointed by the board of trustees.

A trustee must be a natural person aged 16 years or older; the minimum number of trustees is 3, and the maximum is 16. Trustees are appointed for a term of 3 years; trustees are eligible for reappointment up to two subsequent terms (each of 3 years). No trustee can serve for more than 9 consecutive years unless the trustees consider it is in the best interests of the charity that a particular trustee should continue to serve. Professor Roger Bayston and Michael Brown continue to serve as trustees on this basis.

Trustee induction and training

During the recruitment process, the skills and experience are considered with a concerted effort to ensure we are drawing from all sections of society. An initial interview is conducted by members of the senior leadership team. Candidates are then interviewed by a panel drawn from the board of trustees.

This year we have appointed two new trustees, Professor John Pickard who amongst many honors is Emeritus Professor of Neurosurgery (Cambridge University) and brings to the board additional clinical expertise and extensive contacts within the NHS and wider international community; Roanne Woodward who is a young woman born with spina bifida and has firsthand experience of the challenges and triumphs faced by individuals with spina bifida and hydrocephalus.

New trustees undergo an induction; they are fully appraised of the full range of Shine’s services, projects and campaigns and provided with relevant background literature. They receive awareness training, if required, on spina bifida and hydrocephalus. Depending on their specific skills and areas of expertise, they will be put in touch with relevant staff.

Trustees are briefed on their legal obligations under charity and company law, the Articles of Association and the Board’s decision-making process. They are also informed about Shine’s Corporate Plan, key risks, recent financial performance, and prospects for the charity.

Trustees do not receive any renumeration or financial benefit for acting as trustees of Shine; any expenses paid are disclosed in note 11 of the financial statements.

Decision making, risk and control

The Board of Trustees is the governing body with overall

34 Shine Trustees’ Annual Report and Financial Statements

legal responsibility for the charity. The Board sets the strategic direction for Shine. It meets at least four times a year, either in person or virtually.

The minutes of meetings are made available to all trustees on a timely basis. The board regularly reviews operational plans, budgets, performance, and Shine’s main risks. The day-to-day management of the charity is delegated to the Chief Executive, who reports to the Board. The Chief Executive is assisted in the day-to-day management by the senior leadership team.

Senior Staff Remuneration Policy

The remuneration of senior staff is set by benchmarking with similar-sized charities, and the market rate required to attract the best people to the job.

Diversity and Inclusion

Shine has a transparent recruitment process, advertising widely and looking at how we can attract a diverse pool of candidates.

Safeguarding

Safeguarding policies and processes were reviewed and updated in 2024/25, and additional policies specifically focusing on online safety were introduced in June 2024 ensuring that we are continually improving our approaches to safeguarding, incorporating all updated legislation, and embracing current best practice to protect the welfare of our members, staff and volunteers.

An annual safeguarding plan is agreed by trustees. The plan is prepared by the Director of Services, who is Designated Safeguarding Lead for the charity, in conjunction with Joanne Williams and Jenny Goy, who are trustee leads for safeguarding.

Safeguarding training is provided for all staff, trustees, and volunteers. Incidents are reported, assessed, and enacted as appropriate with full consideration given to the requirement to report to the Charity Commission.

GDPR

Extensive work was undertaken to ensure Shine’s ongoing compliance with the General Data Protection Regulation (GDPR). We have a designated GDPR lead, and the data management action plan is reviewed by trustees annually.

Section 172 Statement

The trustees must act in accordance with a set of general duties. These duties are laid out in s172 of the UK Companies Act 2006 which is summarised as follows: A

Director of a Company must act in the that they consider, in good faith, would be most likely to promote the benefit of its members, and in doing so have regard to:

The trustees believe they have completed their duties under s172, taking care to balance competing interests for the overall good of the charity.

Related Parties

The charity collaborates with several local associations. These are independent charities for spina bifida and hydrocephalus and collaboration which may cover a range of activities. The charity also works in partnership with many other bodies, voluntary, statutory, and international, in carrying out work to support service users, undertake research and disseminate information.

Volunteers

In 2024/25, Shine had 58 registered volunteers (50 2023/24) to whom we remain eternally grateful and recorded 1,212 volunteered hours being a reduction versus 2023/24 (1,902 hours), reflected the closure of our one charity shop. The volunteering roles included:

Trustees’ Annual Report and Financial Statements Shine 35

Statement of trustees’ responsibilities

The trustees (who are also directors of Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE), are responsible for preparing the annual report and the financial statements in accordance with applicable law and United Kingdom Generally Accepted Accounting Practice. Company law requires the directors to prepare financial statements for each financial year which give a true and fair view of the situation of the charitable group and of the net income or expenditure of the group for the year. In preparing these financial statements the directors are required to:

that the charity will continue in business.

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and the group and enable them to ensure that the financial statements comply with the Companies Act 2006.

They are also responsible for safeguarding the charity and group’s assets and hence for taking reasonable steps to prevent and detect fraud and other irregularities.

Statement as to disclosure of information to auditors

As far as the trustees are aware, there is no relevant audit information of which the group’s auditors are unaware. Additionally, the trustees have taken all the necessary steps that they ought to have taken as trustees to make themselves aware of all relevant audit information and to establish that the group’s auditors are aware of that information.

The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website.

Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Appointment of Auditors

The continued appointment of Azets Audit Services Limited was confirmed by the Board of Trustees on the 3rd December 2024.

This report has been prepared in accordance with the special provisions relating to small companies within Part 15 of the Companies Act 2006.

By order of the Board of Trustees

Joanne Williams Chair 4th September 2025

36 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT

TO THE MEMBERS OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Opinion

We have audited the financial statements of Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE (the ‘charity’) and it's subsidiary for the year ended 31 March 2025 which comprise the Group Statement of Financial Activities, the Group and Parent Charitable Company Balance Sheets, the Group and Parent Charitable Company Cash Flow Statements and the notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor's responsibilities for the audit of the financial statements section of our report. We are independent of the Group and Parent Charitable Company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the Trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charity’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the Trustees with respect to going concern are described in the

relevant sections of this report.

Other information

The other information comprises the information included in the annual report other than the financial statements and our auditor's report thereon. The Trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Trustees’ Annual Report and Financial Statements Shine 37

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE MEMBERS OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of our audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the Group and Parent Charitable Company and its environment obtained in the course of the audit, we have not identified material misstatements in the directors’ report included within the Trustees' report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion:

Responsibilities of Trustees

As explained more fully in the statement of Trustees' responsibilities, the Trustees, who are also the directors of the charity for the purpose of company law, are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the Trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the Trustees are responsible for assessing the Group and Parent Charitable Company's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the Trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor's responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor's report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: https:// www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor's report.

38 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE MEMBERS OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Extent to which the audit was considered capable of detecting irregularities, including fraud

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above and on the Financial Reporting Council’s website, to detect material misstatements in respect of irregularities, including fraud.

We obtain and update our understanding of the entity, its activities, its control environment, and likely future developments, including in relation to the legal and regulatory framework applicable and how the entity is complying with that framework. Based on this understanding, we identify and assess the risks of material misstatement of the financial statements, whether due to fraud or error, design and perform audit procedures responsive to those risks, and obtain audit evidence that is sufficient and appropriate to provide a basis for our opinion. This includes consideration of the risk of acts by the entity that were contrary to applicable laws and regulations, including fraud.

In response to the risk of irregularities and non-compliance with laws and regulations, including fraud, we designed

procedures which included:

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk of not detecting a material misstatement resulting from fraud is higher than for one resulting from error, as fraud may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal control.

This report is made solely to the company’s members, as a body, in accordance with section 391 of the Companies Act 2014. Our audit work has been undertaken so that we might state to the company’s members those matters we are required to state to them in an auditor's report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the company and the company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Mr Mark Jackson FCA DChA (Senior Statutory Auditor) for and on behalf of Azets Audit Services

15/09/2025 .........................

Chartered Accountants Statutory Auditor

Westpoint Lynch Wood Peterborough Cambridgeshire United Kingdom PE2 6FZ

Trustees’ Annual Report and Financial Statements Shine 39

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2025

Current financial year

Unrestricted
Designated
Restricted
funds
funds
funds
2025
2025
2025
Notes
£
£
£
Income from:
Donations and legacies
3
1,119,151
159,522
528,029
Other trading activities
4
592,850
-
-
Income from investments
5
67,304
-
-
Total income
1,779,305
159,522
528,029
Expenditure on:
Raising funds
6
756,447
-
-
Charitable activities
7
1,053,716
31,375
576,687
Total resources expended
1,810,163
31,375
576,687
Net gains/(losses) on investments
12
(509)
-
-
Net outgoing resources before
transfers
(31,367)
128,147
(48,658)
Gross transfers between funds
10,335
(63,741)
53,406
Net (outgoing)/incoming resources
(21,032)
64,406
4,748
Other recognised gains and losses
Actuarial loss on defined benefit
pension schemes
(38,477)
-
-
Net movement in funds
(59,509)
64,406
4,748
Fund balances at 1 April 2024
1,168,487
511,033
114,952
Fund balances at 31 March 2025
1,108,978
575,439
119,700		 Total
2025
£
1,806,702
592,850
67,304
2,466,856
756,447
1,661,778
2,418,225
(509)
48,122
-
48,122
(38,477)
9,645
1,794,472
1,804,117		 Total
2024
£
1,478,934
635,710
40,471
2,155,115
730,978
1,543,481
2,274,459
55,474
(63,870)
-
(63,870)
(1,382)
(65,252)
1,859,724
1,794,472

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

40 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF FINANCIAL ACTIVITIES (CONTINUED) INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2025

Prior financial year

Unrestricted
Designated
Restricted
funds
funds
funds
2024
2024
2024
Notes
£
£
£
Income from:
Donations and legacies
3
1,074,858
-
404,076
Other trading activities
4
635,710
-
-
Income from investments
5
40,471
-
-
Total income
1,751,039
-
404,076
Expenditure on:
Raising funds
6
730,978
-
-
Charitable activities
7
1,025,342
48,196
469,943
Total resources expended
1,756,320
48,196
469,943
Net gains/(losses) on investments
12
55,474
-
-
Net outgoing resources before transfers
50,193
(48,196)
(65,867)
Gross transfers between funds
(96,304)
72,500
23,804
Net (outgoing)/incoming resources
(46,111)
24,304
(42,063)
Other recognised gains and losses
Actuarial loss on defined benefit pension
schemes
(1,382)
-
-
Net movement in funds
(47,493)
24,304
(42,063)
Fund balances at 1 April 2023
1,215,980
486,729
157,015
Fund balances at 31 March 2024
1,168,487
511,033
114,952		 Total
2024
£
1,478,934
635,710
40,471
2,155,115
730,978
1,543,481
2,274,459
55,474
(63,870)
-
(63,870)
(1,382)
(65,252)
1,859,724
1,794,472

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

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SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

BALANCE SHEETS

AS AT 31 MARCH 2025

Notes
Fixed assets
Investments
15
Current assets
Debtors
17
Cash at bank and in hand
Creditors: amounts falling due within
one year
18
Net current assets
Total assets less current liabilities
Net assets excluding pension liability
Defined benefit pension liability
19
Net assets
Income funds
Restricted funds
20
Unrestricted funds-general
Designated funds
21
General unrestricted funds		 Group
2025
£
847,083
265,165
905,322
1,170,487
(188,917)
981,570
1,828,653
1,828,653
(24,536)
1,804,117
119,700
575,439
1,108,978
1,684,417
1,804,117		 Charity
2025
£
847,086
234,528
891,066
1,125,594
(167,011)
958,583
1,805,669
1,805,669
(24,536)
1,781,133
119,700
575,439
1,085,994
1,661,433
1,781,133		 Group
2024
£
834,112
252,216
885,550
1,137,766
(177,406)
960,360
1,794,472
1,794,472
-
1,794,472
114,952
511,033
1,168,487
1,679,520
1,794,472		 Charity
2024
£
834,115
217,594
870,690
1,088,284
(150,911)
937,373
1,771,488
1,771,488
-
1,771,488
114,952
511,033
1,145,503
1,656,536
1,771,488

As permitted by section 408 of the Companies Act 2006, the charitable company has not presented its own statement of financial activities and related notes. The charitable company's surplus for the year was £9,645 (2024 - deficit for the year of £65,252).

04/09/2025

The financial statements were approved by the board of directors and authorised for issue on ......................... and are signed on its behalf by:

.............................. .............................. Mrs J Williams Mrs J Goy Trustee Trustee Company Registration No. 00877990

42 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF CASH FLOWS

FOR THE YEAR ENDED 31 MARCH 2025

Notes
Cash flows from operating activities
Cash absorbed by operations
26
Investing activities
Interest and income from investments
Net cash generated from investing
activities
Net cash used in financing activities
Net increase/(decrease) in cash and cash
equivalents
Cash and cash equivalents at beginning of year
Cash and cash equivalents at end of year		 2025
£
£
(47,532)
67,304
67,304
-
19,772
885,550
905,322		 2024
£
£
(214,822)
40,471
40,471
-
(174,351)
1,059,901
885,550

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SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025

1 Accounting policies

Company information

Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE is a private company limited by guarantee incorporated in England and Wales. The registered office is Unit 4, The Forum, Minerva Business Park, Peterborough, Cambridgeshire, PE2 6FT, United Kingdom.

1.1 Accounting convention

The financial statements have been prepared in accordance with the charity's governing document, the Companies Act 2006 and “Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)” (as amended for accounting periods commencing from 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.

The financial statements have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a true and fair view. This departure has involved following the Statement of Recommended Practice for charities applying FRS 102 rather than the version of the Statement of Recommended Practice which is referred to in the Regulations but which has since been withdrawn.

The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.

The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.

The consolidated accounts incorporate the results of the charity and of its wholly owned subsidiary.

1.2 Going concern

At the time of approving the financial statements, the Trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objectives unless the funds have been designated for other purposes.

Designated funds comprise funds which have been set aside at the discretion of the Trustees for specific purposes. The purposes and uses of the designated funds are set out in the notes to the financial statements.

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.

Endowment funds are subject to specific conditions by donors that the capital must be maintained by the charity.

44 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)

FOR THE YEAR ENDED 31 MARCH 2025

1 Accounting policies

(Continued)

1.4 Incoming resources

Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.

Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.

Gifts donated for resale are included as income when they are sold. No amounts are included in the financial statements for services donated by volunteers.

Grant income is recognised according to the terms of each individual agreement.

All other income is dealt with on an accruals basis.

1.5 Resources expended

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.

Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.

Direct expenditure is analysed and charged to the department incurring the cost. Expenditure is included when incurred, the majority of costs being directly attributable to specific activities. Costs that can not be directly attributable to particular headings, are allocated to activities on a basis consistent with use of the resources. Premises and other overheads have been allocated on a head count basis.

Fundraising costs are those incurred in seeking voluntary contributions and do not include the costs of disseminating information in support of chartable activities.

Governance costs are those incurred in connection with the governance arrangements of the charity and compliance with constitutional and statutory requirements.

1.6 Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits repayable on demand and overdrafts. Deposits are repayable on demand if they are in practice available within 24 hours without a penalty. Liquid resources comprise assets held as a readily disposable store of value.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

1 Accounting policies

(Continued)

1.7 Financial instruments

Financial instruments are recognised when the charity becomes party to the contractual provisions of the instrument.

Financial assets are offset, with the net amounts presented in the accounts when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the charity’s contractual obligations expire or are discharged or cancelled.

1.8 Provisions

Provisions are recognised when the charity has a legal or constructive present obligation as a result of a past event, it is probable that the charity will be required to settle that obligation and a reliable estimate can be made of the amount of the obligation.

The amount recognised as a provision is the best estimate of the consideration required to settle the present obligation at the reporting end date, taking into account the risks and uncertainties surrounding the obligation. Where the effect of the time value of money is material, the amount expected to be required to settle the obligation is recognised at present value. When a provision is measured at present value, the unwinding of the discount is recognised as a finance cost in net income/(expenditure) in the period in which it arises.

1.9 Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the company is demonstrably committed to terminate the employment of an employee.

46 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

1 Accounting policies

(Continued)

1.10 Retirement benefits

For employees choosing to participate, the charity operates a defined contribution pension scheme providing benefits additional to those from the State. The assets are held in a separately administered scheme. The pensions cost charge represents contributions payable by the company to the pension scheme in respect of the year.

Previously, the charity were part of a separately administered defined benefit scheme and is still required to make contributions to fund a deficit in the scheme.

The cost of providing benefits under defined benefit plans is determined separately for each plan using the projected unit credit method, and is based on actuarial advice.

The net interest element is determined by multiplying the net defined benefit liability by the discount rate, taking into account any changes in the net defined benefit liability during the period as a result of contribution and benefit payments. The net interest is recognised in income/(expenditure) for the year.

Remeasurement changes comprise actuarial gains and losses, the effect of the asset ceiling and the return on the net defined benefit liability excluding amounts included in net interest. These are recognised immediately in other recognised gains and losses in the period in which they occur and are not reclassified to income/ (expenditure) in subsequent periods.

The net defined benefit pension asset or liability in the balance sheet comprises the total for each plan of the present value of the defined benefit obligation (using a discount rate based on high quality corporate bonds), less the fair value of plan assets out of which the obligations are to be settled directly. Fair value is based on market price information, and in the case of quoted securities is the published bid price. The value of a net pension benefit asset is limited to the amount that may be recovered either through reduced contributions or agreed refunds from the scheme.

1.11 Leases

Rentals payable under operating leases, including any lease incentives received, are charged as an expense on a straight line basis over the term of the relevant lease.

2 Critical accounting estimates and judgements

In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

3 Donations and legacies

Unrestricted
Designated
Restricted
funds
funds
funds
2025
2025
2025
£
£
£
Donations and gifts
687,138
159,522
-
Legacies receivable
347,013
-
-
Grants receivable
85,000
-
528,029
1,119,151
159,522
528,029
For the year ended 31 March 2024
1,074,858
-
404,076		 Total
2025
£
846,660
347,013
613,029
1,806,702		 Total
2024
£
713,637
276,221
489,076
1,478,934
1,478,934

48 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

3
Donations and legacies
Unrestricted
Designated
Restricted
funds
funds
funds
2025
2025
2025
£
£
£
Donations and gifts
Individuals
391,884
-
-
Trusts
174,140
-
-
Corporate donors
83,457
-
-
Local associations
-
159,522
-
Health Trusts
37,657
-
-
687,138
159,522
-
Grants receivable for core activities
National Lottery Community fund
Northern Ireland Shining Opportunities
-
-
99,974
National Lottery Community fund
Cymru People & Places
-
-
112,520
Early Intervention (Community lottery &
others)
-
-
185,927
Tropical Health and Education Trust
-
-
27,736
The Henry Smith Charity
60,000
-
-
Garfield Weston Foundation
25,000
-
-
Margaret Giffen Charitable Trust
-
-
-
BBC Children in Need
-
-
15,000
Peter Harrison Foundation
-
-
21,000
The Eveson Trust
-
-
12,500
Other
-
-
53,372
85,000
-
528,029
4
Other trading activities
Income of trading subsidiary
Donations sold through shops
Publications and attendance fees		 (Continued)
Total
Total
2025
2024
£
£
391,884
425,059
174,140
164,609
83,457
85,928
159,522
3,089
37,657
34,952
846,660
713,637
99,974
97,696
112,520
57,867
185,927
172,174
27,736
39,329
60,000
60,000
25,000
25,000
-
5,000
15,000
-
21,000
-
12,500
-
53,372
32,010
613,029
489,076
2025
2024
£
£
579,800
608,455
12,413
25,913
637
1,342
592,850
635,710		 (Continued)
Total
Total
2025
2024
£
£
391,884
425,059
174,140
164,609
83,457
85,928
159,522
3,089
37,657
34,952
846,660
713,637
99,974
97,696
112,520
57,867
185,927
172,174
27,736
39,329
60,000
60,000
25,000
25,000
-
5,000
15,000
-
21,000
-
12,500
-
53,372
32,010
613,029
489,076
2025
2024
£
£
579,800
608,455
12,413
25,913
637
1,342
592,850
635,710
713,637
97,696
57,867
172,174
39,329
60,000
25,000
5,000
-
-
-
32,010
489,076
2024
£
608,455
25,913
1,342
635,710

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

5
Income from investments
Income from listed investments
Interest receivable
2025
£
23,339
43,965
67,304		 2024
£
22,279
18,192
40,471

50 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

6 Raising funds

Fundraising and publicity
Direct staff costs
Other fundraising direct costs
Support costs (see note 8)
Fundraising and publicity
Shine
(Trading)
Limited
£
Trading costs
Direct staff costs
205,646
Other direct operational costs
15,765
Support costs (see note 8)
84,044
Trading costs
305,455		 Shops
£
18,354
4,745
14,238
37,337		 2025
£
273,817
62,195
77,643
413,655
Total
2025
£
224,000
20,510
98,282
342,792
756,447		 2024
£
263,697
51,466
80,677
395,840
Total
2024
£
223,816
21,702
89,620
335,138
730,978

Trustees’ Annual Report and Financial Statements Shine 51

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2025		 7
Charitable activities
Enabling
babies and
children to
achieve
their
potential
Empowering
young
people
Adults of all
ages to have
choices and
opportunities
A connected
community
Preventing
Spina Bifida
Changing
experiences
of
pregnancies
Transforming
attitudes
Total
2025
Total
2024
£
£
£
£
£
£
£
£
£
Direct staff costs
227,354
190,486
202,447
447,976
57,040
43,471
111,783
1,280,557
1,173,433
Other direct costs
32,365
27,117
28,820
63,772
8,120
6,188
15,913
182,295
165,212
259,719
217,603
231,267
511,748
65,160
49,659
127,696
1,462,852
1,338,645
Share of support costs
(see note 8)
30,182
25,288
26,876
59,471
7,572
5,771
14,840
170,000
173,041
Share of governance
costs (see note 8)
5,136
4,303
4,573
10,119
1,288
982
2,525
28,926
31,795
295,037
247,194
262,716
581,338
74,020
56,412
145,061
1,661,778
1,543,481
Analysis by fund
Unrestricted funds - general
1,053,716
1,025,342
Unrestricted funds - designated
31,375
48,196
Restricted funds
576,687
469,943
1,661,778
1,543,481

52 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

8
Support and governance costs
Fundraising
and publicity
Support costs
£
Staff costs
18,480
IT costs
15,808
Premises costs
39,657
Other support costs
17,936
91,881		 Trading
costs
Charitable
activities
£
£
23,689
40,527
9,281
57,400
14,196
31,372
36,878
40,701
84,044
170,000		 2025
£
82,696
82,489
85,225
95,515
345,925		 2024
£
70,581
63,996
85,618
123,143
343,338
Governance costs
Staff costs
Audit fees
Other governance costs		 2025
£
12,971
15,214
741
28,926		 2024
£
12,571
9,624
9,600
31,795

Trustees’ Annual Report and Financial Statements Shine 53

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

9 Commercial operations in trading subsidiary

The charity has one wholly owned trading subsidiary undertaking, Shine (Trading) Limited which sells balloons for virtual balloon races. The company gift aids virtually all its taxable profits to Shine. A summary of its trading results is shown below. Audited accounts have been filed with the Registrar of Companies.

2025 2024
Shine (Trading) Ltd Profit & Loss Account £ £
Turnover 579,800 608,455
Cost of sales (193,867) (192,036)
Gross profit 385,933 416,419
Administration expenses (65,286) (60,677)
Operating profit 320,647 355,742
Amount payable by gift aid to Shine (320,647) (355,742)
Profit on ordinary activities - -
2025 2024
Shine (Trading) Ltd Balance Sheet £ £
Current assets 130,896 164,816
Current liabilities (107,909) (141,829)
Net current assets 22,987 22,987
Total net assets 22,987 22,987
Aggregate share capital and reserves 22,987 22,987

54 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

10 Employees

Number of employees

The average monthly number of full time equivalent employees during the year was:

Services
Fundraising and publicity
Shops
Administration
Shine (Trading) Limited
Employment costs
Wages and salaries
Redundancy costs
Social security costs
Other pension costs
Other staff related benefits
The number of employees whose annual remuneration was £60,000 or more
were:
£80,001 - £90,000
£60,001 - £70,000		 2025
Number
34
8
1
3
6
52
2025
£
1,643,674
18,877
150,508
55,339
5,140
1,873,538
2025
Number
1
1		 2024
Number
31
8
1
3
5
48
2024
£
1,545,971
1,000
141,548
51,324
4,283
1,744,126
2024
Number
1
1
Pension contributions for higher paid employees were £12,475 (2024 - £10,465).

Trustees’ Annual Report and Financial Statements Shine 55

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

11 Trustees

None of the Trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.

In respect of attending meetings of committees, travel expenses amounting to £741 (2024 - £1,401) have been reimbursed to 5 (2024 - 4) members of the Board of Trustees.

At the year end, £nil (2024 - £nil) of the above expenses are unpaid and included as a creditor.

The accounts include a charge of £2,413 (2024 - £3,312) to provide the Trustees with indemnity insurance.

12 Net gains/(losses) on investments

Total
2025
£
Revaluation of investments
(14,986)
Gain/(loss) on sale of investments
14,477
(509)		 Total
2024
£
54,956
518
55,474

13 Taxation

Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE is a registered charity. It only applies its funds in accordance with its charitable objectives, and is not trading with a view to making distributable profits, therefore corporation tax is not chargeable.

The trading subsidiary has gifted its profits to Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE under Gift Aid therefore no corporation tax is payable

56 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

14 Tangible fixed assets

Equipment
Software
and website
Group
£
£
Cost
At 1 April 2024
11,830
25,757
At 31 March 2025
11,830
25,757
Depreciation and impairment
At 1 April 2024
11,830
31,031
At 31 March 2025
11,830
31,031
Equipment
Software
and website
Charity
£
£
Cost
At 1 April 2024
9,191
18,728
At 31 March 2025
9,191
18,728
Depreciation and impairment
At 1 April 2024
9,191
18,728
At 31 March 2025
9,191
18,728
Carrying amount
At 31 March 2025
-
-
At 31 March 2024
-
-		 Total
£
37,587
37,587
37,587
37,587
Total
£
27,919
27,919
27,919
27,919
-
-

The charity owns a freehold interest in some land that is leased to another charity at a peppercorn rent and used in furtherance of the charitable objects. The lease ends in 2084 and no value is included in the accounts for the property.

15 Fixed asset investments

Investments in subsidiaries
Listed investments		 Group
2025
£
-
847,083
847,083		 Charity
2025
£
3
847,083
847,086		 Group
2024
£
-
834,112
834,112		 Charity
2024
£
3
834,112
834,115

Trustees’ Annual Report and Financial Statements Shine 57

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

15
Fixed asset investments
Movements in fixed asset investments
Group and Charity
Cost or valuation
At 31 March 2024
Additions within portfolio
Disposals within portfolio
Valuation changes
Cash held for investment
At 31 March 2025
16
Financial instruments
Carrying amount of financial assets
Trade debtors
Accrued income
Amounts due from subsidiary undertakings
Bank and cash
Measured at cost
Fixed asset investments
Measured at market value
Carrying amount of financial liabilities
Trade creditors
Accruals and deferred income
Other creditors
Other taxation and social security
Measured at cost		 Group
2025
£
120,631
39,299
-
905,322
1,065,252
847,083
847,083
25,268
87,127
31,091
45,431
188,917		 Charity
2025
£
8,786
39,299
86,003
891,066
1,025,154
847,086
847,086
25,039
79,194
29,849
32,929
167,011		 (Continued)
2025
2024
£
£
815,987
733,130
84,344
160,726
(63,496)
(148,394)
(11,906)
70,525
824,929
815,987
22,154
18,125
847,083
834,112
Group
Charity
2024
2024
£
£
156,621
10,890
58,234
58,234
-
115,334
885,550
870,690
1,100,405
1,055,148
834,112
834,115
834,112
834,115
9,299
9,142
83,383
76,797
32,710
31,662
52,014
33,310
177,406
150,911

58 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

17
Debtors
Amounts falling due within one year:
Trade debtors
Amounts due from subsidiary undertakings
Prepayments and accrued income		 Group
2025
£
120,631
-
144,534
265,165		 Charity
2025
£
8,786
86,003
139,739
234,528		 Group
2024
£
156,621
-
95,595
252,216		 Charity
2024
£
10,890
115,334
91,370
217,594

The net amount owed by the subsidiary includes amounts owing for gift aid receivable and payment for services provided.

18 Creditors: amounts falling due within one year

Creditors: amounts falling due within one year
Other taxation and social security
Trade creditors
Other creditors
Accruals and deferred income		 Group
2025
£
45,431
25,268
31,091
87,127
188,917		 Charity
2025
£
32,929
25,039
29,849
79,194
167,011		 Group
2024
£
52,014
9,299
32,710
83,383
177,406		 Charity
2024
£
33,310
9,142
31,662
76,797
150,911

Trustees’ Annual Report and Financial Statements Shine 59

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

19 Retirement benefit schemes

The Pensions Trust - The Growth Plan

SHINE participates in The Pension Trust's Growth Plan (The Plan), a multi-employer scheme which provides benefits to some 521 non-associated participating employers. The scheme is a defined benefit scheme in the UK.

It is not possible for the charity to obtain sufficient information to enable it to account for the scheme as a defined benefit scheme. Therefore it accounts for the scheme as a defined contribution scheme.

The scheme is subject to the funding legislation outlined in the Pensions Act 2004 which came into force on 30 December 2005. This, together with documents issued by the Pensions Regulator and Technical Actuarial Standards issued by the Financial Reporting Council, set out the framework for funding defined benefit occupational pension schemes in the UK.

The scheme is classified as a 'last-man standing arrangement'. Therefore the charity is potentially liable for other participating employers' obligations if those employers are unable to meet their share of the scheme deficit following withdrawal from the scheme. Participating employers are legally required to meet their share of the scheme deficit on an annuity purchase basis on withdrawal from the scheme.

A full actuarial valuation for the scheme was carried out at 30 September 2023. This actuarial valuation showed assets of £514.9m, liabilities of £531.0m and a deficit of £16.1m. To eliminate this funding shortfall, the trustees and the participating employers have agreed that additional contributions will be paid to the scheme as follows:

Deficit contributions

From 1 April 2025 to 31 March 2028:

£2,100,000 per annum (payable monthly)

Unless a concession has been agreed with the Trustee the term to 31 March 2028 applies.

Note that the scheme's previous valuation was carried out with an effective date of 30 September 2020. This valuation showed assets of £800.3m, liabilities of £831.9m and a deficit of £31.6m. To eliminate this funding shortfall, the Trustee asked the participating employers to pay additional contributions to the scheme as follows:

Deficit contributions

From 1 April 2022 to 31 January 2025:

£3,312,000 per annum (payable monthly and increasing by 3% each on 1st April)

The recovery plan contributions are allocated to each participating employer in line with their estimated share of the Series 1 and Series 2 scheme liabilities.

Where the scheme is in deficit and where the charity has agreed to a deficit funding arrangement the company recognises a liability for this obligation. The amount recognised is the net present value of the deficit reduction contributions payable under the agreement that relates to the deficit. The present value is calculated using the discount rate detailed in these disclosures. The unwinding of the discount rate is recognised as a finance cost.

60 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

19
Retirement benefit schemes
Present values of provision
31
Present value of provision
An amount of £13,612 (2024 - £16,884) is included within short term
long term liabilities.
Reconciliation of opening and closing provisions		 (Continued)
March
2025
31 March
2024
31 March
2023
38,148
16,884
36,146
creditors and £24,536 (2024 - £Nil) in
Reconciliation of opening and closing provisions
Year Year
Ending Ending
31 March 31 March
2025 2024
Provision at start of period 16,884 36,146
Unwinding of the discount factor (interest expense) 445 1,382
Deficit contribution paid (17,214) (20,657)
Remeasurements - impact of any change in assumptions 242 13
Provision at end of period 38,148 16,884

Income and expenditure impact

Income and expenditure impact
Year Year
Ending Ending
31 March 31 March
2025 2024
Interest expense 445 1,382
Remeasurements - impact of any change in assumptions 242 13
Costs recognised in income and expenditure account 38,478 1,395

Trustees’ Annual Report and Financial Statements Shine 61

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

19 Retirement benefit schemes

Retirement benefit schemes (Continued)
Assumptions
31 March 31 March 31 March
2025 2024 2023
% per annum % per annum % per annum
Rate of discount 4.84 5.31 5.52

The discount rates shown above are the equivalent single discount rates which, when used to discount the future recovery plan contributions due, would give the same results as using a full AA corporate bond yield curve to discount the same recovery plan contributions.

The following schedule details the deficit contributions agreed between the company and the scheme at each year end period:

Deficit contributions schedule

Year ending 31 March 31 March 31 March
2025 2024 2023
Year 1 13,612 17,214 20,657
Year 2 13,612 - 17,214
Year 3 13,612 - -

The charity must recognise a liability measured as the present value of the contributions payable that arise from the deficit recovery agreement and the resulting expense in the income and expenditure account i.e. the unwinding of the discount rate as a finance cost in the period in which it arises.

It is these contributions that have been used to derive the charity's balance sheet liability.

The Plan is closed to new entrants and there were no active members of the scheme during the year.

The Scheme has identified a potential issue in respect of the calculation of benefits paid and has instigated a review. The outcome of the review is unknown and the potential financial impact of the review if an issue is identified is unknown. A potential liability may arise, but no provision is included in these accounts as the amount cannot be quantified.

62 Shine Trustees’ Annual Report and Financial Statements

Restricted funds The income funds of the charity include restricted funds comprising the following unexpended balances of donations and grants held on trust for specific purposes: Movement in funds
Movement in funds		 Balance at
Income
Expenditure
Transfers
Balance at
Income
Expenditure
Transfers
Balance at		 1 April 2023
1 April 2024
31 March 2025		 £
£
£
£
£
£
£
£
£		 National Lottery Community Fund – Early intervention programme across England
79,559
172,174
(209,292)
8,070
50,511
185,927
(205,744)
7,227
37,921		 National Lottery Community fund Northern Ireland Shining Opportunities
35,064
97,696
(100,798)
-
31,962
99,974
(99,057)
(480)
32,399		 International Projects: Continence care and management project (Nigeria)
(1,570)
39,329
(28,234)
-
9,525
27,736
(36,427)
-
834		 Coop Grant
2,118
-
(325)
-
1,793
-
(1,340)
-
453		 National Lottery Community fund: Cymru People & Places
-
57,867
(63,841)
14,154
8,180
112,520
(134,845)
26,958
12,813		 National Lottery Community fund: Cymru Shining lights
21,473
-
(23,053)
1,580
-
-
-
-
-		 Regional Projects "Here for you"
15,121
5,000
(15,122)
-
4,999
57,000
(48,362)
-
13,637		 Welfare Grants
(2,090)
6,790
(4,685)
-
15
-
-
-
15		 Support Groups
1,835
-
1,306
-
3,141
-
(188)
-
2,953		 South West Country SDW
-
8,500
(8,500)
-
-
-
-
-
-		 NPH Coordinator
-
1,000
-
-
1,000
1,000
(2,000)
-
-		 Spinal Stimulation
-
10,720
(6,894)
-
3,826
13,250
(32,769)
15,693
-		 Margaret Giffen Charitable Trust - supporting our work in Northamptonshire
5,505
5,000
(10,505)
-
-
-
-
-
-		 BBC Children in Need Continence Support
-
-
-
-
-
18,000
(14,245)
4,008
7,763		 Awards for All Pain and Wellbeing
-
-
-
-
-
12,622
(1,710)
-
10,912		 157,015
404,076
(469,943)
23,804
114,952
528,029
(576,687)
53,406
119,700
20

Trustees’ Annual Report and Financial Statements Shine 63

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

21 Designated funds

The income funds of the charity include the following designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes:

Balance at Net Balance at Net Balance at
1 April 2023 movement 1 April 2024 movement 31 March
2025
Group & Charity £ £ £ £ £
Interest in land and property and other
fixed assets 1,214 (1,214) - - -
Florence Bartle fund 96,287 (28,876) 67,411 (32,680) 34,731
Services in Northern Ireland, Wales and
Gloucestershire 29,228 (16,881) 12,347 (5,628) 6,719
Digital development 25,000 - 25,000 - 25,000
Research 50,000 - 50,000 (19,577) 30,423
North East Service Fund - - - 139,333 139,333
Surrey Service Fund - - - 1,440 1,440
- East Anglian SDW 75,000 - 75,000 - 75,000
- Deputy Health Manager 135,000 - 135,000 (2,317) 132,683
- Education Officer 50,000 - 50,000 - 50,000
- Physio service (Spinal Stimulation) 25,000 (1,225) 23,775 (14,468) 9,307
- Normal Pressure Hydrocephalus - 72,500 72,500 (1,697) 70,803
486,729 24,304 511,033 64,406 575,439

The designated funds comprise:

64 Shine Trustees’ Annual Report and Financial Statements

Total 2024 £ 834,112 960,360 - 1,794,472 834,115 937,373 - 1,771,488
Restricted funds 2024 £ - 114,952 - 114,952 - 114,952 - 114,952
Designated funds 2024 £ - 511,033 - 511,033 - 511,033 - 511,033
Total
Unrestricted		 funds 2025
2024		 £
£		 847,083
834,112		 981,570
334,375		 (24,536)
-		 1,804,117
1,168,487		 847,086
834,115		 958,583
311,388		 (24,536)
-		 1,781,133
1,145,503
Restricted funds 2025 £ - 119,700 - 119,700 - 119,700 - 119,700
Designated funds 2025 £ - 575,439 - 575,439 - 575,439 - 575,439
Unrestricted funds 2025 £ 847,083 286,431 (24,536) 1,108,978 847,086 263,444 (24,536) 1,085,994
Analysis of net assets between funds Group Fund balances at 31 March 2025 are represented by: Investments Current assets/(liabilities) Provisions and pensions Charity Fund balances at 31 March 2025 are represented by: Investments Current assets/(liabilities) Provisions and pensions
22

Trustees’ Annual Report and Financial Statements Shine 65

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

23 Operating lease commitments

Group and Charity

At the reporting end date the charity had outstanding commitments for future minimum lease payments under non-cancellable operating leases, which fall due as follows:

Within one year
Between two and five years		 2025
£
45,460
28,783
74,243		 2024
£
48,420
75,826
124,246

24 Related party transactions

Remuneration of key management personnel

The remuneration of key management personnel, who on a full time equivalent basis are the 2.6 (2024 - 2.6) members of the senior management team, is as follows.

2025 2024
£ £
Aggregate compensation including pension contributions 190,093 187,045

Transactions with related parties

Owing to the nature of the charity's operations, some of the Trustees may themselves, or may have family members that access services from the charity. Consequently there will be transactions between those Trustees or their family members. These are on the same basis as other service users of the charity.

25 Control

No one individual has overall control of the charity.

66 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2025

26
Cash generated from operations
Surplus/(deficit) for the year
Adjustments for:
Investment income recognised in statement of financial activities
Investment management fees recognised in statement of financial activities
Gain on disposal of investments
Fair value gains and losses on investments
Depreciation and impairment of tangible fixed assets
Movements in working capital:
(Increase) in debtors
Increase/(decrease) in creditors
Increase/(decrease) in pension liability
Cash absorbed by operations
27
Analysis of changes in net funds
The group and charity had no debt during the year.		 2025
2024
£
£
9,645
(65,252)
(67,304)
(40,471)
(9,854)
(9,014)
(14,477)
(518)
14,986
(54,956)
-
1,214
(12,949)
(7,016)
10,797
(19,547)
21,624
(19,262)
(47,532)
(214,822)

Trustees’ Annual Report and Financial Statements Shine 67

SHINE Registered Office Unit 4, Minerva Business Park, Peterborough, PE2 6FT Telephone 01733 555988 Email firstcontact@SHINEcharity.org.uk www.shinecharity.org.uk Charity number 249338, Company number 00877990