2023-03-31-accounts

Trustees’ Annual Report and Financial Statements Year ended 31st March 2023

Contents

~~Message from our Chair~~	~~3~~		~~The Future~~	~~23~~
~~Our new Corporate Plan 2022 – 2027~~	~~4~~		~~Thank you~~	~~24~~
~~Our community~~	~~5~~		~~Income and expenditure 2022/23~~	~~25~~
~~Strategic Goal 1~~	~~6~~		~~Financial review~~	~~26~~
~~Strategic Goal 2~~	~~10~~		~~Going concern and statement of public beneft ~~	~~29~~
~~Strategic Goal 3~~	~~12~~		~~Reference and administration details~~	~~30~~
~~Strategic Goal 4~~	~~16~~		~~Our commitment to quality fundraising~~	~~32~~
~~Strategic Goal 5~~	~~18~~		~~Structure, Governance and Management~~	~~33~~
~~Strategic Goal 6~~	~~19~~		~~Board integrity~~	~~33~~
~~Strategic Goal 7~~	~~20~~		~~Statement of Trustees’ responsibilities~~	~~35~~
~~Our international work~~	~~22~~		~~Independent Auditor’s report~~	~~36~~

2 Shine Trustees’ Annual Report and Financial Statements

Message from Chair, Joanne Williams

I was delighted to accept the role of Chair of Shine and look forward to working alongside my fellow trustees and Shine’s staff and volunteers in the delivery of our Corporate Plan.

The 7 strategic goals, set out in the plan, are hugely ambitious. From experience, we know they will not be delivered overnight. The activities and projects have been mapped out in annual work plans, with milestones for delivery and review at key points throughout each year, and the lifetime of the Plan. We are fortunate to have such a dedicated team of staff at Shine, who are committed to making a difference and will do so with empathy, compassion and hard work.

Over the past 12 months, Shine, like so many other charities, has faced a considerable number of challenges such as the aftereffects of the pandemic, the

cost-of-living crisis, the war in Ukraine, a buoyant job seekers market, less access to funds and increased competition from other charities vying for the same pot of money. But despite these many obstacles, the charity has successfully ridden the storm and proven resilient. My heartfelt appreciation goes to the staff for their fortitude and diligence in planning and delivering on our objectives and managing the budget so successfully.

We have experienced ever-increasing demand for our services, with our membership growing by 6% since April 2023.

In 2022/23, as well as all the service and support we provided to our members, their families, friends and professionals across England, Wales and Northern Ireland, Shine

• completed the sale of our head office in Peterborough, and re-located to a smaller, rented office on the outskirts of the city, reducing overheads and annual costs of running the charity

• reviewed and increased our levels of reserves to ensure Shine remains a going concern

• designated funds to strengthen and grow our services

• increased staff levels in our Services and Health teams to meet increasing needs, and future-proof our longterm sustainability

• maintained our focus on staff well-being and created opportunities for progress and personal development

• introduced a triage system and new member database to better serve our members

This bodes well for 2023/24. We have an exciting year ahead!

With my best wishes

Joanne Williams, Chair

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Introducing our new Corporate Plan 2022 – 2027 Kate Steele, CEO

‘Engage, Enable and Empower … The Next Steps’ is informed by over 55 years of experience and expertise and builds on the successes and lessons learnt from our most recent five-year plan. Reflecting our members’ feedback and ideas on the services, activities and campaigns they want Shine to deliver, the outcomes should see an ever stronger and growing community of engaged, enabled and empowered people, whose lives have been affected by spina bifida and/or hydrocephalus, and associated conditions.

It is 14 years in September since I started my first role with Shine, and 8 years since I took on the role of CEO for this wonderful charity.

Never a day goes by when I don’t sit and reflect on the enormous challenges that some of our members of all ages face. Equally, there is rarely a day when I don’t marvel at the inspirational stories Shine members are so willing to share, to encourage and inform others in similar situations as it is this shared experience, as well as Shine’s many years of insight and experience, that makes us so unique.

Over the past 12 months, we have, once again, provided information, support, advice and networking opportunities to thousands of people across England, Wales and Northern Ireland, and have collaborated with others nationally and internationally to reach many more.

Our Corporate Plan 2022 – 2027 sets out our ambitions to see further change in the coming years, and focuses on 7 strategic goals:

Goals 1 – 4 set out our ambitions to improve and widen our services to work closely with our members of all ages, tailoring our services to meet the individual and collective needs of our Shine community.

Goal 5 details the work we are doing to reduce

the chances of pregnancies being affected by neural tube defects. Whilst this work may seem contradictory to the work we do to support, advise and guide our members who have spina bifida and/ or hydrocephalus, we also need to raise awareness of the role of folic acid and B12 in preventing neural tube defects (NTDs), such as spina bifida. This enables choice – individuals and families are better equipped to make informed decisions, according to their values and beliefs.

Goal 6 outlines Shine’s pregnancy advice service for our members who wish to explore possibilities and plan for children. It is also for those who may have had a previous pregnancy affected by an NTD (Neural Tube Defect) and for parents-to-be whose baby has been diagnosed with spina bifida, hydrocephalus or anencephaly.

Goal 7 highlights Shine’s ambitions for campaigning and influencing on the national and international stages – to champion lasting improvements in statutory services so that everyone whose lives are affected by spina bifida and hydrocephalus, or associated conditions, can have access to the right services and support when they need them.

Shine has existed for 57 years. Over this time, we have seen enormous changes to health and care, societal attitudes and increased opportunities for our members to live the lives they want to. Yet, Shine’s journey is far from over. There is still much to do, but I sincerely believe that, as a collective community, we will continue to make a vital difference to so many. This annual report shares some of the ways in which we have been able to do this in 2022/23.

A huge thank you to everyone across our community, for your on-going faith, trust and support for Shine.

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Our community

Trustees’ Annual Report and Financial Statements Shine 5

Strategic goal 1

Enabling babies and children with spina bifida and/or hydrocephalus to achieve their potential (0 to 12 years old).

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OUR
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Early intervention and preventative approaches to improving health and well-being “can help children and young people to develop the skills they need to live happy, healthy and successful lives. It can improve the quality of children’s home lives and family relationships, increase educational attainment and support good mental health” (Early Intervention Foundation).

Thanks to funding from the Community Funds in England, Wales and Northern Ireland, other sources of funding and investment from our reserves, Shine’s ambitions, to provide these foundations for improved health, equal access to educational opportunities, social and emotional outcomes for Little Stars as they grow and develop and journey through key stages of life, have been brought to life.

This work builds on the past success of our Little Stars programme, which initially focused on

0–10-year-olds, but has been extended to include 11 and 12-year-olds.

Our new youth project also got off the ground, giving focus to our teenage members’ needs and wants, and providing a programme for progression from our Little Stars as they ‘graduate’ to become teenagers.

EVENTS

(online sessions; face-to-face get togethers; school presentations; support at clinics)

ONLINE SESSIONS 327 DELIVERED

FACE-TO-FACE SESSIONS RUN 60 INDIVIDUALS 477 PARTICIPATED

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We asked our parents and carers of our Little Stars about their experience

“What you provide is brilliant for families in this situation”

“If you’re having a bad day you can go to Little Stars and get it off your chest”

“Thank you to Little Stars for making us feel a little bit less isolated”

“It’s a brilliant force, we are very lucky to have [you] to support our little children”

‘I found an hour on video chat with Shine’s physio was more useful than a year with our actual physio.”

Online events

Since March 2020, we have turned our attention to online information and get-togethers to enable our younger members, and their parents, to keep in touch, talk to others and learn. Proven to be both a cost-effective way of engaging and connecting our community, it has also enabled so many more of our members to get involved, without the need to travel long distances, tackle public transport, or avoid lastminute cancellations due to ill health.

Health Hubs

Due to the funding structure in Wales, we have been offering access to Health Hubs for our Welsh members. Health hubs are face-to-face sessions with Shine’s specialist continence nurse and/or physiotherapist, with additional input from one of our Support and Development Workers

Using others’ expertise

What’s CONTINUED?

1-2-1 support, advice and guidance

The core of our unique, specialist work has continued to be the offer of 1-2-1 tailored support, advice and guidance on a range of issues relating to spina bifida, hydrocephalus and associated conditions.

Number of people supported 1-2-1

1[,] 273 little star families requested support.

Shine partnered with experts from other fields, such as the ADHD Foundation and the Pressure Ulcer Prevention and Intervention Service (PUPIS), to deliver online training sessions on specific topics, related to some aspects of spina bifida and / or hydrocephalus and associated conditions.

What’s NEW?

Touchpoints

touchpoints were delivered

282

Shine’s touchpoints programme offers a support call to all parents of 0–2-year-olds in England and Northern Ireland, providing access to our specialist occupational therapist and physiotherapist, facilitating a better understanding of the conditions and how various therapies can make a difference, and preparing parents for meetings with NHS services.

Newsletters

Very rarely do our teams know what questions are going to be asked, but whatever they may be, our service staff work diligently to find answers and provide support and solutions, referring to external organisations where more appropriate.

2,375 families received the newsletters

As part of the plans in our previous Corporate Plan 2017 – 2022, our Little Stars team created a series of

8 Shine Trustees’ Annual Report and Financial Statements

age and condition-specific newsletters to aid parents of children with spina bifida and/or hydrocephalus to better understand key milestones in their child’s first ten years of life, providing information, guidance and prompts for planning next steps.

Newsletters have now been created to address the questions and needs of our 11- and 12-year-old members and will launch in 2023/24.

Clinic attendance

Regular attendance at 8 CLINICS

Contact with 6 more to establish referral pathways and opportunities for attendance

NHS clinics have slowly, but surely, resumed over the past 12 months. Shine’s presence at these clinics has offered additional support to the NHS staff organising and running the clinics but, more importantly, ensured that our teams are on hand to listen, answer questions and put medical jargon into plain language as well as offering support for other things such as benefits, education, housing and socialisation.

Shall ‘wee’ talk?

Shall wee talk 14 online sessions ran

A fun play on words for a serious issue that affects so many lives, “Shall ‘wee’ talk” brings together groups of children online to talk about continence in a safe and trusted environment, sharing their stories, talking about their challenges and, ultimately, realising that they are not alone.

Educational support

219 enquiries for educational support for 0-12 years 68% of the total education enquiries

Demand for advice and guidance on education and transition has been as great as ever.

Shine’s Trustees, therefore, agreed to invest in a parttime Education Officer to lead on the development and delivery of Shine’s education service for spina bifida and hydrocephalus, and be a central point of

contact for other Shine staff for complex education referrals, as well as continuing the existing education offer of presentations and awareness raising to support schools in tailoring approaches to teaching and extra-curricular activities to meet the needs, and improve outcomes, for individual children and their families.

What’s NEXT?

• Widening the reach and sustainability of our “Shall ‘wee’ Talk” continence support programme

• A sibling support programme

• Greater engagement with NHS clinics

• A review of our education programme and resources, including ‘education touchpoints’

• A review of our benefits service

• Upskilling parent/carers in understanding and managing behaviour and executive function in children with hydrocephalus and spina bifida

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Strategic Goal 2

Empowering young people with spina bifida and/or hydrocephalus through knowledge, confidence and skills to manage their conditions and thrive.

A programme that focuses on our teenage members has been long overdue, especially as we know that our teenage members are one of the hardest to reach groups, and difficult to keep engaged as there are so many other things happening in their lives – transition from and to school; transition from child to adult services; transition from education to employment or other activities; changes in health and well-being; greater independence; friendships.

All of these can also create challenges, and it is important to know that Shine is here to help.

Teen session really good – great to have an outside speaker to offer something different.”

What’s NEW?

As a start to this work, in the past 12 months, the Shine teams have provided:

1-2-1 support

254 teens aged 13-17 were supported through 1-2-1 support, with 625 enquiries in total (an average of 2.5 enquiries each).

Tailored to the questions that our teenage members, and parents/carers ask, this service answers a huge variety of questions and provides advice on changes in health, better continence management, building confidence, transitions between schools, and from school to further studies and employment. Our teams have also linked with young people in NHS clinics across the country.

Online teen groups

108 teenagers engaged in 46 online sessions. The teams across England, Wales and Northern Ireland had a fantastic response to our shout out for our teenagers to join our closed zoom sessions, which are now running regularly.

WhatsApp groups and online zooms for parent/carers

Parents/carers need support too. The teams introduced two new ways of providing this, through a series of WhatsApp groups and online sessions. Proven to be very popular, parents and carers have had access to a network of expert staff and peer support to aid in their day-to-day lives, to address the challenges and frustrations, but also to share successes and good news.

Shine reached out to us and it was like a weight lifted from my shoulders!

My daughter had never met anyone like her before and since being introduced to a social group on zoom she doesn’t feel so alone!! She looks forward to her meetings and has lots of fun with teenagers just like her”

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Zoom sessions are a great place to meet people like me and Chris is such a funny guy!... Thank you for introducing me to the group. I don’t feel so alone. It’s great to have new friends”

Thanks to funding from the Community Fund England, and additional investment approved by our Trustees, Shine has employed a Youth Voice and Engagement Officer to champion this work, engaging the young people in shaping and directing the services Shine offers, with the content and delivery methods to meet their needs.

What’s NEXT?

With involvement, advice and guidance from our teen members, we will:

• Develop the teen programme and activities

• Produce teen-appropriate information, resources and webpages

• Develop content for the 13 – 18-year-old newsletters

• Introduce a focus on transition from child to adult services

• Establish a peer-to-peer buddy support programme

• Put an annual programme of online and face to face events in place

• Work with external agencies to ‘tap into’ existing education and career programmes

• Support parents to develop their confidence and knowledge to empower their children through teenage years

• Offer emotional support

It is nice to know that other people are going through a similar thing to me.”

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Strategic goal 3

Adults of all ages with spina bifida and/or hydrocephalus have the choices and opportunities to live healthy and independent lives

Whilst health, well-being, lifestyle, finances and

career support / employment feature as the top five primary issues that our adult members are likely to ask for advice, support and guidance on, Shine’s work and intervention

with our adult members is

wide-ranging and differs from person to person.

Some have extremely complex

health and care needs and cannot live independently. They require 24-hour care, which is sometimes provided through residential

care, but often by their parents who are also their carers. Others live highly successful and very independent lives, are in employment, are in relationships, have families and wide circles of friends, and pursue the interests and activities they wish to.

There are others who live independently but whose choices are limited due to restraints on their health, finances, access to appropriate housing, equipment, and lack of access to appropriate health and other statutory services.

All need access to the right health and care services

at the right time, yet NHS resources are limited and there are very few specialist services for adults living with the conditions.

What’s CONTINUED?

3,000 adult members received 1-2-1 support

1-2-1 support

As for our babies, children and young people, our network of Support and Development Workers across England, Wales and Northern Ireland provide tailored support, advice and guidance on a range of issues for our adult members.

Virtual health hubs

There are very few NHS adult clinics across England and Wales. Shine’s virtual health hubs offer adult members the opportunity to join members of our health team for a 1-2-1 consultation and advice on health and well-being, either holistically or for a particular concern. Our members are supported to develop action plans to address their health issues and can request a supporting letter for their GP or other health professional to help access the NHS services they need.

Shine40Plus

ACTIVE MEMBERS 660

With an active 660 members on our closed Facebook group, Shine40Plus has continued to offer peer support, opportunities to share stories, ask questions and chat again this year to people living with spina bifida and hydrocephalus from all over England, Wales

The resources you have given me for work, are beyond fantastic! They have been so helpful, and I have an occupational health appointment booked in soon too, which I really really appreciate. Thank you millions, for all your help, I can’t explain how much I appreciate it!”

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and Northern Ireland. It is moderated by volunteers and is open for business 365 days a year.

Promoting our specialist information and resources

Shine has produced a wealth of information and helpful resources which can be used for planning and prompts to better manage conditions, prepare for appointments or help others, such as employers, understand the best way they can offer support.

These specialist resources sometimes get lost or

forgotten yet continue to serve a useful purpose. Shine used Spina Bifida Awareness Week and Hydrocephalus Awareness Week 2022/23 as an opportunity to remind our members, their families and professionals what we have available and how to access them.

Online clubs

From monthly book clubs to craft sessions for Easter, from coffee and chats to quiz nights, Shine’s programme of online clubs has become a regular feature in our over 18s’ calendar.

People said…

“I’m really enjoying reading everyone’s stories. Thank you all for sharing” “Thanks for a very informative session”

As well as setting up a support group and responding to individual queries, we have forged links with the Association of British Neurologists NPH Special Interest Group.

What’s NEW?

Staying Well – newsletters and online sessions

The cost-of-living crisis has affected people in different ways, creating demand for a variety of information and support to meet individuals’ and families’ personal situations. In 2022, the Service team developed ‘Staying Well’ - a programme of regular newsletters, social media posts and associated online sessions to equip our members with tips and ideas for keeping warm, eating well, managing money and physical and mental well-being.

We also have an on-going presence at the Adult Hydrocephalus Clinic in Nottingham. Both provide Shine with opportunities to further develop our focus on NPH in providing specialist insight to aid people in understanding their diagnosis, treatment, the implications of having hydrocephalus and the care they might need from their 9,456 support networks.

Staying Well Newsletters sent

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October
2022
9,370
January
2023
9,456
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Managing mental wellbeing and anxiety

Increasingly, our adult members have sought advice on how to keep well, manage their anxiety, come to terms with a diagnosis, manage fatigue or how to ask for help. A series of online sessions have been developed and delivered with talks from external experts (e.g. solicitors’ firms; sports development officers; consultants; nurses) and our specialist Health team. Themes and content for each session were driven and shaped by our members.

A focus on Normal Pressure Hydrocephalus (NPH)

MEMBERS 406 WITH NPH

Shine has seen an upsurge in requests for information and support for adults with NPH, and their carers.

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What our members think of us:

Regular reminders

Modelled on the success of the series of the Little Stars newsletters, the Health team developed a suite of information sheets for different ages and different stages of life for our adult members.

Filled with useful information and advice on well-being and preventative approaches to staying healthy, these will be launched in 2023/24.

• “The knowledge that I can turn to them for advice and support on issues that are important to me”

• “Very friendly and knowledgeable staff who are always willing to listen and help”

• “Shine ‘has given me more confidence and courage to achieve some things I might not have done before”

• “I feel I learn a lot more about my condition on our ZOOM get together and understanding more about others who are dealing with the same condition”

• “I have my area support worker who is available to me if things are getting tough”

“It’s comforting to know there’s a charity there, that offers support should I need it”

Without you it would be an even scarier place than it is”

What’s NEXT?

A continued focus on health and well-being through:

• The publication of Shine’s ‘Spina Bifida in Adulthood’ book

• Collaboration with Chelsea and Westminster clinic to support increased adult clinic provision in England

• Increased links to health professionals

• Resources and online support to prepare for medical appointments and hospital admission

• Developing an NPH-specific project

• Setting up a tethered cord support group

• Newsletter series

Addressing other issues through:

• Support, information and updated resources on preparing for independent living / accessing suitable housing

• Reviewing and strengthening Shine’s benefit advisory service through more proactive information and resources

• Developing tools for financial budgeting for members and parent/carers

• Identifying and linking with specialist employment charities for improved access to work opportunities

14 Shine Trustees’ Annual Report and Financial Statements

I have really enjoyed the sessions with cooking and talking to other kids with similar disabilities to me. I’ve found it helpful to learn more about it, and ways in which other people deal with it and I’ve definitely found some helpful tips. It’s helped me to become more independent, because the other girls have motivated me to do more for myself” ‘ Shall WeeTalk’ member

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Strategic goal 4

A connected community

Shine provides diverse and inclusive opportunities for participation in our memberled approaches to coproducing the very services and solutions that will empower and enable them.

Shine develops accessible, best quality information through our website, literature, and digital communications and promotes peer support networks, online support and social groups and programme of events available to members to help inform and connect with them. Shine promotes volunteering opportunities for Shine’s members and supporters

That feeling of knowing you are not alone is the best thing that Shine have done for me. Thank you for my Shine family’

All, however, offer experience and insight into ageing, which has aided Shine in further developing our expertise and understanding of the impact of Spina Bifida and/or Hydrocephalus on health, care, lifestyle, employment, friendships, finances and other life opportunities as people get older.

Our adult members have shared this information willingly, knowing others can learn from their experiences. Their stories can inform and influence, as well as providing insight for Shine’s research and resources to encourage preventative approaches to health and well-being management.

What’s CONTINUED?

Awareness weeks

An important part of our plans, Spina Bifida Awareness Week and Hydrocephalus Awareness Week provides us with opportunities to work with our members to raise awareness and share stories and experiences with the wider world – the aim being to

educate the general public and professionals about the conditions, and attract new members to Shine for support and advice when they need it.

Digital support

WHATSAPP 35 GROUPS

A new way of communicating and linking our members, we have established regional WhatsApp groups for our Little Stars parents/carers, for parent/carers of children and young people, and adult members to connect, ask questions and share information, as well as separate groups for our adult members.

Online events

ONLINE 400 EVENTS RAN

Shine’s ability to reach and engage many more members has opened up with the world of online events. People are more familiar and more

comfortable with participating in online information sessions, presentations and coffee and chat groups than ever before. Where possible, we have aided with advice and guidance to get our members ‘online’.

Face to face events

95 sessions total across the whole of Shine, with 413 individuals attending these sessions

The teams have resumed some of the regular faceto-face get-togethers from pre-pandemic days, with our Shine Social London, specifically for our adult members, being one of the most popular. Alongside this, we have attended conferences and provided presentations to raise greater awareness of who Shine is, and what we do.

Having somebody to listen is great”

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Volunteering

videos and stories to share their experiences.

REGISTERED 69 VOLUNTEERS who recorded 2,134 volunteer hours in the year

Our Shine volunteers have remained as committed as always, in a wide variety of roles including administration and research; shop assistants; online Facebook moderators; fundraisers, focus group and event support and Trustees. Shine’s lead member of staff for volunteering has provided induction, regular training and supervision to ensure volunteers are gaining skills, experience and enjoyment from the time they are giving us.

What’s NEW?

New member calls

Built on the legacy of the well-being calls that we introduced during the Covid-19 pandemic, the teams have introduced calls to newly registered parent/ carers of our Little Stars and Teenage members, and our adult members, once they have registered. The calls are a quick check-in to say ‘hello’ and ask whether there are any immediate issues that need addressing. They also act as a reminder that Shine is here, whenever we are needed.

Hydrocephalus survey

In 2022, we surveyed our members with hydrocephalus and those with NPH to gain further insight into their challenges, to help shape our services.

293 individuals responded and highlighted several concerns which Shine addressed through our online support groups, reviewing and updating our information resources and putting a plan in place to deliver an NPH project for individuals and carers.

Co-production

Shine developed a greater focus on member engagement to shape and inform our services.

Members proactively signed up to online focus groups to contribute to developing resources, identifying themes for online sessions, and producing

Five youth members helped us in recruiting our Youth Voice and Engagement Officer, first taking part in training and development, and then being involved in the interviews to find the right person for the role.

Improved accessibility

Shine invested in two new services to facilitate access to the support and information we provide:

• An accessibility app, which provides a range of options to read the website – such as different languages and dyslexiafriendly formats - has been added to our website

• A subscription to Languageline gives access to translation and interpreting services, for speakers whose first language is not English

Northern Ireland’s Community Fund project steering group

Aimed at improving engagement, Shine NI set up a steering group to inform the development and delivery of this project, and provide a forum for discussion to ensure the project is reaching all Shine NI members, and meeting their needs through sharing experiences, identifying and promoting good practice and ideas, identifying gaps or challenges in statutory services and support in NI, and helping Shine NI to find solutions and receive first-hand advice from a crosssection of members to ensure that the project is accessible to and suitable for all our members.

What’s NEXT?

• Review and improve our membership offer

• Scope Shine’s services to meet demands of our growing membership base

• A new social media strategy for wider engagement

• Develop a plan to increase our reach across diverse communities

• Make further improvements to our website for enhanced accessibility to information and resources

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Strategic goal 5

Preventing Spina Bifida and Anencephaly

Fortification of flour with folic acid.

For over 30 years, Shine has campaigned for mandatory fortification of flour with folic acid as it has been proven to reduce the chances of pregnancies being affected by neural tube defects.

In September 2021, we were delighted when the UK Government announced its intention to introduce folic acid into nonwholemeal flour. However, some two years later, this has yet to come to fruition.

What’s CONTINUED?

• Responding to Government consultations, including the Bread and Flour Regulations 1998 and the Bread and Flour Regulations (Northern Ireland) 1998, which considered levels of folic acid and timescales for implementation.

• Collaborating with key partners in this campaign (e.g. Royal College of Obstetricians and Gynecologists; British Dietetic Association; Spina Bifida Hydrocephalus Scotland)

• MPs and representatives in the House of Lords, who support fortification, regularly tabled oral and written questions in Parliament to keep fortification on the Government’s agenda

• Supported the international call for the World Health Organisation to adopt a global resolution on mandatory fortification with folic acid and other micronutrients. This was passed in May 2023.

At the time of publication of our annual report 2022/23, there has been no further update from the UK government on progress.

What’s NEXT?

Shine will continue its quest for the mandatory addition of folic acid to flour across the UK.

Folic Acid Supplementation

Supplementation sits firmly alongside mandatory fortification. Shine’s Folic for Life campaign, part sponsored by Vitabiotics, promotes the importance of supplements which contain folic acid, in preparing for pregnancy as they are the most assured way of increasing folic acid in the body.

What’s CONTINUED?

• Advice and information to individuals who came to us for support

• A social media campaign on Instagram to promote our messages as widely as possible

• Shine logo featured on Vitabiotics products which are widely available in major retailers and online

What’s NEXT?

• Secure resources to increase impact of our Folic for Life work

• Engage with Public Health bodies to secure commitment for a sustainable public health campaign on the importance of folic acid supplementation

18 Shine Trustees’ Annual Report and Financial Statements

Strategic goal 6

Changing experiences of pregnancies affected by neural tube defects

Hundreds of pregnancies are affected by neural tube defects in the UK each year, yet there is very little statutory provision for support in preparing for a new pregnancy if a previous one has been affected by spina bifida or anencephaly. Moreover, our adult members highlight the lack of discussion, professional support and information for disabled people who may want to become parents.

Parents-to-be who have a diagnosis of a pregnancy affected by a neural tube defect also tell us that there is not enough information available to them at the point of diagnosis, and little understanding of the choices that are open to them.

What’s CONTINUED?

INDIVIDUALS HAD TAILORED PREGNANCY 56 ADVICE AND SUPPORT

• 1-2-1 support and advice to parents-to-be and those planning a pregnancy

• Support to 810 members, registered via our closed Facebook group, who have lost a baby to anencephaly

• Working closely with NHS commissioning and fetal surgery teams to enhance and promote the option for pre-natal surgery

What’s NEW?

• Formally launched our pregnancy advice service to provide proactive, confidential and on-going support to those who need us

• Follow-up survey on antenatal experiences, in partnership with University College Hospital London’s Fetal Medicine Team

• Improved referral pathways to other organisations

• Parents of under 13s surveyed to capture changes in experience since the introduction of NHS-commissioned fetal surgery service

• The launch of a CPD-accredited antenatal e-learning module for professionals

What’s NEXT?

• Continue with 1-2-1 advice and support

• Identify and develop new resources

• Improved services for those who have lost a baby to anencephaly

• On-going promotion of the CPD-accredited training

• More professional awareness of the steps that can be taken to reduce pregnancies being affected by NTDs

• Continued work with NHS Commissioning and fetal surgery teams

• Publish results of the updated antenatal survey

I’m a doctor so knew a lot of the medical information already, but the Shine information is really helpful from a parenting perspective. My husband is non-medical and found the Shine information very easy to understand.

Trustees’ Annual Report and Financial Statements Shine 19

Strategic goal 7

Spina bifida is from birth, and there are so many transitional phases in a person’s life. To have a charity to support those transitions is key – particularly once they get older and are left to their own devices. Shine are a lifelong focus point that people can come back to.” (Specialist Nurse for Pressure Ulcer Prevention and Intervention Service)

Transforming attitudes and improving access to health and care services through engagement, partnerships, research and campaigning

An important area of our work, our strategic partnerships, connections and campaign plans, that took a back seat during the Covid-19 years, slowly resumed, with new opportunities for collaboration with others being added to our list for further discussion and development. All with the aim of seeing significant step changes in access to, and quality provision of, statutory services for all Shine members.

• A presence at clinics across England and Northern Ireland

• Shine’s Legal Service, with existing partners Irwin Mitchell and Enable Law, and new firm, Davies and Partners

• Presentations to professional conferences to raise awareness and promote our professional membership

• Encouraging our members to join research programmes so that their views and experiences are fully represented

• Proactive support and promotion of campaigns run by other charities

What’s CONTINUED?

• Our Shine Health Direct service for members, in partnership with Bullen

OVER 1,000 MEMBERS HAVE BENEFITTED FROM THE SERVICE IN 2022/23

NEW MEMBERS 235 IN THE YEAR

20 Shine Trustees’ Annual Report and Financial Statements

Working with Shine, who have that wider knowledge of the conditions, means that we

can help people reach the full extent of their potential.

For example, working with Shine meant we could support a young person to move from total reliance on continence pads to using catheters and bowel washouts.

She’s now about to go all day in her normal clothes and underwear and she’s thriving - you can see the change in her confidence and independence. Shine knew that this was possible and had the time and understanding to support her to get there.

It’s changed her life – now she can think about independent living when she’s older.” (Community Paediatric Nurse)

What’s NEW?

• Launch of a free professional membership service, which gives access to expert information, guidance and research

206 new professional members signed up in 2022-23 (548 in total as at 31st March 2023)

What’s NEXT?

• Support Chelsea and Westminster to publish research into cognitive effects of hydrocephalus

• Greater focus on campaigning for improved:

  • Access to statutory health and social care services

  • Continence care

• Research to gain greater insight into the conditions, particularly Hydrocephalus

• Draft research proposal to gather evidence to underpin our work in influencing improvements to statutory services

Development opportunities for professionals – CPD-accredited e-learning modules

Shine launched our suite of e-learning modules, that are accredited for continuous professional development, with an aim of reaching and upskilling more health, care, education, and other professionals to better understand the conditions, and improving support through prevention and changes in practice.

The modules are:

• • Neural Tube Defects

• Spina Bifida

• • Hydrocephalus – for professionals • Occult Spinal working in antenatal Dysraphisms and settings Spina Bifida Occulta

Coming this year: Accredited professional training on Normal Pressure Hydrocephalus (NPH)

• Information and sensitive support at point of diagnosis

• A programme of support for people awaiting diagnosis, or having had a diagnosis, of Normal Pressure Hydrocephalus (NPH)

• Further engagement with professionals

• Stronger partnerships and greater influence with national networks

For me, this is where Shine come in.

By working with professionals and parents they offer expert advice in continence, mobility and potential – so professionals have the expert knowledge to perform their statutory duties correctly.” (Occupational Therapist, Cardiff)

Trustees’ Annual Report and Financial Statements Shine 21

Our international work

IF (International Federation of Spina Bifida and Hydrocephalus)

Shine is a member of the International Federation of Spina Bifida and Hydrocephalus (IF) and has contributed to its work on a call for global fortification through membership of its advocacy group and presentations at online conferences.

Spina Bifida Hydrocephalus Scotland and Spina Bifida Hydrocephalus Ireland

We have continued links with our colleagues in Scotland and Ireland, sharing information, and linking to support individuals and families who move across borders.

Festus Fajemilo Foundation (FFF) in Nigeria

Since 2015, Shine has worked closely with FFF to secure funding to deliver a continence management programme for FFF members in different parts of Nigeria, and in 2022/23, the Welsh Government’s Wales Africa Hub provided funding to re-establish the project after Covid-19 had disrupted so much.

Over the past 12 months, the project has:

• Supported 155 babies, children and young adults, • Cascaded continence care knowledge to an and their families, with continence care additional 50 healthcare workers

• Re-established clinics and support for families after the pandemic

• Re-established an FFF clinic at their offices in Lagos

• Expanded our project from 3 to 6 hospital facilities across Nigeria

• Secured supplies of continence care equipment, facilitating access to these for nurses and families

• Secured supplies of oxybutynin, a medicine essential in treatment of the neuropathic bladder

• Introduced data collection processes across all clinics to measure successes and outcomes.

• Trained 60 nurses

What’s NEXT?

We were unsuccessful in our bid for further funding from Wales Africa but are maintaining activity on the project with support from the hospital facilities, and the FFF clinic. We are seeking longer-term funding to sustain the project indefinitely.

22 Shine Trustees’ Annual Report and Financial Statements

The Future

We are just at the start of delivering our current Corporate Plan and have some very exciting plans, large research projects and other pieces of work, which should see a ‘step change’ in the breadth and ways in which we are able to engage and reach more and more people whose lives have been affected by spina bifida and hydrocephalus, and associated conditions. As importantly, we should see improvements in the

access to statutory services that our members currently have, or need, access to.

This will only happen if we have robust, planned and funded approaches to developing and delivering our initiatives in consultation and partnership with our members of all ages to guide and inform us about the work we do, and ensuring we have the staff, trustees and volunteers to help us to do this.

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Trustees’ Annual Report and Financial Statements Shine 23
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Thank you

Throughout the year, there are thousands of individuals, companies, trusts and foundations contributing vital funding to support our work.

Without them, Shine would not be the charity that we are. The list is far too numerous to mention everyone but we want to say a HUGE thank you to everyone who has given so generously of their time and money to support the work we do.

We wish to take this opportunity to acknowledge just a few…

Companies

Integra Neurosciences – Codman Enable Law Vitabiotics Ltd Buckles Solicitors LLP Irwin Mitchell Belron Ltd Bullen Healthcare Field Fisher The Anderson Foundation Davies and Partners Royal Pigeon Racing Association Warrenpoint Fort

Supporters

Joe Saunders Toby Lamb Heather Hughes Thomas Williams Ash Robinson Greg Hammond Peter Collins Dave Hassett & Family Members Jane Moody Coops Troop Lynn Arthur Val Conway Kate Mercer Nicole Allerd

John Hale

Joe Smith Jacqueline Braid Terry Groves Alex Nash Pia Paleologo

Trusts and Foundations

Apax Foundation

Baron Davenport’s Charity BDB Pitmans Charitable Trust Charles S. French Charitable Trust Doris Field Charitable Trust

Eastern Counties Educational Trust Limited Garfield Weston Foundation J Reginald Corah Foundation Fund

Karen June Thornton Charitable Trust Oakdale Trust Provincial Grand Lodge of Warwickshire South Eastern Health & Social Care Trust

The Hospital Saturday Fund

Rothley Trust

The Alice Ellen Cooper Dean The Lawson Trust Charitable Foundation The Marsh Charitable Trust The Basil Brown Charitable Trust The National Lottery Community The Basil Death Trust Fund - England The Cecil Rosen Foundation The National Lottery Community The Chandris Foundation Fund - Northern Ireland The David Gibbons Foundation The National Lottery Community The D’Oyly Carte Charitable Trust Fund - Wales The Evelyn Trust The Peter Stebbings Memorial The Eveson Charitable Trust Charity The Frazer Trust The Pierrepont Trust The Ganzoni Charitable Trust The Privy Purse Charitable Trust The Gerald Palmer Eling Trust The Rozel Trust The Hamilton Wallace Trust The Sir James Roll Charitable Trust The Healey Family Charitable Trust The Valentine Charitable Trust

24 Shine Trustees’ Annual Report and Financial Statements

Income and expenditure 2022/23

Total Income

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Investments
Donations
Trading £16,580
£656,852 activities
£667,882
Income
£2,347,350
Other income Legacies
£476,224
Grants £130,424
£399,388
Total Expenditure
Enabling
babies and
children to
Empowering
Raising funds achieve their
young people
£377,623 potential
£156,240
£226,324
Transforming
Expenditure Trading attitudes
activities
£1,965,957 A connected £106,397
community £337,191
£433,458
Changing
experiences of
Preventing Spina pregnancies
Bifida £64,870 £44,084
Adults of all ages to have the
choices and opportunities £219,770
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Trustees’ Annual Report and Financial Statements Shine 25

Financial Review

The table below provides a five-year financial summary, showing that we continue to deliver a robust financial position, as we seek to ensure long-term sustainability.

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2022/23 2021/22 2020/21 2019/20 2018/19
£000 £000 £000 £000 £000
Total income 2,347 1,894 2,343 2,192 2,052
Net movement in funds 338 171 506 113 158
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When trustees approved the 2022/23 budget deficit of £157,775, the sale of Park Road, although planned, was not guaranteed. In the 2020/21 annual report, trustees confirmed that a review of continued occupancy of 42 Park Road had been conducted and it was concluded to be in the best interests of the charity to sell 42 Park Road and relocate to a smaller office with some staff working a hybrid model of home working and office days. The move to a smaller leasehold office at Minerva business park was completed during January 2022 and the sale of 42 Park Road was completed on the 1st of April 2022. The sale price exceeded the qualifying valuation, whilst legal, professional and move costs were below original estimates.

The annual running costs of the smaller leasehold office are projected to be lower than 42 Park Road, and trustees are confident that the net sale proceeds can be used to develop and future proof Shine’s services in a sustainable way.

Shine therefore reports an actual surplus of £337,980 (2021/22 £171,033 surplus), which consists of a £490,547 unrestricted surplus, a £132,817 designated deficit, and a £19,750 restricted deficit. This includes a £507,724 gain on sale of Park Road,

removing this one-off gain on sale, the underlying result would be a £169,744 deficit.

Total income for 2022/23 was £2,347,350 (2021/22 £1,894,487), with decreases in donations income being offset by the sale of 42 Park road and increases in trading, legacy and charitable trusts. Although donation income was below 2021/22, receipts remained higher than the five previous years. The largest element of our trading activity continues to be our virtual balloon races and during the year 4,929 supporters sponsored a balloon, many entering multiple races.

The National Lottery Community Fund and other charitable trusts continue to fund an important part of Shine’s work and a new 5-year grant from the Lottery was secured to fund services in Northern Ireland. This project “Shining Opportunities” commenced in June 2022. A 3-year lottery grant was also secured to fund young people’s services in England. This project, “Little Stars: the evolution” commenced in September 2022.

Legacies continue to be a major source of funding and whilst income remained low in comparison to recent years, we are incredibly grateful that people continue to remember us in their wills.

26 Shine Trustees’ Annual Report and Financial Statements

Expenditure

Total expenditure in the year was £1,965,957 (2021/22 £1,894,927). Of this, expenditure on charitable activities increased by £78,771 (6.3%) to £1,251,143, representing 63.7% of total expenditure (62.2% in 2021/22), whilst expenditure on raising funds increased by just £741 to £714,814. Although an increase in staff turnover was experienced, recruitment efforts have been successful and staffing levels in Shine’s services increased during the year with 27 full-time equivalent posts compared to 26 in 2021/22. A staff survey was completed in the year and a pay award was made, Shine is confident it remains an attractive organisation to work for and has active recruitment plans which aim to raise service staffing levels in 2023/24

The war in Ukraine had a detrimental impact on the value of our investments, and over the year we report a loss of £42,342 (gain in 2021/22 £8,692).

Under the accounting standard SORP (Statement of Recommended Practice) 2015 the full defined benefit pension deficit must be declared on the balance sheet. There was a 2022/23 actuarial loss of £1,071 (2021/22 gain of £162,781). A payment plan to eliminate this deficit remains in place and the charity remains confident that it will meet the required pension contributions from its projected income without significantly impacting on its planned level of charitable activity. Further pension details are shown in note 22 of the accounts.

Financial Reserves Policy

Reserves are maintained at a level that enables the charity to manage financial risk and sustain services. Trustees have set a minimum free reserve target of £850,000, held for the following purposes:

• Statutory obligations.

• Provide a 4-month commitment to our vulnerable members to wind up the affairs of the charity in an orderly fashion, in the advent that the trustees cease to be confident in Shine’s ability to continue.

• Offset the risks of an unexpected shortfall in income and an adverse movement in the defined benefit pension scheme liability.

• A working capital facility.

The free reserves position is reported to trustees as part of the monthly management accounts and quarterly forecasting. To set our free reserves target, trustees have sought to balance the needs of Shine’s members against financial risks. COVID19 and the war in Ukraine has demonstrated that our world is less certain than previously thought and our reserves target reflects this need for caution.

At the year-end Shine held free reserves of £1,215,980, being general unrestricted funds excluding designated funds. This represents 6.4 months of committed expenditure cover, which is above the reserves target and has been boosted by the one-off sum realised from the sale of Park Road.

To bring our reserves in line with our target the charity plans to utilise its reserves in a managed fashion investing in members’ futures and has recently appointed new positions of Deputy Health Manager, a National Programmes and Member Engagement Manager, an Education Officer and a Youth Officer. In total these changes will raise the service staff establishment to 31.5 FTE and compare to a pre COVID position of 27.1 FTE.

Restricted reserves must be applied to the specific purpose(s) intended by the donor so do not form part of the free reserves. Funds totalled £157,015 at the year end and are planned to be expended in 2023/24.

Designated funds have been established by trustees and are excluded from free reserves. They are as follows:

• A fund for 2 additional Support and Development Workers in the Southwest and East Anglia areas – who will enhance the support we can provide to our members in more rural, isolated areas. This first position has been made possible by the generosity of the late Florence Bartle who kindly chose to remember Shine in her will.

• A fund to support our work in Gloucestershire – based on a legacy we have received.

• A fund for a Deputy Health Manager.

• A fund for an Education Officer – who will offer training and support to our members to access support.

Trustees’ Annual Report and Financial Statements Shine 27

• A fund to support our specialist physiotherapy work.

• A fund to support research and development.

• A fund to support our digital development.

• A fund to support services in Northern Ireland. This has been made possible by the generosity of supporters in this home nation, and in particular CitiBank Belfast.

• A fund to represent Shine’s investment in fixed assets.

Investment Policy

Under the governing document, the charity can make any investment the trustees see fit. R. C. Brown Investment Management plc are Shine’s investment managers with the remit to manage the investments in line with the policy outlined below.

Investments are held as part of the long-term reserves of Shine. The aim is that they should maintain their value and generate income for Shine.

The portfolio must only be invested in assets with a low risk profile. This will include utilisation of pooled funds, which provide diversification of assets, and ensures that the risk of losing a single holding is minimised.

• Investments may be held in a range of asset classes, including equities, corporate bonds, and gilts.

• There will be no direct investment in ‘alternative’ investments such as hedge funds or derivatives.

• There will be no direct investment in overseas equities. Any such investment must be made through pooled funds managed in the UK.

The trustees have agreed that the funds should initially be invested in a broad, balanced portfolio.

The intention is to work towards ethical investments, with the advice of the investment managers, while being mindful of the charity’s obligations for responsible investment.

benchmark loss of 6.04 (ARC steady growth index).

Investments are held to support the reserves policy. During 2022/23 the charity invested £450,000 of the sale proceeds of 42 Park Road into the investment portfolio, RC Brown actively managing the timing of placements.

Risk Management and Internal Control

The Board of Trustees are responsible for the identification and management of the major risks facing the charity.

A Risk Register is maintained and shared annually with trustees (more frequently if a significant issue arises). Risk management at operational level is managed by the senior leadership team; major risks have been reviewed and systems established to manage these risks.

During 2022/23, the risk from COVID-19 diminished in how the charity supported its members and the risks to income levels. Therefore, the risk register currently covers five strategic areas.

~~1. Governance & strategy~~

~~2. Income generation~~

~~3. Services~~

~~4. Finance~~

5. External infuences, including infation and the war in Ukraine

During the year there remains 1 red retained risk, which is members’ access to statutory services, and Shine continues to support our members and families with information and guidance on their rights, and avenues to access the services they need.

Shine continues to make structural and strategic changes to the organisation to mitigate these and other risks.

During the year R. C. Brown Investment Management plc continued to manage the Shine portfolio, regrettably funds performed below their benchmark, recording an 8.92% loss during 2022/23 versus the

28 Shine Trustees’ Annual Report and Financial Statements

Going Concern and Statement of Public Benefit

Going Concern

The activities of the charity, its objectives, factors likely to affect its future development and the policies for managing its capital and financial risk are detailed in the Trustees’ Report. We have set out a review of Shine’s financial performance, the reserves position and principal risks and uncertainties in this report.

The budget for 2023/24 was prepared by senior leadership and approved by the trustees in March 2023. The expectation is that trading and donation income levels can be increased as we continue to invest in fundraising resources. Expenditure levels will be allowed to increase in line with the expansion in service provision, therefore a total deficit of £190,645 is budgeted which includes a restricted deficit of £58,274 as funds received in prior periods are expended and a deficit of £132,371 across unrestricted and designated funds.

We can do this because our reserves exceed the minimum level.

The budget and its assumptions are reviewed against two key financial measures:

• In-year cash flow

• Free reserve cover

Management accounts are prepared by senior leadership and issued monthly to trustees; the current financial position and financial outlook are reviewed at quarterly trustee meetings. Given the level of reserves and outlook, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future being at least twelve months from date of approval of these financial statements. Accordingly, they continue to adopt the going concern basis of accounting in preparing financial statements.

Statement of Public Benefit

The trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have regard to the Charity Commission’s general guidance on public benefit, ‘Charities and Public Benefit’.

Shine’s charitable objects are enshrined within its

memorandum and articles and as such trustees ensure that the charity’s activities are carried out for public benefit through its strategic goals. This report allows us to show how charitable funds are spent and the impact and benefits this has on the lives of people affected by spina bifida and/or hydrocephalus, and associated conditions.

Trustees’ Annual Report and Financial Statements Shine 29

Reference and Administration Details

~~Royal Patron~~

~~HRH The Duchess of Gloucester GVCO~~

Trustees

The trustees of Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE are the charity’s trustees under charity law and directors of the charitable company and throughout the report are collectively referred to as the trustees.

The trustees serving during the year were as follows:

Gregory Smith Joanne Williams (Chair) (Former Chair – resigned 7th March 2023) Lynn Aziza Dar Rebecca Bates (Hon. Treasurer) (Resigned due to ill health 5th February 2023) Patricia Adley (Passed away 14 May 2022) Surekha Kukadia Professor Roger Bayston Jenny Goy (Appointed 26th September 2022) Michael Brown (Vice Chair) Joe Waggott (Appointed 26th September 2022) Andrew Smart (Resigned 30th May 2023) Richard Oakley (Appointed 7th June 2023)

It is confirmed that none of the serving trustees had any beneficial interest in any contract with Shine in the year.

Remembering Patricia Adley.

Patricia Adley passed away on the 14 May 2022, at just 65 years of age. Since being appointed a trustee in 2015, Patricia brought a wealth of lived-in experience to the board, having been born with Spina Bifida.

Patricia was a retired solicitor, and therefore also brought a wealth of legal & professional skills, and jointly led safeguarding issues. She was immensely proud of Shine’s work, and she is sincerely missed by us all.

~~Senior Leadership Team~~

~~Chief Executive Kate Steele~~

~~Director of Services Gill Valentine Director of Finance Stephen Ellen~~

Objects

The charity’s objects are specifically restricted to the relief of persons who have spina bifida and/or hydrocephalus or allied or related disorders by providing care, welfare, treatment, education, and integration into society.

30 Shine Trustees’ Annual Report and Financial Statements

Principal Professional Advisers

Auditors Azets Audit Services Ruthlyn House 90 Lincoln Road Peterborough PE1 2SP Bankers The Co-operative Bank Plc PO Box 250 Skelmersdale WN8 6WT Insignis Cash Solutions St John’s Innovation Centre Cowley Road Cambridge CB4 0WS Solicitors Greenwoods GRM LLP Monkstone House City Road Peterborough PE1 1JE Investment Managers R.C. Brown Investment Management 1 The Square Temple Quay Bristol BS1 6DG HR Vero HR St James House Flaxley Road Kingston Park Peterborough PE2 9FT

Administrative Details

The full name of the charity is Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE. We are commonly known as SHINE.

The registered charity number is 249338 (England and Wales)

The company registration is 00877990

Registered Office: SHINE, Unit 4, Minerva Business Park, Peterborough, PE2 6FT

Telephone [phone] • Email [e-mail] • www.shinecharity.org.uk

Trustees’ Annual Report and Financial Statements Shine 31

Our Commitment to Quality Fundraising

Shine is registered with the Fundraising

Regulator and proud to commit to the Regulator’s Fundraising Promise.

We are committed to maintaining high standards of fundraising in line with the Code of Fundraising Practice:

• We will be clear, honest, and open.

• We will be respectful.

• We will be fair and reasonable.

• We will be accountable and responsible.

Our approach to fundraising consists of:

• marketing appeals to individuals who have already expressed an interest in Shine.

• running charitable events for which participants raise money.

• encouraging people to participate in other events to raise funds on our behalf.

• community fundraising; and

• soliciting donations from corporate partners, charitable trusts, and individual donors.

We also encourage people to remember us in their will with a gift or legacy.

We do not use third-party professional fundraising agencies.

Where people or organisations raise funds in aid of Shine, we request they follow our standards. Shine’s fundraising team provides tools and resources to enable supporters to deliver fun, safe, and successful fundraising activities. The trustees are of the view that during the year to 31 March 2023 we have been compliant with these standards, and we are not aware of any instances where those acting in aid of the charity have failed to comply.

To protect vulnerable people and other members of the public, Shine has a safeguarding policy, and our fundraising commitment is displayed on our website. We are careful to protect the private data of supporters and give clear options to stop being contacted by us. As part of our compliance with the code of fundraising practice, we ensure our approach to fundraising is not unreasonably intrusive or persistent and does not aim to solicit donations by pressuring potential supporters.

We take these steps to make sure people have a choice about whether to fundraise for Shine.

Shine and our members are incredibly grateful for the continued dedication and support of our fundraisers. From everyone at Shine, thank you for your ongoing generosity.

32 Shine Trustees’ Annual Report and Financial Statements

Structure, Governance and Management

Structure

Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE (Shine) is a company limited by guarantee registered in England and Wales (Registration No. 00877990) formed in 1966. Shine is registered as a charity with the Charity Commission for England and Wales (Registration No. 249338).

The charity owns the entire share capital of Shine (Trading) Limited, registered in England and Wales (No. 01031004). The consolidated accounts include Shine (Trading) Limited (see note 9). The principal activity of the company is to raise funds for the charity.

Governance

Shine is governed by Articles of Association, which

were amended in 2018.

Organisational purpose

Shine has a clear, sustainable corporate strategy for 2022 to 2027 consistent with the charity’s purpose and an evaluation and monitoring framework to monitor impact and measure outputs.

Shine consults with a wide range of stakeholder groups to determine the priorities for the charity.

Leadership

The ultimate responsibility for the governance of the charity and its subsidiary is entrusted to the trustee board.

Board Integrity

Appointment of trustees

New Articles of Association were adopted by special resolution in 2018 specifying that anyone willing to act as a trustee, and permitted by law to do so, may be appointed by the board of trustees.

A trustee must be a natural person aged 16 years or older, the minimum number of trustees is 3 and the maximum is 16. Trustees are appointed for a term of 3 years; trustees are eligible for reappointment up to two subsequent terms (each of 3 years). No trustee can serve for more than 9 consecutive years unless the trustees consider it is in the best interests of the charity that a particular trustee should continue to serve. Professor Roger Bayston continues to serve as a trustee on this basis.

undergo induction. They are fully appraised of the full range of Shine’s services, projects and campaigns and provided with relevant background literature. They receive awareness training, if required, on spina bifida and hydrocephalus. Depending on their specific skills and areas of expertise they will be put in touch with relevant staff.

Trustees are briefed on their legal obligations under charity and company law, the Articles of Association and the Board’s decision-making process. They are also informed about Shine’s Corporate Plan, key risks, recent financial performance, and prospects for the charity.

Trustees do not receive any renumeration or financial benefit for acting as trustees of shine, any expenses paid are disclosed in note 12 of the financial statements.

Trustee induction and training

In 2022 we appointed two new trustees, Jenny Goy and Joe Waggott who bring professional, commercial and lived experience. A third new trustee Richard Oakley was appointed in June 2023. New trustees

Decision making, risk and control.

The Board of Trustees is the governing body with overall legal responsibility for the charity. The Board sets the strategic direction for Shine. It meets at least four times a year, either in person or virtually.

Trustees’ Annual Report and Financial Statements Shine 33

The minutes of meetings are made available to all trustees on a timely basis. The board regularly reviews operational plans, budgets, performance, and Shine’s main risks. The day-to-day management of the charity is delegated to the Chief Executive, who reports to the Board. The Chief Executive is assisted in the dayto-day management by the senior leadership team.

Senior Staff Remuneration Policy

The remuneration of senior staff is set by benchmarking with similar-sized charities, and the market rate required to attract the best people to the job.

Diversity and Inclusion

Shine has a transparent recruitment process, advertising widely and looking at how we can attract a diverse pool of candidates.

Safeguarding

A full review of our safeguarding policies and processes began in 2020/21 and will be reviewed in 2023/24 ensuring that we are continually improving our approaches to safeguarding, incorporating all updated legislation, and embracing current best practice to protect the welfare of our members, staff and volunteers.

An annual safeguarding plan is agreed by trustees. The plan is prepared by the Director of Services, who is Designated Safeguarding Lead for the charity, in conjunction with Joanne Williams and Jenny Goy, who are trustee leads for safeguarding.

Safeguarding training is provided for all staff, trustees, and volunteers. Incidents are reported, assessed, and enacted as appropriate with full consideration given to the requirement to report to the Charity Commission.

GDPR

Extensive work was undertaken to ensure Shine’s ongoing compliance with the General Data Protection Regulation (GDPR). We have a designated GDPR lead, and the data management action plan is reviewed by trustees annually.

Section 172 Statement

The trustees must act in accordance with a set of general duties. These duties are laid out in s172 of the UK Companies Act 2006 which is summarised as follows: A Director of a Company must act in the that they consider, in good faith, would be most likely to

promote the benefit of its members, and in doing so have regard to:

• The consequences of any decision in the long term

• The interests of the charity’s employees

• The need to foster the charity’s business relationship with suppliers, customers, and others

• The impact of the charity’s operations on the community and environment

• The desirability of the charity’s maintaining a reputation for high standards of business

• The need to act fairly between members of the charity.

The trustees believed they have completed their duties under s172.

Related Parties

The charity has partnerships with several local associations. These are independent charities for spina bifida and hydrocephalus. Partnerships are negotiated individually, which may cover a range of activities and services. The charity also works in partnership with many other bodies, voluntary, statutory, and international, in carrying out work to support service users, undertake research and disseminate information.

Volunteers

In 2022/23, Shine had 69 registered volunteers (53 2021/22) and recorded 2,134 volunteered hours (1,860 2021/22), to whom we remain eternally grateful. The volunteering roles included:

• Working in our charity shop

• Giving talks and representing Shine

• Acting as peer support

• Supporting our members to grow in confidence and address the challenges of living with the conditions.

• Advising on the development of resources

• Fulfilling the role of Shine ambassador

• Fundraising

• Supporting our local groups

During the year, two volunteer catch-up meetings were held online to keep our volunteers engaged, and the half-yearly volunteers’ newsletter continues to provide updates and opportunities for them to get involved.

34 Shine Trustees’ Annual Report and Financial Statements

Statement of trustees’ responsibilities

The trustees (who are also directors of Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE), are responsible for preparing the annual report and the financial statements in accordance with applicable law and United Kingdom Generally Accepted Accounting Practice.

Company law requires the directors to prepare financial statements for each financial year which give a true and fair view of the situation of the charitable group and of the net income or expenditure of the group for the year. In preparing these financial statements the directors are required to:

• select suitable accounting policies and then apply them consistently.

• observe the methods and principles in the Charities SORP

• make judgements and estimates that are reasonable and prudent.

• state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and

• prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in business.

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and the group and enable them to ensure that the financial statements comply with the Companies Act 2006.

They are also responsible for safeguarding the assets of the charity and the group and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Statement as to disclosure of information to auditors

As far as the trustees are aware, there is no relevant audit information of which the group’s auditors are unaware. Additionally, the trustees have taken all the necessary steps that they ought to have taken as trustees to make themselves aware of all relevant audit information and to establish that the group’s auditors are aware of that information.

The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website.

Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Appointment of Auditors

The continued appointment of Azets Audit Services Limited was confirmed by the Board of Trustees on the 6th December 2022.

This report has been prepared in accordance with the special provisions relating to small companies within Part 15 of the Companies Act 2006.

By order of the Board of Trustees

Joanne Williams Chair 5th September 2023

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SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT

TO THE TRUSTEES OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Opinion

We have audited the financial statements of Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE (the ‘charity’) and it's subsidiary for the year ended 31 March 2023 which comprise the Group Statement of Financial Activities, the Group and Parent Charitable Company Balance Sheets, the Group and Parent Charitable Company Cash Flow Statements and the notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

• give a true and fair view of the state of the Group and Parent Charitable Company affairs as at 31 March 2023 and of its incoming resources and application of resources, for the year then ended;

• have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and

• have been prepared in accordance with the requirements of the Companies Act 2006.

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor's responsibilities for the audit of the financial statements section of our report. We are independent of the Group and Parent Charitable Company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the Trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charity’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the Trustees with respect to going concern are described in the relevant sections of this report.

Other information

The other information comprises the information included in the annual report other than the financial statements and our auditor's report thereon. The Trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

36 Shine Trustees’ Annual Report and Financial Statements

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INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE TRUSTEES OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of our audit:

• the information given in the Trustees' report for the financial year for which the financial statements are prepared, which includes the directors' report prepared for the purposes of company law, is consistent with the financial statements; and

• the directors' report included within the Trustees' report has been prepared in accordance with applicable legal requirements.

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the Group and Parent Charitable Company and its environment obtained in the course of the audit, we have not identified material misstatements in the directors’ report included within the Trustees' report.

In the light of the knowledge and understanding of the company and its environment obtained in the course of the audit, we have not identified material misstatements in the Trustees' report. We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion:

• adequate accounting records have not been kept, or returns adequate for our audit have not been received from branches not visited by us; or

• the financial statements are not in agreement with the accounting records and returns; or

• certain disclosures of trustees' remuneration specified by law are not made; or

• we have not received all the information and explanations we require for our audit; or

• the Trustees were not entitled to prepare the financial statements in accordance with the small companies regime and take advantage of the small companies' exemptions in preparing the Trustees' report and from the requirement to prepare a strategic report.

Responsibilities of Trustees

As explained more fully in the statement of Trustees' responsibilities, the Trustees, who are also the directors of the charity for the purpose of company law, are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the Trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the Trustees are responsible for assessing the Group and Parent Charitable Company's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the Trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor's responsibilities for the audit of the financial statements

A further description of our responsibilities is available on the Financial Reporting Council’s website at: https:// www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor's report.

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INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE TRUSTEES OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Extent to which the audit was considered capable of detecting irregularities, including fraud

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above and on the Financial Reporting Council’s website, to detect material misstatements in respect of irregularities, including fraud.

We obtain and update our understanding of the entity, its activities, its control environment, and likely future developments, including in relation to the legal and regulatory framework applicable and how the entity is complying with that framework. Based on this understanding, we identify and assess the risks of material misstatement of the financial statements, whether due to fraud or error, design and perform audit procedures responsive to those risks, and obtain audit evidence that is sufficient and appropriate to provide a basis for our opinion. This includes consideration of the risk of acts by the entity that were contrary to applicable laws and regulations, including fraud.

In response to the risk of irregularities and non-compliance with laws and regulations, including fraud, we designed procedures which included:

• Enquiry of management and those charged with governance around actual and potential litigation and claims as well as actual, suspected and alleged fraud;

• Reviewing minutes of meetings of those charged with governance;

• Assessing the extent of compliance with the laws and regulations considered to have a direct material effect on the financial statements or the operations of the entity through enquiry and inspection;

• Reviewing financial statement disclosures and testing to supporting documentation to assess compliance with applicable laws and regulations;

• Performing audit work over the risk of management bias and override of controls, including testing of journal entries and other adjustments for appropriateness, evaluating the business rationale of significant transactions outside the normal course of business and reviewing accounting estimates for indicators of potential bias.

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk of not detecting a material misstatement resulting from fraud is higher than for one resulting from error, as fraud may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal control.

This report is made solely to the company’s members, as a body, in accordance with section 391 of the Companies Act 2014. Our audit work has been undertaken so that we might state to the company’s members those matters we are required to state to them in an auditor's report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the company and the company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Mr Mark Jackson FCA DChA (Senior Statutory Auditor) for and on behalf of Azets Audit Services

5 September 2023

.........................

Chartered Accountants Statutory Auditor

Ruthlyn House 90 Lincoln Road Peterborough Cambridgeshire United Kingdom PE1 2SP

38 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2023

Current financial year Unrestricted Designated Restricted funds funds funds 2023 2023 2023 Notes £ £ £ Income and endowments from: Donations and legacies 3 787,276 - 399,388 Other trading activities 4 667,882 - - Income from investments 5 16,580 - - Other income 6 507,724 (31,500) - Total income 1,979,462 (31,500) 399,388 Expenditure on: Raising funds 7 714,814 - - Charitable activities 8 711,303 105,502 434,338 Total resources expended 1,426,117 105,502 434,338 Net gains/(losses) on investments 13 (42,342) - - Net incoming/(outgoing) resources before transfers 511,003 (137,002) (34,950) Gross transfers between funds (19,385) 4,185 15,200 Net incoming/(outgoing) resources 491,618 (132,817) (19,750) Other recognised gains and losses Actuarial (loss)/gain on defined benefit pension schemes (1,071) - - Net movement in funds 490,547 (132,817) (19,750) Fund balances at 1 April 2022 725,433 619,546 176,765 Fund balances at 31 March 2023 1,215,980 486,729 157,015	Total 2023 £ 1,186,664 667,882 16,580 476,224 2,347,350 714,814 1,251,143 1,965,957 (42,342) 339,051 - 339,051 (1,071) 337,980 1,521,744 1,859,724	Total 2022 £ 1,230,433 655,838 8,216 -
		1,894,487
		715,555
		1,179,372
		1,894,927
		8,692
		8,252 -
		8,252 162,781
		171,033 1,350,711
		1,521,744

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

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STATEMENT OF FINANCIAL ACTIVITIES (CONTINUED) INCLUDING INCOME AND EXPENDITURE ACCOUNT

FOR THE YEAR ENDED 31 MARCH 2023

Prior financial year Unrestricted Designated Restricted funds funds funds 2022 2022 2022 Notes £ £ £ Income and endowments from: Donations and legacies 3 837,222 - 393,211 Other trading activities 4 655,838 - - Income from investments 5 8,216 - - Total income 1,501,276 - 393,211 Expenditure on: Raising funds 7 715,555 - - Charitable activities 8 649,363 121,205 408,804 Total resources expended 1,364,918 121,205 408,804 Net gains/(losses) on investments 13 8,692 - - Net incoming/(outgoing) resources before transfers 145,050 (121,205) (15,593) Gross transfers between funds (203,091) 169,047 34,044 Net incoming/(outgoing) resources (58,041) 47,842 18,451 Other recognised gains and losses Actuarial (loss)/gain on defined benefit pension schemes 162,781 - - Net movement in funds 104,740 47,842 18,451 Fund balances at 1 April 2021 620,693 571,704 158,314 Fund balances at 31 March 2022 725,433 619,546 176,765	Total 2022 £ 1,230,433 655,838 8,216
	1,894,487
	715,555
	1,179,372
	1,894,927
	8,692
	8,252 -
	8,252 162,781
	171,033 1,350,711
	1,521,744

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

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BALANCE SHEETS

AS AT 31 MARCH 2023

Notes Fixed assets Tangible assets 15 Investments 16 Current assets Debtors 18 Cash at bank and in hand Creditors: amounts falling due within one year 19 Net current assets Total assets less current liabilities Creditors: amounts falling due after more than one year 20 Net assets excluding pension liability Defined benefit pension liability 22 Net assets Income funds Restricted funds 23 Unrestricted funds-general Designated funds 24 General unrestricted funds	Group 2023 £ 1,214 765,371 766,585 245,200 1,059,901 1,305,101 (196,473) 1,108,628 1,875,213 - 1,875,213 (15,489) 1,859,724 157,015 486,729 1,215,980 1,702,709 1,859,724	Charity 2023 £ 1,214 765,374 766,588 229,146 1,028,214 1,257,360 (171,719) 1,085,641 1,852,229 - 1,852,229 (15,489) 1,836,740 157,015 486,729 1,192,996 1,679,725 1,836,740	Group 2022 £ 797,453 352,864 1,150,317 300,836 620,814 921,650 (200,494) 721,156 1,871,473 (313,688) 1,557,785 (36,041) 1,521,744 176,765 619,546 727,897 1,344,979 1,521,744	Charity 2022 £ 797,453 352,867 1,150,320 275,774 603,115 878,889 (180,720) 698,169 1,848,489 (313,688) 1,534,801 (36,041) 1,498,760 176,765 619,546 702,449 1,321,995 1,498,760

The financial statements were approved by the board of directors and authorised for issue on ......................... and are signed on its behalf by:

5th September 2023

..............................

Ms J Williams Trustee Company Registration No. 00877990

.............................. Mrs R Bates Trustee

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STATEMENT OF CASH FLOWS FOR THE YEAR ENDED 31 MARCH 2023

Notes Cash flows from operating activities Cash (absorbed by)/generated from operations 29 Investing activities Purchase of tangible fixed assets Proceeds on disposal of tangible fixed assets Purchase of investments Interest received Net cash generated from investing activities Financing activities Repayment of bank loans Net cash used in financing activities Net increase/(decrease) in cash and cash equivalents Cash and cash equivalents at beginning of year Cash and cash equivalents at end of year	2023 £ £ (61,517) - 1,271,240 (425,000) 16,580 862,820 (362,216) (362,216) 439,087 620,814 1,059,901	2022 £ £ 13,412 (2,877) - - 8,216 5,339 (48,537) (48,537) (29,786) 650,600 620,814

42 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2023

1 Accounting policies

Company information

Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE is a private company limited by guarantee incorporated in England and Wales. The registered office is Unit 4, The Forum, Minerva Business Park, Peterborough, Cambridgeshire, PE2 6FT, United Kingdom.

1.1 Accounting convention

The financial statements have been prepared in accordance with the charity's governing document, the Companies Act 2006 and “Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)” (as amended for accounting periods commencing from 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.

The financial statements have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a true and fair view. This departure has involved following the Statement of Recommended Practice for charities applying FRS 102 rather than the version of the Statement of Recommended Practice which is referred to in the Regulations but which has since been withdrawn.

The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.

The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.

The consolidated accounts incorporate the results of the charity and of its wholly owned subsidiary.

1.2 Going concern

At the time of approving the financial statements, the Trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objectives unless the funds have been designated for other purposes.

Designated funds comprise funds which have been set aside at the discretion of the Trustees for specific purposes. The purposes and uses of the designated funds are set out in the notes to the financial statements.

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.

Endowment funds are subject to specific conditions by donors that the capital must be maintained by the charity.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

1 Accounting policies

(Continued)

1.4 Incoming resources

Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.

Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.

Gifts donated for resale are included as income when they are sold. No amounts are included in the financial statements for services donated by volunteers.

Grant income is recognised according to the terms of each individual agreement.

All other income is dealt with on an accruals basis.

1.5 Resources expended

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.

Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.

Direct expenditure is analysed and charged to the department incurring the cost. Expenditure is included when incurred, the majority of costs being directly attributable to specific activities. Costs that can not be directly attributable to particular headings, are allocated to activities on a basis consistent with use of the resources. Premises and other overheads have been allocated on a head count basis.

Fundraising costs are those incurred in seeking voluntary contributions and do not include the costs of disseminating information in support of chartable activities.

Governance costs are those incurred in connection with the governance arrangements of the charity and compliance with constitutional and statutory requirements.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

1 Accounting policies

(Continued)

1.6 Tangible fixed assets

Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses. Assets over £1,000 in value are capitalised at cost.

Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the straight line basis at the following rates:

Land and buildings Buildings - 2%, land is not depreciated Fixtures and fittings 20% Equipment 20% Software and website 20 - 33%

The gain or loss arising on the disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is recognised in the statement of financial activities.

1.7 Impairment of fixed assets

At each reporting end date, the charity reviews the carrying amounts of its tangible and intangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any).

1.8 Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits repayable on demand and overdrafts. Deposits are repayable on demand if they are in practice available within 24 hours without a penalty. Liquid resources comprise assets held as a readily disposable store of value.

1.9 Financial instruments

Financial instruments are recognised when the charity becomes party to the contractual provisions of the instrument.

Financial assets are offset, with the net amounts presented in the accounts when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

• 1 Accounting policies

(Continued)

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the charity’s contractual obligations expire or are discharged or cancelled.

1.10 Provisions

Provisions are recognised when the charity has a legal or constructive present obligation as a result of a past event, it is probable that the charity will be required to settle that obligation and a reliable estimate can be made of the amount of the obligation.

The amount recognised as a provision is the best estimate of the consideration required to settle the present obligation at the reporting end date, taking into account the risks and uncertainties surrounding the obligation. Where the effect of the time value of money is material, the amount expected to be required to settle the obligation is recognised at present value. When a provision is measured at present value, the unwinding of the discount is recognised as a finance cost in net income/(expenditure) in the period in which it arises.

1.11 Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the company is demonstrably committed to terminate the employment of an employee.

1.12 Retirement benefits

For employees choosing to participate, the charity operates a defined contribution pension scheme providing benefits additional to those from the State. The assets are held in a separately administered scheme. The pensions cost charge represents contributions payable by the company to the pension scheme in respect of the year.

Previously, the charity were part of a separately administered defined benefit scheme and is still required to make contributions to fund a deficit in the scheme.

The cost of providing benefits under defined benefit plans is determined separately for each plan using the projected unit credit method, and is based on actuarial advice.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

1 Accounting policies

(Continued)

The net interest element is determined by multiplying the net defined benefit liability by the discount rate, taking into account any changes in the net defined benefit liability during the period as a result of contribution and benefit payments. The net interest is recognised in income/(expenditure) for the year.

Remeasurement changes comprise actuarial gains and losses, the effect of the asset ceiling and the return on the net defined benefit liability excluding amounts included in net interest. These are recognised immediately in other recognised gains and losses in the period in which they occur and are not reclassified to income/(expenditure) in subsequent periods.

The net defined benefit pension asset or liability in the balance sheet comprises the total for each plan of the present value of the defined benefit obligation (using a discount rate based on high quality corporate bonds), less the fair value of plan assets out of which the obligations are to be settled directly. Fair value is based on market price information, and in the case of quoted securities is the published bid price. The value of a net pension benefit asset is limited to the amount that may be recovered either through reduced contributions or agreed refunds from the scheme.

1.13 Leases

Rentals payable under operating leases, including any lease incentives received, are charged as an expense on a straight line basis over the term of the relevant lease.

2 Critical accounting estimates and judgements

In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.

3 Donations and legacies

Unrestricted Restricted funds funds 2023 2023 £ £ Donations and gifts 656,852 - Legacies receivable 130,424 - Grants receivable - 399,388 787,276 399,388 For the year ended 31 March 2022 837,222 393,211	Total 2023 £ 656,852 130,424 399,388 1,186,664	Total 2022 £ 723,959 113,717 392,757
		1,230,433
		1,230,433

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

3 Donations and legacies Unrestricted Restricted funds funds 2023 2023 £ £ Donations and gifts Individuals 328,621 - Trusts 161,607 - Corporate donors 128,455 - Local associations 3,341 - Support groups - - Health Trusts 34,828 - 656,852 - Grants receivable for core activities National Lottery Community fund Northern Ireland Bright Stars - 99,219 National Lottery Community fund Cymru Shining lights - 91,508 Early Intervention (Community lottery & others) - 184,348 National Lottery Community Fund - Here for you - - National Lottery Community Fund Northern Ireland - Here for you - - The Edward Gosling Foundation - Here for you - - Wales Council for Voluntary Action - - The Clare Milne Trust - - Vinci UK Foundation - - Margaret Giffen Charitable Trust - - The Eveson Trust - 12,500 The Lawson Trust - 5,000 Florence Shute Charitable Trust - 2,000 Other - 4,813 - 399,388	(Continued) Total Total 2023 2022 £ £ 328,621 339,481 161,607 134,308 128,455 212,625 3,341 2,966 - 454 34,828 34,125 656,852 723,959 99,219 64,589 91,508 91,307 184,348 132,511 - 10,000 - 10,000 - 5,000 - 11,621 - 16,888 - 6,975 - 30,000 12,500 - 5,000 - 2,000 - 4,813 13,866 399,388 392,757	(Continued) Total Total 2023 2022 £ £ 328,621 339,481 161,607 134,308 128,455 212,625 3,341 2,966 - 454 34,828 34,125 656,852 723,959 99,219 64,589 91,508 91,307 184,348 132,511 - 10,000 - 10,000 - 5,000 - 11,621 - 16,888 - 6,975 - 30,000 12,500 - 5,000 - 2,000 - 4,813 13,866 399,388 392,757
		723,959
		64,589 91,307 132,511 10,000 10,000 5,000 11,621 16,888 6,975 30,000 - - - 13,866
		392,757

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

4 Other trading activities

Income of trading subsidiary Donations sold through shops Rental income Publications and attendance fees	2023 £ 625,654 41,542 - 686 667,882	2022 £ 615,096 39,370 597 775
		655,838

5 Income from investments

Income from listed investments Interest receivable	2023 £ 12,694 3,886 16,580	2022 £ 6,144 2,072
		8,216

6 Other income

	**Unrestricted **	Unrestricted	Total	Total
	funds	funds
	general	designated
	2023	2023	2023	2022
	£	£	£	£
Net gain on disposal of tangible fixed assets	507,724	(31,500)	476,224	-

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

7 Raising funds

Fundraising and publicity Direct staff costs Other fundraising direct costs Support costs (see note 9) Fundraising and publicity Shine (Trading) Limited £ Trading costs Direct staff costs 175,645 Other direct operational costs 41,864 Support costs (see note 9) 79,005 Trading costs 296,514	Shops £ 22,195 4,397 14,085 40,677	2023 £ 250,879 44,563 82,181 377,623 Total 2023 £ 197,840 46,261 93,090 337,191 714,814	2022 £ 282,486 43,902 89,420
			415,808
			Total 2022 £ 153,891 34,766 111,090
			299,747
			715,555

50 Shine Trustees’ Annual Report and Financial Statements

	Total	2022					£	918,958	92,590	1,011,548		145,487		22,337	1,179,372			649,363	121,205	408,804	1,179,372
	Total	2023					£	939,632	130,768	1,070,400		154,596		26,147	1,251,143			711,303	105,502	434,338	1,251,143
	Transforming	attitudes					£	79,907	11,121	91,028		13,147		2,222	106,397
	Changing	experiences	of	pregnancies			£	33,109	4,608	37,717		5,447		920	44,084
	Preventing	Spina Bifida					£	48,720	6,780	55,500		8,016		1,354	64,870
	A connected	community					£	325,532	45,304	370,836		53,559		9,063	433,458
	Adults of all	ages to have	choices and	opportunities			£	165,053	22,970	188,023		27,156		4,591	219,770
	Empowering	young	people				£	117,339	16,330	133,669		19,305		3,266	156,240
Charitable activities	Enabling	babies and	children to	achieve	their	potential	£	Direct staff costs 169,972	Other direct costs 23,655	193,627	Share of support costs	(see note 9) 27,966	Share of governance	costs (see note 9) 4,731	226,324		Analysis by fund	Unrestricted funds - general	Unrestricted funds - designated	Restricted funds
8

Trustees’ Annual Report and Financial Statements Shine 51

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

9 Support and governance costs Fundraising and publicity Support costs £ Staff costs 25,730 IT costs 10,553 Premises costs 42,570 Other support costs 17,413 96,266	Trading costs Charitable activities £ £ 28,515 63,344 10,907 31,884 11,866 35,126 27,717 24,241 79,005 154,595	2023 £ 117,589 53,344 89,562 69,371 329,866	2022 £ 138,817 45,632 95,826 65,720
			345,995

Governance costs Staff costs Audit fees Other governance costs	2023 £ 12,726 12,000 1,421 26,147	2022 £ 13,647 8,690 -
		22,337

52 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

10 Commercial operations in trading subsidiary

The charity has one wholly owned trading subsidiary undertaking, Shine (Trading) Limited which sells balloons for virtual balloon races. The company gift aids virtually all its taxable profits to Shine. A summary of its trading results is shown below. Audited accounts have been filed with the Registrar of Companies.

	2023	2022
Shine (Trading) Ltd Profit & Loss Account	£	£
Turnover	625,654	615,096
Cost of sales	(184,526)	(168,496)
Gross profit	441,128	446,600
Administration expenses	(55,108)	(71,503)
Operating profit	386,020	375,097
Amount payable by gift aid to Shine	(386,020)	(375,097)
Profit on ordinary activities	-	-
	2023	2022
Shine (Trading) Ltd Balance Sheet	£	£
Current assets	170,277	135,348
Current liabilities	(147,290)	(112,361)
Net current assets	22,987	22,987
Total net assets	22,987	22,987
Aggregate share capital and reserves	22,987	22,987

Trustees’ Annual Report and Financial Statements Shine 53

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

11 Employees

Number of employees

The average monthly number of full time equivalent employees during the year was:

Services Fundraising and publicity Shops Administration Shine (Trading) Limited Employment costs Wages and salaries Redundancy costs Social security costs Other pension costs Other staff related benefits The number of employees whose annual remuneration was £60,000 or more were: £80,001 - £90,000 Pension contributions for higher paid employees were £6,560 (2022 - £6,560).	2023 Number 26 8 1 4 5 44 2023 £ 1,341,214 770 128,057 45,014 3,612 1,518,667 2023 Number 1	2022 Number 26 9 1 4 5
		45
		2022 £ 1,334,511 12,068 119,187 45,997 3,642
		1,515,405
		2022 Number 1

54 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

12 Trustees

None of the Trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.

In respect of attending meetings of committees, travel expenses amounting to £1,421 (2022 - £nil) have been reimbursed to 6 (2022 - no) members of the Board of Trustees.

At the year end, £131 (2022 - £nil) of the above expenses are unpaid and included as a creditor.

The accounts include a charge of £3,312 (2022 - £2,880) to provide the Trustees with indemnity insurance.

13 Net gains/(losses) on investments

Total 2023 £ Revaluation of investments (41,877) Gain/(loss) on sale of investments (465) (42,342)	Total 2022 £ (1,792) 10,484 8,692

14 Taxation

Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE is a registered charity. It only applies its funds in accordance with its charitable objectives, and is not trading with a view to making distributable profits, therefore corporation tax is not chargeable.

The trading subsidiary has gifted its profits to Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE under Gift Aid therefore no corporation tax is payable

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

15	Tangible fixed assets
		Land and	EquipmentFixtures and		Software	Total
		buildings		fittings	and website
	Group	£	£	£	£	£
	Cost
	At 1 April 2022	1,487,404	38,604	17,024	25,757	1,568,789
	Disposals	(1,487,404)	(26,774)	(17,024)	-	(1,531,202)
	At 31 March 2023	-	11,830	-	25,757	37,587
	Depreciation and impairment
	At 1 April 2022	692,388	36,167	17,024	25,757	771,336
	Depreciation charged in the year	-	1,223	-	-	1,223
	Eliminated in respect of disposals	(692,388)	(26,774)	(17,024)	-	(736,186)
	At 31 March 2023	-	10,616	-	25,757	36,373
	Carrying amount
	At 31 March 2023	-	1,214	-	-	1,214
	At 31 March 2022	795,016	2,437	-	-	797,453
		Land and	EquipmentFixtures and		Software	Total
		buildings		fittings	and website
	Charity	£	£	£	£	£
	Cost
	At 1 April 2022	1,487,404	35,965	17,024	18,728	1,559,121
	Disposals	(1,487,404)	(26,774)	(17,024)	-	(1,531,202)
	At 31 March 2023	-	9,191	-	18,728	27,919
	Depreciation and impairment
	At 1 April 2022	692,388	33,528	17,024	18,728	761,668
	Depreciation charged in the year	-	1,223	-	-	1,223
	Eliminated in respect of disposals	(692,388)	(26,774)	(17,024)	-	(736,186)
	At 31 March 2023	-	7,977	-	18,728	26,705
	Carrying amount
	At 31 March 2023	-	1,214	-	-	1,214
	At 31 March 2022	795,016	2,437	-	-	797,453

The charity owns a freehold interest in some land that is leased to another charity at a peppercorn rent and used in furtherance of the charitable objects. The lease ends in 2093 and no value is included in the accounts for the property.

56 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

16 Fixed asset investments Investments in subsidiaries Listed investments Movements in fixed asset investments Group and Charity Cost or valuation At 31 March 2022 Additions within portfolio Disposals within portfolio Valuation changes Cash held for investment At 31 March 2023 17 Financial instruments Carrying amount of financial assets Trade debtors Other debtors Accrued income Amounts due from subsidiary undertakings Bank and cash Measured at cost Fixed asset investments Measured at market value	Group 2023 £ - 765,371 765,371 Group 2023 £ 165,272 750 27,500 - 1,059,901 1,253,423 765,371 765,371	Charity 2023 £ 3 765,371 765,374 Charity 2023 £ 30,849 750 27,500 122,536 1,028,214 1,209,849 765,374 765,374	Group 2022 £ - 352,864 352,864 2023 £ 338,944 451,132 (24,531) (46,335) 719,210 32,241 751,451 Group 2022 £ 212,511 750 27,500 - 620,814 861,575 352,864 352,864	Charity 2022 £ 3 352,864 352,867 2022 £ 322,179 78,408 (75,233) 13,590 338,944 13,920 352,864 Charity 2022 £ 98,469 750 27,500 92,587 603,115 822,421 352,867 352,867

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

17 Financial instruments Carrying amount of financial liabilities Trade creditors Accruals and deferred income Other creditors Other taxation and social security Bank loans Measured at cost 18 Debtors Amounts falling due within one year: Trade debtors Amounts due from subsidiary undertakings Other debtors Prepayments and accrued income	Group 21,658 93,230 36,796 44,789 - 196,473 Group 2023 £ 165,272 - 750 79,178 245,200	Charity 21,462 85,428 35,885 28,944 - 171,719 Charity 2023 £ 30,849 122,536 750 75,011 229,146	Group Charity (Continued) 20,654 20,507 48,467 41,590 42,560 42,560 40,285 27,535 362,216 362,216 514,182 494,408 Group Charity 2022 2022 £ £ 212,511 98,469 - 92,587 750 750 87,575 83,968 300,836 275,774	Group Charity (Continued) 20,654 20,507 48,467 41,590 42,560 42,560 40,285 27,535 362,216 362,216 514,182 494,408 Group Charity 2022 2022 £ £ 212,511 98,469 - 92,587 750 750 87,575 83,968 300,836 275,774
				494,408
				Charity 2022 £ 98,469 92,587 750 83,968
				275,774

The net amount owed by the subsidiary includes amounts owing for gift aid receivable and payment for services provided.

19 Creditors: amounts falling due within one year Group Charity 2023 2023 Notes £ £ Loans and overdrafts 21 - - Other taxation and social security 44,789 28,944 Trade creditors 21,658 21,462 Other creditors 36,796 35,885 Accruals and deferred income 93,230 85,428 196,473 171,719 20 Creditors: amounts falling due after more than one year Group and Charity Notes Loans and overdrafts 21	Group 2022 £ 48,528 40,285 20,654 42,560 48,467 200,494 2023 £ -	Charity 2022 £ 48,528 27,535 20,507 42,560 41,590
		180,720
		2022 £ 313,688

58 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

21 Loans and overdrafts Group and Charity Bank loans Payable within one year Payable after one year	2023 £ - - -	2022 £ 362,216
		48,528 313,688

The bank loan was secured by a first legal charge over the freehold property known as 42 Park Road, Peterborough. The loan was repaid in full on the sale of the property during the year.

Trustees’ Annual Report and Financial Statements Shine 59

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

22 Retirement benefit schemes

The Pensions Trust - The Growth Plan

SHINE participates in The Pension Trust's Growth Plan (The Plan), a multi-employer scheme which provides benefits to some 638 non-associated participating employers. The scheme is a defined benefit scheme in the UK.

It is not possible for the charity to obtain sufficient information to enable it to account for the scheme as a defined benefit scheme. Therefore it accounts for the scheme as a defined contribution scheme.

The scheme is subject to the funding legislation outlined in the Pensions Act 2004 which came into force on 30 December 2005. This, together with documents issued by the Pensions Regulator and Technical Actuarial Standards issued by the Financial Reporting Council, set out the framework for funding defined benefit occupational pension schemes in the UK.

The scheme is classified as a 'last-man standing arrangement'. Therefore the charity is potentially liable for other participating employers' obligations if those employers are unable to meet their share of the scheme deficit following withdrawal from the scheme. Participating employers are legally required to meet their share of the scheme deficit on an annuity purchase basis on withdrawal from the scheme.

A full actuarial valuation for the scheme was carried out at 30 September 2020. This actuarial valuation showed assets of £800.3m, liabilities of £831.9m and a deficit of £31.6m. To eliminate this funding shortfall, the trustees and the participating employers have agreed that additional contributions will be paid to the scheme as follows:

Deficit contributions

From 1 April 2022 to 31 January 2025:

£3,312,000 per annum (payable monthly)

Note that the scheme's previous valuation was carried out with an effective date of 30 September 2017. This valuation showed assets of £794.9m, liabilities of £926.4m and a deficit of £131.5m. To eliminate this funding shortfall, the Trustee asked the participating employers to pay additional contributions to the scheme as follows:

Deficit contributions

From 1 April 2019 to 30 September 2025:

£11,243,000 per annum (payable monthly and increasing by 3% each on 1st April)

The recovery plan contributions are allocated to each participating employer in line with their estimated share of the Series 1 and Series 2 scheme liabilities.

Where the scheme is in deficit and where the charity has agreed to a deficit funding arrangement the company recognises a liability for this obligation. The amount recognised is the net present value of the deficit reduction contributions payable under the agreement that relates to the deficit. The present value is calculated using the discount rate detailed in these disclosures. The unwinding of the discount rate is recognised as a finance cost.

60 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

22	Retirement benefit schemes			(Continued)
	Present values of provision
		31 March	31 March	31 March
		2023	2022	2021
	Present value of provision	36,146	56,698	293,838

An amount of £20,657 (2022 - £20,657) is included within short term creditors and £15,489 (2022 - £36,041) in long term liabilities.

Reconciliation of opening and closing provisions

Reconciliation of opening and closing provisions
	Year	Year
	Ending	Ending
	31 March	31 March
	2023	2022
Provision at start of period	56,698	293,838
Unwinding of the discount factor (interest expense)	1,071	1,694
Deficit contribution paid	(20,657)	(74,358)
Remeasurements - impact of any change in assumptions	(966)	(1,303)
Remeasurements - amendments to the contribution schedule	-	(163,173)
Provision at end of period	36,146	56,698
Income and expenditure impact
	Year	Year
	Ending	Ending
	31 March	31 March
	2023	2022
Interest expense	1,071	1,694
Remeasurements - impact of any change in assumptions	(966)	(1,303)
Remeasurements - amendments to the contribution schedule	-	(163,173)
Costs recognised in income and expenditure account	105	(162,782)

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

22	Retirement benefit schemes			(Continued)
	Assumptions
		31 March	31 March	31 March
		2023	2022	2021
		% per annum % per annum		% per annum
	Rate of discount	5.52	2.35	0.66

The discount rates shown above are the equivalent single discount rates which, when used to discount the future recovery plan contributions due, would give the same results as using a full AA corporate bond yield curve to discount the same recovery plan contributions.

The following schedule details the deficit contributions agreed between the company and the scheme at each year end period:

Deficit contributions schedule

Year	ending	31	March	31	March	31	March
			2023		2022		2021
Year	1		20,657		20,657		74,358
Year	2		17,214		20,657		76,589
Year	3		-		17,214		78,887
Year	4		-		-		67,711

The charity must recognise a liability measured as the present value of the contributions payable that arise from the deficit recovery agreement and the resulting expense in the income and expenditure account i.e. the unwinding of the discount rate as a finance cost in the period in which it arises.

It is these contributions that have been used to derive the charity's balance sheet liability.

The Plan is closed to new entrants and there were no active members of the scheme during the year.

The Scheme has identified a potential issue in respect of the calculation of benefits paid and has instigated a review. The outcome of the review is unknown and the potential financial impact of the review if an issue is identified is unknown. A potential liability may arise, but no provision is included in these accounts as the amount cannot be quantified.

62 Shine Trustees’ Annual Report and Financial Statements

Restricted funds	The income funds of the charity include restricted funds comprising the following unexpended balances of donations and grants held on trust for specific purposes:	Movement in funds Movement in funds	Balance at Income Expenditure Transfers Balance at Income Expenditure Transfers Balance at	1 April 2021 1 April 2022 31 March 2023	£ £ £ £ £ £ £ £ £	National Lottery Community Fund – Early	intervention programme across England 91,363 132,511 (161,064) 33,673 96,483 184,348 (203,409) 2,137 79,559	National Lottery Community fund Northern	Ireland Bright Stars 31,411 64,589 (77,263) - 18,737 99,219 (82,892) - 35,064	International Projects – developing a	continence clinic in Nigeria 262 11,621 (160) - 11,723 - (13,293) - (1,570)	Coop Grant 2,617 - (160) - 2,457 - (339) - 2,118	National Lottery Community fund: Cymru	Health hub 4,915 - (4,915) - - - - - -	National Lottery Community fund: Cymru	Shining lights 14,214 91,307 (91,792) 371 14,100 91,508 (96,040) 11,905 21,473	South West Country SDW - 16,888 (10,086) - 6,802 1,000 (7,802) - -	COVID 2021/22 "Here for you" - 32,613 (28,891) - 3,722 19,500 (8,101) - 15,121	Database development - 6,975 (6,060) - 915 - (2,073) 1,158 -	Welfare Grants - 6,253 (6,238) - 15 3,813 (5,918) - (2,090)	Support Groups 1,025 454 (108) - 1,371 - 464 - 1,835	Buchanan & Henry Allen – supporting our	work in the North of England 7,572 - (7,572) - - - - - -	Margaret Giffen Charitable Trust - supporting	our work in Northampton 4,935 30,000 (14,495) - 20,440 - (14,935) - 5,505	158,314 393,211 (408,804) 34,044 176,765 399,388 (434,338) 15,200 157,015
23

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

24 Designated funds

The income funds of the charity include the following designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes:

	Balance at	Net	Balance at	Net	Balance at
	1 April 2021	movement	1 April 2022	movement	31 March
					2023
Group	£	£	£	£	£
Interest in land and property and other
fixed assets	412,408	22,829	435,237	(434,023)	1,214
Florence Bartle fund	114,121	(39,462)	74,659	21,628	96,287
HR fund	45,175	(37,675)	7,500	(7,500)	-
Services in Northern Ireland and Wales	-	70,650	70,650	(41,422)	29,228
Dilapidations	-	31,500	31,500	(31,500)	-
Digital development	-	-	-	25,000	25,000
Research	-	-	-	50,000	50,000
Service funds:
- East Anglian SDW	-	-	-	75,000	75,000
- Deputy Health Manager	-	-	-	135,000	135,000
- Education Officer	-	-	-	50,000	50,000
- Physio service	-	-	-	25,000	25,000
	571,704	47,842	619,546	(132,817)	486,729
Charity
Interest in land and property and other
fixed assets	409,944	25,293	435,237	(434,023)	1,214
Florence Bartle fund	114,121	(39,462)	74,659	21,628	96,287
HR fund	45,175	(37,675)	7,500	(7,500)	-
Services in Northern Ireland and Wales	-	70,650	70,650	(41,422)	29,228
Dilapidations	-	31,500	31,500	(31,500)	-
Digital development	-	-	-	25,000	25,000
Research	-	-	-	50,000	50,000
Service funds:
- East Anglian SDW	-	-	-	75,000	75,000
- Deputy Health Manager	-	-	-	135,000	135,000
- Education Officer	-	-	-	50,000	50,000
- Physio service	-	-	-	25,000	25,000
	569,240	50,306	619,546	(132,817)	486,729

64 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

24 Designated funds

(Continued)

The designated funds comprise:

• the group and charity's interest in land and property and other fixed assets, net of the outstanding mortgage.

• the Florence Bartle fund which is part of a legacy that is to be spent on the relief of Spina Bifida in Cornwall and the South West.

• the HR fund that is for future restructuring and other staff related costs.

• the services in Northern Ireland and Wales that is for work specifically in those countries.

• the dilapidations fund that was for future leasehold dilapidations.

• the digital development fund that is to develop a long-term IT/digital strategy to aid in future-proofing Shine's approaches to technology and automation.

• the research fund that is to improve access to health and care services in line with Shine's strategic goals.

• the service funds that are to fund new posts as detailed above.

Trustees’ Annual Report and Financial Statements Shine 65

	Total		2022	£			797,453	352,864	721,156	(313,688)	(36,041)	1,521,744					797,453	352,867	698,169	(313,688)	(36,041)	1,498,760
	Restricted	funds	2022	£			-	-	176,765	-	-	176,765					-	-	176,765	-	-	176,765
	Designated	funds	2022	£			797,453	-	135,781	(313,688)	-	619,546					797,453	-	135,781	(313,688)	-	619,546
	Total Unrestricted	funds	2023 2022	£ £			1,214 -	765,371 352,864	1,108,628 408,610	- -	(15,489) (36,041)	1,859,724 725,433					1,214 -	765,374 352,867	1,085,641 385,623	- -	(15,489) (36,041)	1,836,740 702,449
	Restricted	funds	2023	£			-	-	157,015	-	-	157,015					-	-	157,015	-	-	157,015
	Designated	funds	2023	£			1,214	-	485,515	-	-	486,729					1,214	-	485,515	-	-	486,729
	Unrestricted	funds	2023	£			-	765,371	466,098	-	(15,489)	1,215,980					-	765,374	443,111	-	(15,489)	1,192,996
Analysis of net assets between funds				Group	Fund balances at 31 March 2023 are	represented by:	Tangible assets	Investments	Current assets/(liabilities)	Long term liabilities	Provisions and pensions			Charity	Fund balances at 31 March 2023 are	represented by:	Tangible assets	Investments	Current assets/(liabilities)	Long term liabilities	Provisions and pensions
25

66 Shine Trustees’ Annual Report and Financial Statements

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

26 Operating lease commitments

Group and Charity

At the reporting end date the charity had outstanding commitments for future minimum lease payments under non-cancellable operating leases, which fall due as follows:

Within one year Between two and five years	2023 £ 48,420 124,258 172,678	2022 £ 24,215 164,901
		189,116

27 Related party transactions

Remuneration of key management personnel

The remuneration of key management personnel, who on a full time equivalent basis are the 2.5 (2022 - 2.8) members of the senior management team, is as follows.

	2023	2022
	£	£
Aggregate compensation including pension contributions	168,298	206,828

Transactions with related parties

Owing to the nature of the charity's operations, some of the Trustees may themselves, or may have family members that access services from the charity. Consequently there will be transactions between those Trustees or their family members. These are on the same basis as other service users of the charity.

28 Control

No one individual has overall control of the charity.

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NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2023

29	Cash generated from operations		2023	2022
			£	£
	Surplus for the year		337,980	171,033
	Adjustments for:
	Investment income recognised in statement of financial activities		(16,580)	(8,216)
	Investment management fees recognised in statement of financial	activities	(7,845)	(2,794)
	Gain on disposal of tangible fixed assets		(476,224)	-
	Loss/(gain) on disposal of investments		465	(10,484)
	Fair value gains and losses on investments		41,877	1,792
	Depreciation and impairment of tangible fixed assets		1,223	28,587
	Movements in working capital:
	Decrease in debtors		55,636	77,537
	Increase/(decrease) in creditors		22,503	(60,604)
	Increase/(decrease) in pension liability		(20,552)	(183,439)
	Cash (absorbed by)/generated from operations		(61,517)	13,412
30	Analysis of changes in net funds
	Group	At 1 April	Cash flows	At 31 March
		2022		2023
		£	£	£
	Cash at bank and in hand	620,814	439,087	1,059,901
	Loans falling due within one year	(48,528)	48,528	-
	Loans falling due after more than one year	(313,688)	313,688	-
		258,598	801,303	1,059,901
	Charity
	Cash at bank and in hand	603,115	425,099	1,028,214
	Loans falling due within one year	(48,528)	48,528	-
	Loans falling due after more than one year	(313,688)	313,688	-
		240,899	787,315	1,028,214

68 Shine Trustees’ Annual Report and Financial Statements

SHINE Registered Office Unit 4, Minerva Business Park, Peterborough, PE2 6FT Telephone [phone] Email [e-mail] www.shinecharity.org.uk Charity number 249338, Company number 00877990