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2022-03-31-accounts

Trustees’ Annual Report and Financial Statements Year ended 31st March 2022

Contents

Introduction from our Chair ....................................3 Our Impact ....................................................... 4&5 SHINE’s vision .......................................................6 Goal 1 Improving outcomes for babies and children through early intervention and support ...................8 Goal 2 Access to better care and services .........10 Goal 3 Improved lifestyle and choice ..................12 Goal 4 14 Preventing Spina Bifida ............................ Goal 5 Quality information and support ..............15 Next steps for SHINE ...........................................15 Awareness weeks ....................................... 16 & 17

Thank you ...........................................................19 Income and expenditure 2021-22 ........................20 Financial review ...................................................21 23 Going concern and statement of public benefit .... Reference and administration details ...................25 Our commitment to quality fundraising.................27 Structure, management and governance .............27 Board integrity .....................................................28 Statement of Trustees’ responsibilities .................30 Appointment of auditors ......................................30 Independent auditors report ................................31

2 Shine Trustees’ Annual Report and Financial Statements

Message from our Chair, Greg Smith

a culmination of the successes and lessons learnt in the delivery of our 5-year 20172022 Plan.

…I am so proud to see the progress that the teams across SHINE have made in delivering our objectives and working

Despite the challenges of Covid-19 again this year, our Services teams have continued to engage and support new members and their families, and have re-engaged with those who we have not heard from for a while; we have for a better understanding of early intervention and preventative approaches to condition management across professional communities to improve the health, well-being and opportunities for babies, children, young people

Once again, this year, the volume and diversity of our work has showcased how essential our services are to so many.

This work would not have been possible without the contribution of SHINE’s members across England, Wales and Northern Ireland in shaping our services through their active participation in focus groups, surveys and socials. Our members have also supported each other through mentoring and peer support; parent/carers have done the same.

Like so many other charities, we experienced uncertainty in so many areas of fundraising due to on-going restrictions and the looming cost of living crisis, yet with careful management and a well-founded strategic plan, awarded grant-funding to enable us to carry on our vital work across the SHINE community.

Our new 5-year Plan 2022 – 2027 has recently been launched. It sets out even more ambitious strategic goals, each building on the foundations laid by the wealth of knowledge, experience and tried and tested activities of requests for support, advice, and information over the coming years.

With best wishes,

Greg Smith Chair

A thanks from Kate, our CEO

Nothing would have been possible without the commitment of the teams in SHINE, our members, our trustees, volunteers, supporters and fundraisers.

we do, whether those are the vital frontline support services and information we provide, or the ‘behind the scenes’ activity which underpins everything we do.

A huge thank you to everyone for your continued support throughout the past 12 months.

Together, you make us SHINE!

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Our impact in 2021-22

We have supported 5,377 individual members

DUE TO:

Dealt with A • provision of more • improved information DECREASE complex and and resources time-intensive + • introduction of 20,000 FROM support welcome calls • reduced demand separate issues 2020-21 • data cleanse for proactive calls FinancesBenefits EducationEducation EmploymentEmployment HealthHealth WellbeingHousing All otherAll other 1,587480 731532 502 6 3 8544,013 7,58194 6 2945,710 Total number of members Number of website visitors as of 31st March 2022 12,247 186,095 Number Breakdown of pages visited by primary 483,659 conditions Encephalocele ............ 0.3% Spina Bifida ............... 15.0% Hydrocephalus ......... 51.0% Spina Bifida and Hydrocephalus ......... 23.0% Idiopathic Intracranial Hypertension .............. 4.0% Spina Bifida Occulta ........................ 5.2% Normal pressure Hydrocephalus ........... 3.0% 4000 3500 SHINE 3000 2500 Health Direct 2000 membership 1500 GREW 1000 BY 5.8% 500 to 1262 0 this year Age

4 Shine Trustees’ Annual Report and Financial Statements

Our Little Stars…

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In our most recent Little Stars survey, parents and carers told us that:
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OVER rated SHINE’s
improved their support as good
understanding
of the conditions 89% to excellent
CHILDREN’S rated our We helped
CONFIDENCE HAD
age-specific
INCREASED
newsletters
as a result of SHINE’s
91%
support and engagement! as VERY
USEFUL! access
support
felt more confident in dealing with the from other
challenges of their child’s condition organisations
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were less socially isolated as a result of support from SHINE

Our Young People and Adult Members…

Our adult members told us that, through support and engagement with SHINE

87% felt they better understood their condition(s) 67% improved made new their wellfriends… felt less lonely or isolated being

made new friends… 63%

felt less lonely or isolated

Professionals…

212

Professionals from various health, care and education disciplines joined our virtual professionals’ conference ‘Spina Bifida birth to adulthood’ in December 2021.

100% improved their knowledge of Spina Bifida

96% of people were very satisfied or satisfied with the conference content.

87% OF PEOPLE were very satisfied or satisfied with the online format

were very likely to recommend the conference to colleagues

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SHINE’s vision

is a society where all those whose lives are affected by Spina Bifida and/or Hydrocephalus and associated conditions are empowered and enabled through choice and equality of opportunity

Our to make a positive difference to the lives aim of people affected by the conditions

Our five strategic goals (2017-2022) were

3[ Improved lifestyle and choices ]

People with Spina Bifida and/or Hydrocephalus will be enabled, engaged, and empowered to make informed choices about the lives they want to lead

4[ Preventing Spina Bifida ] Greater focus on the causes of Spina Bifida and a call for Government and others to take decisive action in the prevention of Spina Bifida

5[ Quality information and support ]

Underpinned by our values

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Trustees’ Annual Report and Financial Statements Shine 7
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Goal 1 : Improving outcomes for babies and children through early intervention and support

In 2021, we extended the Little Stars project from 0 -10s to 0–12-year-olds, to better fit with the stages of development and transition during these childhood years. By March 2022, we had a membership of 2557 Little Stars. (England: 2228; Wales: 129; Northern Ireland: 200).

The teams continued with existing approaches and introduced new ways to engage and support our young members, their parents/carers and other family members.

Our work in the past 12 months included:

more about their personal challenges with continence management, and give them greater confidence in managing those challenges, these sessions also facilitated peer support and friendships

8 Shine Trustees’ Annual Report and Financial Statements

Our work with professionals

Our strategic goal 2 highlights much of our work with professionals throughout the year, but the Little Stars project specifically:

What some of our members said…

The services you provide are invaluable. You have been with us even before our daughter was born and honestly without SHINE things would have seemed a lot harder. You gave us hope at the beginning when we were told not to expect much.

As a family we have all benefited from the work you all do, the last 4 years have been made easier with your ongoing support even during the pandemic. Through SHINE I have made forever friends who truly understand what life is like for our children on both good days and bad. That feeling of knowing you are not alone is the best thing SHINE have done for me, thank you for my SHINE family.”

Knowing you’re there makes you feel safe and reassured”

The chance to ask questions and learn how to best support my son. I also love meeting other parents + children at the meet ups etc”

Without SHINE has just set up a you it group where the would be an children can meet each other even scarier socially… I think that’s going to place than it is” help us the most”

The SHINE Little Stars Facebook page is extremely useful. It has helped to develop knowledge of my son’s condition and to provide advice to other parent/carers. It is also nice to post about my son’s achievements”

Anencephaly support

An important part of our work is offering time and support to parents who have lost a baby to anencephaly – either 1-2-1 support or through our online anencephaly group.

Membership of this closed group grew by 138 people over the past 12 months.

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Goal 2: Access to better care and services

Our teams continued to support many members in understanding their rights to health and care provision, empowering them to ask for, and access, the services they needed. The on-going pandemic and continuing restrictions across the country hindered this as health services, medical appointments and care services were slow to resume, if indeed they resumed at all by the end of March 2022.

SHINE developed more projects and initiatives to address the wide range of our members’ needs, working with key stakeholders to influence and improve access to better care and services.

Members’ voices were very much at the heart of this work through direct engagement, research and focus groups.

In particular, our ‘1000 Voices’ survey on ageing with Spina Bifida in 2020/21, and a more recent survey into Hydrocephalus, provided us with significant insight and evidence on the impact of the conditions on the health and lives of our members.

It is apparent that without improved approaches to care and condition management, opportunities to prevent deteriorating health and emergency hospital admissions will be missed.

In the past 12 months, we began to address the findings of the reports and surveys by:

10 Shine Trustees’ Annual Report and Financial Statements

Engaging and influencing healthcare professionals and the services they provide

The more professionals know about Spina Bifida and Hydrocephalus, and associated conditions, the more likely it is that our members of all ages will have access to the right services and support at the right time – be that health, care, education or any other statutory service they might need.

Over the past 5 years, our focus on reaching professionals and raising awareness of the conditions has steadily grown.

In the past 12 months, this focus culminated in:

Keeping SHINE members’ voices heard

It is no secret that there are not enough statutory services, and far too few staff in those services, to support our members’ needs: referral pathways are not clear; access is often limited; and services do not always work together to provide the solutions that are so badly needed.

Through the enormous contribution of our members to various surveys, focus groups and direct contact with our members, SHINE was, once again, able to add our voice and strengthen calls for improvement in local, regional and national services and funding to support for people whose lives have been affected by disabilities.

For example:

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Goal 3: Improved lifestyle and choice

We made fewer calls as

restrictions from the pandemic eased, and supermarkets and others were able to offer more accessible delivery services for essential goods and medication.

However, our teams had another very busy year, working with members and their families to offer information, advice and support on a variety of issues from health and care, education and employment, housing, finances and benefits, relationships, and a host of other important issues that impact on our members’ lifestyles and choices.

Health, well-being and lifestyle and benefits/finances were the top three areas of enquiries

Our membership engagement strategy, introduced in 2019, helped to keep our focus on widening our reach and impact, tailoring our services and support to members in a range of ways and more specifically, for their conditions and ages.

Our learning from 2020/21 on all-things social media stood us in good stead to offer a programme of online support, which reached our members and families in all corners of England, Wales and Northern Ireland to facilitate greater interaction, peer support and sharing of knowledge and information.

As well as the services provided directly to our individual members and families, our support and development activity in 2021/22 included:

A new range of leaflets and resources

Online coffee groups and quizzes

12 Shine Trustees’ Annual Report and Financial Statements

Volunteering

SHINE could not do what we do without the support of our dedicated trustees, volunteers, supporters and fundraisers, and this year was no exception.

Over 50 volunteers directly supported various aspects of the services we deliver, and hundreds more supported us by raising the vital funds to deliver those services.

We opened up a greater variety of

opportunities, strengthened our induction and on-going support for volunteers and improved our approaches to recognising volunteer contributions to the work we do.

John says, “‘I wanted to volunteer with SHINE to thank them and give something back for the help I have had from SHINE over the years and allow SHINE to help other members.

I find home-based volunteering suits me very well. The staff in the Trusts & Foundations team have made me feel very welcome and part of the team’’

We asked ‘What do you like about SHINE?’

I have really enjoyed the sessions with cooking and talking to other kids with similar disabilities to me. I’ve found it helpful to learn more about it, and ways in which other people deal with it and I’ve definitely found some helpful tips. It’s helped me to become more independent, because the other girls have motivated me to do more for myself”

That someone SHINE keeps The sense Thank you for today is at the end of you up to of community it was refreshing to phone to answer any date with different and accessibility of have things explained in questions” things going on” support” such a unique way”

I was so pleased to find the SHINE Occulta & Me Group. It was lovely to talk …and it was just helpful to have that person and the group”

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Goal 4: Preventing Spina Bifida

‘Truly a momentous day!’

On 20 September 2021, the UK government and governments in Wales, Northern Ireland and Scotland jointly announced that fortification of flour with folic acid would become mandatory across the UK.

Alongside many others, SHINE had campaigned for over 30 years for this outcome. We were very much involved in the announcement, providing a statement for the UK Government’s official press release and being involved in back-to-back TV and Radio interviews throughout the day.

Despite the positive news, the journey did not end in September as there was (and still is) still some way to go towards seeing this implemented, so SHINE continued to lobby key decision makers to see this come to fruition. More work needs to be done in 2022-23 but we are delighted to be several steps closer to achieving one of SHINE’s key objectives of seeing fortification becoming a reality in the UK someday soon.

Alongside fortification sits the importance of folic acid supplementation in also helping to reduce the chances of pregnancies being affected by neural tube defects such as Anencephaly or Spina Bifida.

We promoted this message through

We were also pleased to launch a 2-year partnership with Vitabiotics, which will enable us to further increase awareness and the uptake of folic acid supplements in 2022 and beyond.

Informing and improving access to antenatal support and treatments

In 2019-20, we reported on research into parents’ experiences in antenatal settings and the journey from point of diagnosis of an unborn baby with Spina Bifida onwards, and our plans to use the findings to influence improvements in practice in antenatal care and support.

This work* has progressed considerably over the past 12-months with:

*With many thanks to Dr AR Hart for his significant contribution and support to this work

SHINE also continued to actively contribute to discussions to GIFT-Surg, an international research project which focuses on in utero surgery for congenital birth defects such as Spina Bifida, and develops technology, tools and training necessary to make fetal surgery more effective.

Our partnership with the NHS teams providing specially commissioned fetal surgery continued, with SHINE providing insight on patient experiences of support. The initial diagnosis of an unborn baby with Spina Bifida, and referral pathway to further information and consultation to explore the options available to parents-to-be.

Why is fortification of flour with folic acid so important?

Mandatory fortification of flour with folic acid will improve public health for so many, now and in the future. “In its simplest terms, the step will reduce the numbers of families who face the devastating news that their baby has anencephaly and will not survive. It will also prevent some babies being affected by Spina Bifida, which can result in complex physical impairments and poor health. This is truly a momentous day.” Kate Steele, CEO, September 2021

14 Shine Trustees’ Annual Report and Financial Statements

Goal 5: Quality information and support

As always, we remained committed to continually improving our information and communication, both to the outside world and across the organisation.

Our teams collaborated with our members to update and further develop a range of useful resources and publications to help our members learn more about their conditions, and also aid in talking to others about their conditions.

A planned programme of marketing and communication activity showcased the breadth of our services and expertise and enabled greater reach and engagement with existing and new audiences. We held successful, and separate, Spina Bifida and Hydrocephalus Awareness

weeks for the third year running, allowing an improved focus on the individual conditions.

The Spring and Autumn editions of our free membership magazine ‘Together’ were sent out to all of our members by post and email.

With investment in a new membership database, we made improvements to our data and data management processes, which will allow us to maintain better contact and improve engagement with members and allow us to tailor our communications to enhance the services we provide.

We also undertook an extensive review of our website, with new pages and sections added for improved accessibility to our specialist information. A plan for larger-scale improvements was also drawn up and will be implemented over the course of the next 12 months.

Important next steps for SHINE

Our new Corporate Plan ‘Engage, Enable and Empower … The Next Steps’ is informed by over 55 years of experience and expertise, and builds on the successes and lessons learnt from our most recent five-year plan. Most importantly, it reflects our members’ feedback and ideas on the services, activities and campaigns they want SHINE to deliver.

The new plan sets out our strategic goals and objectives from now until 2027, and how we intend to achieve them and ensure a membership which is engaged, enabled and empowered.

Trustees’ Annual Report and Financial Statements Shine 15

18th – 24th October 2021

123,376 Social media reach[social media interactions] 6,049

Unique SHINE website visitors 6,357

NUMBER OF UNIQUE 17[,] 126 PAGES VIEWED

223 PEOPLE[attended our live sessions]

Member, supporter and staff feedback…

@ShineUKCharity have some incredible resources for Parents and Professionals, to help you get to grips with #SpinaBifida”

Just wanted to say how proud we are of the amazing work that our friends at Shine are doing to improve the lives of everyone with #SpinaBifida. Thank you for everything that you do!”

Henry has #spinabifida and #hydrocephalus so we’ve had to learn a lot fast @shineukcharity do great work supporting people (with both conditions) and have useful resources if you’re not clued up (I wasn’t).”

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Sponsored by

A DIVISION OF INTEGRA LIFESCIENCES

Hydrocephalus awareness week7th – 13th March 2022 126,481 Social media reach

7,896 17[,] 995 social media interactions unique page views

UNIQUE WEBSITE VISITORS

WEBSITE VISITORS 5,677 People attended 237 our live sessions

Five emails sent to an average of 3,258 members

Member, supporter and staff feedback…

There are so many helpful resources in here. The sensory information is fascinating.”

It’s great to talk with others with the same conditions and has become a part of my regular social contact. Good for contacts at shine if I’ve needed help too.”

I’ve spent the day running around wearing a variety of hats, had a shunt tattooed on me, visited my children’s school who are all taking part and we’ve hit £1000!”

Informative. Good to share and hear members experiences.”

Useful to have the latest info re Hydrocephalus tips for Employers.”

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18 Shine Trustees’ Annual Report and Financial Statements

Thank you…

On behalf of the thousands of individuals with Spina Bifida and/or Hydrocephalus and their families we are able to help each year, many thanks as always to the everyone - individuals, families, organisations, trusts and foundations, and volunteers, who have helped SHINE in so many ways, some of which are listed below.

Companies and Organisations

Integra Neurosciences –
Codman
Buckles Solicitors LLP
Bullen Healthcare
Citi Belfast
Enable Law		 Hollister Limited
Fieldfsher
Irwin Mitchell
Royal Pigeon Racing
Association
Thompsons NI

UK Custom Solutions Danes Hill School Nomios / Infradata Promoting Independence Ltd Medico-Chirurgical Society

The Sylvia & Colin Shepherd Charitable Trust

The Worshipful Company of Gold & Silver Wyre Drawers

Supporters

Alex and Victoria Wall
Deanne Smith
Kevin O’Neill
Matthew Taylour
Rebecca Baylife
Emma Holland		 Chris Moralee
The Galbraith Family
Jane Gillings
Dara Haddock and Family
Joanne Dickinson &
Sam Howarth

Carrie Thompson & Alison Reid Hannah & Gethin Phillips The Mager Family Finley Murphy Rainy Solanki Ian Shawcross

Phil & Sean Holland

Richard Hynes, Daryl Hynes, Frances Twomey de Hoyos, Natalia Hoyos-Twomey, Christine Plews, Chris Plews (Team Hannah) Lizzie Burgess

Trusts and Foundations

The Eveson Charitable Trust The David Solomons Charitable Trust The P F Charitable Trust The David Cutforth Charitable Trust The Evelyn Trust Gerald Bentrall Charitable Trust Arihant Charitable Trust Nottinghamshire County Council Cambridgeshire Community Foundation The Privy Purse Charitable Trust The Ganzoni Charitable Trust Vinci Foundation The Pennycress Trust Duchy Health Charity Limited Moondance Foundation The Walter Guinness Charitable Trust The Jessie Spencer Trust National Lottery Community Fund - The Nottingham General Dispensary Hadrian Trust Northern Ireland The George Henry Collins Charity The Joseph and Lena Randall National Lottery Community The W. E. Dunn Charitable Trust Charitable Trust Fund - Wales The Christopher Laing Foundation Doris Field Charitable Trust National Lottery Community The Charles Littlewood Hill Trust The Walter Farthing Trust Fund - England Steven Bloch Image of Disability The Hospital Saturday Fund Staffordshire Community Foundation Charitable Trust Patrick Rowland Foundation Sir James Knott Trust The Thales Charitable Trust The Joseph Strong Frazer Trust The Souter Charitable Trust The Scarfe Charitable Trust The Thomas Farr Charity Wales Council for Voluntary Action The Austin Bailey Foundation The Brian Wilson Charitable Trust (WCVA, Welsh Government) The Rozel Trust MAXIMUS Foundation UK The Alice Ellen Cooper Dean The Evelyn Trust Charitable Foundation

Special Appeals

We would like to give special thanks to all of those that help with our balloon races; your support is very much appreciated.

Trustees’ Annual Report and Financial Statements Shine 19

Income and expenditure 2021/22

Total Income

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Donations Investments
£723,959
£8,216
Trading
activities
£655,838
Income
£1,894,487
Legacies
£113,717
Grants
£392,757
Total Expenditure
Access to
Improving Raising better care
Outcomes funds and services
through early £144,867
£415,808
intervention
£369,107
Expenditure
Trading
£1,894,927 activities
Improved
lifestyle and £299,747
choices
£433,768
Preventing
Quality information Spina Bifida
and support £149,449 £82,181
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20 Shine Trustees’ Annual Report and Financial Statements

Financial Review

Trustees approved a 2021/22 budget deficit of £73,462, reflecting an expectation that whilst donations and trading income would continue to recover from the COVID-19 lockdowns, an element of uncertainty would remain.

SHINE reports an actual surplus of £171,033 (2020/21 £506,730 surplus), which consists of a £104,740 unrestricted surplus, a £47,842 designated surplus, and a £18,451 restricted surplus.

Total income for 2021/22 was £1,894,487 (2020/21 £2,343,079), with decreases in grants and legacies being partly offset by increases in trading and donations. Donation income was most encouraging, recording the highest annual income level since 2015/16 as SHINE was nominated as Citibank Belfast’s charity of the year.

Grant funding decreased from 2020/21, as COVID-19 support from the National Lottery Community Fund was not repeated. Nonetheless the National Lottery and other charitable trusts continued to fund an important part of SHINE’s work and in the year a new 5-year grant from the Lottery was secured to fund services in Northern Ireland. The project “Shining Opportunities”, will commence in June 2022. Legacies also continued to be a major source of funding and whilst income reduced in 2021/22, this follows strong receipts in each of the previous three years and we are very grateful that people continue to remember us in their wills.

Total expenditure in the year was £1,894,927 (2020/21 £1,899,638). We continue to prioritise spending on charitable services. Therefore, charitable expenditure

increased by £6,793 (0.6%) to £1,172,372 and represents 62.2% of total expenditure (61.7% in 2020/21), whilst expenditure on raising funds decreased by £11,504 (1.6%) to £715,555. Staffing levels in SHINE’s services fell during the year with 26 full time equivalent posts compared to 27 in 2021/22, as an increase in staff turnover was experienced. At the year end, the charity had vacant staffing posts of 3.3 FTE. It is believed that some staff where reluctant to change employer during the pandemic and are now taking advantage of a buoyant labour market to change jobs. A staff survey was completed in the year and improvements to holiday allowances have been made, and an inflationary pay award was announced for April 2022. SHINE is confident it remains an attractive organisation to work for and has active recruitment plans which aim to raise service staffing levels.

Whilst the war in Ukraine had a detrimental impact on the value of our investments in the final weeks of 2021/22, over the year we report a gain of £8,692 (gain in 2020/21 £81,160). These gains are most welcome, but the charity remains cautious in using these gains to fund charitable services.

Under the accounting standard SORP 2015 the full defined benefit pension deficit must be declared on the balance sheet. There was a 2021/22 actuarial gain of £162,781 (2020/21 loss of £17,871). This reflects the outcome of the 2020 triannual review, which reported a funding level improvement to 96% (2017 86%). A payment plan to eliminate this deficit remains in place and the charity remains confident that it will meet the required pension contributions from its

Trustees’ Annual Report and Financial Statements Shine 21

projected income without significantly impacting on its planned level of charitable activity. Further pension detail is shown in note 21 of the accounts.

In the 2020/21 annual report, trustees confirmed that a review of continued occupancy of 42 Park Road had been conducted and it was concluded to be in the best interests of the charity to sell 42 Park Road and relocate to a smaller office with staff working a hybrid model of home working and office days. 42 Park Road had been SHINE’s registered office since 1989 but in recent years the building (against which a charge is held) had become under-utilised. Prior to the marketing of 42 Park Road, a qualified surveyor’s report was obtained, valuing the property at £1,300,000. The property was marketed for sale in the summer of 2021, four bids were received and in September trustees selected the preferred bid, for which an exchange of contract was made on the 17th of December. The move to a smaller leasehold office at Minerva business park was completed during late January and the sale of 42 Park Road was completed on the 1st of April 2022. The sale price exceeded the valuation, whilst legal, professional and move costs were below original estimates. Trustees intend to invest the net sale proceeds in future services, in a sustainable way.

Financial Reserves Policy

Reserves are maintained at a level that enables the charity to manage financial risk and sustain services. Trustees have set a reserve target of £850,000, held for the following purposes:

This target level of reserves represents an increase of £280,000 versus the previous policy (March 2020). Trustees must balance the needs of SHINE’s members against financial risks. COVID-19 and the war in

Ukraine have demonstrated that our world is less certain than previously thought.

At the year-end SHINE held free reserves of £725,433, being general unrestricted funds excluding designated funds. This represents 3.2 months of committed expenditure cover and is below the total reserves target. Therefore, as reserves are expected to increase in 2022/23 some of the gain on sale of 42 park Road will be retained to meet the shortfall in reserve level.

Notwithstanding the above, the charity plans to utilise its reserves in a managed fashion through investment in strategic priorities. The charity has plans to expand its services in 2022/23 with the addition of a youth worker, a volunteer coordinator and additional health resources. In total these changes will raise the service staff establishment by 2.3 FTE.

Restricted reserves must be applied to the specific purpose(s) intended by the donor so do not form part of the free reserves; funds totaled £176,765 at the year end and are planned to be expended in 2022/23.

Designated funds have been established by the Board and are excluded from free reserves. They are as follows:

22 Shine Trustees’ Annual Report and Financial Statements

Investment Policy

Under the governing document the charity has the power to make any investment which the trustees see fit. R. C. Brown Investment Management plc are SHINE’s investment managers with the remit to manage the investments in line with the policy outlined below.

Investments are held as part of the long-term reserves of SHINE. The aim is that they should maintain their value and generate income for SHINE.

The portfolio must only be invested in assets with a low risk profile. This will include utilisation of pooled funds, which provide diversification of assets, and ensures that the risk of losing a single holding is minimised.

The trustees have agreed that the funds should initially be invested in a broad, balanced portfolio. The intention is to work towards ethical investments, with the advice of the investment managers, while being mindful of the charity’s obligations for responsible investment.

During the year R. C. Brown Investment Management plc continued to manage the SHINE portfolio. The funds were fully invested; the long-term funds performed below their benchmark, recording a 3.39% return during 2021/22 versus the 4.73% benchmark

(ARC steady growth index).

In 2022/23 the charity intends to use some of the sale proceeds of 42 Park Road to increase the investment portfolio and RC Brown will actively manage the timing of funds being placed.

Risk Management and Internal Control

The Board of Trustees are responsible for the identification and management of the major risks facing the charity. A Risk Register is maintained and shared annually with trustees (more frequently if a significant issue arises). Risk management at operational level is managed by the senior leadership team; major risks have been reviewed and systems established to manage these risks.

During 2021/22 the most significant risk remained COVID-19 in terms of the way in which the charity supported its members and the risks to income levels. Therefore, the risk register currently covers six strategic areas.

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1. Governance & strategy
2. Income generation
3. Services
4. Finance
5. COVID-19
6. Brexit
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During the year the number of red retained risks declined from 3 in March 2021 to 1 in March 2022. SHINE continues to make structural and strategic changes to the organisation to mitigate these risks.

Going Concern and Statement of Public Benefit

Going Concern

The activities of the charity, its objectives, factors likely to affect its future development and the policies for managing its capital and financial risk

are detailed in the Trustees’ Report. We have set out a review of SHINE’s financial performance, the reserves position and principal risks and uncertainties in this report.

Trustees’ Annual Report and Financial Statements Shine 23

The budget for 2022/23 was prepared by senior leadership and approved by the trustees in March 2022; it included the financial benefits expected with the sale of 42 Park Road. The expectation is that trading and donation income levels are maintained as COVID-19 lockdown measures are removed. Expenditure levels will be allowed to increase in line with the expansion in service provision, the return of face-to-face contact and events for our members. A total deficit of £157,775 which includes expenditure against restricted and designated funds received in prior periods and an unrestricted deficit of £79,333 is planned as increases in service staffing levels are made. The budget and its assumptions are reviewed against two key financial measures:

Management accounts are prepared by senior leadership and issued monthly to trustees; the current financial position and financial outlook are reviewed at quarterly trustee meetings. Given the level of reserves and outlook, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future being at least twelve months from date of approval of these financial statements. Accordingly, they continue to adopt the going concern basis of accounting in preparing the financial statements.

Statement of Public Benefit

The trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have regard to the Charity Commission’s general guidance on public benefit, ‘Charities and Public Benefit’.

SHINE’s charitable objects are enshrined within its

memorandum and articles and as such trustees ensure that the charity’s activities are carried out for public benefit through its strategic goals. This report allows us to show how charitable funds are spent and the impact and benefits this has to the lives of people affected by Spina Bifida and/or Hydrocephalus, and associated conditions.

24 Shine Trustees’ Annual Report and Financial Statements

Reference and Administration Details

Trustees

The trustees of Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE are the charity’s trustees under charity law and directors of the charitable company and throughout the report are collectively referred to as the trustees.

Mark Noakes(Chairman – resigned 8 June 2021)
Gregory Smith(Chair)
Rebecca Bates(Hon. Treasurer)
Patricia Adley(passed away 14 May 2022)
Stuart Barrow(resigned 11 January 2022)
Professor Roger Bayston		 Michael Brown
Andrew Smart
Joanne Williams(elected Vice Chair 7 June 2022)
Lynn Aziza Dar(appointed 21 July 2021)
Surekha Kukadia(appointed 6 July 2021)

It is confirmed that none of the serving trustees had any beneficial interest in any contract with SHINE in the year.

Patricia Adley passed away on the 14 May 2022, at just 65 years of age. Since appointed a trustee in 2015, Patricia bought a wealth of lived-in experience to the board, having been born with Spina Bifida. Patricia was a retired solicitor, and therefore also brought a wealth of legal & professional skills, and jointly led on safeguarding issues. She was immensely proud of SHINE’s work, and she will be missed by all.

Royal Patron

HRH The Duchess of Gloucester GVCO

Senior Leadership Team Chief Executive Kate Steele Director of Fundraising & Marketing Teresa Hicks (left April 2021) Director of Services Heidi Watson (left June 2022) Director of Finance Stephen Ellen

Objects

The charity’s objects are specifically restricted to the relief of persons who have Spina Bifida and/or Hydrocephalus or allied or related disorders by providing care, welfare, treatment, education, and integration into society.

Trustees’ Annual Report and Financial Statements Shine 25

Principal Professional Advisers

Auditors Azets Audit Services Ruthlyn House 90 Lincoln Road Peterborough PE1 2SP Bankers The Co-operative Bank Plc PO Box 250 Skelmersdale WN8 6WT Unity Trust Bank Four Brindley Place Birmingham B1 2JB Insignis Cash Solutions St John’s Innovation Centre Cowley Road Cambridge CB4 0WS Solicitors Greenwoods GRM LLP Monkstone House City Road Peterborough PE1 1JE Investment Managers R.C. Brown Investment Management 1 The Square Temple Quay Bristol BS1 6DG HR Vero HR St James House Flaxley Road Kingston Park Peterborough PE2 9FT

Administrative Details

The full name of the charity is Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE. We are commonly known as SHINE.

The registered charity number is 249338 (England and Wales)

The company registration is 00877990

Registered Office: SHINE, Unit 4, Minerva Business Park, Peterborough, PE2 6FT

Telephone 01733 555988 • Email firstcontact@shinecharity.org.uk • www.shinecharity.org.uk

26 Shine Trustees’ Annual Report and Financial Statements

Our Commitment to Quality Fundraising

SHINE is registered with the Fundraising

Regulator and proud to commit to the Regulator’s Fundraising Promise.

We are committed to maintaining high standards of fundraising in line with the Code of Fundraising Practice:

Our approach to fundraising consists of:

We also encourage people to remember us in their will with a gift or legacy.

We do not use third-party professional fundraising agencies.

Where people or organisations raise funds in aid of SHINE, we request they follow our standards. SHINE’s fundraising team provide tools and resources to enable supporters to deliver fun, safe, and successful fundraising activities. The trustees are of a view that during the year to 31 March 2022 we have been compliant with these standards, and we are not aware of any instances where those acting in aid of the charity have failed to comply.

To protect vulnerable people and other members of the public, SHINE has a safeguarding policy, and our fundraising commitment is displayed on our website. We are careful to protect the private data of supporters and give clear options to stop being contacted by us. As part of our compliance with the code of fundraising practice, we ensure our approach to fundraising is not unreasonably intrusive or persistent and does not aim to solicit donations by pressuring potential supporters.

We take these steps to make sure people have a choice about whether to fundraise for SHINE.

SHINE and our members are incredibly grateful for the continued dedication and support of our fundraisers. From everyone at SHINE, thank you for your ongoing generosity.

Structure, Governance and Management

Structure

Spina bifida, Hydrocephalus, Information, Networking, Equality – SHINE (SHINE) is a company limited by guarantee registered in England and Wales (Registration No. 00877990) formed in 1966. SHINE is registered as a charity with the Charity Commission for

England and Wales (Registration No. 249338).

The charity owns the entire share capital of SHINE (Trading) Limited, registered in England and Wales (No. 01031004). The consolidated accounts include SHINE (Trading) Limited (see note 9). The principal activity of the company is to raise funds for the charity.

Trustees’ Annual Report and Financial Statements Shine 27

Governance

SHINE is governed by Articles of Association, which were amended in 2018.

Organisational purpose

SHINE has a clear, sustainable corporate strategy for 2017 to 2022 consistent with the charity’s purpose and an evaluation and monitoring framework to monitor impact and measure outputs, which will continue against SHINE’s new strategy for 2022 to 2027.

SHINE consults with a wide range of stakeholder groups to determine the priorities for the charity over the next five years. These groups advise the Board and senior leadership team on matters of policy and practice and respond to consultations and specific areas of interest.

Leadership

The ultimate responsibility for the governance of the charity and its subsidiary is entrusted to the trustee board.

Board Integrity

Appointment of trustees

New Articles of Association were adopted by special resolution in 2018 specifying that any person who is willing to act as a trustee, and who is permitted by law to do so, may be appointed as a trustee by a resolution of the trustees.

A trustee must be a natural person aged 16 years or older, the minimum number of trustees is 3 and the maximum is 16. Trustees are appointed for a term of 3 years; trustees are eligible for reappointment up to two subsequent terms (each of 3 years). No trustee can serve for more than 9 consecutive years unless the trustees consider it is in the best interests of the charity that a particular trustee should continue to serve. Professor Roger Bayston continues to serve as a trustee on this basis.

Trustee induction and training

New trustees undergo an induction where they would normally visit SHINE’s registered office and meet the senior leadership team and other key employees. (In light of COVID-19 the induction of Lynn Aziza Dar and Surekha Kukadia was completed by virtual means.) They are fully appraised of the full range of SHINE’s services, projects and campaigns and provided with relevant background literature.

They receive awareness training, if required, on Spina Bifida and Hydrocephalus. Depending on their specific

skills and areas of expertise they will be put in touch with relevant staff.

Trustees are briefed on their legal obligations under charity and company law, the Articles of Association and the Board’s decision-making process. They are also informed about SHINE’s Corporate Plan, key risks, recent financial performance, and prospects for the charity.

Decision making, risk and control

The Board of Trustees is the governing body with overall legal responsibility for the charity. The Board sets the strategic direction for SHINE. It meets a minimum of four times a year; due to the COVID-19 pandemic the board met by virtual means, but now plans to return to face to face meetings.

The minutes of meetings are made available to all trustees on a timely basis. The board regularly reviews operational plans, budgets, performance, and SHINE’s main risks. The day-to-day management of the charity is delegated to the Chief Executive, who reports to the Board. The Chief Executive is assisted in the day-today management by the senior leadership team.

Senior Staff Remuneration Policy

The remuneration of senior staff is set by benchmarking with similar-sized charities, and the market rate required to attract the best people to the job.

28 Shine Trustees’ Annual Report and Financial Statements

Diversity and Inclusion

SHINE has a transparent recruitment process, advertising widely and looking at how we can attract a diverse pool of candidates.

Safeguarding

A full review of our safeguarding policies and processes began in 2020/21 to ensure that we are continually improving our approaches to safeguarding, incorporating all updated legislation, and embracing current best practice to protect the welfare of our members, staff and volunteers.

An annual safeguarding plan is agreed by trustees. The plan is prepared by the Director of Services, who is Designated Safeguarding Lead for the charity, in conjunction with Joanne Williams (and the late Patricia Adley), who are trustee leads for safeguarding.

Safeguarding training is provided for all staff, trustees, and volunteers. Incidents are reported, assessed, and enacted as appropriate with full consideration given to the requirement to report to the Charity Commission.

GDPR

Extensive work was undertaken to ensure SHINE’s ongoing compliance with the General Data Protection Regulation (GDPR). We have a designated GDPR lead, and the data management action plan is reviewed by trustees annually.

Section 172 Statement

The trustees must act in accordance with a set of general duties. These duties are laid out in s172 of the UK Companies Act 2006 which is summarised as follows: A Director of a Company must act in a way most likely to promote the benefit of its members, and in doing so have regard to:

The trustees believed they have completed their duties under s172.

Related Parties

The charity has partnerships with several local associations. These are independent charities for Spina Bifida and Hydrocephalus. Partnerships are negotiated on an individual basis which may cover a range of activities and services. The charity also works in partnership with many other bodies, voluntary, statutory, and international, in carrying out work to support service users, undertake research and disseminate information.

Volunteers

In 2021/22, SHINE had 53 registered volunteers and recorded 1,860 volunteered hours, to whom we remain eternally grateful. The volunteering roles included:

During the year three volunteer catch up meetings were held online to keep our volunteer engaged. A volunteers’ newsletter was also launched which provided updates and opportunities for them to get involved if so wished.

Trustees’ Annual Report and Financial Statements Shine 29

Statement of trustees’ responsibilities

The trustees (who are also directors of Spina Hydrocephalus, Information, Networking, Equality – SHINE), are responsible for preparing the annual report and the statements in accordance with applicable law and United Kingdom Generally Accepted Accounting Practice. Company law requires the directors to prepare statements for each year which give a true and fair view of the situation of the charitable group and of the net income or expenditure of the group for the year. In preparing these statements the directors are required to:

The trustees are responsible for keeping proper accounting records that disclose with reasonable charity and the group and enable them to ensure that Act 2006.

They are also responsible for safeguarding the assets of the charity and the group and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Statement as to disclosure of information to auditors

As far as the trustees are aware, there is no relevant audit information of which the group’s auditors are unaware. Additionally, the trustees have taken all the necessary steps that they ought to have taken as trustees to make themselves aware of all relevant audit information and to establish that the group’s auditors are aware of that information.

The trustees are responsible for the maintenance and included on the charitable company’s website.

Legislation in the United Kingdom governing the

Appointment of Auditors

The continued appointment of Azets Audit Services Limited was by the Board of Trustees on the 7th December 2021.

This report has been prepared in accordance with the special provisions relating to small companies within Part 15 of the Companies Act 2006.

By order of the Board of Trustees

Greg Smith Chair 6th September 2022

30 Shine Trustees’ Annual Report and Financial Statements

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT

TO THE TRUSTEES OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Opinion

We have audited the financial statements of Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE (the ‘charity’) and it's subsidiary for the year ended 31 March 2022 which comprise the Group Statement of Financial Activities, the Group and Parent Charitable Company Balance Sheets, the Group and Parent Charitable Company Cash Flow Statements and the notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice) .

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor's responsibilities for the audit of the financial statements section of our report. We are independent of the Group and Parent Charitable Company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the Trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charity’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the Trustees with respect to going concern are described in the relevant sections of this report.

Other information

The other information comprises the information included in the annual report other than the financial statements and our auditor's report thereon. The Trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and , except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE TRUSTEES OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of our audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the Group and Parent Charitable Company and its environment obtained in the course of the audit, we have not identified material misstatements in the d irectors’ r eport included within the Trustees' r eport.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion:

Responsibilities of Trustees

As explained more fully in the s tatement of Trustees' r esponsibilities, the Trustees, who are also the directors of the charity for the purpose of company law, are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the Trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the Trustees are responsible for assessing the Group and Parent Charitable Company's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the Trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor's responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor's report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: http s :// www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor's report.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE TRUSTEES OF SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

Extent to which the audit was considered capable of detecting irregularities, including fraud

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above and on the Financial Reporting Council’s website, to detect material misstatements in respect of irregularities, including fraud.

We obtain and update our understanding of the entity, its activities, its control environment, and likely future developments, including in relation to the legal and regulatory framework applicable and how the entity is complying with that framework. Based on this understanding, we identify and assess the risks of material misstatement of the financial statements, whether due to fraud or error, design and perform audit procedures responsive to those risks, and obtain audit evidence that is sufficient and appropriate to provide a basis for our opinion. This includes consideration of the risk of acts by the entity that were contrary to applicable laws and regulations, including fraud.

In response to the risk of irregularities and non-compliance with laws and regulations, including fraud, we designed procedures which included:

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of noncompliance. The risk of not detecting a material misstatement resulting from fraud is higher than for one resulting from error, as fraud may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal control.

Mr Mark Jackson FCA DChA (Senior Statutory Auditor) for and on behalf of Azets Audit Services

......................... 23 September 2022

Chartered Accountants Statutory Auditor

Ruthlyn House 90 Lincoln Road Peterborough United Kingdom PE1 2SP

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2022

Current financial year
Unrestricted Designated
Restricted
funds
funds
funds
2022
2022
2022
Notes
£
£
£
Income from:
Donations and legacies
3
837,222
-
393,211
Other trading activities
4
655,838
-
-
Income from in vestments
5
8,216
-
-
Total income
1,501,276
-
393,211
Expenditure on:
Raising funds
6
715,555
-
-
Charitable activities
7
649,363
121,205
408,804
Total resources expended
1,364,918
121,205
408,804
Net gains/(losses) on investments
12
8,692
-
-
Net incoming/(outgoing) resources
before transfers
145,050
(121,205)
(15,593)
Gross transfers between funds
(203,091)
169,047
34,044
Net (outgoing)/incoming resources
(58,041)
47,842
18,451
Other recognised gains and losses
Actuarial gain/(loss) on defined
benefit pension schemes
162,781
-
-
Net movement in funds
104,740
47,842
18,451
Fund balances at 1 April 2021
620,693
571,704
158,314
Fund balances at 31 March 2022
725,433
619,546
176,765		 Total
2022
£
1,230,433
655,838
8,216
1,894,487
715,555
1,179,372
1,894,927
8,692
8,252
-
8,252
162,781
171,033
1,350,711
1,521,744		 Total
2021
£
1,760,993
575,094
6,992
2,343,079
727,059
1,172,579
1,899,638
81,160
524,601
-
524,601
(17,871)
506,730
843,981
1,350,711

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF FINANCIAL ACTIVITIES (CONTINUED) INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2022

Prior financial year
Unrestricted Designated
Restricted
funds
funds
funds
2021
2021
2021
Notes
£
£
£
Income from:
Donations and legacies
3
1,211,858
-
549,135
Other trading activities
4
575,094
-
-
Income from in vestments
5
6,992
-
-
Total income
1,793,944
-
549,135
Expenditure on:
Raising funds
6
727,059
-
-
Charitable activities
7
563,350
45,754
563,475
Total resources expended
1,290,409
45,754
563,475
Net gains/(losses) on investments
12
81,160
-
-
Net incoming/(outgoing) resources before
transfers
584,695
(45,754)
(14,340)
Gross transfers between funds
(278,181)
225,629
52,552
Net (outgoing)/incoming resources
306,514
179,875
38,212
Other recognised gains and losses
Actuarial gain/(loss) on defined benefit pension
schemes
(17,871)
-
-
Net movement in funds
288,643
179,875
38,212
Fund balances at 1 April 2020
332,050
391,829
120,102
Fund balances at 31 March 2021
620,693
571,704
158,314		 Total
2021
£
1,760,993
575,094
6,992
2,343,079
727,059
1,172,579
1,899,638
81,160
524,601
-
524,601
(17,871)
506,730
843,981
1,350,711

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

BALANCE SHEETS

AS AT 31 MARCH 2022

Notes
Fixed assets
Tangible assets
14
Investments
15
Current assets
Debtors
17
Cash at bank and in hand
Creditors: amounts falling due within
one year
18
Net current assets
Total assets less current liabilities
Creditors: amounts falling due after
more than one year
19
Net assets excluding pension liability
Defined benefit pension liability
21
Net assets
Income funds
Restricted funds
22
Unrestricted funds-general
Designated funds
23
General unrestricted funds		 Group
2022
£
797,453
352,864
1,150,317
300,836
620,814
921,650
(200,494)
721,156
1,871,473
(313,688)
1,557,785
(36,041)
1,521,744
176,765
619,546
725,433
1,344,979
1,521,744		 Charity
2022
£
797,453
352,867
1,150,320
275,774
603,115
878,889
(180,720)
698,169
1,848,489
(313,688)
1,534,801
(36,041)
1,498,760
176,765
619,546
702,449
1,321,995
1,498,760		 Group
2021
£
823,163
341,378
1,164,541
378,373
650,600
1,028,973
(253,790)
775,183
1,939,724
(369,533)
1,570,191
(219,480)
1,350,711
158,314
571,704
620,693
1,192,397
1,350,711		 Charity
2021
£
820,699
341,381
1,162,080
339,989
637,285
977,274
(222,614)
754,660
1,916,740
(369,533)
1,547,207
(219,480)
1,327,727
158,314
569,240
600,173
1,169,413
1,327,727

The financial statements were approved by the board of directors and authorised for issue on ......................... 6th September 2022 and are signed on its behalf by:

.............................. .............................. Mr G Smith Mrs R Bates Trustee Trustee Company Registration No. 00877990

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

STATEMENT OF CASH FLOWS FOR THE YEAR ENDED 31 MARCH 2022

Notes
Cash flows from operating activities
Cash generated from operations
29
Investing activities
Purchase of tangible fixed assets
Interest received
Net cash generated from/(used in)
investing activities
Financing activities
Repayment of bank loans
Net cash used in financing activities
Net (decrease)/increase in cash and cash
equivalents
Cash and cash equivalents at beginning of year
Cash and cash equivalents at end of year		 2022
£
(2,877)
8,216
(48,537)		 £
13,412
5,339
(48,537)
(29,786)
650,600
620,814		 2021
£
(2,346)
2,054
(47,152)		 £
328,060
(292)
(47,152)
280,616
369,984
650,600

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022

1 Accounting policies

Company information

Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE is a private company limited by guarantee incorporated in England and Wales. The registered office is Unit 4, The Forum, Minerva Business Park, Peterborough, Cambridgeshire, PE2 6FT, United Kingdom.

1.1 Accounting convention

The financial statements have been prepared in accordance with the charity's governing document, the Companies Act 2006 and “Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)” (as amended for accounting periods commencing from 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.

The financial statements have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a true and fair view. This departure has involved following the Statement of Recommended Practice for charities applying FRS 102 rather than the version of the Statement of Recommended Practice which is referred to in the Regulations but which has since been withdrawn.

The financial statements are prepared in sterling , which is the functional currency of the charity . Monetary a mounts in these financial statements are rounded to the nearest £.

The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.

The consolidated accounts incorporate the results of the charity and of its wholly owned subsidiary.

1.2 Going concern

At the time of approving the financial statements, the Trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objectives unless the funds have been designated for other purposes.

Designated funds comprise funds which have been set aside at the discretion of the Trustees for specific purposes. The purposes and uses of the designated funds are set out in the notes to the financial statements .

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.

Endowment funds are subject to specific conditions by donors that the capital must be maintained by the charity.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

1 Accounting policies

(Continued)

1.4 Incoming resources

Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.

Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.

Gifts donated for resale are included as income when they are sold. No amounts are included in the financial statements for services donated by volunteers.

Grant income is recognised according to the terms of each individual agreement.

All other income is dealt with on an accruals basis.

1.5 Resources expended

Direct expenditure is analysed and charged to the department incurring the cost. Expenditure is included when incurred, the majority of costs being directly attributable to specific activities. Costs that can not be directly attributable to particular headings, are allocated to activities on a basis consistent with use of the resources. Premises and other overheads have been allocated on a head count basis.

Fundraising costs are those incurred in seeking voluntary contributions and do not include the costs of disseminating information in support of chartable activities.

Governance costs are those incurred in connection with the governance arrangements of the charity and compliance with constitutional and statutory requirements.

1.6 Tangible fixed assets

Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses. Assets over £1,000 in value are capitalised at cost.

Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the straight line basis at the following rates :

Land and buildings Buildings - 2%, land is not depreciated
Fixtures and fittings 20%
Equipment 20%
Software and website 20 - 33%

The gain or loss arising on the disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is recognised in net income/(expenditure) for the year.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

1 Accounting policies

(Continued)

1.7 Impairment of fixed assets

At each reporting end date, the charity reviews the carrying amounts of its tangible and intangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any ) .

1.8 Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits repayable on demand and overdrafts. Deposits are repayable on demand if they are in practice available within 24 hours without a penalty. Liquid resources comprise assets held as a readily disposable store of value.

1.9 Financial instruments

Financial instruments are recognised when the charity becomes party to the contractual provisions of the instrument.

Financial assets are offset, with the net amounts presented in the accounts when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future p aymen ts discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the charity ’s contractual obligations expire or are discharged or cancelled.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

1 Accounting policies

(Continued)

1.10 Provisions

Provisions are recognised when the charity has a legal or constructive present obligation as a result of a past event, it is probable that the charity will be required to settle that obligation and a reliable estimate can be made of the amount of the obligation.

The amount recognised as a provision is the best estimate of the consideration required to settle the present obligation at the reporting end date, taking into account the risks and uncertainties surrounding the obligation. Where the effect of the time value of money is material, the amount expected to be required to settle the obligation is recognised at present value. When a provision i s measured at present value , the unwinding of the discount is recognised as a finance cost in net income/(expenditure) in the period in which it arises.

1.11 Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the company is demonstrably committed to terminate the employment of an employee .

1.12 Retirement benefits

For employees choosing to participate, the charity operates a defined contribution pension scheme providing benefits additional to those from the State. The assets are held in a separately administered scheme. The pensions cost charge represents contributions payable by the company to the pension scheme in respect of the year.

Previously, the charity were part of a separately administered defined benefit scheme and is still required to make contributions to fund a deficit in the scheme.

The cost of providing benefits under defined benefit plans is determined separately for each plan using the projected unit credit method, and is based on actuarial advice.

The net interest element is determined by multiplying the net defined benefit liability by the discount rate, taking into account any changes in the net defined benefit liability during the period as a result of contribution and benefit payments. The net interest is recognised in income/(expenditure) for the year .

Remeasurement changes comprise actuarial gains and losses, the effect of the asset ceiling and the return on the net defined benefit liability excluding amounts included in net interest. These are recognised immediately in other recognised gains and losses in the period in which they occur and are not reclassified to income/(expenditure) in subsequent periods.

The net defined benefit pension asset or liability in the balance sheet comprises the total for each plan of the present value of the defined benefit obligation (using a discount rate based on high quality corporate bonds), less the fair value of plan assets out of which the obligations are to be settled directly. Fair value is based on market price information, and in the case of quoted securities is the published bid price. The value of a net pension benefit asset is limited to the amount that may be recovered either through reduced contributions or agreed refunds from the scheme.

1.13 Leases

Rentals payable under operating leases, including any lease incentives received, are charged as an expense on a straight line basis over the term of the relevant lease.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

2 Critical accounting estimates and judgements

In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.

3 Donations and legacies

Unrestricted
Restricted
funds
funds
2022
2022
£
£
Donations and gifts
723,505
454
Legacies receivable
113,717
-
Grants receivable
-
392,757
837,222
393,211
For the year ended 31 March 2021
1,211,858
549,135
Donations and gifts
Individuals
339,481
-
Trusts
134,308
-
Corporate donors
212,625
-
Local Authorities
-
-
Local associations
2,966
-
Support groups
-
454
Health Trusts
34,125
-
723,505
454		 Total
2022
£
723,959
113,717
392,757
1,230,433
339,481
134,308
212,625
-
2,966
454
34,125
723,959		 Total
2021
£
596,326
585,388
579,279
1,760,993
1,760,993
268,217
141,368
128,960
20,000
2,949
167
34,665
596,326

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

3
Donations and legacies
Unrestricted
Restricted
funds
funds
2022
2022
£
£
Grants receivable for core activities
National Lottery Community fund Northern Ireland
Bright Stars
-
64,589
National Lottery Community fund Cymru Health hub
-
-
National Lottery Community fund Cymru Shining
lights
-
91,307
National Lottery COVID19 emergency response
-
-
Early Intervention (Community lottery & others)
-
132,511
National Lottery Community Fund - Here for you
-
10,000
National Lottery Community Fund Northern Ireland -
Here for you
-
10,000
The Edward Gosling Foundation - Here for you
-
5,000
Wales Council for Voluntary Action
-
11,621
The Clare Milne Trust
-
16,888
Vinci UK Foundation
-
6,975
Margaret Giffen Charitable Trust
-
30,000
Coronavirus job retention scheme grant
-
-
Other
-
13,866
-
392,757		 (Continued)
Total
Total
2022
2021
£
£
64,589
108,338
-
9,830
91,307
89,588
-
100,000
132,511
206,198
10,000
-
10,000
-
5,000
-
11,621
-
16,888
-
6,975
-
30,000
-
-
48,894
13,866
16,431
392,757
579,279

4 Other trading activities

Income of trading subsidiary
Donations sold through shops
Rental income
Publications and attendance fees		 2022
£
615,096
39,370
597
775
655,838		 2021
£
557,186
10,715
6,228
965
575,094

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

5 Income from in vestments

Income from listed investments
Interest receivable
Raising funds
Fundraising and publicity
Direct staff costs
Other fundraising direct costs
Support costs (see note 8)
Fundraising and publicity
Shine
(Trading)
Limited
£
Trading costs
Direct staff costs
132,923
Other direct operational costs
32,928
Support costs (see note 8)
102,129
Trading costs
267,980		 Shops
£
20,968
1,838
8,961
31,767		 2022
£
6,144
2,072
8,216
2022
£
282,486
43,902
89,420
415,808
Total
2022
£
153,891
34,766
111,090
299,747
715,555		 2021
£
4,938
2,054
6,992
2021
£
298,224
32,731
51,054
382,009
Total
2021
£
145,512
54,159
145,379
345,050
727,059

6 Raising funds

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

7 Charitable activities

Improving
Outcomes
through
early
intervention
Access to
better care
and
services
£
£
Direct staff costs
287,663
112,930
Other direct costs
28,979
11,379
316,642
124,309
Share of support costs (see note 8)
45,541
17,878
Share of governance costs (see note 8)
6,924
2,680
369,107
144,867
Analysis by fund
Unrestricted funds - general
Unrestricted funds - designated
Restricted funds		 Improved
lifestyle
and
choices
Preventing
Spina
Bifida
Quality
information
& support
£
£
£
337,946
64,028
116,391
34,052
6,452
11,728
371,998
70,480
128,119
53,505
10,137
18,426
8,265
1,564
2,904
433,768
82,181
149,449		 Total
2022
£
918,958
92,590
1,011,548
145,487
22,337
1,179,372
649,363
121,205
408,804
1,179,372		 Total
2021
£
907,726
121,590
1,029,316
120,543
22,720
1,172,579
563,350
45,754
563,475
1,172,579

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

8
Support and governance costs
Fundraising
and publicity
Support costs
£
Staff costs
48,642
IT costs
8,003
Premises costs
22,737
Other support costs
10,038
89,420
Governance costs
Staff costs
Audit fees
Other governance costs		 Trading
costs
Charitable
activities
£
£
32,408
57,767
14,633
22,996
37,212
35,877
26,837
28,845
111,090
145,485		 2022
£
138,817
45,632
95,826
65,720
345,995
2022
£
13,647
8,690
-
22,337		 2021
£
101,425
35,150
83,415
96,987
316,977
2021
£
13,135
9,585
-
22,720

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

9 Commercial operations in trading subsidiary

The charity has one wholly owned trading subsidiary undertaking, Shine (Trading) Limited which sells advertising space in various publications and balloons for virtual balloon races. The company gift aids virtually all its taxable profits to Shine. A summary of its trading results is shown below. Audited accounts have been filed with the Registrar of Companies.

2022 2021
Shine (Trading) Ltd Profit & Loss Account £ £
Turnover 615,096 557,186
Cost of sales (168,496) (177,673)
Gross profit 446,600 379,513
Administration expenses (71,503) (107,594)
Other operating income - 8,476
Operating profit 375,097 280,395
Amount payable by gift aid to Shine (375,097) (280,395)
Profit on ordinary activities - -
2022 2021
Shine (Trading) Ltd Balance Sheet £ £
Fixed assets - 2,464
Current assets 135,348 112,054
Current liabilities (112,361) (91,531)
Net current assets 22,987 20,523
Total net assets 22,987 22,987
Aggregate share capital and reserves 22,987 22,987

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

10 Employees

Number of employees

The average monthly number of full time equivalent employees during the year was:

Services
Fundraising and publicity
Shops
Administration
Shine (Trading) Limited
Employment costs
Wages and salaries
Redundancy costs
Social security costs
Other pension costs
Other staff related benefits
The number of employees whose annual remuneration was £60,000 or
more were:
£80,001 - £90,000
£70,001 - £80,000
£60,001 - £70,000
Pension contributions for higher paid employees were £6,560 (2021 - £10,432).		 2022
Number
26
9
1
4
5
45
2022
£
1,334,511
12,068
119,187
45,997
3,642
1,515,405
2022
Number
1
-
-		 2021
Number
27
10
1
4
5
47
2021
£
1,334,398
12,999
120,056
48,131
3,803
1,519,387
2021
Number
-
1
1

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

11 Trustees

None of the Trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.

In respect of attending meetings of committees, travel expenses amounting to £nil (2021 - £nil) have been reimbursed to no (2021 - no) members of the Board of Trustees.

The accounts include a charge of £2,880 (2021 - £2,304) to provide the Trustees with indemnity insurance.

12 Net gains/(losses) on investments

Revaluation of investments
Gain/(loss) on sale of investments		 Total
2022
£
(1,792)
10,484
8,692		 Total
2021
£
75,285
5,875
81,160

13 Taxation

Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE is a registered charity. It only applies its funds in accordance with its charitable objectives, and is not trading with a view to making distributable profits, therefore c orporation tax is not chargeable.

The trading subsidiary has gifted its profits to Spina Bifida, Hydrocephalus, Information, Networking, Equality - SHINE under Gift Aid therefore no corporation tax is payable

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

14
Tangible fixed assets
Group
Cost
At 1 April 2021
Additions
At 31 March 2022
Depreciation and impairment
At 1 April 2021
Depreciation charged in the year
At 31 March 2022
Carrying amount
At 31 March 2022
At 31 March 2021
Charity
Cost
At 1 April 2021
Additions
At 31 March 2022
Depreciation and impairment
At 1 April 2021
Depreciation charged in the year
At 31 March 2022
Carrying amount
At 31 March 2022
At 31 March 2021		 Land and
buildings
Equipment
Fixtures
and fittings
Software
and website
£
£
£
£
1,487,404
36,566
17,024
24,918
-
2,038
-
839
1,487,404
38,604
17,024
25,757
674,892
34,621
17,024
16,212
17,496
1,546
-
9,545
692,388
36,167
17,024
25,757
795,016
2,437
-
-
812,512
1,945
-
8,706
Land and
buildings
Equipment
Fixtures
and fittings
Software
and website
£
£
£
£
1,487,404
33,927
17,024
17,889
-
2,038
-
839
1,487,404
35,965
17,024
18,728
674,892
31,982
17,024
11,647
17,496
1,546
-
7,081
692,388
33,528
17,024
18,728
795,016
2,437
-
-
812,512
1,945
-
6,242		 Total
£
1,565,912
2,877
1,568,789
742,749
28,587
771,336
797,453
823,163
Total
£
1,556,244
2,877
1,559,121
735,545
26,123
761,668
797,453
820,699

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

15
Fixed asset investments
Investments in subsidiaries
Listed investments
Movements in fixed asset investments
Group and Charity
Cost or valuation
At 31 March 2021
Additions within portfolio
Disposals within portfolio
Valuation changes
Cash held for investment
At 31 March 2022
16
Financial instruments
Carrying amount of financial assets
Trade debtors
Other debtors
Accrued income
Amounts due from subsidiary undertakings
Bank and cash
Measured at cost
Fixed asset investments
Measured at market value		 Group
2022
£
-
352,864
352,864
Group
2022
£
212,511
750
27,500
-
620,814
861,575
352,864
352,864		 Charity
2022
£
3
352,864
352,867
Charity
2022
£
98,469
750
27,500
92,587
603,115
822,421
352,867
352,867		 Group
2021
£
-
341,378
341,378
2022
£
322,179
78,408
(75,233)
13,590
338,944
13,920
352,864
Group
2021
£
115,018
750
246,838
-
650,600
1,013,206
341,378
341,378		 Charity
2021
£
3
341,378
341,381
2021
£
218,217
77,164
(57,986)
84,784
322,179
19,199
341,378
Charity
2021
£
19,996
750
246,838
60,355
637,285
965,224
341,381
341,381

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

(Continued)
16 Financial instruments Group Charity Group Charity
Carrying amount of financial liabilities
Trade creditors 20,654 20,507 27,911 27,764
Accruals and deferred income 48,467 41,590 37,787 29,677
Other creditors 42,560 42,560 93,213 93,213
Other taxation and social security 40,285 27,535 53,659 30,740
Bank loans 362,216 362,216 410,753 410,753
Measured at cost 514,182 494,408 623,323 592,147
17 Debtors
Group Charity Group Charity
2022 2022 2021 2021
Amounts falling due within one year: £ £ £ £
Trade debtors 212,511 98,469 115,018 19,996
Amounts due from subsidiary undertakings - 92,587 - 60,355
Other debtors 750 750 750 750
Prepayments and accrued income 87,575 83,968 262,605 258,888
300,836 275,774 378,373 339,989
The net amount owed by the subsidiary includes amounts owing for gift aid receivable and payment for
services provided.
18 Creditors: amounts falling due within one year
Group Charity Group Charity
2022 2022 2021 2021
Notes £ £ £ £
Loans and overdrafts 20 48,528 48,528 41,220 41,220
Other taxation and social security 40,285 27,535 53,659 30,740
Trade creditors 20,654 20,507 27,911 27,764
Other creditors 42,560 42,560 93,213 93,213
Accruals and deferred income 48,467 41,590 37,787 29,677
200,494 180,720 253,790 222,614
19 Creditors: amounts falling due after more than one year
2022 2021
Group and Charity Notes £ £
Loans and overdrafts 20 313,688 369,533

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

20
Loans and overdrafts
Group and Charity
Bank loans
Payable within one year
Payable after one year		 2022
£
362,216
48,528
313,688		 2021
£
410,753
41,220
369,533

The bank loan is secured by a first legal charge over the freehold property known as 42 Park Road, Peterborough. The loan is repayable until 2027 with interest charged at 3.5% above base rate.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

21 Retirement benefit schemes

The Pensions Trust - The Growth Plan

SHINE participates in The Pension Trust's Growth Plan (The Plan), a multi-employer scheme which provides benefits to some 638 non-associated participating employers. The scheme is a defined benefit scheme in the UK.

It is not possible for the charity to obtain sufficient information to enable it to account for the scheme as a defined benefit scheme. Therefore it accounts for the scheme as a defined contribution scheme.

The scheme is subject to the funding legislation outlined in the Pensions Act 2004 which came into force on 30 December 2005. This, together with documents issued by the Pensions Regulator and Technical Actuarial Standards issued by the Financial Reporting Council, set out the framework for funding defined benefit occupational pension schemes in the UK.

The scheme is classified as a 'last-man standing arrangement'. Therefore the charity is potentially liable for other participating employers' obligations if those employers are unable to meet their share of the scheme deficit following withdrawal from the scheme. Participating employers are legally required to meet their share of the scheme deficit on an annuity purchase basis on withdrawal from the scheme.

A full actuarial valuation for the scheme was carried out at 30 September 2020. This actuarial valuation showed assets of £800.3m, liabilities of £831.9m and a deficit of £31.6m. To eliminate this funding shortfall, the trustees and the participating employers have agreed that additional contributions will be paid to the scheme as follows:

Deficit contributions

From 1 April 2022 to 31 January 2025:

£3,312,000 per annum (payable monthly)

Note that the scheme's previous valuation was carried out with an effective date of 30 September 2017. This valuation showed assets of £794.9m, liabilities of £926.4m and a deficit of £131.5m. To eliminate this funding shortfall, the Trustee asked the participating employers to pay additional contributions to the scheme as follows:

Deficit contributions

From 1 April 2019 to 30 September 2025:

£11,243,000 per annum (payable monthly and increasing by 3% each on 1st April)

The recovery plan contributions are allocated to each participating employer in line with their estimated share of the Series 1 and Series 2 scheme liabilities.

Where the scheme is in deficit and where the charity has agreed to a deficit funding arrangement the company recognises a liability for this obligation. The amount recognised is the net present value of the deficit reduction contributions payable under the agreement that relates to the deficit. The present value is calculated using the discount rate detailed in these disclosures. The unwinding of the discount rate is recognised as a finance cost.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

21 Retirement benefit schemes (Continued)
Present values of provision
31 March 31 March 31 March
2022 2021 2020
Present value of provision 56,698 293,838 348,159

An amount of £20,657 (2021 - £74,358) is included within short term creditors and £36,041 (2021 - £219,480) in long term liabilities.

Reconciliation of opening and closing provisions

Reconciliation of opening and closing provisions
Year Year
Ending Ending
31 March 31 March
2022 2021
Provision at start of period 293,838 348,159
Unwinding of the discount factor (interest expense) 1,694 7,822
Deficit contribution paid (74,358) (72,192)
Remeasurements - impact of any change in assumptions (1,303) 10,049
Remeasurements - amendments to the contribution schedule (163,173) -
Provision at end of period 56,698 293,838
Income and expenditure impact
Year Year
Ending Ending
31 March 31 March
2022 2021
Interest expense 1,694 7,822
Remeasurements - impact of any change in assumptions (1,303) 10,049
Remeasurements - amendments to the contribution schedule (163,173) -
Costs recognised in income and expenditure account (162,782) 17,871

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

21 Retirement benefit schemes (Continued)
Assumptions
31 March 31 March 31 March
2022 2021 2020
% per annum % per annum % per annum
Rate of discount 2.35 0.66 2.53

The discount rates shown above are the equivalent single discount rates which, when used to discount the future recovery plan contributions due, would give the same results as using a full AA corporate bond yield curve to discount the same recovery plan contributions.

The following schedule details the deficit contributions agreed between the company and the scheme at each year end period:

Deficit contributions schedule

Year ending 31 March 31 March 31 March
2022 2021 2020
Year 1 20,657 74,358 72,192
Year 2 20,657 76,589 74,358
Year 3 17,214 78,887 76,589
Year 4 - 67,711 78,887
Year 5 - - 67,711

The charity must recognise a liability measured as the present value of the contributions payable that arise from the deficit recovery agreement and the resulting expense in the income and expenditure account i.e. the unwinding of the discount rate as a finance cost in the period in which it arises.

It is these contributions that have been used to derive the charity's balance sheet liability.

The Plan is closed to new entrants and there were no active members of the scheme during the year.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

22 Restricted funds

The income funds of the charity include restricted funds comprising the following unexpended balances of donations and grants held on trust for specific purposes:

Balance at
1 April 2020
Income
Expenditure
Group and Charity
£
£
£
National Lottery Community Fund –
Early intervention programme across
England
63,963
224,948
(232,426)
National Lottery Community fund
Northern Ireland Bright Stars
12,830
108,338
(92,791)
International Projects – developing a
continence clinic in Nigeria
4,031
-
(3,769)
Coop Grant
2,617
-
-
National Lottery Community fund:
Cymru Health hub
-
9,830
(4,915)
National Lottery Community fund:
Cymru Shining lights
-
89,588
(90,014)
South West Country SDW
-
-
-
COVID 2021/22 "Here for you"
-
-
-
Database development
-
-
-
Welfare Grants
-
16,431
(16,431)
Support Groups
1,025
-
-
Buchanan & Henry Allen – supporting
our work in the North of England
10,040
-
(2,468)
Margaret Giffen Charitable Trust -
supporting our work in Northampton
15,000
-
(10,065)
Carried forward to next page
109,506
449,135
(452,879)		 TransfersBalance at
1 April 2021
Income
Expenditure
Transfers
Balance at
31 March 2022
£
£
£
£
£
£
34,878
91,363
132,511
(161,064)
33,673
96,483
3,034
31,411
64,589
(77,263)
-
18,737
-
262
11,621
(160)
-
11,723
-
2,617
-
(160)
-
2,457
-
4,915
-
(4,915)
-
-
14,640
14,214
91,307
(91,792)
371
14,100
-
-
16,888
(10,086)
-
6,802
-
-
32,613
(28,891)
-
3,722
-
-
6,975
(6,060)
-
915
-
-
6,253
(6,238)
-
15
-
1,025
454
(108)
-
1,371
-
7,572
-
(7,572)
-
-
-
4,935
30,000
(14,495)
-
20,440
52,552
158,314
393,211
(408,804)
34,044
176,765

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

22 Restricted funds

Restricted funds
Balance at
1 April 2020
Income
Expenditure
Group and Charity
£
£
£
Brought forward from previous page
109,506
449,135
(452,879)
National Lottery Community Fund -
Shine voices
9,975
-
(9,975)
Wales Council for Voluntary Action -
Volunteer and shine
621
-
(621)
National Lottery community fund
COVID19 emergency response
-
100,000
(100,000)
120,102
549,135
(563,475)		 TransfersBalance at
1 April 2021
Income
Expenditure
£
£
£
£
52,552
158,314
393,211
(408,804)
-
-
-
-
-
-
-
-
-
-
-
-
52,552
158,314
393,211
(408,804)		 (Continued)
Transfers
Balance at
31 March 2022
£
£
34,044
176,765
-
-
-
-
-
-
34,044
176,765

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

23 Designated funds

The income funds of the charity include the following designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes:

Balance at Net
Balance at		 Net Balance at
1 April 2020 movement
1 April 2021		 movement 31 March
2022
Group £ £
£		 £ £
Interest in land and property and other
fixed assets 391,829 20,579
412,408		 22,829 435,237
Florence Bartle fund - 114,121
114,121		 (39,462) 74,659
HR fund - 45,175
45,175		 (37,675) 7,500
Services in Northern Ireland and Wales - -
-		 70,650 70,650
Dilapidations - -
-		 31,500 31,500
391,829 179,875
571,704		 47,842 619,546
Charity
Interest in land and property and other
fixed assets 387,273 22,671
409,944		 25,293 435,237
Florence Bartle fund - 114,121
114,121		 (39,462) 74,659
HR fund - 45,175
45,175		 (37,675) 7,500
Services in Northern Ireland and Wales - -
-		 70,650 70,650
Dilapidations - -
-		 31,500 31,500
387,273 181,967
569,240		 50,306 619,546

The designated fund comprises

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

24
Analysis of net assets between funds
Unrestricted
funds
Designated
funds
Restricted
funds
2022
2022
2022
Group
£
£
£
Fund balances at 31 March 2022 are
represented by:
Tangible assets
-
797,453
-
Investments
352,864
-
-
Current assets/(liabilities)
408,610
135,781
176,765
Long term liabilities
-
(313,688)
-
Provisions and pensions
(36,041)
-
-
725,433
619,546
176,765
Charity
Fund balances at 31 March 2022 are
represented by:
Tangible assets
-
797,453
-
Investments
352,867
-
-
Current assets/(liabilities)
385,623
135,781
176,765
Long term liabilities
-
(313,688)
-
Provisions and pensions
(36,041)
-
-
702,449
619,546
176,765		 Total Unrestricted
funds
Designated
funds
Restricted
funds
2022
2021
2021
2021
£
£
£
£
797,453
-
823,163
-
352,864
341,378
-
-
721,156
498,795
118,074
158,314
(313,688)
-
(369,533)
-
(36,041)
(219,480)
-
-
1,521,744
620,693
571,704
158,314
797,453
-
820,699
-
352,867
341,381
-
-
698,169
478,272
118,074
158,314
(313,688)
-
(369,533)
-
(36,041)
(219,480)
-
-
1,498,760
600,173
569,240
158,314		 Total
2021
£
823,163
341,378
775,183
(369,533)
(219,480)
1,350,711
820,699
341,381
754,660
(369,533)
(219,480)
1,327,727

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

25 Operating lease commitments

Group and Charity

At the reporting end date the charity had outstanding commitments for future minimum lease payments under non-cancellable operating leases, which fall due as follows:

Within one year
Between two and five years		 2022
£
24,215
164,901
189,116		 2021
£
5,460
20,475
25,935

26 Related party transactions

Remuneration of key management personnel

The remuneration of key management personnel, who on a full time equivalent basis are the 2.8 (2021 - 3.8) members of the senior management team, is as follows.

2022 2021
£ £
Aggregate compensation including pension contributions 206,828 250,904

Transactions with related parties

Owing to the nature of the charity's operations , s ome of the Trustees may themselves, or may have family members that access services from the charity. C onsequently there will be transactions between those Trustees or their family members . These are on the same basis as other service users of the charity .

27 Control

No one individual has overall control of the charity.

28 Post balance sheet event

Following the end of the year the charity completed on the sale of its property. The sale resulted in a profit on disposal of approximately £ 530,000 a nd the bank loan has been repaid in full.

SPINA BIFIDA, HYDROCEPHALUS, INFORMATION, NETWORKING, EQUALITY - SHINE

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2022

29 Cash generated from operations 2022 2021
£ £
Surplus for the year 171,033 506,730
Adjustments for:
Investment income recognised in statement of financial activities (8,216) (6,992)
Investment management fees recognised in statement of financial activities (2,794) 4,174
Gain on disposal of investments (10,484) (5,875)
Fair value gains and losses on investments 1,792 (75,285)
Depreciation and impairment of tangible fixed assets 28,587 28,917
Movements in working capital:
Decrease/(increase) in debtors 77,537 (82,202)
(Decrease)/increase in creditors (60,604) 15,080
Increase/(decrease) in pension liability (183,439) (56,487)
Cash generated from operations 13,412 328,060
30 Analysis of changes in net funds
Group At 1 April Cash flows At 31 March
2021 2022
£ £ £
Cash at bank and in hand 650,600 (29,786) 620,814
Loans falling due within one year (41,220) (7,308) (48,528)
Loans falling due after more than one year (369,533) 55,845 (313,688)
239,847 18,751 258,598
Charity
Cash at bank and in hand 637,285 (34,170) 603,115
Loans falling due within one year (41,220) (7,308) (48,528)
Loans falling due after more than one year (369,533) 55,845 (313,688)
226,532 14,367 240,899

Trustees’ Annual Report and Financial Statements Shine 63

SHINE Registered Office Unit 4, Minerva Business Park, Peterborough, PE2 6FT Telephone 01733 555988 Email firstcontact@SHINEcharity.org.uk www.shinecharity.org.uk Charity number 249338, Company number 00877990