Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 BRITISH EPILEPSY ASSOCIATION (A company limited by guarantee) TRUSTEES, REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 REGISTERED NUMBER: 00797997 CHARITY NUMBER: 234343 EPILEPSY ACTION Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 CONTENTS Chalr's report Honorary Treasurer's report Trustees, annual report Strategic report Independenl Auditor's Report to The Members of Brilish Epilepsy Association 20 Statement of Flnanclal Activities 23 Balance Sheet 24 Statement of Cash Flows 25 Notes to the flnanclal statements 26-45 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Chair's report l am honoured to have been re-elected as Chairof the Board of Trustees in July 2024 and extend my heartfelt gratitude to my fellow Board Members for their unwavering support and dedication throughout the year. I would like to express special appreciation to Peter Clough for hisdedicated service as Vlce Chair, to Nicholas Hutton for his contributlon as Honorary Treasurer 2nd nowasvice Chair, and lo Katle Stevens, who assumed the role of Honorary Treasurer In July 2024. We bid a fondfarewell to Jayne Burton, Avril Coelho, Stephen Timewell and lan Walker, who stepped down from the Board during the financial year. In February, Flichard Chapman also retired after many years ol dedicated service, including over 20 years as a volunteer and trustee since1987, serving as Chairman on three separate occasions. We are deeply grateful to all our colleagues for their invaluable contributions and wish them well in their luluro endeavours. At the same timo, we wolcomed hmo new members to thè Board: Nlcola Adamson and Sally Taylor. Both brlng valuable personal experlonce with opllepsy and are already provlng to be slgnlflcant assets lo ourteam. Our financlal performance In 2024 Is detailed In Kalle Stevens's Honorary Treasurer's report and the accompanylng flnanclal statements. l extend slncere thanks to our members. supporters, and donors whose generoslty enables us to asslsl and support so many indivlduals. In 2024, we launched our ambltlous slx-year 8trategy,"Wlthout Llmlt8," almlng lo create aworld wlthout limlts for pèoplg wlth epllepsy. Th15 pL4n, developed with Input from over 5,000 Indlvlduals affected by epllepsy, Outllnes three key ambltlons.. iMpro￿ng livgs, ra15ing awargness, and losterlng inclusivlty, To support thls, we recognise that our strategy must always be accompanied by a c1059 examination of the organisation Itself. That15 why we have embarked on an ongolng gov8rnanee revlèw to ènsure thè eharlty Is In tho bost shapè posslble to dellver on Its ambitions. Complementlng our straleglc plan, we unvelled a new brand Idenllty.. the flrst rebrand slnce 2001. Deslgned to represent the'interruption. that epilepsy causes In people's Ilves., the new logo and vlsual Idenlltywere developed wlth conlrbbutlons from ourcommunlty and symbollse ourforward-looklng dlrection. It has already supported us Sn developing new external partnershlps including being the chosen charity for the Creatlve Shoolout thatwlll dellver hundreds ofthousands worthof advertlslng servlces In 2025. As we lookto the future. we also acknowledge a slgnlllcant change In our leadershlp. Our Chl8f Execullve, Philp Lee, stepped down In November 2024 alter more than 37 years ol dedicated servlc8 to Epllepsy Action, includlro 28 years as Chlel Executive. Under hls leadershlp, the charlty has made great strldes in supporllng people wllh epllepsy, expanding our reach, shaping a bold new strategy. We are Immensaly grateful lor hls contrlbutlons and wish him 811 the bast In his next chapter. To ensure stability and continuity during this transitlon, Rebekah Smith stepped into the role of Interim Chief Executive, having served as Deputy Chief Executive since 2021. With her deep understanding ol the organisation and unwavering commitment lo our mission, she provided strong leadership at a crucial lime. keeping us focused on dellverlng our strategy. Recognising her Impact and vlslon lor the charity, the Board was dellghted to appolnt her as permanent Chlel Execullve earller thls year. We are confldent that under Rebekah's leadershlp, Epllepsy Actlon will contlnue to grow, thrlve. and make an even greater dlfference In the Ilves ol people with epilepsy. This leadership Iransltion comes at a partlcularly Important moment in our hlslory, as we markthe 75th anniversary of Epilepsy Action in September 2025. This milestone is a lime to reflect on the progress we have made and lo reallirm our commitment to a future where people with epilepsy can live withoLJt limits. As we celebrate the achievements of the past, we remain focused on the road ahead, ensuring that the charity 15 Strongerthan ever for the next 75 years. The charlty Is In a strong posltlon, wlth a solld flnanclal base, hlgh-quallty servlcesand a dedlcated team and I want to take Ihls opportunll lo thankyou all loryour hard work, dedlcation and endless enthuslasm during 2024. gfi•d by.. Jane Rlley Chair, Board o 13 May2025 15EBB44C Page 11 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Honorary Treasurer's report The Board of Trustees takes a strategic view ol financial progress, regularly monitoring and evaluating performance against the forecasls in the annual revenue budget which is aligned to our ambitioussix-year strategy. Desplte the ongolng economic challenges, including rlsing cost- ol-llvlng pressures and inflation, l am pleased to reportthat the charity's flnanclJ results for 2024 excegded expectatlons. As part ol the strategic investment in Ihe'without Limits. strategy, resources were allocated in the 2024 budget to begin the delivery of key projects. We anticipated that this investment would lead lo an overal financial loss for the year. However, thanksto new income generation opportunities and prudent expenditure management. the results were lar more favourable than initially projected. Incomg In 2024 totallgd £3,624,55612023.. £2,767,139), returnlng tolgvels morg conslslentwllh our hlstoric pgrformance after Ihg exceptional rocolpts In 2022, whlch Included legacies and grant Income. This year-on-year increase. achieved under challenging condltions. is a leslament to the generoslly and dedication of our donors, supporters, and volunteers. Their unwaverlng commitment remalns cruclal to the charlty's abllily to conllnue ils work. Expendllure In 2024 amounted to £4,300,32312023.. £4,113,476), withsome costscontinulng lo be Incurred lor multl-year grantswhich. under charltyaccounting requirements,were Included In income In 2022for the full amount of the grant value.Thgse projects Include our counselling, befriending, and family 5UPPOrt projects. Whlle we had anticipated a dellclt, the Increas8 in gxpenditure was relatlV8ly modest. This rgflects the charity's conllnued focus on prudent financial management and eflecllve resource allocation, desplte the rlslng costs of essential serviees, p8rsonnel, and ov8rh8ads. The charlty ended the year wbth a deflclt of £675,76712023.. £1,346,337). Afteraccountlng for an unreallsed galn of £101,760 on Investmenls12023'. galn £67,2221, the net movement In funds for 2024 was an outgobng of £574,007 12023. outgoing £1,279,115). Total funds al year-end stood al £3,415,55412023.. £3,989,561), whlch Is ahead of expected performance and compares favourably wllh £3,672,153 In 2021, particularlywhen offset agalnst the exceptional performance In 2022 and the strategic Investment undertaken in 2024. Spendlng on charllable actlvltles Increased in 2024 by £92,988to£2,841,26912023.'£2,748,2811. Of thls, É1,772,813 12023. É1,949,8471 was spent on Improvlng healthcare servlces lor people with epllepsy, and 21,068,45612023'. £798,434) went toward increaslng awareness and understandlng ol the condlllon. Fundraislng coslsfor the year, Including other trading activltles,tolalled É1,459,05412023'. £1,365,195). Ourfundralslng efforts generated over twlce as much In Incomeforthe charltyas they costto deliver, meanlng It cost uslust£1 to ralse £2.20 of funds. In line with our reserves pollcy, which ensures that unrestricted raserves are malntalned wlthin a range of four to twelve months of total unrestrlcted Income. unrestricted reserves should fall between £1,155.157 Ifor four months of coverl and £3,465,470 Ifortwelve months ol coverl, based on an unrestricted income target of £3.465,470 for the 2024 revenue budget. Al the end of 2024. unreslricled reserves were £1,669,34212023.. £1.980,6651. representing 5.77 months ol unrestrlcled Incomeand wllhin the spedfied reserves pollcy range12023.. 6.85 months of unreslrlcled Income). Total reserves at year-end stood al E3,415,54 compared wllh £3.989,561 In 202 Of the total, £481,375 was held under deslgnated lunds12023.' £482.8051, whlle £1.267,837was held for restricted purposes12023.. £1,526.091}. As I reflect on the financial progress made, I would liketoexpres5 my sincere thank5 to my predecessor, Nick Hutton,as Honorary Treasurerforhis stewardship and invaluable contributionsto the charilyas he takes on the role of Vice Chair. l also want lo acknowledge the work and commitment of our team, volunteers, donors, and SUPPOrters. Their collective effort has been instrumental in achieving these results.The progress in 2024, ahead of expectatlons, demonstrates the effecllveness of our strateglc Investments, the resilience ol our organisatlon, and the continued generosity of our supporters. As we move forward wllh the six-year strategy, the charity must contlnue to ensure long-term flnancial sustalnablllly. While resourclng our new strategy remains a priorlly.11 Is equally Important thatwecontlnue to balance spending wlth income generation to secure the charity'sfuture. Katle Stevens Honorary Treasurer 13 May2025 EA9141AEAQ8C433 Page12 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Trustees, annual report The trustees ol British Epilepsy Association have pleasure in presenting ilsTrustees' Annual Report incorporating the Strategic Report and Audited Accounts forthe year ended 31 December 2024. Struclur8. governance and management The organisatlon was Ilrst set up asa charltable trust and reglstered atthe Charlty Commlsslon on 5 December 1950. The charity became a company Ilmited by guarantee on 25 March1964 Ireglstered In England, number 007979971 and was rfrreglstered atthe Charity Commission on 5 AugLJSt1964 (registered charity number 2343431. The charity Is also reglstered for Value Added Tax (Reglstratlon No. 1831032 391. The charity is constituted undera Memorandum and Articles of Association. The current Memorandum and Articles ol Association were adopted by the members on 17 June 2006. The charity does not have share capltal, cannot pay dividends and must utilise all of Its fundsto further its staled charitable objectives. Under the terms ol clause 7 of the Memorandum ol Association every member, as defined by Artlcle 2 of the Artlclesof A&soclatlon, is Ilable to contribute a sum if neCe￿ry and not excegdlng £1 In the event of thecharity belng wound up. At 31 December 2024 there were7.110 active members12023.. 7,4941, Includlng 349 Ilfe members12023.. 3501. Epllep8y Actlon In May 2002 the charlty began uslng the worklng name. Epllepsy Actlon. The charlty keep8 the name Britlsh Epilepsy A8soclation but uses the worklng name Epilepsy Actlon across Ils range ot activitles. It also uses the names Epllepsy Action Cymru and Epllepsy Acllon Northern IreLand for Ils work In those two countrles of the Unitéd Klngdom. Board of Trustegs The Board ol Trustees Is the governlng body of the charlty. It usually meets slx tbmes a year and 51 sets the policy and straleglc dlrection ol the charity. It Is also responslble for overseelng the sound management of the whole charlty and for ensurlng the charlty's polldesarecarrled out bythe staff through day-to4ay operatlonal actlvlty supervlsed by the Chlel Executlve. The Board is made up of a maximum of16 members ol Ihecharitywho have been elected by the membership. One thlrd ot the Board members retlre by rotatlon each year. Persons seeklng elecllon or re-elecllon musl be nomlnated bytwo subscriblng members of the charlty. Artlcle 24 allowsthe Board lo appolnt up to two addlllonal Board members to hold ofllce lor a maxlmum of three years, subject to annual conflrmatlon by the Annual General Meellng of the charlty. No Iruslees appolnted In thls way held office durlng 2024. The people who served on the Board between1 January and 31 December 2024were'. Ch8lr Jane Riley Vlco Chalr Nlcholas Hutton Honorary Treasurer Katle Stevens Nicola Adamson- elected18 June 2024 Deirdre Black Jayne Burton- retired18 June 2024 Richard Chapman- retired 4 February 2025 Peter Clough Avril Coelho- retired 18 June 2024 Joanne Greer- re-elected 18 June 2024 Cameron Hill Diane Hockley Sarah Lawson June Ma&sey- rtrelected 18 June 2024 Tom McLaughlan Sally Taylor- elected 18 June 2024 Stephen Timewell- retired 23 August 2024 lan WJker- retired 30 November 2024 Page 13 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Trustee recruitment, appointment, induction and training Epilepsy Action is a charity made up of individual members Every yearthe members elect people to bethe trustees of the charity.The recruitment process lor new trustees is carried out by nomination of which there are four condition& l. You must be aged 18 years or older. Iyou must not be legally dlsquallfled from belng allowed to be a company dlrector or a charlty trustee. 3. You must not be Incapable by reason ol mental disorder, illness or Injury of managing and administerlng your own affars. 4. You must havo been a membar of thecharltyfor at loast12 months at tho date when nominatlons for tho electlon close. We welcome different skills, experiences and areas ol knowledge, but above all, the drive and vision to influence and improve the lives of people with epilepsy. Epilepsy Action encourages nominalion8from members ol all backgrounds. It's important that the Board of Trustees is as representative as possible. All 8oard members givefreelytheir Ilme and recelved no remunerallon In the year. FÈasonable expensesare paid for attendlng Board meellngs and all other relevant functlons of the charltywhllo acting in capaclty as aBoard membor. Delalls of Board expenses and relevantlhlrd-partytransactlons ar8 dlsclosed In Note 20to the tinanclal statoments. Each newly elected Board member recelves guldance notes about thelr role and responslbillties as a charlty trustee and company dlrector as part of a comprehenslve Induction process. Individual Iruslees attend conferences, semlnars and other tralnlng and learnlng opportunitles asnecessary through the year to update thelr knowledge about thelr role and responslbllllles as charlty Iruslees and company dlrectors. Tralning and personal development needs are revlewed as part of the annual appralsal of the Board and Sts members. In 2024 the NCVO conducted a governance revlew for the charlty. Thls led to over 30 recommendatlons to Improve the governance and modernlse processes. The trustees are currently worklng through those recommendation5 havlng prloritised a revlew of the Artides ol Assoclatlon and governance structure. Th8 outcomes of thls wlll be taken to the membershlp In 2025. Trustaas, Intarestg Members of the Board are charlty trustees as deflned by the Charllles Act. Slnce Epllepsy Action is a company Ilmlled by guarantee, persons elected or appolnted to Its Board are also dlreclors and are reglstered as such In accordance with the Companles Act. Board members may clalm for reasonable expenses incurred In undertaklng the charity's buslness, but they receive no remunerallon or other flnanclal beneflt. All members ol the Board have conllrmed that they do not have have not had any benellcial Interest In any contract wlth the charity apart from the dlsclosures made withln Note 20 to the accounts. The charlty malntalns a publlcly available reglsler of Iruslees, nterests. Page14 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Board committees There were three Committees during 2024.. Corporate Governance, Finance and Strategic Policy, and the Stsnding Committee. Each Committee has terms of reference and a membership that is approved by the Board and reviewed on an annual basis. Board members also serve on a Staff Appeals Panel to hear appeals from staff in relation lo grievance or disciplinary disputes. There were no appeals to the panel in 2024. Membership of the Board'scommittees and the Board's Staff Appeals Panel in 2024 is listed below. Corporate Governance Committee (maximum 6 members) lan Walker Finance & Stralegic Policy Committe& 164 members) Nicholas Hutton Committee Chair- Retired 30 November 2024 Committee Chair Honorary Treasurer ex officio member ol Committeeto16 Ju 2024 Board Vlce Chalr8x officlo member ol Committeefrom16 July 2024 Committee Viee Chalr from 16 July 2024- Honorary Treasurer ex ofticlo member ol Committee Board Chalr ex offlclo member ol Committee From16 July 2024 To16 July 2024 Richard Chapman To16 July 2024 Kat18 Stevens Cameron Hlll From16 July 2024 Jane Rlley Diane Hockle Sarah Lawson June Massey Tom McLau Deidre Black Peter Clou Joanne Greer Cameron Hlll Diane Hockley June Massey Tom McLau From16 Jul 2024 hlan From16 Jul 2024 To16 Jul 2024 hlan Standlng Commltt66 Imaxlmum 5 mambersl Jane Riley Staff Ap￿815 P8n61 Imaxlmum 6 membèrg) Peter Clough Committee Chair Board Chair ex olficio Panel Chair Board Vice Chair ex offlcioto 16 Jul 2024 Panel Chair Board Vice Chairex officiofrom16 July 2024 Peter Clough Board Vice Chair ex officioto 16 July 2024 Nicholas Hutton Nicholas Hutton Honorary Treasurer ex offlcloto16 July 2024 Richard Chapman Boardvice Chalr ex offlciofrom16 Jul 2024 Honorary Treasurer ex officiofrom 16 Jul 2024 Katle Stevens Avrll Coelho To18June2024 Sarah Lawson Tom McLaughlan Page 15 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 National Advisory Councils and Advisory Panels Thecharity operates in Wales asEpilepsyAction Cymrulchair.. DrJohn Craig) and in Northern Ireland asEpilepsy Action Northern Irelandlchair.. Dr Khalid Hamandil.A National Advisory Council lor Wales and a National Advisory Council for Northern Ireland provide advice, guidance and support for the charity's work in these countries. Both Councils have terms of reference and a membership that is approved bylhe Board of Truslees, and is reviewed on an annual basis. 16-30 and Ethnl¢ CommunltlosAdvlsory Panols Advlsory Panals havo been sot up by tho Board ot Trustgesto advlso and gulde tho charityln Its work.Those ar8 the1&30 Panel and the Elhnlc Communlties Panel. The members of the panels are appointed bythe Board ol Trustees Each panel has terms of reference approved by the Board. Membership ol these panels during 2024 included11 members of the1&30 panel Imaximum 151 and12 members of the ethnic communities panel Imaximum151. Page16 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 - - - - - - - - - - - - - Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Our Values We have restated our values whlch are.. Being ambitious We will do whatever is needed to create a world without limitsfor people with epilepsy. Epilepsy Action isn'ljust about making sma11 changes., we're not afraid to think big to change the world for everyone affected by epilepsy. Our bold ambitions drive us to set courageous goals and constantly innovateto create sustsinable positive change. We do this by collaborating with partners and developing successful services and inltiatlves to create lastlng Impact. Belng Incluslvo We wlll be here lor ov8ryone affected by opilepsy. Wowlll workwlth Indlvlduals from all backgrounds and communities, fostering a 8ense of belonging and equality in all we do. In our community, all individuals, regardless of their backgrounds, idenlilies, abilities, or circumstances, feel valued and respected to participate fully. We know that inclusivity isn't about numbers., it's about embracing diversity and ensuring that everyone's voice is heard, needs are mel, and contributions are acknowledged. Bolng •mpoworlng We wlll pul people with epllepsy in control of creatlng the world, community and life Ihey want. We wlll enable Ihls by providing the platforms, tools, resources, and opportunltl8s needed lor them to achl8vg thelr lull potontlal and create posltive change in Ihelr lives and communities. We empower our communltyto lead our work, whether h'8 ourdedlcaled staff, volunteers, or the peoplewe support. Our culture Is bublt on open communication and glvlng everyone a chance to make a dlfterence. We're here to enable people to take ownership ol their indivldual lourney and embrace opportunltles. Belng supportlve Everyone's epllepsyiourney Is unlque, and we wlll be there every step of theway, readyto support you when you need u5. Whlle people with epilepsy wlll be in control of thelrlourneys, they will not be alone, The Epllepsy Acllon team are here to listen, understand, and provlde guidance when needed. Our goal is to creat8 an envlronment where everyone feels valued and cared for. As a team we are commltted to creatlng a world wlthoul1Smlts. Supportlng people affected by epllepsy Ign t lust what we do- It's at the heart ol who we are. In 2024. we made a blgger Impact than ever before, reachlng more ndlviduals, famllles, and communities wlth the support, guidance. and reassurance they needed. Every conversation, every helplng hand, and every breakthrough mattered. Our organlsatlon and structures Subsldlary eompanl68 British Epilepsy Associatlon has three wholly owned subsldlary companles. Epllepsy Actlon and Epilepsy UK are both dormant companies. BEA Trading Limited is engaged in fundraising activities, the distribution of Christmas cardsand assoclaled merchandlse. More Informatlon about the subsldlary companles can be found In Note 13 to the accounts. Co-operatlon wlth othèr chsrltablg organlsatlons Thecharity is an active member of the International BLJreau for Epilepsy IIBEI, the Neurological Allianceandthe Disability Benefits Consortium. Thecharity is also a memberof the National Council for Voluntary Organisations INCVOI, the Association of Medical Re*arch Charities IAMRCI. the Chartered Institute of Fundraising and the Charity Finance Group. In late 2023 thecharityagreed to become a Founding Partner in the new Epilepsy Research Institute UK. Publlc beneflt The trustees have referred to the guldance contalned In the Charlty Commlsslon's general guldance on public benefit when reviewing thecharity's aims, objectives and activities and this report seeksto comply with that guidance by clearly expL2ining and illustrating howthe charity delivers public benefit. Information about the charitys fundraising The charity's fundraising strategy and income generation plan is outlined in bwo do¢uments'Epilepsy Action fundraising delivery and monitoring plan, and'lncome Generation Plan 202Q2030'. A copy of both documents has been made avallable to everytrustee. The'Epllepsy Action fundralslng dellveryand monitorlng plan, supports Board members In Ihelr role of overseelng lundralslng in Ilne with Charlty Commisslon guldance ICC20,'Charlty Page 18 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 - - - - - - - - - - - - - - - - - - - - - - Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Risks are identified and assessed by the trustees based on their likelihood of happening and the severity of their impact if they were to happen. Risks are scored before action is taken (gross risk scorel and again after action is taken (net risk scorel. On 10 December 2024, 13 risks were identified and assessed with a net risk score 0115 or higher making them the most significant risks to the charity. The 2024 dates are valid at the time the risk register was last reviewed. These risks, Iheir potentid impact and the actions taken in response to them are as follows.. Description of risk Potential impact Actions taken to mitigate risk Turbulent maoroeoonomic condltions glvlng rise to flnanclal crisis,. Inflation; unemployment., publlc sector austerity,. less personal disposable income., falling stock mart(ets Reduced income,. higher costs., reduced spendlng., use of reserves to balance flnan¢es'. Increase in demand for services., reductlon In service delivery. Monitor economic loiecasts and geopoliticd events and take the$8 nto account in tinanclal and buslness plannlng. Rlsk based reserves pollcy provides afinancial cushion against short term volatility. Diverse income generation spreads the risk ol failure. Three-year perspecllve on annual revenue budget. Operational lallure ol the CRM éalabase that prgvents or hinders baslc business elfecllveness Fundralsing, membership, service8. accounting andlor stakoholder engagement are compromised. IT systems and Infrastructure Implèmentallon programm8 in place. Schedule of development and corrections In place with suppller. Operatlonal fallure of the maln website that prevents or hlnders baslc business elfectlveness Fundralslng, membershlp, setvices. accounting andlor stakeholder engagement are compromlsed. Repulatlonal damage,. loss of public and donorcontldence.. dlsruptlon to services.. cost of recovery. Webslte hostbng Is outsourced. Implementatbon programme In place. Schedule of development and correctlons In place wlth suppller. Fallure of one or more top flve sources ol income, (delivers less than 800/0 of target) Pressure on cash flow," lower Income than expected and planned for.. reduced spending 8ndlor depleted reserves to balance flnances., disruption to long term plans.. lowered stakeholder morale., services reduced. Malor sources of income are identified and closely monltored. Legacy analysis and pipeline tool to help accuracy In predlcllng legacy income. Malnl8ln a broad base of fundr81sing. Rlsk based reserves policy based on future Income reflects potential volatillly ol income. The Board's Flnance and Strategic Pollcy Committee regularly revlew performance and plans. Fast adoption of new initiatives. Income from fundraising overall falls below expectations (delivers less than 80Wo of larg8tl Pressure on cash flow.. lower income than expected and planned for., reduced spending andlor depleted reseNes to balance flnances., disruptlon to long term plans.. lowered slakeholder morale,. servlces reduced. Annual revenue budget. Annual business plan. Individual fundraising project plans.The Board's Finance and Strateglc Policy Commlttee regularly review lundralslng performance and plans. Fast adoption of new initiatives. Failure to successfully adopt and apply new digital technology le.g. Al,. soclal media dlgltal publlshlngl Reputational damage,. overtaken by competitors,. services become obsolete., fundraising less eflectlve. Experienced in house communications and digital team supplemented by external advlsors and suppllers. Continuous horlzon scannlng for new developments. Page 110 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Fallure to comply wlth Data Protection law and regulation Flnanclal penaltles Imposed by regulators,. suspension or loss of license., reputational damage., loss of public confidence; loss of income and support. Dlrector of Flnance and Operatlons appointed Data Protection Officer. GDPR training for all stsff. GDPR awareness for volunteers. GDPR permission renewals process in place. Ensuring new CRM database is GDPR compliant. Cyber attack Reputatlonal damage,. loss of public and donor confidence,. disruptlon to services,. damage lo digltal infrastructure,. website lost or disabled., social medka disabled., cost of recovery. IT covered In dlsaster recovery plan,. anti-vlrus software In place. Staff mlnded to be alert lo potentl threats. Communications and Digital Engagement department focuses expertise and cyber attack awareness. Plans in action lor recrurtment, retention and administration of members. Significant Ios8 of membership Reputational damage,. loss ol mandate and authority,. weakened influence., lower income,. lowered stakeholder morale., accolerating loss ol members. IT systems fallure Systems fall to meet operallonal need., emall system collapses., IT obsolele,. IT suppllgr falls., loss or corruptlon of daK' data protecllon lawbreach. Insuranceto cover data recovery. Systematic updatlng of IT., comprehenslv8 back up procedures In place., due dlllgencg completgd on suppllers,. servlcgs formally contracted,. monllorlng of data protectlon law and staff Iralnlng In compliance,. IT covered In disaster recovery plan. Adverse changes in Government policy Availability ol contract and grant fundlng,, Impact of tax reglme on voluntary giving,. impact of general leglslallon or regulation on acllvitles., role of voluntary sector.. health care pollcy.. soclal care pollcy. Monltor developments in pollcy maklng, Seek lo Influence policy maklng dlrectly and through alliances. High Staff Turnover Loss of experlence or keytechnlcal skills,. reeruitmenl costs and lead Ilme.. training Costs.. lower staff morale.. service dellvery dlsrupted. Staff turnover figures revlewed by senior management team every quarter.. terms and conditions of employment perlodlcally reviewed., slafl surveys., comprehenslve personnel policles and procedures. Revlew of recruitment practices in and appolnlment of a People & Culture Director. Cash Ilowforecasts included in annual revenue budget. Cash Ilow monitored and reported with monthly management accounts. Early Intetvention posslble. Legacy pipeline forecasts flow of legacy Income. Cash flow problems- income strategy fails to deliver Inability to meet short term commitments,. lack of liquidity to cover variance in costs,. operational activities affected. Page 111 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 ## **People** The Board of Trustees would like to place on record its appreciation of the hard work and commitment to the charity’s objectives of all staff in 2024. The senior staff employed by the charity in 2024 were: **Chief Executive** Philip Lee – _to 16 November 2024_ **Deputy Chief Executive** Rebekah Smith **Director of Services** Ann Richardson-Greaves **Director of Health Improvement and Influencing** Alison Fuller **Director of Fundraising** Philippa Cartwright **Director of Communications and Digital Engagement** Jon Eaton **Director of Finance and Operations** Andrew Myers ## **Key management personnel** The key management personnel comprise the Trustees, the Chief Executive and the Deputy Chief Executive, see Note 20. ## **Pay policy for senior staff** The pay of all staff, including senior staff, is reviewed annually. Staff salaries are based on a job grading system and incremental pay scale introduced in 2024. The initial pay scale was calculated with reference to current pay, local and national market conditions and voluntary sector and commercial benchmarks. With the scale in place, salary awards can also be made by applying an increase to the scale. However, the trustees consider what the charity can afford, the local and voluntary sector labour markets and general economic conditions. ## **Volunteers** The Board also acknowledges with gratitude the work and commitment of the many volunteers who willingly give their time to the considerable benefit of the charity and the people the charity serves. The total number of hours donated to the charity in 2024 by all of its volunteers is estimated to be 47,305 (2023: 40,752). This equates to 26.4 full time staff, based on an average staff working week of 34.5 hours. Using the charity’s average staff cost in 2024 of £23.50 per hour, (which includes the cost of national insurance and pension contributions), the financial value of this volunteered time in 2024 is estimated to be £1,111,671 (2023: £897,638). These financial values are not recognised within the statement of financial activities. P a g e | **12** Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Equal Opportunities The charity 8UPPOrts the prlnclple of equal opportunltles, partlcuparlyfor those who are unable to compete equally n open employmentand have a hlstory of epilepsy. We are one of a small number ol organlsations wlth Disablllty Confident Leader 8latU8, we are a Mlndful Employer, part of the Leeds Employer Incluslve Networkand have slgned the Menopause Workplace Pledge. The Board of Trusteeswould also like to acknowledge the help and support of the following people who served the charityduring 2024. Patron HRH The Duchg&8 of Kent Vlce Patrons His Eminence The Cardinal Archbishop of Westminster The Very Reverend The Chief Rabb The Free Churches, Moderator Prasldant Baroness Ford of Cunnlnghame Honorary Past Prosldont Baroness Gould of Potternewton Honorary Vlce Pr881dant8 Ms Karen Armstrong Professor Gus Baker Mr Wllllam Flennes MrPaulMaynard MP Dr Adam Noblè Mrs Beryl Sharlot Professor Ray Tallls Achlevements and performanc8 We continue lo make good progress Inall our straleglc prlorlty areas. We have suslalned and developed our services. ensuring the charlty remalnsavallable lo those who need It. The posbtlve Influence that ourwork has on peoples, Ilves Is more lully documented on our websllewww.6pllepsy.org.uk Page 113 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Financial Review The results lorthe year are set outon pages 23to44. The financialstatements have been prepared in accordance with Accounting and Reporting by Charities.. Statement ol Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021.with the aim ol presenting the financial position of thecharity in a clear, comprehensive and intelligible way. The results of the charity's commercial subsidiary, BEA Trading Limited, are shown in Note13to the accounts. G&noral rovlow of th• charlty'sflnan¢lal po$ltlon 2024 2023 Total incoming resources Total resources expended IDeli¢lll Unroallsod Gain £3,624,556 £2,767,139 E4,300,323 1£675,76n £101,760 £1574.0071 E3.415.554 £4,113,476 1£1,346,3371 £67,222 £11,279,115) £3,989,561 Netmovemenl in Funds Total funds Total Incom8 for 2024 was£3,624,55612023'. P2,767,1391. Compared to 2023, thls was an Increase of £857,417. As anticlpated, Income levels for the year grew and surpassed the prevlous financlal year. Income levels in 2023 were more comparable and conslstent to levels seen in 2021. followlng the exceptional recelpts 012022 relating to both legacles and grant Income. Legacy Income for the year tolalled £1,258,65412023.. £537.7461. Legacy Income contlnues lo form an Smportant part of the charity's Income and can slgniflcanlly varyyear on year. Prioryear Sncome had been affected by the Increased walting tim8 forthe Issuing of aformal grant of probate, whlch almost doubled from Aprll 2022 to Aprll 2023, wllh reports citing cases ol probate laklng more than eleven rnonths The slluatlon has Improved wlth data from December 2024 showing a reducllon In average wait tlmes. Probate Involv8s identlfylng adecea5ed person's assets, paylng off any d8bts and sharlng out the remalnlng estate accordlng to the wlll. A property cannot be sold. and the money dlslrlbuted, unlll a formal grant ol probate Is ssued. Probate Is admlnlslered by HM Courts and Trlbunalsservlce. The scale of the Issue warranted The Justice Committee to announce the launch of an Inquiry Into probate In November 2023 amld concerns over delays In processlng appllcatlons. Grant income for 2024was £177,17812023.. £290.5461. The decreaseversus prior year grant Income was agaln largely due to successful grantawards In the prlor yearSnvolvlnga multl-year prolec( namely, and most slgniflcantly,the befriending servlce,wllh all Incomeaccounted loral the polnt at whlch we became eliglbleto receive the funding In 2023. As Income had been secured lor Ihls flnanclal yearfurlher fundlng was not sought In the year. Grant funding Is expected to growagalnaswe conllnue these types of projects beyond the orlglnal funding period. Total resources used amounted lo £4,300,32312023.. £4,113,4761.A¢rossall Fund4 asexpected but ahead of projections forthe financial year, expenditure exceeded incorne by É675,767120¥8.. deficit of £1.346,33n. After accounting for an unrealised gain of £101,760on the value of investments12023'. Ljnrealised gain of £67,222) the net movement in fLJndslorthe year was adecreaseof £574,00712023..decrease of £1.279,1151. The overall deflclt for the yearwas antlclpaled In the annual budget,but overall performance exceeded those prolecllons wllh a smaller deflclt than planned. The total lunds held by the charityat the end of theyearare£3,415,554120T8'. Q,989,561}. Page 114 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 ## **Principal sources of funding** **----- Start of picture text -----**
Fundraising Donations
individual
Membership
subscriptions
Corporate
Donations
Grants
Legacies
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The top six performing income generating areas in 2024 were responsible for 86% of the charity’s income. Donations from individuals contributed 14% £0.51m (2023: £0.66m), and Membership subscriptions contributed 9% £0.31m (2023: £0.18m) Legacy bequests are 35% of the charity’s income and returned to being the single largest source of income in 2024, which amounted to £1.26m (2023: £0.54m). Income from fundraising events sponsorship contributed 17% worth £0.62m (2023: £0.63m). Grant income contributed 5% which was worth £0.18m (2023: £0.29m). Excluding legacies, due to the fluctuations which can be experienced with this income generating area, Corporate Donations saw the largest area of growth and contributed 6% of total income worth £0.23m. We would like to thank all the charitable trusts and foundations, companies and community groups who have generously provided grant and donation income or gifts in kind to support our work. We would also like to thank all the many individuals who supported us throughout 2024 through their membership, donations, sponsorship, or event participation. Fundraising income is explained in more detail in Note 2 and Note 4 to the financial statements. ## **Resources Expended** **----- Start of picture text -----**
Charitable
Activities Total
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Raising Funds
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66% of the total money spent by the charity goes to providing services to our beneficiaries. In 2024 this amounted to £2.84m (2023: £2.75m). The remaining money is spent on raising more income so that we can help even more people. The amount spent in 2024 was £1.46m (2023: £1.37m). Comparing with the £3.21m raised directly from fundraising activity, this equates to an income of £2.20 for every £1.00 spent on raising funds (2023: £1.84 income for every £1.00 spent). ## **Grant making policy** The charity makes grants available for research. Applications are considered in light of the charity’s prevailing research priorities and with reference to the charity’s research policy focus on non-laboratory research. No grants were awarded in the current or prior period. ## **Investment policy** The charity’s current investment policy was approved and adopted by the Board of Trustees on 11 July 2017. The policy requires a balanced investment portfolio that can deliver both capital growth and income. The precise balance within the portfolio between capital growth investments and investments for income may vary in line with the changing needs of the charity and fluctuations in market conditions. The investment priority is first to achieve a level of income that is broadly comparable with what is generally available in the market. This income is to be used to provide some contribution to the overall funding of the charitable objectives. P a g e | **15** Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 The policy is also designed to enable the charity to build and maintain sufficient capital reserves to provide cover for the inevitable fluctuations in revenue income, thus ensuring continuity in the provision of the charity’s services in the context of its current strategic plan and business and charitable objectives. An appropriate level of reserves for the charity is described by the reserves policy. The Board of Trustees will not knowingly invest in specific companies whose activities are, in the opinion of the Board, inconsistent with the aims and objectives of the charity. The Board reviews the policy every year and carries out a more thorough examination every three years. The policy was last reviewed and updated by the Board on 16 July 2024 to adopt a ‘total return’ approach to the investment portfolio. ## **Performance of investments** At the end of 2024, the charity retained listed investments valued at £1,505,669 (2023: £1,911,025). These investments are detailed in Note 12 to the financial statements. The listed investments produced an income of £54,826 (2023: £93,698) as the charity undertook a ‘total return’ approach to investments which provides a guaranteed income amount each quarter. There was an unrealised gain on the investments of £101,760 (2023: unrealised gain of £67,222). Interest was received on cash deposits of £27,610 in 2024 (2023: £30,142). BEA Trading Limited contributed income to the charity of £37,259 (2023: £22,229) which included a trading donation of £13,033, management charges of £3,000 and transfer of intercompany balances. Total income for the year from the charity’s investments was £82,437 (2022: £123,840). The charity’s investments are managed by its investment manager on a discretionary basis with reference to the investment policy. The investment manager provides a regular written performance report on the investments and each trustee has online access to independently view the charity’s investment portfolio at any time. The investment manager is also required to make a face-to-face presentation to the Board at least once every year. ## **Fixed assets** Details of movements in fixed assets during the year are set out in Notes 10, and 11 to the financial statements. ## **Reserves Position** The reserves position for the charity at 31 December 2024 showed General Fund reserves of £1.67m (2023: £1.98m). Designated fund reserves of £0.48m (2023: £0.48m) include money spent on the CRM database and website projects. The assets will be amortised over five years. A transfer of £40,000 was made into designated funds in 2023 for an IT upgrade project for the review of all IT hardware requirements and subsequent replacements and upgrades. Restricted fund reserves at year end amounted to £1.26m (2023: £1.52m). Included within this **----- Start of picture text -----**
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P a g e | **16** Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Reserves policy The current reserves policy was originally approved and adopted bythe Board of Trustees on 11 July 2017. It was amended by the Board on 16 July 2024to adopt a'totsl return, approach to the investment portFolio. The policy applies a risk-based approach to the reserves based on an assessment of potential risk to future income. The policy is that thecharityshall maintain a level of unrestricted financial reserves that falls within a range of bebNeen four monthsand twelve months gr0&8 total unreslrlcted Income based on the following year's revenue budget foreca81. If the level of unrestrlcted flnanclal reswves moves outslde ol these parameters, thenthe Boardwlll take appropriate actlon. Based on the 2024tolal unrestricted income of £3.465,470 forecast in the 2024 revenue budget. the range of unreslricled reserves should be between £3,465,470112 months coverl and £1,155,15714 months coverl. At the end 012024, the unrestricted reserve funds amounted to £1,669.34212023.. E1,980.6651,of which ￿9,264l2023.. £15,305) comprised fixed assets. At this level they represent 5.77 months, worth of unreslricled income and are therefore within the boundaries set by the reserves pollcy. All of thecharlty'sreserve funds are explJngd In morg dgtail In Notg17to the accounts. Plans for futuro porlod8 The Board of Trusteesapproves and adopts an annual operatlonal business plan and an annual revenue budget which includes a three year financlal forecast. As prevlously staled. a new strateglc plan wasapproved and adopted bythe Board In 202310 run from 2024 through until 2030. ststement ofTrustees' Respon8lbllltles The Trustees (who are also directors of Brlllsh Epllepsy As8oclallon for the purposes of company lawl are responsible for preparing the Trustees. Report and theflnancbal statements in accordance with appllcable law and United Klngdom Accounting Standards Iunlled Kingdom Generally Accepted Accounllng Practlcel. Company law requlres the Board to prepare flnanclal statements for each flnanclal year whlch glve a true and falr vlew of the state of affairs ol the charitable company and ol the Income and expendlture, ol th8 charltable Company for that perlod. In preparlng these flnanclal statements, the trustees are requlred lo.. select sultabl8 accounting policles and then apply them conslslently., observe the methods and principles in the Charltles SORP IFRS1021', make judgments and accounllng estimates that are reasonable and prudent.. stale whether appllcable UK Accounting Sl8nd8rds IFRS1021 have been followed. subject to any matedal departures disclosed and expl8lned in the financial statements, and prepare the financial statements on the going concern basls unless It Is Inapproprlale to presume that the charitable companywill continue in business. TheTrusteesare responslble lor malntalnlng proper accounllng records whlch dlsclose wlth reasonable accuracy at any tlme the financial poslllon of the charitable company and enable them lo ensure that the flnanclal statements comply wlth the Companles Act 2006. Theyare also responsible lor safeguarding the assets of the charllable ¢ompany and hence for taking reasonable steps lor the prevention and detection of fraud and other irregularities. In so faras the trustees are aware.. there is no relevant audit information of which the charitable company's auditors are unawar8 and the Iruslees have taken all steps that they ought to have taken to make Ihemselvesaware of any relevant audll Informatlon and to establlsh that the audltorsare aware of that Information Page 117 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Auditor In December 2023, the Board of Trusteesapproved the decision to undertake a competitivetender process for the audit ol the financial statements for the year ending 31 December 2024. The outcome of thecharity's Annual General Meeting held on 18 June 2024 resolved that Saflery LLP be appointed auditors of the company. to hold office until the conclusion of the next general meeting al which accounts are laid beforethe company. ststomont of dls¢losurg to audltor So far as each person who was a trustee atthe date of approvlng this report Is aware, there Is no relevant audit nformatlon of which the company S audltor is unaware. Additionally, each trustee has taken all the necessary steps to make themselvesaware of all relevantaudlt Informatlon and to establlsh thatthe company's auditor Is awaro of that information. Page 118 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 ## **Registered office and professional advisers** |**Registered Office**|New Anstey House| |---|---| ||Gate Way Drive| ||Yeadon| ||Leeds| ||LS19 7XY| |**Registered Auditor**|Saffery LLP| ||10 Wellington Place| ||Leeds| ||LS1 4AP| |**Solicitors**|Wrigleys Solicitors LLP| ||3 Wellington Place| ||Leeds| ||LS1 4AP| |**Bankers**|VirginMoney| ||(formerly Yorkshire Bank)| ||94-96 Briggate| ||Leeds| ||LS1 6NP| |**Investment Manager**|RBC Brewin Dolphin| ||10 Wellington Place| ||Leeds| ||LS1 4AN| The members of the Board of Trustees in their capacity as directors hereby approve the Trustees’ Annual Report (prepared under the Charities Act 2022 and which also contains all information required in a Directors Report by the Companies Act 2006) and the incorporated Strategic Report (prepared under the Companies Act 2006). **Jane Riley Chair, Board of Trustees 13 May 2025** **Katie Stevens** **Honorary Treasurer, Board of Trustees 13 May 2025** P a g e | **19** Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Independent Auditor's Report to the Members of British Epilepsy Association Oplnlon We have audlted the Ilnancial statements of Brltish EpllepsyAssoclatlon forthe year ended 31 December 2024 which comprise the ststement ol financial activities, balance sheet, statement ol cash flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards. including Financial Reporting Slandard 102, the Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice). In our oplnion tho flnanclal statements.. givo atrue and falr vlew of the Char￿able company's state of affairsas at 31 December 2024 and of Its incoming resources and application ol resources, including its income and expenditure, for the year then endgd., have been properly prepared In accordance with Unlted Kingdom Generally Accepted Accounllng Practice.. and have been prepared In accordance wlth th8 Companles Act 2006. Ba818 for oplnlon We conducted our audit In accordancewhh Internatlonal Standards on Audltlng IUKI IISAS IUKII and appllcable law. Our re5ponslbllltles under those standards are lurth8r dgscribed In the Auditor's responsibilities lor the audlt of the financial statements s8Ction of our report. We ar8 independent of the charitable company in accordanc8 wlth the ethical requirements that are relevant to our audll of the financial statements In the UK, Including Ihg FRC'S Ethical Standard, and we have fulfilled our other 9th￿al responsibllilles in accordance wlth the58 requlremenls. We belleve that the audit evldence we have oblalned Is sulflclent and approprlale lo provlde a basls lor our oplnlon. Conclu8lon8 relatlng to golng concarn In audltlng the flnanclal statements, we have concluded that the trustees, use of the golng concern basls of accounting In the preparatlon of the flnanclal statements Is approprlate. Based on the work we have pertormed, we have not Identlfled any materlal uncertalnties relating to events or condltions that, indivldually or collectively, may cast slgnllicant doubt on the charllable company's abillty to contlnue as a golng concern fora perlod of al least twelve months from when the Ilnanclal statements are authorised lor issue. Our responslbllllles and the respon81bllllles of the trusleeswlth respect to golng concern are descrlbed In the relevant secllons of thls report. Oth8r Informatlon The other inlormation comprises the information included in the Trustees, Report, olherthan the financial statements and ourauditor's report thereon. The trustees are responsible for the other inlormalion. Our opinion on the financial statements does notcover the other information and. except lo the extent otherwise explicitly stated In our report, we do not express any form ol assurance concluslon thereon. Our responslblllly is lo read the other Informatlon and, In doing so, conslder whether the other Inlormallon Is materlally Inconslstenl wlth the financlal slatements or our knowledge oblalned In the course of the audlt or otheNlse appears to be materlally mlsstated. If we identify such material inconsistencies orapparenl material misstatements, we a￿ required to determine whether thls glves rlse lo a malerlal misstatement in the financial statements themselves. If, based on the workwe have pertormed. we conclude thatthere is a material misstatement ol this other information we are required to report that fact. We have nothlng to report In thls regard. Pagel20 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Independent Auditor's Report to the Members of British Epilepsy Association Oplnlons on othèr matt8r$ pr8scrlb8d by Companlos A¢t 2006 In ouroplnlon, based on the work undertaken In the course of theaudrt: the information given in the Trustees, Annual Report which includes the Directors. Report and the Strategic Report for the financial year for which the financial statements are prepared is consistent with the financial statement& and the Trustees, Annual Report which includes the Directors, Reportand the Strategic Report has been prepared In accordance wlth applicable legal requirements. Mattors on whlch wo aro roqulrod to roport by •x¢optlon In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the Trustees, Annual Report and Strategic Report. We have nothing to report In respect of the followlng matters where the Companles Act 2006 requlre8 US to report to you It, In our oplnlon.. adequate accountlng records have not been kept, or returns adequate tor our audlt have not been recelved from branches not ￿SIted by us. or the flnanclal statèmènts are not In agreement wlth the aecountlng records and returns; or eertaln diselosurès of truste8s' rèmun8ratlon speclfled by law are not made., or we have not recelved all the Informatlon and explanallonswe requlre for our audlt. Re8pon81bllltla8 of trusteag As explalned more fully In the Trustees, Responsibllilles Statement set out on page17, the trustees (who are also directors of the charllable company lor the purposes ol company lawl ar8 responsible lor the preparation ol the flnanclal statements and for being satisfied that they glve a true and far vlew, and lor such Internal control asthe trustees delermlne Is necessary to enable the preparation ol financial statements that are free from materl mlsslatemenl, whether due to fraud or error. In preparlng the flnanclal statements, th8 trustees are responslble for 8ssesslng the charltable company's ablllty to continue as a going concern, diseloslng, as applicable. matters related to golng Concern and uslng the going concern basis of accounting unless the trustees eithar Intend lo liquldale the charitable company or to caase operations, or have no reallstie alternative to do so. Audltor'8 responslbllltle8 for the audlt of the flnanclal statements We have been appointed as audttors underthe Companies Act 2006 and report in accordance wlth reguLqtlons made under that Act. Our objectives are lo obtain reasonable assurance about whelherthe financial statements as a whole arefree from materlal misstalemenl, whether due to fraud or error, and lo Issue an auditor's report that Includes our oplnlon. Reasonable assurance Is a hlgh level of assuran￿, but Is not a guarantee that an audlt conducted In accordance wlth ISAS IUKI willalways delect a materlal mlsstatement when It exists. Mlsstatements can arlse from fraud or errorand are considered material if, individually or in the aggregate. they could reasonably be expected to influence the economic decisions ol users taken on the basis ol these financial statements. Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to delect material misstatements in respect of irregularities, including fraud. The specific procedures for this engagement and the extent to which these are capable of detecting Irregularltles, includlng fraud are detalled below. Identifylng and assesslng rlsks related to Irregularltles.. We assessed the suscepllblllty of the charltable company's flnandal statements to materlal mlsstatement and how fraud might occur, including through discussions with the trustees, discussionswithin ouraudit team planning Page 121 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Independent Auditor's Report to the Members of British Epilepsy Association meetlng, updatlng our record of Internal controls and ensurlng these controls operated as Intended. We evauated POS8ible incentlves 2nd opportunitles lorfraudulent manipulatlon of the financlal statements. We Identifled laws and regulallons that are ol slgnificance in the context ol the charitable company by dlscusslons with trustees and updating our understanding of the sector in which the charitable company operates. Laws and regulations ol direct significance in the context of the charitable company include The Companies Act 2006, and guidance issued by the Charity Commission for England and Wale& Audit response to risks identified.. We considered the extent ol compliance with these laws and regulations as part of our audit procedures on the related financial ststement items including a review of financial statement disclosures. We remewed the charitable company's records ol breaches of laws and regulations, minutes of meetings and correspondence with relevant authorities lo identify potential material misstalemenls arising. We discussed the charitable company's policies and procedures lor compliance with laws and regulations with members of management responsible for compliance. During the plannlng meoting with the audit team, tho engagoment partner drgw attentlon to thg key areas whlch mlght Involv8 non-compliancg wlth laws and regulatlons or fraud. We enqulrgd of managomont whether they were aware ol any Instances ol non-compliance wlth laws and regulations or knowledge ol any actual, suspected or alleged fraud. We addressed the risk of fraud through management override ol controls by testing the approprlateness ol journal entrles and Idenlllying any signlllcant transacllons that were unusual or outsldethe normal course of buslne8s. We assessed whetherjudgements made In maklng accountlng estimate8 gave rise to a possible indlcation ol management blas. At the complellon stage ol the audlt, the engagement partner's revlew Included ensuring that the team had approached thelr work wllh approprlate professlonal scepticlsm and Ihusthe eapacity lo Identlfy non-compliancg wllh laws and regulations and fraud. There are inherent limitallons In the audit procedures descrlbed above and the further removed non-compliance wlth laws and regulallons Is from the events and transactlons reflected In the flnanclal statements, the less Ilkely we would become aware ol It. Also, the rlsk ol not detecllng a malerlal misstatement due to fraud Is higher than the rlsk ot not detecting one resultlng from error, as traud may Involve deliberate concealment by, for example. forgery or Intenllonal mbsrepresentatlons, or through colluslon. A further descrlption of our responsibllitles Is avallable on the Financlal Reportlng Councll's websble at.. . Thls descrlptlon forms part of our audltor's report. Use of our report Thls report Is made solely to thecharltable company's members as a body, In accordance wlth Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might slate to the charltable company's members those matters we are requlred to state lo them in anaudltor's report and lor no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility lo anyone olherthan the charitable company and the ¢harltable company's members as a body, for ouraudltwork, for thls report, ￿ for the opinions we have formed. l.(Fc* LLe Sally Appleton (Senior Statutory Auditorl for and on behalf of Sattery LLP Statutory Aud￿Or8 Saflery LLP 10 Welllngton Plac8 Leeds LSI 4AP Date.. 4 September 2025 Saffery LLP is eligible to act as an auditor in terms ofsection 1212 of the CompaniesAct 2006 Page 122 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association (Company Number 007979971 Statement of Financial Activities Incorporating an Income and Expenditure Account for the year ended 31 December 2024 Totsl Fuvxls FurKIs FurKIs 2024 2024 2￿24 21r24 2(Y23 Ir￿ornIng re80urce Donatlonsand legacies Charltablgacti￿tI88 1137,749 155,579 172hYJ 7T￿31 3,543,989 75,962 a418.319 141￿13 81167 12&840 2.767.139 155579 1728 82,4 1624.556 Other tradlngactI￿tles In￿*m￿ntIn¢tYn8 Totsl 4,605 80,567 Re80wces expended: Rai￿r0 lund5 char1tab1eactl￿￿09 Other tradlngact1￿tI8S Investmgntmawemgnt¢c6ts E￿Ta￿dInary1IOmS- CFN Impalrmont Totsl 1,184233 1491,533 274,406 1.184.619 1841289 274,435 1,316.111 a748,281 42,698 6396 1.015 348.721 1950,1rd 1,43J 348.721 4300,323 4,111476 N•t louty0k￿l r•x¥urc•B bofor• In¥￿th￿￿t(lOsg$8l/9OIr0 1406,1831 11,4301 1268,1541 1675,76n 11.346,33n Roeogrd98d110gwllgalr4 Ne1unre￿iSed gainson Investments 94B61 6099 101,760 67,222 Notloutgolwl r￿ur¢•8 1311.3221 11.4301 12612551 1574.007) 11279.1151 Tran81grsbetweenfunds N•t rb￿v￿￿l In fLWKI8 1311,3221 11,4301 12612551 1574.007) 11279,1151 R•eonclllaOon of fwK18 Totslfundsbr(xjghtf￿W8r(j 1.980fj65 482B05 1,526,091 1989,561 5268,676 Total fLwM18 carrled lorward8 1,669.343 481275 1264B36 a415554 a989.561 Thedeficitforthe year arises from the Charit￿$ continuing operations. Page123 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association (Company Number 007979971 Balance Sheet as at 31 December 2024 2024 2023 Not0 Flxed A￿ts Tanglblellx•Jas9ets 10 19284 16JJ5 Intanolbloflx&Ja898ts Inv8Stm•nt8 299.548 404.632 12 1.505,679 1.911,035 1,824,489 23XJ9r2 Current A880ts Debt(xs 14 1x7375 1.115XJ9 Cash at bank*rKI InFwd 592,n4 878,063 19601)89 IP93m Credltor8- amwntBfalllroduevlthlnoneyear 15 1369,0241 1334,781 NetCwrentA88ets 1￿91,066 1,668589 Not A888t8 16 3,416,554 1989561 Unrestrlcted GeneralfundB 17 1,669342 1,980065 C)eagnatedfunds ReStrIc￿J1undg 17 481375 482005 17 1264B37 1,526.091 1416.564 &989561 The flnanclal statements were approved and aulhorlsed for Issue by the Board of Truslees on13 May 2025and signed on ils behalf by.. 81gn•d by.. OF72A4I15EB844C.. EI9141AEAQ8C433 Jang Riley Chalr. Board of Trust8as 13 May 2025 Katie St8vens Honorary Treasurer, Board of Trustees 13 May 2025 Page124 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 ## **British Epilepsy Association** (Company Number 00797997) ## **Statement of Cash Flows** For the year ended 31 December 2024 ||**2024**
**2023**
**£**
**£**
(858,545)
(523,591)| |---|---| |**Cash flows from operating activities**
**Note**|| |Net cash (used in)/provided by operating activities
A|| ||(16,356)
(5,474)
-
-
54,826
93,698
(54,826)
(96,629)
561,942
611,323
27,610
30,142| |**Cash flows from investing activities**|| |Purchase tangible fixed assets
10|| |Purchase intangible fixed assets
11|| |Dividends, interest and rents from investments
2|| |Additions to fixed asset investments
12|| |Proceeds from sale of investments - Disposals
12|| ||| |Interest received
2|| |**Net cash provided by/(used in) investing activities**|573,196
633,060
(285,349)
109,469
878,063
768,594| ||| |**Change in cash and cash equivalents in the reporting period**|| |Cash and cash equivalents at the beginning of the reporting period|| |**Cash and cash equivalents at the end of the reporting**
**period**|592,714
878,063| ||| ## **Note A. Reconciliation of net (expenditure) to net cash flow from operating activities** |||**2024**
**2023**
**£**
**£**
(574,007)
(1,279,115)
12,397
13,604
105,086
105,086
(101,760)
(67,222)
(82,437)
(123,840)
(252,066)
771,110
34,241
56,786
(858,545)
(523,591)| |---|---|---| |**Note**||| |**Net (expenditure) for the reporting period (as per the**
**statement of financial activities)**
10||| |**Adjustments for:**||| |Depreciation charges
10||| |Amortisation charges
11||| |(Gains)on investments
12||| |Dividends, interest and rents from investments
2||| |(Increase)/decrease in debtors
14||| |Increase in creditors
15||| |**Net cash (used in) operating activities**||| |||| |**Analysis of changes in net**
**funds**|**Balance At**
**1 January 2024**
**Cash flows**
**Balance At**
**31 December**
**2024**|| ||**£**
**£**
**£**|| |**Cash and cash equivalents**
Cash
**Total**|878,063
(285,349)
592,714|| ||**878,063**
**(285,349)**
**592,714**|| The notes on pages 26 - 44 form part of these financial statements. P a g e | **25** Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 Accounting policie8 1.18asls of prgparatlon of flnan¢lal ststgmgnts The flnan¢lal statements have been prepared in accordance wlth Accountlng and Reportlng by Charltles.. Statement of Recommended practi￿ appllcable to charlties preparing thelr accounts In accordance with thg Flnanclal Reportlng Standard appllcable In the UK and Republlc ol Ireland IFRS1021 lelfectlve1 January 2019} (Charities SORP IFRS 10211, the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS1021 and the Companies Act 2006. British Epilepsy Assoclation meets the definition ol a public benellt entity under FRS102. Assets and Ilabilitles are initially recognised at historical cost ortransaction value unless otherwise stated in the relevant accounting policy note. The financial statements are presented in sterling which is the functional currencyof the charlty. Monotary amounlsar8 rounded to the nearest £1 except where otherwlse Indlcated. By th8 nature of Its prlnclpal actlvitles, thecharity Is a non-profll maklng organlsatlon and because of thls a Profll and Loss Account is not included in these accounts, being replaced by a Statement of Financlal Acllvltles.The Slatgmgnt of Flnanclal Actlvltlgs has bgen prepared on the basls that all operatlons arg contlnulng operatlons. The flnanclal Statements show Infomatlon about the charlty as an indlvldual enllty and not about Its group, a8 the charlty has taken advantage ol the exemptlon provlded by sectlon 405 of the Companies Act 2006 not to prgpare consolldaled flnanclal statements as the trustees consider that all the charlly's 5ubsldlaries should be excluded from consolldatlon on the baslsthat they are Immalerlal for the purpose of glvlng a true and faIr￿ew. 1.2 Golng concern The charity's flnanclal plans tor 2025and beyond take account ol and reflect the challenglng and unpredlctable general financial outlook. The short and medlum term general economlc and flnanclal outlook remaln as dlfticult to assess as ever. The unpredlclability and potential volatility Is reflected by the caution and prudence adopted in future forecasts bul especially with respect to income. Peoples, discretionary Income and propensity to glve lo charlty Is Ilkely to conllnue to be under pressure lor theforeseeable future. Thls wlll impact all fundralsing efforts- from general donallons and Indlvldual glvlng lo fundralsing events, Legacy Income, based on our known pipellne and recent past performance, wlll continue to make avaluable conlribullon. At the same Ilme as ma¥lmlslng neome wa have endeavoured to control spending whlle still allowing the charltyto develop and sustaln Its￿181 services. Embarklng on a new strategic dlreetion has implications lor longer term p18ns and investment began in 2024. Resourceswere directed in the 2024 budget to start the dellvery of the new strategy.11 will take lime for these investments to make a lull return. Notwilhslanding the importance of resourcing the new strategy, the eharity must have long term financLql sustainabillty where spending Is balanced by Income. Due lo the strong position of the balance sheetand the level ol Ilquld resources, the trustees have Idenlllied no materlal uncertalntles that may cast slgnlllcant doubl over the abillty of the company lo contlnue as a going oncernforthe period ol al least 12 months from the approval ol these financial statements. The trustees outline on page17that they have reviewed the reserves position anddelicitforthe year. 1.3 Leaslng Rentals payable under operatlng leases are charged agalnst Income on astralght-llnebasls overthe lease term. 1.4 Incoming rgsourc9S All Incomlng resources are recognlsed once the charlty has entltlement to the resources, It Is probable that the resources wlll be received, and the monetary value of incomlng resources can be measured with sulflcient Page126 Docusign Envelope ID: 7CEE06A3-37A8-4E78-A804-F10735A8AA45 ## **British Epilepsy Association Notes to the financial statements** for the year ended 31 December 2024 ## **1.5 Donations and Legacies** Legacies are recognised when received or when we are aware that the executors have or probably have determined before the year-end that payment can be or will be made. This would normally follow agreement of estate accounts. Legacies that are received in the following year that meet the above conditions at year-end are accrued as income in the prior year end financial statements. In 2024 this amounted to £679,713 (2023: £359,892). Legacies that do not meet the conditions are not accrued at the year end. These are disclosed only as contingent assets and not included on the balance sheet or statement of financial activities. In 2024 this amounted to £73,500 (2023: £41,000). Donations are accounted for when received. Gift Aid receivable is included when there is a valid gift aid declaration, and the donation has been received. Gifts in kind relate to Google ads and are valued at market price. ## **1.6 Grants** Grants received are credited to ‘Incoming resources’ in the Statement of Financial Activities. Grants received are recognised at the later date of either when the decision to award the grant is notified to the charity or on agreement to the terms and conditions of the grant if required and when the criteria of entitlement and probability are met and the value can be measured reliably. Grants payable are payments made to the third parties in the furtherance of the charitable objects of the charity. Grants payable are recognised at the later date of either the decision to award the grant or on receipt of signed agreement to the terms and conditions of the grant if required. ## **1.7 Expenditure** Resources are recognised on an accruals basis and are analysed between costs of generating funds and charitable expenditure as detailed on the Statement of Financial Activities on page 23. Where costs have not been directly attributed to a particular category, they have been allocated to activities on a basis consistent with the use of the resources. Support costs have been allocated to each charitable expenditure category on the basis of staff utilisation or on an activity basis of total direct expenditure. Governance costs include those incurred in the governance of the charity and its assets and are primarily associated with constitutional and statutory requirements. Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits. ## **1.8 Investments** Investments held as fixed assets are stated at fair value at the balance sheet date. Any difference between cost and market value is adjusted annually through the Statement of Financial Activities. The investment in the subsidiary undertaking is shown at cost. ## **1.9 Taxation** As a registered charity, British Epilepsy Association is not liable to taxation on its investment income and gains, income and gains arising from trading in furtherance of its charitable objectives and charitable donations. Recovery of income tax is made on tax credits arising from receipts under deeds of covenant and gift aid payments. VAT deemed to be irrecoverable is written off to the Statement of Financial Activities in the period to which it relates. P a g e | **27** Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 1.10 Tangible fixed assets and depreciation Annual impalrmenl reviews are carried out to ensure the carrying value Is not lower than the recoverable amount. The costs ol mlnor addltlons or those costing below £5,000 are not capitallsed. Tangible fixed assets are slated at cost less depreciation. Depreciation is provided at rates calculated to write off the cost of flxed assets, less thelr estlmated resldual value, over their expected useful Ilves on the followlng basls- Leasehold improvements Straight line over the life of the lease Fixtures, fittings and equipment Straight line over 5 years Computers Straight line over 2 years 1.11 Intsnglble flxed a8set8 and amortlsatlon Identifiable development expenditure is capitalised once the technlcal and financial feaslbility can be demonstrated. Intangible fixed assets are slated al cost less amortisation. Amorlisation is provided at rates calculated to wrlle off the cost of fixed assets, once complete, less their esllmated residual value, over their expected useful live8 on the followlng basl8- CRM database Webslt8 Straight Ilne over 5 year8 Straight Ilne over 5years 1.12 Ponslons The charity operates a detined conlribullon penslon scheme. The assets of the scheme are held separately from those ol the company. The penslon cost charge r9presents contribullons payable by the charlly and amounted to E259,79512023.. £237,257). At year-end the pension credltor amounted lo £nll12023.. £23,927) Sncluded wllhln other credllors and accruals 1.13 8rancheB Income and expendltura Sn respèct of the charlly's braneh network has been Includ8d In the Statèmènt of Flnanclal Actlvltles. Cash balances held by the branches at the year end are shown In Note 3. 1.14Accountlng for separate funds The flnanclal slalements ol a charity must diflerentlate betwe8n restrlcted, deslgnat8d, and unrestrlcted funds. Restrict8d fundsare funds subject to speclflc conditions, Imposed by the donor or by the 5peclllc terms of the charlty appeal. Deslgnated funds are funds allocated for spacific purposes by the charlty It$elf. Unrestricted funds are all the otherfunds of thecharity. 1.15 Recognltlon of Ilabllltle$ Liabilities are recognised when an obligation arises to transfer e¢onomi¢ benefits as a result of past event. 1.16 Cash equlvalent pollcy Cash or cash equlvalent amounts are cash held In bank accounts by the maln charlty or branches and include all cash held on short term deposits. They exclude cash held wlthln the Investment portfollo as part of the on-golng investment activities. Page128 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 1.17Judgemenls and key sources ot estimation urKertainty In the applicatlon of the charity's accounting policies, the trusteesare requlred to make judgements, estlmates and assumpllons aboutthe carrylng amount of assets and Ilabillties that are not readlly apparent from other sources. The esllmates and associated assumptions are based on hlslorlcal experlence and other factorsthat are considered to be relevant. Actual resutts may differfrom these estimates. The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period. or in the period ol the revision and future periods where the revision affects both current and lulure periods. Apartfrom the accrual of legacy Income, Not915, thgrg arg no other areas of estlmatlon unc8rtalnty 1.18 Flnanclal Instruments The company has elected lo apply the provI81ons of Sectlon 11'Baslc Flnancial Instruments, and Sectlon12'0ther Flnanclal Instruments Issues, of FRS102 to all of its financial Instruments Flnanclal Instruments are recognls8d when the company becomes partyto the contractual provl&ons of th8 Instrument. Flnanclal assets and liabllllles are oflsel, with the net amounts presented Sn the financlal statements, when there Is a legally enforc8able right lo set off the recognised amounts and ther8 isan Int8ntlon to S8tll8 on a ngt basls or to realbse the assetand settle the liabllbty amultaneously. 1.19 Flnanclal Assets Trade debtors, other debtor5 lincluding accrued incomeland amounts due from group undertakingswhlch arè recelvable withln one year and which do not constitute a Ilnanclng transactlon are inltlally measured at the transactlon prlce and subsequently measured al amortised cost, belng the Iransacllon prlce less any amounts settled and any Impalrment losses. A provlslon for Impalrmenl of trade debtors Is establlshed when there Is oblectlve evldence that theamounts due wlll not becollected accordlng to the orlginal terms of the contract. Impairment losses are recognlsed In profll or loss for the excess of carrylng value ol the trade debtor over the present value of the future cash flows dlscounted uslng the orlginal ellecllve Interest rate. Subsequent reversals of an Impalrment loss that objectlvely relate to an event occurring after the impalrment loss was recognlsed, are recognised immedlately in the prollt or loss. 1.20 FlnanclÈl Liabllitles Trade and other creditors lincludlng accrualsl pay8bl8wllhin onayear that do not constitute afln8ncing transaction are initially measured al the transaction price and subsequently measured atamortlsed cost. belng transactlon prlce less any amounts Settled. Where the arrangement with a creditor conslllutes a financlng transaction, the creditor Is Inltlally measured at the present value of future payments dlscounted at a market rate of Interest for a slmllar Instrument and subsequently measured at amortised Cost. 1.21 Darecognltlon of flnanclal assets and Ilabllltles A financial asset is derecognised only when the contractual rightsto cash flows expire or are settled, or substantially all the risksand rewards ol ownership are transferred to another party, or if some significant risksand rewards ot ownership are retained but control of the asset has transferred to another party that is able lo sell the asset in its entirety lo an unrelated third party. A financial liability lor part thereof) is derecognised when the obligation specified in the contract is discharged, cancelled orexplres. Page129 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 2 Dfrtslls of In¢omo l)oMlksrn8ThJ1ogacl8B gnHt•d Fwxls 2￿24 Tolol Tots Gewal Fw¥J F￿￿15 2024 2024 2a24 2023 (knaIlL¥wlndl￿¢yU￿l 8rarrthlnccmo Le9acie5 Grants Corpry8t•dfrnti Member8hlpwJb8crlptlcrA Fundrall D￿￿te￿o(￿xIS￿nd 4￿?32 75.962 S06294 661B93 7.021 537.746 290.546 12,007 178￿6 627.456 10&484 1418,319 1258fi54 177.178 227,691 314.162 619.381 110.451 137,749 1258.654 17T.178 2￿,$91 314.182 619ml 110,451 3Jln1 7S.962 tr￿￿trom c￿rItI*l•AcuV1Ij0D D￿gnal•d F￿K10 Total Tots Q•n•ral Fwxl• 2024 FU￿ 2024 2024 2024 2023 $8188OfGcod8an¢Jw￿C08 155579 156￿78 ott*from Tt•dh¥J A¢lvlb•• D•dgn8t•d Totsl To General Fu¥J8 FuThl8 2024 2024 2024 2023 EwntR8oi*raty(x)F•e8 Lotterl88 8EA TradlThJ Ltd 100B18 34fi53 37259 1r28S) 100918 34,653 37259 31989 28949 22229 83,167 Qeneral DO￿9nD1•d F￿d0 Totsl TOÈ Fu￿j 2024 2024 2024 2a24 2023 Irwnefrx•2023 I103244 1010 4,11a476 Page134 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 7. Grants Payable Grants payable In the yoarwer8£nll12023.. £nlll 8. Stsff ¢o$ts and numb8r$ 2024 2ffd3 Wagesand salarles Sc¢id securltyc0518 Other p8nslonco818 1351.587 215222 259.796 2B26.604 2202,898 209262 237257 2,649,417 Durlng the year temlnatlon payments made to1 employ8e12023.'1 employee) totalllng to É120.64812023'. £22,931) Theaverage number of staff employed In the yearwas 76 equal to 65 full tlme equlvalent12023.. 75 ￿th 67 F.T.El The average number ot employees calculated on afull tlmeequlvalent bas18. analysed byfunctlon wa& 2CQ4 2023 charbtableacll￿lloS Management and admlnlstratlonofthecharlty FUndr￿SInG and publlclty 24 Is 28 12 75 The number of hlgher paid employees wa$.. 21r24 2023 Inth8band £70,001- £80,000 Intheband £80,001- £90,000 Inthe band £90,001- £100,000 Employer pension c05tsattribuled to the higher paid employeesarnounted to£11,23412023.. £14,669). No payment forannual leave or other benefits has been accrued. No members of theBoard of Trustees recelved any remuneratlon In respect of thelr dutles as trustee durlng the year120f8£nlll. Penslon creditor at year endwas £nll12023.. E23,9271. Page135 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 9. Analysis of resources us8d Thefollowlng have been charged tothe Statement of Flnanclal ActIv￿o& 2024 2023 Dopr￿laUonQI tanglbleas8els AM￿tIS8t1{￿o1Intsnglb1eas8Ots Hlre ol Land & 8ulldlngs Hlre ofofflce equlpment AL￿lI￿.$remunerat[￿1 RemuneratlcnofauditcKslLY n￿aud1tW￿k 12297 105.086 63,000 13604 105,086 61000 55 25578 28,000 1650 10. Tanglblè Flxèd Assets Lea8gM>ld Axlwe& Ilttbry8 Improvernwts and eq￿Pment Compulor8 Totsl Cost At1 January2024 AddIt1¢￿$dUrInQ they8ar Dlspwlsdurlng theyear At 31 De¢&mber 2024 151210 3208 69053 2,883 92,182 10265 313245 16356 154,418 72,736 102,447 329,601 D8pre¢latlon At 1 January 2024 Chargefor theyear Dlsposals At 31 December 2024 146,379 4P85 66,047 2.713 86,514 4.799 297,940 12,397 151264 67,760 91.313 310.337 Net book value At31 Decembw 2024 1154 4,976 11,134 19264 At 31 D￿ernber 2023 4fvq31 4.806 5,668 15005 Page 136 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 11. Intsnglble Flxed Assets CRM Webslte Total Cost At1 January2024 Addltlonsdurlng theyear Dlsposalsdurlng theyear At 31 December 2024 346,626 178B02 525.428 346,626 178B02 525,428 AnxirU8atlon At1 January2024 Charge lor they8aT Dlsposals At 31 Dec8mb8r 2024 75,102 69,326 45,694 35,760 120,796 105,086 144,428 81,454 225882 N8t book val At 31 Decembw 2024 202,198 97,348 299.546 At 31 December 2023 2n,524 133,108 404,632 12. Flxed Asset Inv6stm&nt8 u￿1sted Totsl Mgrket v8lug At1 January2024 Addltlor ENspc6als Flevaluatlons 1511,025 54B26 1561,9421 101,760 10 1.911,035 64B26 1561,9421 101,760 At 31 O•c•nkn 2024 1505fi69 10 1,505,679 Page 137 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 Holdlw8 2024 Holdlro8 2024 HoldlNJ8 2023 HoldlNd8 2(Y23 Market valug UK ￿d$ Overseas B(￿S UK Equllles Overseas Equltle5 Property Cash 101.466 149,345 262.446 705,189 6.Th+ 9.9% 17.4% 46.8% 0.0% 2.4% 16.Trh 100% 101144 263286 350.367 837,921 34.450 23,592 298265 1911,025 5.4% 18. 43S% 36.104 251.119 1505.669 12Q Other 15.6% 100% All th8 flxed asset Investments ar8 hèld In the UK. Valuatlon At valuallon on acquislllon the quoted investmentswould be shown at£1,41121812023'. £1,738,36n. All quoted investments are managed by RBC Brewln Dolphin on a dlscretlonary basls. Materlal Invegtmant8 There are no inveslmentsthat Indlvldually account for more than 9% of the vaue of the total portfollo. 13. Subgldlary Und&rt8klng8 Brltlsh Epllepsy Assoclatlonowns100% of the Issued ordlnary share capltal of BEA Tradlng Llmited, a company ncorporated In England and W81es. The subsldlary Is engaged in lundraislng activllles, the distribullon of Chrlslm88 cards, 8SSOCl8ted gifts and the promotion ol BEA insurances and publishing. Its financlal year ends 30 June rather than 31 December. This ensures that full account Is taken of the Christmas trade which forms the majority of the subsidi8ry's businesswilhoutthere being any nead to ddaythe finalisation of the charity's own accounts. The accounts of the subsldlary do not lusllfy consolldatlon as the turnover18 not deemed to be materlal lo the charityas a whole. The materiallty of the Iradlng company wlll be revlewed on an annual basls, thus ensuring that the financwl statements continue to b8 prepared using best accounting practice. The tradlng results of 8EA Trading Llmited for the ygarto 30June were asfollows.. 2U24 2023 Turnover 29.07T 39.168 Tradlng proflt 13,033 10229 A gilt aid donation of £13,03312023.. É10,2291 has been received by thecharityfrom BEA Trading Limited and is shown on the Statement of Financial Activities. The netassets of the subsidiaryare £30,010. Thecharity is also the sole member of Epilepsy UK and EpilepsyAction. Both companies are incorporated in England and Wales, have been dormant since incorporation and are Limited by Guarantee. Bn'tish Epilepsy Association uses the working name Epilepsy Actionacross its range of activities. Page138 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 14. Debtor$ 2024 2(Y23 wlthSn ono yoar. Trade debtors 5.198 60.048 31.929 4294 55B53 44,442 2n Socld securltyand other taxes Am(MJnts owed bygroup undertaklng Oiher debtors Prepayments and accrued Inccffie 1270200 1￿67.375 1,010,449 1.115.309 15. Credltor8 2024 2(Y23 Amowts falllrvJ dt* wItNn Or￿ yoar. Tradecredltors Sxld securltyand other taxes Other credItC￿ sand accruals 161.362 63.999 143.663 369,024 160,965 65,047 108,771 334,783 16. Analys18 01 net 88Set8 ￿tWeen funds General De8lgnat8d Restrlcted Tolol FurKI8 Fund8 FurMI8 2024 2024 2024 2024 x￿j assets Axed assetlrwestments Cathat bank and In hand Othèr currentassets 19264 1D822 1360,6981 997565 1369.0241 1,669,343 299,546 318B10 1,505,679 592,n4 IB67075 1369,0241 3415554 121443 7n.583 369,810 181.829 ci8dl1￿9 duewlthln year Total nel awtsat 31 December 2024 481.375 1264B Page 139 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 Anal￿S ot nel assels between funds- previous year Gerwol FurKI8 2023 thdgnated R08tr1ctgd Totsl FuNI8 2023 Furd8 2023 2023 Flxed asset8 Is,￿5 1,752,491 1229.8191 54B59 709,081 1321,2521 1,980,665 404,632 419.937 1,911.0 812.180 65,883 1.115.3)9 1334,7831 1989.561 Flxed asset Investments Cashat bank and In hand 8ranch b8lane89 158,544 963B26 11,024 406228 1115311 1.526,091 78,173 Othèr current asset8 credltorsdu8￿thInc1j•Yèar Total ￿ta$s81$al 31 Dèc8mbèr 2022 482,805 17. Ststemont of Fund8 8elarKo At31 Tran&f•ro Expw¥Jkni G￿n￿(Lo￿￿> D￿•￿b•r 2024 B4w•At 1 2024 1.980,666 154a989 (1950,1￿) 94061 1ffj69￿43 8•l•ne• At91 Tr•rwf•rn ExpwO￿ D•c•nb•r 2024 D*ir*tsd 2024 CMI Datsba8ePrclect P£*aer vieitr Cr8%4lw-R98wch w*b￿l￿prO1 IT AudllPrclvct 276.490 276A90 1x1109 40.OC(I 482B06 131109 38￿70 481,375 11.4=4)) CRM d8tab88è projèct Monies designated lor the implementation of a CRM system.The systern went live on 22 November 2022wlth desgnated fund to be utilised forfurtherdevelopment Identrfied after initial launch. Roggr Vlctor Crowley- Re¥ear¢h Funds received Irom the estate ol Roger Victor Crawley which hewished to be used for research. Webslte Prol8Ct Monles deslgnated for the implementallon of a new website. The webslte went Ilve on10 October 2022￿th the remaining balance retainedfor required updates following brand refresh. IT Audlt Project Monles designated for the reviewof all IT hardware requlrements and subsequent replacements and upgrad8S. Replacement was delayed whlle acomprehenslve revlew was undertaken of current systems and future requirements. Including transfer to cloud storage. Initial hardware Investment anticlpated mld-2025. Pagel40 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 R951r*ted fu￿1$ Jirxw 2￿4 Tr•rwfers E¥por&lrln GWr•(LOw￿ Downb•r 2024 R•J•wth Frol￿*4 octa￿am￿lisM￿(￿l8lFu￿d 28254 157,754 214,431 2,195 28264 149￿42 I1￿82 2195 Rè8e8rchFund.Gen8r 4256 4fi05 112A681 I24￿3) Fknwr¢hFund-CaU￿drKIr￿1l 64899 T•arnMaxChildren'sFund Belriendlng Proect cc4lnW￿&mOrn￿I￿ F￿d EpilepwActlMNlCc￿n8el￿irVPr0JecI Epii4)tyActl¢h)CymruWollboinG S•rMc• F*￿ly￿Ar￿￿t0ttlCw-Ntr1h1rrt1r•l0Th1 Irosor￿ce￿ 124061 82.635 47x9 261188 288 156.1551 67096 9a796 10.160 147J291 191,5941 121H601 148BOOI 1,0 147 162 9M5 43576 JanlceGllberlLeoKy OnllneLowniry S&pphlr8Nur88*heme Th8E8tat8of NellloTerr•tt ThoE&iat8ofJuneGIÈ8go Tiicia'¥Fund- L&arninotigabllltyThq•¢l MylAum,MyDgd Rry*On￿ F*oJ•G Drxeen HinsleyLeoacy-S8ndwell E¢Y￿￿onFuod(88￿l1jc￿&Thwrc￿k) 464.550 14.726 IOD67 3?￿88 20KOJ 2,174 484￿60 115.T261 lo￿7 21022 18.rn 1219 118.0661 19551 115201 6nOO 10.782 1685 1,179 2,104 IOK112 2901 17841 MyFamiiy& MoEb NDrthtrnlrè1èNJFu￿* S•iisbury& Dlstrlct S￿rthWarwIck5NIo 1104 300 535 10,794 IIOA941 1481 583 1.500 Essex 533S 5.400 16901 4.745 Stcthe w8&iMld18nd8F￿um.S￿ffi￿8bury s&ffrI￿Wa1d3n 128 128 1264B 1￿26,091 80,667 1348,7211 6099 Total ILW a989561 a624,556 14.WO.&31 101.760 a415564 Restricted Income and expendlture, which Is revlewed and monltored on a regular basls, represents monles recelved and expended on speclflcprojects. Page 141 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 Octavia Morris Memorial Fund Funds used for publlc awareness campalgns based on epllepsy flrst-ald andon the subject of epllepsy related death. Research Funds The balance retalned on the'Resoarch Fund-Goneral' Is for soclal and medlcal research of a non-laboratory nature. Funds on'Research Fund- Causes and Cures, are retained specifically for causes andcures research. The Team Max Children'sfund isto supportyoung people and children living with epilepsy. Befrlending Project The Epilepsy Action Bofrlendlng Scheme Is a thre&ygar pllot proloctthat wlll gnable people aff ected by epllepsy to access regular, one-t¢>one support by a trained slafl member or volunteer.11 will provide an inlormal'listening ear., and aimsto Improve health and wellb8lng, combat social isolallon and loneliness and help people Ilve w811 wllh epllepsy. Colln Wood8 M8morlal Fund Money In thls fund Is Invested by Epllepsy Action and Income derlved from the fund Is used to support Epilepsy Action's work, with a preference glven to work In Northern Ireland and lor educallonal work but the Income Is not restricted solely for these purposes. Epll8p8y Actlon Nl Coun8alllng Prol8ct The counselllng servlce provides timely access to talking therapie5 for people Ilving with epllepsy, thelr parents and carers in Northern Ireland. This includes.. a1-1 counselllng service. therapeutlc themed group4 reslllence 5esslons and the development ol Iralnlng resourcesfor coun5ellors. Epll6p8y Actlon Cymru Wellbelng Servbce The counsellbng servlce provldes timely access to talking therapies tor people Ilving wlth epllepsy, thelr parents and carers in Wales. Thls Includes.. a1-1 counselllng service, therapeullc themed groups, resllience sessions and the development of tralnlng resources lor counsellors. Famlly Support Offbc8r- Nort￿rn Ireland Dellverlng a range of support for famllles across Northern Ireland. Helpllne servlces Monles raised to enable the eontlnulng runnlng of the helpllne. J8nlc8 Gllb6rt- Lagacy Monies left lo be spent in conlunctlon wlth Sapphlre Nurse scheme. Correspondence wlth the charity commisslon andexecutors, sollcitors have baen undertaken foragreement that funds can be spent on core servlces. Onllne Learnlng Monles raised to enable the continued running of the online training programmes. Sapphlre Nurse Scheme To part fund epilepsy nurse posts In NHS servlces for adults orchlldren wlth epllepsy. Tho Estata of Nellie Terrett Monies left to be spent in conjunction with Epilepsy Action Cardiff Branch. Utilised to continue funding ol thewales Family Support Officer role to delivera range of support for families across Wales. Thg Estatg of Jung Glasgow Monles left to be spent In Newcastlfrupon-Tyne. Page142 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 Tricia's Fund- Learning Dis8bilityProject To develop resources for people with epllepsyand learnlng disabllltles. My Mum, My Dad 'My Mum has Epilepsy, and'my Dad has Epilepsy. booklets. These booklets are educational toolswhich help parents with epllepsy explaln thelr condltlon to thelr chlldron. Our booklets wlll ensure that parents have a rellable means through which to leach Ikeir children what to do and will give them much-needed tools to communicate their condition in a clear, positive and reassuring way. Doreen Hlnsley Legacy- Sandw811 Monles left to be spent in Sandwell area. Educatlon Fund- Baslldon & Thurrock To deliver awareness sossions In Baslldon and Thurrock. Gloucester8hlre Money ralsed by the branch for local projects. My Famlly & Me Event8 Money ralsed tosupport UK wlde famlly events. Northern Ireland Fund Fundlng towards sdary costs of thè Nl managèr. Sallsbury & Dlstrlct Money raised by the branch for local projects. Southwarwlckghlre Money ralsed by the branch for local projects. Reglonal FundB Comprlses funds ralsed In England, Wales and Northem Ireland that are to be spent speclflcally In those areas. Essex Branch Money raised by the Essex forum for local prolectsacross Essex. Stokè Branch Money raised by the branch for local projects. Wast Mldlands Branch Money raised by the branch for local projects. Saffron Walden Branch Money ralsed by the branch for local projects. Page143 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 British Epilepsy Association Notes to the financial statements forthe yearended 31 December 2024 18. Indemnity Insurance During the year thecharity Incurred costs for Insurance cover against the possible loss arlslng to the charityfrom the neglect of defaults of its trustees or agents and to Indomnlly tho trusteesand other off icgrs against the consequences of any neglect or defauh. 19. Flnanclal Commltm8nts At 31 December 2024thecharlty had total minimum lease payments undernon-cancelLable operating leases as follows.. LaNI And b￿ld1￿8 2024 2Iy23 2024 2023 Explry dats thln l year 8e￿en2and 5 year8 63,¢)00 288,764 316,000 988 11574 1,187 1.497 20. Analys18 of Trustee remuneratlon 8nd axpen8a4 and th8 C08t ot key managament personnel. The key management personnel of the charlty. comprbse the trustees, the Chlef Executlve and the Deputy Chlef Executlve. Total employaè benelSts, Ineludlng 8mployors NIC, of the key management pèrsonnèl of thè charltywèr8 £255,59012023.' £204,0061. No charlty trustee recelved p8ymenl for professlonal or other s8￿ceS supplled to the charlty120¥8.. £nlll.Travel and subsistence expenses durlng Iheyear of É10,62412023.. É4.0891, were reimbursed to or pald on behalf ofthe 18 trustees who served during the year (see page 2- Trustaes, annual raportl. 21. Related Party Tran8actlon8 There were no related party transactlons durlng the year12023'. £nlll 22. Flnanclal In$trumant$ The carrylng amount of the company'sflnanclal Instruments at 37￿ December 2024 were.. 2024 2023 Ana￿la1 As8ets DgbtinstrumgntsmeagJre(latamrytls•Jccst 1.057.953 787297 lal Llèblllllo8 Measured atarnrX￿s8d ¢r*t 266.176 209,882 23. Capltal Commltments Thecharity has capital commitmentsof £10,000 relating tothe Creative Shootout programme12023.. É21,000). Page144 Docusign EnvelopÈ ID." 7CEE06AM7APAE7&A804F10735A8AA45 Glossary The annual report and accounts have to provlde detalled Informatlon to meet company and charlty law. We know that many people wlll be unlamillar with some of the words that we need to use. Here Is a Ilst of some of them wlth a brief explanation of what they mean. Accruals basis Income and expenditure is counted when the money is earned and when costs happen, rather than when the mone actuall enters or leaves the account. An expense that has happened bul hasn't been paid yet. For example, slafl wages accrue until the da the are aid. An increase in the market rice of an asset. If part of an unrestricted fund is set aside for a particular project, it may be designated asase arate fund. A donation that is made in oods or services, rather than mone When someone isa member of a committee without being elected to it but because of another osl that the hold. An asset with a useful life ol more than one ear. Investments like shares or bonds that are off icially listed on a stock exchange for tradin An amount ol money is assessed on Ils importance. For example, a debt of £10 might not be aconcern. However, a debt of £10,000 could make a blg difference to the flnancial health ol the or anisallon. It makes a material difference lo the accounts. A aln from sellln an asset tor more than the ori urchase rice. An accounting process that compares two sets ol records to make sure the numbers match and are accurate. The value of an asset that It could be sold for at the end of Its useful Ilfe. If someone glves money to the charlty for a particular purpose. the charity has to use It for that ur ose. The use of the mone is restrlcted. Thls Is a way ol spreading the cost of an asset equally overthe number of year5 It Is ex ected lo be used. Ph slcal assets, Ilke a com uter s stem or Im rovemenls to a bulldln A alnlloss from revaluin an asset at a hl her value than the orl Inal urchase rlce. If someone glves money to the charlty wlthout saying11 Is tor a partlcular purpose, It can be spent on any area of work for the charlty's objects. The use of the money Is unrestrlcted. Accrued rowth Designated funds Donations in kind Ex olficio Fixed assets Listed investments Materlality Reallsed alns Reconcillation Resldual value Restricted funds Straight Ilne basls Tan Ible flxed assets Unrealised ainlloss Unrestricted funds Page 145