action opoll@Pgy . BRITISH EPILEPSY ASSOCIATION (A company limited by guarantee) TRUSTEES. REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023 REGISTERED NUMBER: 00797997 CHARITY NUMBER: 234343 'JD14Y848• 1fJ0412024 COMPANIES H￿sE A14 A WORLD ITHOUT LIMITS "FOR PEoTrLE WITH EPILEPSY CONTENTS Chairf5 report Honorary Treasurees report Trustee5' annual report Strategic report 8-21 Independent Auditorfs Report to The Members of British Epilepsy Association 22-24 Statement of Financial Activities 25 Balance Sheet 26 Statement of Cash Flows 27 Notes to the financial statements 28-46 Chairfs report I was delighted co be re*lected as Chair of the Council of Management by my colleagues on the chariry's governing board of trustees in July 2023.1 am grateful to my fellow Council Members for their continued support and conf￿enCe in me and a150 for all their hard work and dedication throughou¢ the year. I would especially like co acknowledge the contributions during the year of Peter Clough as Vice Chair of Council and of Nicholas Hutwn as Honorary Treasurer. In June. Gavin Barlow stepped down from the Council after 12 years of dedicated service. We will miss his thoughrful inpui dravm from his insight and deep knowledge of epilepsy and the impact it can have on peoples, h'ves. Also in June Mike Harnor left the Council after deciding not to seek re-election. Mike had been on Council since 1985 and vfts our most experienced trustee. At drfferenc rimes he ser¥ed as Vice Chair and Chair of Council. We thank both Gavin and Mike for everything they have done for the charity and for people wich epilepsy and we wish them well for the future. At the same time we welcomed two new members to the Council in June. Deirdre Black and Cameron Hill both have Tftluable personal experience of epiSepsy and are already proving to be a valuable addition to the team. Our financial perfomiance in 2023 is covered by Nicholas Hutton's Honorary Treasurer's report and ifi more detail in the financial statements for the year. I would just like to say he￿ a big thank you to all our fundraising staff who have worked so hard. and co every single one of our members. supporter5 and donors who have yven money. undercaken sponsored events or online challenges. It is onty because of your generosity that the charity is able to help and support so many people. 2023 was a year of notable successes and achievements. These are described in more derail in the following trustees. reporL For me the one item I do want to highlight for you is the creation and adoption of a new strategic plan that will carry the organisation through until the end of 2030. This Tr*vas the product of a phenomenal team effort by tnjstees. soff. volunteers and thousand5 of people affected by epilepsy who contributed their views and experiences and vkno shared their hope5 and dreams for the future with us. The result of all this hard work is an ambitious And inspiring plan launched at the beginning of 2024 that reflects what matters to people epilepsy and those who care for them. The plan give5 Us a clear way ahead and also addresses the rype of organisacion that Epilepsy Action needs to be. how it 5ee5 itself and how it projects itself to others. The A550Clation is in a strong position. It has a solid financial base, high qualiry and relevant services. an efficient and effective Organisation￿ Structure and a Eeam of people co be proud of. There is a great deal of work in front of us. but with our new strategy in place we are loo￿ng forward to the future with confidence and enthusia5ffl. Jane Riley Chair, Council of Management 9 April 2024 Honorary Treasurerfs report improving the qulrry of healthcare serwces for people vAth epilepsy and £798.434 on improving awareness and unders¢anding of the condition {2022.. £607.867). We 5peni £1.365,195 on rnising funds in 2023 compared with £1.3W177 in 2022. charity'5 resrn poliry is that the Assotiati¢)n shall maintain a levd of unrestricted ffinanaal reseTh thar falls within a range of between four months and £we￿e months gross toul unresrricted income. If the level of unrestricted financial resetwes m¢)ves outside of these parnmeEer4 then the Council ot Management will ke aFvropnate act¥on. B￿ed on tOLII unrestricted incs)me of £3,465.470 in the 2024 revenue budgei the range of unrestricted reserve5 should be be￿een £3.46S.470 (12 month5 cover) and £l.155.15714 months coverl. At the end of 2023. the unresrricced reserve funds amounted to £1.980,665 (2021. £3.110.211). A¢ this level they represent 6.85 months of ￿n￿tricted income and are therefort within the boundaries ser by the reserves policy. Again. for comparison. this level was £2.543.498 in2021. The Council of Marugement takes a Strategic view of rinaftcial progress: monitoring and evaluaung performance against the forecas￿ made tn the 3ftn￿l revenue budget arKI other plan5. In the face of challenging economic conditton& including risi￿ cost of living pressures and inflation. l am P￿sed to report the financial results for the tharity in 2023 consistent with anucipated performarKe. At the end of the year the charirl held tocal reserves valued at £3.989.561. This compare5 to t¢xal reserves of £5.268.676 in 2022 and £3.672.153 at the end of 2021. In addition to the unrestricted reserves mentioned above. £482,805 of the total was held under designated fund% of which £404,632 ha5 be¢n ucil¢sed for the CRM & website project% and £1,526,091 was held for re5tri¢ted pwposes. As projected. incorne levels for the year returned to levels more consistent and cornpard￿e with 2021. following the excepvonaf receipts of 2022 relavng ¢0 both legacie5 and grant income. Total income in 2023 was £2,767,139. This compares to £5.307.506 in 2022 and £3.314.918 In 2021. The total funds raised under challenging condiuons demonstrate the dedicati¢M and generosity ol our donors. supporters. and volunteers. To achieve a fin￿￿al result in 2023 consistent with anticipated ptrformanco despite continuing challenges. reflects the work undertaken together- l extend my heartfelt 8Tatitud¢ to our deflicated team, ¥olunieer5. donor5 and SUPFQrters whose unwavering commitmeni and generoyty have enatAed u5 to overcome forniidable challenge& Totsl Spending in 2023 wa5 £4.113.476. This compare5 to £3,512.163 in 2022. Expendiwre has been incyrred in the year for the granrs recognised in 2022 for both the counselling and family support projecrs. The dthci¢ posityon for the year was anticipated in the ann bud￿ offsetllng the surplus position Irom 2022. Ic is however impernttrve ro acknowledge the impacr of e%￿rn￿ economic lactors. The esdating cosrs of essential setrvbce& personnel and overheads necessita￿ prudent financi￿ management and strncewc resource aliocav¢)n. Resources are direcred in the 2024 budget to start the delr*ery of the new suaregy. Thi5 includes new income generation opporruniiies. The relendess increase in the cosr of living has undersrandabty made ir difficult for indi￿dual$ to allocate discretionary income roward5 chariubje gwng. necessitating a caurious approach to fundraising srrattyes. Therefore we expecr it will take time lor these investmenrs io make a lull recurn - but we antTrcipaie seeing thi5 bynning to happen in 2024. Acr055 all lunds there wa5 a deficit of £1.346.337 (2022.. surplus ol É1,795.343)- After accounting for an unrealised gain of £67,222 on the Yalue of investments 12022= Un￿alised105$ of £198.8201 the net movement in hJThJs for the year was an outpng of £1.279.115 12022= incoming £ I,S96,5231. Totsl funds at year end are £3,989,56112021. £5.268.676)- Once again. this was in-line with expected performance Wh￿ offset againsr an excepiional performance in 2022 and compares favourably with total funds in 2021 of £3.6n.153. Notwithstanding the impJrtancÈ of resourcing the new s¢ra¢e&v, the Char￿ must have long rerni financial sustainability Trwhere spending is balanced by income. Spending on charirable a(tyvitses in 2023 was £2,748.281 compared ro £2,165,986 in 2021 Of total we spenc £1.949,847 (2022: £1,S5&119) on Nicholas Hutton Honorary Treasurer 9 April 2024 Trustees. annual report The trustees of British Ewlepsy Association. collects'vety known as the C￿n￿l of Management or'the Council., has pleasure in presenting its Trustees Annual Report incors*)rating the Strntsyc Report and Audiced kcouncs for the year ended 31 December 2023. Structurep governance and management The orK3ni521ion was first set VP as i charitable tryst and wstered at thè Chan"y Commission on S December 1950. The Associati¢￿ became a company limited by ￿aran￿e on 25 Marth 1964 (wsterèj in England. number 0079799D and was re•WStered at the Ch￿ty Commission on 5 August 1964 (wstered charity number 234343}. The Association is also registered for Value Added Tu (Re8iStyatic￿ No. 183 1032 391. The A$stxiati¢)n is C¢)nsri￿£ed under a Memorant4um and ArD"cles of Associaiion. The curwjt Memorandurn and Arride5 of A55ociation were adopted by the mefflber5 on 17 June 2￿. The A5s¢xiation does not have share capital. canr￿£ pay dividends and must utilise all of irs funds to further ics stated haritable objectives. Under rhe tern)s of dause 7 of the Memorandum of Associatyon Lvery member. a5 defined by Arociati¢)n's poliq is carried out by the s¢aff through daY-t{￿￿Y operational aC(i￿rY supetrvised by the Chief Execuvye. The Council is made up of a maximum of 16 members of the Association who have been eletted by the membership. One third of the Council members rerire by rotaiion eath year. Persons Se￿ng election or re-election must be nominated by tr40 subscribing members of the Association. The Associauon is proud of its open and demoerdtic crndtrion. which enables the charity ro have the benefir of a Counol whsth includes people with epilepsy. carers profes5iona15 and others interested in the condition. Artide 24 illow5 the Council to apwnt up to (wo additional Council member5 co hold office for a maximum of th yexs, su￿.ett ro annual confirmatyon by the Annu￿ Gen￿￿ Meeung of the ￿$9¢1￿tiofL No Council members appoinced in this way held office dijring 2023. In accordance with the Articles of Association, the follwng members of Council a￿ retyring ai the Annual GeneAI Meeting on 18 June 2024". - Jayne Burton. Avril Coelho. Joanne Greer. Ntthdas Hutton and June Massey. The people who seryed on the C￿jn(lI of l January and 31 December 2023 we Chair Jane Ri Wire Ch•r Pew Clough Honorary Treasur*r Gawn Barlow- ￿tired from Cowbol 13June 2023 Deirdre 8lack- de(ted to Counal 13fvne 2023 Jayne Burton Richard Chapman- T￿ed ¢0 Cwntsl 13June 2Q23 Avril Coelho joanne Greer Cameron Hill- eleaed to Counal 13fvne 2023 Diane Hockley Michad Hamor- retsred from Cour07 13 J(me 2023 S￿th Lawson- F&elected ￿ Counol 13June 2023 June Massey Tom McLaughlan Katie Sre¥ens Stephen Timewell Walker- rfrekned to Counal 13June 2023 TNstee recruitmen¢ appointmen¢ induction and tAinin8 Epilepsy Actyon is a charity fflade up of individual membws. Every year the rnembers elett people to be the trustee5 of the charity. The recruitment prrxess for new trnsrees is carried our by nominaiion of which there are four conditions: l. You must be aged 18 ye￿5 or older. 2. You mus¢ nor be legally disqualified from bwng allowed ro be a company direcror or a charity frus￿. 3. You must not be incapable by reason of menral disorder. illness or injury of manayng and administering your own ffairs. 4. You musr have been a member of the Associarion for a£ leasr 12 months at the date when nominations for the elecrAon close. We wdcome different skn'lls experiences and areas of knowledg¢ buc above all, the drive and vision to inlluence and improve thè lives of people with epilepsy. Epilepsy Ath"on encourates nominatyons from members of all background5. It's important that the Council of Management is a5 represenwive as possiwe. All CouncTI members pve Ireety d therr time and received no remuneration in the year. Reasonable expenses are paid for attending Council meetings and all other relevanrfunctions ofthe cknty while acting in wacity as a Council member. Details of Council expenses and relevant third party transactions are disclosed in Nore 20 co the financi￿ sta￿MeNt Each newty eletted CourKil membw receives guidance notes abou¢ thtir and responstbilityes as a charicy trustee and company direcror as part of a compreh￿s1Ve inducDOn process. Individual trus￿eS attrnd conferen¢ts. seminars and other training and learning opportuni¢ies as necessary through the year to update rh•r knowledge about their role and respon5ibili¢ies as charity trus￿5 and company directors. Trnining and Person￿ development needs are reviewed l5 part of the ann￿1 appraisal of the C¢JJncil and its membe Councll appraisal and corporate governance The Council of Managem￿l (arries our a sysrem of trustee annual apprnisal to ensure the continued efficiency and effecriveness of the Couneil. A Co￿tIl rornmittee on corporate governance suppon5 this objettive. Council of Management commlttees and advisory panels There were three Council c¢)mmittees during 2023: Corpordte Go¥ernart& Finance and Strdtewc Policy. and the Standing Commitcee. Each Commiuee has (ern15 of reftren￿ and a membwship that is approved by the Council and revlewed on an annual basi& Council members also servè ¢)n a Sraff Appeals Pand ro hear aPF￿1$ from 5¢aff in relatyon to grievance or disciplinary di5putrs. There were no appeals ro the panel in 2023. Memberslwp of the Council's Committees and the Council's Sraff Appea15 Panel in 2023 is listed below. Corporat• Governan￿ Committe• mwmwn 6 members Finance & Strateg¢c Policy Committee 64 members Jayne Burcon RKhard Chatmnan Committee ChLTirfo S September3Q13 pttmb¢r 3913 Do£Mts2023 lan Walker Nicholas Hutton C•Mlrtt¢¢ Chttirfmm S Septenthr 2023 Cvmmittee Ffice Chorrt• 5 September 2033 S¢pt¢TrxbeF 1023 'chard Chapman Jane ￿leY Committee rice Choirfrom S S*ptsJxber 2023 Septembw2013 Diane Hockley Peter Clough (￿l￿￿e offic Sarah Law50n Tom McLa Katse Stevens oanne G Oiane Hoekl ufie Mas Tom McLa Michael H￿nOr Sarnh Lawson Kaue Stsvens Frnm 18 2023 lan 18 2023 To I 2023 From 18 2023 To18 2023 ro 18 2023 To 18 2023 Standing Committee m￿lmum 5 members Staff Appeals Panel m￿mum 6 meJnbers hnel Chotr ne Riley Peter Ckyjgh CourKQ TrfKe Cthre¥ o Pe￿r Clou Nicholas Hlttton Richard Chaprnan WKe O Richard Cha Avril Codho man From 18 2023 Frcyn 18 2023 to 18 2023 T¢)m McLau ne &JEYon Ga￿n Barlow lan Frcyn 4 2023 TD4A rrf2023 TITr 13 L￿t 2033 Advisory Panels At the end of 2023 the C¢yJncil ol Management d￿lded to close four of its athiscry pnels - it5 Health and ainical Advisory Panel. its Research Advbsory Pand. irs Stt"entific A￿drdS Pand and i(s Women's Advisory Pand. The hjnctions of these panels are now perf¢Jrmed by other means so che /d￿(e and ewtyse that they provided for many year5 will not be los¢ in the future. The Council is imrnen5ely grateful to all of the people who have served on the panels over the years and in parricular would like co ackn￿edge the foll¢)wing people who on one or more pand during 2023. Health and Clinical Adviso Dr Colin Oun￿eY Panel Professor Markus Reuber MD PrtD FRCP- Chair Dr kn Abdulla FRCP (UK) FRCPI Msc Immun Msc Med Ed Dr Richard Appleron LRCP MRCS MBBS DCH MA {Ox¢)nl FRCP FRCPCH Dr Manny Bagary MBBS MRCPS ch PnD Professor Marrin PKodie MB Ch8 MRCP FRCP Professor ￿Chard Chinn Dr Owen Pickrell M5 Jo Gddard Prole5s0r Mark Richards Dr Hayley Gorr Mrs julie ￿'8bY Msc 8Sc (Hon5} MCSP Ms Chrisone Hanson Mr Richard Selway MA Mmdsci MB Bchir BSC FRCS SN Professor Stefano Seri MD FRCP Dr Dan Hindley Simon Keller Professor Phil Smith MD FRCP Dr Hannah Cock Bsc FRCP MD Dr john Crwg Professor st￿en Kem Professor Sayeed Khan MB Bmedsa DGM CMIOSH FRCGP FFOM FRCP FRSA DM Professor Helen Cr05s M8 ChB PhD Dr ￿hn Paul Leach MD FRCP FRCP FRCPCH Dr Anita Devlin Dr Rh Thornas Mr Martin Tisdall Ms Bernie Waldron RSCN MS Professor Matthew Walker MA MB Bchir FRCP PhD Drjirn Mwow BA (Honsl MD PhD Dr Ingram Wright BA {Hons) PhD D FRCP Clin P5 Dr JM Dickson Researth Adviso Erica Chisan Dr Sarah Cdlard Panel SeientifK Avnrds Panel Dr Khalid Hamandi Emity Holmes Women's Adyiso Ms BÉth Irwin Dr lim Morrow BA (Hons) MO PhD FRCP Rebecca 8romley Panel Ms Helen Coyle KGN BA (H¢￿$} MPhil Dr Adina Lew Dr Dou all Mcco Dr lan Minshall M8 ChB DRCOG FPCert CPTGP Deb Pal Professor Howard Ring BSC M8 8S MRP5 ch Rohit Shankar Prol San Sisodi Professor Michael johnson Ste hanie Kilinc Melissa M ire Linda Mayhew ohn Crai Kim Morl Dr Arjune Sen el knnett Fiona MCK1nr￿n Dr Rohit Shankar Dr Sophia Varadkar Ra'iv Mohanra Leone Rid5dale Andrew Treve anine Winterbotrom Two Adwsory Panels ¥e conunving. These are the 1&30 Pand and the Ethnic Communities P3nel. Both of these were set up in lao 2022 and popUla￿d during 2023. The members of the p￿elS are apwnted by the Council of ManagemenL Eath pand has terms of reference approved by the Counol. Membwship of these panels durin8 2023 is listyj below. 1&30AthIs Ellie 8ales Nick Ble55in Vasundhara Deshmukh Laura Dolan ncha Pan Ethnic Communities Panel Mubarnk Ahmed Abi Bknatunde Fathi Bahdon Shalini Booluck Sabena Cheema inHu Ffl Kave Irvin Francesca Kd Tarnsin Kiouzdi5 Rachel Mcmunn Chris Parker Frances Whi odie Mason Louise Moore RezR Thilini 5uhail Domini Wood trs Epilepsy Action Cymru and Epilepsy Action Northem Ireland The As50eiatyon operates in Vvafes as Epilepsy Action Cymru and in Northern Ireland as WeP5y Action Northern Ireknd. A National Advisory C0￿clI for Wales and a National Athsory Council for Northern Ireland provsde advice. guidance and svpporr for the charity s work in these c¢)untries. Both Councils have terms of reference and a membership thac is approved by the Council of Management and whth ￿ reviewed on an amu￿ ba51& Mernbership of the National Advisory Councils during 2023 is lisred bdow. National Advisory Council for Nwthern Ireland (Maximum.15 members) National Advisory Council lor Wales .Cyn8or Ym8yn8horol Cenedlaethol Cymru Maximum I S memtws Dr Khalid Hamandi- Choir Ms Louise Ca Dr Frances Gibbon Ms Chloe Nooi Ms Mallsa Th'er Dr Rob Powdl &"oTr Gl n Prirchard éner￿ S iers Dr Abi il Swift Mr lan Walker Mrc Williams ohn Crai - Chair Ms Gillian Dourish oanne Greer Dr Michael Kin mau￿ Mackn"e Ms Sarah Mccann n Mccarth Ms Deborah Mccrudden Dr im Morrow 8A Hons Dr Louise Rusk MsKe wath.nson Mr Derick Woods BA Bsc Di Mrs Marion Wood5 MD PhD FRCP Ed Trurtees, interests Members of the Counol are charity rrustees as defined by the Ch¥Tiies ACL &'nce the Associauon is a company limited by guarantse. persons ￿tt￿d or appointed to its Council are a150 director5 and are regiswtd as such in attordance with the Companie5 ACL Council members may dim for reasonable expenses incurred in undertalung the Association's business but they receive no remuneration or other financial benefiL AJI member5 of the Council have confirmed that Ihey do r¢ot have and have not had any beneficial interesi in any contratt with the Association apart from ¢he dixlosure5 made within Note 20 to the account* The Assooauon mainta.ns a publidy available w$￿r of rrustees. interest Strategic report The fdlowing report inclides the derail required by the Cornpanies Att 2006 vfflh regards to the suatewc report Risk assessment The Council has a55essed the major risks w which the Association is exposed in parocvlar th95e related to the operations and finances of the charl￿. The Counol is sarisfied thar rn￿ag￿ent and contrd systems are in place ¢0 m1vga￿ the Associati¢x's exposure to the maior The Ctyjncil wiews these risks and controls at least four times each year. lknsks are idenvfied and assessed by the trustees based on their likdihood of hapFeniry and the Severity of th*r impacc rf they were to ￿pen. Fkn5k5 are scored before acuon 15 taken (gross risk score) and agin after action is taken Iner risk score). On 5 December 2023. ￿ risks wert idemified and assessed a ner risk score of 15 or higher making them the most significant risks to the charity. The 2023 datrs are did at the vme the risk wster was last rÈ￿eWe￿. ThÈse risks. their Potenti￿ impact and the action5 taken in response to them are as foll Description of risk Potential imp3rt Actions taken to mltizate risk Net risk score after action tsken Turbulenr macrotheconomic condiuons givin8 rise to financial crisis.. inflation.. unemploymeno public Sector austtrity: less personal disposable income- falling stock markets Reduced income: higFw costs.. reduced spending: use of reserves to balarKe firwice5.' increase in dern￿￿ for seNces: rethjction in setrmce delivery. Monitor ee¢)nornic forecasts and geopolitid events and tske these inco aCtt•uni in ffinancil and bJsiness planning. Risk based reserves policy prowdes financial cushion against short rwm vola(ility. Diyerye income generdtion spreads the risk of failure. Three year perspettive on annu￿ revenue bL￿￿get 24 Failure of One or more top five sources of incom4 (delivers less than 80% of taryet) Pressure on cash flow.. lower income than expecod and planned for. reduced spendint andlor depleted reserves to balance finances.. disruption to long cerni pLan5.' lowered Stakeholder moral services reduced. Major sources of income are irjentifieil and closely mt)niwred. Legaq analysis and pipeline ro to help accuracy in predicring lerdcy income. Maintain a broad base of fundrnising. Risk ￿Sed reserves poltry based on fvture income rellects potentiat volaolity of income. Council's Finance ind Strategic Pclicr Committee regUl￿ty review fundraising wFormance and PL￿$. Fast adoption of new initiaoves. E¥perienced in house communicauons diy'(al ream sUp￿emented by external advisors and suppliers. Continuous horizon Kanning for new developments. IT systems and infrastructure implemenuDon programme in plact Schedule of development and correcDon5 in place with su 20 F&lure to successfulty 4dopc and aP￿Y new di&'tal technology {e.g. Al.. media- di&￿] publi5hin&..) Repu¢atyonal damage: overtaken by competitors: seNtes Eecs)me obsolet4" turKkaising le55 ellective. 20 Operationil failure of the CRM database that prevents or hinders basic business effettivene55 Fundra$5in& Membershi￿ seThicÈ& accounting lndlcf sokeholder 20 Operatyonal failure of the main website that prevents or hinders basic buyness effectiveness Fundraisin& memEershl￿ 5er¥ice& accounring andlor sukeholder Website hosting is outsourced. Implementation programme in place. Schedule of devdopment and corrections in p￿ce with supplier. 20 Reputational damage.. loss of public and donor confidenw disruption to ser¥ices: cox of recovery. In¢ome from lundrdising overall falls below expectsoons Iddiver5 less than 80% of rargetl Pressure on cash flo￿. lower income than expeued and planned for. reduced spending arnjlor depleted resery& to balance firgnces: di5rupuon to long term plan& lowered stakeholder moral serrices reduced. Annuaj revenue b￿l Annual i￿SInesS plan. Individual hJndraisir¥ project plans.. Council's Ftnance and Strntewc Policy Commirree regularly review fundrrising perfomiar*ce and plan5. Fast adoption of new inityatives. 16 Failure to comply with Data Protection law and regulation Fir4ncial penalties imposed by regulat￿ suspenwon or loss of license." reputaiional tdamag& loss of public Confiden￿ loss of incorne and supporL Direttor of Finante and Oper3ti0n5 app￿nted Data Protectyon Officer. GDPR trrining for all 5raff. GDPR awareness for volunteers. GDPR permission renewals pr¢xess in ptace. Ensuring nv* CRM daubase is GDPR com liant. IT covered in disasrer recovery plan: ants-virus sofwre in place. Staff mindèj to be alert poten0￿ threats. Communications and Dityal Engagemeni deparrment focu5es expertise and cyber aiuck awarenes> Hans in action for recruitmenL r￿ntion atjmin1s￿aty¢?n of members. 16 Cyber attack Reputational damage- loss of putjic and donor c¢)nfidenc< disruption to services: damage to di&tal ¢nfrastructur< vrtbsite losr or disabled.. soaal media disabled: c¢)sc of recovery. Is Significant loss of membership. Reputational damage: loss of mandate and authoricr, weakened inffluente.. lower incr*ne.' k)weraJ stakeholder Mo￿e. xcderating loss of member5. IT sysrems f¥lure Systems fail to meet operational need- email system cdlapses,. IT obsole(@ IT supplier fail& loss or corrupoon of daty data protection law breach. Insurnnce ro cover dau recovery. Sysrematic updavng of IT.. comprehensive back up procedures in place.. due diligence coM￿eted on supplie 5erwices formally contracted.. monitoring of data protection law and staff trdininz in ompliance- IT covered in disaster recov an. Subsidiary companies The Associacion has three wholly owned $thidi2ry companies. Epiwy Attion and Epilepsy UK are both dorniant cofflpanie5. BEA Tradrng Limited is engaged in fund￿s￿n8 attNitie& the d1$rrib￿1on of Chrisunas cards. associated and the promotion of 8EA insuAnce& More informaiion about the subwdiary companies can be found in Note 13 to the account& Co-operation with other charitable or8ani5ations The Associatyon is an active member of the International Bureau for Ep'lepsy {IBE). the Neurological All¢ance, the Disabiliy 8enefirs Consortium and Nauonal Voice5. The Assock4rion is a150 a member of the Nation￿ Council for Volunwy Organisations INCVO). the Association of Medical Research Charities IAMRC). the Chartered Institute of Fundraising and the Charity linance Group. In latr 2023 the As50CiatTron agreed to be a Founding Partner in the new Epilepsy Research Insticute UL Public btnefit The trustres have referred to the guid￿e con￿ne￿ in the Chrity Commission's general guidance on public benefit when rwewing the As5¢xiation'5 aims. objeeDYes and actiwues and this reporc seek$ 10 comply wrth that guidantt by learly ewaining and illus¢ratynz how the delivers pulAic Inforniation about the tharirf5 fundrai51ThZ The charicy's fundraising strategy and income generation FAan 15 Outlined in two d¢)eurnents 'Epilepsy Attion fiJndraising delivery and monitoring ￿an. 2023. and 'lncome Generauon Plan 2024.2030.. A copy of both dotumènt5 has been made available to every Council member. The'Epilepsy Action fundraiyng tjelivwy and moni¢orir¢ plan. 2023. supports Council members in their role of ¢)verseeing fvndraisin¥ in line with Charity Commission guidance {CC20. 'Charity fvndrai5ins. a guide to crus￿ duues.). It describes how fur￿raiSIng is manased and overseen in order to ensure it is in the charity'5 best interests and cornpliant with the law and besr practice. Ic oudines each area of fundraising the chari undertake5 antj provides more information in rdation to thar area of fundraisin& Income generated from lundrai&ng aCti￿treS ts critid ¢0 the charrty's wdlbeing. Fundraising is broken d¢)wn in rhe following key aws.. fundraisin¥ and communiry event& legacies. membership subscriptions and donations. vusts and funds. direcr marketin& individLuI donations. industry and commerce. lotteries, local services and trading acu¥iues. The chariry works a number of professicjnal furthser& These include Ste￿￿8 Managernen¢ an external lotw manager, and Gather Campaigns Lcd. a face-cothface fundrnising agency. The charity str4Yes for the highest possiE4e standards in fundrdising and ensLbres all bts Staff. volunteers and trustees adhere to both legal oblBaiions and best pratttces laid down by the followir Chartered Institute of FUndrai￿n% The FundAising Regulator Gambling Commission Information Cornmissioner's Office Artion Fraud HM Revenue and Cu5tom5 (HMRC Charity Commission Charity Commission for Northern Ireland (CCNI) Sc¢)ty5h Charity Regulator IOSCRI (Ico) The Charity only works with professional f￿draisIng organisauons that also meet these srandards. li wll mt enter into a partnership with any external hjndrrising organi5ation that does nor Me￿ these requiremenrs. There wert no recorded incidents of failure by the dun"ty. or by any person acting on its behaw. to comply with fundrai5in¥ stsndards in 2023. The chancy monicors the fvndrnising acriviry of people acrtng on irs behajf. principalfy through: The pro￿90￿ of suppor( advice and res¢)urces to anyone •tting on the charity's behalf. Fundraising prattices and procedures mucually agreed with anyone atting on the charity s behalf. Spot checks and $￿IPlIng of lundr¥sing aCu￿￿e5. The chariw received no compl*"nts abovr futh.sing acoviry in 2023 (2022: nil complaints). The charity has a pc4icx on working with vulnernble supporter5. Any agency acting on behall of rhe charity is required to demonstrnte it has policies and practyces in place to ensure *iJlnerdble supporters are safe and that the charity is made aware of their vulnerthlrty. The charity and its principal fundrrising agencies have in place agreed srandards to prevenc intruson into personal priwacy. The charity ¢)nly asks for the personal informati¢x that is required in ordtr ro fuffil the actions agreed with the individual. The charity's tdephone fvndraising partner has srandards in ￿aCe ro limi¢ the number of calls made to any individual. The same agency also has plaeed M￿lMuM limits on the numbw of times any indtvidual is asked for financial support in a call. In any evenL no telephone fvndrwsing campaigns t¢)ok place in 2023. 10 All d¢)nor5 are made awa￿ in fundrwsing communiotions of how they can. in a Single action. scop receiwng such communications in fijture. or ￿Cer the ways in which the charity ccxnmunicates wth them. This includes being able to stop all future contact from the chariry. Indemnity insurance bjett to the prowsion of the Companies Aa 2006. e￿ry trus￿ and officer is ￿demnified again5¢ any liability incurred by them in their capac4ty tn defending any proceedings wheth¥ or criminal. in which judgement is w'ven in favour or in which they are acquitted or in connection any application in which relief is granted to them by the court from liabiliry for negligence. defaul¢ breach of dw or breach of trust in relation to the affairs of Bn"cish Epilepsy Associa¢iorL ObjectiV¢5 and artivities The charity's ofy'e￿ are set *)Ut in detail in dau5e 3 of its meMor￿um of Association. In summary. the Association exisrs for the benefi¢ and service ol people with eptlepsy and other5 inwestrd in epilepsy and associa￿ conditions. The Ass¢xr4von seeks to ensure tha£ everyth'ng it undertakes is free of pditical and tommercial bia> In 2017 the Association adopted i strategy that ran until the end of 2023. During that iiml despite the impart of the co￿a-19 pandemic. we achteved significant advances and successes. Just some of our achievements and successes in 2023 are set out hert. We M￿ntaIned 21101 our advice and inforniafion resowce5 thro￿ the year, prowding Feople with high qualiry infom)atitsn they know they can rrusL Our Helpline tram dealt with 10.895 enquiries during the year induding 4.669 telephone enquiries and 5.768 by live chac and email. Our Epilepsy Hdpline won the Helpline of the Y*ar awanl from the Helplines hrtnership. Our Advice and information Olfiter. Diane Wallaco r￿tiVed thÈ Partnership s Lrfeome Sermce Av*ard for 30 years of service on the Helplin In March 2023 we launched new monthly Epilepsy Star Awards to reco2nise people for the amuing thing5 they We also introduced our Epilepsy Action 'Mark of QU￿1￿ award for employ5 who create a safe en￿ronment and know how ro Support people with w'lepsy. Our annual scaff survey was again completed by IOfA of the s¢aff and wa5 extremely p05ityve about working ac Epilepsy Action. We continued to ryesenr the authenDC ¥¢yce of people affected by epilepsy seeking and reCOmm￿dIng improvemenrs to ewlepsy health services and access for all to those services. During 2023 we campaigned ¢)n ISSU￿ affecting people with eplepsy inclijding amploymenl cost of livin& welfare benefits and the pre5cnbing ts150dium vajproate. We joined the campwgn aDsnst the planned closure ol railway ticker offices and were successhjl in se•ng this proposal ￿thdTrwn. We supported a debate in the Wdsh Senedd on our epilepsy seEwices in wa￿ report We engaged face-to-face wth hundreds of our members and supporters through our 'Let's talk abour epilepsy. roadshow events in Cardiff, BeffasL Leed& Londryl. Manchester and Bristoj a5 part of the strategy consultation. We published our research suos¢ics inro the UK wide Inciden￿ and prevalence of epilepsy with specific reference to depnvaoon and links ro helth ine9￿51tie* With our parcners. Elsevier. we conDntJed to publish sel2u￿. the European journal of Ep'lepsy. This provides a lorum for papers on all towcs rdated co epilepsy and 5eizvre disorders. We used focal wnts during the year- Purple Day in Marth and National Epilepsy Week in May - to raise the Positive public profile ol ewlepsy. We put people with epilepsy and their families at the cwtye of our public awareness campigns incluthng encouraging and 5UPPOrting them to tslk with confidence about their expenences of epilepsy through the press and social media. We Conunu￿ to supporc people where they live aThJ C(￿ne¢[ them cogether with our virrual and face-co-face ltscal branthes and ralk and support groupk In 2023 there were 196 UK wide virtual meeungs and 343 in person meevngs. These represen￿ 3,028 attendances in ro¢aJ. Tens of thousands of peO￿e subscribed tts our social medkni accounts across Six dIffe￿t platfornis. sharing our positive messages al>)u¢ epilepsy with many thousands rnort We published and thstributed four issues of fy'kpsy Todoy and issues of EP. E￿￿pSY Professionol. Our family support service provides a listening ear. information. events to increase confidence and reduce social isolation and opportunities to connect with other5 for families andl or carers of people affected by epilepsy. In Northern Ireland we delivered an 8 week course ol l.. I counselling to 137 individuals and ran group therapy ses5i9ns for 36 individuals over 4 co 6 week& We SUFooned a further 31 indiMdua15 through one off emotional support In Wales we launched tyJr counsdling 5er¥ice in Apnl 2023. By the end of the year 71 individuals had received an week course of l.. I coun5ellin& 10 individua15 had benefitted from group thryy sessions and a further 6 peoF4e had rKwved onwff emotional SUPF4JfL Users of ¢)ur counsdling serrice in Wales and Northern Irelantj reporc $i￿￿can£ ￿￿ttionS in their anxierr and depression leyel 92 individua15 were matched a volun￿er befriender in 2023. 65% of seThice users said they felt more confidenc as a result of their experience and 69% repjrted irnwed mental health or wdl_bein& 257 people used our lamily support I:1 service in Northern Ireland. 549 people arrended an information ses510n or webinar on family support and 208 people attended a social even¢ 122 people joined the family support Facebook oup. 8y the end of the year we had 326 ¥dunteers work¥ng in a of roles across the organisatyon. By the end of the year we had 7.4Y subscrily.ng rnembers. However. our reach and engagement goes much lurther than thi5 with tens of thousaThJs of other 5UPPOrtern ￿rtnerS and collaborators. We focused on informing the public abour appropria￿ first for seizure5. Our CARE video on thi5 subject re¢*ved 780.OC¥) wews across different s¢xial medi4 platfom& Our main websitr received a tool of 3.529.598 pa8e ￿ewS and the advice inlormation sKtion pages were viewed 1.180.818 umes. 12 IA WORLD WITHOUT LIMITS&KJ 2024-2030 STRATEGY EPILEPSY ACTION A world without limits for people with epilepsy In 2023 the Association adopted a new Strate￿ p￿n to carry ir through unDI 2030. This fotlowed months of consuluDon the A5s¢Xiati¢)n's many staktholders and listening to thousands of people with ew'lepsy and their carers all over the The plan can be aC￿sed on our website ar Wi hout limits- E ile Artion. In Summary the new plan sets a visic￿ of a world wthtyJt limits for people with epilepsy. By 203tr. We want ill people with epilepsy in the UK to say the*r lives have improved through the things we have achieved togeth¥. We want everyone to kn¢)w what epilepsy is. and how to SUPFffl people liwng with epilepsy We wanr ro be fully indu9ve in who we are as an organisation also who we support We have resuted our ￿UeS which ar¢ Berng ambitious We will do whatever is needed to create a world without limits for people with epilep5Y. Epilepsy Ac¢ion isn't jusr about making small change5: we're not atraitj to think big to change the world for everyone affecced by epilepsy. Our bold ambitsws drive to Set couragths goa15 and constandy Innova￿ ￿ u•are sUstain￿e positive change. We do this by collaboraiing with partnws dev*ng successfvl w￿ceS and inityatives to creats lasting impacL Being inclusive We will be here for everyone affected by epilepsy. We will work with indivKluals from all ba¢kgroufids and communities, fostering a sense of belongin8 and equality in all we do. In our community. all individuals. reprdless of thw"r backg￿nd* identstiÈ% abilities or circumstan￿% feel Valued and respected to p3rricipa* Idly. We know that indusi¥ir/ isn't abour numbers" it's abouc emlncing diversiw and ensuring that evwyone'5 voice is heard, needs are meL and contribuDons are ackn¢)wledged. Being empowering We will put people with eptlep5y in control of ueating the world. Community and life ihey want. Wè will enable this by providing the plaiforrns, tools, resources, and opportunities needed for them to athieve their full potential and create positive change in their lives and communities. 13 We empower our community to l&d ¢)ur work whether it's ow dedicated suff. ¥olLtnteer5. or the people we supporL Our culujre is built ￿ open cornmuniGition and gwing ￿eryOne a chance to make a differerKe. We're here to enable people to fake ownerslup of their indNi¢kAI jownry and embrac• opporrunities. Being supportive E￿ryOne'S epilepsy journey is unique, and we will be th￿ every step of the way, feady to support you when you need us. While people wrfh eplepsy will be in c¢)ntrol of th￿r journeys. they will noc be alone. The Ep'lepsy Acooft team are here to listen. understand. and yo¥idÈ Iwidance wh*) needed. Our gol is co create an ¢n￿rOnment where everyone feels valued and eared for. P*ople The Council ol Marwenc wo¢dd like to place on record i¢s 3pprec?ation of the hard work and commitmenc to the durity's ofy'tttives of ￿1 staff in 2023. The senior soff employ*4 by the knociation in 2023 were: Chief Executive lthilip Lte Deputy Chief Executive Rebeklh Srnith Dirertor ol Services Ann K'chardsofvGreave5 Director of Health Improyement and Infiuencing i5on Fuller Dirertor of Fundrai5in8 Philippa Cartwright Director of Communications and Digital Engagement lon Eaton Dlrecttsr of Financè and Operations Andrew Myers- 16 oatt￿ 2023 Dirertor of Corporate Services Tony Sw"nks- th 30 5eptyTr￿r202j Key management personnel The key management personnel tornprise the Trustees. the Chief Executive and the Deputy Chief Execu¢ive. see No 20. Pay policy for senior staff The pay of all staff inclwjing senior suff is reviewed annY￿lY. The b￿lmark for any increase is the Au8USt index of average earnings IUK whole economy). However. the trustees also take into accounr Yihat rhe chari£y can afksrd. the local and voluntary settor labour rn￿ets and general economTrt conditTron5. Al staff salaries were increased by 5% from l January 2023. Thè Council also acknowledge5 gntitude the work and commiuneni of the many Volunreers who willingty give of their tyme to the consideralle benefit of the charity and the people the charity seThes. The tool number of hours donated ro rhe Assoriaii¢x in 2023 by all of irs Volunreers is estimated to be 40.752 (2022.. 80.504}. This equa￿5 to 22.7 full tirne staff, based on an average staff workj.ng week of 34.5 h*)urs. Using the Aswciation's mean average staff c05t in 2023 of £22.04 per hour. {which includes the cost of naDonal insurdnce and pensiofi C￿tributIons1. the financial value of th4$ Yojunteered time in 2023 is esrimated to be £897.638 (2022.. £1.717.955). N¢xe that the mechanism used ro calculaie the number ol ¥dun￿r hours was chanyd in 2023. Ajthough the total number is 5ignifficantly less than in previous year& we believe this now more accurardy reflects the c(y)tribuuon thar vdunreers mthe. These financial Values are not recognised within the statement of finarKial I￿￿tieS as they do not meer the income rec¢)gnivon crireria under rhe SORP. 14 Equal Opportunities The AssociaDon support5 the ￿InCIFIe of eyj oPp￿￿nitieS in p¥ticular for those who are unable ¢0 compe¢e equally in open employmenL Ths especially includes peop4e have a history of epilepsy. All staff may btc¢)me subscribing members of the Association and are ky informed of thè clurity'5 actr¥ities and prozress through regular meetings and written communiCatie￿$. The Council of Management W¢￿Id also like to ackn4ywledze the help and support of the following people who served the Association dwing 2023. Patron HRH The Duthe5s of Keni Patrons His EminerKe The Cardinal kn￿shOP of Westminster The Very Reverend The Chief Rab The Free Churthes. Moderator President 8arnnes5 Ford ofCunr4nghame Honorary Past President 8aror*5 Gould of Potternew¢on Honorary Vice Presidents Ms Karen Armstrong- 13hwe 2013 Profe550r Gus Baker Mr William Fiennes Dr Evan Harris- rttired 2023 Mr Paul Maynard MP- 13 Jw* 2023 Dr Adam No￿e Mrs W Sh¥lor Prolesw Ray Tallis. WP•ixed 13A¥Je 2023 Achievements and performance We cononue to make good progress in ill of ¢)ur stracyc prioriry areas. We have Sustsined and developed our servtces. ensuring the chariry remain5 available ¢0 those who need it The positive infiuertce that our work has on peoples, lives is more fully d¢xuff￿￿d on our website www.epilepsy.org.uk 15 Financial Review The results for the year are set ou¢ on pw 25 ¢0 46. The ffinan0￿ stttrrnents have been p￿pared in aCCord￿ce with Accounting and Reporring by Charities: S(atdfi￿r of Recommended Prxtice applicable to charitie5 preparing their accounts in accordance with the RrtarKd Repornng Standard apF4icknle in the UK and Republic of Ireland {FRS 1021. with the aim of presenting the financial p05ition of the Associarion in a clear. comprehensive and trntelliwble way. The resulu of the Association's commercial 5ubst'diary. BEA Trnding Limi￿& are sh¢)wn in Note 13 to the accounts. General review of the that1t￿$ finanrial position 2023 2022 incoming resource5 Total resources expended Surplus I (Defiocl u￿r￿ISed Gatn l (Loss) Ner Movemenr in Funds £1767.139 £5.307,506 £4.113.476 £3.511163 1£1.346.337) É67.222 £1.795.343 1£198.820) £1.596.523 £11.279,115) £3.989.561 Total lunds £5.26&676 To¢al income for 2023 was Q767.139 (2022: £5.307.5¢)6). Compued to 2021 this was a decrease of É2.5 million. As anticipated, income levels for the year returned to levels more consistent and comparaNe versu$ 2021. following the exceptyonal receipts of 2022 retating to bt*h legacies and grant incoffle. Legary income for the year totalled £S37.746. In 2022 subsontial legacy income was recwwsed t0¢311ing £2,134.946 includingaccrved incom¢ ofwhich £278.2W 1$ Still accrued 35 at 31 December 2023. As these figvres demonsir3te. legacy income is an important parr of the chariWs income and can signrficandy vary year on year. Lepcy income ha5 also been affected by the increased waiting time for the issuing of a forn)al grant of Proba￿ which ￿MOSt doubled from April 2022 to April 2023. with reports citing case5 of Prot￿ tsknng more than eleven month5. Probate invofves identifyinga deceased person'5 assers payntoff any debts and tharingour the remaining estate according to the wll. A properry cannot be scAd. and the rnoney distributed. until a formal grdnt of YOba￿ is issued. Probare is adminiS￿red by HM Courts and TribJnaJs Serrice. The sale of the issue warranted The Justyc* Committee to aAnounce the launch of an inquiry into probate in November 2023 amMI concerns over deL4ys in processing appliutions. Grant income for the 2023 was £290.546 (2022: £740.159}. The decreue w the pnor year grant income was largely due to the succe55ful award in the prior y*ar of two years of funding for a counselling service in Nc*rthern Ireland and a second award for three ￿rS of funding for a counselling serrice in Wales. The multi-year projett funding was reeognised in its entirety in 2022 with majority of costs yer to be incurred. The proiett costs have begun to be recogni5ed in 2023 and offset an eleffwt of the 5ufFdus from 2021 Tool resourtes used amounted to £4.113.476 (2021. £33111631. Across all Fund% as experted. expend¢ture exceeded income by £1.346.337 {2022.' surplus of £1.795.343)- After accounting for an unrealised gain of £67,222 on the valtje ol invesunents (2022.. unrealised loss of £198.8201 the nei movem￿1 in fvnds for the year wa5 a decrease of £1.279.115 12022.. increase of 1,5945231. The overall deficic for the year twas antiopatrd in the annul FyJdgeL offsttDng the surplus posityon from 2022. Again. this is largely driven by expenditure has been incurred in the for the zrants rec¢)zn15ed in 2022 for both the counselling and lamily support projecfs. The total funds held by the charity ac the end of the ye¥ are £3.989.561 (2021. £5,268.6761. 16 Principal wurces of lunding es olzoDd5 affld The six pthing income generdting areas in 2023 were re5pon5ible for 83% of the ch¥iry's income. Donations from individuals cOntribu￿d 24% £0.66m {2021. £0.63m}. and Membership subscripuons orttribu￿ 6% £0.18m {2022.. £0.21m) 33X Legary bequests are IYA of the Associaiion's income. which arnountsd to £0.54m (2022: £2.135m). Prev70usly the top income generator in 2022 whe legacy income accounted for 40% of total income due to significant bequests acc¢)unred for in 2022. Income from fundrai5in8 evenrs sponsorship contributed 23% worth £0.63m {2022.. £1.09m}. Granr income conrributed IO% whith w7s worth £0.29m 12022: 0.74ml. In 2022 Tdnt income was recognised cotalling £0.53m relating to income due from t￿9 sernices. 10% We would like to thank all the Charit￿e trusts and foundaoon& CoMpan￿S and c¢)mmunity groups who haye generously provided grant and d￿riOn income or yfts in kind ro support our wor We would ￿$0 like to thank all the many Indi￿du￿5 who supported us throvghoui 2023 through their membership. do￿tiOnS Sponsorshi￿ or ￿ent parDCiPatiOn. Fundraising inc¢)me is explwned in more dtsl in Note 2 and Note 4 to the s0￿MenT￿ Resources Expended 67% of the total money spent by the Association Raising goes ¢0 pro￿ding services to our beneficiaries. In FundsTotal 2023 thi5 aMOun￿d to £2.75m12022: £2.17m}. 33% The remaining money is spent on rai5ir¢ more intome so that we Can help even more people. The amoun¢ spts)t in 2023 was £1.37m {2022.. É1.3Sml. Comparing the £2.42m rnised direttly from fvndrri￿ng actyvity. thi5 equats5 to an income of £1.84 for every £1.00 spenr on raising funds12022.. £3.94 rncome for every £1.00 spent). Wrth the overall income r￿ction versus 2022 being derived from legacy income this level has redueed significan*. Plans for lu¢ure periods include new incryne generation stra￿1￿￿ Charitable Act{￿lle5 Total Grant making policy The A550Ciation makes gAntS ard11a￿e for research. Applications are ¢￿51d¥*d in lighc of the A5SQCtation's prevailing reswAr(h priorities and reference to the AssociaDon's researth poliq focus on n￿-labOrattsry researth. No grants were awarded in Ihe current or prior period. Investment policy The Association's Current investment poliq was approved and adcpted by thè Council of Managemenr on I l 2017. The policy requires a balanced invesunent p￿d0110 that (an deliver both growth and incom& The precise balance within the portfolio kts¥een capiral growth investmenrs and investmtnts for income may vary in line with the thanpng needs of the Association and luct￿tiOnS in market condition 17 The investmenc pn'oriry is firsr to achieve a levet of irKome that is comparable *ith what is generally avwlable. T￿.$ ￿COrne is to be used ¢0 provide 59me ¢ontribu¢ion ¢0 the overall funding of the Associavon's charitable objective5. The poliey is also designed ¢9 enable the Association to build and maintain sufficient cap.ul reserves co provide cover for the ine￿table fluctuation5 in revenue incom& thus ensuring Continu￿ in the provtsion of the Association s servites In the contexc of irs current wIt￿C plan and bu5ir*ss and chan"table objettive5. An appropriate level of reseNes for the Association 15 described by the restr¥es policy. The CourKil of Management will no( knowin¥y in¥est in specific companies whose aaiNllties in the opinion of the Council of Managemenl inc¢)nsistenr wtth the aims and 0￿.ectiveS of the A550ciation. The Council re￿tw9 the pdicy every year and carrie5 Out a more thorough ey2minatitin every three yearn The policy was las¢ reviewed and updated by Council on 5 Decembtr 2023. Perfomiance of investments At the end of 2023, the Association retri￿ listed investments valued at £1,911.02S (2022: £1358.4971. These investments are detailed in Nore 12 to the financi￿ statemenrs. The lis￿ inyestmenrs prod&b￿ an income 01 £93.698 12022.. £90.958). There was an unrealised pin on the investments of £67.22212022.. unrealised loss of £198.820). Interest received on (ash deposifs of £30.142 in 2023 (2022.. ￿.241 I. BEA Trading kn'mitrd contributed income to the charity of £2122912022.. £44,423). Tod income for the year from the Association s invesunents was £123.840 12022.. £100,199). Invesunent mar4gemenc costs in 2023 wwe £6.386 (2022.. £13.099}. The A5sociavon's investments are rnanaged by its investment manager on a discretionary basis Nvith reference to the Association's investment policy. The invesDnent manw provides a regutar written perforniance report on the investments ind each trustee has online acce5S to independendy view the Assooati¢Jn's invesunent porrfolio *[ any time. The investment mana￿r is also required to make a frace-tO•face presenrauon to the Council at least once every year. Fixed assets Details ol movements in ffixed assets during the year are set out in Note$ 10. I l arvj 12 to the finanoal sratements. Reserves Position 3.5C(I.(o) The reserves position for the charity at 31 December 2023 showed General Fund reserves of £1.98m (2022.. £3.1 I m}. 3.QW.OC .oc Designared fund reserves of £0.48m Q022= £0.58ml include money spent on the CRM database and web51te projetts. The a55ets will be amorused over ffive years. A transfer of £40.000 was made into deswiared lunds in 2023 for an IT upgrnde prqect for the revitw of all Ass¢xiao¢)n IT hardware requirements and $vb5ewent replacements and De5ignared Furwjs ReSty￿d upgrddes. •2023 • 2022 15(#).C i.ots).c General FuTrSs Restricted fund re*rves ar year end amOun￿d to £1.52m {2022: £1.57ml. Induded within this fund is £0.30m for our counsdling projects in Northern Ireland and Wale5, LO.53m restricted legacie5 and £0.40m for our research projert 18 Re$eryes policy The current re5efft5 policy was oriwnaSly approv&J and adopted by the Counol of ManageM￿t an I l Juty 2017. It was amended by the Council on 5 tkcember 2023 to make pernw*nt a previously temporary arrangemaK ro enable access to morn of the charity'5 unrestyicred reswyes. The policy ￿)￿leS a ri5k-ba5ed aPPr￿(h to the reserves based on an assessment of porential risk to future incorne. The pdiq is that the A5S0tiation shall maintain a level of unrexricred financial reseThes that falls within a range of becween lour months {prevtousty el￿¢ months) and ttyelve months gr05S total unrestricod irKoffle based on the follo￿ng year's revenue budget forecast If the levd of unwtricred financial reserves moves outyde of these ptrameter& th•i the CowKil of Managem￿[ will take appropriate atth?n. Based on the 2024 toul unresrric(ed income of £3,465.470 foreas¢ in the 2024 revenue budgec the range of unres￿1(ted re5eThes sh￿Id be between £3.465.470 (12 months coverl and £1.1 55.15714 monrhs cover). At the end of 2023, the unrestricred ￿Set￿e funds am￿n￿ to £1.980.665 {2021. £3.110.211 l. of which £15,305 (2022.. £23.4251 campri5ed fixed asset& At this levd they represenr 6.81 months. worth of unresrritted income 3nd are therefore within the boundaries set by the reserves policy. AJI ol the Associ•von's reserve fund5 are exPl￿ned in more de￿1 in Note 17 to the accounts. Plans for future periods The Counol of Ma¢)agemen¢ approve5 and adopts an amual optratyoml Iwsiness pian and an annual revenue budget which include5 a three year ffinancial forecasc As previously $th￿. a new strawc plan was appmyed and adOp￿d by the C¢)vncil in 2023 to run from 2024 through until 2030. The plan (an be accessed on c￿r Web￿￿ ar Wi hout limi on Statement of Council Members. Responsibilities The Council mernbers (who are also directors of 8riosh Epilepsy Association for the purposes of company lawl are responsible for preparing the TruS￿e$. Ann￿￿ Report lincorporaDng the srrdEWC report and directors, report) and the financial statements in accordance wi(h applIca￿e law and United Kingdom Accountyng Standard5. including Financ¢al Reporting St3Thlard 102.. The Financial Reportiro Standard applicaNe in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Prnctice). Company law requires the C¢wncil to prepare financial Statements for each financial yur which &ve a true and fair view of the state olaffairs of the charitable company arnl of the incon* and Widitu￿ of the charirable company for that period. In preparing thése financial Statements the trusttes are r4uired to". selea suitable accountyng politie$ 3nd then appty them ronsistenttr. obsetve the methods and principles rn the Charirie$ 50RP (FRS 102}". make judgments and acc¢)unting estirnaw that are reasonable and prudeno s¢a¢e whether appliable UK Accounting stand￿ds IFRS 1021 have been followed. 5ubje£t to any ma￿rial departures disclos￿ explained in the financial socement% and prepare the financial statements on the going concèrn b3515 vnjess it is inapproprnte ro presvme thar the charitsble company will continue in bU￿nes> The Council mpJnbers arè responsible for nwntaining proper accountir4 retord5 which disclose with reasonable accuracy at any time the ffinancial PO￿tion of the charitsble company and enable them to ensure thar the financial statements comply with the C*)mpanies Att 2006. They are also responsible for safeguarding the as$et5 of the (￿riable company and hence for tth.ng reasonable step5 far the prevenuon and detettyon of fraud and other irregularives. In so far as the trustees are aware: there is no rele¥ant audit inforn)aDon of which the charitable company's a￿JIt￿$ are unaware: and the trnstees have taken all steps that ought to have tsken to mthe theMse￿ts aware of any relevanr au¢Jit information and to establish that the iuditor5 are aware of that informauon. Aud•tor In December 2023. the Council ol manage￿ approved the dea.sion to undwtske a cowrpeurive tendér process for the audit of the finanoal statements for the year ending 31 December 2024. RSM UK Audit LLP ¥re partycipatyng in the process and the decisi¢)n wll be put ro a general meeung of membws on 18 lune 2024. Statement of disdosure to auditor So far as eath person who NVdS a trustee at the dath of approving this report is av*3￿ there 15 no relevant audit information of whKh the company's iuditor is unaware. Additionally. each trustee has taken the necessary steps to make thèmselves aware of all rderdnt audit information and to establith that the company's auditor 15 aware of that inforrnation. 20 Re8iStered oifice and yof•ssional advisers Registered Office New Anstty H¢yJse Gate Way Drive Yeadon Leeds LS19 7XY Registered Auditor RSM UK Audi¢ LLP Central Square 29 WdlIngr￿ Strett LSI 40L Solicitors Wrigltys Solicws LLP 19 Cookridge Street LS2 3AG Bankers Viry'nmorw {formedy Yorkshire Bank) 96 Briggate Leeds LSI 6NP Investment Manager R8C Brewin t>olphin 10 Wellingr¢)n Hace LSI 4AN The members of the Council of Management in their capaoty as dirertors hereby approve the Trustees. Annual Reporr (prepared under the Charities Aa 2022 and which afso contsins all infom)atson required In a Directors Report by thè Companies Act 2006} and the incwpordred Srrntegb"C Report (prepred under the Companles Acr 2006). Jane Riley Chair, Council of Managem*nt 9 April 2024 Philip L*e Chief Executive and Company Se¢rttary 9 April 2024 21 Independent Auditorfs Report to The Members of British Epilepsy Association Opinion We have aLwJ1￿d the finarK1￿ sttteTh*nrs of 8n.tish EFrf"Wy Associati¢)n {the'chari¢able company.) for the year ended 31 December 2023 which comprise the sorement of financial activities. balance sheK llatemen¢ of r4sh ftows and notss to the financial su*ment& including SI￿lfi¢•Trt accounting pdioes. The financial reporring framework that has been applled in (heir prepardtion 15 applicable law and Uniced Kingdom AecounDng S(andard& including FRS 102 "The Financial Reportbng Standard applicable in the UK arKI RepublK af Ireland" (Unl￿d kn'ngd¢)m Genernlly Accep*d Accounting Praccicel. In our opinion the ffinanCI￿ 5¢atements: a true fair view of the sta￿ of the charrtable company's affairs as at 31 December 2023 and ol its incoming restyjrces and appli(aDon of resource& including ITS incw and expenditure. for the year then Ènded: have been properly pryred in accordance United Kingdom Generally Accepred Accounting Prattice.. and have been wepared in accordan￿ with ￿ requiremenrs ofthe COMP￿leS Act 200& Basls for opinion We conducted our audit in acc¢Ydance with Iniernational Standards on Auditing {UKI IISAS (UKI) and aPplica￿e law. Our re5ponsibilirie5 under those srandards are further described in the Auditor's responsibilities the audi¢ of the financ statemen(s $￿tion ol our reporL We are independenr of the charitable company in aCCord￿ce with the ethieal requirements thar are rele*ani co our audit of the financial Stat￿enr$ in the UK. including the FRC'S Ethical Standard and we have lulfilled our other ethical ￿POnSIbIliti￿ in accordarkce with these requiremert& We believe that the audii ewdence we have obtained is sufficient and appropria￿ io PrO￿de a basis for our opinion. Conclusions relating to going concern In audityng the financial $￿teMen[S. we have cond￿ed that the ¢rus¢ees' use of the going c¢)nctm basis of accountiThg in the preparatyon ot ¢he financial statwnents is appropriats. Based on the work we have pwforme4 we have not rdentified any rna￿11 uncenarnties relauftz to events or condiiions thii Indjvlduajly or collectively, may cast signtheanc doubt ¢)n the than"table company's abiliry to continue as a zoing concern for a period of at least Nelve months from when the finaMaL sutemenrs are aurhorised for issue. Our respon5ibilives and the responybilitses of the trus￿$ with respett ro going c￿￿rn are described in the rdÈYant sections of this report Other inforniatio The other informau¢)n comprises the Infrnty￿ I￿￿ded in the Tru5tees' Reporr other than the financial sta￿rnen and our audicor's reporr thereon. The trusrees are resPOn￿bIe for the other inf¢Jrmauon contained within the TrUS￿S. ReporL Our opinion on the financial Statern￿ts does not cover the other information and. except w the eX￿)rotherwise explicidy staced in our reporL we do not express any forni of assuAnce conclusion thereon. Our responsibiliTy is to read the other infOrm￿On and. in doing sa consider whether the other information is materially inconsistent with the financi￿ stacements or our knowledge obrained in the course of the audit or otherwise appears to be matsrially miss¢a¢ed. If we idenvfy 5uth material Inconsistenci￿ or apparent material misstatements. we are regul￿d to determine whether this &'ves rise to a material m¢sstatement in the financi￿ statements themselves. If. based the work we have performed. we conclude that there is a matrrial misstatement of thi5 other infomation. we are reqUI￿d to report that facL We have nothing to report in this reprd. Opinions on other fNltters preKribed by the Companies Art 2006 In our opinion, based on the work underraken in the course of the audic the informati¢)n y'ven in the Trustee5' Report which inclvdes the Directors. Report and the Strd￿ic Report prepared for the purposes of cOmp￿Y law. for the ffinancial yw for which the financial statements are prepared Is consistent the financial ststement& and the Directors. Report and the Strategic Report irKluded ￿thin the Trust￿. Report have been prepared in accordance apPlica￿e legal requirements. 22 Independent Auditorfs Report to The Members of British Epilepsy Association Matter5 on whith Twe arn requir•d to rwrt by exception In the li8ht ol the kn￿edge and undw5tsnding of the charitable ¢Cry￿Y and its th￿ronment obTa¢ned in the course of the audiL we have not identyfied matW1￿ mi$5¢atements in the Dirertors. Report or the Strategic Report included wthin tht Trustees. ReporL We have nothing to report in respett of the following rna¢ws whwe the Cornpanies Att I1￿)6 requires u5 to report to YCMJ if. in our epinion: adequite acco[￿ting records have not been kepl or retsKn5 adequate for our audit haye nor been received fr*yn branche5 not ￿SIted by us.. or the thnancial sutements are not in agreement with the accounting rec¢xds and reTum& or e￿n disclosures of vusrees. remuner41ion speofied by law are not made". or we have not received all the InfOrn￿tboft and W￿nationS we require for our audiL Résponsibilities of trustees As explained more lully in the Socemeni of Trustees. responsibiliues sec our on page 19. the trustees {who are also the direcrors of the chariuble company for the purposes of (¢￿panY lawl a￿ respongble lor the preparatyon of the financial Sr2￿meA¢S and for being sausfied that they wve a tnje and f￿r view. and for sKh 1ntsrn￿ conwol as the trustees de¢ermine is necessary to enable the preparduon of ffinanci￿ statements that are free from Maw1￿ missraremen¢ whether due to Iraud or error. In preparing the finantul sratements. the trv5tees are responsibje for assessing the eharirablt company's ability to continue as a going concern, di5cloyn& as applIca￿e. matters related to g￿ng concern and u5in8 the going concern basis of Iccounting unless the trustee5 either in¢end to liquidao the charitable company or to cease operation5. or have no realisoc tÈrnati¥e bu¢ to do so. Auditorfs responsibilities for the audit of the finanaal statements Ovr objectives are to ob￿n reasonabje a$sura￿e about whether the financi￿ ststements as a whole are Iree from material mi5StatemenL whether due co fraud or eryor, and to issue an auditor's report thar includes our opinion. Reasonalle assurance is a high level of assurance. bur is not a guarantre thar an audit condutted in accordance with ISAS {UK) will ajways derecc a material missla￿ment when it exiscs. Misstatemenrs can arise Irom fraud or error and are considered macerial if, individually or in the agregate. they (t￿ld reaSona￿Y be expec￿ to Infi￿en￿ the econoffli decisions of users taken on the basis of these financial statemenrs. The exttrt to Twhich thè audit was considtred capable of dtterting irr*8ularitie5, including fraud Irregularities are instances of non-compliance laws and regulations. The ¢)bjettives olour audit are to obun sufficient appropriare audit evidence regarding CoM￿lance with laws and regLtlauons that have a dirett effect on the drferrnination of material amounrs and disclosures in the financial sratemen(& ro perforni audit procedure5 to help identify instances of nongnised once the has envdement ¢0 the resource& it is proEot4e that the rtsources will be receNed. and the moneury v￿ue of incoming ￿SOurceS be measured with Sufficient reliability. 28 British Epilepsy Association Notes to the financial statements for the year ended 31 De¢ern￿r 2023 1.5 Donations and Legac¥es Legacies are rec¢)gnised when received or when we are aware that the execu¢or5 have or probably have detern)ined before the year-end that paymenc can be or will be made. This would norn￿llY follow agreement of estate accounts. Legacies thar are receiyed in the followtng year that meer the above (ondittons at Year￿ ￿e a£cruèd a5 intome in the prior year end financi￿ SU[￿enr$. In 2023 this amounod to £359.892 {2022: £1.093.659). Lwcies that do not meet the condivons are not accrved ac the year end. These are disclosed only a5 contingent assets and not induded on the b￿ance sheec or staternt￿l d financial act[￿Des. In 2023 this amounred to 141.00012022.. £36,750). Donations are accounted for when recoved. Gift Aid recevatAe is included when there is a valid &'ft aid dedaration and rhe donauoh has been retyved. 1.6 Grants Grants received are cred￿1 to'lncoming resources. in the Slatem￿r of financial Activities. Grants recaved are re¢ognised at law date of •ther Wh￿ the decision to award the grani is notified ro rhe chariry or on agreemenr co the cerms and cond6ciofts of the grart rf required and when the crireria of entitlement and probabiliw are mer and the y￿u¢ (an be measured reliably. Grdnrs payable are payments made to the third parties in the furtherance of the tharitable objetts of the chariry. Grants ￿Yable recognised ar the later da￿ of either the decision to iward the grant or on receipt of signed agreemenr co rhe rems and condirions of the grant rf required. 1.7 Expenditure Resources are recognised on aft accruals hsis and are analysed betr￿en cosrs of generating funds and charirable expenditure a5 decailed on the Statement of Fina￿la1 Acty"vities on page 25. Vvhere cosrs have noc been direcrly attributed to a partycular caogory. they have been allocated to activities on a basi5 corisistent with the use of the resourc￿. Support costs have been allocated to each chan.oble category on the bags of suff utili5ation or on an ac(ivity basis of total thrttr expendiwre. Governance costs include those inojrred in the governance of the chariy aftd i(s assets and are primarily a$59Ciated with constituvonal and sratucory requbremenrs. Terrnination benefit5 are reco8ni5ed immediatdy as an expense when the chartry is demons[ra￿Y cornm1¢￿ to terminare che employmeni of an employee or w proTrride ￿Miina￿On benefrtk .8 Investments Invesrmenfs held as fixed asse(s are srated ar fair value ar the balance sheet Any difference between cost and m¥keE value is adjusted annually through the Sraternwr of F1ranci￿ knivitses. The investment in the sUb￿dIary undertaknng 15 sh¢)wn at COSL 1.9 Taxation As a wistered charity. Britysh Ep'lepsy Association is ￿ liable to wiuon on 1¢$ investment income and gains, incoinE and gains arising from trnding in furtherance of irs tharioNe objecv¥es and chariuble donauons. Recovery of incomé tax is made on Credi￿ arising from receip(s under deeds of c¢)¥￿an[ and grft paymenrs. VAT deemed to be irrecoverable is writcen off to the Srarement of Financial Acri￿￿e5 in the period ¢0 which Èr rdate5. 29 British Epilepsy Association Notes to the financial statements for the year ended 31 December 2023 1.10 Tangible r￿ed assets and deFYeciation Annu￿ impairnient reviews are carried ou¢ to ensure the carrying value is not lower than the recoverable aMO￿L The costs of minor additions or those COSDn8 bdow £5.IM)O are not cwtalised. Tangible fixed assets are stated at cott less depreciavon. DepreoaDon is prw4Jed at rates ulculated ¢0 write off the cost of fixed asset% less their estimaced residual Yalu¢ t)ver th*"r expecrts4 uselul Itves on the following ￿s1$- Leasehold improvemen¢5 Straight line over the lrfe of the lease h"xture% fittiry and equipment Srraight line over S years Computers Str&ight line over 2 years 1.1 I Intangible fixed asset5 and amorti5ation Identifiable development expenditure is capitalised orte the ¢echnid financial feasibility can be demonsrrateA. Intanw'ble fixed assets are 5Llted at cost less am0rri5aticffj. Amortisation is pffjwded at rdtes calculated to write off the cosr of fixed assets. cmice compltt4 less th?r estirnated re￿du￿ value. over their eX￿ted useful live5 on the following basis- CRM database Website Straight line over 5 years Strw"8ht line over S year5 Website am0rri5aoon has been idju5ted to be calculated strnight line over S yews. Previously calculated as scrai8hi line over 3 years. Over 3 years the ratr ol am¢)rrigtion equalled £59.601 per year. The adjusted rate of amorrisation over 5 years is caleulated at £35,760 per year- differente of £23.841 per year. .12 Pensions The charity operates a defined contribution pension Scheme. The assets d the scheme are held separdcely Irom those ol rhe company. The pension cost charge represents corbtributyons pY?￿e by the charity and amounted to £237.257 12022.. £2￿.2021. At year-end the pension creditor amounted to £23.92712022.. £19.7961 included within txher creditors and accruals. 1.13 Branches Income and expenditure in respect of the Association's brarhth network has been included in the Statement of Financral Attivityes. Cash balances held by the branthes at the year end are sh¢)wn in Note 3. 1.14 Accounting for separate funds The financial sracements of a charity must drffertnuate beTh¥een restricted. des¢Tha￿. and unrestricted fijnds. Restricted funds funth subjert to Specific condityon4 imposed by the donor or by the specific term5 of the chariry appeal. De&gnated fvnd5 are funds allocated for specific purposes by the charity itsew. Un￿strICted funds are all the other tunds of the Assc￿ation. 1.15 Recognition of liabilities abliries are recognised when an otligaoon arises to transfer economic benef￿$ as a result of pa51 even¢ 1.16 Cash equivalent policy Cash or Cash equivalent amounts are osh hdd in bank accounts by the main charity or t*atKhes include all cash held on short term deposts. Thty exdude cash hdd with4n the investment ptydolio as parf of the on-going investrnen activities. 30 British Epilepsy Association Notes to the financial statements for the year ended 31 Decemb¥ 2023 1.17 Jud8•ments and key sources of estimation uncertainty In the aP￿ica[1¢n of ihe chariw's accounting polioes. the trustees are required to make I￿rnents, e5timare5 and assumptions about the carrying amc4Jnr of assers and liablities that are not rea&ily apparent from other sourcès. The estimates and a$50cli￿d amumpvons ￿ based ￿ hisrorical experierKe other factors that are considered co be rdevanL Actu￿ resulr5 may differ from these esrimws. The estimates unde￿.ng assumptions are reviewed on an onKoing basis. R￿slI)rtS to accounting esumates are recognised in the period in which the estimate is re￿Sed where the ￿lsIOn affects only that period. or in the period of the revision and future periods wh¥e the rwsion affects both C￿￿ent and fuDJre periods. Apart from the accru￿ of legacy inccry Note 1.5. there are no other areas of estimauon uncertain 1.18 Financial Instruments The company ha5 elected to apply the Pr￿￿on$ of Setti¢)n 11 '8asic h"nanoal Instrfftnts, and Settion 12'¢Jther Financial In5truments1s5ues' of FRS 102 to ajl of its financial instrumenrs. Financial instruments are recoznised when the company becomes party ro the contractual provi5ion5 of the in5trumenc Financial assets atTrJ liabilities are offseE the ne¢ amounts presented in the fir￿n(la1 statements. when there is a leglly enforceable right to ser off the rKognised amounrs and rhere is an intention to setde on a net basis or to realise the asset and settle the liabily simultaneously- 1.19 Financial Assets Trnde debtors. other debtors (Including aecrued income) and amounrs due fr¢)m gr￿P undertaknngs which are receivable within one year artd which do nor consircure a financing (ransacoon are iniually measured at the transaaion price and subsequendy measured at amorvsed cosk being the transacrion price less any amounts srfded and any impairn)enr lossek A provision lor imwrmen¢ of trade debtors is estsEAithed when there 15 objective evidence that the amounts due will not be collected according to the original terms of the contracL ImwrM￿t losses are recognised in profit or loss for the excess of tarrying *dlue of the trade debtor over the present Yalue of the lurure cash flows discounred using the original effective interesc rate. Subsequenr reversals of an impaiment loss thai objecrively relate to an event occurring a￿r rhe impairn*ni loss was recognised. are recognised immediacely in the profir or loss. .20 Financial Liabil•tits Tryade and o¢her credirors {induding accruabsl payable within one year that do no¢ constitute a financing trdn5action are initially measured ar the trans￿l9n price and subsequendy measured at amorti5ed c05c being trnnsaction price less any amounts settled. Where the arrangement with i creditor constywtrs a financing transattion. the creffitor is Initi￿lY measured at the present value of future payments discounted at a market rnte of inceresc for a similar iftstnJment and subsequendy measured at amorrised COSL 1.21 Derecognition d financial assets and liabilities A ffinancial asset is derecognised only when the conTr4crual righ(s to cash llows eX￿'re or are settled. or substanti31ty all the risks and rewards ol ownership are rransferred to anothw ￿rry. or if some signffiant risks and reward5 91 ownership are retained but conrrol of the asset has (ransler￿d to another party tha£ is able ro sell the asset in its entirety to an unrelated third parry. A ffinanci￿ lithlity (or part thereo4 is derecognised when the ot4igaDon speohed in the contract is dixharged, cancelled or expires. 31 British Epilepsy Association Notes to the financial statements for the year ended 31 December 2023 2. Details of Income DoM*tion$ *nd lepeles T•tsl Funds 102J T￿• Funds 2022 Funds 102J Funds io Funds 2O2J indr4id¥al BrJneh intome Legacie5 Grtnrs Corporate d1￿￿￿&￿s Member4hip sub5CriPtiQnS Fundraising Don*￿ goods and 3er¥ites 631841 7.021 506.964 28￿51 661.693 7.021 537,746 290.546 12,007 178.366 627,456 103.484 2.418.319. 631.ljo 4.528 1,134.946 740.159 32.406 213.784 1.085.744 99.836 4.942.533 30.781 37.904 IIIK17 178.)66 625,662 103.484 1104.250 2S2.642 1.794 314.0691 ID¢ome from Charltable A¢tlT•l¢Ses Totsl Funds Totsl Funds 2023 Funds Funds Funds 2023 20 2023. 2022 Sa￿5 dgoods and serri¢¢s 140.829 9841 155,524 Income Crom other TrndlfftrA¢tlvllies G•wal D•$I￿at￿l Re5tr1rte41 Funds Furldi Funds 2023 Totsl Funds T¢)tal Funds 1022 2023 2923 2023 E¥￿t Regisuaticn Fees Jl.989 28.949 22.229 83.167 31.989 28.949 22,229 83.1671 37,403 27,424 44,423 109,250 BEA Tr4dinz Ltd in¢om Gtnepal Desl8n*ted Aestrietr Funds Funds Funds Total Funds Total Funds 20 23 202J 2011 come trovn 9UOted inve5tynen Bank in¢¢r 85,827 30.142 115.969 7.871 93,698 30.142 123.8401 90.958 9.241 100,199 7.8711 32 British Epilepsy Association Notes to the financial statements for the year ended 31 December 2023 Legacies Legacies with an e￿Imated value ¢0 Epilepsy ktyon of £989.349 (2022: £n7.018) have been notified to the tharity but have noc been included in the finarKial statements. The condition5 for recognising this income wtthin the 3ccounts had not been met by 31 December 2023. Of these. leDcie5 to the ¥alut of £41.0fy) have been disclosed only as contingent assets and therefore not accrued it ye¥ end {2022.. £36.750). We would like to thank the ftllowing Grant funders: o 8£ H 1971 Charitable Trust o The Frymdation The Lady Hsnd Trust Bernard L￿1$ Family Charitable Trus o The Carrington Charirable Trusr The knz and Terry Bramall Foundation Daisie Rith Trust o The chaMpn￿ Charifabk Trns¢ o The Medicash Foundation Depar¢menr Of Health Northern Ireland Core Grant F￿dIng The Charlès Brothe￿ Trust The Michael and Anna WJX Charitable Trust Doris Field Charit￿e Trust The Cu￿er5 C¢)mpny Charirable Trust o The Natyonal L¢X￿ry Comrnunirr Fund Fowler Smith and lones Tntst The Datrid Family F￿r￿￿on The Nicka V&s5iltou Chariuble Trust GJ WTum¥Trysr The Ead firtwillram Charitsble T￿st o The Paul 84$5ham Charstable Trust Garfield Wesron Foundation The Florence Turner Charitable Trust The Roselands Trust Ilie johnSc￿ CharIta￿e Trust o The Francis ChariutAe Trbfjr The Simon and l)hilip Cohen Charitable Trust Illkington Charities Fund The Fred TO￿ Chariy Trust The Sirjames Knorr Trysr &r Donald and Lady Edna Chari(able TrusE The George A Moore Foundation The Sirjames Roll Charitable Trust Sir John Sumner's Trust The Hamilton Wallace Charitable Trnst The Sylvii and Colin Shepherd Charirable Trusi Sovereign Health Care The Hefen Jean Cope Charity The Th0ffl4s and Rosemary Greenhalgh Charitable Trust o The A M Fenton Trus¢ The Fraser Foundation UCB Ftharma o The Adint Charitable Trust The Hyde Foundatis)n The W E Dunn Trust The Alison Hillman Charitswe Trust The lan Askew Chari(able Trust The Walw Guinne5s Charitable Trusc The Anne and john Walters Charitable Trust The J Re&"nald Corah Foundation The William Allen Young Charitable Trusi The Barbour Ft)undation The James W•r Four#4ation The Wixamtree Tnjst The 8e15tead GanzoTh Chari(ablÈ Setdement The Jesye SwKer Trust The Zochoni5 Charioble Trust 33 British Epilepsy Association Notes to the financial statements for the year ended 31 December 2023 Branches Bran¢h (ash iThcluded in ¢urrent *sse¢s 4¢ I lanuw 2023 Bran¢h inttsme 69JOO 73,772 7.021 (3,41n 4.528 14.0031 anch expendivjre Net income Amounr r l year of £361.228 15. Creditors 2023 2022 Amounts falling due within one year. Trade Creditors Social security and ¢xh¢r r2xes Other creditars and a¢cruals 160.965 65.047 108.771 334.7831 108,634 49,982 19.381 277.997 16. Analysis of net asset5 between funds Goneral Funds 2013 Desi8nated Funds 2023 Restricted Funds 2023 Total Fund5 2023 Fixed assets 1 5.305 1.751491 (229.819) 54.859 709.081 {321.252) 1.980.665 404.632 419.937 .911.035 812.180 65.883 ,115.309 {334,783) 3,989.S61 FIX￿ a5se¢ investsnents 158.SH 963.826 11.024 406,228 {13.S31} 1,526.0911 Cash At bank and in hand 78.173 Branch balances Other current assets Crdirors due within one year Totsl net assets ac 31 Dec•nber 2023 482.805 British Epilepsy Association Notes to the financial statements for the year *Kled 31 December 2023 Analysis of net assets between funds~ previous year General .Total Funds, 2022 Funds Funds 2022 Funds 2022 2022 xed assers 23.435 2.160.393 175.875 58.276 931.708 (239,476) 3.110.211 509.718 533,153 1358.507 699.294 69.300 1,886.419. P77,997) 5.268.676 xed asset invesTrxen 198.114 451.009 11.024 954.711 (38.521} 1.576.337 Cash at bank and in hand Branch balance5 Other current assets Creditors due within ont year Tool net assets ar 310etember 2022 n.410 582.128 17. Statem*nt of Fund5 Balance At JI Baf*nce At I Galns G•rth•ral knhds Transkn ENp•hdltyr• 23 2.444.215 140.OLbJl (3.S95,3361 61.5751 1.98Q,66s I Transfe £40.000 was rrdnsferred from the general fund to the deyIna￿ fund for the IT Audit ￿olett Balanc• At JI Oe£érrf¥eT Balanc¢ At I J*uary 2Ql3 G*ins {Loss•s) lJeslp4tsd 202J atm Datsbase Pr*¢i RoKtrVKtsr CN*4ey. Gwg¢ C¢>w¢ll Lycy. Lwpw4 websi￿ Prciecr IT Audic Prqeet 362553 33.207 17.500 168.e68 (0&0631 276.490 J3.20Y 11 TS001 135.7601 40,000 482Mos I 582.128 1139J231 CRM database project Monies designared for the iMplementaD¢)n of a CRM systern. In 2021 a full review was carried out after which it wa5 decided co reser the project and vrrire off the exisDng work done. The 5y5tem went live on 22 November 2022. Rogv Yictor Cra¥Aey- Research Funds receiyed from the esrnte of Roger virt￿ Crawley whith he wished ro be used lor researcP Gèorg• Cowell Legacy- LiY*rpool F￿d$ received frortt the estate of Gettge Cowell he wished to be used in Liverpool. Webslte Project Monies designated for the Im￿ementation of a nvw websrw The web5ire wen¢ live on 10 Ortober 2021 IT Audit Projert Monies de5i&mated for the review of all A5sticiatiw ￿ hardware requirements and wbseqU￿¢ replacements and upgrddes. 42 Britlsh Epilepsy Association Notes to the financial statements for the year ended 31 December 2023 an¢eAtJl lanet At I Gwns ftestri¢¢ed 20 fteye4rth Pr¢Jje¢ts occ1v￿A f4orris Merntykl hnd 11.754 161.035 204.213 5.116 16.5Q) 147.6281 P.2991 P.0211 1&2S4 157.754 214.431 1195 Resarrh Fund. Gww41 3U47 7M71 hJrA . Causes and Cures ch51d￿'s N4ti•h*l Proie¢ts Bthwdini Projec¢ C¢4in Watsjs M*Ythial Epilryry Ac0(￿ Nl c￿Jn￿ling P￿12(¢ Ep&￿sY A 111003 1SQ5651 124.051 81635 47.329 253.185 31,268 102.632 14B.668 318.195 s.0101 P16431 4Q376 (35.6501 4,n6 464.550 14,n6 10.067 37.8aB 20.000 1174 W.550 2&726 iioooi 10.¢)67 3&1S7 P6•1 The E5¥0 oFTrJntGl*sg Tricias Fund. Lparnini &sabltx P¢w Prvj¢¢ts D￿SS Nonhern Hinsly ￿ty. Slnd EduCan￿ hJrtd (&siky￿ & T￿rr¢￿) Gl¢juc￿5￿rsfvir￿ My Farnlty & Me E¥wts N¢rthern Ird4hd hJnd Salisbury & Th5rriCf Swth Wan4iekthir¢ Wiles Fund Branches 2Q.I 2.174 4.551 la.782 145511 IQ787 3,61S 3.é85 4.534 IZ4301 3601 11441 2.104 1360 n7 1.5 583 1,590 14,4081 5.335 5.335 STO Wes¢Mk4lands F￿m. 5hryAsbury Slffrtn W4ld•) Re5ty1th4 Fund$ 128 1326.0911 1576.337 322.914 7U17) S.647 Totsl f4rts 5.26B.676 2.767.139 (4.113.476) 67.2221 3.909.561 | Restrirted income antj expenditur¢ whith 1$ rewtwed and monitored on a regular basi& represenrs monies received and eXp￿ded on spKific proj.ec 43 British Epilepsy Association Notes to the financial statements for the year ended 31 December 2023 Ortavia Morri5 memori￿ Fund Fun¢Js used for puNic awareness campaign5 based on epilepsy ffirx-aid and on the subj.ect of epilepsy rdited death. Research Funds The balance ruained on the 'Research Fund- G￿er11. is for arK1 mdital re5earth of a non-laboratory nawre. Funds on 'Research Fund- Cause5 and CU￿. are re¢ained speofically for c3uses 3nd cures research. The Team M Children's (und is ro supporr young people and cluklren living with ewlep5Y. Befriending Proiert The Epilepsy Action 8*ieJTrding Stheme 15 a three-year pilot proiea that wiu wHble people affected by epilepsy to access regular. one-fovone support by a trained 5tsff member or volunteer. It will proTrride an informal 'listening ear.. and arms ro improve health and Well￿1n& combai social isolatton and loneliness and help people live with eptlepsy. Colin Woods Memorial Fund Money in this lund is invested by Eplepsy Action and income derNed from the lund is used to support Epilepsy ktion's work with a weference &'ven to work in Northern Irdand and lor edvcational work but the income is not restyicted 501ely for these purp05e Epilepsy Action Nl Coun5ellifig Project The counselling service pro￿deS timely access to tslking therapies for p￿e I￿Ing wirh epilepsy. their parents and carers in Northern Irdand. This includes.. a l-l (￿jn5￿l1ng service. ther3peutic therned groups. resilience sessions and the deyelopment of training resources k•r c￿nSel10 Epilepsy Action Cymru Wellbeing Ser¥icè The counselling 5erv¢ce prowde5 umely acce$5 to talkn.ng therapie5 for people living with epilepsy. their parent5 carer5 in Wales. Thi5 include5'. a l-l counsdling wmce. therapeuvc themed groups. ￿$117enCe sessions and the development of training resources lor counsellor* Family Support Officer- Northern Ireland Deliverini a range ol supporc for families across Northern Irekand. Family Support Officer- Wales Delivering a r￿ge of support for families across Walt Helpliné services Monies r4ised to erbable the continuing r￿rIng of the hel￿1n& Janice Gilbert- Legacy Monies left w be spent its conjunttim with Wire Nurse sthemi Online Learning Monie5 ra15ed to enable the continued running of the online ty3inin¥ programmes. Sapphire Nurse Scheme To part fijnd epilepsy nurse posts in NHS services for addrs or children with epilepsy. The Estate of Nellie Terrett Monies left to be spent in conjuncfitin with Ewlepsy Action Cardrff ￿a￿ch. Tht Estate of Jun• Glasgow Monies left to be spent in NeweaStle-u￿n-TyTre. Tricia's Fund- Learning Disability Proièrt To devdop resources for with epilepsy and lèarning disa￿.11￿eS. British Epilepsy Association Notes to the financial statements for the year eThJed 31 December 2023 DHS5 Northern Ireland Surutory funding towards ￿ary costs ol the Nl manager. Doreen Hinsley Legacy- Sandwell M¢)nies left ro be spent in Santh¥ell ireL Education FyTrd- Basildon & Thurrock To deliver 8￿renesS sessions in Ba5ildon and Thurroc My Family & Me Events Money raised to support UK wide famity e¥ents. Regional Fund5 compris￿ funds raised in En¢an4 Wales and Northern Ireland thar I￿ ¢0 be 5pth¢ specifidly in those area& Essex Branch Money Aised by the Essex lorum for l*xal Fwojects acr055 Es Stoke 8ranch Money rdised by the branch for Irxa] pr01K￿. West Midland5 Branch Money raised by the branch for l¢xal prqett Saffron Walden Branch Money raised by the brdnch for l¢xal proittts. 45 British Epilepsy Association Notes to the financial statements for the year ￿ed 31 Dectsnber 2023 18. Indemnity Insuran¢* During the year the A5wciatyon incurred costs for insurance cover ap'nst the possitrAe loss arising to the Associati¢)n from the neglect of defaults of its truKees or a￿ts to indemnify the trus(tts and oth¥ officers against the C¢)nsequences of any neglecr or def4uIL 19. Financial Commitrnerts At 31 December 2023 the A$Sc￿lI￿on had total rninimwn lease ￿Yments ￿der non-oncdlable operating leases as fdlows: Land and buildings 2023 2022 Other 2023 2022 Expiry date Within l year Between 2 and 5 years 63.000 315.000 63.000 42.115 1.187 1,497 3.978 547 20. Analysis of Trustee r•munÈration artd expnses. and the cost of key management personnel. The key management personnd of tht clmrity. c¢)nyise the trusree& the Chief Executyve and the Deputy Chief Executive. Total employee benefits. indudin8 employers NIQ of the key manageffwt per50nnd of the charity were £204.006 12022.. £193,894). No charity ¢rustee received payrnenr for professional or other services supplied to the chariry12022: £nill. Travel and subsistence expenses during the year of £4.089 (2021. £4.817). were reimbursed to or wd on behatf of the 18 trustees who ser¥ed during the year (see page 4 of the Trustees. annval reporcl. 21. Relat•d Party Transactions There were no rdatrd party trnnsauions tjuring the year (2021. £nil} 22. Financial Instruments The carrying amount of the company's fin￿£1￿1 instruments at 31" December 2023 were.. 202J 2022 Financial Assets Debc instruments measured at amortised cos¢ 787.297 1.584.946 Financial Uabilities Measured at amortised cost 209,882 160.051 23. Capital Commitments The Aswciao*)n has cw¢al commitments of al.0￿ in rdation to brand red￿￿12022. £nil). 46 Glossary The annual report and accounrs have to pro￿¢je detaild infornHtion to meet company and charity law. We knc)w that many peotje will be Unlamiliar with some of the words we WJ to Use. Here 15 a list of some of them with a brief explanation of what they mean. Accru￿$ basis Income expts)diwre 15 counted when the money is earned and when costs happen, rathtr than Wh￿ the mo aclual Accrued An expense that has haPP￿￿d but hasn't been pid yeL For ex•nW< staff wages accrue until the da are An increase in the market ce of an asseL Designated fvnds part of an unrestricted fund is Set aside for a parLicular proieco ir may be des1￿4*d as a rate hjnd. D¢￿atiOnS in kind A donati¢)n that is made in s or rather than m¢)ne . Ex officio When somec￿e is a member of a commit￿e wthour being eleeted to it but because of another st that the hold. Fixed assets asset with a useful life of more than one sted investments Investments like shares or bond5 thar are offic lisred on i stock exchan for tradin Matsr£ality An amount of money is assessed ¢)n its importance. For exampl< a debt of £10 might not be a concern. However. a debr ol £1 O.CO) could make a b'g drfrerence to the financial health ol the o isaDon. Ir rnakes a Materi￿ drfFeren￿ ¢0 the account Realised ins in from sellin an assef for more than the ori rcha5e rice. Reconuliation An aceounting proce>s thac compares cwo 5ers ol records to make sure the numbers march and are accurare. Residual valtse The value of an asset tha¢ it could be sold for at the end of its useful lrfe. estricred funds If someone gives monry to the charity for a parncular the chariry has to Use it for se. The use of the mon is resfricted. Srraight line basi5 This is a way of spreading the cost of an asset over the number of years it 15 etted co be used. Tan "ble fixed assets Ph sical asset* like a c¢y rem or im ements to a buildi Unrealised in￿0$5 ir￿05$ from revaluin an assec at a h. v¥lue than ¢he ori urcha5e lee. Unrestrirted lunds If someone SI￿ money to the ch¥ity without SI￿ng ic is for a particular purp052, it can be area of work for the c .5 ob'etts. The use of the mo is unreStric￿d. 47