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2022-12-31-accounts

BRITISH EPILEPSY ASSOCIATION

(A company limited by guarantee)

TRUSTEES’ REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

REGISTERED NUMBER: 00797997 CHARITY NUMBER: 234343

CONTENTS

Page
Chair's report 1
Honorary Treasurer’s report 2
Trustees’ annual report 3–7
Strategic report 8-20
Independent Auditor’s report 21-24
Statement of financial activities 25
Balance sheet 26
Statement of cash flows 27
Notes to the financial statements 28–45
Glossary 46

Chair’s report

It was my great privilege to be elected as Chair of the Council of Management in July 2022. I want to thank my fellow Council Members for their support and confidence in me and also for all their hard work and dedication throughout the year. I would especially like to acknowledge the contributions of Richard Chapman, who stepped down as Chair of Council in July after three years, and June Massey, who also stepped down from her role as Honorary Treasurer. I’m sure the new team of Officers – myself, Peter Clough as Vice Chair and Nicholas Hutton as Honorary Treasurer will still be able to benefit from the experience and expertise of our predecessors.

In June, Beryl Sharlot stepped down from the Council after 33 years of unbroken service. During that time, Beryl held every Officer position at least once. While Council will miss her sage advice, I’m delighted to say that Beryl has been appointed as a Vice President of the Association.

We welcomed two new members to the Council in June. Katie Stevens and Tom McLaughlan bring with them personal experience of epilepsy and a strong background in organisational governance. They are both already proving to be a valuable addition.

The charity continues to emerge from the shadow of the Covid-19 pandemic. As you will see from Nicholas Hutton’s Honorary Treasurer's report, we had an exceptional year for income. With carefully controlled and planned spending, this gave rise to a significant financial surplus for the year. I shall leave Nicholas to cover the finances in more detail, but I would like to say a big thank you, not just to all our fundraising staff who have worked so hard, but to every single one of our members, supporters and donors who have given money, undertaken sponsored events or online challenges. It is only because of your generosity that the charity is able to help and support so many people.

2022 was another year of outstanding achievement in our work to improve the quality and availability of healthcare services for people with epilepsy and to improve awareness and understanding of the condition. I would highly recommend that you read the full details of our activities in the trustees’ report, as I can only give a flavour of our successes and achievements here.

In pursuing our goals, we have worked collaboratively and successfully with others across epilepsy, health and social care. We have sustained our traditional services but also developed and introduced new ones. We have expanded our advice and information offer through the introduction of a webchat service and we have created new counselling services in Northern Ireland and Wales. A unique befriending scheme to help break down the isolation that epilepsy can bring has been set up and we have reviewed and improved our work with volunteers to give them a better experience.

In 2022 we developed and launched a new main website, placing site users at the heart. More than 19,000 people completed one of our e-learning courses and we launched a new social media strategy across multiple platforms to expand our reach within the epilepsy community and beyond.

We have also continued the development of the organisation and its infrastructure with a new people and culture team, a new intranet information system and an IT audit. A new CRM database was introduced in November that will enable us to improve the experience of everyone we have contact with.

In closing, I am pleased to be able to report that the Association is in a strong position. It has a solid financial base, high quality and relevant services, an efficient and effective organisational structure and a team of people to be proud of. I believe we can look forward to the future with confidence and optimism.

Jane Riley Chair, Council of Management 4 April 2023

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Honorary Treasurer’s report

The day-to-day management of the charity’s finances continues to be expertly and efficiently handled by our finance staff led by Tony Spinks. The Council of Management takes a more strategic view of financial progress, monitoring and evaluating performance against the forecasts made in the annual revenue budget and other plans.

After a very difficult financial year in 2020, which saw the COVID-19 pandemic significantly disrupt the charity’s income-generating potential, the Council adopted an appropriately cautious approach to the financial prospects for 2021 and beyond. In the event, 2022 saw a welcome recovery in most of our areas of income, especially fundraising events. This was driven by our investment in virtual and digital fundraising.

Total income in 2022 was £5,307,506. This compares to £3,314,918 in 2021. Total spending in 2022 was £3,512,163. This compares to £3,299,536 in 2021.

Across all funds there was a surplus of income over expenditure of £1,795,343 (2021: surplus of £15,382). After accounting for an unrealised loss of £198,820 on the value of investments (2021: unrealised gain of £212,184) the net movement in funds for the year was £1,596,523 (2021: £227,566). Total funds at year end are £5,268,676 (2021: £3,672,153).

Spending on charitable activities in 2022 was £2,165,986 compared to £2,005,297 in 2021. Of this total we spent £1,558,119 (72%) on improving the quality of healthcare services for people with epilepsy and £607,867 (28%) on improving awareness and understanding of the condition. We spent £1,346,177 on raising funds in 2022 compared with £1,167,079 in 2021.

The charity’s reserves policy (revised in 2020) is that the Association shall maintain a level of unrestricted financial reserves that falls within a range of between four months and twelve months gross total unrestricted income based on the following year’s revenue budget forecast. If the level of unrestricted financial reserves moves outside of these parameters, then the Council of Management will take appropriate action.

Based on the 2022 total unrestricted income of £3,473,783 forecast in the 2023 revenue budget, the range of unrestricted reserves should be between £3,473,783 (12 months cover) and £1,157,928 (4 months cover). At the end of 2022, the unrestricted reserve funds amounted to £3,110,211 (2021: £2,543,498). At this level they represent 10.74 months of unrestricted income and are therefore within the boundaries set by the reserves policy.

At the end of the year the charity held total reserves valued at £5,268,676. This compares to total reserves of £3,672,153 at the end of 2021. In addition to the unrestricted reserves mentioned above, £582,128 of the total was held for designated spending in the future and £1,576,337 was held for restricted purposes.

I am delighted to report such a strong financial result for the charity in 2022. The recovery in our income reflects the hard work of all our staff and volunteers as well as the generosity and loyalty of our tens of thousands of wonderful supporters. Thank you all!

Despite this, there is no room for complacency. These remain volatile and unpredictable times. Mindful of their responsibilities, the Council will continue to monitor the financial impact of the pandemic on the charity, as well as the war in Ukraine and other geo-political events affecting the charity, and it will take whatever action is necessary to ensure the charity remains viable.

Nicholas Hutton Honorary Treasurer 4 April 2023

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Trustees’ annual report

The trustees of British Epilepsy Association, collectively known as the Council of Management or ‘the Council’, has pleasure in presenting its Trustees’ Annual Report incorporating the Strategic Report and Audited Accounts for the year ended 31 December 2022.

Structure, governance and management

The organisation was first set up as a charitable trust and registered at the Charity Commission on 5 December 1950. The Association became a company limited by guarantee on 25 March 1964 (registered in England, number 00797997) and was re-registered at the Charity Commission on 5 August 1964 (registered charity number 234343). The Association is also registered for Value Added Tax (Registration No. 183 1032 39).

The Association is constituted under a Memorandum and Articles of Association. The current Memorandum and Articles of Association were adopted by the members on 17 June 2006 and were last amended by the members on 29 June 2021.

The Association does not have share capital, cannot pay dividends and must utilise all of its funds to further its stated charitable objectives. Under the terms of clause 7 of the Memorandum of Association every member, as defined by Article 2 of the Articles of Association, is liable to contribute a sum if necessary and not exceeding £1 in the event of the Association being wound up.

At 31 December 2022 there were 8,288 active members (2021: 8,637), including 366 life members (2021: 370).

Epilepsy Action

In May 2002 the Association began using the working name, Epilepsy Action . The charity keeps the name British Epilepsy Association but uses the working name Epilepsy Action across its range of activities. It also uses the names Epilepsy Action Cymru and Epilepsy Action Northern Ireland for its work in those two countries of the United Kingdom.

Council of Management

The Council of Management is the governing body of the Association. It usually meets six times a year and it sets the policy and strategic direction of the charity. It is also responsible for overseeing the sound management of the whole Association and for ensuring the Association’s policy is carried out by the staff through day-to-day operational activity supervised by the Chief Executive.

The Council is made up of a maximum of 16 members of the Association who have been elected by the membership. One third of the Council members retire by rotation each year. Persons seeking election or re-election must be nominated by two subscribing members of the Association. The Association is proud of its open and democratic tradition, which enables the charity to have the benefit of a Council which includes people with epilepsy, carers, professionals and others interested in the condition.

Article 24 allows the Council to appoint up to two additional Council members, to hold office for a maximum of three years, subject to annual confirmation by the Annual General Meeting of the Association. No Council members appointed in this way held office during 2022.

In accordance with the Articles of Association, the following members of Council are retiring at the Annual General Meeting on 13 June 2023: - Gavin Barlow, Richard Chapman, Mike Harnor, Sarah Lawson and Ian Walker.

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The people who served on the Council of Management between 1 January and 31 December 2022 were:

Chair Richard Chapman
-to 12 July 2022
Jane Riley
- from 12 July 2022
- re-elected to Council 14 June 2022
Vice Chair Jane Riley
- to 12 July 2022
Peter Clough
- from 12 July 2022
- re-elected to Council 14 June 2022
Honorary Treasurer June Massey
-to 12 July 2022
Nicholas Hutton
- from 12 July 2022
Gavin Barlow BSc Sarah Lawson
Jayne Burton Tom McLaughlan
- elected to Council 14 June 2022
Avril Coelho Beryl Sharlot
-retired from Council 14 June 2022
Joanne Greer Katie Stevens
- elected to Council 14 June 2022
Diane Hockley Stephen Timewell
- re-elected to Council 14 June 2022 - re-elected to Council 14 June 2022
Michael Harnor Ian Walker

Trustee induction and trustee training

Each newly elected Council member receives guidance notes about their role and responsibilities as a charity trustee and company director as part of a comprehensive induction process. Individual trustees attend conferences, seminars and other training and learning opportunities as necessary through the year to update their knowledge about their role and responsibilities as charity trustees and company directors. Training and personal development needs are reviewed as part of the annual appraisal of the Council and its members.

Council appraisal and corporate governance

The Council of Management carries out a system of trustee annual appraisal to ensure the continued efficiency and effectiveness of the Council. A Council committee on corporate governance further supports this objective.

Council of Management committees and advisory panels

There were three Council committees during 2022: Corporate Governance, Finance and Strategic Policy, and the Standing Committee. Council also established a Council Working Practices Review Group in 2021 which concluded its work in 2022. Each Committee and the Working Group has terms of reference and a membership that is approved by the Council and reviewed on an annual basis. Council members also serve on a Staff Appeals Panel to hear appeals from staff in relation to grievance or disciplinary disputes. There were no appeals to the panel in 2022. Membership of the Council’s Committees, the Working Group and the Council’s Staff Appeals Panel in 2022 is listed below.

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Corporate Governance Committee
(maximum6members)		 Finance & Strategic Policy Committee
(6-8members)
Jayne Burton
Committee Chair		 Jane Riley
Committee Chair to 6
September 2022
Council Vice Chair ex officio member
of Committee to 12 July 2022
Council Chair ex officio member of
Committee from 12July 2022
June Massey
to 12 July 2022		 Richard Chapman
Committee Chair from 6
September 2022
Council Chair ex officio member of
Committee to 12 July 2022
Elected member of the committee
from 12July 2022
Richard Chapman
Council Chair ex officio member of
Committee to 12 July 2022		 Peter Clough
Elected member of the committee
from 12 July 2022
Council Vice Chair ex officio member
of Committee from 12July 2022
Diane Hockley June Massey
Honorary Treasurer ex officio
member of Committee to 12 July
2022
Elected member of the committee
from 12July 2022
Sarah Lawson Nicholas Hutton
Honorary Treasurer ex officio
member of Committee from 12 July
2022
Tom McLaughlan
From 12July 2022		 Gavin Barlow
To 12July 2022
Katie Stevens
From 12July 2022		 Michael Harnor
IanWalker Sarah Lawson
Katie Stevens
From 12July 2022
Stephen Timewell
To 12July 2022
Council Working Practices Review Group
(Maximum5members)		 Staff Appeals Panel
(Maximum6members)
Ian Walker
Group Chair		 Jane Riley
Panel Chair– Council Vice Chair
ex officio to 12July 2022
Jane Riley
Council Vice Chair ex officio to 12
July 2022		 Peter Clough
Panel Chair– Council Vice Chair
ex officio from 12July 2022
Peter Clough
To 12 July 2022
Council Vice Chair ex officio from 12
July 2022		 Gavin Barlow
AvrilCoelho JayneBurton
NicholasHutton Sarah Lawson
BerylSharlot
To 14June 2022

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Standing Committee Standing Committee
(Maximum5members)
Richard Chapman Committee Chairto 13
September 2022
Council Chair ex officio to 12 July
2022
Immediate past Chair ex officio from
12July 2022
Jane Riley Committee Chairfrom 13
September 2022
Council Vice Chair ex officio to 12
July 2022
Council Chair ex officio from 12 July
2022
June Massey Honorary Treasurer ex officio to 12
July 2022
Nicholas Hutton Honorary Treasurer ex officio from
12July 2022
Peter Clough Council Vice Chair ex officio from 12
July 2022

Advisory Panels

Advisory panels have been set up by the Council of Management to advise and guide the Association in its work. The members of the panels are appointed by the Council of Management. Each panel has terms of reference approved by the Council. The panels are a Health and Clinical Advisory Panel, a Research Advisory Panel, a Scientific Awards Panel and a Women’s Advisory Panel. The performance of each panel is monitored and critically evaluated every other year. The last evaluation took place in December 2021. Membership of the Advisory Panels during 2022 is listed below.

**Health and Clinical Advisory Panel **
Professor Markus Reuber MD PhD Dr Colin Dunkley Dr Owen Pickrell
FRCP –Chair
Dr Aza Abdulla FRCP (UK) FRCPI Ms Jo Geldard Professor Mark Richardson
MSc (Immun)MSc (Med Ed)
Dr Richard Appleton LRCP MRCS Dr Hayley Gorton Mrs Julie Rigby MSc BSc (Hons)
MBBS DCH MA (Oxon) FRCP MCSP
FRCPCH
Dr Manny Bagary BSc MBBS Ms Christine Hanson Mr Richard Selway MA MMedSci MB
MRCPsych PhD BChir BScFRCS(SN)
Professor Martin Brodie MB ChB Dr Dan Hindley Professor Stefano Seri MD FRCP
MRCP FRCP
Professor Richard Chinn Simon Keller Professor Phil Smith MD FRCP
Dr HannahCock BScFRCP MD ProfessorSteven Kemp Dr RhysThomas
Dr John Craig Professor Sayeed Khan MBBS Mr Martin Tisdall
BMedSci DGM CMIOSH FRCGP
FFOM FRCP FRSA DM
Professor Helen Cross MB ChB PhD Dr John Paul Leach MD FRCP Ms Bernie Waldron RSCN MSc
FRCP FRCPCH
Dr Anita Devlin Professor Tony Marson Professor Matthew Walker MA MB
BChir FRCP PhD
Dr JM Dickson Dr Jim Morrow BA (Hons) MD PhD Dr Ingram Wright BA (Hons) PhD D
FRCP Clin Psy

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**Research Advisory Panel ** **Scientific Awards Panel ** **Women’s Advisory Panel **
Erica Chisanga Dr Khalid Hamandi
Dr Sarah Collard Emily Holmes Ms Beth Irwin
Ms Helen Coyle RGN BA (Hons)
MPhil		 Professor Michael Johnson Dr Jim Morrow BA (Hons) MD PhD
FRCP
Dr AdinaLew StephanieKilinc RebeccaBromley
Dr Dougall McCorry MelissaMaguire DrJohnCraig
Dr Ian Minshall MB ChB DRCOG
FPCert JCPTGP		 Linda Mayhew Kim Morley
DebPal Nigel Bennett Dr Arjune Sen
Professor Howard Ring BSc MB BS
MRPsych		 Fiona McKinnon Dr Rohit Shankar
Rohit Shankar RajivMohanraj DrSophia Varadkar
ProfSanjay Sisodiya LeoneRidsdale DrJanine Winterbottom
AndrewTrevelyan

Epilepsy Action Cymru and Epilepsy Action Northern Ireland

The Association operates in Wales as Epilepsy Action Cymru and in Northern Ireland as Epilepsy Action Northern Ireland . A National Advisory Council for Wales and a National Advisory Council for Northern Ireland provide advice, guidance and support for the charity’s work in these countries. Both Councils have terms of reference and a membership that is approved by the Council of Management and which is reviewed on an annual basis. Membership of the National Advisory Councils during 2022 is listed below.

National Advisory Council for Northern Ireland
(Maximum 15 members)		 National Advisory Council for Wales
Cyngor Ymgynghorol Cenedlaethol Cymru
(Maximum 15members)
DrJohnCraig-Chair Dr Khalid Hamandi –Chair
Ms Gillian Dourish_– appointed 12 April 2022_ MsLouise Capeling
Ms Joanne Greer_– appointed 12 April 2022_ Mr Michael Dix-Williams
Dr Michael Kinney Dr Frances Gibbon
MauraMackie Dr DaveMinton –retired 3 April 2022
Ms Sarah McCann Ms ChloeNoot–appointed 4 October 2022
Megan McCarthy MsMalisaPierri
MsDeborah McCrudden Dr RobPowell
DrJim MorrowBA(Hons)MD PhD FRCP SiônGlyn Pritchard
MsEdna O’Neill –retired 7 March 2022 Ms Shelia Shepley–retired 3 April 2022
Dr LouiseRusk Jeanette Spiers
MsKerry Watkinson -appointed 12 April 2022 Dr AbigailSwift-appointed 12 April 2022
Mr DerickWoodsBA BScDipEd Mr IanWalker
MrsMarionWoods MrCraig Williams

Trustees’ interests

Members of the Council are charity trustees as defined by the Charities Act. Since the Association is a company limited by guarantee, persons elected or appointed to its Council are also directors and are registered as such in accordance with the Companies Act. Council members may claim for reasonable expenses incurred in undertaking the Association’s business but they receive no remuneration or other financial benefit. All members of the Council have confirmed that they do not have and have not had any beneficial interest in any contract with the Association apart from the disclosures made within note 20 to the accounts. The Association maintains a publicly available register of trustees’ interests.

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Strategic report

The following report includes the detail required by the Companies Act 2006 with regards to the strategic report.

Risk assessment

The Council has assessed the major risks to which the Association is exposed, in particular those related to the operations and finances of the charity. The Council is satisfied that management and control systems are in place to mitigate the Association’s exposure to the major risks. The Council reviews these risks and controls at least four times each year.

Risks are identified and assessed by the trustees based on their likelihood of happening and the severity of their impact if they were to happen. Risks are scored before action is taken (gross risk score) and again after action is taken (net risk score). On 6 December 2022, eight risks were identified and assessed with a net risk score of 15 or higher making them the most significant risks to the charity. The 2022 dates are valid at the time the risk register was last reviewed. These risks, their potential impact and the actions taken in response to them are as follows:

Description of
risk		 Potential impact Actions taken to mitigate risk Net risk score
after action
taken
Turbulent macro-
economic
conditions giving
rise to financial
crisis; inflation;
unemployment;
public sector
austerity; less
personal disposable
income; falling
stock markets.		 Reduced income; higher costs;
reduced spending; use of
reserves to balance finances;
increase in demand for services;
reduction in service delivery.		 Monitor economic forecasts and
geopolitical events and take these
into account in financial and
business planning. Risk based
reserves policy provides a financial
cushion against short term
volatility. Diverse income
generation spreads the risk of
failure. Three year perspective on
2022 revenue budget.		 24
Failure to comply
with Data
Protection law and
regulation.		 Financial penalties imposed by
regulators; suspension or loss
of license; reputational damage;
loss of public confidence; loss of
income and support.		 Director of Corporate Services
appointed Data Protection Officer.
GDPR training for all staff. GDPR
awareness for volunteers. GDPR
permission renewals process in
place. New CRM database is GDPR
compliant.		 20
Investment in
Individual Giving
fundraising delivers
less than 80% of
targets.		 Pressure on cash flow; lower
income than expected and
planned for; reduced spending
and/or depleted reserves to
balance finances; disruption to
long term plans; lowered
stakeholder morale; services
reduced.		 Individual Giving plan in place;
phased implementation with testing
enables active adjustment;
performance is monitored closely;
reserves policy reflects potential
volatility of income; F&SP
Committee regularly review
fundraising performance and plans.		 20
Failure of one or
more top five
sources of income,
(delivers less than
80% of target).		 Pressure on cash flow; loss of
expected and planned income;
reduced spending or use of
reserves to balance finances;
services reduced.		 Major sources of income are
identified and closely monitored.
Legacy analysis and pipeline tool to
help accuracy in predicting legacy
income. Maintain a broad base of
fundraising. Risk based reserves
policy based on future income.
F&SP Committee regularly review
fundraising performance and plans.
Fast adoptionof newinitiatives.		 16

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Description of
risk		 Potential impact Actions taken to mitigate risk Net risk score
after action
taken
Income from
fundraising falls
below expectations.		 Reputational damage; lower
income than expected and
planned for; reduced spending
and/or depleted reserves to
balance finances; disruption to
long term plans; lowered
stakeholder morale.		 Annual revenue budget. Annual
business plan. Individual fundraising
project plans. Monitoring by F&SP
Committee.		 16
Significant loss of
membership.		 Reputational damage; loss of
mandate and authority;
weakened influence; lower
income; lowered stakeholder
morale; accelerating loss of
members.		 Continuing plan for membership
development in place for 2022
addressing recruitment, retention
and administration.		 15
Cyber attack Reputational damage; loss of
public and donor confidence;
disruption to services; damage
to digital infrastructure; website
lost or disabled; social media
disabled; cost of recovery.		 IT covered in disaster recovery
plan; anti-virus software in place.
Staff minded to be alert to
potential threats. Communications
and Digital Engagement department
focuses expertise and cyber attack
awareness.		 15
IT systems failures Systems fail to meet operational
need; email system collapses; IT
obsolete; IT supplier fails; loss
or corruption of data; data
protection law breach.		 Systematic updating of IT;
comprehensive back up procedures
in place; due diligence completed
on suppliers; services formally
contracted; monitoring of data
protection law and staff training in
compliance; IT covered in disaster
recovery plan.		 15

Subsidiary companies

The Association has three wholly owned subsidiary companies. Epilepsy Action and Epilepsy U.K. are both dormant companies. BEA Trading Limited is engaged in fundraising activities, the distribution of Christmas cards, associated gifts and the promotion of BEA insurances. More information about the subsidiary companies can be found in note 13 to the accounts.

Co-operation with other charitable organisations

The Association is an active member of the International Bureau for Epilepsy (IBE), the Neurological Alliance, the Disability Benefits Consortium and National Voices. The Association is also a member of the National Council for Voluntary Organisations (NCVO), the Association of Medical Research Charities (AMRC), the Institute of Fundraising and the Charity Finance Group.

Public benefit

The trustees have referred to the guidance contained in the Charity Commission’s general guidance on public benefit when reviewing the Association’s aims, objectives and activities and this report seeks to comply with that guidance by clearly explaining and illustrating how the charity delivers public benefit.

Information about the charity’s fundraising

The charity’s fundraising strategy is outlined in a document ‘Epilepsy Action fundraising delivery and monitoring plan, 2022’. A copy of the document has been made available to every Council member. The document supports Council members in their role of overseeing fundraising in line with Charity Commission guidance (CC20, ‘Charity fundraising: a guide to trustee duties’). It describes how fundraising is managed and overseen in order to ensure it is in the charity’s

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best interests and compliant with the law and best practice. It outlines each area of fundraising the charity undertakes and provides more information in relation to that area of fundraising.

The charity only works with professional fundraising organisations that also meet these standards. It will not enter into a partnership with any external fundraising organisation that does not meet these requirements.

Indemnity insurance

Subject to the provision of the Companies Act 2006, every trustee and officer is indemnified against any liability incurred by them in their capacity in defending any proceedings whether civil or criminal, in which judgement is given in favour or in which they are acquitted or in connection with any application in which relief is granted to them by the court from liability for negligence, default, breach of duty or breach of trust in relation to the affairs of British Epilepsy Association.

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Objectives and activities

The charity’s objects are set out in detail in clause 3 of its Memorandum of Association. In summary, the Association exists for the benefit and service of people with epilepsy and others interested in epilepsy and associated conditions. The Association seeks to ensure that everything it undertakes is free of political and commercial bias.

The Association’s strategic plan has two goals – to improve the quality and availability of healthcare services for people with epilepsy and to improve awareness and understanding of epilepsy. To achieve these two goals the charity focuses on eight objectives. In addition, the charity has set itself five organisation goals to help it to be stronger and more effective in the future.

The key achievements and successes of 2022 are set out here.

Goal 1: Improve the quality and availability of health care services for people with epilepsy

1. Provide advice, information and training about epilepsy

. Provide advice, information and training about epilepsy
Numberofpage views ofthe advice and informationweb pages 2,260,846
Numberofpage views ofe-learning content 592,647
Registrations one-learning courses 27,744
Completions ofe-learning courses 19,975
Helplineadviceand informationserviceusers 9,490

2. Give people the skills and opportunities to speak out for themselves and for others affected by epilepsy

3. Influence national health policy

4. Influence and support local health service design, commissioning and delivery

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5. Research

Goal 2: Improve awareness and understanding of epilepsy

1. Encourage and support people to be open about epilepsy

2. Publicly celebrate positive attitudes towards epilepsy and challenge negative attitudes

3. Engage with national and local decision makers

Organisation goals

1. Building a community of interest around epilepsy

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2. Developing our income

3. Raising the profile and visibility of Epilepsy Action

4. Becoming a digital charity

5. Delivering our strategy in local communities

Organisational development

During 2022 we invested time and money to improve the charity’s organisational infra-structure to better support the delivery of its strategic ambitions.

We established a new people and culture team within our Corporate Services department. This has reviewed and updated our human resources policies and procedures and introduced new HR management software. We carried out a comprehensive management training programme for all managers. Our annual staff survey was completed by 100% of the staff and was extremely positive about working at Epilepsy Action.

Alison Fuller joined us in February 2022 as our new Director of Health Improvement and Influencing and spent the year fashioning this department with its largely new team.

We migrated from our old web-based intranet to the SharePoint platform. This has made document storage and sharing across the charity much more effective and has enhanced our organisational ability to work collaboratively.

At the end of 2022 we moved our finance system from Sage to AccountsIQ. This will allow us to provide faster and

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more meaningful financial information without losing any of the necessary financial controls that are essential to safeguard the charity’s assets. The new system went live on the 1 January 2023.

Values and beliefs

Epilepsy Action is defined by its values . They guide what we do, how we work and the decisions we make.

We are positive about epilepsy and passionate about what we do. We are creative and innovative in our thinking and confident in our actions.

We care about people with epilepsy and their families. We listen to them and we respond to their needs. We never forget that epilepsy is about people.

We are a diverse and inclusive organisation that actively reaches out to people across all countries of the United Kingdom and British Isles. We welcome everyone affected by epilepsy.

We represent by being a community of interest around epilepsy - reflecting peoples’ hopes and aspirations and providing identity, unity and a voice.

Further details about the Association’s work and how it delivers public benefit appear elsewhere in this report under ‘Achievements and performance’. Extracts from this report also appear on our website, www.epilepsy.org.uk.

People

The Council of Management would like to place on record its appreciation of the hard work and commitment to the charity’s objectives of all staff in 2022. The senior staff employed by the Association in 2022 were:

Chief Executive Philip Lee
Deputy Chief Executive Rebekah Smith
Director of Services Ann Richardson-Greaves
Director of Health Improvement and Influencing Alison Fuller –from 14 February 2022
Director of Fundraising Philippa Cartwright
Director of Communications and Digital Jon Eaton
Engagement
Director of Corporate Services Tony Spinks

Key management personnel

The key management personnel comprise the Trustees, the Chief Executive and the Deputy Chief Executive, see note 20.

Pay policy for senior staff

The pay of all staff including senior staff is reviewed annually. The benchmark for any increase is the August index of average earnings (UK whole economy). However, the trustees also take into account what the charity can afford, the local and voluntary sector labour markets and general economic conditions. All staff salaries were increased by 2.5% from 1 January 2022.

The Council also acknowledges with gratitude the work and commitment of the many volunteers who willingly give up their time to the considerable benefit of the charity and the people the charity serves. The opportunities for volunteering in 2022 were still recovering after the Covid pandemic but even so, the total number of hours donated to the Association in 2022 by all of its volunteers is estimated to be 80,504 (2021: 42,319). This equates to 44.9 full time staff, based on an average staff working week of 34.5 hours. Using the Association’s mean average staff cost in 2022 of £21.34 per hour, (which includes the cost of national insurance and pension contributions), the financial value of this volunteered time in 2022 is estimated to be £1,717,955 (2021: £781,209). These financial values are not recognised within the statement of financial activities as they do not meet the income recognition criteria under the SORP.

Equal Opportunities

The Association supports the principle of equal opportunities, in particular for those who are unable to compete equally in open employment. This especially includes people who have a history of epilepsy. All staff may become subscribing members of the Association and are kept informed of the charity’s activities and progress through regular meetings and written communications.

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The Council of Management would also like to acknowledge the help and support of the following people who served the Association during 2022.

Patron HRH The Duchess of Kent Vice Patrons His Eminence The Cardinal Archbishop of Westminster The Very Reverend The Chief Rabbi The Free Churches’ Moderator President Baroness Ford of Cunninghame Honorary Past President Baroness Gould of Potternewton Honorary Vice Presidents Ms Karen Armstrong Mr Paul Maynard MP Professor Gus Baker – re-appointed 14 June 2022 Dr Adam Noble - appointed 14 June 2022 Mr William Fiennes - re-appointed 14 June 2022 Mrs Beryl Sharlot - appointed 14 June 2022 Dr Evan Harris Professor Ray Tallis

Achievements and performance

We continue to make good progress in all of our strategic priority areas. We have sustained and developed our services, ensuring the charity remains available to those who need it. The positive influence that our work has on peoples’ lives is more fully documented on our website www.epilepsy.org.uk.

Financial Review

The results for the year are set out on pages 25 to 45. The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), (effective 1 January 2015), with the aim of presenting the financial position of the Association in a clear, comprehensive and intelligible way. The results of the Association’s commercial subsidiary, BEA Trading Limited, are shown in note 13 to the accounts.

General review of the charity’s financial position

2022 2021
Total incoming resources £5,307,506
£3,314,918
Total resources expended £3,512,163
£3,299,536
Surplus / (Deficit) £1,795,343
£15,382
Unrealised Gain / (Loss) (£198,820) £212,184
Net Movement in Funds £1,596,523
£227,566
Total funds £5,268,676
£3,672,153

Total income for 2022 saw an increase of close to £2 million. A substantial reason for this was legacy income which totalled £2.1m, and which included a single bequest of £0.7m. Grant income increased by £0.53m with the successful award of two years of funding for a counselling service in Northern Ireland and a second award for three years of funding for a counselling service in Wales.

Resources expended have increased by £0.21m, however once you remove the CRM impairment from the costs in 2021 the increase rises to £0.34m. This is primarily down to an increase to all staff salaries of 2.5% from 1 January 2022 and the launch of the new services.

15

The total funds held by the charity at year end are £5.3m. The balance sheet is strong with investments of £2.3m, cash at bank of £0.8m and accrued income of £1.9m, which includes £1.1m of legacy income notified to the charity but not yet received. This position alongside no material uncertainties, indicate the charity is in a strong financial position to continue as a going concern over the next 12 months and beyond.

Principal sources of funding

The top five performing income areas in 2022 were responsible for 91% of the charity’s income. Legacy bequests are the top income generator responsible for 40% of the Association’s income, which amounted to £2.135m (2021: £1.06m). Income from fundraising events sponsorship contributed 21% worth £1.09m (2021: £0.76m). Grant income contributed 14% which was worth £0.74m (2021: £0.21m) with £0.53m coming from two new services. Donations from individuals contributed 12% £0.63m (2021: £0.61m) and Membership subscriptions contributed 4% £0.21m (2021: £0.22m). All other income sources contributed 9% £0.5m (2021: £0.45m).

We would like to thank all the charitable trusts and foundations, companies and community groups who have generously provided grant and donation income or gifts in kind to support our work. We would also like to thank all the many individuals who supported us throughout 2022 through their membership, donations, sponsorship, or event participation.

Fundraising income is explained in more detail in notes 2 and 4 to the financial statements.

Resources Expended

For every £1 the charity raises, 62% of that money goes to providing services to our beneficiaries. In 2022 this amounted to £2.17m (2021: £2.01m). The remaining money is spent on raising more income so that we can help even more people. The amount spent in 2022 was £1.35m (2021: £1.17m). This equates to an income of £3.94 for every £1.00 spent on raising funds (2021: £2.84 income for every £1.00 spent).

Grant making policy

The Association makes grants available for research. Applications are considered in light of the Association’s prevailing research priorities and with reference to the Association’s research policy focus on non-laboratory research.

Investment policy

The Association’s current investment policy was approved and adopted by the Council of Management on 11 July 2017. The policy requires a balanced investment portfolio that can deliver both capital growth and income. The precise balance within the portfolio between capital growth investments and investments for income may vary in line with the changing needs of the Association and fluctuations in market conditions.

16

The investment priority is first to achieve a level of income that is broadly comparable with what is generally available. This income is to be used to provide some contribution to the overall funding of the Association’s charitable objectives.

The policy is also designed to enable the Association to build and maintain sufficient capital reserves to provide cover for the inevitable fluctuations in revenue income, thus ensuring continuity in the provision of the Association’s services in the context of its current strategic plan and business and charitable objectives. An appropriate level of reserves for the Association is described by the reserves policy.

The Council of Management will not knowingly invest in specific companies whose activities are, in the opinion of the Council of Management, inconsistent with the aims and objectives of the Association. The Council reviews the policy every year and carries out a more thorough examination every three years. The policy was last reviewed by Council on 7 February 2023.

Performance of investments

At the end of 2022, the Association retained listed investments valued at £2.36m (2021: £2.56m). These investments are detailed in note 12 to the financial statements. The listed investments produced an income of £0.09m (2021: £0.08m). There was an unrealised loss on the investments of £0.2m (2021: unrealised gain of £0.2m). Interest was received on cash deposits of £0.009m in 2022 (2021: £nil). BEA Trading Limited contributed income to the charity of £0.04m (2021: £0.03m). Total income for the year from the Association’s investments was £0.1m (2021: £0.08m). Investment management costs in 2022 were £0.013m (2021: £0.013m).

The performance of the Association’s investment manager is measured against set targets and objectives. The investment manager provides a regular written performance report on the investments and each trustee has online access to independently view the Association’s investment portfolio at any time. The investment manager is also required to make a face-to-face presentation to the Council at least once every year.

Fixed assets

Details of movements in fixed assets during the year are set out in notes 10, 11 and 12 to the financial statements.

Reserves Position

The reserves position for the charity at 31 December 2022 showed General Fund reserves of £3.1m (£2021: £2.5m). Designated fund reserves of £0.58m (2021: £0.47m) include money spent on the CRM database and Website upgrade projects which both completed in 2022. The money will be amortised over five and three years respectively. Restricted fund reserves at year end amounted to £1.6m (2021: £0.67m). Included within this fund is £0.46m for our counselling projects in Northern Ireland and Wales, £0.46m from a restricted legacy and £0.39m for our research projects.

Free reserves, as defined by the Charity Commission, are those general funds that are not represented by tangible fixed assets and not designated. Using this definition, the free reserves of the Charity at 31 March 2022 were £3,086,776 (2021: £3,436,177).

Reserves policy

The current reserves policy was approved and adopted by the Council of Management on 11 July 2017. It was amended by the Council on 4 August 2020 to enable access to more of the charity’s unrestricted reserves. This temporary measure is in place until the end of 2023. It was adopted to help support the charity during turbulent financial times. The policy applies a risk based approach to the reserves based on an assessment of potential risk to future income. The policy is that the Association shall maintain a level of unrestricted financial reserves that falls within a range of between

17

four months (previously eight months) and twelve months gross total unrestricted income based on the following year’s revenue budget forecast. If the level of unrestricted financial reserves moves outside of these parameters, then the Council of Management will take appropriate action.

Based on the 2023 total unrestricted income of £3,473,783 forecast in the 2023 revenue budget, the range of unrestricted reserves should be between £3,473,783 (12 months cover) and £1,157,928 (4 months cover). At the end of 2022, the unrestricted reserve funds amounted to £3,115,211 (2021: £2,543,498). At this level they represent 10.74 months worth of unrestricted income and are therefore within the boundaries set by the reserves policy. All of the Association’s reserve funds are explained in more detail in note 17 to the accounts.

Plans for future periods

The Council of Management approves and adopts an annual operational business plan and an annual revenue budget which includes a three year financial forecast.

On 4 October 2016 the Council approved and adopted a five year strategic plan for the Association to start on 1 January 2017. During 2020 the Council reviewed and adapted this plan in light of the conditions created by the Coronavirus pandemic and they extended it to run until the end of 2023. A new five year plan will be developed in 2023 to start in 2024.

We want all people affected by epilepsy to receive the healthcare and support they need and the public respect, fairness and understanding they deserve. To make this vision a reality it is the charity’s mission to strive to improve the lives of everyone affected by epilepsy.

To make this happen we are focused on two goals.

  1. To improve the quality and availability of health care services for people with epilepsy.

  2. To improve awareness and understanding of epilepsy.

To achieve these two goals our work is focused on: -

We also want to develop as an organisation. We have set ourselves five objectives to do this: -

We know that our plans are ambitious and challenging. We know they will not happen easily or quickly and will not be entirely completed within the timeframe of this strategy. But we also believe that what we want is ultimately achievable and it’s what people affected by epilepsy need. We’ll know when our vision is becoming a reality when we see evidence of the following: -

18

Statement of Council Members’ Responsibilities

The Council members (who are also directors of British Epilepsy Association for the purposes of company law) are responsible for preparing the trustees’ annual report (which includes the directors report) and the Strategic Report and the financial statements in accordance with applicable law and regulations.

Company law requires the Council to prepare financial statements for each financial year. Under that law the directors have elected to prepare the financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law).

Under company law the Council must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and of the profit or loss of the charity for that period.

In preparing those financial statements, the directors are required to:

The Council members are responsible for keeping adequate accounting records that are sufficient to show and explain the company’s transactions and disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Auditor

In accordance with the existing articles of association, a resolution proposing that RSM UK Audit LLP be reappointed as auditor of the company was put to a general meeting of members on 13 June 2023.

Statement of disclosure to auditor

So far as each person who was a trustee at the date of approving this report is aware, there is no relevant audit information of which the company’s auditor is unaware. Additionally, each trustee has taken all the necessary steps to make themselves aware of all relevant audit information and to establish that the company’s auditor is aware of that information.

The trustees’ report is prepared under the Charities Act 2011 which also contains all information required in a Directors Report by the Companies Act 2006 and the incorporated Strategic Report prepared under the Companies Act 2006, were approved by the board of trustees.

19

Registered office and professional advisers

Registered Office New Anstey House
Gate Way Drive
Yeadon
Leeds
LS19 7XY
Registered Auditor RSM UK Audit LLP
Central Square
5thFloor
29 Wellington Street
Leeds
LS1 4DL
Solicitors Wrigleys Solicitors LLP
19 Cookridge Street
Leeds
LS2 3AG
Bankers VirginMoney National Westminster Bank
(formerly Yorkshire Bank) City Office Leeds
94-96 Briggate 8 Park Row
Leeds LS1 5HD
LS1 6NP
Investment Manager RBC Brewin Dolphin
10 Wellington Place
Leeds
LS1 4AN

The members of the Council of Management in their capacity as directors hereby approve the Trustees’ Annual Report and the incorporated strategic report.

Philip Lee Chief Executive and Company Secretary 4 April 2023

20

INDEPENDENT AUDITOR’S REPORT TO THE MEMBERS OF BRITISH EPILEPSY ASSOCIATION

Opinion

We have audited the financial statements of British Epilepsy Association (the ‘charitable company’) for the year ended 31 December 2022 which comprise the Statement of Financial Activities, the Balance Sheet, and the Statement of Cash Flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (United Kingdom Generally Accepted Accounting Practice).

In our opinion the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

Other information

The other information comprises the information included in the Trustees’ Annual Report other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the Trustees’ Annual Report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

21

Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the Trustees’ Report or the Strategic Report, which includes the Directors Report.

We have nothing to report in respect of the following matters where the Companies Act 2006 requires us to report to you if, in our opinion:

Responsibilities of trustees

As explained more fully in the Statement of Trustees’ responsibilities set out on page 20, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes

22

our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

The extent to which the audit was considered capable of detecting irregularities, including fraud

Irregularities are instances of non-compliance with laws and regulations. The objectives of our audit are to obtain sufficient appropriate audit evidence regarding compliance with laws and regulations that have a direct effect on the determination of material amounts and disclosures in the financial statements, to perform audit procedures to help identify instances of non-compliance with other laws and regulations that may have a material effect on the financial statements, and to respond appropriately to identified or suspected noncompliance with laws and regulations identified during the audit.

In relation to fraud, the objectives of our audit are to identify and assess the risk of material misstatement of the financial statements due to fraud, to obtain sufficient appropriate audit evidence regarding the assessed risks of material misstatement due to fraud through designing and implementing appropriate responses and to respond appropriately to fraud or suspected fraud identified during the audit.

However, it is the primary responsibility of management, with the oversight of those charged with governance, to ensure that the entity's operations are conducted in accordance with the provisions of laws and regulations and for the prevention and detection of fraud.

In identifying and assessing risks of material misstatement in respect of irregularities, including fraud, the audit engagement team:

As a result of these procedures we consider the most significant laws and regulations that have a direct impact on the financial statements are FRS 102, Charities SORP (FRS 102), Companies Act 2006, Charities Act 2011, the charitable company’s governing document, and Charities Commission. We performed audit procedures to detect non-compliances which may have a material impact on the financial statements which included reviewing the financial statements including the Trustees’ Report and remaining alert to new or unusual transactions which may not be in accordance with the governing documents. We performed audit procedures to inquire of management and those charged with governance whether the charitable company is in compliance with these law and regulations and inspected correspondence with regulatory authorities.

The audit engagement team identified the risk of management override of controls and legacy income in respect of the valuation and completeness assertions as the areas where the financial statements were most susceptible to material misstatement due to fraud. Audit procedures performed in relation to management override of controls included but were not limited to testing journal entries and other adjustments, evaluating the business rationale in relation to significant, unusual transactions and transactions entered into

outside the normal course of business, challenging judgments and estimates. Audit procedures performed in relation to the valuation of legacy income included but were not limited to verification to third party supporting documentation and receipt to bank statements, where applicable. Audit procedures performed in relation to the completeness of legacy income included but were not limited to the review of the legacy pipeline, and correspondence within the legacy files.

A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council’s website at http://www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor’s report.

Use of our report

This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Sarah Mallinson

Sarah Mallinson (Senior Statutory Auditor) For and on behalf of RSM UK AUDIT LLP, Statutory Auditor Chartered Accountants Central Square 5th Floor 29 Wellington Street Leeds LS1 4DL

04/04/23

24

British Epilepsy Association Statement of Financial Activities

Incorporating an Income and Expenditure Account for the year ended 31 December 2022

Note
Incoming resources:
2
Donations and legacies
Charitable activities
Other trading activities
Investment income
Total
Resources expended:
6
Raising funds
Charitable activities
Other trading activities
Investment management costs
Extraordinary items - CRM impairment
Total
Net incoming/(outgoing)
resources before investment
(losses)/gains
Recognised (losses)/gains
Net unrealised (losses)/gains on
investments
Net incoming/(outgoing)
resources
Transfers between funds
Net movement in funds
Reconciliation of funds
Total funds brought forward
Total funds carried forwards		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
Total
Funds
2022
2022
2022
2022
2021
£
£
£
£
£
3,778,926
742
1,162,865
4,942,533
2,988,108
155,524
-
-
155,524
179,429
109,250
-
-
109,250
63,566
92,780
-
7,419
100,199
83,815
4,136,480
742
1,170,284
5,307,506
3,314,918
1,235,824
10,354
-
1,246,178
871,862
1,885,010
43,783
237,193
2,165,986
2,005,297
84,217
2,683
-
86,900
282,051
12,896
-
203
13,099
13,166
-
-
-
-
127,160
3,217,947
56,820
237,396
3,512,163
3,299,536
918,533
(56,078)
932,888
1,795,343
15,382
(181,820)
-

(17,000)
(198,820)
212,184
736,713
(56,078)
915,888
1,596,523
227,566
(170,000)
170,000
-
-
-
566,713
113,922
915,888
1,596,523
227,566
2,543,498
468,206
660,449
3,672,153
3,444,587
3,110,211
582,128
1,576,337
5,268,676
3,672,153

The surplus for the year arises from the Charity’s continuing operations.

25

British Epilepsy Association (Company Number 00797997) Balance Sheet

as at 31 December 2022

Note
Fixed Assets
Tangible fixed assets
10
Intangible fixed assets
11
Investments
12
Current Assets
Debtors
14
Cash at bank and in hand
Creditors - amounts falling due within one year
15
Net Current Assets
Net Assets
16
Funds
Unrestricted
General funds
17
Designated funds
17
Restricted funds
17		 £
£
£
£
23,435
45,066
509,718
62,255
2,358,507
2,557,327
2,891,660
2,664,648
1,886,419
246,295
768,594
952,406
2,655,013
1,198,701
(277,997)
(191,196)
2,377,016
1,007,505
5,268,676
3,672,153
3,110,211
2,543,498
582,128
468,206
1,576,337
660,449
5,268,676
3,672,153
2022
2021		 £
£
£
£
23,435
45,066
509,718
62,255
2,358,507
2,557,327
2,891,660
2,664,648
1,886,419
246,295
768,594
952,406
2,655,013
1,198,701
(277,997)
(191,196)
2,377,016
1,007,505
5,268,676
3,672,153
3,110,211
2,543,498
582,128
468,206
1,576,337
660,449
5,268,676
3,672,153
2022
2021
3,672,153
2,543,498
468,206
660,449
3,672,153

The financial statements were approved and authorised for issue by the Council of Management on 4 April 2023 and signed on its behalf by:

Jane Riley Chair

Nicholas Hutton Honorary Treasurer

The notes on pages 28-45 form part of these financial statements.

26

British Epilepsy Association Statement of Cash Flows

For the year ended 31 December 2022

Note
Net cash provided by operating activities
A
Cash flow from investing activities
Purchase tangible fixed assets
10
Purchase intangible fixed assets
11
Investment income
2
Interest
2
Net cash used in investing activities
(Increase)/Decrease in cash and cash equivalents in the year
Cash and cash equivalents at the beginning of the year
Cash and cash equivalents at the end of theyear		 2022
2021
£
£
184,487
142,433
(5,325)
(28,651)
(463,173)
(66,728)
90,958
83,815
9,241
-
(368,299)
(11,564)
(183,812)
130,869
952,406
821,537
768,594
952,406

Note A. Reconciliation of net movement in funds to cash generated from operations

Note
Net cash flow provided by operating activities
Net movement in funds as per the Statement of Financial Activities
Depreciation charge for the year
10
Amortisation charge for the year
11
Impairment loss
11
Investment income
2
Unrealised losses/(gains) on investment
12
Operating cash flows before movements in working capital
Decrease(increase) in debtors
14
Increase(decrease) in creditors
15
Net cash provided by operating activities		 2022
2021
£
£
1,596,523
227,566
26,956
26,334
15,710
-
-
127,160
(100,199)
(83,815)
198,820
(212,184)
1,737,810
85,061
(1,640,124)
72,026
86,801
(14,654)
(1,553,323)
57,372
184,487
142,433

27

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

1. Accounting policies

1.1 Basis of preparation of financial statements

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) and the Companies Act 2006.

British Epilepsy Association meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note. The financial statements are presented in sterling which is the functional currency of the charity. Monetary amounts are rounded to the nearest £1 except where otherwise indicated.

By the nature of its principal activities, the association is a non profit making organisation and because of this a Profit and Loss Account is not included in these accounts, being replaced by a Statement of Financial Activities.

The Statement of Financial Activities has been prepared on the basis that all operations are continuing operations.

The financial statements show information about the charity as an individual entity and not about its group, as the charity has taken advantage of the exemption provided by section 405 of the Companies Act 2006 not to prepare consolidated financial statements as the trustees consider that all the charity’s subsidiaries should be excluded from consolidation on the basis that they are immaterial for the purpose of giving a true and fair view.

1.2 Going concern

Due to the strong position of the balance sheet, the level of liquid resources and the operating surplus in the year, the trustees have identified no material uncertainties that may cast significant doubt over the ability of the company to continue as a going concern for the period of at least 12 months from the approval of these financial statements. The trustees outline on page 18 that they have reviewed the reserves position and surplus for the year.

1.3 Leasing

Rentals payable under operating leases are charged against income on a straight line basis over the lease term.

1.4 Incoming resources

All incoming resources are recognised once the charity has entitlement to the resources, it is probable that the resources will be received, and the monetary value of incoming resources can be measured with sufficient reliability.

1.5 Donations and Legacies

Legacies are recognised when received or when we are aware that the executors have or probably have determined before the year-end that payment can be or will be made. This would normally follow agreement of estate accounts.

Legacies that are received in the following year that meet the above conditions at year-end are accrued as income in the prior year end financial statements. In 2022 this amounted to £1,093,659 (2021: £121,298).

Legacies that do not meet the conditions are not accrued at the year end. These are disclosed only as contingent assets and not included on the balance sheet or statement of financial activities. In 2022 this amounted to £36,750 (2021: £247,000).

Donations are accounted for when received. Gift Aid receivable is included when there is a valid gift aid declaration and the donation has been received.

1.6 Grants

Grants received are credited to ‘Incoming resources’ in the Statement of Financial Activities. Grants received are recognised at the later date of either when the decision to award the grant is notified to the charity or on agreement to the terms and conditions of the grant if required and when the criteria of entitlement and probability are met and the value can be measured reliably.

28

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Grants payable are payments made to the third parties in the furtherance of the charitable objects of the charity. Grants payable are recognised at the later date of either the decision to award the grant or on receipt of signed agreement to the terms and conditions of the grant if required.

1.7 Expenditure

Resources are recognised on an accruals basis and are analysed between costs of generating funds and charitable expenditure as detailed on the Statement of Financial Activities on page 25. Where costs have not been directly attributed to a particular category, they have been allocated to activities on a basis consistent with the use of the resources.

Support costs have been allocated to each charitable expenditure category on the basis of staff utilisation or on an activity basis of total direct expenditure.

Governance costs include those incurred in the governance of the charity and its assets and are primarily associated with constitutional and statutory requirements.

Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.

1.8 Investments

Investments held as fixed assets are stated at fair value at the balance sheet date. Any difference between cost and market value is adjusted annually through the Statement of Financial Activities. The investment in the subsidiary undertaking is shown at cost.

1.9 Taxation

As a registered charity, British Epilepsy Association is not liable to taxation on its investment income and gains, income and gains arising from trading in furtherance of its charitable objectives and charitable donations. Recovery of income tax is made on tax credits arising from receipts under deeds of covenant and gift aid payments. VAT deemed to be irrecoverable is written off to the Statement of Financial Activities in the period to which it relates.

1.10 Tangible fixed assets and depreciation

Annual impairment reviews are carried out to ensure the carrying value is not lower than the recoverable amount.

The costs of minor additions or those costing below £5,000 are not capitalised.

Tangible fixed assets are stated at cost less depreciation. Depreciation is provided at rates calculated to write off the cost of fixed assets, less their estimated residual value, over their expected useful lives on the following basis –

1.11 Intangible fixed assets and amortisation

Identifiable development expenditure is capitalised once the technical and financial feasibility can be demonstrated. Intangible fixed assets are stated at cost less amortisation. Amortisation is provided at rates calculated to write off the cost of fixed assets, once complete, less their estimated residual value, over their expected useful lives on the following basis –

1.12 Pensions

The charity operates a defined contribution pension scheme. The assets of the scheme are held separately from those of the company. The pension cost charge represents contributions payable by the charity and amounted to £200,202 (2021: £189,368). At year-end the pension creditor amounted to £19,796 (2021: £nil) included within other creditors and accruals.

29

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

1.13 Branches

Income and expenditure in respect of the Association’s branch network has been included in the Statement of Financial Activities. Cash balances held by the branches at the year end are shown in Note 16 - Analysis of net assets between funds.

1.14 Accounting for separate funds

The financial statements of a charity must differentiate between restricted, designated, and unrestricted funds.

Restricted funds are funds subject to specific conditions, imposed by the donor or by the specific terms of the charity appeal.

Designated funds are funds allocated for specific purposes by the charity itself.

Unrestricted funds are all the other funds of the Association.

1.15 Recognition of liabilities

Liabilities are recognised when an obligation arises to transfer economic benefits as a result of past event.

1.16 Cash equivalent policy

Cash or cash equivalent amounts are cash held in bank accounts by the main charity or branches and include all cash held on short term deposits. They exclude cash held within the investment portfolio as part of the on-going investment activities.

1.17 Judgements and key sources of estimation uncertainty

In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.

Apart from the accrual of legacy income, Note 1.5, there are no other areas of estimation uncertainty

1.18 Financial instruments

The company has elected to apply the provisions of Section 11 ‘Basic Financial Instruments’ and Section 12 ‘Other Financial Instruments Issues’ of FRS 102 to all of its financial instruments.

Financial instruments are recognised when the company becomes party to the contractual provisions of the instrument.

Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Financial Assets

Trade and other debtors (including accrued income) which is receivable within one year and which do not constitute a financing transaction are initially measured at the transaction price and subsequently measured at amortised cost, being the transaction price less any amounts settled and any impairment losses.

A provision for impairment of trade debtors is established when there is objective evidence that the amounts due will not be collected according to the original terms of the contract. Impairment losses are recognised in profit or loss for the excess of carrying value of the trade debtor over the present value of the future cash flows discounted using the original effective interest rate. Subsequent reversals of an impairment loss that objectively relate to an event occurring after the impairment loss was recognised, are recognised immediately in the profit or loss.

30

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Financial Liabilities

Trade and other creditors (including accruals) payable within one year that do not constitute a financing transaction are initially measured at the transaction price and subsequently measured at amortised cost, being transaction price less any amounts settled.

Where the arrangement with a creditor constitutes a financing transaction, the creditor is initially measured at the present value of future payments discounted at a market rate of interest for a similar instrument and subsequently measured at amortised cost.

Derecognition of financial assets and liabilities

A financial asset is derecognised only when the contractual rights to cash flows expire or are settled, or substantially all the risks and rewards of ownership are transferred to another party, or if some significant risks and rewards of ownership are retained but control of the asset has transferred to another party that is able to sell the asset in its entirety to an unrelated third party.

A financial liability (or part thereof) is derecognised when the obligation specified in the contract is discharged, cancelled or expires.

31

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

2. Details of Income

2. Details of Income
Donations individual
Branch income
Legacies
Grants
Corporate donations
Membership subscriptions		 General
Funds
2022
Designated
Funds
2022
Restricted
Funds
2022
Total
Funds
2022
Total
Funds
2021
£
£
£
£
£
615,822
-
15,308
631,130
606,472
4,333
-
195
4,528
2,956
1,668,654
742
465,550
2,134,946
1,061,959
63,807
-
676,352
740,159
211,389
32,406
-
-
32,406
39,995
213,784
-
-
213,784
221,944
Fundraising 1,080,284
-
5,460
1,085,744
763,229
Donated goods and services 99,836
-
-
99,836
80,164
3,778,926
742
1,162,865
4,942,533
2,988,108
Sales of goods and services General
Funds
2022
Designated
Funds
2022
Restricted
Funds
2022
Total
Funds
2022
Total
Funds
2021
£
£
£
£
£
155,524
-
-
155,524
179,429
General
Funds
2022
Designated
Funds
2022
Restricted
Funds
2022
Total
Funds
2022
Total
Funds
2021
£
£
£
£
£
Event Registration Fees 37,403
-
-
37,403
3,555
Lotteries
BEA Trading Ltd		 27,424
-
-
27,424
25,199
44,423
-
-
44,423
34,812
109,250
-
-
109,250
63,566
Income from quoted investments
Bank interest		 General
Funds
2022
Designated
Funds
2022
Restricted
Funds
2022
Total
Funds
2022
Total
Funds
2021
£
£
£
£
£
83,539
-
7,419
90,958
83,815
9,241
-
-
9,241
-
92,780
-
7,419
100,199
83,815

Prior year income

All of the donations and legacies in 2021 were unrestricted with the exception of the following restricted streams: Donations individual £17,137 Branch income £88, Legacies £69,828, Grants £86,659, Corporate donations £2,920, Fundraising £85 and £10,000 of Legacies within designated income.

All of the income from charitable activities in 2021 was unrestricted with the exception of £2,844. All of the income from other trading activities in 2021 was unrestricted.

All of the income from investments in 2021 was unrestricted apart from £6,673.

32

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Legacies

Legacies with an estimated value to Epilepsy Action of £727,018 (2021: £627,544) have been notified to the charity but have not been included in the financial statements. The conditions for recognising this income within the accounts had not been met by 31 December 2022. Of these, legacies to the value of £36,750 have been disclosed only as contingent assets and therefore not accrued at year end (2021: £247,000).

We would like to thank the following Grant funders:

The A M Fenton Trust The Alison Hillman Charitable Trust The Ammco Trust The Anne and John Walters Charitable Trust The Annie Tranmer Charitable Trust The Arthur and Audrey Silkin Charitable Trust The Charles Brotherton Trust The Cumber Family Charitable Trust Daisie Rich Trust The David Family Foundation Drapers’ Charitable Fund The Edward Cadbury Charitable Trust The Eveson Trust The Florence Turner Trust Ford Family Charitable Trust 1991 Fowler Smith and Jones Trust The Francis Charitable Trust The Fred Towler Charity Trust

Ganzoni Charitable Trust The George A Moore Foundation The Gerald Micklem Charitable Trust The Grace Trust The Grocers’ Charity The Hamilton Wallace Trust The Hospital Saturday Fund The Hugh Fraser Foundation The Hyde Foundation The Ione Vassiliou Charitable Trust The J Reginald Corah Foundation Fund The Jeannine Vassiliou Charitable Trust Margaret Giffen Charitable Trust The Marjory Boddy Charitable Trust The Mary Robertson Trust The Masonic Charitable Foundation St Paul's Column, Hinton Michael Cornish Charitable Trust

The National Lottery Community Fund The Patricia Routledge Foundation Pilkington Charities Fund The Rainford Trust The Roselands Trust The Simon and Philip Cohen Charitable Trust Sir Donald and Lady Edna Wilson Charitable Trust The Sir James Knott Charitable Trust The Sir James Roll Charitable Trust Sovereign Health Care Tay Charitable Trust The Kier Foundation The Sylvia and Colin Shepherd Charitable Trust The Thomas Farr Charity The W E Dunn Trust The Walter Guinness Charitable Trust The Wixamtree Trust

3. Branches

3. Branches
Branch cash included in current assets at 1
January 2022
Branch income
Branch expenditure
Net income
Amount remitted by branches in the year
Branch cash included in current
assets at 31 December 2022		 2022
2021
£
£
73,772
72,273
4,528
2,956
(4,003)
(857)
525
2,099
(4,997)
(600)
69,300
73,772
73,772

At the end of 2022 we had a total of 11 branches (2021: 18), 1 forum (2021: 4), 30 face to face Talk & Support groups (2021: nil) and 24 virtual Talk & Support groups (2021: 126). As we have come out of the pandemic we have moved back to a mix of virtual and face to face support groups to ensure our beneficiaries receive the support needed.

In accordance with Charity law, monies raised by the Association's branches fall to be accounted for by the Association centrally under the direction of its Council of Management acting as charitable trustees. Monies raised by branches are held in trust for the Association. Each branch acts as custodian in a trustee capacity.

33

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

4. Income from BEA Trading Ltd.

Management charge
Gift Aid Donation		 General
Funds
2022
Designated
Funds
2022
Restricted
Funds
2022
Total
Funds
2022
Total
Funds
2021
£
£
£
£
£
12,000
-
-
12,000
12,000
32,423

-
-
32,423
22,812
44,423
-
-
44,423
34,812

The management charge is in respect of administrative costs recharged to BEA Trading Limited.

5. Analysis of Governance and Support Costs

The charity initially identified the costs of its support functions. It then identified those costs that relate to governance. Having identified its governance costs, the remaining support costs and the governance costs are apportioned between the key charitable activities undertaken (see Note 6) in the year.

Refer to the table below for the basis of apportionment and the analysis of support and governance costs.

General
support
Governance
Total
Basis of apportionment		 General
support
Governance
Total
Basis of apportionment
Audit -
25,500
25,500 Governance 100%
Accountancy
Trustee meeting costs and expenses
Annual report and AGM costs
Investment management costs
Operations
Building support
Information technology
Finance including non
recoverable VAT		 -
1,193
1,193 Governance 100%
-
4,870
4,870 Governance 100%
-
4,107
4,107 Governance 100%
13,099
-
13,099 Investment management 100%
411,966
58,833
470,799 Allocated according to input
between governance and general
support (pro rata on full time
equivalent staff numbers)
153,518
-
153,518 Pro rata on full time equivalent
staff numbers
269,972
-
269,972 Pro rata on full time equivalent
staff numbers
237,226
13,191
250,417 Allocated according to input
between governance and general
support (pro rata on full time
equivalent staff numbers)
Total 1,085,781
107,694
1,193,475

34

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

6. Expenditure

6. Expenditure
Raising Funds Grants
payable
Total Activity
Costs
Total
Support Costs
Total
expenditure
2022
£
£
£
£
Donations & Legacies
Other Trading Activities
Investment Management Costs		 -
-		 923,650
60,113
-		 322,528
26,787
13,099		 1,246,178
86,900
13,099
Raising Funds Total - 983,763 362,414 1,346,177
Charitable Activities
To improve the quality and healthcare services for people with epilepsy
To improve awareness and understanding of epilepsy		 -
-		 957,702
377,223		 600,417
230,644		 1,558,119
607,867
Charitable Activities Total - 1,334,925 831,061 2,165,986
Total Expenditure 2022 - 2,318,688 1,193,475 3,512,163

Prior Year Expenditure

Raising Funds Grants
payable
Total Activity
Costs
Total
Support Costs
Total
expenditure
2021
£
£
£
£		 Grants
payable
Total Activity
Costs
Total
Support Costs
Total
expenditure
2021
£
£
£
£		 Grants
payable
Total Activity
Costs
Total
Support Costs
Total
expenditure
2021
£
£
£
£		 Grants
payable
Total Activity
Costs
Total
Support Costs
Total
expenditure
2021
£
£
£
£
Donations & Legacies
Other Trading Activities
Investment Management Costs		 -
-
-		 567,949
244,921
-		 303,913
37,130
13,166		 871,862
282,051
13,166
Raising Funds Total -
 812,870 354,209 1,167,079
Charitable Activities
To improve the quality and healthcare services for people with epilepsy
To improve awareness and understanding of epilepsy		 44,453
-		 950,799
325,928		 528,296
155,821		 1,523,548
481,749
Charitable Activities Total 44,453 1,276,727 684,117 2,005,297
Exceptional item
CRM impairment - - 127,160 127,160
Total Expenditure 2021 44,453 2,089,597 1,165,486 3,299,536

In 2021 a full review was carried out of the CRM project after which it was decided to reset the project and write off the existing work done.

35

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

7. Grants Payable

7. Grants Payable
Institutional grants
Causes and Cures research:
Epilepsy Research UK
Medicines & Healthcare products
Regulatory Agency
Accession Healthcare Consulting Ltd		 General
Funds
2022
Restricted
Funds
2022
Total
Funds
2022
Total
Funds
2021
£
£
£
£
-
-
-
23,000
-
-
-
6,468
-
-
-
14,985
-
-
-
44,453

8. Staff costs and numbers

8. Staff costs and numbers 8. Staff costs and numbers
Staff costs were as follows: 2022
2021
£
£
Wages and salaries 1,805,994
1,747,329
Social securitycosts 181,180
166,929
Otherpension costs 200,202
189,368
2,187,376
2,103,626

There were no termination payments during the year (2021: 2 employees totalling to £15,366).

The average number of staff employed in the year was 64 equal to 57 full time equivalent (2021: 63 with 55 F.T.E)

The average number of employees calculated on a headcount basis, analysed by function was:

The average number of employees calculated on a headcount basis, analysed by function was:
Charitable activities
Management and administration of the charity
Fundraising and publicity		 2022
2021
No
No
36
35
12
12
16
16
64
63

The number of higher paid employees was:

2022
No		 2021
No
In the band £70,001 - £80,000
1
In the band £80,001 - £90,000
-
In the band £90,001 - £100,000
1		 -
-
1

Pension costs attributed to the higher paid employees amounted to £10,720 (2021: £8,465). No payment for annual leave or other benefits has been accrued.

No members of the Council of Management received any remuneration in respect of their duties as trustee during the year (2021: £nil). Pension creditor at year end was £19,796 (2021: £nil).

36

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

9. Analysis of resources used

The following have been charged to the Statement of Financial Activities:

The following have been charged to the Statement of Financial Activities:
2022 2021
£ £
Depreciation of tangible assets 26,956 26,334
Amortisation of intangible assets 15,710 -
Impairment - 127,160
Hire of Land & Buildings 63,000 63,000
Hire of office equipment 534 505
Auditor's remuneration 25,500 22,000
Remuneration of auditors for non audit work 1,025 4,170

10. Tangible Fixed Assets

10. Tangible Fixed Assets
Cost
At 1 January 2022
Additions during the year
Disposals during the year
At 31 December 2022
Depreciation
At 1 January 2022
Charge for the year
Disposals
At 31 December 2022
Net book value		 Leasehold
improvements
Fixtures,
fittings and
equipment
Computers
Total
£
£
£
£
151,210
64,528
86,708
302,446
-
5,325
-
5,325
-
-
-
-
151,210
69,853
86,708
307,771
131,433
57,757
68,190
257,380
7,472
3,424
16,060
26,956
-
-
-
-
138,905
61,181
84,250
284,336
At 31 December 2022 12,305
8,672
2,458
23,435
At 31 December 2021
19,777
6,771
18,518
45,066

37

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

11. Intangible Fixed Assets

Cost
At 1 January 2022
Additions during the year
Disposals during the year
At 31 December 2022
Amortisation
At 1 January 2022
Charge for the year
Disposals
At 31 December 2022
Net book value		 CRM
Website
Total
£
£
£
-
62,255
62,255
346,626
116,547
463,173
-
-
-
346,626
178,802
525,428
-
-
-
5,777
9,933
15,710
-
-
-
5,777
9,933
15,710
At 31 December 2022 340,849
168,869
509,718
At 31 December 2021
-
62,255
62,255

12. Fixed Asset Investments

12. Fixed Asset Investments
Market value
At 1 January 2021
Additions
Disposals
Revaluations		 Listed
securities
Unlisted
securities
Total
£
£
£
2,557,317
10
2,557,327
-
-
-
-
-
-
(198,820)
-
(198,820)
At 31 December 2021 2,358,497
10
2,358,507

38

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Investment Asset Class Holdings
2022
Holdings
2022
Holdings
2021
Holdings
2021
Market value £
%
£
%
UK Bonds 180,637
7.7%
165,418
6.5%
Overseas Bonds 150,455
6.4%
186,543
7.3%
UK Equities 600,519
25.5%
611,134
23.9%
Overseas Equities 969,218
41.1%
994,174
38.9%
Property 35,256
1.5%
43,622
1.7%
Cash 51,702
2.2%
12,695
0.5%
Other 370,710
15.7%
543,730
21.3%
2,358,497
100%
2,557,317
100%

All the fixed asset investments are held in the UK.

Valuation

At valuation on acquisition the quoted investments would be shown at £2,203,759 (2021: £2,167,559). All quoted investments are managed by RBC Brewin Dolphin on a discretionary basis.

Material investments

There are no investments that individually account for more than 7% of the value of the total portfolio.

13. Subsidiary Undertakings

The Association owns 100% of the issued ordinary share capital of BEA Trading Limited, a company incorporated in England and Wales. The subsidiary is engaged in fundraising activities, the distribution of Christmas cards, associated gifts and the promotion of BEA insurances and publishing. Its financial year ends 30 June rather than 31 December. This ensures that full account is taken of the Christmas trade which forms the majority of the subsidiary's business within there being any need to delay the finalisation of the Association's own accounts.

The accounts of the subsidiary do not justify consolidation as the turnover is not deemed to be material to the Association as a whole. The materiality of the trading company will be reviewed on an annual basis, thus ensuring that the financial statements continue to be prepared using best accounting practice.

The trading results of BEA Trading Limited for the year to 30 June were as follows:

Turnover
Trading profit		 2022
2021
£
£
75,247
74,594
32,423
22,812

A gift aid donation of £32,423 (2021: £22,812) has been received by the Association from BEA Trading Limited and is shown on the Statement of Financial Activities. The net assets of the subsidiary are £30,010.

The Association is also the sole member of Epilepsy UK and Epilepsy Action. Both companies are incorporated in England and Wales, have been dormant since incorporation and are Limited by Guarantee. British Epilepsy Association uses the working name 'Epilepsy Action' across its range of activities.

39

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

14. Debtors

14. Debtors
Due within one year:
Trade debtors
Social security and other taxes
Amounts owed by group undertaking
Other debtors
Prepayments and accrued income		 2022
2021
£
£
1,126
2,074
47,817
12,128
24,728
21,101
124,635
25,538
1,688,113
185,454
1,886,419
246,295

Included within the Prepayments and accrued income amount are a grant for the counselling service in Northern Ireland that will be fully receivable by March 2024 and a grant for the counselling service in Wales that will be fully receivable in 2025.

15. Creditors

Amounts falling due within one year:
Trade creditors
Social security and other taxes
Other creditors and accruals		 2022
2021
£
£
108,634
58,398
49,982
44,026
119,381
88,772
277,997
191,196

16. Analysis of net assets between funds

Fixed assets
Fixed asset investments
Cash at bank and in hand		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2022
2022
2022
2022
£
£
£
£
23,435
509,718
-
533,153
2,160,393
-
198,114
2,358,507
175,875
72,410
451,009
699,294		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2022
2022
2022
2022
£
£
£
£
23,435
509,718
-
533,153
2,160,393
-
198,114
2,358,507
175,875
72,410
451,009
699,294		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2022
2022
2022
2022
£
£
£
£
23,435
509,718
-
533,153
2,160,393
-
198,114
2,358,507
175,875
72,410
451,009
699,294		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2022
2022
2022
2022
£
£
£
£
23,435
509,718
-
533,153
2,160,393
-
198,114
2,358,507
175,875
72,410
451,009
699,294
Branch balances 58,276 - 11,024 69,300
Other current assets
Creditors due within one year
Total net assets at 31 December 2022		 931,708
-
954,711
1,886,419
(239,476)
-
(38,521)
(277,997)
3,110,211
582,128
1,576,337
5,268,676

40

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Analysis of net assets between funds – previous year

Fixed assets
Fixed asset investments
Cash at bank and in hand		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2021
2021
2021
2021
£
£
£
£
107,321
-
-
107,321
2,343,348
-
213,979
2,557,327
(63,284)
468,206
474,111
879,033		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2021
2021
2021
2021
£
£
£
£
107,321
-
-
107,321
2,343,348
-
213,979
2,557,327
(63,284)
468,206
474,111
879,033		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2021
2021
2021
2021
£
£
£
£
107,321
-
-
107,321
2,343,348
-
213,979
2,557,327
(63,284)
468,206
474,111
879,033		 General
Funds
Designated
Funds
Restricted
Funds
Total
Funds
2021
2021
2021
2021
£
£
£
£
107,321
-
-
107,321
2,343,348
-
213,979
2,557,327
(63,284)
468,206
474,111
879,033
Branch balances 62,493 - 10,880 73,373
Other current assets
Creditors due within one year
Total net assets at 31 December 2021		 246,295
-
-
246,295
(152,675)
-
(38,521)
(191,196)
2,543,498
468,206
660,449
3,672,153

17. Statement of Funds

General funds Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£
2,543,498
4,136,480
(170,000)
(3,217,947)
(181,820)
3,110,211

Transfers

£170,000 was transferred from the general fund to the designated fund for the Website project.

Designated funds
CRM Database Project
Roger Victor Crawley - Research
George Cowell Legacy - Liverpool
Website Project		 Balance
01/01/2022
Income
Transfers
Expenditure
Balance
31/12/2022
£
£
£
£
£
400,000
-
(8,802)
(28,645)
362,553
33,206
-
-
-
33,206
35,000
742
-
(18,242)
17,500
-
-
178,802
(9,933)
168,869
468,206
742
170,000
(56,820)
582,128

CRM database project

Monies designated for the implementation of a CRM system. In 2021 a full review was carried out after which it was decided to reset the project and write off the existing work done. The system went live on 22 November 2022. £8,802 was transferred to the Website project to complete this project. £340,849 is to be amortised over 5 years. The remaining £21,705 is to be used on CRM development.

Roger Victor Crawley - Research

Funds received from the estate of Roger Victor Crawley which he wished to be used for research.

George Cowell Legacy - Liverpool

Funds received from the estate of George Cowell which he wished to be used in Liverpool.

Website Project

Monies designated for the implementation of a new website. The website went live on 10 October 2022. £8,802 was transferred out of the CRM designated fund to complete this project. £168,869 is to be amortised over 3 years.

41

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Restricted funds
Research Projects		 Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£		 Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£		 Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£		 Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£		 Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£		 Balance
01/01/2022
Income
Transfers
Expenditure
Gains
(Losses)
Balance
31/12/2022
£
£
£
£
£
£
Octavia Morris Memorial Fund 11,754 - - - - 11,754
Research Fund - General 177,452 7,971 6,288 (24,676) - 167,035
Research Fund - Causes and Cures 214,482 7,419 - (688) (17,000) 204,213
TeamMax research 5,216 - - - - 5,216
17,116
102,632
-
National Projects
BefriendingProject - 8,000 10,820 (1,704) -
Colin Woods Memorial Fund 125,132 7,500 - (30,000) -
CommissioningAdvocates 1,577 - - (1,577) -
EpilepsyAction NI CounsellingProject - 204,627 - (55,959) - 148,668
EpilepsyAction Cymru WellbeingService - 328,875 - (680) - 328,195
EpilepsyAlliance 453 - - (453) - -
EpilepsyCommissioningToolkit 1,025 - - (1,025) - -
FamilySupport Project - Northern Ireland - 59,979 - (6,068) - 53,911
HealthCoach 12,778 - (7,283) (5,495) - -
Helpline Services 1,000 30,920 - (31,920) - -
Janice Gilbert Legacy - 464,550 - - - 464,550
Online Learning - 29,650 - (29,650) - -
People with EpilepsyAnd Learning 17,500 - (9,825) (7,675) - -
Sanofi - Web Mobilisation 5,000 - - (5,000) - -
10,067
-
38,157
2,174
Sapphire Nurse Scheme 10,067 - - - -
StepTogether BenchmarkingTool 15,015 - - (15,015) -
The Estate of Nellie Terrett 38,157 - - - -
Tricia's Fund - LearningDisabilityProject 2,174 - - - -
Regional Projects -
3,685
4,534
DHSS Northern Ireland - 6,067 - (6,067) -
Education Fund(Basildon & Thurrock) 3,685 - - - -
MyFamily& Me Events 3,600 5,200 - (4,266) -
Regional Funds 3,502 9,331 - (9,427) - 3,406
Branches
Essex 5,191 195 - (51) - 5,335
Stoke 5,400 - - - - 5,400
West Midlands Forum - Shrewsbury 161 - - - - 161
128
Saffron Walden 128 - - - -
Restricted Funds 660,449
1,170,284
-
(237,396)
(17,000)
1,576,337
Total funds 3,672,153
5,307,506
-
(3,512,163)
(198,820)
5,268,676

Restricted income and expenditure, which is reviewed and monitored on a regular basis, represents monies received and expended on specific projects.

Transfers

HealthCoach

A decision was made to end the project in February 2022. The funder agreed to fund the Befriending project with the remaining money left £7,283.

People with Epilepsy and Learning Difficulties

A decision was made to end this project in August 2022. The funders agreed we could use the remaining monies to fund the Befriending project and go towards our Research projects.

A comparative for the prior year can be found in the 2021 annual accounts.

42

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Octavia Morris Memorial Fund

Funds being held to fund a campaign during 2015 - 2022 on the subject of epilepsy related death.

Research Funds

The balance retained on the general research fund is for social and medical research of a non-laboratory nature. £204,213 is retained specifically for Causes and Cures research. The Team Max fund is to support research into childhood epilepsies.

Befriending Project

The Epilepsy Action Befriending Scheme is a three-year pilot project that will enable people affected by epilepsy to access regular, one-to-one support by a trained staff member or volunteer. It will provide an informal ‘listening ear’, and aims to improve health and wellbeing, combat social isolation and loneliness and help people live well with epilepsy.

Colin Woods Memorial Fund

Money in this fund is invested by Epilepsy Action and income derived from the fund is used to support Epilepsy Action’s work, with a preference given to work in Northern Ireland and for educational work but the income is not restricted solely for these purposes.

Commissioning Advocates

Funds held to commission advocacy projects.

Epilepsy Action NI Counselling Project

The counselling service provides timely access to talking therapies for people living with epilepsy, their parents and carers in Northern Ireland. This includes: a 1-1 counselling service (via Zoom and / or telephone); therapeutic themed groups (online), resilience sessions and the development of training resources for counsellors.

Epilepsy Action Cymru Wellbeing Service

The counselling service provides timely access to talking therapies for people living with epilepsy, their parents and carers in Wales. This includes: a 1-1 counselling service (via Zoom and / or telephone); therapeutic themed groups (online), resilience sessions and the development of training resources for counsellors.

Epilepsy Alliance

Epilepsy Alliance is a collaboration between Epilepsy Action and the Epilepsy Nurse Association to provide a dedicated package of educational support for Epilepsy Specialist Nurses (ESNs) covering the UK.

Epilepsy Commissioning Toolkit

To create a single access point of resources to support effective commissioning for children and adults with epilepsy.

Family Support Project – Northern Ireland

Delivering a range of support for families across Northern Ireland.

Healthcoach

Telephone support for participants of Epilepsy and You.

Helpline services

Monies raised to enable the continuing running of the helpline.

Online Learning

Monies raised to enable to continuing running of the online training programmes.

People with Epilepsy and Learning Difficulties

To create resources for people with epilepsy and learning difficulties.

Sanofi - Web Mobilisation

To develop our website and make it mobile friendly.

Sapphire Nurse Scheme

To part fund epilepsy nurse posts in NHS services for adults or children with epilepsy.

43

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

Step Together Benchmarking Tool

To create an interactive tool to allow commissioners to gather information about services in their area.

The Estate of Nellie Terrett

Monies left to be spent in conjunction with Epilepsy Action Cardiff Branch.

Tricia's Fund - Learning Disability Project

To develop resources for people with epilepsy and learning disabilities.

DHSS Northern Ireland

Statutory funding towards salary costs of the NI manager.

Education Fund - Basildon & Thurrock

To deliver awareness sessions in Basildon and Thurrock.

My Family & Me Events

Money raised to support UK wide family events.

Regional Funds

Comprises funds raised in England, Wales and Northern Ireland that are to be spent specifically in those areas.

Essex Branch

Money raised by the Essex forum for local projects across Essex.

Stoke Branch

Money raised by the branch for local projects.

West Midlands Branch

Money raised by the branch for local projects.

Saffron Walden Branch

Money raised by the branch for local projects.

44

British Epilepsy Association Notes to the financial statements

for the year ended 31 December 2022

18. Indemnity Insurance

During the year the Association incurred costs for insurance cover against the possible loss arising to the Association from the neglect of defaults of its trustees or agents and to indemnify the trustees and other officers against the consequences of any neglect or default.

19. Financial Commitments

At 31 December 2022 the Association had total minimum lease payments under non-cancellable operating leases as follows:

non-cancellable operating leases as follows:
Land and buildings
Other
2022 2021 2022 2021
£ £ £ £
Expiry date
Within 1year 63,000 63,000 3,978 4,021
Between 2 and 5years 42,115 105,115 547 -

20. Analysis of Trustee remuneration and expenses, and the cost of key management personnel.

The key management personnel of the charity, comprise the trustees, the Chief Executive and the Deputy Chief Executive.

Total employee benefits, including employers NIC, of the key management personnel of the charity were £193,894 (2021: £163,807).

No charity trustee received payment for professional or other services supplied to the charity (2021: £nil). Travel and subsistence expenses during the year of £4,817 (2021: £714), were reimbursed to or paid on behalf of the 16 trustees who served during the year (see also page 7 of the Trustees' annual report).

21. Related Party Transactions

There were no related party transactions during the year (2021: £nil)

22. Financial Instruments

The carrying amount of the company’s financial instruments at 31[st] December 2022 were:

Financial Assets
Debt instruments measured at amortised cost
Financial Liabilities
Measured at amortised cost		 2022 2021
£
124,001
102,315
£
1,584,946
160,051

23. Capital Commitments

The Association has no capital commitments (2021: £246,960).

45

Glossary

The annual report and accounts have to provide detailed information to meet company and charity law. We know that many people will be unfamiliar with some of the words that we need to use. Here is a list of some of them with a brief explanation of what they mean.

Accruals basis Income and expenditure is counted when the money is earned and when costs happen,
ratherthanwhenthe money actuallyenters or leaves theaccount.
Accrued An expense that has happened but hasn’t been paid yet. For example, staff wages accrue
untiltheday they are paid.
Capitalgrowth An increaseinthemarket price ofanasset.
Designated funds If part of an unrestricted fund is set aside for a particular project, it may be designated as a
separatefund.
Donationsin kind A donationthatismade ingoods orservices,ratherthan money.
Ex officio When someone is a member of a committee without being elected to it but because of
anotherpost that theyhold.
Fixedassets Anasset witha useful life of more thanone year.
Listed investments Investmentslikeshares orbonds that areofficiallylistedona stock exchange fortrading.
Materiality An amount of money is assessed on its importance. For example, a debt of £10 might not
be a concern. However, a debt of £10,000 could make a big difference to the financial
healthofthe organisation.Itmakes amaterial difference to the accounts.
Realisedgains Again fromselling anassetfor more thanthe originalpurchase price.
Reconciliation An accounting process that compares two sets of records to make sure the numbers match
andare accurate.
Residualvalue The value ofanasset thatit couldbe sold forat the endof its useful life.
Restricted funds If someone gives money to the charity for a particular purpose, the charity has to use it for
that purpose.The use ofthemoneyisrestricted.
Straight line basis This is a way of spreading the cost of an asset equally over the number of years it is
expectedto beused.
Tangiblefixedassets Physicalassets,like a computersystemor improvements to a building.
Unrealisedgain/loss Again/lossfrom revaluing anasset at ahighervalue thanthe originalpurchase price.
Unrestricted funds If someone gives money to the charity without saying it is for a particular purpose, it can be
spent onany area ofwork forthe charity’s objects.The use ofthemoneyis unrestricted.

46