Ctnnb1 Trust
- Country
- England & Wales
- Charity number
- 1219026
- Status
- Registered
- Registered
- July 28, 2026
- Legal form
- CIO
Address
- Address
- 11 Vaisey Close
Tring
HP23 4GX
Contact
- Phone
- 07725 194461
- jodie.lambert@icloud.com
Activities
Objects: To Relieve Sickness And Promote And Protect The Physical And Mental Health Of Individuals Diagnosed With Ctnnb1 Syndrome, Including Their Parents And Carers In Particular, But Not Exclusively, By: (A) Supporting Research Into The Nature, Causes, Diagnosis, Prevention, Treatment And Potential Cure Of Ctnnb1 Syndrome, Ensuring The Useful Results Of Such Research Are Disseminated To The Public; (B) Providing Financial Assistance, Support, Education, Training And Practical Advice Including For Those Involved In The Diagnosis, Care And Treatment Of Individuals With Ctnnb1 Syndrome; And(c) Raising Public Understanding And Awareness Of All Aspects Of Ctnnb1 Syndrome Including Its Causes, Symptoms And Treatment.
Classification
- How
- Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind
Geography
- Region
- Throughout England And Wales
Trustees
| Name |
|---|
| Dr Jodie Lambert (Chair) |
| Craig Bevan |
| Lisa Stubbs |
| Paul Stubbs |