OpenCharities

The Desmoplastic Small Round Cell Tumour Charity Limited

The Desmoplastic Small Round Cell Tumour Charity, Capture

Country
England & Wales
Charity number
1216294
Status
Registered
Registered
Dec. 22, 2025
Legal form
Charitable company

Address

Address
18 BROOKFIELD FOLD
HAMPSTHWAITE
HARROGATE
HG3 2FZ

Contact

Phone
07305190656
Email
[email protected]

Activities

Objects: To Advance The Health Of Those Diagnosed With Desmoplastic Small Round Cell Tumour (Drsct) By:a) Providing A Centralised Resource For Physicians Globally By Way Of A Website Collating All Previous And Current Research In To Drsct And To Keep This Maintained And Up To Date; B) Funding Research In To Kinder And Better Treatments Such As Red Light Therapy For Ulcer Treatments, Which Are Common Side Effect Of Chemotherapy Treatment For Dsrctto Advance The Education Of The Public Generally And Specifically Families Of Those Affected By Desmoplastic Small Round Cell Tumour By: A) Providing A Centralised Resource For Families Globally, By Way Of A Website With Information About Drsct And To Keep This Maintained And Up To Dateb) Supporting Families By The Provision Of Whatsapp Support Groups And Zoom Groups For Affected Families

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Region
Throughout England And Wales

Trustees

Name Appointed
Victoria Robayna (Chair)
Aaron Robayna Thompson
Amanda Dudley Feb. 18, 2025
Helen Barbara Taylor
Kaye Walker Feb. 18, 2025