OpenCharities

Citrin Foundation

Citrin Foundation (UK)

Country
England & Wales
Charity number
1216137
Status
Registered
Registered
Dec. 10, 2025
Legal form
Charitable company

Address

Address
2 Allen Street
LONDON
W8 6BH

Contact

Phone
07434900990
Email
[email protected]

Activities

Citrin Foundation's activities are directed towards the relief of sickness and the promotion of health for people affected by Citrin Deficiency and related rare diseases by funding scientific and medical research, raising awareness among professionals and the public, and providing information, guidance and support to patients and their families.

Objects: To Relieve Sickness And Promote And Protect The Health Of Those Suffering From Citrin Deficiency And Other Related Rare Diseases Including In Particular By: 1. Making Grants And Donations To Fund Research Into All Aspects Of Citrin Deficiency And Ensuring The Useful Results Of Such Research Are Disseminated; 2. Raising Awareness Of Citrin Deficiency Among Those Who Diagnose, Treat And Care For Those With The Condition To Improve Disease Management And Interactions Between Doctors, Medical Staff, Patients And Their Families Or Carers; 3. Supporting Patients And Their Families Or Carers Including Through The Provision Of Information And Advice And Raising Awareness Of Citrin Deficiency And Its Impact; 4. Promoting Collaboration Among Doctors Who Treat Citrin Deficiency And The Relevant Researchers To Encourage The Sharing Of Clinical Data And Latest Scientific Findings For Better Disease Management; And 5. Leveraging The Charity’s Knowledge In Tackling Citrin Deficiency To Drive Innovations In The Rare Disease Field In Order To Benefit More Patients Who Suffer From Rare Diseases.

Classification

How
Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Country
Australia, Canada, Japan, Spain, Switzerland, Taiwan, United States
Region
Throughout England And Wales

Trustees

Name Appointed
Fa Yu (Chair) Sept. 6, 2024
Philippa Alice May Bounds
Stephen Leon Yang Dec. 10, 2025
Yen How Tai Sept. 6, 2024