# VWD ALLIANCE

## Details

- **Country:** England & Wales
- **Charity number:** 1215242
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Oct. 6, 2025
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1215242


## Contact

- **Address:** FLAT 2 SAPPHIRE COURT, OCEAN WAY, SOUTHAMPTON
- **Postcode:** SO14 3JW
- **Phone:** 07543782573
- **Email:** hello@vwdalliance.org
- **Website:** www.vwdalliance.org



## Activities

**Objects:** THE OBJECT OF THE CIO IS: FOR THE PUBLIC BENEFIT, THE ADVANCEMENT OF HEALTH AND THE RELIEF OF THOSE IN NEED AMONG INDIVIDUALS AFFECTED BY VON WILLEBRAND DISEASE (VWD), IN PARTICULAR BUT NOT EXCLUSIVELY BY: 1. PROVIDING INFORMATION, SUPPORT, GUIDANCE AND RESOURCES TO PATIENTS, CAREGIVERS, AND FAMILIES TO HELP THEM UNDERSTAND AND MANAGE VWD. 2. ADVANCING EDUCATION AND AWARENESS OF VWD AMONG HEALTHCARE PROFESSIONALS AND THE WIDER PUBLIC. 3. COLLABORATING WITH ORGANISATIONS, MEDICAL BODIES, CHARITABLE TRUSTS AND RESEARCH INSTITUTIONS TO PROMOTE, FINANCE, OR SUPPORT RESEARCH, EDUCATION, AND AWARENESS RELATING TO VWD.

**Activities:** 1. Providing information, support, guidance and resources to patients, caregivers, and families to help them understand and manage VWD.2. Advancing education and awareness of VWD among healthcare professionals and the wider public.3. Collaborating with organisations, medical bodies, charitable trusts and research institutions to promote, finance, or support research, education, and awareness r




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** General Charitable Purposes
- **Who:** Children/young People, Other Defined Groups



## Areas of operation

- Throughout England




## Trustees

- **Dr Catherine Wilder** (Chair) — appointed Oct. 14, 2024
- Cassie Harris — appointed March 10, 2026
- Debra Louise Clapham — appointed Oct. 14, 2024
- Emma Baker — appointed Oct. 14, 2024
- Sonia Kumar-Brown — appointed Oct. 14, 2024
- Sunjeev Maini SM — appointed Oct. 14, 2024