# THE PAGET'S DISEASE OF BONE ASSOCIATION

## Details

- **Country:** England & Wales
- **Charity number:** 1213575
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 9, 2025
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1213575


## Contact

- **Address:** THE PAGETS ASSOCIATION, JACTIN HOUSE, 24 HOOD STREET, MANCHESTER
- **Postcode:** M4 6WX
- **Phone:** 01617994646
- **Email:** helpline@paget.org.uk
- **Website:** https://paget.org.uk/



## Activities

**Objects:** TO PRESERVE AND PROTECT THE HEALTH OF PERSONS SUFFERING FROM PAGET'S DISEASE OF BONE AND THEIR FAMILIES BY:A) PROVIDING INFORMATION AND SUPPORT, B) RAISING AWARENESS ABOUT PAGET'S DISEASE OF BONE BOTH WITHIN THE MEDICAL AND ALLIED HEALTH PROFESSIONS, AND AMONGST THE GENERAL PUBLIC, C) SUPPORTING AND FUNDING RESEARCH PROJECTS IN THE FIELD OF PAGET'S DISEASE OF BONE OR ITS TREATMENT,(D) WORKING AND COORDINATING WITH OTHER ORGANISATIONS (CHARITABLE, VOLUNTARY, GOVERNMENTAL OR OTHERWISE) TO SUPPORT THOSE AFFECTED BY RARE BONE DISORDERS; AND (E) UNDERTAKING ANY OTHER ACTIONS AND/OR OBJECTS IN SUPPORT OF PERSONS SUFFERING FROM PAGET'S DISEASE OR MAY BE AT RISK OF SUFFERING FROM PAGET'S DISEASE, THEIR FAMILIES AND CARERS.

**Activities:** The Paget's Association is the only UK charity dedicated to supporting individuals affected by Paget's disease of bone. It offers information and support to patients, carers, and health professionals, funds research, and raises awareness about the condition




## Classification

- **How:** Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Throughout England And Wales




## Trustees

- **Professor Stuart Hamilton Ralston** (Chair) — appointed June 9, 2025
- Alan Martin — appointed June 9, 2025
- Amanda Sherwood — appointed June 9, 2025
- Dr Faizanur Rahman — appointed June 9, 2025
- Dr Sheelagh Farrow — appointed June 9, 2025
- Eve Marcia Berry — appointed June 9, 2025
- Kely Burman — appointed June 9, 2025
- Mohamed El Erian — appointed June 9, 2025
- Professor Jeremy Mark Wilkinson — appointed June 9, 2025
- Professor Robert Graham Goodwin Russell — appointed June 9, 2025
- Robert Layfield — appointed June 9, 2025