OpenCharities

Action For Bpan

Country
England & Wales
Charity number
1210529
Status
Registered
Registered
Oct. 17, 2024
Legal form
CIO

Address

Address
WESTFIELD LODGE
OLD MILL LANE
BRAY
MAIDENHEAD
SL6 2BG

Activities

Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.

Objects: The Objects Of The CIO Are To Preserve And Protect The Good Health Of Those Suffering From Beta Propeller Protein-Associated Neurodegeneration (Bpan) By:-Making Grants To Vetted Medical Professionals To Carry Out Research For A Cure Or Treatment Of The Condition And To Provide Support To Caregivers Of Those With Beta-Propeller Protein-Associated Neurodegeneration (Bpan);providing Useful Information From UK Bpan Specialist Doctors, Signposting And Helping Navigate The Support Available By Sharing Personal Experiences To Ensure They Can Access Services That May Be Beneficial To Them; Andpromoting Awareness And Advance The Education Of Beta-Propeller Protein[1]associated Neurodegeneration (Bpan) For The General Public And Health Professionals Using A Variety Of Different Mediums.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities, The General Public/mankind

Areas of operation

Country
Australia, Canada, France, Germany, Guernsey, Isle Of Man, Italy, Jersey, Netherlands, Northern Ireland, Scotland, Spain, Sweden, Switzerland, United States
Region
Throughout England And Wales

Trustees

Name Appointed
Kelly Ann Sayers Ms (Chair) Sept. 16, 2024
Nicole Harper Sept. 16, 2024
Schalk Visser Sept. 16, 2024
Susannah Kemmis Sept. 16, 2024