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2025-04-30-accounts

Trustees' Annual Report for the period

From

Period start date Period end date 22 07 2024 30 04

30 04 2025

To

Section A Reference and administration details

Charity name Other names charity is known by Registered charity number (if any)[1209225 ]

Get On Down’s

Charity's principal address 148 Stanley Road, Carshalton Surrey

Postcode SM5 4LS

Names of the charity trustees who manage the charity

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Dates acted if not for whole Name of person (or body) entitled
Trustee name Office (if any)
year to appoint trustee (if any)
1 Lucienne Davies Chair
2 Joanne Sanford
3 Laura Phillips
4 Beth Johnsson
5 Chloe Stones
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10
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12
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14
15
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Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Type of adviser Name Address Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

CIO Foundation Constitution adopted July 2024

Constitution of a Charitable Incorporated Organisation

Appointed by the chair and re-elected annually at the AGM held in Trustee selection methods November

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

Section C Objectives and activities

To relief of those in need by reason having a relative with or having Down syndrome in the London Borough of Sutton and surrounding areas through the provision of a group that provides up to date knowledge about life with Down syndrome, friendship and support. To provide comprehensive support services, including counselling, information, and resources, to Summary of the objects of the individuals with Down syndrome and their families, aiming to enhance their overall well-being and quality charity set out in its of life. Classification: What governing document

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Get on Down's is a parent lead group who meet weekly giving parents and carers a safe space to socialise, share experiences and information, receive support and advice about with Down syndrome. A weekly peer support group meets in a purpose-built location for children with additional needs.

Advice is given surrounding parenting a child with Down syndrome by the chair of Get on Down's, one other trustee and other experienced parents.

Weekly meet ups are a chance for friendships to be made with people in a similar situation, reducing isolation and family stress. It is also chance for any children who attend to make friends with actual peers.

We also provide a monthly pamper session with a local aromatherapist as we know how stressful life can be with a child with Down syndrome, especially in the early days with multiple hospital appointments.

Support with EHCP’s and DLA applications, advocacy support at meetings and tribunals.

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Maternity support and guidance in two local hospitals, the development of Down Syndrome Champions, provision of new baby packs for new and expectant parents of children with Down syndrome. Training concerning the importance of positive language and promotion of best practice

Collaboration with the local authority to strengthen and development Down syndrome specific local education pathways.

The trustees confirm that they have had due regard to the guidance issued by the Charity Commission on public benefit and are satisfied that the activities of the charity are carried out for the public benefit. People with Down syndrome and families of children with Down syndrome remain at the heart of all our charitable activities and decision-making.

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

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Section D Achievements and performance

Summary of the main
achievements of the charity
during the year		 During the year Get on Down’s successfully transitioned from an
informal parent-led group to a registered charity, strengthening
governance, sustainability, and opportunities for future growth.
To celebrate becoming a charity we had a slight rebrand to reflect the
growing status of our organisation as well as a launch party where we
invited all of our family members.
We are a parent-led group that meets weekly, providing parents and carers
of children with Down syndrome with a safe, supportive environment to
socialise, share experiences and information, and receive peer support and
advice. These regular sessions help reduce isolation, improve wellbeing,
and strengthen community connections for families who may otherwise
feel excluded from mainstream activities.
In addition to ongoing social and emotional support, the charity raises
awareness of Down syndrome within the local community and provides
regular social opportunities for both parents and whole families.
Recognising that raising a child with additional needs can cost
significantly more than raising a neurotypical child, the charity is pleased
to offer many of its services and activities free of charge or at reduced
cost through grant funding and donations.
Monthly aromatherapy sessions are provided to support parental
wellbeing, particularly for new parents, offering opportunities for
relaxation and respite which contribute positively to mental health.
During the year, the charity delivered several community events,
including an annual family picnic in a local park, which included
provision of an ice cream van and was well attended by families,
including siblings and young carers. A Christmas event was also
delivered, free of charge to families at a financially demanding time of
year, and was greatly valued by attendees.
We celebrated Down Syndrome Awareness Week with a social gathering
where family members were invited alongside the mayor, local MP,
members of the council, local authority, therapists, teaching assistants and
nursery staff. It was not only a time where families could socialise but
also for local departments to meet families on an informal basis. We also
had a cake sale and hamper raffle to raise funds.
One trustee has taken on the role of Down Syndrome Champion Co-
ordinator, recruiting and supporting maternity professionals to become
Down Syndrome Champions. A training programme is planned which
will raise awareness of the realities of having a baby with Down
syndrome and emphasise the importance of positive, balanced
communication when delivering a diagnosis to expectant and new parents.
The charity also provides local hospitals with maternity information packs
for new and expectant parents, signposting them to accurate information
and local support following a diagnosis.
The charity continues to support families with Education, Health and Care
Plan (EHCP) processes and Disability Living Allowance (DLA)
applications, including attending meetings and reviewing documentation.
Approximately 20 families per year receive this support. Families

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Section D Achievements and performance

consistently report that without the knowledge and expertise provided by the charity they would not know how to navigate these complex systems or access appropriate support.

Get On Down is also working in partnership with the local authority to co-produce a secondary school education pathway, focusing on what young people with Down syndrome require to reach their full potential in education. An accompanying eBook and best-practice guidance are currently in development.

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Section E Financial review

At present the company has no regular overheads and the need for Brief statement of the reserves is minimal. The trustees have agreed that the charity will charity’s policy on reserves maintain a minimum financial reserve of:

£5,000 (Five Thousand Pounds).

This level has been determined as appropriate based on the size, activities, and financial risk profile of the organisation. The reserve is intended to cover essential operating costs and provide short-term financial stability if income is reduced or delayed.

Details of any funds materially in deficit

None

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) J Stanford J Stanford (Feb 26, 2026 16:49:49 GMT) Joanne Stanford Full name(s) Lucienne Davies Position (eg Secretary, Chair, Chair etc)

Trustee

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Date 2610212026 TAR March 2012

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Get on Down's No (if any)
Receipts and payments accounts CC16a
For the period 22/07/2024 30/04/2025
To
from
Section A Receipts and payments
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £
A1 Receipts
25/09/2024 7,984.00 - - 7,984 -
09/10/2024 542 542
27/11/2024 37 37
27/11/2024 25 25
02/12/2024 1 1
04/12/2024 2 2
09/12/2024 92 92
19/12/2024 97 97
19/12/2024 144 - - 144 -
23/12/2024 10 - - 10 -
21/01/2025 900 - - 900 -
05/02/2025 5 5
10/02/2025 245 245
17/03/2025 612 612
20/03/2025 101 101
24/03/2025 369 369
31/03/2025 450 450
14/04/2025 540 540
15/04/2025 5 5
15/04/2025 5 5
16/04/2025 5 5
17/04/2025 5 - - 5 -
23/04/2025 5 - - 5 -
- - - - -
- - - - -
Sub total (Gross income for
AR) [ 12,181 ] - - 12,181 -
A2 Asset and investment sales,
(see table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 12,181 - - 12,181 -
A3 Payments
Insurance 96 - - 96 -
Outsourced services - massage 960 - - 960 -
Advertising & logo design 743 - - 743 -
Event costs 371 - - 371 -
Training costs 200 - - 200 -
Post & stationery 8 - - 8 -
Outings 168 - - 168 -
Fees & other costs 56 - - 56 -
- - - - -
Sub total [ 2,603 ] - - 2,603 -
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - - -
Total payments 2,603 - - 2,603 -
Net of receipts/(payments) 9,578 - - 9,578 -
A5 Transfers between funds - - - - -
A6 Cash funds last year end - - - - -
Cash funds this year end 9,578 - - 9,578 -
CCXX R1 accounts (SS) 1 22/02/2026
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CCXX R2 accounts ISSI 2210212026

Section B Statement of assets and liabilities at Section B Statement of assets and liabilities at the end of the period
Categories
Signed by one or two trustees on
behalf of all the trustees
B1 Cash funds
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B5 Liabilities
B3 Investment assets		 Signature
Details
Bank account
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details
Details
Details
J Stanford (Feb 24, 2026 18:31:48 GMT)
J Stanford		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
9,578
-
-
-
-
-
9,578
-
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
-
-
-
Print Name
Lucienne Davies
Joanne Stanford		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
23/02/2026
24/02/2026

CCXX R3 accounts (SS)

22/02/2026

3