# PECTUS MATTERS

## Details

- **Country:** England & Wales
- **Charity number:** 1208486
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 31, 2024
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1208486


## Contact

- **Address:** Society for Cardiothoracic Surgery, ROYAL COLLEGE OF SURGEONS ENGLAND, 38-43 LINCOLN'S INN FIELDS, LONDON
- **Postcode:** WC2A 3PE
- **Phone:** 02074053474
- **Email:** info@pectusmatters.co.uk
- **Website:** pectusmatters.co.uk



## Activities

**Objects:** 3.1 THE OBJECTS OF THE CIO ARE FOR THE PUBLIC BENEFIT TO RELIEVE THE NEEDS OF PEOPLE SUFFERING FROM AND AFFECTED BY PECTUS MALFORMATIONS OR DEFORMITIES, THEIR FAMILIES AND CARERS IN PARTICULAR BUT NOT EXCLUSIVELY BY:3.1.1 PROVIDING OR ASSISTING IN PROVIDING INFORMATION AND SOURCES OF ADVICE ABOUT PECTUS MALFORMATIONS AND DEFORMITIES;3.1.2 ADVANCING EDUCATION AND KNOWLEDGE ABOUT PECTUS MALFORMATIONS AND DEFORMITIES WITH THE AIM OF RAISING AWARENESS OF THEM AND IMPROVING STANDARDS OF CARE FOR THOSE SUFFERING FROM THEM;3.1.3 SUPPORTING RESEARCH INTO THE CAUSES, PREVENTION AND TREATMENT OF PECTUS MALFORMATIONS AND DEFORMITIES AND DISSEMINATING THE RESULTS OF SUCH RESEARCH; AND3.1.4 PROVIDING FINANCIAL ASSISTANCE TO SUPPORT TRAVELLING EXPENSES AND ACCOMMODATION COSTS INCURRED BY PATIENTS RECEIVING TREATMENT FOR PECTUS MALFORMATIONS OR DEFORMITIES

**Activities:** Pectus Matters is a charity that supports and advocates for patients with pectus conditions in the UK. We do this by offering advice, creating learning materials, attending meetings with key stakeholders and decision-makers, and creating patient-centred projects where we use our charitable funds to directly support patients with pectus conditions. We are based remotely across the UK.




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** The General Public/mankind



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees | Accounts |
|---|---|---|---|---|---|
| Dec. 31, 2024 | £3926 | £1531 |  -  |  -  |  |




## Trustees

| Name | Role | Appointed |
|---|---|---|
| **SIMON WILLIAM HENRY KENDALL** | Chair | May 31, 2024 |
| Bazil Shahzad |  | Feb. 20, 2026 |
| Ellie Musgrave |  | May 31, 2024 |
| REVD BARRY EDWARD NICHOLS FCA |  | May 31, 2024 |
| Rachel Royan |  | Jan. 13, 2025 |
| Sarah Lynne Evans |  | May 31, 2024 |