**Registered charity number: 1207029 Company number: CE035255** ## **PEM Friends** **Trustees’ report and accounts** **for the period from 14[th] February to 31st December 2024** ## **PEM Friends Report of the trustees for the period 14[th] February 2024 to 31 December 2024** The trustees present their report and unaudited financial statements for the period 14th of February 2024 to 31st of December 2024. As the charity has an income of less than £25,000, the accounts have not been independently examined or audited. ## **Reference and administrative information** **Charity name:** PEM Friends **Charity registration number:** 1207029 ## **Principal office:** c/o SWEET BRIARS COTTAGE HOGGESTON BUCKINGHAM MK18 3LQ ## **Trustees:** Trina Harris Chair (appointed 31/10/2024) John Kendrick Treasurer (appointed 12 November 2024) Umber Khairi Kalpesh Patel Treasurer (resigned as treasurer 11[th] November 2024) Isobel Davies Chair (resigned 31/10/2024) Julie Martin Ingrid Thompson ## **Bankers** National Westminster bank plc Chatham Customer Service Centre, Western Avenue, Waterside Court, Chatham Maritime, Kent, **PEM Friends Report of the trustees for the period 14[th] February 2024 to 31 December 2024** ## **Structure, governance and management** The company is a Charitable Incorporated Organisation formed on 14[th] February 2024 and registered as a charity with the Charities Commission on 15[th] February 2024. ## I **nduction and training of trustees** Trustees are encouraged to read the online information on the Charity Commission website relating to their responsibilities. ## **Organisational structure, including recruitment and appointment of trustees** The charity is strategically managed by a council of trustees who are recruited for the support, knowledge and experience that they can bring. The council is supported by a small group of medical advisers. All trustees and advisers are volunteers with no payment for their services. ## **Aims, objectives and activities** ## **Aims** The aims of the charity are set out in the governing document as: _TO RELIEVE THE NEEDS OF INDIVIDUALS DIAGNOSED WITH PEMPHIGUS AND PEMPHIGOID, AND BY EXTENSION THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF SUPPORT AND INFORMATION RELATING TO THESE AUTOIMMUNE DISEASES AND BY RAISING AWARENESS AMONGST THE WIDER PUBLIC_ ## **Objectives** The objectives relate to delivering support and advice to Pem sufferers and/or carers via a private Facebook group and increasing awareness amongst the medical profession in order to improve early diagnosis. ## **Activity of volunteers** The charity is run entirely by volunteers of which there were 9 active at the year-end. ## **Activities undertaken for public benefit in relation to objects** In planning our activities for the year, we kept in mind the Charities Commission’s guidance on public benefit and the work was planned with reference to the trustees and monitored through the council meetings of trustees ## **Achievements and performance** During the period, - The charity continued to provide support to people suffering from the rare skin diseases pemphigoid/pemphigus via its website and maintained a private Facebook group of circa 850, in which sufferers and carers can exchange experience and knowledge. - A substantial upgrade to the charity’s website went live to provide a comprehensive database of knowledge, treatments and support structure for disease sufferers and their carers. - The website database has links through to the British Association of Dermatologists (BAD), numerous medical research papers and reports and current news features relating to the activities of the charity. - The half-yearly magazine, PEM Lives, was published with articles providing an insight into all aspects of PEM diseases, including examples of lived experience. - Charity trustees and volunteers attended medical conferences to further raise awareness of these diseases including the annual BAD conference. ## **Financial** The charity is reliant upon income raised from donations and sponsored activities plus the occasional grant. Total income of £6,420 included a grant from the British Association of Dermatologists of £584 to support a first annual meeting for which we are very grateful. We are also very grateful when we are nominated as the charity of choice in remembrance of a deceased family member at what is a difficult time. Expenditure supports the cost of the printing and distribution of the PEM Lives magazine (£1.9k) and the website and systems (£1k). Also, it also includes the cost of attendance at the various conferences noted above (£1.2k) keeping the medical profession aware of the issues relating to the rare PEM diseases and encouraging earlier diagnosis of the related symptoms, which is a key element of our mission of support to sufferers. Overall, the charity is in a sound financial position. ## **Reserves policy** The charity is dependent upon donations and fundraising activities. The trustees have built up the unrestricted reserves across the period and are able to meet the financial commitments that the charity plans for the year ahead. As the charitable Incorporated organisation has an income less than £25,000, its accounts have not been independently examined or audited? ## **Approved by the trustees at a Council meeting on 23[rd] September 2025 and signed on their behalf by:** Trina Harris (Chair) ## **PEM Friends Financial report of the trustees for the period 14[th] February 2024 to 31 December 2024** ||**Unrestricted**
**funds**|**Restricted**
**funds**|**Total funds**| |---|---|---|---| |**Note**|**£**|**£**|**£**| |**Receipts**|||| ||||| |Donatons|5,336||5,336| |Britsh Associaton of Dermatologists||584|584| |Other|500||500| ||||| |**Total Income**|**5,836**|**584**|**6,420**| |**Payments**|||| |**_Charitable expenditure:_**|||| |Computer/internet/website|1,371|935|2,306| |Printng/postage/publicitymaterials|1,954||1,954| |Conference costs|1,144||1,144| |Travel/Insurance/sundries|651|584|1,235| ||||| |**Total expenditure**|**5,120**|**1,519**|**6,639**| |**Net income/ (outlow)**|**716**|**(935)**|**(219)**| |**Bank & cash balance at start ofperiod**|||**0**| |**Transfer from unincorporated associaton**|||**10,056**| |**Bank & cash balance at end of theyear**|||**9,837**| ## **Statement of Assets and Liabilities as at 31[st] December 2024** ## **Liquid funds** Cash at bank - current account £ 9,837 - deposit account 0 ## **Liabilities** There were no liabilities incurred as at 31[st] December 2024 **Approved by the Trustees on 23/09/2025 and signed on their behalf by: Trina Harris** ## **PEM Friends Notes to the financial report for the period ended 31 December 2024** ## **1** Accounting basis The financial statements have been prepared on a receipts and payments basis. ## **2** Trustees' expenses Expenditure included £448 for trustees’ out of pocket expenses. No other payments were made to the trustees. ## **3** Unrestricted cash reserve The unrestricted cash reserves at the year-end were £9,837 ## **4** Restricted There were no restricted reserves at the end of year-end, although a laptop was bought in anticipation of a grant of £935 from the British Association of Dermatologists, which was received in January 2025.