# JOANNA RUTH BELL FOUNDATION

## Details

- **Country:** England & Wales
- **Charity number:** 1207023
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Feb. 14, 2024
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1207023


## Contact

- **Address:** Mardale, Manor Road, Wantage
- **Postcode:** OX12 8DW
- **Phone:** 07549764943
- **Email:** info@jrbfNF1.org
- **Website:** https://joannaruthbellfoundation.org/



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH AMONG PEOPLE SUFFERING FROM NEUROFIBROMATOSIS (NF) AND NF-RELATED DISEASES THROUGH:4.1 THE PROVISION OF FUNDING TO ADVANCE MEDICAL RESEARCH INTO, AND THERAPEUTICS AND TREATMENTS FOR, NF AND NF-RELATED DISEASES (IN PARTICULAR NEUROFIBROMATOSIS TYPE 1); AND4.2 THE PROVISION OF ASSISTANCE AND SUPPORT FOR SUCH CHARITABLE PROJECTS, SERVICES, AND ACTIVITIES WHICH PROVIDE RELIEF TO PEOPLE SUFFERING FROM NF AND NF-RELATED DISEASES.

**Activities:** JRBF focuses on helping people with Neurofibromatosis (NF) with a specific focus on Neurofibromatosis type 1 (NF1) in two main ways: 1) Advancing medical research and 2) providing support and assistance for projects and activities that directly aid and provide relief to individuals.




## Classification

- **How:** Makes Grants To Organisations, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives



## Areas of operation

- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £40596 | £48963 | — | — |



## Trustees

- **Dr Joel Richard Bell** (Chair) — appointed Nov. 3, 2023
- Dr Leslie Anne Duncan — appointed Sept. 22, 2024
- Dr William Joel Waldock — appointed Sept. 6, 2025
- Ethan Gottlieb Kuhn — appointed Nov. 3, 2023