Country

England & Wales

Charity number

1205650

Status

Registered

Registered

Nov. 9, 2023

Legal form

CIO

Address

Contact

Phone

07354486586

Email

[email protected]

Website

bdfa-uk.org.uk

Activities

A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease

Objects: The Objects Of The CIO Are:to Preserve And Protect The Health And Wellbeing Of Persons Affected By All Types Of Neuronal Ceriod Lipofuscinosis (ncl) Commonly Known As Batten Disease.to Advance The Education Of The Medical Profession And The General Public On The Subject Of Batten Disease And Its Implications For The Family, In Particular But Not Exclusively By Supporting And Conducting Research Into The Management Of Batten Disease And To Publish The Useful Results Thereof And To Support Organisations Promoting Research Into Batten Disease.

Classification

How

Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research

What

Education/training, The Advancement Of Health Or Saving Of Lives, Disability

Who

Children/young People, People With Disabilities

Areas of operation

Country

Northern Ireland, Scotland

Region

Throughout England And Wales

Finances

Trustees

Nearby

• Open Wing Trust 0.1 mi
• The Bradford Chorale 0.1 mi
• The Church School Baildon PTFA 0.1 mi
• Baildon Village Pre School 0.1 mi
• Aireborough Historical Society 0.2 mi

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