## **Trustees' Annual Report for the period**
Period start date Period end date 01 06 2024 31 05 2025
**From**
**To**
## Section A Reference and administration details
**Charity name Other names charity is known by Registered charity number (if any) 1204985**
CHAMP1 UK
**Charity's principal address** CHAMP1 UK, 77 Hardy Crescent
Wimborne Dorset **Postcode BH212AR**
## **Names of the charity trustees who manage the charity**
|**Trustee name**|**Office (if**
**any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|
|Scott Robin Hutchings||||
|Sarah Ruth Hutchings||||
|JeffreyDean D’Angelo||||
|Lorna Rose Blacklidge||||
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## **Names of the trustees for the charity, if any, (for example, any custodian trustees)**
**Name Dates acted if not for whole year**
March **2012**
**TAR**
1
## **Names and addresses of advisers (Optional information)**
**Type of adviser Name Address**
## **Name of chief executive or names of senior staff members (Optional information)**
## **Section B Structure, governance and management**
## **Description of the charity’s trusts**
Type of governing document
Constitution
- (eg. trust deed, constitution)
CIO - FOUNDATION How the charity is constituted
- (eg. trust, association, company)
Elected by board members Trustee selection methods
- (eg. appointed by, elected by)
## **Additional governance issues (Optional information)**
You **may choose** to include additional information, where relevant, about:
- policies and procedures adopted for the induction and training of trustees;
- the charity’s organisational structure and any wider network with which the charity works;
- relationship with any related parties;
- trustees’ consideration of major risks and the system and procedures to manage them.
## **Section C Objectives and activities**
**Summary of the objects of the charity set out in its governing document**
The improvement of the lives of those affected by CHAMP1 disorders. To advance clinical research, effective treatment and early detection. To increase public awareness. To provide family support and patient advocacy.
March **2012**
**TAR**
2
In accordance with its charitable objectives, CHAMP1 UK has continued to support individuals and families affected by CHAMP1-related disorders by providing information, advocacy, and a supportive community.
Over the past year, CHAMP1 UK has undertaken the following key activities for public benefit:
**Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)**
**Support and Community Building:** Welcoming new families, arranging family meet-ups, and facilitating connections through support groups. A major activity this year involved helping to arrange and facilitate the CHAMP1 global conference in collaboration with other CHAMP1 nonprofits from the US and EU.
**Raising Awareness:** Engaging in awareness campaigns, specifically orchestrating CHAMP1 Awareness Day (March 20th), to improve diagnosis and public understanding.
**Research and Advocacy:** Gathering information to help progress scientific research by collaborating closely with families, researchers, and our partner CHAMP1 non-profits globally.
**Fundraising Initiatives:** Continuing dedicated fundraising efforts and actively supporting individuals in the community who wish to fundraise for the charity.
The trustees confirm that they have had due regard to the Charity Commission's guidance on public benefit when reviewing the charity's aims and objectives and in planning its activities. Every initiative undertaken by CHAMP1 UK has been designed to provide direct and meaningful benefits to those affected by CHAMP1.
## **Additional details of objectives and activities (Optional information)**
You **may choose** to include further statements, where relevant, about:
- policy on grantmaking;
- policy programme related investment;
- contribution made by volunteers.
March **2012**
**TAR**
3
Section D Achievements and performance
**Summary of the main achievements of the charity during the year**
During the 2024-2025 period, CHAMP1 UK has made significant progress in supporting families, increasing global awareness of CHAMP1, and driving forward collaborative research efforts.
- **Support & Community:** The charity successfully welcomed several newly diagnosed families into the community, providing them with crucial support and guidance during a life-changing time. We arranged various family meet-ups to foster connection and shared experiences. A standout achievement this year was our pivotal role in helping to organise the global CHAMP1 conference, uniting experts, researchers, and families in partnership with US and EU CHAMP1 organisations.
- **Awareness & Advocacy:** CHAMP1 UK orchestrated a highly impactful CHAMP1 Awareness Day on March 20th. This campaign successfully secured widespread coverage across radio broadcasts, online platforms, and newspapers, significantly amplifying public knowledge of the condition and providing a platform for families to share their stories.
- **Research & Medical Engagement:** The charity actively helped gather vital information to progress scientific research into CHAMP1. By collaborating with our families, dedicated researchers, and international CHAMP1 non-profits, we ensured that the patient voice remains central to advancing potential treatments and expanding clinical knowledge.
- **Fundraising & Financial Growth:** We continued our core fundraising efforts throughout the year to support our services and awareness programmes. A key focus has been actively assisting and empowering members of our community who generously chose to organise independent fundraising events on our behalf.
March **2012**
**TAR**
4
## **Section E Financial review**
**Brief statement of the charity’s policy on reserves**
CHAMP1 UK aims to maintain a level of reserves that ensures financial stability and allows the charity to continue its work in supporting families, raising awareness, and facilitating research. Our current focus remains on building sustainable income streams to support future activities. The trustees will regularly review the reserves policy to ensure that funds are managed responsibly and in line with the charity's objectives, with the aim of establishing a designated reserve fund to cover operational costs and unforeseen expenses.
**Details of any funds materially in deficit**
N/A
## **Further financial review details (Optional information)**
You **may choose** to include additional information, where relevant about:
- the charity’s principal sources of funds (including any fundraising);
- how expenditure has supported the key objectives of the charity;
- investment policy and objectives including any ethical investment policy adopted.
## **Section F Other optional information**
## **Section G Declaration**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)**
Sarah Ruth Hutchings **Full name(s)** Scott Robin Hutchings **Position (eg Secretary, Chair,** Chair Board member **etc) Date** 23/03/2026
March **2012**
**TAR**
5
**Charity Name No (if any) CHAMP1 UK 1204985**
|**1204985**
**CHAMP1 UK**
**No (if any)**
**Charity Name**|**1204985**
**CHAMP1 UK**
**No (if any)**
**Charity Name**|**1204985**
**CHAMP1 UK**
**No (if any)**
**Charity Name**|**1204985**
**CHAMP1 UK**
**No (if any)**
**Charity Name**|
|---|---|---|---|
|**Receipts andpayments accounts**||||
|**For the period**
**from**|01/06/2024
Period start date|**To**|31/05/2025
Period end date|
## **CC16a**
## **Section A Receipts and payments**
|**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest**
**£**|**Restricted**
**funds**
**to the nearest £**|**Restricted**
**funds**
**to the nearest £**|**Endowment**
**funds**
**to the nearest £**|**Endowment**
**funds**
**to the nearest £**|**Total funds**
**to the nearest £**|**Total funds**
**to the nearest £**|**Last year**
**to the nearest £**|
|---|---|---|---|---|---|---|---|---|
|Donations and legacies|£3,832|**-**||**-**||**3,832**||**-**|
|Other receipts|£56
**-**
**-**
**-**
**-**
**-**
**-**
**3,888**
**-**
**-**
**-**
**3,888**
**765**
**3,141**
**419**
**-**
**-**
**-**
**-**
**-**
**-**
**4,325**
**-**
**-**
**4,325**
**- 437**
**-**
**617**
**180**|**-**||**-**||**56**||**-**|
||**-**|**-**||**-**||**-**||**-**|
||**-**|**-**||**-**||**-**||**-**|
||**-**|**-**||**-**||**-**||**-**|
||**-**|**-**||**-**||**-**||**-**|
||**-**|**-**||**-**||**-**||**-**|
||**-**|**-**||**-**||**-**||**-**|
|**_Sub total_**_(Gross income for_
_AR)_|**3,888**|**-**||**-**||**3,888**||**-**|
||||||||||
|**A2 Asset and investment sales,**
**(see table).**|||||||||
||**-**||||||||
||**-**|||||||**-**|
|**_Sub total_**|**-**|||||||**-**|
|**_Total receipts_ **
**A3 Payments**|||||||||
|||||||||**-**|
||||||||||
|GeneratingFunds|**765**|||||||**-**|
|Charitable Activities|**3,141**|||||||**-**|
|Support Costs|**419**|||||||**-**|
||**-**|||||||**-**|
||**-**|||||||**-**|
||**-**|||||||**-**|
||**-**|||||||**-**|
||**-**|||||||**-**|
||**-**|||||||**-**|
|**_Sub total_ **|**4,325**|||||||**-**|
||||||||||
|**A4 Asset and investment**
**purchases, (see table)**|||||||||
||||||||||
||**-**||||||||
|**_Sub total_ **|**-**|||||||**-**|
|**_Total payments_ **
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**|||||||||
|||||||||**-**|
||||||||||
||**- 437**|**-**||||**- 437**||**-**|
||**-**|**-**||||**-**||**-**|
||**617**|**-**||||**617**||**-**|
||**180**|**-**||||**180**||**-**|
## **Section B Statement of assets and liabilities at the end of the period**
|**Categories**
**B1 Cash funds**
CCXX R1 accounts (SS)|General Funds
**Details**
1|**Unrestricted**
**funds**
**to nearest £**
**180**
**-**|**Restricted**
**funds**
**to nearest £**
**-**
**-**|**Endowment**
**funds**
**to nearest £**|
|---|---|---|---|---|
||General Funds|**180**|**-**|**-**|
||1|**-**|**-**|**-**
23/03/2026|
|Signed by one or two trustees on
behalf of all the trustees
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B5 Liabilities**
**B3 Investment assets**|||||||**-**|
|---|---|---|---|---|---|---|---|
||||||||**-**|
||||||||OK|
||||||||**Endowment**
**funds**
**to nearest £**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**Current value**
**(optional)**|
||||||**-**||**-**|
||||||**-**||**-**|
||||||**-**||**-**|
||||||**-**||**-**|
||||||**-**||**-**|
||Signature
**Details**
**Details**
Computers & other IT equipment
Gazebo & event material
Branded clothing
Promitional Material||**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
Scott Hutchings
Sarah Hutchings||||**Current value**
**(optional)**|
||||||||**500**|
||||||||**300**|
||||||||**100**|
||||||||**100**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**-**|
||||||||**When due**
**(optional)**|
|||||||||
|||||||||
|||||||||
|||||||||
|||||||||
|||||||||
||||||||Date of
approval|
||||Scott Hutchings||||23/03/2026|
||||Sarah Hutchings||||23/03/2026|
CCXX R2 accounts (SS)
23/03/2026
2