Trustees’ Annual Report
For the period 1 July 2024 to 30 June 2025
1. Reference and Administrative Details
Charity Name: Tommys Journey
Trustees:
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Lauren Beckett
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• Kayleigh Taylor
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• Callum Harknett
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2. Objectives and Activities
The charity exists to support families whose babies have been diagnosed with neonatal hemochromatosis . Support is provided both financially and emotionally , helping families navigate an extremely challenging and often traumatic time.
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The charity aims to: • Provide financial assistance to affected families
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Offer emotional support and guidance
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Raise awareness of neonatal liver conditions
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Promote the importance of organ donation
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3. Activities Undertaken
During the reporting period, the charity carried out a range of fundraising and awareness activities, including:
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Raffle Fundraiser: The charity was kindly gifted tickets to
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Dancing on Ice by Virgin. These were used as a raffle prize to raise funds, generating engagement and support.
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Quiz Night (Planned Event): A quiz night was organised;
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however, the event did not go ahead. Despite this, attendees who
had purchased tickets generously allowed the charity to retain their contributions as donations.
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500-Mile Challenge: A 24-hour mission covering 500 miles
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was successfully completed as a fundraising and awareness initiative.
• Skydive Fundraiser: Three individuals took part in a sponsored skydive to raise funds and awareness for the charity.
These activities contributed to both fundraising and increasing awareness of neonatal liver conditions.
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4. Achievements and Performance
During this period, the charity made significant progress in raising awareness and funds.
Key achievements include:
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Raising a total of £13,590.14 through donations and
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fundraising efforts
• Increasing public awareness of liver failure and disease in newborns
• Promoting understanding of the importance of organ donation
Although there were no newly diagnosed cases of neonatal hemochromatosis in the UK during this period, which is a positive outcome, the charity continued its efforts in awareness and fundraising to ensure readiness to support families in need.
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5. Financial Review
The charity’s income for the year was approximately £13,590.14 , generated entirely through donations, including fundraising events and sponsorship.
Expenditure during the period was approximately £2,306 , supporting the charity’s objectives and operations.
The charity continues to manage its funds responsibly to ensure resources are available to support beneficiaries when needed.
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6. Reserves Policy
The charity retains funds to ensure it is able to respond quickly and effectively to families in need of support, particularly given the unpredictable nature of diagnoses.
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7. Plans for Future Periods
The charity recognises that there were no new diagnosed cases in the UK during this period. While this is a positive development, it presents a challenge in terms of direct beneficiary support.
As a result, the charity will consider:
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Expanding eligibility to support a wider group of families
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affected by neonatal liver conditions
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Continuing to raise awareness and educate the public
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Maintaining fundraising efforts to ensure sustainability
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8. Statement of Trustees’ Responsibilities
The trustees are responsible for preparing the Trustees’ Annual Report and financial statements in accordance with applicable law and regulations.
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9. Approval
This report was approved by the trustees and signed on their behalf.
10. Public Benefit
The trustees confirm that they have complied with their duty under section 17 of the Charities Act 2011 to have due regard to the Charity Commission’s guidance on public benefit.
Tommys Journey exists to provide support to families affected by neonatal hemochromatosis , a rare and serious condition affecting newborn babies. The charity delivers public benefit by:
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Providing financial assistance to families during periods of
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significant emotional and financial hardship
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Offering emotional support and guidance to those affected
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Raising awareness of neonatal liver disease and its impact
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Promoting the importance of organ donation to the wider
public
Although no new cases were identified in the UK during this reporting period, the charity continued to provide public benefit through its awareness campaigns and fundraising activities, ensuring preparedness to support future beneficiaries.
11. Financial Summary
Income
Total income for the period was £13,590.14 , generated entirely through voluntary donations, including fundraising events, sponsorship, and individual contributions.
Expenditure
Total expenditure for the period was approximately £2,306 , which was used to support the charity’s activities and operational costs.
Net Movement in Funds
This resulted in a net surplus of approximately £11,284.14 for the year.
Reserves Position
The charity holds its reserves to ensure it can respond promptly to families requiring support, particularly given the unpredictable nature of neonatal hemochromatosis diagnoses.
Signed: Lauren Beckett Trustee and Charity Chair
Date: 30/04/2026