Report of the Trustees for the period 15 September 2023 to 31 December 2024.
REFERENCE AND ADMINISTRATIVE DETAILS.
Registered charity number: 1204750
Principal address 214 China Works 100 Black Prince Road London SE1 7SJ
Trustees
Dr Roma A Armstrong (appointed 20.5.24) Ms Dawn Clements (appointed 20.5.24, resigned 3.8.25) Mr John Cordner Mr Richard J D Etienne Dr Dawn M Farrar (appointed 20.5.24) Mrs Jacqui Newton (resigned 31.5.25) Mr Jack Richardson (resigned 16.6.25) Mr Paul Sinclare Ms Emily J Sturdy (appointed 20.5.24, resigned 15.7.25) Ms Susan Wilson
STRUCTURE, GOVERNANCE AND MANAGEMENT
The charity is constituted as a Charitable Incorporated Organisation (CIO) and is governed by its constitution. The charity is governed by its board of trustees, who are recruited through public advertisement and appointed by the existing trustees
OBJECTIVES AND ACTIVITIES
The charity was incorporated as a Charitable Incorporated Organisation (CIO) on 15 September 2023. It remained dormant for the period under review to 31 December 2024. The charity took over all the assets and liabilities, personnel and goodwill of the predecessor charity on 1 January 2025 and continued all the charitable activities uninterrupted.
Since 1 January 2025 the charity has continued to meet its aims of providing information, support, research funding and awareness raising that were undertaken by SarcoidosisUK in its previous legal structure.
“Information: We provide accurate and detailed information to people with sarcoidosis, their carers, healthcare professionals and anyone else personally or professionally a�ected by sarcoidosis.
the UK.
Research: We raise funds and invest them into medical research focussed on understanding and ultimately working towards a cure for sarcoidosis.
Awareness: We recognise that the understanding and awareness of sarcoidosis needs to be improved further for both the medical profession and the general public. We aim to raise awareness through everything we do. “
guidance on public benefit when reviewing the charity’s aims and objectives in planning future activities.
ACHIEVEMENTS AND PERFORMANCE
The CIO charity was dormant for the whole period under review, from incorporation on 15 September 2023 to 31 December 2024. The charity commenced activities on 1 January 2025. The transfer of assets and liabilities from the previous entity to the Charitable Incorporated Organisation (CIO) started on 1 January 2025 and was completed by 15 January 2025.
FINANCIAL REVIEW
The charity was dormant during the period under review and has not prepared any financial statements as it had no assets or liabilities and did not undertake any financial activities.
Reserves policy: As the charity was not active, there were no funds or activities and no reserves to consider.
From 1 January 2025 the trustees intend to maintain free reserves in unrestricted funds at a level which equates to approximately six months of unrestricted charitable expenditure. The trustees consider that this level will provide su�icient funds to respond to any significant change in circumstances and ensure that there are su�icient funds available to cover support and governance costs.
Approved by order of the board of trustees on
29th October 2025
and signed on its behalf by:
Susan Wilson
Ms Susan Wilson - Trustee