# NATIONAL DOWN SYNDROME POLICY GROUP

## Details

- **Country:** England & Wales
- **Charity number:** 1204298
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Aug. 10, 2023
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1204298


## Contact

- **Address:** PO BOX 576 PO BOX, TUNBRIDGE WELLS
- **Postcode:** TN2 9WJ
- **Phone:** 07515121733
- **Email:** contact@ndspg.org
- **Website:** https://ndspg.org/



## Activities

**Objects:** TO RELIEVE THE NEEDS OF PEOPLE WITH DOWN SYNDROME, THEIR PARENTS, FAMILIES, AND CARERS, IN ENGLAND, SCOTLAND AND WALES, IN PARTICULAR BUT NOT EXCLUSIVELY BYA) THE PROVISION OF FORUMS TO FACILITATE DISCUSSION BETWEEN PEOPLE WITH DOWN SYNDROME, ORGANISATIONS THAT REPRESENT THEM, AND ORGANISATIONS THAT PROVIDE SUPPORT, CARE, OR SERVICES TO PEOPLE WITH DOWN SYNDROME.B) THE COLLATION AND DISSEMINATION OF INFORMATION AND BEST PRACTICE IN THE SUPPORT OF PEOPLE WITH DOWN SYNDROME IN ACCESSING SERVICES, IN PARTICULAR, BUT NOT EXCLUSIVELY, IN MATERNITY CARE, HEALTHCARE, EDUCATION, HOUSING, SOCIAL CARE AND EMPLOYMENT.C) THE PROVISION OF SUPPORT TO LOCAL SUPPORT GROUPS TO FACILITATE CLOSER NETWORKING AND HELP IMPROVE KNOWLEDGE AND SKILLS WITH THE AIM TO HELP THEM BE MORE EFFECTIVE IN THE WORK THEY DO.

**Activities:** To relieve the needs of people with Down syndrome, their parents, families, and carers by the provision of forums to facilitate discussion between people with Down syndrome, organisations that represent them, and organisations that provide support, care, or services to people with Down syndrome.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** Disability
- **Who:** People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £1624 | £8718 | — | — |
| March 31, 2024 | £20514 | £2467 | — | — |



## Trustees

- **Julie Duff** (Chair) — appointed May 27, 2025
- Angie Emrys-Jones — appointed May 27, 2025
- CAROLINE WARREN — appointed Aug. 10, 2023
- Dr ELIZABETH JANE CORCORAN — appointed Aug. 10, 2023
- Florence Garrett — appointed Sept. 8, 2025
- Jonathan Angus — appointed Aug. 19, 2025
- Ken Ross OBE — appointed Aug. 10, 2023
- Lucienne Cooper — appointed Aug. 10, 2023
- Lynn Murray — appointed May 27, 2025
- Nicola Enoch — appointed Aug. 10, 2023
- PETER BRACKETT — appointed Aug. 10, 2023
- Rachael Ross — appointed Aug. 10, 2023
- Thomas Fionn Crombie Angus — appointed Aug. 19, 2025