Opie Jones Foundation Annual General Meeting (AGM)
Date : 23.6.25
Time : 20:30
Location : Virtual Opie Jones Foundation.
AGM 23 June 2025
Opie Jones Foundation summary of purposes – To support the physical, emotional and mental health of patients and their parents, guardians and families affected by childhood cancer; Raising awareness of childhood cancer and advocating for earlier access to NICE and/or MHRA Approved Cell and Gene Therapy for the treatment of childhood cancer.
The organisation provides grants to family members or patients of childhood cancer, to access approved therapies which support their physical, emotional and mental health. The grant process is through application. If successful, the charity pays the approved provider directly. The grant is to be used within one year and has a maximum amount applied.
The trustees have regard for guidance issued by the Charity Commission on public benefit.
The trustees work to uphold the objectives of the charity as set out in the governing document.
The charity has provided support for parents of children who have or have had treatment for childhood cancer, 3 wellbeing grants have been successfully applied for and enabled parents to access therapy. A fourth sibling grant has been enquired about, which may lead to a grant award.
The charity held its first support group in June for parents of children who have received a diagnosis of cancer. The event was informal, and another group is planned for September.
Lucy has attended several high-profile events and taken part in interviews to raise awareness of the need for greater mental health support in paediatric cancer and earlier access to approved cell and gene therapies as treatment options for children with cancer. New guidance for conferences which are linked to pharmaceutical companies have been issued, these guidelines will unfortunately have an adverse effect on small charities such as ours i.e. opportunity for networking.
We are due to hold our third annual Climb for Kinder Care in September – raising awareness and funds for the charity.
The financial position of the charity is good. The current funds are unrestricted funds (donations). Increasing access to grants which the charity could benefit from is crucial. Consultations around accessing grants have been held and will be considered for the near future.
In 2026 we want to increase our financial position by accessing grants alongside raising money through donations.
Our trustees have been in position for 3 years, all would like to continue, we have a fifth trustee who may be joining the charity. Our trustees are committed to the charity and its objectives. This expands the skillset and widens the expertise on our board.
The new working name of the charity was formally agreed by the trustees and the charity commission – THRIVE FOUNDATION is the working name moving forward.
Opie Jones Foundation Income and Expenditure Account For the Year Ending 1st March 2025
Income
24/25
23/24
02/03/24 - 01/03/25
14/06/23 - 01/03/24
£
£
| Sales Donations Speaking Engagements Sales Sum Up Fees Paypal Fees Total Income Just Giving Subscription Website/Email Advertising and Promotion Consultancy Fees Travel Accountancy Fees Services Paid For Family Support Sum Up Card Machine Staff Training Surplus/(Deficit for the year Balance brought forward Balance carried forward d comprises Co-op Community Directplus A/C VAT |
|||||||
|---|---|---|---|---|---|---|---|
| 3125.00 | 0.00 | ||||||
| 22025.06 | 14585.51 | ||||||
| 833.69 | 0.00 | ||||||
| 25983.75 | 14585.51 | ||||||
| 1.59 | 0.00 | ||||||
| 83.03 | 0.00 | ||||||
| 84.62 | 0.00 | ||||||
| 25899.13 | 14585.51 | ||||||
| 45.00 | 30.00 | ||||||
| 425.00 | 597.62 | ||||||
| 4219.19 | 74.52 | ||||||
| 0.00 | 350.00 | ||||||
| -433.00 | 433.38 | ||||||
| 419.80 | 0.00 | ||||||
| 1350.00 | 0.00 | ||||||
| 46.80 | 0.00 | ||||||
| 120.00 | 0.00 | ||||||
| 6192.79 | 1485.52 | ||||||
| 19706.34 | 13099.99 | ||||||
| 13099.99 | As at 1st March 24 | 0.00 | |||||
| 32806.33 | 13099.99 | ||||||
| 32814.00 | As at 1st March 2025 | 12965.08 | As at 1st March 2024 | ||||
| -7.67 | 134.91 | ||||||
| 32806.33 | 13099.99 | ||||||
Income
Less Cost of Sales
Expenses
Balance carried forward comprises
Independent examiner's report on the accounts
Section A Independent Examiner’s Report
Report to the trustees/ Opie Jones Foundation members of
| On accounts for the year ended Set out on pages |
01/03/2025 | Charity no (if any) |
1203559 |
|---|---|---|---|
| 1-2 (remember to include the page numbers of additional sheets) |
I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 01/03/2025
Responsibilities and As the charity's trustees, you are responsible for the preparation of the basis of report accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
-
Independent
-
examiner's statement I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination (other than that disclosed below *) which gives me cause to believe that in, any material respect:
-
the accounting records were not kept in accordance with section 130 of the Charities Act; or
-
the accounts did not accord with the accounting records; or
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the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
- Please delete the words in the brackets if they do not apply.
Signed: Yvette Smart Date: 14/04/2025 Name: Yvette Smart – Simplex Solutions Relevant professional qualification(s) or body (if any): Address: 33 Hoylake Drive, Farcet, Peterborough, PE7 3BD
Oct 2018
1
IER
Section B Disclosure
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
Give here brief details of any items that the examiner wishes to disclose .
Nothing to report.
Oct 2018
2
IER