Defibbers Cymru
Trustee Annual Report
February 2024 – January 2025 :
The objects of the Charitable Incorporated Organisation is to:
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Promote and protect the physical health and wellbeing of persons and their families throughout Wales who have an implantable cardioverter defibrillator (ICD) or a cardiac re-synchronization with therapy (CRT) by:
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Publishing and distributing information booklets on the conditions of living with an implantable cardiac device.
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Providing advice to patients who are pre-implant or post-implant on expectations of what it is like living with an ICD/CRT-d.
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Facilitating meetings and conferences to give an opportunity for information sharing between patients, carers, health professionals and guest speakers.
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Working in partnership with organisations to improve the health care for persons with ICD/CRT-D, across NHS Wales services.
Defibbers Cymru has continued to promote and protect the physical health and wellbeing of persons and their families throughout Wales who have an ICD/CRT-D implant. This has been achieved by publishing and distributing information booklets to hospital settings across Wales. The information booklets have been funded by the National Lottery Awards for All grant. The booklet is presented in a folder. Any additional information is added to this folder for members to take away with them to read, digest the information and share with family, friends and employers.
Each information pack has a questionnaire, and the response has been exciting with many commenting that the booklet has given them piece of mind.
Defibbers Cymru Trustee have provided an advice service to patients who are waiting or have had an implant to explain there is life after an implant. Several patients have accessed this area and have realised that patients become frightened and don’t have anywhere to turn in the evenings and on weekends. This is when we tend to have more contacts.
Facilitating meetings has continued but more in the South. We are currently in the process of re-printing the booklet to ensure that the information within the booklet is correct. We have the support of the NHS Executive who are happy to support us.
Defibbers Cymru Trustee Report 1
Working with partners has continued during this period. Both the Chair and Secretary of the group attend DVLA Patient Panels where concerns, issues are raised. Information gathered at these meetings is then presented to the members.
Work has continued with Cardiff Metropolitan University by attending community events to read blood pressures. No medical advice is given but if blood pressure readings are high an information booklet is given to the participant advising them of actions to take.
Recently Defibbers Cymru have been involved with a project being run by Cardiff Metropolitan University looking at Cardiovascular Research, Innovation and Development (CURIAD). This is an exciting project to be involved in.
Defibbers Cymru continue to work with Save a Life Cymru to promote CPR which several of our members have survived an out of hospital cardiac arrest, due to the quick actions of the public. Trustees attended an event at the Senedd and had the opportunity to promote the work of the group.
Mike Morgan Sandra Davies Chair Secretary
Defibbers Cymru Trustee Report 2
Defibbers Cymru Income and Expenditure 1-02-2024 – 31-01-2025 Charity Number: 1203505
| National Lottery Awards for All Total Grant received £13,590 |
Award received September 2024 |
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|---|---|---|---|---|---|
| Balance Sheet | Total Expenditure | Balance | |||
| Date | Budget Code | Balance to start | 13,950.00 | ||
| 2 Dec 2024 | A4A01 2024 | Info Booklets | 4,930.00 | 5,210.00 | 9,020.00 |
| 25 Nov 2024 | A4A02 2024 | Pull upbanners | 280.00 | 5,490.00 | 8,740.00 |
| 13 Nov 2024 | A4A06 2024 | Website | 20.00 | 5,510.00 | 8,720.00 |
| 13 Nov 2024 | A4A05 2024 | Badges | 146.95 | 5,656.95 | 8,573.05 |
| 6 Dec 2024 | A4A04 2024 | Video | 800.00 | 6,456.95 | 7,773.05 |
| 06-Jan-2025 | A4A03 2024 | Borderstore/Leta Engineering | 30.00 | 6,486.95 | 7,743.05 |
| 03-Feb-2025 | A4A01 2024 | Travel Expenses(deliveryof booklets) | 44.55 | 6,531.50 | 7,698.50 |
| 28-Jan-2025 | A4A01 2024 | Buffet for booklet launch | 623.64 | 7,155.14 | 7,074.86 |
| 28-Jan-2025 | A4A03 2024 | Borderstore/Leta Engineering | 30.00 | 7,185.14 | 7,044.86 |