2024-01-31-accounts

Trustees' Annual Report for the period

Period start date Day28th Mon 2023 From January To

Period end date Day 30th Month Year November 2024

Section A Reference and administration details

Charity name Defibbers Cymru Other names charity is known by N/A Registered charity number (if any) 1203505 Charity's principal address 55 Heol Barri Energlyn Caerphilly Postcode CF83 2LX

Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10	Trustee name	Office (if any)	Dates acted if not for whole **year N/A **	Name of person (or body) entitled to appoint trustee (ifany)
	Michael Morgan	Chair
	Sandra Davies	Secretary/Treasurer
	Lynne Morgan	Trustee
	Jeffrey Peter Davies	Trustee
	Sylvia Jones	Trustee
	Paul Jones	Trustee
	Dawn Watkins	Trustee

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name	Dates acted if not for whole year
N/A

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address
County Voluntary Council	Gwent Association of Voluntary Organisations (GAVO)	c/o Cherry Tree House, Carlton Drive Pen y Fan NP11 4EA Email: [e-mail];

Name of chief executive or names of senior staff members (Optional information)

N/A The organisation has no paid employees.

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Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

Foundation model constitution

• (eg. trust deed, constitution)

How the charity is constituted Charitable Incorporated Organisation (CIO)

• (eg. trust, association, company)

Trustee selection methods

Appointed by Committee

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

• policies and procedures adopted for the induction and training of trustees;

• the charity’s organisational structure and any wider network with which the charity works;

The organisation is in the process of adopting a variety of Policies e.g. Safeguarding, GDPR, EDI etc., The Trustees are liaising with their local county voluntary council for these documents.

Defibbers Cymru work closely with the NHS Executive, Save a Life Cymru who are organisations that provide up to date information for Defibbers Cymru to produce the information booklet. This ensures the information is always up to date. The Organisation gets support from health professionals to provide more information for patients with Implantable Cardiac Defibrillator (ICD).

The Trustees are currently working on a variety of Policies.

• relationship with any related parties;

• trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

The objects of the CIO are:

To promote and protect the physical health and wellbeing of persons and their families throughout Wales who have an implantable cardioverter defibrillator (ICD) or a cardiac resynchronisation with therapy (CRT) by:

Summary of the objects of the charity set out in its governing document

• Publishing and distributing information booklets on the conditions of living with an implantable cardiac device.

• Providing advice to patients who are pre-implant or post-implant on expectations of what it is like living with an ICD/CRT-D.

• Facilitating meetings and conferences to give an opportunity for information sharing between patients, carers, health professionals and guest speakers.

• • Working in partnership with organisations to improve the health care for persons with ICD/CRT-D, across NHS Wales services.

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Defibbers Cymru have successful secured funding from Save a Life Cymru to produce an Information Booklet that patients are given prior to implant of an ICD. The booklet has been produced with the support of the NHS Executive.

The booklet is a source of information to give confidence to patients that life goes on after an implant. This booklet is passed to family, friends, and employers so that there is more understanding of the affect of an implant on an individual.

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

The official launch of the information booklet has taken place.

Future strategies:

It is intended to look at Defibbers Cymru being the umbrella body for smaller support groups across Wales to be established. This will be a long term strategy as the volunteers are members with implants, family and friends.

Additional details of objectives and activities (Optional information)

Defibbers Cymru continue to be led by volunteers. The volunteers are very active within their communities.

Excellent links have been made with NHS professionals which has enable the organisation to develop a Cymru wide organisation.

You may choose to include further statements, where relevant, about:

• policy on grantmaking;

• policy programme related investment;

The booklet is being distributed within the Health Boards of: Betsi Cadwaladr, Aneurin Bevan, Cardiff and Vale, Cwm Taf Morgannwg and Swansea Bay/Hywel Dda University Health Boards.

Each booklet has a questionnaire which directs the information required within the booklet which is being requested by members and patients.

• contribution made by volunteers.

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Section D Achievements and performance

Summary of the main achievements of the charity during the year

Defibbers Cymru was established in 2023. The organisation secured funding from Save a Life Cymru to produce Information booklets for patients who are being told they need an ICD/CRT-D.

The organisations secured National Lottery Awards For All Wales grant to support the organisation to develop and advertise the organisation. An official launch event took place on 28[th] November 2024 at Cardiff Metropolitan University, Cardiff. Invited guests were able to hear our members journeys. The medical professionals in attendance could not speak highly enough about the essential support organisations such as Defibbers Cymru provide to the community.

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Section E Financial review

Close financial management

Brief statement of the

charity’s policy on reserves

Details of any funds materially in deficit

N/A

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

• the charity’s principal sources of funds (including any fundraising);

• how expenditure has supported the key objectives of the charity;

• investment policy and objectives including any ethical investment policy adopted.

Defibbers Cymru principal sources of funds are via Grant applications. During this period the organisation has been successful in securing Save a Life Cymru grants and were recently awarded a grant from National Lottery Awards for All Wales grant.

The grant is Restricted funding and is ‘ring fenced’ for the specifically as per the Terms and Conditions of the grant. Separate budget headings have been set up to ensure budgets are adhered too. The Trustees are aware of the budget available.

The grant application has ensuring that the information for patients is clear.

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Sandra Davies Full name(s) Michael Morgan Position (eg Secretary, Chair, Chair Secretary etc)

Date 27 December 2024

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TAR Mar¢h 2012

Defibbers Cymru Income and Expenditure Charity Number: 1203505

National Lottery Awards for All Total Grant received £13,590
Balance Sheet				Total Expenditure	Balance
Date	Budget Code	Balance to start	13,950.00
2 Dec 2024	A4A01 2024	Info Booklets	4,930.00	5,210.00	9,020.00
25 Nov 2024	A4A02 2024	Pull upbanners	280.00	5,490.00	8,740.00
13 Nov 2024	A4A06 2024	Website	20.00	5,510.00	8,720.00
13 Nov 2024	A4A05 2024	Badges	146.95	5,656.95	8,573.05
6 Dec 2024	A4A04 2024	Video	800.00	6,456.95	7,773.05
				6,456.95	7,773.05
				6,456.95	7,773.05
				6,456.95	7,773.05
				6,456.95	7,773.05