GAND AID UK: For the Year End 31 March 2024 GAND AID UK CIO- FOUNDATION ANNUAL REPORT L al and Administrative Services Trustees Gene Shaun Selby (Chair) Rebea Selby Brian Camey Charity Number 1202691 Principal Address 2 Carr Head New Bam Lane Rossendale BB4 7AQ Financial Examiner SSJ Accounting Ltd 56 Mill Gate Ackworth Pontefract WF7 7PN
GAND AID UK: For the Year End 31 March 2024 Trustees Report P.3-8 Independent examinefs report Statement of financial activities P.10 Notes to the financial ststements P.11
GAND AID UK: For the Year End 31 March 2024 GAND AID UK CIO - FOUNDATION Trustees Report For the Year End 31 March 2024 The annual report covers 01 April 2023 to 31 March 2024 and acknowledges SORP in using its guidan to assist GAND AID UK (iegistered 12 April 2023) and FRS 102 for accounting purposes in compiling the report and meeting its obligations as a registered Charty Incorporated Organisation (CIO) in adopting the 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charffiies preparing their financial statements in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (effective 1 January 2019).. Chair's Report Gene Shaun Selb The report recognises that GAND AID UK is set up for the purposes of its primary users. stskeholders and the stewardship and management of fvnds during and within its fundraising activities. The Charity, in its infancy. has engaged with donors, funders and financial supporters that have helped raise funds within the foundational start-up of the charity. l am satisfied that GAND AID UK has effectrvely targeted appropriate audiences through the creation of a fomal website and associated social rnedia platfomis, and through fijndraising activities provtding direct access to Trustees both online and-or in person. l am, therefore, satisfied that GAND AID UK has created the foundation to build on its first-year achievements and will conttnue to remain financially viable when entering into subsequent years. The report is compiled by the Chafity's Trustees and use of a Company for financial accounting purposes, although the first-yearfs financial income amount falls short of fomial auditing requirements. Ob'ectives and Activities The objectives of the Charity remain unchanged and for. The relief of sickness and the preservation and protection of health for the Public Benefit of people affected by or suffering from GATAD2B-ASSOCIATED NEURODEVELOPMENTAL DISORDER {GAND) and in particular but without limitation by a) providing advi. education and support for such persons and their families including the provision of se1 dogs b) raising awareness about GAND and providing infomiation and advi to members of the medical profession and c) funding research into GAND and early identification and possible treatment. In response, the Charity has created a formal website (gandaiduk.org) with associated social media ass, 'get involved. contact infomiation and useful resource links in both providing information and raising awareness.
GAND AID UK: Forthe Year End 31 March 2024 The Charty organised a number of fvndraising events in generating fijrther awareness and subscribed to the Global 'Rare Disease. Day carnpan using both the UK and European platforms. The Charity is currently compiling a database of affected familFes consenting to the use of their data for medical research purposes. The Chartty is continuing to work with and through a number of netwoths to increase its reach to those organisations and professions that are able to contribute to its charitable aims and objectives. Publlc Beneftt Statement The Trustees meet on a scheduled basis to plan. review and implement the Charrvs strategy with the Trustees paying due regard to the guidan on its obligations to deliver activities for the Public Benefft. as those described and issued by the Charity Commission. The Charity is confident that it has initiated the tyFEs of activities that provides a Public Benefrt through its early actions, and has put in place a foundation in which it is able to reach its intended target groups and families. Achievement and Perfomiance The Charity is continuing with research into GAND Syndrome and other associated neurodevelopmental issues that are impacting UK families. And, using ts personal experien and internal motivation to reach its intended aUdIenS it is continuing to build its resour pool to support beneficiaries which in tum will help the Charity to build the necessary skills for delivery purposes. Website The Charity has created a fomial website that provides in-depth details on (a) the rare genetic neurodevelopmental disorder {b) 'Our Story, detailing a fami'S GAND joumey (c) resources links (d) 'Get Involved, and (e) activities and donation page. The website is continually updated with the latest news and features. The website provides information on the most rent research i.e. "Gatad2b. associated Vth the neurodevelopmental syndrome GAND, plays a crittcal role in neurodevelopment and cortical patteming. arKI is permitted via open access article distributed under the terms of the Creative Commons CC BY license. Social Media The Charity uses Instagram to pror[te its a1vItIeS wtth over 200+ followers. The use of logo-branded clothing images helps generate further communication reach through indivtdual Facebook accounts and associated platforms. The Charity subscribes to both the UK and European 'Rare Disease, day platforms (https:IAvww.rarediseaseday.orgrfn"endslgand-ahd-uk4 and uses both platfOS to promote its websFte. The Charity has 'become a friend, of EURODIS. which recaives
GAND AID UK: For the Year End 31 March 2024 funding from the European Union's Health PrcMJramme {2021-2027) to help promote the 'Rare Disease, day. Press The Mirror covered the Charty's founders, stoyy 'Girl, 3. gets rare diagnosis after mum nOtid Yloppy. baby struggled to close her hand., which was also acknowledged and covered by the Rossendale Free Press. Merchandise The Charity has secured free dothing (i.e. hoodies} that cary's the GAND AID UK logo. The dothing was worn during fundratsing events and activities in helping raise awareness. Launch: Yorkshire 3 Peaks Fundraisin Event The Yorkshire 3 Peaks fundraising event was the main event both to launch the charity (media exposure) and generate income which in tum fomied part of the largest donations to help kick-start the Charivs income stream. The Charity was further supported by two other UK charities ('Joining Jack, and 'Duchenne UK.), who kindly provided volunteers and promoted the event through their platfomis. Rare Disease Da Februa 2024 This annual event held in February is to promote awareness into rare diseases. The Charity's Trustees delivered a 2-day awareness campaMJn at their local General Practitioners and Bamsley Football Club created a feature in their match-day programme. GAND Famil Folder With the support of Duchenne UK, the Chanty has drafted a 'family information pack, that will be available both online and prinL On completed. International Networks The Charity regularly communicates with 'Helping Hands, the United States charity for GAND Syndrome and shares its achievements, knowledge and information that impact on beneficiaries. EURODIS, aside from the rare disease day campaign. is an organisation providing webinars on GAND Syndrome associated issues and the CharTty's Trustees have accessed a number of online webinars, as part of a wi(lei Twstees training approach. The Charity has registered with the Cedars-sinai Medical Centre (United States), which includes a focus into the study of rare neurogeneb'c disorders with an emphasis on the diagnosis of these type of disorders in patients.
GAND AID UK: Forthe Year End 31 March 2024 Financial review The results for the year ending are shown in the Statement of Financial Activities on page 10 and considered satisfactory by the Trustees This is the Charitls first approach to fvndraising and it will use this experience to mapout appropriate fundraising activities in achieving its financial goab. Reserves Polic At the year end the charity's funds were in credit by £18,781.28 consisting entirely of unrestricted funds generated through donattons. The amortisation of goodwill (£2.000) wilh regard to the setting-up and maintenan of the Charity in the first twetve-morrths wll be reflected in its reseprfe policy with this amount being considered annual operating expenses moving forward. Plans for Future Periods The core objecttve of GAND AID UK is to identify and support UK families affected by the genetic disorder. It is continually promoting its charitable cause and establishing r(self as a registered organisation and increasing its contacts with those suffering with GAND. The Charity is committed to organising an inaugural 2025 UK-based GAND Conference specifically targeting UK families and professionals in the field of neurodevelopment provision. It is the intention to calendar fundraising everrts and aciivibes to further promote the Charity's cause and raise funds to support beneficiaries. Inviting small grant bids from GAND-affected patients for support servi$ i.e. physiotherapy that remain outside of mainstream provision. To have a least one Charity-funded person complete an Animal-assisted Therapy Leaderfs course, to support and widen the Charity's offer to beneficiartes. To increase the number of Trustees, as per the Charity's constitutFOn. Risk Mana ement The Trustees have reviewed their risk register (G0veman, Strategic. Compliance, Operational. Financial, Extemal and RepuLgtional) which in tum shapes and influences the Charty in ensuring that appropriate controls are in place and to redu exposure to misunderstanding. eor and potential fraud. Recruitment and A intment of New Tnistees At the point of the CIO registratton {i.e. application). it was stated that the nominated Trustees were best suited to initiate the CIO based both on their broader and professional experienS. At the start-up of the Charity, it was stated that no less than three {3) and no more than six {6) would be selectedlelected as Trustees.
GAND AID UK: For the Year End 31 March 2024 The existing Trustees are skIng to add a further thr Trustees to redu the risk of potential 'Conflicts of Interest, and will take responsibilty for Ihe appointment of Trustees in line with the Charity's constitution. Trustee Trainin The initial Trustees have prior experience of working with Charities" however, the Trustees are familiar with the Government's 'Welcome Pack. (since updated) and in particular guidan documents pertaining to: Charity reporting and accounting: the essentials November 2016 (CC15d) Intemal financial controls for charities: protect your charity from fraud and loss (CC8) In addition, the Charity has utilised the SORP navigator in downloading applicable modules selected by the Charity which in tum provided the necessary details for Charities FRS {102) purposes (Accounting and reporting by charities: the statement of recommended practi (SORP}- scope and application). Structure, Governance and Management GAND AID UK is a Charitable Incorporated Organisation (CIO - Foundation) govemed by a constilub'on dated 09 Augusl 2022. The Charity was registered on 12 April 2023 by the Charity Commission for England and Wales. The Trustees who served during the year are". G S Selby R L Selby B Camey The day-to-day management remains the responsibility of R L Selby and B Camey with senior management G S Selby {Chair) taking iespork8ibility for reporting purposes, policy development and financial management. On 13 July 2023. GAND AID UK sucGessfully applied to the Charities Aid Foundation (CAF) Bank. a banking Servi for over 14.000 charities. Registered offi. 25 Kings Hill Avenue. Kings Hill. West Malling, Kent ME1g 4Ja Registered in England and Wales urKler number 1837656 The Charity deploys an enhancEd security with dual authorisation needed for payment purposes.
GAND AID UL- For the Year End 31 March 2024 Statoment of the Trustees Res nsiblllties The primary purpose of the trustees. annual report is to ensure that the charity is: - publicly accountable to its stakeholders for the stewardshtp and management of the funds it holds on trust - the report is considered a coherent d(Kutnent [nting the requirements of law and regulation - rt provides a fair, balanced and understsndable review of the charity's structure, legal purposes, objectives, activities. financial performance and financial position - Ft explains what the charity is set up to do. how it is going about ¢ and what is achieved as a result of tis work - assess the charity's progress against its objectives and to understsnd its plans in relation to its purposes. The TruStS remain responsible for maintsining appropTiate accounting records and providing financial ststements in line with the Charities Act (2011), the Charity Regulations {2008) and within the articles of the Constitution in helping to reduce the vulnerabilty to financial fraud and irregularity. The Trustees Report was approved on 20 January 2025 by the Board of Trustees: Gene Shaun Selby Trustee (Chair) Date: 20 January 2025
GAND AID UL- Forthe Year End 31 March 2024 Inde endent Examiners Re ort Respective responsibilitses of trustees arKI examiner: The charity's twstees are SponSIble for the preparation of the financial statements. The charity's trustees Gonsider that an audit is not required for this period under section 144{1) of the Chariiies Act 2011 (the 2011 Act) and that an independent examination is needed. It is my responsibilty to: (i) examine the financial statements under section 145 of the 2011 Act" (li) to follow the procedures laid down in the general Ditections given by the Charity Commission under section 145(5)(b) of the 2011 Act", and (iii) to state whether particular matters have come to my attention. Foundation for Examiner Re ort The examinatton was conducted in accordan wilh directives provided by the Charity Commission, that the examination induded a review of the acGounting records kept by the Charity and an assessment of the financial statements submitted with those records. The prOdureS undertaken do not provide all the eviden that woukl be required in an audit and consequenlly no opinion is given as to whether the financial statements present a 'true and fair view, and the report is l&mited to those matters set out in the statement below. Independent examinerfs statement In piecing together the examinalion, no matters have arisen that: (a) gives me reasonable cause to believe that in any material respect the requirements: (i) to maintsin accounting records in accordance with section 130 of the 2011 Act. and; (li) to prepare financial statements which accord with the accounting records, and comply with the a¢Unting requirements of 2011 Act; have not been met or (b) to which. in my opinion. attention slK>uld be drawn in order to enable a proper understanding of the financial statements to be reached. SSJ Accounting Limited 56 Millgate, Ackworth Pontefract. West Yotkshire WF7 7PN
GAND AID UX= For the Year End 31 March 2024 For the Year End 31 March 2024 Income & Expenditure Year 1 Income Donations Interest ReIved 18.820.70 19.58 TOTAL INCOME 18.840.28 Expenditure Bank & Finan charges 59.00 Surplus 18,781.28 Thè Financial Statement was approved by the Board of Tnjstees on 20 January 2025 and was signed on its behalf by. Gene Shaun Selby Trustee (Chair) Date: 20 January 2025 io
GAND AID UK: For the Year End 31 March 2024 Notss to the Financial Statement 1. Donations were made directly to either the CAF Bank's sort code and account number or via the Charity's Web 'donation' page that linked directly to the CAF Bank account This induded the Chariws Launch Event which raised £14, 194.38 2. Interest received was generated via the amounts held in the CAF Bank account 3. Expenditure was attributed to bank and finan charges associated with CAF Banking policies Accountin Policies 1. Goin (a) At the time of approviro the financial statements. the Trustees consider that they have made a reasonable start within their 1St_year and maintain an expectation that the charty has generated sufficient reSoUrS to continue in operational existence for the foreseeable future. 2. Incomin resources (a) Income amounts can be measured reliabty with donors encouraged to pay directly into the CAF Bank account. (i) These amounts remain unrestricted funds until such time that condrtions are placed on funds. It is not the intention lo hokl any 'cash in-hand, amounts. 3. Governan Costs (a) To date, there is no a$Slated expenditure with the Charity's activities or administrab've services li