North Staffs and South Cheshire Kidney Patlènts Association Chari No 1201926 Trusta8s Rèport and Financial Statements fgrthe year ended 31 D•cemb•r 2024 JAT Adminl$tratlon 1, Brookfield Drtve Holmes Chapèl Crewe CW4 7DT North Staffs and South Ch•$hlre Kldn8y Patlents *s80clatSon t4 Ann or the ron ed 31 Decemb The Tru51ees have pleasure in presentlng thair annual r&port together with Ihe accounts fDr the ygar erk1ed 31 De¢erDber 2024. Rèference and odminl$tratian detaits The ¢th8rity r4istratK)n number is 1201926 The chariws principal a￿d￿sS 24 Avon Dnve, Conglelon, Cheshire, CW12 3RG The narnes of the charityTruslees who Manage the charity are dets1￿ David Ketby- Chairperson & T￿aSU￿r Lesley Lloyd Judith New¢omb&- Stsfford rep￿sentatiVe Neil GartJelt- Vice Chair & St¢)ke representative Louis6 Collins- R88igned 11th September 2024 Eunice Finney Llsa Foley- Secretary & Leighton r8presentsts'v8 The banker8 are HSBC, Crovm Bank, Hanley, Stoke on Trent, Staffordshire, ST1 1DA The independaftt examiners are JAT Adn7inislraik)n. 18r￿kfie1d Drive. Hdme$ Chapel. Crewe CW4 70T Introduction The charity wa5 origlnalty set up in 1982 as the North Staffs Kidney P8tients Association. In order lo better represent the area vere¢ by tho charliy the name w28 changed to North Slarrs and South Cheshlre ￿￿nsY Pauents As$odaik)n in 2021. The curr8nt charity was changed from a foun(Jation type Gharity to a charitab￿ Incorpordted Organisation in February 2023. AII funds We￿ ir¥nsfer¢d to the new cha￿ty0n 26 February 2023. Con$t6tutlo The ¢harity 1$ governed by Its constitirtioft. Th? cha￿ty is set up as a chari12b￿ Incorwrated OrganL%atlon wth only the trustees th8t Can vote. ManagemEnt The challty is managed by a Commrttee of Trustees who meet rTh)nthSy. In additk)n. an Annu¥l General Meetng is held whi¢h Is o￿n tr> all. Professlonal IndÈmn The NSSCKPA (%rrk￿ Professional Intlemnty ￿Ver for 211 officlal8 and Trustse$ o* the tharlty. Ele¢Von 01 trusts¢s l the trustees ore volunteets who have an interest in our objectNe. Generally. trustees contact the ch8rty ¥then we express a need to increasg the numtser or by word of mouth lo our representatlves at the three kidn&y bèalment ￿￿tr*S we Cover. The Ihfft ￿ntre$ we ¢over are part of the UniveTsity Hospital of North Midlands NHS Trust at bcations in Stoke, Stsfford and Crewe. Once an initial contaGt has been made, the prospe¢tive trusteg Invited lo loin us st a typical committee m8ttSng. At Ihe inib81 meetng, or after. the prospe¢tNe trustee will be Ésked rfthey still wish to join us. If both the existing comrnittee rnembers and the prospective trustee are satisfied. then the prospeclve trustees wlll be elected iololn the committee and become a Tgus*e. North Staffs and South Che$hlrg Kldn•y Patlents As$o¢latlon Annual ort contIn￿d For the ar ended 31 December 2024 Objectsve The ObFctNe ofthe Charity 15 as stated kn out Constitution, repe8tsd bdow for cL8rity TO PROMOTE THE RELIEF OF PERSONS SUFFERING FROM KIDNEY DISEASE OR RENAL FAILURE BY ThE PROVISION OF FACILITIES AND EQUIPMENT WITH THE 08JECTIVE OF IMPROVING THEIR CONOITIONS OF LIFE AND WHO ARE BEING TREATED BY THE UNIVERSITY HOSPITAL OF NORTH MIDLANDS TRUST FROM, OR AT. LOCATIONS IN STOKE ON TRENT, STAFFORD AND CREWE £tlvltie$ RENAL MEETING- ThL8 Tr*&tlng is a meeting s&t up and njn by the Unfversity Hospftal of North bAldlands Trust and Is held On 8 monthly basis. Here where all issues contsming Ihe rnan?geTrEnt of the th￿e kidney units. run by IlTre trust. are disoJssÈd. The NSSCKPA bas a slot on the agenda of Ihal meetin9 Whe￿ It ran raise patbnt rdated issues which are of c￿Cern lo the NSSCKPA. MIDLANDS KIDNEY NETWORK. We are forbjnate that our v￿8- Chair has an Interfac8 wtth this organlsation. Thi% 8lk)ws the NSSCKPA to ￿ able lo make input direGty to tho Midlands KiLSney Network and to re￿1Ve infornation disojssed al rneeting5 whsGh is relevanttJ) the NSSCKPA INTERFACES WITH PATI&NTS AND HOSPITAL STAFF- Al 8ath of the three Kidney unlts. managed by tt)e UHNIJT i.e. at Stoke on Tr8nt. Stafford and Crewelcurrently vacantl, the NSSCKPA has patient representstrves whKh allows the NSSCKPA to be In dlrect eontactyAth patiwts an¢J Strff ￿latiNg ￿ tt)e ￿$typertt and wellbeing of paI￿nts. NKF - The NSSCKPA is alThLqtsd to Iha NKF. bakng able to US8 the NKF ZIKJM software to run the rnonthty and ad hoc meetings digitalty at no cost to the NSSCKPA. Our Chair is a member of the NKF Chairfs Whatsap Group which 15 a forum for discusslon of all issues affecting the NSSCKPA We •ko endeavour to attend both th8 NKF AGM and Ihe KPA day, where we can meet other KPA ￿preSen￿liveS and *arn firstthand what Ihe NKF 6 working on. KIDNEY CARE UK- We LY3e the Kidney Care UK webstte a$ 8 sourté of Waluab￿ in10m￿t￿n 8nd on r￿a￿OnS where we as a thanty are not able to help patients we do referenqUIr￿ to them. FUND RAISING- Funding 1$ p￿d￿mInantty generated by donation from patients and their relatives and from supportpie groups. We wll be attending a fundraising quiz in th8 near future, but not plan additional swnfficant fundral$lng a¢tfvity at P￿Sent. THE FUTURE - Our oblethe as siateé eadier In thr4 report r6fft2ins unchanged and we Intend to wntioue to pursue all aspects of the work1 of k￿neY care wherp we feel we can rnake an impact. Currently wa see that the followlng 1$6ues WU b8 pr(NJresse(I furth&r in the coming year. To get the patient wo￿8 h8ard at all leve& in Ihè UHNMT, parllcukdy ai Boatdl CEO lev81 Complete the wébsitè update and increase patient imolvernenl with the NSSCKPA ornplele notreboard installation at the Crewe and Stoke on Tr&nt units. Resdve, 88 far 88 we are to, ￿SUeS r&lated to patient transwrt with the local Integratsd ca￿ Boarrjs. Make an iftput tts the ongging rtrorg8n15ation of the NHS through li818on with our lolzl lrtlegrated Care 8o8rds. lrnpmve Ihe interaction tse￿een patients. carets. the NSSCKPA afid hospital stsff, and rnanagers. w iryto crèata coheslveieam woiking closeiyiogethertothe public benelrt. Public ben¢fft When pbnning execubThJ ouractnilts"88. whlch pursued irk ordeTto achi8v8 our obJ8cttve, we as a cornmittee have tsken In￿ a¢¢(KJntthe Charity Cornmk%sioners guldance on the public benefiL The NSSCKPA supports all kldney patients and th8ir carers acrD5s Ihe three areas covered uncler the kidney unts managed bythe UHNMT. In particutar. we focus on the issues and drfficullies often faced by those on diatysls and those wailing on Ilsts for tr2nsplants, butwe also airn lo support all Iho$e that have had 8 di8gTh)s(8 of chronic kSdney aisease from one of the thr¢9 units managed by UHNMT. As well as prgvidin9 a¢vl¢o to individuals. the NSSCKPA advocates for bsst practice and tr8atsnents to all kndney patients from the NHS and activety ￿)bb￿S other I￿al govemmeni organTsalons on their behaw. North Staffs and Sothh Cho$hlro lfjdnoy Patients Assoclation Trnstees Annu81 R• ort contlnu ar ended 31 ber2 Achfievemants Convetsion from an Assoclation to 8 COI In February 2023 the charity made application to the Charty Comrni5s¥)n to convert frorn a foUndat￿n to a COI. Th8 primary need for thls ¢hange arose as a Tesuli of a loss of Contact wfth the NSSCKPA rr*mbership due to COVID. Under foundatK)n there was a need to h8v8 participation of m&rnb&rs in decision maklng and th& change to a COI has enatled the de¢isK>n m#￿'n9 to be m8de bythe Trustees only. Web$lte The charity'5 website w35 not funcboning as ft should ané as such it was agreed to review and update il In. Subsequendy 8 contract was let to a small consutsryto do the update. ThLq work continuing &t the Ime of issue of tt)ls ￿port. Transport This was, and continues lo be. a major issue. There have been many com ￿aints made by p8ts"8nts relating, In the malft, to the performance of the Norpemergency Palienl Transport Service. Thls Serv￿e Is not the r8srM)nsibilty of lh$ UHNMT but It is the re8ponsibS1ty of the ICB'S for our area. Init￿allY Ihè Issue$ with transport were identified some 30 month8 ago and slnce thai time we have lobbied th? UHNMT an the local ICB'5 to take action. The problems rovolve around earty pick-up. deley5 to aFriving home and availabilty. These Issue$ are conlnulng to cau$0 Inconv8nlen¢o to pauents and n the worst tr*se even affeLting a¢tu•5 dialysis se5son lengths and frequency. Terms of Referènce. Dunw the year the ￿[￿ll0n$hIp btheen ho$pit81 stsff and the NSSCKPA rep￿sentativeS had become dfficult. In discussions beiwe8n the Flenal Management learn and ourselves a Tenns of Reference docurr*nt has been dèveknped so that boih htsspital staff and our represÈniative$ioinly undersiand the role our repre5entstives play. Communications. sIn￿ the COVIL)-19 epldeml¢ communkaik)ns ￿1h patyents. Ixrers and th8 public in g8nerdl has been dIff￿￿1t and 2024 h85 been a year of rx)ntinuing to try to re-establish that contact. That work has included the ￿￿eW and ovethaul of our website. still ong(yng at this time, review and update of our Facebook sile and re8chlng agreement the UNHMT lo allow us to have notiGeboaTils at 811 three kidney unrfs. At ptpsent (￿lYthe Stafft)rd noti￿ board5 are in place and functr>ning. Patyant Christmas gift8 In dr8GUSSK)n with tho Ren&1 manager￿￿t Team, itwas a gr8ed 8￿pIable that the NSSCKPA could provide a srnall gift for both patients and ststt at all th￿e unts managed by the UHNMT. This took the fomi of a shopping bag fflade of a jut8 aterial which c8rrie(I th8 NSSCKPA1090 which wara distributÉd b&fore Christrnas 2024. Poli¢i¢$ There ¢urrenJy in place covering the followng.. - GOPR - S8fegu8rdlng - Soclal Medla Privacy Policy Pèrformance Ren81 Governance Meeting This is 8n NHS rneeting used by the trust to manaoe the runlling the three units covered at Stoke on T￿n( Stafford and Crewe. Th¢5 is a ￿gUlar monthly m86tsng 8t which the NSSCKPA can raise issues ol conr*m and mDnityr prryress of resolution. has included efforts lo try to ¢learty establish Ihe #greed protocols forthe operat￿n of a system whld) ￿11 allow a￿ly8[$ patients to continue their trealrnenl whilst on holioay. That 15 DAF8 - Dialys1& Away from Base. This worf( ha5 as yet reach&1 8 sati$fauory condu810n. North siaff5 and South Cheshire Kidney Pattents Associatlon Tru ¢$ Ann ontinued For the ar ended 31 Dé mber 20 Purchases We often recewe requests from nursing staff at Ihe hospitals for 8&%iStanr* on behalf of patients an¢J abo on occa5i0n to help wrth treatrnent al tre kidney units. During this y¢aT this has taken the forrn ofthe followng Blood Pressur8 m(￿ltorS for home therdpy patients, A Stsidfft for a patient. no bnger ab￿ to gei up5tsirs ai home. chr￿a$ gifts for Staff and Patients Outside stooge ¢ontainer for dialysls fluKIs. Social Wotker None of the three kidney units run by the UHNldT have resident SocFal w0￿er$ a$ p8rt of the Stsrf r0[np￿rne￿t. Tllis IS Sotnething we t>&l*ve would bénefyt patients. mental health and as such we have carnpaHaned to get thrs changed. However, unfortunately the UHNMT af8 re8triet8d on staff budgats to not being able lo secure this s&rvi¢e. Atso. our fund5 do noi stretch to us ernplowno someone qualifEd to do Ihis job. Flnan¢i¥l R•vl•w The charity Gontinue$ to operfe the Charitsble Incorporaled Organisat￿Tr. Dunno the year the ¢harrty re￿1Ve¢ £5,4e4 from diy)ations and investrwt in(x*ne of£920 E¥penElitiure wa$ £9,214. with £5,479 $peni on equipment 8nd maintenanr The CIO is Gurrenty ugng the bank 3QCOUnt of Ihe original charity as50LX8tion and continues to operate in the charity name. Reserves at 31 D8￿rnber2024 wer& £59,233. Oefecrt in th8 yearwas £2,830 The AssocÈUon's reswvas policy is trj Invest any Surplus funds In a h￿h interest bank account in Order to maximise interest. The NSSCKPA b funded enorety by voluntsry ts)ntsbbLrtv)ns. The trustees dedare that they have approved the tNste6s' r8POrt above. Signe beh ￿ f the thariws tsustees". Davhl Kerby Chatrperson Indeperylenl Examln•*$ R•port to th• Tru$io0s of North Stafts and South Chv5hlre Kidney Pattents Assoclatlon 26 Forthe report on the attached ac¢(yJnts ofthe Charity for the year and&d 31 Decernbgr 2024 set out on page 4. Re8p8Ctlve re8ponslbllltles of trustees and exomlngr The ¢hariWs trust￿ ar? r￿pOnSIble for the preparatK)n of the accounts. The chartys trus￿$ consid*rthat an audit B not required for this year under s8¢bon 144 of the Chaflties Act 2011 Ithe 2011 Act) and that an independent eX8rnnation is n*led. 5t *8 my respI￿r￿lity to-. . exarnwne the ac(xunts under section 145 of Ihe 2011 Arl., ' to folkm the pr(xedures laKI (lown in Ihè G8nw81 D[recU￿9 gfven by th• CIBrtty ConmrnissKJn9r seuh)n 1495llbl of the 2011 Act.. . lo sl•te whether particular m¥ttgts have come to my attention. Basls of Independent oxamlno￿8 8tatem•nt My e¥£minatb?n was carned out in accordance ￿th G8neral Dir&¢ii¢)ns given by the Ch&rityCommis8ion. An examnation inrjudes a reviw of the accounting r8cords kept tjy the charity and a ¢y)rnpart80n of the arxounts presente(J wrth those ￿cords. It also Inducfes w*siderats"on of any unusual Y(erns or di8dosures In the a¢Gounts, and lh8 seekirKJ of 8xplanation8 from you a$ trustees co￿eM￿n9 any such mattgrs. The procedures undertaken (k) not prowde all the evId￿LE that would b8 requirèd in an audit, and consequentty no opinvjn is gNen as to whether the accounts w0s8nt a and falr and th? report is1Smtsd to those m8tters set out in the $tatement beknw. In the course of my examinallcfi, ￿ matt8r has to my attention.. 1. which gives me ￿aSOnable cause to b81i8ve th8t, In any matena1 respgct. the trustees have rK•t metthe r￿LtirementS to ensurè that.. ' proper accounting rerxrds a￿ kept in a¢¢ordan¢e %%ith section 130 of the 2011 A¢t', anil . aecounls are prepared wh￿h agree with the ac￿11*ntIng ￿(￿r￿S ond cornpty with tae 8ccountlng requirements of the 2011 Act,. or 2. to %*thKh, in rny cyinK)n. xttènli¢)n $houKI drawn in order to enablè a propèr understsnding of th& a¢(x)unts to be re8cl*d. Peter T￿daIl ACMA JAT Administratknn 1. 8rookfield Drive, Hcjrnes Chapel C￿we CW4 7DT Date.. Ta￿ 2024 Z023 384 6.479 PuBIagE4￿￿lau1)nPry 401 101 3J81 1381 I￿￿￿1p 29) pkn 359 r2,￿0) 24 Funth Brou•btFonvwd H$8C CwTgnlA